Advocacy / Policy

• Autoimmune Association
• Help Change Policy - Look to see what policy is out there for your disease.

• Axial Spondyloarthritis International Foundation (ASIF)
• Advocacy and Spondylitis - Engage with others to make a difference

• Rare Autoinflammatory Conditions Community - UK (RACCUK)
• Did you know that we have been involved in Drug Policy Consultations? - Resources on different drug policies and the groups involvement in advocacy

• Lupus UK
• World Lupus Day (May 10th) - Information on the World Lupus Day event social media campaign 

• Spondylitis Association of America (SAA)
• Advocacy - A site that lists numerous options a person can get involved in advocacy work for spondylitis.

• Global RA Network
• Advocacy Resources - Advocacy resources to share with your communities to raise awareness about rheumatoid arthritis

• Fundación Nacional de Pacientes de Artitis de Panamá (FUNARP)
• FUNARP & Advocacy - Information regarding patient advocacy and FUNARP’s role in patient advocacy work (page is in Spanish but can be translated into English via browser)

Education & Awareness 

• Lupus and Allied Diseases Association, Inc. 
• Communication and Empowerment Tool - Leverage this tool to learn how to be an advocate for yourself.

• Lupus and Allied Diseases Association, Inc. 
• About Lupus

• Arthritis New Zealand
• Living with Arthritis - Check out these tools, complementary therapies, diet, exercise and other resources.
• Types of Arthritis - Learn about the different types of arthritis.
• Arthritis IQ - Online courses for health care providers and caretakers on arthritis and pain.

• Autoimmune Association 
• Autoimmune Association - Diagnosis Tips - Quick tips on how to get the right diagnosis.
• Autoimmune Association Education Resources - Newly diagnosed or want to learn about autoimmunity? The resource center has articles, webinars and on-demand videos on autoimmunity and various autoimmune diseases.

• APMARR
• World Day of Rheumatological Diseases - More about this day devoted to helping people become aware of the 150 rheumatological diseases.
• Publications - Multiple publications of brochures & educational materials ranging from osteoporosis and JIA to Rheumatoid Arthritis in Italian.
• No Fake News - Addresses different fake "cures" and "hacks" regarding treatment options.

• Arthritis Broadcast Network (ABN)
• #CRArthritis 2023 Interviews Playlist - The #CRArthritis Event features live and recorded interviews with leading rheumatologists, researchers, patient organizations, physiotherapists, occupation therapists and other allied health care professionals from the Canadian Rheumatology Association and Arthritis Health Professions Annual Scientific Meeting. View the collection of interviews on Arthritis Broadcast Network’s YouTube channel now!

• Axial Spondyloarthritis International Foundation (ASIF)
• Your Guide to Living with ANKYLOSING SPONDYLITIS - A full-color pamphlet on how to live with Ankylosing Spondylitis

• The Ocular Immunology and Uveitis Foundation
• What is an Ocular Immunologist? - A page explaining what an ocular immunologist is and how they treat diseases.
• A Guide to Ocular Inflammatory Diseases - A guide to different ocular diseases

• Arthritis Consumer Experts (ACE)/Jointhealth.org
• JointHealth TM Education Program - Welcome to Arthritis Consumer Experts’ JointHealth™ Education (JointHealth Ed) program, specifically designed for you – a person recently diagnosed with arthritis or living with it for a while.
• May 26 - Indigenous Healing Practices with Dr. Terry-Lynn Fox - Arthritis Consumer Experts (ACE) invites you to a special webinar featuring a 45-minute presentation by Dr. Terri-Lynn Fox, who will provide an overview of Indigenous healing practices, including how to approach it, what to offer, how to follow through with a request, and why the aforementioned are important, followed by a 15-minute question and answer period.

• Arthritis Broadcast Network (ABN)
• Arthritis Facts & Myths - Learn more about who has arthritis, the many types of arthritis out there, the costs of arthritis, and how exercise can help. There are also many myths associated with arthritis. Help us spread the word to dispel these myths!
• Arthritis Screening Exam

• Dragon Claw
• Prednisone & Prednisolone- these are the views by the Founder and Members of Dragon Claw regarding Prednisone and Prednisolone.

• Global Health Living Foundation (GHLF)
• Raising the Voice of Patients: A Patient's Guide to Living with Rheumatoid Arthritis - With the help and guidance of our Patient Council (a group of patient leaders from across the country), we have published the first comprehensive document that helps all individuals during their RA disease journey.
• What Does Rheumatoid Arthritis Really Feel Like? The 10 Descriptions You Won't Read in an Office Pamphlet - These are different ways people describe what it's like having Rheumatoid Arthritis.

• Vasculitis Foundation
• Educational Videos - These are informational videos on Vasculitis

• Lupus Europe
• Lupus 100 - A recently launched project which includes the answers to the most frequent questions about lupus, answered by specialists and validated by patients
• Lupus Europe Information Centre - Info Centre section, where people will be able to read the latest news about lupus

• Looms for Lupus/Mata Advocacy and Support
• Living Well with Lupus - An educational toolkit for women about Lupus

• Rare Autoinflammatory Conditions Community - UK
• Receiving support from us in the UK - A site providing resources and information for mental health support and support for children in school with these diseases.
• Hospitals in the UK - A list of hospitals throughout the UK that are familiar with treating rare diseases.

• Lupus UK
• What is Lupus?
• Symptoms of Lupus
• Lupus - Getting Diagnosed - Information on how to get diagnosed with Lupus and what to expect during the diagnosis process

• Spondylitis Association of America (SAA)
• About Spondyloarthritis - Explains what spondylitis (and its umbrella of subtypes) is and how it manifests.
• Resources & Support - Information on support options for those with Spondy diseases.
• Your Guide to Living with Ankylosing Spondylitis - Provides helpful tips and information on living with AS

• Sjogren's Syndrome Foundation
• What is Sjögren's?
• This is Sjögren's Flyer
• This is Sjögren's Flyer (Spanish)
• Rheumatology Clinical Practice Guidelines for Sjögren's: Systemic Manifestations in Sjögren's Patients - For clinicians and medical professionals to help them identify the symptoms of Sjogren's for improved/more timely diagnosis.

• Global RA Network
• The RA Models of Care Pathway Toolkit - A comprehensive depiction of a patient’s journey through the healthcare system, along with a list of helpful information for each step along the way

• Purple Playas Foundation
• 4 Sibs Resources - Dedicated to siblings of those with medical issues with resources and tip sheets.
• How to Guide Interactions between Kids with and without Disabilities - A guide to help children with medical disabilities/conditions direct discussions between other children who may or may not have similar medical issues.
• Guiding Your Child to Be a Medical Self-Advocate - A guide to help your child become a stronger medical self-advocate
• Transitioning Medical Care to Your Teen/Young Adult - A guide to help you prepare your teen to transition from adolescent/pediatric care to adult care.
• Strengthening their Social Emotional Development & Resiliency - A guide to help children with medical needs improve their self resilience and emotional strength as they grow with their disease.

• Take a Pain Check
• YouTube Podcast Channel - A Youtube channel with multiple videos from their podcast regarding RA and it's diseases.
• Take a Pain Check Blog - A blog devoted to discussing rheumatic diseases from the patient perspective.

• Canadian Arthritis Patient Alliance (CAPA)
• Living with Chronic Pain: Tips for Patients by Patients - A resource providing helpful tips and tricks suggested by other patients on how to manage chronic pain
• How was It Then and How is it Now? - Educational infographics in both French and English providing information that compares treatment and diagnosis for conditions in the past and at present.
• Sexuality and reproductive health resources - A page with multiple resources regarding various topics ranging from sexual health, pregnancy, fertility, and birth, while battling arthritis.

• US Pain Foundation
• Mindful Meditation - Walk through some mindful meditation exercises.
• Treatment Options - View a working list of both pharma and non-pharmacutical treatments

• Arthritis Foundation
• RA Patient Education & Resources - A page offering information about RA regarding diagnosis, treatment, and information on every day challenges
• Walk with Ease: About the Program - A community-based multi-component physical activity and self-management education program that includes health education, stretching & strengthening exercises, and motivational strategies)
• PsA Patient Education & Resources  - A page offering information about PsA regarding diagnosis, treatment, and information on every day challenges.
• Biologics & Biosimilars - A page offering information on what biologics and biosimilars are with resources regarding questions for your doctors, information to know, recommendations for health plans, pharmacies, providers, etc, and other educational resources/information.

• Fundación Nacional de Pacientes de Artitis de Panamá (FUNARP)
• Directory of Specialist Doctors (Rheumatologists) in Panama - A list of rheumatologists in Panama (page is in Spanish but can be translated into English via browser)
• Joint Mobility  - A resource with exercises for hands, the neck, increasing joint mobility lying down or sitting, relaxing before sleep, and other mobility resources (page is in Spanish but can be translated into English via browser). 

• Walk AS One
• What is A.S.? - A resource explaining what ankylosing spondylitis (AS) is and offers a brief overview of how to treat it

• Young Patients’ Autoimmune Research & Empowerment Alliance (YP AREA) 
• Adolescent & Young Adult Research Guide - A site offering different steps involving “Explain,” “Evaluate,” “Engage,” and “Engineer,” with different steps and information associated with each process. Each step has its own site devoted to information pertaining to that subject and how it relates to the topic of autoimmune research and empowerment)