Our Mission, Vision, and Goals
Mission Statement. We are leaders in advancing education, advocacy, and research for those impacted by
autoimmune & autoinflammatory arthritis diseases through capturing and infusing lived experience data into one-of-a-kind guidance, resources, and programs that improve the patient journey.
Patient-led approach: "We don't represent the patient voice, we are the patient voice." No one can identify what a patient needs most more than those personally impacted by the diseases. In addition to all our public facing staff being people affected by our diseases, we also constantly interacting with others impacted with these diseases, too. By listening to patient identified issues we identify what resources and programs are most needed and work on creating patient infused solutions.
Global Network philosophy. We collaborate with other organizations, health professionals, and other groups as necessary to make sure the work we do creates the most impact.
¿A quiénes ayudamos?
Aquellos diagnosticados
Those diagnosed with one of the 23 autoimmune and autoinflammatory arthritis diseases.
Su red de apoyo
Family and friends of those impacted by our conditions.
The Undiagnosed
Everyone is undiagnosed before they are diagnosed...and more often than not the journey is challenging.
Vision
We envision the stories of tomorrow to be those of early detection and diagnosis, individualized therapeutic intervention and access to them, improved quality of life, common remission, and a world that understands the depth of our diseases and the challenges associated with them.
Prioridades y objetivos principales
- Acelerar la detección temprana, las derivaciones, el diagnóstico y el acceso a la intervención terapéutica.
- Mejorar la calidad de vida, la comunicación, las tasas de remisión y los resultados de la atención médica.
- Ampliar la colaboración y la influencia de los pacientes en la educación, la defensa de sus derechos y la investigación para mejorar los resultados y promover la innovación.
- Eliminar ideas erróneassobre estas enfermedades y el tipo de artritis inflamatoria asociada a ellas (“Autoinmune Enfermedades de la artritis yAutoinflamatorioEnfermedades de la artritis, comúnmente conocidas como
AiEnfermedades artríticas)
How do we help?
Every program and project is designed by patients for patients and has two levels - learn from our resources and 'elevated experiences'. Once we go through the process above, the result will be a patient-designed program that is also led by those affected by our diseases - along with help from others, like doctors, researchers, legislators, or anyone who is needed to make the best project possible. Everything we do includes two levels:
- Learn. Like most nonprofits, we create resources patients and care partners need to help navigate their journey with AiArthritis diseases.
- "Elevated experience" - opportunity to get more involved in the healthcare journey. For those who want to be more active or 'hands on' in their healthcare journey, we offer opportunities to participate in interactive learning experiences and activities - all led by those affected by these diseases! It's a true patient-led experience of mentorship and empowerment.
Flexible, Flare-Free Environment
When our founders developed the working structure, they took into account that the patients working and volunteering for our organization would require extreme flexibility to accommodate disease activity and flares so they could work when they are at their very best.
This means that we are open 24 hours a day, 7 days a week to serve our people well and has resulted in heightened productivity and ability to reach across time zones with international collaboration and partnerships.
We have always worked through virtual officing so staff living with our conditions can save energy by not commuting and are in a comfortable environment in case they flare.
Fun Fact
Did you know this nonprofit started in 2011 after first being an awareness movement that showcased a bracelet with this bead pattern (now in our logo!)? Each bracelet came with a message that explained the meaning behind the pattern of beads in the design: "The three silver and black beads represent all people in a community working together for impact (red bead) to bring change (last gray bead)."
Leadership Team
Desde la formación profesional en negocios, educación y
Desde la investigación hasta la especialización en diversas funciones de defensa del paciente, somos líderes comunitarios y educadores.
History
One misunderstood patient started an awareness movement, where she met others just like her. Together they realized the key to change lies within the patient voice.