Real-world research capturing the full patient journey from

pre-diagnosis through treatment and beyond.



Our database was built by and is housed within FORWARD: the National Databank for Rheumatic Diseases.

Patient-Ideated Registry to Improve Diagnosis, Disease Management, and Access to Therapies

Informed by people living with autoimmune and autoinflammatory arthritis (AiArthritis) diseases, our database captures real-world experiences beginning before diagnosis and continuing through treatment and disease management. Together, we can turn our experiences into research that drives better outcomes.


Beyond only collecting data through the registry surveys, those who join the AiArthritis Research Database also gain opportunities to:


  • Share our experiences beyond surveys: Join peer-led discussions, focus groups, and other conversational research activities that help shape future research and improve outcomes.
  • Get support along the way: Connect with peer-designed resources matched to where you are in your journey, turning our shared experiences into tools that help you navigate yours.

Precision Medicine

Symptoms

Comorbidities

Identify Patient Subgroups

Data to Influence

Therapeutic Access

Response (or lack of)

to Therapies

Peer-to-Peer Follow Up Conversations

Peer-Led Conversations & Resource Matching

Help Us Build the AiArthritis Research Database

Diagnosed? Still searching for answers? Both? There's a place for your experience in our research. We're building a research database that captures the full patient journey, including the often-overlooked years before diagnosis. Whether you're living with a confirmed diagnosis, seeking your first diagnosis, or investigating additional conditions, your experiences can help us better understand disease patterns, improve diagnosis, and advance treatment.

Built by peers. Powered by our shared experiences. Beyond registry surveys, we connect our peers with opportunities to:

  • Share your experiences beyond surveys: Join peer-led discussions, focus groups, and other conversational research activities that help shape future research and improve outcomes.
  • Get support along the way: Access peer-designed resources matched to where you are in your journey, turning our shared experiences into tools that help you navigate yours.

Thank you to our first supporter of the AiArthritis Research Database: