All Episodes

View all episodes of the AiArthritis Voices 360 Talk Show. Click the see episode details to view information about the episode and find how to listen!

Episode 96

Airing: April 7, 2024

Social Wellness with an AiArthritis Disease


In this episode, c-ohosts Leila, Estela, and Kerry delve into the crucial topic of social wellness amidst living with AiArthritis disease. They explore the essence of social wellness, its significance and sharing personal insights on navigating social lives while managing health challenges. Join our co-hosts as they discuss both the supportive and challenging dynamics of maintaining an active social life with an AiArthritis disease and how online communities can positively impact social wellness. Drawing from community questions and experiences, they offer invaluable advice, practical tips, and thoughtful modifications to foster social fulfillment despite potential barriers. Tune in to learn how to prioritize social wellness in the face of chronic illness.



Episode 94

Airing: February 4, 2024

RheumyRounds Rewind: Improving Doctor and Patient Communication During Office Visits


This is an AiArthritis Voices 360 REWIND, where we are bringing back the first RheumyRound episode from 2020 where we opened the conversation on improving doctor office visits! Also note - you will hear the acronym IFAA, which we used prior to using AiArthritis.





Episode 93

Airing: January 7, 2024

Reproductive Health and AiArthritis Diseases


In this episode, Leila, the Health Education Manager at AiArthritis, delves into the impact of AiArthritis diseases on reproductive health, sharing insights from the RNS and ACR 2023 conferences. Leila delves into the myriad challenges individuals encounter, including delayed puberty, heightened disease activity during menstrual cycles, and the heightened risks associated with unplanned pregnancies. Navigating the intricate landscape of family planning within the AiArthritis community, we discuss the significance of birth control methods and the impact of medications on fertility.





360it to Episode 88

Airing: December 27, 2023

Medicare Drug Price Negotiation: How Will It Affect Patient Access?


Join us in this breakout 360it from Episode 88 Biosimilars : Interchangeability & Switching 2023 as we dissect the Inflation Reduction Act (IRA) and its potential fallout on patient access to diverse treatment plans. Tracing the historical trajectory of the IRA, we uncover its role in price negotiations and the concerning shift in investments away from critical drugs tailored for specific diseases. This reallocation poses a tangible threat to the availability and diversity of treatments, including for those living with AiArthritis diseases. As we dive into the landscape of healthcare policy, the discussion emphasizes the pressing need for IRA improvements to consider the long term well-being of patients. Without these crucial enhancements, we will have a future with not only fewer innovative treatments but potentially less treatment options available.





Episode 92

Airing: December 3, 2023

Breaking Research: Pharma & Non-Pharma 2023


Join us in this episode as co-hosts Tiffany and Deb both a recap of the 2023 ACR, American College of Rheumatology Conference and also how these topics specifically affect AiArthritis diseases. Tiffany and Deb also share an insight into our program, “Go With Us!” to Conferences. The Go With Us program allows patients to attend these conferences in real time and get updates on different important or emerging topics for AiArthritis diseases.


Episode 91

Airing: November 5, 2023

REWIND: Differentiating Arthritis & Autoimmune vs Autoinflammatory


This is an AiArthritis Voices 360 REWIND, where we are bringing back two short episodes that were recorded way back in 2019, because chances the topics are very important! Also note - you will hear the acronym IFAA, which we used prior to using AiArthritis


Episode 90

Airing: October 1, 2023

Why Won't They Diagnose Me?


At AiArthritis, we represent those diagnosed, their care partners/support network, and the undiagnosed (often called the “Mystery Patients”). This episode is for those struggling to get diagnosed. Join co-hosts Tiffany, Kerry and Danielle as they share their personal diagnosis struggles and delve deep into the challenges many other patients face on their diagnosis journey. From navigating initial symptoms to facing dismissive healthcare providers due to 'normal' blood work, we're talking about common hurdles that delay diagnosis, then encouraging YOU to share your experiences and perspectives as well. Together, we will create a Patient-Led Guide to an AiArthritis Disease Diagnosis.  




Episode 89

Airing: September 3, 2023

Surgery with an AiArthritis Disease


Tune in to the latest episode of AiArthritis Voices 360 Talk Show, where your co-hosts Leila, Deb, and Kerry candidly share their personal journeys of undergoing surgery while living with AiArthritis diseases. In this episode, the co-hosts delve into their surgical experiences, including the pivotal surgeries they've had due to their conditions. From Deb's journey triggered by a bunion removal to Kerry's hip replacement due to the complex interplay of autoimmune conditions or Leila’s gastric sleeve surgery due to weight gain from treatments, the trio reflects on the unexpected intersections of surgeries and AiArthritis diseases.


Episode 88

Airing: August 6, 2023

Biosimilars Interchangeability & Switching 2023


What do patients need to know about potential changes that would weaken the interchangeable biosimilar designation? 


In this episode, Tiffany is joined by esteemed guest experts Michael Reilly, Dr. Ralph McKibbin and Andrew Spiegel to explore the difference between  interchangeability , automatic substitution, and non-medical switching. Gain valuable insights into how these differences impact patients not only in the USA but also on a global scale.




Episode 87

Airing: July 2, 2023

AiArthritis Rant Discussions - Inspired by "Am I the @$$hole?"


Are you tired of feeling frustrated and unheard when it comes to your doctors, your disease, and all the challenges that come with it? Wish you had a platform to let it all out and find understanding?


Welcome to AiArthritis Rant Discussions - Inspired by Am I The @$$hole? Brace yourself for a new series that will give you a voice and an outlet to vent your frustrations. In this episode, our co-hosts Leila, Charis, and Patrice dive into the rants submitted by our AiArthritis community and they'll react, comment, and delve into topics that resonate with so many.

Episode 86

Airing: June 4, 2023

Organ Involvement: Disease Symptom or Comorbidity?


What are some common comorbidities associated with AiArthritis Diseases? And how could they impact you?


In this episode, Tiffany will discuss how different organs can be impacted by the disease and the difference between an organ being part of a disease and being a comorbidity. Tiffany will be exploring some examples of organs being affected in various diseases such as eyes, heart, gastrointestinal, and kidneys, as well as a newer autoimmune disease, IgG4, that is commonly being diagnosed for patients alongside their AiArthritis disease.

Episode 85

Airing: May 7, 2023

Disease Elevator Pitches


Have you found yourself struggling to explain your AiArthritis disease to others? 


In this episode, our co-hosts Leila, Charis, and Patrice put a new topic on the table: how to explain your AiArthritis disease in a 30-60 second elevator pitch. From your workplace to your personal life, our co-hosts will provide practical tips on how to tailor your elevator pitch to different audiences such as co-workers, family, friends or strangers to help you confidently communicate your AiArthritis and advocate for yourself. Join us in this episode to listen to varying elevator pitches as well as have the opportunity to share your own and continue to help us build patient resources! 


Episode 84

Airing: April 2, 2023

I'm a Mystery Patient, Now What?


Have you ever experienced the frustration of not being able to get a diagnosis, or worse, receiving the wrong one?


In this episode, our co-hosts Tiffany, Kelly, and Kerry, dive into what it is to be a mystery patient. In addition, they each share their personal experiences of being a mystery patient, and the challenges they experienced with delayed diagnosis. Whether you're a mystery patient or have had similar experiences, this episode sheds light on the lessons learned, triumphs, and struggles that many face and why your story matters. Share your story with us today at aiarthritis.org/mysterypatient and help us all learn more about AiArthritis diseases.


Episode 83

Airing: March 5, 2023

Improving Communication Throughout the JIA Journey


Have you or your family been affected by juvenile arthritis? On this episode, Tiffany is joined by Rochelle Lentini, CEO and President of Purple Playas Foundation, who have united with other specialists and families to identify additional tips to improve communication.


During this program, Rochelle and Tiffany discuss a new collaborative Juvenile Idiopathic Arthritis (JIA) project between AiArthritis and Purple Playas Foundation, along with Rheumatology Nurses Society and Novartis, to create discussion aids and question guidance to help families improve communication with all the professionals they meet along the way. 


Episode 82

Airing: February 5th, 2023

AUTO + Inflammatory Arthritis: Diagnosis, Please!


Join us for this episode where the co-hosts, Tiffany and Leila, share their personal journeys of being diagnosed with AiArthritis diseases. Tune in to hear how their journey of being diagnosed and misdiagnosed and the lessons they learned throughout the process. 


We also delve into the exciting new resource tool developed by AiArthritis, which helps patients navigate the process of seeking a diagnosis, understanding symptoms, and asking the right questions of their doctors. Plus, we invite other patients to share their stories and provide insights for those just starting their Auto + inflammatory arthritis journey. Join us for an informative and uplifting conversation on Auto + inflammatory arthritis diseases.

Episode 81

Airing: January 1st, 2023

RheumyRounds: PART TWO The Good, The Bad, and The Ugly - Improving Office Visit Communication


During this episode, Deb Constien and Tiffany Westrich-Robertson are joined by Dr. Al Kim ("Al", Tiffany's rheumatologist) , where, together, they share stories of Good, Bad, and Ugly in office communication experiences - with the goal to collect more stories, from YOU! Then, together, patient and rheumatologists will use these stories to develop best practice recommendations to improve patient-rheumy in office communications via a new e-book. In Part Two, we focus largely on the Bad and the Ugly.




Episode 80

Airing: December 4th, 2022

RheumyRounds: PART ONE The Good, The Bad, and The Ugly - Improving Office Visit Communication


During this episode, Kerry Wong and Tiffany Westrich-Robertson are joined by Dr. Lisa Zickuhr, where, together, they share stories of Good, Bad, and Ugly in office communication experiences - with the goal to collect more stories, from YOU! Then, together, patient and rheumatologists will use these stories to develop best practice recommendations to improve patient-rheumy in office communications via a new e-book. In Part One, we focus largely on the good.




Episode 79

Airing: Nov 6, 2022

Patient Leadership in Research


In this month’s episode, we join our co-hosts Tiffany, Deb, Kerry and Eileen, all living with AiArthritis diseases, as they discuss the importance of patient involvement in research. Patient involvement in research is key to developing knowledge and understanding around the many AiArthritis diseases. There are lots of ways you can get involved with patient research such as clinical trials, surveys, focus groups, data banks and even in conferences and as part of the research team!

Episode 78

Aired: Oct 2, 2022

Diversity, Equity, Inclusion and Accessibility


DEIA : Diversity, Equity, Inclusion, and Accessibility. Each of these elements that affect patients daily should be considered when thinking about patient diagnosis, physician care, treatment plans, research, lifestyle choices, and societal inclusion. In this month’s episode, we join Tiffany from AiArthritis, Estela Mata from Looms 4 Lupus, and Charis Hill - disability activist, as we are going to be discussing this topic. Each co-host has their own story to share, their experience with DEIA, and how it has impacted their patient journey as well as our community. Join us as we just scratch the surface in this important, but necessary, topic.



Episode 77

Aired: Sept 3, 2022

Biosimilars - What patients should know


As more treatment options are moving towards Biosimilars, many questions are being raised by patients. What are Biosimilars? Are they safe and effective? Are there downsides? Upsides? What are doctors' opinions on Biosimilars? What should I do if I am switched to a Biosimilar?


These are all questions that are at the forefront of our minds when living with AiArthritis diseases. This month, we invited patient advocates, doctors and coalition leaders to join the conversation to discuss and answer the many questions someone living with AiArthritis may have. Join us this month as we break down Biosimilars, share opinions, concerns, research, and resources so patients can better understand Biosimilars and what their availability means for their treatment plan. Join Tiffany and guests Dr. Ralph McKibbin, Andrew Speigel, and Michael Reilly - all leaders at the Alliance for Safe Biologic Medicines coalition, leading efforts globally to help with the transition of biosimilar use.


Episode 76

Aired: Aug 7, 2022

COVID in 2022 - Evolving Concerns, Questions, and Opinions


Over the last couple of years, the world has watched as COVID-19 has evolved into variants that differ slightly from the original virus. We’ve seen vaccinations and boosters work, yet we also know that new strains are somewhat resistant to high level protection. COVID treatments have emerged to help those who are immunocompromised - like those with AiArthritis diseases who are on immunosuppressive treatments - but can we access them and, if so, how? 


We've been on quite an emotional and physical rollercoaster, and it’s not over. Should we be concerned about “Long COVID” and “Post COVID”? What is research showing about COVID in our rheumatology population? Join Tiffany, Patrice, and Deb - all persons living with AiArthritis diseases and who also all have experienced COVID recently - as they share the latest research, guidance, and their own personal patient-guided opinions - in regards to the world of COVID in 2022.


Episode 75

Aired: July 3, 2022

The Whole Picture: Holistic, Personalized Therapy


We often talk about the importance of Precision Medicine (which involves finding the best pharmacologic treatment for each person’s individual needs), but as we, as patients, identify what works best for our unique needs, we have to consider all options (both pharmaceutical and non-pharmaceutical). Just as with our biologics and other disease modifying treatments - where one works for one person and not the other - we need to think about alternative therapies the same way. For example, just because you “tried diet”, did you try all the diets? We all need to find our own right combination of therapy - but what does that look like to you? In this episode Tiffany, Deb, and Bridget talk about personalized therapy, or complimentary, non-pharmacologic options, that are being researched and added to new recommendations for full disease management.



Episode 74

Aired: June 5, 2022

EveryONE's Voice 'Precisely' Matters


In this episode, Tiffany, CEO of AiArthritis, is joined by Catherine Ames, from the Young Patients’ Autoimmune Research & Empowerment Alliance, both persons living with AiArthritis diseases and both who attended the 16th Annual Personalized Medicine Conference in May 2022. Precision Medicine (PM) may currently be in the cancer space, but it’s quickly moving into the autoimmune/autoinflammatory space and there are some things they want you to know. What is it? Why is it important to understand and what can you do to make sure you can benefit most from it as it enters our space?

Episode 73

Aired: May 1, 2022

“Arthritis” Awareness - It’s Complicated!


In this revisit to the table (Step 5 in our problem-solving process), Tiffany, Katie, Effie, Eileen, and Kerry discuss the many layers around the word “arthritis” including: 1) Misunderstandings around the word that can lead to delays in diagnosis, family and friend judgements, and the different type associated with “AUTO” diseases; and 2) Complexities that exist when trying to identify the AiArthritis from other potential comorbidities (Osteoarthritis, bursitis, enthesitis) and how clarity about this could help with detection, access to the right treatments, and overall better health outcomes.

Episode 72

Aired: April 3, 2022

The Myth of Average - Time for Change


Join Tiffany and Deb, both persons living with AiArthritis diseases, then Tiffany and John O'Brien, CEO of the National Pharmaceuticals Council, as they put the topic of importance of innovation & treatment access in research and public policy. And learn how YOU can join efforts to impact change!

Episode 71

Aired: March 6th, 2022

Supporting Me, Supporting You, Supporting Us (Table Revisit)


A revisit to the table with Deb Constien, Estela Mata, and Tiffany Westrich-Robertson as they continue discussing the dynamics of support - including needs of the patient as well as others in the patient's support circle. Building on Episodes 43 and 48, they start a support tracking tool to help patients and families/friends better assess their needs and how, together, we can work to address them!  You're invited to help us continue developing this aid - find out how!


Episode 70

Aired: February 6, 2022

Helping The Future of Shared-Decision Making & E-Health in Rheumatology Starts with YOU! (Table Revisit)


A revisit to the table with Tiffany Westrich-Robertson and Dr. Lisa Zickuhr, as they continue discussing the importance of  shared-decision making in rheumatology e-health visits. They focus on a research project both are involved in, and that YOU can join!


Episode 69

Aired: January 2, 2022

Changing the World from Your Sofa

In this episode, Tiffany Westrich-Robertson and Katie Simons talk about how grateful they are to the volunteers that help with every part of our organization.

Episode 68

Aired: December 5, 2021

Rant Ahead! Together We Can Make Change


This week join Tiffany Westrich-Robertson as she takes this episode on solo! She goes on a rant about the ability -- or lack of ability -- for patient organizations to participate in conferences.

Episode 67

Aired: November 7, 2021

Making Informed Decisions in Unprecedented Times


In this episode, Katie and Deb - both persons living with AiArthritis diseases - discuss being a young person suffering from a chronic illness.

Episode 66

Aired: October 3, 2021

Pathway of Patient Engagement


In this episode, hosts Tiffany, Maarten, and Cheryl discuss the Paitent Pathway and the history of patient engagement in rheumatology research.

Episode 65

Aired: September 5, 2021

Young and Invisible


In this episode, Katie and Deb - both persons living with AiArthritis diseases - discuss being a young person suffering from a chronic illness.

Episode 64

Aired: August 1, 2021

The office visit - viewpoints from both the patients AND the rheumies!


Join Tiffany, Deb, Katie, and Patrice AND Al and Jeff (Dr. Al Kim - Tiffany's own rheumy - and Dr. Jeff Sparks) as they talk about the EULAR session content around communication and office visit needs (patient side and rheumy side). 

Episode 63

Aired: July 4, 2021

COVID-19, Vaccinations, Shared-Decision Making, & Rheumy Communications


This week join your patient co-hosts Tiffany and Deb, as they welcome Al and Jeff (Dr. Al Kim and Dr. Jeff Sparks) to talk about the latest in COVID-19 research and vaccinations, including variants, antibodies, and the importance of communicating with your doctor about boosters and the evolving landscape (shared-decision making).

Episode 62

Aired: June 6, 2021

Patient-Reported EULAR2021 Debriefs ... and We're Off!


This week join your patient co-hosts Tiffany Westrich-Robertson, Deb Constien, Katie Simons and Patrice Johnson as they brief our AiArthritis patient community on the first day of EULAR 2021 with patient guest Leslie Rott Welsbacher.

Episode 61

Aired: May 2, 2021

2021 Charity Talk


This week join your patient co-hosts Tiffany Westrich-Robertson and Deb Constein as they discuss AiArthritis’ 2021 Annual Fundraising Effort: The AUTO Drive Charity TALK.

Episode 60

Aired: April 4, 2021

COVID Blues: It's OK to Ask for Help


This week join your patient co-hosts Kelly Conway and Rick Phillips as they are joined by Heather Kenjorski to discuss mental health AiArthritis patients, and the COVID-19 pandemic.

Episode 59

Aired: March 21, 2021

Learned Experiences: Let the Evolution Continue!


Our organization is constantly evolving to meet those changing needs. As we look to a future where people will be able to interact in person more without the fear of COVID-19, we are excited to transition to a model for the show that will allow us to embrace our original vision of a “touring” talkshow. To prepare for this, we are changing the airing schedule of the show and diversifying our media platforms so that conversations building on core issues raised on the talkshow may be addressed through conversations on other platforms like social media, Youtube, webinars, and in our AiArthritis Voices online forum. We can’t wait to see YOU at the table soon for one of these chats.

Episode 58

Aired: March 7, 2021

Diet, Research, & AiArthritis - an ACR Special Presentation


Join your patient co-hosts Deb Constien, Tiffany Westrich-Robertson, and Patrice Johnson as they take us backstage at the American College of Rheumatology (ACR) Annual Conference as Deb introduces a research review from the ACR about diet.

Episode 57

Aired: February 21, 2021

RheumyRounds SPECIAL EPISODE - COVID-19 & Vaccinations Communication, Education, & Shared-Decision Making



Patient Co-Hosts Tiffany Westrich-Robertson & Kelly Conway are joined by Dr's Al Kim, Vibeke Strand, and Jeff Sparks as they discuss patient and rheumatologist vaccination hesitation and key education points, while providing insights to assess benefits and risks and promote shared-decision making strategies.

Episode 56

Aired: February 21, 2021

Minisode Special: Decision Making w/ Vaccinations & Special Rheumy Rounds Announcement!



This episode, join your patient co-host, Tiffany Westrich-Robertson, CEO of the International Foundation for Autoimmune and Autoinflammatory Arthritis, as she introduces the special report episode (airing Wednesday the 24th) on rheumy/patient communication vaccine issues and the importance of shared decision making.

Episode 55

Aired: February 7, 2021

Patients Weigh In: What's in a Name - the "Spondy" Evolution



In this episode, join your patient co-hosts Tiffany and Charis as they are joined by fellow spondies - Richard Howard (also from Spondylitis Association of America) and Jennifer Walker. Based on a study group they all participated in at the American College of Rheumatology (ACR) 2020, they wanted to continue the conversation about spondylitis naming and weigh in on how they think doctors should educate patients about their disease. 

Episode 54 

Aired: January 24, 2021

COVID-19 & AiArthritis Special Series: Vaccine Questions & Mixed Messages


This episode, join your patient co-host Tiffany as she talks with rheumatologist, Dr. Alfred Kim about the COVID-19 vaccine.

Episode 53 

Aired: January 10, 2021

FDA Public Meeting Opportunity - Patients "at the table"



This week join your patient co-host Danielle Dass as she reports back on her experience attending an American Food and Drug Administration Public Meeting on behalf of the International Foundation for Autoimmune and Autoinflammatory Arthritis.

Episode 52 

Aired: December 27, 2020

An Unprecedented End of Year Review


This week, join patient co-host, Tiffany, as she gives our annual “Year End Review'' reflection. In honor of this unprecedented year, this episode will not be the usual briefing on work accomplished in 2020. Rather, Tiffany parallels this “unprecedented year” to living with chronic illness and, in turn, why the work at AiArthritis is so important. 

Episode 51 

Aired: December 13, 2020

Oh Mama! Physical and Emotional Support Postpartum

Special Series: Oh Mama Series - episode 2 Breastfeeding with AiArthritis Diseases


This week join your patient co-hosts Danielle Dass and Mariah Leach as they are joined by guest patient co-host Cheryl Crow to discuss postpartum needs of AiArthritis Patients.

Episode 50 

Aired: November 29, 2020

Special Series: American College of Rheumatology (ACR) Scientific Meeting 2020, "Go with Us!" to Conferences program

Grit, Gratitude, and Grace: How a Positive Mindset Can Improve Pain and Resilience

 

Join Tiffany, Deb, and Patrice as they review a session from the American College of Rheumatology (ACR) 2020 conference about pain and the brain/body connection.

Episode 49 

Aired: November 15, 2020

Special Series: American College of Rheumatology (ACR) Scientific Meeting 2020, "Go with Us!" to Conferences program

Your disease, my disease, Still's disease - what are doctors learning to expedite diagnosis?


Join Tiffany, Deb, and Patrice as they review two sessions, both that focused on educating doctors about Still's disease. This is relevant for all people living with our diseases - Stills disease or otherwise - because it's our stories (Case Studies) that really help expedite diagnosis. Want to learn more about the research and education from ACR 2020? Listen now!

Episode 48 

Aired: November 1, 2020

Support: It's not so simple. Diverse needs for difference experiences. 



Join Patrice, Effie, and Rick as they share their experiences with support - which all differ per personal relationships and perspectives. That means there are different needs that we must address to help everyone. What's YOUR story?

Episode 47 

Aired: October 18, 2020

Teamwork Makes the Dream Work: AiArthritis WINS Best Team Performance 2020


Join Tiffany, and several of the AiArthritis show co-hosts and organization volunteers, as they watch the WEGO Health LIVE Awards ceremony ... only to learn that AiArthritis won 2020 Best Team Performance!

Episode 46 

Aired: October 4, 2020

The "A" Word



In this episode, join Tiffany, Rick, Effie, Deb, Patrice, Suz, and Judy as they talk about the frustrations surrounding the word "arthritis". They talk about how misunderstandings lead to delays in diagnosis and treatment and public confusion (it's not all the same!) They also go into a touchy subject - changing disease names to avoid the word altogether. 

Episode 45 

Aired: September 20, 2020

This Is For All the Marbles


In this episode join your host, Tiffany Westrich-Robertson, who explains each person - and our associated roles - are like marbles. If each stakeholder group is a color, and only one color is in the jar, we will never develop solutions that matter to all stakeholders involved in the problem. So we are evolving the show - and our associated online AiArthritis Voices platform - to invite ALL STAKEHOLDERS to the table. Family? Doctor? Researcher? Come on! This is for all the marbles! 

Episode 44 

Aired: September 6, 2020

Patient-Reported Symptoms: Connecting the dots to improve education


Join your patient host, Tiffany Westrich-Robertson, CEO of AiArthritis, as she discusses the mission and future projects of The International Foundation for Autoimmune and Autoinflammatory Arthritis and the AiArthritis Voices 360 Talk Show.

Episode 43 

Aired: August 30, 2020

Support - It's a Family Affair



Join Tiffany, Estela, and Juana as they discuss the importance of family support for people with autoimmune and autoinflammatory arthritis.

Episode 42 

Aired: August 23, 2020

Treat 2 Target Today with Complex Diseases - Is It Possible?



Tiffany and Rick discuss the challenges involved as Treat 2 Target has emerged from aggressive treatments for a larger population to treating per the individual and based on the complexity of each disease. 

Episode 41 

Aired: August 16, 2020

Biomarkers - Diagnosis, Disease Management, & even PREVENTION?!



Tiffany and Patrice discuss the importance of biomarkers. Do biomarkers hold the key to understanding disease severity and predicting disease onset?

Episode 40 

Aired: August 9, 2020

Research at a Glance - Posters & Abstracts: Patient reviewers, here we come!

From our Go to EURLAR series


Join TIffany as she talks about the importance for both patients and organizations to review Posters/Abstracts and invites all patients to join her to continue the reviews as part of our "Go with Us" to EULAR 2020 initiative.

Episode 39 

Aired: August 2, 2020

Patient Engagement in Research - the OMERACT Experience


New primary outcomes (endpoints that should be measured) in rheumatology trials where shared-decision making between doctors and patients are required...and patients were part of this historic decision. This was part of the international, collaborative of rheumatology stakeholders - OMERACT .... and Deb and Tiffany were there and they want to tell you all about it!

Episode 38 

Aired: July 26, 2020

Patient-Led Research Review from EULAR 2020: Treat to Target - Remission IS Possible!


Tiffany Westrich-Robertson, Deb Constien, and Patrice Johnson, all persons living with AiArthritis diseases, share an excerpt of their LIVE research review on Treat to Target and Remission, from the European League Against Rheumatism (EULAR) scientific e-Congress 2020.

Episode 37 

Aired: July 19, 2020

Patient? Nonprofit? Researcher? Healthcare Services? You're invited to an experience that can change our future. 


It's finally ready! Two years in the works, but now the communication platforms, led by expert patient facilitators, are in place. An online site, called AiArthritis Voices, will tie in our online conversations, YouTube channel, live "tours", and educational gatherings) with all the topics we cover on our AiArthritis Voices 360 Talk Show.

Episode 36 

Aired: July 12, 2020

Preparing Patients for Precision Medicine - Collaboration with the Rheumatology Nurses Society

Special AUTO Ball Series #8


Tiffany Westrich-Robertson, is joined by patient Co-Host, Katie Steele. They speak with Carrie Beach, RN, from the Rheumatology Nurses Society (RNS) about our collaboration to improve patient voices in education and research (featuring our award-finalist Preparing Patients for Precision Medicine project). 

Episode 35

Sadly, this episode about invisible disease has been removed. Our Auto Ball Honorary Chair, Angela Durazo, was part of this show. However, Ms. Durazo's contract was valid for one year so she requested any promotional use of her name post that time was not permitted. We did request an exception for this episode, since it was a resource for the community, but she declined.

Episode 34 

Aired: June 28, 2020

 EULAR 2020 e-Congress: Research Debrief


Join Tiffany, Deb, and Patrice as they are learning while having a great time (click on the video, you'll see!) as they have been "at EULAR 2020" all June - which was supposed to take place in Germany June 3-6....but now it's ONLINE with information available through September 1st. Why cram all of this into 4 days when we can attend at our pace "flare free"? AND YOU CAN BE PART OF IT! WE LEARN YOU LEARN! 

Mini-Episode 29 

Aired: June 24, 2020

From Mini to Mega - Expanding the Table!


This week is our official last mini-episode Wednesday. But don't worry! The podcast episodes will continue to air on Sundays, which will combine both full episodes and the traditional mini's that used to air on Wednesday's. There are a few reasons for this change, which include the need to reach a larger demographic of people living with AiArthritis diseases - using different platforms (including video!) So take a listen to learn more about this exciting evolution for the show!

Episode 33 

Aired: June 21, 2020

You'll Always be my Baby



In this episode, which aired on Father's Day 2020, Tiffany Westrich-Robertson, CEO of the International Foundation for Autoimmune & Autoinflammatory Arthritis (AiArthritis) reflects on her choices about motherhood. While she never felt the "mother bug" to have children of her own, failed relationships led her on the path to dedicate her life to her career - and ultimately she "birthed" this organization. 

Mini-Episode 28 

Aired: June 17, 2020

It's Not All "Arthritis": Osteoarthritis versus AiArthritis

Special AUTO Ball Series #6


Join Tiffany Westrich-Robertson, as she discusses the importance of raising awareness as she teaches you how to creatively compare different arthritis types through Auto-themed activities.

Episode 32 

Aired: June 14, 2020

Differentiating Arthritis Types - AUTO + Arthritis = Early Detection, Referrals, Diagnosis

Special AUTO Ball Series #5


Join patient co-hosts, Tiffany & Suz, as they speak with Dr. Alfred Kim about how the two stakeholder groups can work together to encourage differentiation of arthritis types to increase public detection and referrals to rheumatologists. These efforts could lead to earlier detection and, as a result, quicker diagnosis, higher rates of remission, lower disability, and improved long term outcomes.

Mini-Episode 27

Aired: June 10, 2020

Your experience is key to unraveling the mysteries of COVID-19 - is your experience being counted?


Our community is asking many questions about how COVID-19 affected our diseases. The only way researchers can gain enough data to fully answer these questions is if all our experiences are counted. So if you think you had COVID-19, whether you tested positive, or not, or even had a test at all - we want to hear from you!

Episode 31 

Aired: June 7, 2020

E-Health Surge - Impacting Rheumy Visits

Special AUTO Ball Series #4



Join patient co-hosts, Tiffany & Deb, as they speak with Dr. Zickuhr about current efforts to streamline e-health visits. Which patients will be seen in person? Which will use tele-health or video calls? Deb and Tiffany weigh in with their experiences and opinions and they all discuss the need to include patients in the discussions as new protocols emerge.

Mini-Episode 26

Aired: June 3, 2020

Special Announcement: AiArthritis is LIVE on Youtube for EULAR!


Meet the team of AiArthritis patients "going" to EULAR 2020 this year - and since it's online YOU can go too! Join us for post-session discussions, research reviews, and even German-style dinner debriefs (the conference was supposed to be in Germany). EULAR is opening the virtual doors to patients so why try and navigate the scene alone? Go with the experts - US! 

Episode 30 

Aired: May 31, 2020

Conference Follow Up: EULAR 2019 e-Health Panelist - Where is e-health research now that COVID-19 has forced it's use?

Special AUTO Ball Series #3



This week join Tiffany Westrich-Robertson, Deb Majcher Constien, and Aurelie Najm as they discuss the importance of conferences. They continue the discrussion from the EULAR - European League Against Rheumatism congress in Madrid, Spain (2019) Tiffany and Deb attended a session on the existing efforts to advance e-health, so we could reach more rheumatic patients and, in turn, improve their health.

Episode 29 

Aired: May 27, 2020

COVID-19 & AiArthritis

Special AUTO Ball Series #2


In this episode, we revisit our work to help those affected by AiArthritis navigate the landscape of COVID-19 by bringing back show Co-Host, Danielle - International Foundation for Autoimmune and Autoinflammatory Arthritis volunteer, former educator (teaching geography, including pandemics), and person living with AiArthritis diseases. In this episode, Tiffany and Danielle discuss the current spread of the virus and Danielle explains the concept of epidemiological models and flattening the curve. They discuss the efforts to reopen some areas that had been previously locked down, as well as how you can protect yourself from infection if you live in one of those newly opened places. Tiffany discusses the ongoing frustration with testing availability and how much we still don’t know about the impact the virus has on survivors.

Episode 28 

Aired: May 24, 2020

Co-Founders Introduce the AUTO Ball Online

Special AUTO Ball Series #1


This week join the co-founders of the International Foundation for Autoimmune and Autoinflammatory Arthritis (AiArthritis), Tiffany Westrich-Robertson, Kelly Conway, and Tami Caskey-Brown as they introduce the AUTO Ball. This episode is the first episode in our AUTO Ball Series.

Mini-Episode 25

Aired: May 13, 2020

Patients + Doctors = Treatment Decisions ... Right?


This week join your host Tiffany Westrich-Robertson, CEO of International Foundation for AiArthritis, as she discusses the inherent desire of patients to make decisions with their doctors regarding treatment decisions without interference from insurance companies or governing agencies.

Episode 27 

Aired: May 10, 2020

There's a Method to Our Madness


In this episode Tiffany revisits one of the first mini-sodes we aired, “The importance of differentiating arthritis types” (November 29th, Mini-Ep2) to demonstrate how we put each topic “on the table” in Step 2 and then revisit it again in Step 5 - after inviting YOU “to the table’ to be part of the conversation.

Mini-Episode 24

Aired: May 6, 2020

E-Health: Taking Our Healthcare Online - What's working and what isn't?

Part of COVID-19 Special Series


This week join your patient co-host Tiffany Westrich-Robertson, CEO of International Foundation for AiArthritis, to discuss the subject of distance medicine and electronic health. Tiffany shares her recent experience with distance medicine as a result of the COVID-19 pandemic and discusses some of the concerns and implications of expanding the use of telemedicine appointments, electronic medical records, and online patient portals.

Episode 26 

Aired: May 3, 2020

Global Awareness - Your Story Can Impact Change


Tiffany Westrich-Robertson and Pooja Panchamia discuss the need for raising global awareness for autoimmune and autoinflammatory arthritis diseases. They talk about the problems patients everywhere face as a result of a lack of awareness of autoimmune and autoinflammatory arthritis diseases. They delve into the benefits that can be gained from online support communities for patients and caregivers. They also discuss how patients can make an important difference, both in management of their own health and in raising global awareness by speaking up.

Mini-Episode 23 

Aired: April 29, 2020

Identities Matter: Pronouns & the Online Community 


This week join your patient co-hosts Tiffany Westrich-Robertson, CEO of International Foundation for AiArthritis, and Charis Hill, a professionally disabled writer, speaker, and patient advocate as they discuss the sensitive topic of preferred pronouns and misgendering non-binary and transgendered individuals.

Episode 25 

Aired: April 26, 2020

Online AUTO Ball: Still Changing the World From Our Sofas

COVID-19 Special Series, Show 4


This week join your patient co-host Tiffany Westrich-Robertson, CEO of International Foundation for AiArthritis, as she announces a significant change in plans for the AUTO Ball and tells you how to get involved too - from YOUR sofa! Since our inception in 2011, we have been functioning primarily as an online entity. But in 2020, we planned to increase our impact by introducing our organization to a larger audience - OFFLINE. Then, COVID-19 happened and ironically, we have had to reroute our plans to venture out, moving our re-introduction to the world back to the online space ... where we have been changing the world from our sofas since 2011. Our goals remain the same: raise global awareness for AiArthritis diseases, teach the world more about who we are and what we do, and raise funds to allow this valuable work to continue.

Mini-Episode 22 

Aired: April 22, 2020

COVID-19 & Pets

Part of COVID-19 Special Series


This week join your patient host Kelly Conway, co-founder of International Foundation for AiArthritis, as she updates us all on the state of the COVID-19 pandemic as it relates to pets and their owners. She gives a thorough review of what all owners should do to protect and care for their pets, service animals, or emotional support animals during the pandemic. She also discusses specifically what to do if you contract COVID-19 and must have contact with your service animal or emotional support animal or if you have no-one else to care for your pets.

Episode 24 

Aired: April 19, 2020

Ethnic Diversity in Clinical Trials - We Are All Unique So All Voices Must Be Counted!


Join Tiffany, Estela, & Juana as they discuss the challenges associated with recruiting minorities in clinical trials and discuss ways to address the barriers so all ethnicities are included. 

Mini-Episode 21 

Aired: April 15, 2020

COVID-19 & Gloves: Handy Precautions to Keep You Safe

Part of COVID-19 Special Series


Join Danielle, official show patient co-host, and Kristen, guest patient co-host from the medical field, as they talk about whether or not you should use gloves for COVID-19.

Episode 23 

Aired: April 12 2020

COVID-19 & AiArthritis

COVID-19 Special Series, Show 4


Join Danielle, official show patient co-host, and Kristen, guest patient co-host from the medical field, as they talk about types of masks and what you need to understand to stay safe. 

Mini-Episode 20 

Aired: April 8, 2020

COVID-19 is #NotMyNewNormal

Part of COVID-19 Special Series


Join Effie as she discusses why the coronavirus scare resembles what it's like to live with a chronic illness. #NotMyNewNormal

Episode 22 

Aired: April 5, 2020

AiArthritis Voices 360 Revisited


This week the show is celebrating 40 brilliant episodes by revisiting some of our previous conversations with experts in the field of autoimmune and autoinflammatory rheumatic diseases. We have featured rheumatologists, clinical researchers, and medical anthropologists in addition to our many patient co-hosts with expertise of their own. If you are new to the show, this will give you an opportunity to catch up on what our experts had to say about their work. Tune in and then join us to add your voice to these ongoing conversations.

Mini-Episode 19 

Aired: April 1, 2020

Myth Busting CBD & COVID-19

Part of COVID-19 Special Series


In this mini-episode, join Bridget Dandaraw-Seritt, founder of the Canna Patient Resource Connection, as she tackles myths and misinformation circulating about CBD and COVID-19. Is it true that CBD can kill the coronavirus? Can the alleged anti-inflammatory properties of CBD protect you from a COVID-19 initiated cytokine storm? Does CBD have antiviral properties?

Episode 21 

Aired: March 29, 2020

#HighRiskCOVID19: Reality Check from the Immunocompromised Community

COVID-19 Special Series, Show 3


This episode join your hosts Kelly Conway and Charis Hill to discuss COVID-19 and the potential impact on the AiArthritis Community. This is the third episode in a breakout series on COVID-19 and what you can do to protect yourself during the pandemic. They will discuss raising awareness for the risks experienced by disabled and chronically ill people during the pandemic and what you can do to join the movement. They also dive into being discriminating about the reliability of sources when reading about COVID-19 and prioritizing your mental and emotional wellness during social isolation.

Episode 20 

Aired: March 22, 2020

COVID-19 & AiArthritis: Ask the Rheumy with Dr. Kim & Matt Iseman, host of American Ninja Warrior

COVID-19 Special Series, Show 2



In this episode, join patient co-hosts Tiffany Westrich-Robertson and Matt Iseman - host of American Ninja Warrior and person living with Rheumatoid Arthritis. They are joined by Dr. Alfred Kim, Rheumatologist at Washington University and Founder and Director of their Lupus Clinic. This is the second episode in a breakout series on COVID-19 and what you can do to protect yourself during the pandemic. Should you continue taking immunosuppressive therapies? Are you going to be able to refill your hydroxychloroquine prescription? What should you do if you begin experiencing symptoms? When do you need to go to the ER? Dr. Kim offers his expert opinion on these and more vital questions.

Episode 19 

Aired: March 18, 2020

COVID-19 & AiArthritis: Pandemics & Patient Organizations

COVID-19 Special Series, Show 1


This is the first episode in a breakout series of AiArthritis Voices 360 episodes on COVID-19 and what you can do to protect yourself during the pandemic. Join your co-hosts, Tiffany and Danielle as they welcome Joe Coe from Creaky Joints / Global Health Living Foundation to discuss COVID-19 and the potential impact on the AiArthritis Community. 

Episode 18 

Aired: March 15, 2020

The Juggling Act: Living with Multiple Conditions


In this episode of AiArthritis Voices, patient co-hosts Tiffany Westrich-Robertson and Simon Stones discuss the prevalence and logistics of living with multiple conditions. Most health systems have moved away from a model where General Practitioners/Primary Care Physicians are managing all aspects of patient care to a model that places more emphasis on specialists and a depth of expertise in a specific disease. The downside to this is it has created a system where patients must be their own Care Coordinators, yet most have no experience or understanding of how to do this. What can be done to change the system? What can you do in the meantime to ensure that your health is not slipping through the cracks?

Mini-Episode 17 

Aired: March 11, 2020

World AiArthritis Day 


Listen as Tiffany talks about World AiArthritis Day on May 20th, an annual event established by AiArthritis to raise awareness for AiArthritis Diseases. Also learn more about, the AUTO Ball, an event that AiArthritis will be hosting on Saturday, May 2nd to launch the countdown to World AUTOimmune and AUTOinflammatory Arthritis Day.

Episode 17 

Aired: March 8, 2020

Workplace Discrimination


Join co-hosts Tiffany Westrich-Robertson and Danielle Dass as they discuss discrimination against disabled people in the workplace. They dig into workplace accommodations, what to do if you are a victim of discrimination at work, and the connection between ableism and poor treatment of disabled employees. They also touch on how both delayed diagnosis and shifting identities can contribute to challenges in finding a work environment right for you. If you are a victim of workplace discrimination, a working person living with chronic illness, or a supervisor of other employees, this is an important episode for you!

Mini-Episode 16 

Aired: March 4, 2020

Unpredictable Disease in a Need-to-Be Predictable Environment


In this weeks episode we talk about the challenge of having an unpredictable disease when you are in a situation that demands predictability. Tiffany shares an experience she had when summoned to jury duty. Perhaps you have been an employee, patron, or student of an organization that adheres to rigid scheduling and fixed timelines. How do you deal with the unpredictability of symptoms and flares in an environment that lacks flexibility?

Episode 16 

Aired: March 1, 2020

CBD - It's Everywhere!


Join patient co-hosts Tiffany from AiArthritis and Bridget from the Canna-Patient Resource as they openly discuss CBD and medical marijuana as it is becoming available in many parts of the world, and many with chronic pain are interested in trying it - some are interested if they can use it without experiencing the effects of feeling 'high'. But how is this possible? What happens if you order from the internet and not a plant-based farm? AiArthritisis strongly focusing on developing educational materials for patients, and for supporters/families friends who may judge a person for use without additional information available.

Mini-Episode 15 

Aired: February 26, 2020

Shared Decision Making Tools to Advance Precision Medicine: Get Involved!


 This week’s topic is shared decision making. In preparation for precision medicine, AiArthritis is working on developing tools to support and facilitate conversations between patients and their doctors. Tune in to learn about the initiative and other opportunities to share your voice to influence shared decision making.

Episode 15 

Aired: February 23, 2020

Internalized Ableism: Finding Your Freedom to Participate in Life


This episode join co-hosts Charis Hill and Tiffany Westrich-Robertson as they discuss the important topic of overcoming internalized ableism, both individually and as a society. They discuss the reasons people living with AiArthritis diseases may find it difficult to transition to identifying as a disabled person. Charis also shares insight on medical vs social models of disability and some suggestions for overcoming our invisible prejudices against disabled people. They also touch on the United States federal disability benefits application process.

Mini-Episode 14 

Aired: February 19, 2020

When our past impacts our present - the office visit


Dr. Kim states he is typically already prepared for how the visit will go before ever walking in the room. However, Tiffany pointed out that patients not only come to the visit potentially planning to present new information, but that past experiences throughout their disease journey also will impact the visit dynamic.

Episode 14 

Aired: February 16, 2020

Rheumy Rounds™: Office Visit Communication Obstacles - Dr. Google, Communication Tools, & when to say goodbye


Join patient co-hosts Tiffany and Kelly, along with roundtable guests rheumatologist, Dr. Alfred Kim, and graduate researcher Jerik Leung, as they conclude the first conversation in our exciting breakout series called Rheumy Rounds on improving communication between doctors and patients.

Mini-Episode 13 

Aired: February 12, 2020

Rheumy Rounds Breakout: Social Support Research and the Importance of Being Heard


This week listen to an excerpt from Part One of our pilot episode of Rheumy Rounds™. This mini-episode captures a break out discussion between Kelly and Jerik about the research Jerik and his team have been working on regarding social support and the need for people with AiArthritis diseases to find others, like us, who understand our journey.

Episode 13 

Aired: February 9, 2020

Rheumy Rounds™ Pilot Episode: Office Visit Communication Obstacles


Join your patient co-hosts, Tiffany and Kelly, as they are joined by roundtable guests - rheumatologist, Dr. Alfred Kim, and graduate researcher Jerik Leung -as we dive right into the heart of the issue - communication barriers that currently exist between patients and their rheumatologists in the office setting.

Mini-Episode 12 

Aired: February 5, 2020

Intro to Rheumy Rounds: Patients & Rheumies Unite!


This week we introduce the new breakout series “Rheumy Rounds”, debuting Sunday, February 9th. Two very important stakeholders - the rheumy and the patient - unite in roundtable discussions so each party can equally contribute knowledge so, together, we can solve important issues and improve outcomes!

Episode 12 

Aired: February 2, 2020

Invisible Impact: AiArthritis Diseases


Join Tiffany and Effie as they discuss the challenges of living with an invisible illness or disability. We hope this episode will be the first step to raising awareness and empathy for people suffering in silence. Our diseases start at the cellular level, so pain and other symptoms begin well before any damage.  This can cause those who can't "see" any injury or illness to assume a person is not as bad as they are saying they are. What experiences and challenges have you experienced due to invisibility?  Spend some time with Tiffany and Effie and then log on to social media to share your story!

Mini-Episode 11 

Aired: January 29, 2020

Invisible Disease: Bruised from the Inside


This week’s topic introduces the challenges associated with invisible illness. How do you get the support and accommodations you need when people think you look healthy? Have you ever had an incident that shaped the way you behaved moving forward? Do you feel pressure to be performative in some way with your disability?

Episode 11 

Aired: January 26, 2020

Oh Mama! Pregnancy Planning with a Chronic Illness


This week the show is recorded at the American College of Rheumatology (ACR) annual scientific meeting where patient co-hosts Deb, Mariah, and Tiffany tackle the topic of pregnancy planning with a chronic illness. They also had the opportunity to invite Linette Dyer from Mother to Baby to give input on existing treatment research and safety information. Mariah is the founder of Mamas Facing Forward, an organization that supports Mothers with chronic illness, and a mother who has experienced both non-medicated and medicated pregnancies. Deb experienced pregnancy when doctors believed that AiArthritis patients could not take any medication during pregnancy or breastfeeding, and Tiffany inquires about concerns from a person who may be interested in planning a family.

Mini-Episode 10 

Aired: January 22, 2020

Life of a Biologic


This week, we are tackling the subject of biologic therapy*, specifically why they sometimes stop working. There are some ideas proposed by existing research for the sudden loss of efficacy, but there really doesn’t seem to be much out there. AiArthritis is on a mission to get to the bottom of this issue. 

Episode 10 

Aired: January 19, 2020

Patients Weigh In: Why the 'Right' Diagnosis Name Matters


This week, join your co-hosts Charis Hill and Tiffany Westrich-Robertson as they discuss the evolution of the term Ankylosing Spondylitis into the new umbrella term: Axial Spondyloarthritis. What does this new term mean? How will it impact treatment options or the patient experience? Does it even matter what your diagnosis is if the treatments for AiArthritis are all basically the same? Listen in as they talk about these and other issues surrounding finding the right diagnosis. Then visit us on social media or submit your comments via email to make your voice heard in the ongoing discussion.

Mini-Episode 9 

Aired: January 15, 2020

Precision vs. Personalized Medicine: Using the Right Term Matters!


Tiffany talks about precision vs. personalized medicine. Our organization is working on a project called Preparing Patients for Precision Medicine to help educate patients on the terminology surrounding precision medicine. 

Episode 9 

Aired: January 12, 2020

Changing the world with your knee - investing in our future


This week join Tiffany and Deb as they welcome Dr. Aurélie Najm to the podcast. Dr. Najm is a rheumatologist and clinical researcher and currently serving as the co-chair for the European League Against Rheumatism Synovitis Study Group and part of the OMERACT (Outcome Measurements in Rheumatology) Synovial Tissue in Randomized Clinical Trials working group - which Tiffany and Deb also participate in. She explains how her teams are working to collect and analyze synovial tissue samples from Rheumatoid Arthritis (RA) patients to develop more precise approaches to treating the disease.

Mini-Episode 8 

Aired: January 8, 2020

Brain Fog


Studies have shown that most people with AiArthritis experience brain fog, but why? What does the experience feel like for you? Tune in for information on the causes and a few strategies for combating it. Then go to social media and tell us how you manage brain fog or let us know what you want to learn more about. 

Episode 8 

Aired: January 5, 2020

Where Can Patients Have a Voice? EVERYWHERE!


This week, join your host, Tiffany, as she and co-host Suz Schrandt talk about the variety of opportunities that exist for patients who want to become active in medical research, education, and advocacy. Regardless of your background, there are opportunities for you to get involved and help shape the future of medicine and science regarding autoimmune and autoinflammatory arthritis. Your voice matters, and you can make a difference. Pull up a chair to find out how to get started and where your journey could take you!

Mini-Episode 7 

Aired: January 1, 2020

2020 Resolutions: Let's Do This Together!


The odds of keeping New Year's Resolutions are low - for all people - because of commitment issues. We understand...those living with AiArthritis diseases often will not commit to activities that could be affected by flares. So we are planning to start an education and support style group to encourage communication between those diagnosed and their families and friends, as well as for those diagnosed to support one another by sharing tips and success stories.

Episode 7 

Aired: December 29, 2019

End of Year Review


This week, join your host, Tiffany, as she gives the 2019 Year End Report on AiArthritis’s work to benefit the AiArthritis Community. You will have a front row seat as she explains the important work AiArthritis has been doing since its inception, the organization’s goals for 2020, and how support is vital to making this work a reality. 

Mini-Episode 6 

Aired: December 25, 2019

Best Gift


We invite you to join your host Tiffany as she talks about the best gifts. When you're a child, the best gift is usually an exciting toy. As you age, your ideal gift changes. People with AiArthritis diseases benefit from tools that help us remain active and comfortable so we can live our best lives. Do you consider mobility aids while shopping for a special someone? Is there a special can opener or heating pad on your wish list? We want to hear your best ideas for tools, devices, and comfort items that make life better for someone living with AiArthritis. Join Tiffany as she shares her best (and worst) gifts and how those 'wants' have changed since diagnosis.

Episode 6 

Aired: December 22, 2019

Diagnosis STAT!


This episode join your host, Tiffany, as she and co-host Suz Schrandt discuss the importance of early detection and diagnosis. They address barriers to receiving an accurate diagnosis, as well as what patients can do to increase their chances of receiving an accurate diagnosis in a timely fashion. Research consistently shows that early intervention improves patient outcomes. Whether you are a patient looking to confirm the accuracy of your diagnosis or avoid diagnostic delays in the event of new disease onset or a member of the public wondering if you or someone you love could be experiencing the onset of a rheumatological disease, this episode is a must-listen!

Mini-Episode 5 

Aired: December 18, 2019

Flu or Flare?


Join your host, Tiffany, as she talks about trying to differentiate between flu and flare. Are you coming down with a virus? Or is your AiArthritis flaring? We want to start a conversation about how you manage your flares. How do you juggle work, family, and life when you feel terrible and look fine? Symptoms of AiArthritis Disease flares often mimic those of having the flu. Believe it or not, many of us question which it is at first - flu or flare?

Episode 5 

Aired: December 15, 2019

Navigating Your Own Health - Focus on Registries/Databanks


This episode, your host Tiffany and her co-host, Kaleb Michaud, as they tune in from the American College of Rheumatology (ACR) meeting to discuss the importance of navigating your own health journey as a patient by having a voice in activities such as databanks and registries. FORWARD, and the associated projects mentioned, will not only help patients become more active in managing their own healthcare, the patient contributions will also benefit the advancement of science and the understanding of rheumatology.

Mini-Episode 4 

Aired: December 11, 2019

"Who Am I Now?" Finding a New Normal


Join your host, Tiffany, as she discusses discusses the phenomenon of a shifting identity. The way we see ourselves can change radically after diagnosis or symptom onset of an AiArthritis disease. But, as Tiffany points out, “having these diseases isn’t the end of the world. It’s just another way of living in it.” YOU are still YOU ... and you're probably pretty awesome!

Episode 4 

Aired: December 8, 2019

Support Animals: Chronic Illness and Pets


This episode, your hosts Tiffany and Kelly are joined by special furry co-host Georgia Grace as they dive into the topic of animals and pet ownership. Learn about the difference between service, emotional support, and therapy animals and how owning a pet can benefit people living with chronic illness. They also discuss tips for selecting and caring for pets in spite of mobility challenges and weakened immune systems. Finally, learn about the experience of owning a pet with a chronic illness and how it can enrich your life.

Mini-Episode 3 

Aired: December 4, 2019

Communicating how it feels to have an AiArthritis disease


Join co-host, Tiffany, as she discusses the need to communicate what it feels like to have an AiArthritis disease. This is important because too often people living with these diseases are 'invisible', as the pain and other symptoms (fatigue, flu-like systems) usually cannot be seen by others. So how do you explain it? 

Episode 3 

Aired: December 1, 2019

Autoimmune vs. Autoinflammatory: What's the Difference?


This episode join your host, Tiffany, and special guest Dr. Apostolos Kontzias from the Center of Autoinflammatory Diseases, as they discuss the distinction between these two sides of the immune system, and the diseases that stem from them. Inconclusive laboratory results, a shortage of experts in the field, and poor understanding of these conditions can cause diagnostic delays, leading to poor outcomes. This confusion also causes patients with adult onset diseases become a forgotten subgroup within the AiArthritis community.

Mini-Episode 2 

Aired: November 27, 2019

The need to differentiate arthritis types


Join your host, Tiffany, as she discusses the need to differentiate arthritis types to address misunderstandings that lead to relationship conflicts and early diagnosis, which can result in compromised quality of life and elevated costs to our healthcare systems. . 

Episode 2 

Aired: November 24, 2019

Typical vs. Atypical: Which are you and why does it matter?


This episode join your host, Tiffany, as she and co-host Deb Constien discuss the challenges faced by patients who experience atypical disease presentations, especially the need to advance our understanding of this phenomenon because the typical is not so typical. This concept is vital for early detection and improving outcomes. They also explore the ways that a lack of commonality among disease presentation and progression impact advancements in treatment options.

Mini-Episode 1 

Aired: November 20, 2019

Step in the right direction:

Mobility issues due to surgery, disability, or flares


Mobility is a key theme we will cover in many episodes. In this first mini "At the Table" episode, we are discussing situations that patients may face when normally able to put pressure on their foot/feet and then suddenly are challenged to walk (or anything else involving the feet). We featured a story in this episode from Deb, who has had foot surgery due to Rheumatoid Arthritis and is unable to put weight on it for up to 12 weeks.

Episode 1 

Aired: November 17, 2019

The Mystery Patient - How AiArthritis Came to Be


This week Tiffany is joined by Kelly to talk about their experience of being Mystery Patients and to share their diagnosis story.  The route to diagnosis and treatment is often long and complicated, but it shouldn't be.  The discussion also gives an overview of the goals of the podcast by giving an overview of The International Foundation for Autoimmune and Autoinflammatory Arthritis, what we do, and invites all patients to the table to talk about their experiences as "the mystery patient".

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