Biomarkers - Diagnosis, Disease Management, & even PREVENTION?!
AiVoces de la Artritis 360 Episodio completo 41
Fecha de emisión: 16 de agosto de 2020
Esta semana, Tiffany y Patrice hablan sobre la importancia de los biomarcadores.¿Los biomarcadores son clave para comprender la gravedad de la enfermedad y predecir su aparición?
En este episodio, hablamos sobre biomarcadores, indicadores medibles presentes en la sangre o los tejidos, y cómo su presencia en nuestro organismo puede predecir la gravedad de una enfermedad y orientar el desarrollo de tratamientos. Además, existen evidencias de que identificar biomarcadores precozmente —antes de que aparezca la enfermedad— podría prevenir su desarrollo. Si bien aún se deben considerar los factores ambientales y genéticos, los hallazgos son prometedores.
Si bien la investigación se centra en la artritis reumatoide (AR), mostrando cómo aquellos que son seropositivos, además de tener otros biomarcadores genéticos, tienen una mayor probabilidad de desarrollar una enfermedad grave y erosión ósea, Tiffany señala que esto es similar a la espondiloartritis axial, donde muchos de los que padecen la enfermedad sin evidencia radiográfica no tienen el gen biológico HLA-B27 que está presente en la mayoría de los casos con evidencia radiográfica.
En definitiva, aprender sobre biomarcadores puede ayudar a los pacientes a orientarse en su propio proceso de atención médica, pero también podría prevenir que sus seres queridos desarrollen estas enfermedades en el futuro.
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Sus coanfitriones e invitados: ¿Quiénes están en la mesa en este episodio?
Tiffany Westrich-Robertson
Tiffany is the CEO at International Foundation for AiArthritis and uses her professional expertise in mind-mapping and problem solving to help others, like her, who live with AiArthritis diseases work in unison to identify and solve unresolved community issues. For the last several years, she has continued her education in research, including becoming a professional focus group moderator, and translated this experience at our organization to develop award-winning, innovative projects that are taking patient engagement to next levels.
Tiffany has served on several advisory boards, including those to advance patient voices in policy, clinical trials, and precision medicine. In addition to reviewing grants at PCORI and for the Department of Defense, she was the sole patient grant reviewer for the National Institute of Arthritis and Musculoskeletal and Skin diseases from 2015-2018. She currently participates as a Patient Research Partner for OMERACT (Outcome Measures in Rheumatology), co-leads our organizations' international effort to advance patient voices in rheumatology research (the ACTion Council) and has dedicated her professional career to developing other patients to utilize their voices to impact the future of millions.
Patrice Johnson
Originally diagnosed with Rheumatoid arthritis 9 years ago, Patrice now has an undifferentiated diagnosis. She has also been told she has had Osteoarthritis for 35 years. Along the way she developed some comorbidities which include severe hearing loss, a Baker's cyst, osteopenia, and a vein ablation. Patrice lives in Northern California and have 2 grown children and 5 grandchildren. She loves to travel, read, and cook.
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