Episode 51: Oh Mama! Special Series Episode 2 - Breastfeeding with AiArthritis Diseases

AiArthritis Voices 360 Full Episode 51

Air Date: December 13, 2020

This week join your patient co-hosts Danielle Dass, Mariah Leach, and Cheryl Crow as they bring an important topic from the American College of Rheumatology Annual Conference to our show - a topic from a session Mariah and Cheryl led at the conference!. This episode will be part of a series of planned episodes on postpartum challenges for new mothers living with AiArthritis Diseases. Today’s episode will focus on the emotional and physical challenges of breastfeeding.

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Our AiArthritis Voices 360 Talk Show is just a piece of larger program - the AiArthritis Voices Program.


AiArthritis Voices is our program where people living with AiArthritis diseases and other stakeholders who we need 'at the table' to solve problems that impact education, advocacy, and research sign up to have a voice in our initiatives.


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Show Notes:

00:52 - Danielle welcomes listeners


01:45 - Today’s episode is about breastfeeding with an AiArthritis Disease


02:09 - This episode is a continuation of Episode 11, which was about pregnancy with an AiArthritis Disease


02:23 - Danielle is joined today by Mariah Leach and Cheryl Crow who presented a session at the American College of Rheumatology Conference on supporting new mothers during the postpartum period


02:43 - Mariah and Cheryl introduce themselves


03:04 - Mariah had nowhere to go for support when she struggled as an RA patient in the postpartum period so she founded Mama’s Facing Forward, a Facebook group and website that focuses on pregnancy and parenting with chronic illness


04:18 - Cheryl is an Occupational Therapist and an RA patient who founded Arthritis Life to help arthritis patients navigate their daily lives


06:53 - Breastfeeding is one of the most common postpartum issues new moms want to discuss


07:14 - The decision of whether or not to breastfeed should be a personal one, but many new moms feel a lot of pressure from others to nurse their new baby


08:37 - Breastfeeding isn’t always the best choice for a new mom, especially one living with a chronic illness


08:59 - Fed is best. Choosing not to breastfeed is a valid option for any mom.


10:00 - The Fed Is Best Foundation is an excellent source for information about all feeding options, including breastfeeding, formula-feeding, and even using donor milk


10:39 - Breast is best in a vacuum, but no mother lives in a vacuum


12:36 - Currently there are many treatment options for AiArthritis patients that are safe to use while breastfeeding


13:56 - Women should never have to choose between medicating their AiArthritis disease and breastfeeding


14:13 - Moms who need to take medication while pregnant or breastfeeding should consult Mother To Baby (mothertobaby.org), a website-based resource that collects information to help moms make informed choices


15:15 - If you are experiencing difficulty while performing your activities of daily living (feeding, dressing, changing, or caring for your baby), an occupational therapist can help you find strategies for dealing with both emotional and physical challenges


16:12 - You may have to ask your doctor for a referral since not all doctors know that they can send patients to an OT for help with postpartum issues


17:24 - To reduce pain while breastfeeding, consider the ergonomics of your positioning as well as how you’re holding the baby


18:20 - Having an accountability partner in the home to help remind you to use healthy posture while nursing can be helpful to reduce strain and repetitive stress injuries


20:32 - If you will be bottle-feeding your baby, try to choose a bottle that is easy for you to open and close


20:50 - Moms who will be pumping may benefit from a handsfree breast pumping bra so they don’t have to hold the bottles for extended periods of time


21:13 - Try to choose clothing that is conducive to breastfeeding but does not stress your hands with the closures


22:50 - A breastfeeding pillow can be helpful for supporting ergonomic positioning while nursing, as well as reducing the need to support the baby’s weight while nursing


23:59 - Alternate positions like side-lying or the football hold can also be helpful if holding the baby in the traditional nursing fashion is causing pain for Mom


25:20 - If a position doesn’t work for you, it may be worth revisiting later because your preferences may change as the baby develops or even with a subsequent child


26:33 - If you want more information about this occupational therapy for AiArthritis patients, you can check out Cheryl’s website @ myarthritislife.net or find Cheryl on ticktock (@arthritislife)


27:20 - Mariah invites listeners with chronic illness to join Mamas Facing Forward on Facebook or find her on instagram and twitter (@mamasforward)


28:05 - Mariah and Cheryl will be back for more episodes on this topic soon


29:08 - If you are a patient or the parent of a juvenile living with an AiArthritis disease, please join us at aiarthritisvoices.org or visit aiarthritis.org/aiarthritisvoices to continue this conversation with us


30:05 - Danielle invites listeners to connect with us on all social media platforms @ IFAiArthritis or email us @ podcast@aiarthritis.org


30:17 - Danielle thanks Mariah and Cheryl for co-hosting today’s episode


30:37 - Please consider supporting the show by donating at aiarthritis.org/talkshow


The session from the American College of Rheumatology (ACR) 2020 led by Mariah and Cheryl is called Reproductive Health: Meet Women's Needs. Description: Addressing reproductive health needs is an emergent priority for the rheumatology community. New research provides guidelines for how to safely treat and counsel rheumatology patients about reproductive health. Still, women with rheumatic disease lack needed health information to make evidence-informed decisions about family planning. This panel session will outline the unique needs during the stages of pre-pregnancy, pregnancy and early motherhood of reproductive-aged women diagnosed with rheumatic disease. 



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If you are a patient, a parent of a juvenile patient, or any other stakeholder (doctor, nurse, researcher, industry representative, or other health services person) - are you ready to join the conversation? It's your turn to pull up a seat. Join our new AiArthritis Voices program, where people living with AiArthritis diseases and other stakeholders who we need 'at the table' to solve problems that impact education, advocacy, and research sign up to have a voice in our initiatives. By signing up, you’ll get notified of opportunities to be more involved with this show - including submitting post-episode comments and gaining insider information on future show topics. Patients and all other stakeholders are encouraged to join so we can match you with opportunities to pull up a seat and TOGETHER - as equals - solve the problems of today and tomorrow.


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AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@ifAiArthritis) or email us (podcast@aiarthritis.org).

Be sure to check out our top-rated show on  Feedspot!



Your Co-Hosts & Guests: Who is at the table this episode?

Show Co-Host: Danielle Dass
Danielle Dass is a career educator, wife, and mother of 3. She was diagnosed with Rheumatoid Arthritis and Primary Biliary Cholangitis after years of unproductive medical investigation. She is dedicated to educating fellow AiArthritis patients about the importance of liver health and metabolic testing. In her spare time, she also co-hosts a podcast with her husband and 10 year old daughter about the importance of film history for the next generation.
 
Listen to Danielle's Podcast: https://bacea.podbean.com/

Show Co-Host: Mariah Leach

Mariah is a writer, patient advocate, and mom of 3 (kids: 7, 5, and 2) who has been living with rheumatoid arthritis since the age of 25. After learning firsthand the challenges of pregnancy and motherhood with a chronic illness, Mariah became passionate about supporting women with chronic illnesses who are or want to become mothers. She launched Mamas Facing Forward in 2015 as a private Facebook community (click here to visit the private Facebook group), and today the group and website (mamasfacingforward.com) unite to provide specialized resources, encouragement, and support for moms and moms-to-be living with chronic illness all over the world.  

You can visit Mama's Facing Forward's public Facebook page, twitter, and instagram by clicking on the icons below.

Guest Co-Host: Cheryl Crow

Cheryl Crow is an occupational therapist who’s lived with rheumatoid arthritis for eighteen years. She’s also a mom to her wonderful 6 year-old son! In 2019, Cheryl created the small educational company Arthritis Life to educate, empower and support others with inflammatory forms of arthritis. 

Through Arthritis Life’s social media channels, Cheryl has produced a plethora of educational and entertaining videos showcasing arthritis life hacks, basic arthritis education and humorous takes on real life with RA. She also shares encouragement, educational tidbits, and other patient’s heartfelt stories on the Arthritis Life Podcast. Lastly, Cheryl has created a comprehensive online self-management program called the Rheumatoid Arthritis Roadmap. 

Cheryl brings awareness to the importance of seeing inflammatory arthritis patients' needs beyond joint pain. She’s an active volunteer with the Arthritis Foundation, American College of Rheumatology, and the American Occupational Therapy Association.

You can connect with Cheryl through Facebook, Twitter, Instagram, Youtube, and TikTok by clicking on the icons links below! 

Other Episodes and Resources from this Series

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