Education & Awareness
Our Role in Education and Awareness
We rely on the voices of those affected by these diseases to guide our education and awareness initiatives to prevent misunderstandings, accelerate diagnosis, improve disease management, and advance global awareness.
Experienced Advocates. Several people leading our organization has served on advisory panels, participated in focus groups, and presented at conferences - all to help the public and other stakeholders understand the awareness and education needs of our community.
Peer-to-Peer Communications. We do not represent the patient voice, we are the patient voice. Whether we are hosting discussions to explore issues of unmet need or to help our community understand complex topics, we are trusted peers and appreciated leaders.
Cross Category Initiatives. While we focus on improving education, advocacy, and research, our work often overlaps these pillars, as one often influences the other.
Featured Initiatives
Our work is based on conversations, problem-solving, and action. Our voices drive what we do - not only as a story to enhance our work, but also as the reason why we choose our initiatives and how we accomplish our goals.
* In 2017, the International Still's Disease Foundation (ISDF) dissolved into AiArthritis. As a result, we honored a commitment to continue their work to provide resources and educational materials that can help expedite diagnosis and maintain quality of life to those impacted by Still's Disease. We plan to develop similar patient-led educational materials for other disease groups we cover over the next several years.
Education & Awareness Priorities for 2025
Educational Resources
Building upon our current resources, we are creating more resources curated to the different "stops" of the patient journey. These resources are curated to help with patient-identified issues through their journey from pre-diagnosis through co-existing conditions and remission.
Awareness to Expedite Diagnosis & Treatment
Through a variety of programs we aim to help the public and "first line" health practitioners identify our diseases and expedite diagnosis and therapeutic intervention. Focus on diverse demographics, "mystery patients", the undiagnosed, and those most at risk.
Shared-Decision Making and Patient-Physician Communication Aids
Help patients by designing peer-led guidance and tools so they feel empowered to participate in discussions with healthcare professionals. These tools can help to improve disease management and
Global Awareness
Increasing awareness of
AiArthritis diseases and the patient-identified issues that come with living with them. As the hosts of World
AUTOimmune & AUTOinflammatory Arthritis Day every May 20th, we strive to DRIVE global awareness of all
AiArthritis diseases and the issues we face individually and as a community.







