RheumyRounds: PART TWO The Good, The Bad, & The Ugly - Improving Office Visit Communication
AiArthritis Voices 360 Main, Full Episode 81
Part of our RheumyRounds Series
Air Date: January 1st, 2023
This episode is a Step 2 - an initial visit to the table - as outlined in our 6 Step Patient-Led Problem Solving Process.
Welcome to part 2 of the Rheumy Rounds episode where we bring Rheumatologists and patients to the table. During this episode, we are going to be discussing the good, the bad and the ugly in office visits. In an effort to improve office visits and patient experiences, we are creating an Ebook with a collection of all your stories. In this episode, Tiffany Westrich-Robertson (axial spondyloarthritis) and Deb Constien (rheumatoid arthritis) are joined by rheumatologist Dr. Al Kim "Al" (also Tiffany's rheumy) to highlight the importance of communication, compassion and openness in bettering patient-doctor relationships. While Part One focused largely on the Good, in Part Two we get more into the Bad and the Ugly.
They also invite YOU to share YOUR Good, Bad, and Ugly office visit stories so, together, a team of patients and rheumies can work together to create recommendations for best in office communication practices that can improve the future of patient-rheumy office visit communication!
Episode Highlights:
- AiArthritis is creating an Ebook with a collection of patient stories of the good, the bad and the ugly to study these interactions and help improve patient care.
- Deb, Tiffany and Dr. Al Kim share their experiences with undiagnosed and misdiagnosis and patient care
- Importance of active listening as a physician so you can work together to find a proper diagnosis or treatment
- How best to set expectations as a physician for treatment options
- Importance of doctors managing their emotional reserve when seeing patients in the office daily
- Best practices at building better doctor-patient communication in the office
If you are interested in sharing your rheumy/patient office experience for our new Ebook, submit them below!
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RheumyRounds is sponsored by Bristol Myers Squibb.
AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at
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LISTEN TO OR WATCH THE FULL EPISODE THEN BE SURE TO TAKE A SEAT AT THE TABLE BY JOINING THE CONVERSATION!
All our main 1st Sunday of the month episodes are either an initial "put the topic on the table" episode (Step 2 in our organization's 6-step problem solving process) or a "revisit to the table" episode, where we build on a past show because we have moved forward in developing help, tools, or projects around the issue (Step 5 in our organization's 6-step process).
After each show airs we spin off the conversation into many discussions over various formats, which we now call #360its (new in 2022)!
And now, let's 360it!
The main Sunday episode is where we "put the topic on the table," but it's not where the conversation ends! Now we spin off the conversation into different discussion segments. Below you will find several 360its. Some are videos from the main episode, while others are audiograms (soundbites).
Soon we will be launching additional 360its, which will build on these conversations. We'll hear from patients in the United States, Canada, and Australia who are here to help you through the transition to biosimilars. We are also planning a WATCH PARTY, where we will play back segments of webinars that aim to teach you more about biosimilars - and you'll have your fellow patients at AiArthritis to talk through it all with you! Stay tuned.
SHORT VIDEO CLIPS FROM THE MAIN EPISODE
360it #1
From Bad to Good
There is so much we can learn for patients and doctors experiences in the office to improve patient care. During this episode, patients and rheumies share examples of what went wrong and what went right in office visits. From these experiences, both patients and rheumies can learn so much to improve communication.
360it #2
Gaining Patient Trust
Rheumatologists play an important role in our health and wellbeing so it is essential they listen to their patients carefully and attentively during office visits. Listening to a patient’s story and understanding their concerns can help doctors make an accurate diagnosis and provide appropriate treatment.
What experiences either good or bad have you had during an office visit?
360it #3
Making a Good Experience
A good rheumatologist visit experience is one that is built on trust, understanding, and communication. The rheumy should take the time to listen to the patient and answer their questions in a way that is clear and understandable. By following these tips, doctors can create an atmosphere of trust and understanding with their patients, and ensure that they are being heard.
What do you think makes a good doctor visit?
SHORT AUDIOGRAMS FROM THE MAIN EPISODE
360it #1
A Good Patient Experience
In this month's episode, our guests share good and bad experiences in the office and how we can learn from them to improve patient care. So, what makes a good experience?
360it #2
Patients Preparing with Questions
The more prepared the patient comes to office visits with questions and concerns, the more help the physician can provide. How do you come prepared to your office visits?
360it #3
Importance of Open Doctor-Patient Communication
Open communication between the doctor and patient is necessary even if the doctor doesn't have all the answers right away. What experiences have you had as a patient with good or bad doctor communication?
Your Co-Hosts & Guests: Who is at the table this episode?
Tiffany Westrich-Robertson
Tiffany is the CEO at International Foundation for AiArthritis and uses her professional expertise in mind-mapping and problem solving to help others, like her, who live with AiArthritis diseases work in unison to identify and solve unresolved community issues. For the last several years, she has continued her education in research, including becoming a professional focus group moderator, and translated this experience at our organization to develop award-winning, innovative projects that are taking patient engagement to next levels.
Tiffany has served on several advisory boards, including those to advance patient voices in policy, clinical trials, and precision medicine. In addition to reviewing grants at PCORI and for the Department of Defense, she was the sole patient grant reviewer for the National Institute of Arthritis and Musculoskeletal and Skin diseases from 2015-2018. She currently participates as a Patient Research Partner for OMERACT (Outcome Measures in Rheumatology), co-leads our organizations' international effort to advance patient voices in rheumatology research (the ACTion Council) and has dedicated her professional career to developing other patients to utilize their voices to impact the future of millions.
- Facebook: @TiffanyAiArthritis
- Twitter: @TiffWRobertson
- LinkedIn: @TiffanyWestrichRobertson
Deb Constien
I live in Sun Prairie, just outside Madison Wisconsin, with my husband Tim of 28 years and 23year old son Jacob. I was diagnosed with Rheumatoid Arthritis at the young age of 13. I am a medically retired Registered Dietitian, graduating college with majors in Dietetics and Biology. I have been a volunteer and representative for AiArthritis for the past 7 1/2 years and really enjoy using my scientific expertise to help in the patient journey. In addition to volunteering for AiArthritis, I also volunteer for the Arthritis Foundation, the Advisory Council for WREN- Wisconsin Research Education Network, Patient Family Advisor- PFA on an International PCORI research study for ACP- Advanced Care Planning. I am also on an OMERACT study group for Shared Decision Making.
- Facebook: @deb.majcherconstien
- Instagram: @debconstien
- Twitter: @debconstien
- LinkedIn: linkedin.com/in/deb-majcher-constien-59945429
- YouTube: debconstien
- TikTok: debconstien
Dr. Al Kim
Dr. Kim is an Assistant Professor of Medicine and of Pathology & Immunology at Washington University School of Medicine. He also founded and directs the Washington University Lupus Clinic. Dr. Kim’s research group is focused on addressing the unmet needs of human systemic lupus erythematosus (SLE), including understanding and leveraging the biomarker potential of complement activation products, testing novel noninvasive imaging platforms such as photo acoustics to detect lupus nephritis, understanding the relationship between sleep quality and lupus activity, and restoring eroded social support in patients with SLE.
Twitter: @alhkim
Pull up your seat at the table
Now it's YOUR TURN to join the conversation!
What do you think about this episode?
We want to know what you think! By continuing the conversation with your opinions and perspectives - we all get a better understanding of the problems facing our community. Better yet, through these conversations we can start working and developing solutions.
We mean it when say 360. Not only do we want your input anytime and anywhere, but we also are eager to see where the conversation will take us. So please, "pull up a seat at the table" and let's start talking!
Email us at podcast@aiarthritis.org, message us on social media (find us by searching for @IFAiArthritis)
Continue the conversation in our own AiArthritis Voices 360 Talk Show Group!
Pull up a seat and join the conversation on the topic from today and past episodes. You may even get an opportunity to talk directly with the co-hosts and any episode guests!
RheumyRounds is a special AiArthritis Voices 360 Series that unites patients and rheumatology professionals 'at the table' - as equals - to discuss important community topics that, if solved, would improve communication and positively impact outcomes. RheumyRounds is currently sponsored by Bristol Myers Squibb. Learn more and get involved!
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