RheumyRounds: Cómo mejorar la comunicación entre médico y paciente durante las consultas.

AiArthritis Voices 360, Episode 94

Air Date: February 4 , 2024

This episode is a Step5, as outlined in our 6 Step Patient-Led Problem Solving Process.


This is an AiArthritis Voices 360 REWIND, where we are bringing back the first RheumyRound episode from 2020 where we opened the conversation on improving doctor office visits! Also note - you will hear the acronym IFAA, which we used prior to using AiArthritis.


Join us as our co-hosts, Tiffany and Kelly, and guests, Dr. Kim and Jerik Leung, explore the important dynamic between patients and doctors in healthcare communication. Through insightful dialogue and shared experiences from both the patient and physician perspective, we uncover strategies to enhance mutual understanding, empowering patients to articulate their needs and doctors to listen attentively. Together, we champion the importance of empathy and effective communication in achieving accurate diagnoses and personalized treatment plans for those navigating AiArthritis diseases.






                                                                                                                                                                                                                                                                                                                             

Episode Highlights: 


  • Do patients and rheumatologists' goals and expectations during an office visit align? 
  • The significance of effective patient-doctor communication in managing AiArthritis diseases
  • Strategies for patients to articulate their concerns and needs during office visits
  • Techniques for doctors to actively listen and engage with patients to improve diagnostic accuracy
  • Shared experiences and insights from both patients and doctors on navigating communication challenges
  • How doctors can integrate social determinants of a patient's health in the clinical setting





AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us (podcast@aiarthritis.org).  Be sure to check out our top-rated show on Feedspot!

Who is at the table?

Tiffany,  CEO at AiArthritis (International Foundation for Autoimmune & Autoinflammatory Arthritis)


Kelly, speech-language pathologist, author/blogger, and a patient advocate


 Dr. Kim,  Assistant Professor of Medicine and of Pathology & Immunology at Washington University School of Medicine                                                                                            Jerik Leung,  doctoral student and Woodruff Fellow in the Behavioral, Social, and Health Education Sciences department at Emory University                                                                                                                                                                                                                                                                                                                                                                                                                   

  • Expandir para ver la transcripción del podcast

    [00:00:00] Tiffany: Welcome to AiArthritis Voices 360, the podcast solving today's most pressing issues in the AiArthritis community. This is a special rebroadcast of our inaugural RheumyRounds episode, where we discuss the communication barriers that currently exist between patients and their rheumatologists. Head to Arthritis.org/RheumyRounds for more great episodes from this series and opportunities to

All our main 1st Sunday of the month episodes are either an initial "put the topic on the table" episode (Step 2 in our organization's 6-step problem solving process) or a "revisit to the table" episode (Step 6 in our organization's 6-step process), where we build on a past show because we have moved forward in developing help, tools, or projects around the issue (Step 5 in our organization's 6-step process).


After each show airs we  spin off the conversation into many discussions over various formats, which we now call #360its (new in 2022)!

 

You can find, follow, and listen on Podbean, Spotify, Apple Podcast, or where ever you do podcasts. Please follow, rate, and subscribe to the show, then share it with someone. Be sure to check out our top-rated show on Feedspot!

And now, let's 360it!

The main Sunday episode is where we "put the topic on the table," but it's not where the conversation ends!  Now we spin off the conversation into different discussion segments. Below you will find several 360its. Some are videos from the main episode, while others are audiograms (soundbites).


Soon we will be launching additional 360its, which will build on these conversations. We'll hear from patients in the United States, Canada, and Australia who are here to help you through the transition to biosimilars. We are also planning a WATCH PARTY, where we will play back segments of webinars that aim to teach you more about biosimilars - and you'll have your fellow patients at AiArthritis to talk through it all with you!  Stay tuned.

360its & SHORT VIDEO CLIPS FROM THE MAIN EPISODE

#360it: Bridge the Gap: Doctor-Patient Communication

Explore the intricate journey of a patient navigating diverse healthcare systems and specialist appointments. From battling inconsistent diagnoses to advocating for personalized care, this compelling narrative sheds light on the challenges patients face in today's healthcare landscape. From Kelly's personal story, viewers gain insight into the pivotal role of patient advocacy, accurate diagnosis, and effective communication in shaping treatment outcomes. Join us on this path towards empowered healthcare decisions and a brighter future for patients everywhere.

Tiffany Westrich-Robertson

Tiffany is the CEO at AiArthritis (International Foundation for Autoimmune & Autoinflammatory Arthritis) and uses her professional expertise in mind-mapping and problem solving to help others, like her, who live with AiArthritis diseases work in unison to identify and solve unresolved community issues.


Connect with Tiffany:

  • Facebook: @tiffanyAiArthritis
  • Twitter: @TiffWRobertson
  • LinkedIn: @TiffanyWestrichRobertson


Kelly Conway

Kelly is a speech-language pathologist, author/blogger, and a patient advocate.  She has been living with autoimmune arthritis since age 14 but wasn’t formally diagnosed until age 32. That diagnosis has changed more than 5 times over the past 18 years. Through social media, she connected with fellow patients and cofounded the International Foundation for Autoimmune and Autoinflammatory arthritis. Kelly believes in the power of the patient voice and sharing our stories to raise awareness, education, and advocacy.


Connect with Kelly:

Dra. Kim

Dr. Kim is an Assistant Professor of Medicine and of Pathology & Immunology at Washington University School of Medicine. He also founded and directs the Washington University Lupus Clinic. Dr. Kim’s research group is focused on addressing the unmet needs of human systemic lupus erythematosus (SLE), including understanding and leveraging the biomarker potential of complement activation products, testing novel noninvasive imaging platforms such as photo acoustics to detect lupus nephritis, understanding the relationship between sleep quality and lupus activity, and restoring eroded social support in patients with SLE.


Connect with Dr. Al Kim

Jerik Leung

Jerik Leung doctoral student and Woodruff Fellow in the Behavioral, Social, and Health Education Sciences department at Emory University. His current research interests involve characterizing pathways linking structural social determinants of health with individual health outcomes in chronic disease. He is specifically interested in how structural factors shape how people living with chronic disease manage their conditions, interact with their health care providers, access care, and engage with their communities. Jerik is currently working with faculty advisor Dr. Cam Escoffery to evaluate the implementation of several epilepsy self-management programs. For his dissertation research, he intends to focus on issues relevant to people living with lupus.

Pull up your seat at the table

Now it's YOUR TURN to join the conversation!

What do you think about this episode?

We want to know what you think! By continuing the conversation with your opinions and perspectives - we all get a better understanding of the problems facing our community.  Better yet, through these conversations we can start working and developing solutions.


We mean it when say 360. Not only do we want your input anytime and anywhere, but we also are eager to see where the conversation will take us. So please, "pull up a seat at the table" and let's start talking!


Email us at podcast@aiarthritis.org, message us on social media (find us by searching for @IFAiArthritis)

Continue the conversation in our own AiArthritis Voices 360 Talk Show Group!

Pull up a seat and join the conversation on the topic from today and past episodes. You may even get an opportunity to talk directly with the co-hosts and any episode guests!

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