Patient Voices

These blog posts showcase diverse viewpoints from our community and volunteers. We believe every voice matters, and anyone with AiArthritis Disease is encouraged to submit. Your insights can inspire others and deepen our understanding of the journey.


Community Questions


Engaging with our social media community has provided valuable insights into AiArthritis. Sharing questions and responses deepens understanding and encourages dialogue about community challenges and successes.


To follow along with our weekly community questions be sure to follow us on social media!

Find What You Are Looking For

Occupational therapist measuring a woman's wrist for wrist braces

Beyond Medications: The Impact of Occupational Therapy on My AiArthritis Management

April 21, 2025
Occupational therapy helps us better perform daily activities, maintain independence, and achieve a better overall quality of life
Stressed written on a yellow sticky note.

What Stress Does to My AiArthritis Disease and How I Deal With It

April 21, 2025
Stress has the ability to put me into a flare, and with autoimmune and autoinflammatory arthritis being progressive systemic diseases, that's a big deal to me as someone with lived experience.
Tan colored paper with black outline of lungs. A small tear revealing white paper with Lung Disease

Take a Deep Breath:  Coping, Finding Support

March 21, 2025
Receiving our diagnosis of Interstitial Lung Disease (ILD) is the first step on our ILD journey, and sometimes even that first step takes a long time and much perseverance before it happens.
Brick wall with a disability door open push button

Unveiling the Dynamics: Exploring the Connection Between Autoimmune and Autoinflammatory Arthritis and Dynamic Disabilities

March 9, 2025
Disability comes in many forms and can be different for everyone. While autoimmune and autoinflammatory arthritis fall under the umbrella term of physical disabilities, it is important to understand their classification as dynamic disabilities.
Blue candies with one red that has a worried face drawn on it

The Hidden Face of Discrimination: Living with AiArthritis in an Ableist World

March 8, 2025
Ableism is a common form discrimination, like sexism, racism, homophobia, ageism and so forth, but it gets talked about a lot less though.
Tired mom in bed with a toddler on top of her trying to play.

A Single Mom's Guide to Parenting Through Chronic Illness

March 7, 2025
Parenting is challenging, add in a chronic illness and it's even more challenging. Discover these tips from a single mom with rheumatoid arthritis.

What Is Rheumatoid Arthritis Awareness Day and Why Does It Matter?

February 2, 2025
Rheumatoid Arthritis Awareness Day, observed annually on February 2nd, is a vital initiative aimed at spreading awareness about rheumatoid arthritis (RA), an autoimmune disease that affects millions of people worldwide.
Photo of author beside another photo of author and her husband in nature

An Unexpected Detour: Life With Mixed Connective Tissue Disease

February 2, 2025
No one expects their life to change dramatically over a short period of time.
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Want to submit content to the AiArthritis blog?

Are you living with AiArthritis Disease? We want to hear your voice! We're actively seeking authentic, personal stories from our community members to feature on our blog. Our mission is to amplify patient perspectives and create a space where experiences can inspire and connect others.

  • What We're Looking For

    We welcome submissions on various aspects of living with AiArthritis Disease, including:


    • Your diagnosis journey
    • Insights you wish others understood about AiArthritis
    • Your experience with advocacy
    • Managing symptoms like fatigue, malaise, and unexpected challenges
    • Personal coping strategies and wellness tips
    • Any other AiArthritis Disease-related topics that matter to you

    Writers living with the following AiArthritis Diseases:


    Rheumatoid Arthritis, Psoriatic Arthritis, Lupus, Sjögren’s Disease, Axial Spondyloarthritis, Juvenile Arthritis, Still’s Disease, Crohn’s Disease, Sarcoidosis, Relapsing Polychondritis, Scleroderma, Behcet’s Disease, Palindromic Rheumatism, Antisynthetase Syndrome, Mixed Connective Tissue Disease, Undifferentiated Disease, VEXAS Syndrome, Schnitzler Syndrome, CRMO/CNO, CAPS, FMF, HIDS


  • Submission Guidelines

    Submission Guidelines

    Post Structure:


    • Title: Keep it concise (15 words max)
    • Subtitle: One clear sentence describing your main message
    • Summary: A brief overview (50 words max)
    • Author Bio: Include a paragraph about yourself with relevant social media links
    • Length: 700-1,500 words
    • Social Media Promotion: How would you promote this on social media? Please provide one short paragraph about your post, your social media handles for tagging and any hashtags you wish to include. 

    Visual Elements:


    Include 1-3 high-quality images with your submission, or note if you'd like our team to select appropriate visuals from our photo bank!


  • How To Submit

    How to Submit


    Please send your work to eileen@aiarthritis.org


    Got questions? We're here to help! Reach out to us at the same email address, and we'll guide you through the process.


    Join us in building a stronger AiArthritis community through shared experiences and stories that matter. We can’t wait to highlight your story!


  • Patient Perspective Examples

    Here are some examples from our community members!


    A Matter of Life and Breath: Living with Interstitial Lung Disease - Denae Cedar, RDN 


    Autoimmune Community Summit: Day One Summary - By Brittany Murray



    Rheumatoid Arthritis Treatments Gone Wrong - By Jennifer Weaver


    From Diagnosis to Advocacy: Becky's Journey with Sjögren’s - By Rebcca Hosey