Newly Diagnosed

Join Patrice, Effie, and Rick as they share their experiences with support - which all differ per personal relationships and perspectives. That means there are different needs that we must address to help everyone. What's YOUR story?

Acompáñanos junto a Tiffany, Deb y Patrice mientras repasan una sesión de la conferencia del Colegio Americano de Reumatología (ACR) de 2020 sobre el dolor y la conexión entre el cerebro y el cuerpo.

Join Tiffany, Deb, Katie, and Patrice AND Al and Jeff (Dr. Al Kim - Tiffany's own rheumy - and Dr. Jeff Sparks) as they talk about the EULAR session content around communication and office visit needs (patient side and rheumy side). 

In this episode, Katie and Deb - both persons living with AiArthritis diseases - discuss being a young person suffering from a chronic illness. This episode discusses the challenges of being "Young and Invisible". From what being a "juveillive" may mean - and the age range that term can cover. To being younger and dealing with being in pain while managing a chronic illness you and your parents/caregivers are still trying to figure out for themselves.

We often talk about the importance of Precision Medicine (which involves finding the best pharmacologic treatment for each person’s individual needs), but as we, as patients, identify what works best for our unique needs, we have to consider all options (both pharmaceutical and non-pharmaceutical). Just as with our biologics and other disease modifying treatments - where one works for one person and not the other - we need to think about alternative therapies the same way. For example, just because you “tried diet”, did you try all the diets? We all need to find our own right combination of therapy - but what does that look like to you? In this episode Tiffany, Deb, and Bridget talk about personalized therapy, or complimentary, non-pharmacologic options, that are being researched and added to new recommendations for full disease management.

Have you found yourself struggling to explain your AiArthritis disease to others? 

In this episode, our co-hosts Leila, Charis, and Patrice put a new topic on the table: how to explain your AiArthritis disease in a 30-60 second elevator pitch. From your workplace to your personal life, our co-hosts will provide practical tips on how to tailor your elevator pitch to different audiences such as co-workers, family, friends or strangers to help you confidently communicate your AiArthritis and advocate for yourself. Join us in this episode to listen to varying elevator pitches as well as have the opportunity to share your own and continue to help us build patient resources!