Care Partners/
Support Network
Supporting someone with an AiArthritis diagnosis can feel overwhelming, as the challenges and uncertainties that come with such a condition can be daunting. However, rest assured that you are not alone in this journey, as we are here to provide you with the support and guidance you need to navigate through the complexities of managing AiArthritis. Together, we can work towards empowering you to better understand the diagnosis, explore treatment options, and find ways to improve quality of life.
These AiArthritis resources are designed to support you as a care partner or part of a support network. They offer valuable information to help you understand and manage your loved one’s condition. With these tools, you’ll be better equipped to provide the care and support they need, while also gaining the knowledge necessary to assist in making informed decisions about their health. By utilizing these resources, you’ll be empowered to confidently guide and support your loved one through their journey.
Resources For The Support Network/Care Partners
Support Tool
This guidance was developed in response to family members (significant others, siblings, children of parents with
AiArthritis diseases) requesting help to manage their stresses, concerns, and emotional issues associated with caring for someone living with
AiArthritis diseases. Fill out this worksheet together to learn how to communicate how to support each other through this journey.
Bienestar social con un AiEnfermedad de artritis
Join our co-hosts as they discuss both the supportive and challenging dynamics of maintaining an active social life with an AiArthritis disease and how online communities can positively impact social wellness. Plus discover the downloadable resource created from this podcast episode.
More Resources For Care Partners and Support
Genetics: Role in AiArthritis Diseases
Esta publicación de recursos explica cómo la genética puede influir en el desarrollo de autoinmune y autoinflamatoria Este recurso te ayudará a comprender el papel que desempeñan los genes en las enfermedades artríticas. Si eres cuidador/a, descargarlo te resultará valioso, ya que te proporcionará información esencial sobre los riesgos genéticos de tu ser querido, lo que te permitirá brindarle un mejor apoyo para el cuidado de su salud.
Managing AiArthritis Diseases
Check out these resources, which may help:
- Disease List: Explains why AiArthritis diseases are grouped together and breaks out to pages for each disease
- OA vs AiArthritis: Describing the difference between osteoarthritis and autoimmune or autoinflammatory arthritis
- Surgery with an AiArthritis Disease: Learn valuable insight about surgery preparation, challenges, and questions to ask your healthcare provider.
- Treatment: Goes over the different types of treatment, both pharmacological and non-pharmacological
Have questions? Email us at
info@aiarthritis.org
Episodios de programas de entrevistas para la red de apoyo/cuidadores.
Supporting someone with an autoimmune or autoinflammatory arthritis disease can be both rewarding and challenging, especially when navigating the complexities of their condition. While it’s crucial to stay informed and connected with healthcare professionals, our AiArthritis Voices 360 Talk Show—led BY PATIENTS—serves as a valuable resource for care partners, support networks, and loved ones who want to better understand and assist those they care about.
We have selected some episodes we think may help you in your role as a care partner:
This episode, your hosts Tiffany and Kelly are joined by special furry co-host Georgia Grace as they dive into the topic of animals and pet ownership. Learn about the difference between service, emotional support, and therapy animals and how owning a pet can benefit people living with chronic illness. They also discuss tips for selecting and caring for pets in spite of mobility challenges and weakened immune systems. Finally, learn about the experience of owning a pet with a chronic illness and how it can enrich your life.
A revisit to the table with Deb Constien, Estela Mata, and Tiffany Westrich-Robertson as they continue discussing the dynamics of support - including needs of the patient as well as others in the patient's support circle. Building on Episodes 43 and 48, they start a support tracking tool to help patients and families/friends better assess their needs and how, together, we can work to address them! You're invited to help us continue developing this aid - find out how!
In this episode, co-hosts Leila, Estela, and Kerry delve into the crucial topic of social wellness amidst living with AiArthritis disease. They explore the essence of social wellness, its significance and sharing personal insights on navigating social lives while managing health challenges. Join our co-hosts as they discuss both the supportive and challenging dynamics of maintaining an active social life with an AiArthritis disease and how online communities can positively impact social wellness. Drawing from community questions and experiences, they offer invaluable advice, practical tips, and thoughtful modifications to foster social fulfillment despite potential barriers. Tune in to learn how to prioritize social wellness in the face of chronic illness.
Information For Our Support
Here, you will discover articles designed to assist you throughout every stage of the patient journey. We have carefully chosen these resources to support those who support others with an AiArthritis disease.
Más información para nuestros cuidadores
Share Your Story & Get Involved!
Sometimes the best medicine is diving in to learn more, meeting those who have similar lived experiences, and doing activities that can help to improve your health and the
AiArthritis community!
Share Your Story:
Your story is unique and can potentially help us to help other patients. Let us know what was the most difficult part about getting diagnosed? What would you want fellow care partners to know about YOUR story with supporting someone with an AiArthritis disease? Your care partner-identified issues can aid us in creating care partner-infused solutions.