Volunteers and Public Input. Patients are at the core of all brainstorming, program development, and project implementation. In addition to continuous engagement and assessment of the patient population, we have three levels of volunteers who all contribute our success.
Click on Co-Founder photos for links to current CVs
IFAA became an official nonprofit in 2011, but it originated as an awareness movement stemming from a charity bracelet designed with the same beading pattern. This pattern symbolized all people (3 silver, 3 black) working together to create strength (large red) and uniting as a community for change (single, darker silver). We adopted this for our foundation logo and changed it to a molecular structure, honoring how it all began.
Headquarters. IFAA's CEO works through 'virtual officing', which includes membership to various co-working spaces and use of donated workspaces through local companies.
Virtual Officing. When IFAA's founders developed the working structure, they took into account that the patients working for & volunteering services for IFAA would require extreme flexibility to accommodate disease activity & flares - including the opportunity to 'work' when they feel best. Therefore, IFAA is open 24 hours a day, 7 days a week so those involved can participate when they feel best, and in turn, promotes heightened productivity. We have helpers located all over the world who collaborate using online technologies.
"Grouping these diseases together will impact awareness, education, and research, as well as help expedite early detection, referrals, diagnosis, and access to treatments. As a result, we can build a global understanding of these diseases, which will lead to better outcomes for those affected by these diseases," explains CEO, Tiffany Westrich-Robertson. "I understand the need. I experienced onset in 2007, but was delayed in detection, referral, diagnosis, and appropriate treatment. As a result, I have permanent, irreversible, and unnecessary damage in my left wrist. We can change this so future patients do not have to experience these delays, and we will."
Fun Fact: About the Logo
What makes IFAA different than other nonprofits?
From the way we have created our unique organizational model that puts the patient at the heart of all we do to implementing projects that are changing the landscape of healthcare, we are leading the way for 'next generation nonprofits'.Learn more about our unique organizational model.
IFAA Representatives with Dr. Richard Seigel & Dr. John O'Shea, Directors at the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) and the National Institutes of Health (NIH) team.
The International Foundation for Autoimmune & Autoinflammatory Arthritis (IFAA) helps those living with autoimmune and autoinflammatory diseases with arthritis as a major component by utilizing their voices to influence education, advocacy, and research.
IFAA does not represent the patient voice. We are the patient voice. By joining forces with others affected by these diseases, in conjunction with a global network of collaborators, we aim to:
Copyright 2018. All rights reserved. Information on this site is intended for informational purposes only Our foundation does not engage in the practice of medicine. Please consult a physician to obtain personal healthcare and treatment options. Tax ID: 27-1214308