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Our Role in Education and Awareness
We rely on the voices of those affected by these diseases to guide our education and awareness initiatives to prevent misunderstandings, accelerate diagnosis, improve disease management, and advance global awareness.
Experienced Advocates. Several people leading our organization has served on advisory panels, participated in focus groups, and presented at conferences - all to help the public and other stakeholders understand the awareness and education needs of our community.
Peer-to-Peer Communications. We do not represent the patient voice, we are the patient voice. Whether we are hosting discussions to explore issues of unmet need or to help our community understand complex topics, we are trusted peers and appreciated leaders.
Cross Category Initiatives. While we focus on improving Education, Advocacy, and Research, often our work overlaps between these pillars - as one often influences the other.
Feature Initiatives
Our work is based on conversations, problem-solving, and action. Our voices drive what we do - not only as a story to enhance our work, but also as the reason why we choose our initiatives and how we accomplish our goals.
* In 2017, the International Still's Disease Foundation (ISDF) dissolved into AiArthritis. As a result, we honored a commitment to continue their work to provide resources and educational materials that can help expedite diagnosis and maintain quality of life to those impacted by Still's Disease. We plan to develop similar patient-led educational materials for other disease groups we cover over the next several years.
Education & Awareness Priorities for 2024
Disease Education
New break-out disease education pages for each of our 23 AiArthritis diseases. Based on patient-reported early symptoms of AiArthritis diseases, we are developing patient-led disease education & associated detection tools and guides that will help expedite diagnosis.
Public Policy Education
CROSS CATEGORY - ADVOCACY
Knowledge = Empowerment
Create easy to understand advocacy/public policy lessons and associated materials to improve patient and care partner knowledge and increase the number of community members who participate in legislative efforts.
Community Outreach & Expansion
Expanding our reach by getting into the community. Hosting booths at community events, health fairs, and clinics to provide the public with educational information and tools. Outreach to diverse communities to increase awareness of the risk of AiArthritis diseases.
LIVE Community Chats!
Precision Medicine & Clinical Trial Education
CROSS CATEGORY - RESEARCH
Clinical research is vital to advance treatments for ALL patients. Patient education will help increase interest and prepare a new market for the era of precision medicine.
Shared-Decision Making and Patient-Physician Communication Aids
Helping patients learn about this process, including helping them gain the confidence to speak with their physicians about therapy choices. As well as providing physicians with tools to promote collaborative communication in their offices.
AUTO-Themed Global Education
As the hosts of World AUTOimmune & AUTOinflammatory Arthritis Day every May 20th, we strive to unite all those in the AiArthritis community to DRIVE creative auto-themed education and awareness of all AiArthritis diseases and the issues we face individually and as a community.
Impact Check. Tell us why the work we are doing to increase education and awareness is important to you!
Thank you, AiArthritis!
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International Foundation for AiArthritis
6605 Nottingham Ave.
St. Louis, MO 63109-2661
Toll Free: 1-877-609-4226
Text: 1-314-282-7214
Copyright 2024. All rights reserved. Information on this site is intended for informational purposes only Our foundation does not engage in the practice of medicine. Please consult a physician to obtain personal healthcare and treatment options. 501(c) 3 Nonprofit Tax ID: 27-1214308.
