2026 Impact Committee
Impact Committee members support is critical to pursuing our mission to utilize the patient voice to impact research, education, and advocacy.
Nonprofit Members
Fashion Magazine
Platinum Level Members
Transparency Statement: We assure our community that we are free from the influence of our corporate funders. All work we do is based on direct dialogue with others who, like us, are affected by these diseases. As a result of those interactions, we identify issues and brainstorm solutions with patients and caregivers for patients and caregivers. At no time have we been or will we be influenced, guided, or scripted by our corporate financial supporters.












