Ep 76: Covid in 2022 - Evolving Concerns

COVID in 2022 - Evolving Concerns, Questions, and Opinions

AiArthritis Voices 360 Main, Full Episode 76

Air Date: Aug 7, 2022

This episode is a Step 5 - a revisit to the table - as outlined in our 6 Step Patient-Led Problem Solving Process.

Over the last couple of years, the world has watched as COVID-19 has evolved into variants that differ slightly from the original virus. We’ve seen vaccinations and boosters work, yet we also know that new strains are somewhat resistant to high-level protection. COVID treatments have emerged to help those who are immunocompromised - like those with AiArthritis diseases who are on immunosuppressive treatments - but can we access them and, if so, how?

We've been on quite an emotional and physical rollercoaster, and it’s not over. Should we be concerned about “Long COVID” and “Post COVID”? What is research showing about COVID in our rheumatology population? Join Tiffany, Patrice, and Deb - all persons living with AiArthritis diseases and who also all have experienced COVID recently - as they share the latest research, guidance, and their own personal patient-guided opinions - in regards to the world of COVID in 2022.

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All our main 1st Sunday of the month episodes are either an initial "put the topic on the table" episode (Step 2 in our organization's 6-step problem solving process) or a "revisit to the table" episode, where we build on a past show because we have moved forward in developing help, tools, or projects around the issue (Step 5 in our organization's 6-step process).

After each show airs we spin off the conversation into many discussions over various formats, which we now call #360its (new in 2022)!

You can find, follow, and listen on Podbean, Spotify, Apple Podcast, or where ever you do podcasts. Please follow, rate, and subscribe to the show, then share it with someone. Be sure to check out our top-rated show on Feedspot!

Episode Highlights :

What are Long COVID and Post COVID and how can either affect someone with AiArthritis diseases?
The key factors that increase risk of getting COVID
Evolution of COVID and the relevance of current COVID research
The first steps to take if you are someone with AiArthritis disease and diagnosed with COVID
How to access medication to prevent COVID for those who are immunocompromised
The impact self care and your mental health can have on developing post-COVID

Be sure to check out our top-rated show on Feedspot!

Transcripción (haga clic en la flecha para ver la transcripción con marcas de tiempo)

Transcription Episode 76
Referencias mencionadas en este episodio
- Exploring the Link Between COVID-19 and Autoimmunity Can Help Patients With Long-Haul COVID: https://www.rheumatologyadvisor.com/home/news/exploring-the-link-between-covid-19-and-autoimmunity-can-help-patients-with-long-haul-covid/
- Long COVID is associated with poor mental health in patients with rheumatic disease: results from a 14-month longitudinal study: https://academic.oup.com/rheumatology/article/61/Supplement_1/keac133.074/6573114
- COVID-19 Outcomes Similar in Patients With and Without Immune-Mediated Inflammatory Diseases: https://www.rheumatologyadvisor.com/home/conference-highlights/eular-2022-coverage/covid-19-outcomes-similar-in-patients-with-and-without-immune-mediated-inflammatory-diseases/
- Still testing positive after day 10? How to decide when to end your COVID isolation: https://www.npr.org/sections/health-shots/2022/06/30/1108615724/positive-test-isolation
- The EULAR 2022 Debate: Will COVID-19 have a long-term impact on rheumatology practice?: https://rheumatology.medicinematters.com/eular-2022/covid-19/debate-long-term-impact/23124564
- Post-COVID-19 Tachycardia Syndrome: A Distinct Phenotype of Post-Acute COVID-19 Syndrome: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8356730/
- Risk Factors for “Long Haul” COVID-19 in Rheumatology Outpatients in New York City: https://acrabstracts.org/abstract/risk-factors-for-long-haul-covid-19-in-rheumatology-outpatients-in-new-york-city/
- COVID-19 in people with rheumatic diseases: risks, outcomes, treatment considerations: https://www.nature.com/articles/s41584-022-00755-x
- Coronavirus FAQ: Biden had a Paxlovid rebound. Is that common? What's it all about?: https://www.npr.org/sections/goatsandsoda/2022/05/20/1099176613/coronavirus-faq-i-took-paxlovid-i-felt-better-then-symptoms-rebounded-whats-up
- Long COVID is associated with poor mental health in patients with rheumatic disease: results from a 14-month longitudinal study: https://academic.oup.com/rheumatology/article/61/Supplement_1/keac133.074/6573114

360its!

Stay tuned... 360it's coming your way!

Not everyone ‘does podcasts’…but we need as many voices at the table so we can create solutions that address the many perspectives and needs of a diverse community. So, after each 1st of the month Sunday show airs, we 360it – which means we spin the conversation off to many platforms and discussion formats we can imagine.

Pull up your seat at the table

Now it's YOUR TURN to join the conversation!

What do you think about this episode?

We want to know what you think! By continuing the conversation with your opinions and perspectives - we all get a better understanding of the problems facing our community. Better yet, through these conversations we can start working and developing solutions.

We mean it when say 360. Not only do we want your input anytime and anywhere, but we also are eager to see where the conversation will take us. So please, "pull up a seat at the table" and let's start talking!

Email us at podcast@aiarthritis.org, message us on social media (find us by searching for @IFAiArthritis)

Continue the conversation in our own AiArthritis Voices 360 Talk Show Group!

Pull up a seat and join the conversation on the topic from today and past episodes. You may even get an opportunity to talk directly with the co-hosts and any episode guests!

The AiArthritis Voices Program

Nuestro AiEl programa de entrevistas Arthritis Voices 360 es solo una parte de un programa más amplio: AiPrograma Voces de la Artritis.

AiArthritis Voices es nuestro programa dondepersonas que viven con AiEnfermedades artríticas y otras partes interesadasQuienes necesitamos "en la mesa de negociaciones" para resolver los problemas que afectan a la educación, la defensa de los derechos y la investigación, se inscriben para tener voz en nuestras iniciativas.

Si desea participar más y ver más oportunidades que tenemos para usted (y para todas las partes interesadas), consulte la AiPrograma Voces de la Artritis. Únete a personas de todo el mundo para hablar, aprender y conectar.

Join AiArthritis Voices

Sus coanfitriones e invitados: ¿Quiénes están en la mesa en este episodio?

Tiffany Westrich-Robertson

Tiffany is the CEO at International Foundation for AiArthritis and uses her professional expertise in mind-mapping and problem solving to help others, like her, who live with AiArthritis diseases work in unison to identify and solve unresolved community issues. For the last several years, she has continued her education in research, including becoming a professional focus group moderator, and translated this experience at our organization to develop award-winning, innovative projects that are taking patient engagement to next levels.

Tiffany has served on several advisory boards, including those to advance patient voices in policy, clinical trials, and precision medicine. In addition to reviewing grants at PCORI and for the Department of Defense, she was the sole patient grant reviewer for the National Institute of Arthritis and Musculoskeletal and Skin diseases from 2015-2018. She currently participates as a Patient Research Partner for OMERACT (Outcome Measures in Rheumatology), co-leads our organizations' international effort to advance patient voices in rheumatology research (the ACTion Council) and has dedicated her professional career to developing other patients to utilize their voices to impact the future of millions.

Facebook: @TiffanyAiArthritis
Twitter: @TiffWTobertson
LinkedIn: @TiffanyWestrichRobertson

Eileen Davidson

Eileen Davidson is a rheumatoid arthritis patient advocate from Vancouver Canada. She volunteers with the Arthritis Research Canada patient advisory board and the Canadian Institute of Health Research - Institute of Musculoskeletal Health and Arthritis patient engagement research ambassador, among others. When not advocating she is writing about her experience with arthritis through Creaky Joints, Healthline, Chronic Eileen or can be found being a mom to her son Jacob.

● Twitter: @ChronicEileen

Patrice Johnson

Originally diagnosed with Rheumatoid arthritis 9 years ago, Patrice now has an undifferentiated diagnosis. She has also been told she has had Osteoarthritis for 35 years. Along the way she developed some comorbidities which include severe hearing loss, a Baker's cyst, osteopenia, and a vein ablation. Patrice lives in Northern California and have 2 grown children and 5 grandchildren. She loves to travel, read, and cook.