A guide for patients by patients to help those who are on the journey of putting a diagnosis to their symptoms. This is a living document, meaning that there will be several iterations of this resource coming in the future as we collect more advice and stories from the AiArthritis community.

I'm a Mystery Patient, Now What?

Too many of us either have been told in the past - or are currently experiencing this today - that we are a mystery. But when 1 in 10 people are living with   AiArthritis diseases, HOW can this still be happening?


At AiArthritis, we believe the power to change the stories of tomorrow - including changing the narrative of a mystery patient - starts with patients sharing their experiences. What were you told? How did/do you feel? What can/could you have said to move out of the mystery zone? Or maybe you are going through this right now and you'd like to ask AiArthritis for our advice?


One of our projects at AiArthritis is to tackle delay in diagnosis (including dual/triple diagnoses), educate health providers about the AUTO + Inflammatory Arthritis = equation to narrow down the possibilities of being one of our diseases, help those with Undifferentiated Disease diagnoses, and provide guidance.


Because of this patient-identified problem, we created the patient-infused solution of our Mystery Patient Guide. It is a living document of peer advice on how to navigate the diagnostic journey.


Thank you to Horizon Therapeutics for making this initiative possible and to the Amgen Rare Disease Team for the support to continue this initiative.