Interstitial Lung Disease (ILD) Day was established in 2021 to raise awareness about ILD and is observed annually on the second Wednesday in September. This significant day is supported by a coalition of nine organizations dedicated to assisting patients affected by ILD: Pulmonary Fibrosis Foundation, Arthritis Foundation, Foundation for Sarcoidosis Research, The Myositis Association, PF Warriors, Scleroderma Foundation, Scleroderma Research Foundation, Sjögren's Foundation, and Wescoe Foundation for Pulmonary Fibrosis.
Interstitial Lung Disease (ILD)
Living with an AiArthritis disease means being aware of how it can affect not just your joints, but other parts of your body too—like your lungs. Interstitial lung disease (ILD) is a condition that can develop in people with AiArthritis diseases, where the tissues in your lungs become inflamed and scarred.
It might sound a bit overwhelming, but it’s important to know that around 10–40% of people with Rheumatoid Arthritis can develop ILD at some point.
Catching it early can make a big difference! Symptoms like a persistent cough or feeling short of breath shouldn’t be ignored—they’re worth bringing up with your doctor. By learning about ILD and tracking any lung-related symptoms, you’re taking an important step toward managing your health and staying ahead of potential complications. Remember, the more you know, the better you can advocate for yourself.
Take a Breath - A Patient Guide for Understanding Lung Involvement Risk for AiArthritis Patients
Respira hondo: una guía para pacientes para comprender el riesgo de afectación pulmonar. AiPacientes con artritis
The Patient Perspective
Learn from Lived Experience Experts Cyndi and Denae what it is like to live with Interstitial Lung Disease
Social Media Clips
Full Interviews
Interstitial Lung Disease Educational Social Media Graphics
Go With Us!
Highlighting Interstitial Lung Disease Research at ACR and EULAR annual meetings
Looking to Connect with Fellow Lived Experience Experts?
Join Our Co-Existing Condition Slack Community
In our online community, you can engage in relatable conversations with those who have experiences similar to yours.
Otros recursos sobre enfermedades pulmonares intersticiales
Boeinger Ingleheim's Lungs&You is a great resource for learning more about ILD.
Here are some organizations that provide support, resources, and information about Interstitial Lung Disease (ILD):
- Pulmonary Fibrosis Foundation (PFF): Offers support, education, and resources for individuals with pulmonary fibrosis, a common type of ILD.
- Inspire: Connects people living with ILD and their caregivers through support communities.
- PF Warriors: A volunteer-based group of people living with different types of pulmonary fibrosis, offering support and resources.
- National Scleroderma Foundation
- Sjögren’s Foundation
- Foundation for Sarcoidosis Research
- Arthritis Foundation
Interstitial Lung Disease Awareness Day
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Receiving our diagnosis of Interstitial Lung Disease (ILD) is the first step on our ILD journey, and sometimes even that first step takes a long time and much perseverance before it happens.
Listen to Your Symptoms and Get a Referral to Pulmonology for Diagnosis and Treatment
September 18 is Interstitial Lung Disease Day.
All Interstitial Lung Disease educational resources were made possible with support from
