I'm a Mystery Patient, Now What?

Too many of us either have been told in the past - or are currently experiencing this today - that we are a mystery. But when 1 in 10 people are living with AiArthritis diseases, HOW can this still be happening?

At AiArthritis, we believe the power to change the stories of tomorrow - including changing the narrative of a mystery patient - starts with patients sharing their experiences. What were you told? How did/do you feel? What can/could you have said to move out of the mystery zone? Or maybe you are going through this right now and you'd like to ask AiArthritis for our advice?

One of our projects at AiArthritis is to tackle delay in diagnosis (including dual/triple diagnoses), educate health providers about the AUTO + Inflammatory Arthritis = equation to narrow down the possibilities of being one of our diseases, help those with Undifferentiated Disease diagnoses, and provide guidance.

YOU can help by sharing your Mystery Patient story, or stories, along with any advice you have for those going through this right now. Or, if you are going through this right now and need immediate advice, please let us know this as well. From these submissions, we will develop tips and guidance for those going through this. 

OPTIONAL: Everything we do at our nonprofit is collaborative and based on "patient-infused solutions." If you would like to be credited for helping, make sure to include your email address and at least your first name, last initial. Email is also important if you would like to be notified when this resource is ready!