AiArthritis Privacy Policy

Effective Date: 7/1/26


At AiArthritis, we are committed to protecting your privacy and ensuring the security of your personal information, including any health information you choose to share with us. This Privacy Policy explains what information we collect, why we collect it, how we use it, who we share it with, how long we retain it, and the choices you have.


1. Information We Collect


We collect information you voluntarily provide when you interact with AiArthritis, including:


  • Contact information: name, email address, phone number, and mailing address
  • Program and engagement information: volunteer interests, event participation, donation history
  • Health information (only when you choose to share it): diagnosis, condition, symptoms, medications, or disease experience, such as when completing a program intake form, survey, or research submission
  • Website usage data: pages visited, general location, and device type, collected automatically to help us understand how our site is used


2. Why We Collect It


We collect this information to:


  • Communicate with you about programs, events, and volunteer opportunities
  • Send newsletters, updates, and organizational news
  • Coordinate your involvement in AiArthritis activities
  • Respond to inquiries or requests you submit
  • Personalize resources based on your needs
  • Support patient-led research that benefits the autoimmune and autoinflammatory arthritis community


3. How We Use It


Your information, including any health information you provide, is used only for the purposes described above. Health information is never used for advertising or sold in any form. Access to health-related information within our systems is limited to staff members who need it to fulfill their role.


4. Who We Share It With


We do not sell, trade, or share your personal information with third parties for their own marketing or commercial purposes. We may share limited information with trusted service providers who help us operate our programs and systems, including:


  • Our website and CRM platform providers, who help manage communications and program data
  • Our AI-powered resource platform, which may be used to answer general questions using AiArthritis-approved content only. Personal or health information is not used to train any AI model
  • Payment processors, for donation transactions
  • Each of these providers is contractually required to protect your information and may not use it for any purpose beyond supporting AiArthritis operations. We may also disclose information when required by law or when necessary to protect the rights, safety, or property of AiArthritis, our community, or others.


5. How Long We Retain It


We retain your information for as long as you remain engaged with AiArthritis, plus a period of three years following your last interaction with us, unless you request earlier deletion or applicable law requires a different retention period. After this period, information is securely deleted or de-identified.


6. Your Rights and Choices


You may:


  • Request to review, correct, or delete your personal information
  • Withdraw consent for the use of any health information you previously shared
  • Unsubscribe from communications at any time using the link in any email we send


To exercise any of these rights, contact us at info@aiarthritis.org.


7. Data Security


We use reasonable technical and organizational safeguards to protect your information from unauthorized access, disclosure, or misuse. Health-related information stored in our systems is encrypted and access is restricted to authorized personnel only.


8. Consent


By providing your personal information to AiArthritis, including any health information, you consent to its use as described in this policy. If you choose not to provide certain information, you may still be able to access general AiArthritis resources, though some personalized services may not be available.


9. Changes to This Policy


We may update this Privacy Policy periodically to reflect changes in our practices or legal requirements. The effective date at the top of this page reflects the most recent revision. Significant changes will be communicated through our website or via email where appropriate.


10. Contact Us


If you have questions or concerns regarding this Privacy Policy or how your information is used, contact us at:
info@aiarthritis.org