Our Role in Research

Our research initiatives aim to identify therapies that work best for our diseases and disease subgroups, expedite detection and diagnosis, influence legislation, and increase patient knowledge of and participation in research.

Patient-Led Initiatives - The research projects we lead or participate in are based on patient-identified needs and patient-infused solutions. Led by patients, we work with research professionals as our advisors.

Patient-Research Collaboration - We are leaders in advancing patient voices in research by participating as patient research partners (PRPs) on projects worldwide and by helping match other patients to the same opportunities

Clinical Trial Education

In addition to educating patients about clinical trials and shared-decision making associated with making that choice, we will continue our work towards preparing for future trials - particularly those that include all people (not only the general patient population samples).

Patient Involvement in Research

In addition to serving as patient research partners, advisors, and clinical trial grant reviewers, we act as a bridge between stakeholders and a global pool of patients so all persons diagnosed with these diseases have a voice in research.

Research Advocacy/AiArthritis Research Data Bank

We aim to use our discussion platform to host conversations that will provide robust data that can be used by both our organization and by others to advance public policy and legislative efforts. 

Our work is based on conversations, problem-solving, and action. Our voices drive what we do - not only as a story to enhance our work, but also as the reason why we choose our initiatives and how we accomplish our goals. 

Learn more about these projects and how YOU can ensure your voice counts!