Ep 117: Best of 2025

AiArthritis Voices 360 Principal, Episodio completo 117

Fecha de emisión: 4 de enero de 2025

This episode is a step 2, as outlined in our 6 Step Patient-Led Problem Solving Process.

As we close out 2025, this special episode looks back on some of the most impactful conversations from this year. This episode reflects on key moments that captured the real experiences of people living with AiArthritis diseases and the topics patients told us mattered most.

Listeners will hear powerful conversations exploring what it means to parent while managing chronic illness, the often overlooked neurological symptoms of lupus and Sjögren’s disease, and the long journey many mystery patients face searching for answers. These episodes go beyond symptoms to explore the emotional toll, physical obstacles, and systemic hurdles patients navigate, showing why knowledge and advocacy can transform the patient journey.

Whether you are hearing these stories for the first time or revisiting them, this episode brings the voices, clinical insights, and lived experiences that shaped AiArthritis patients in 2025.

Episode Highlights:

Parenting and family life while living with chronic illness
Neurological symptoms in lupus and Sjögren’s disease and why they are often missed
The mystery patient experience and the impact of delayed diagnosis
Why patient voices continue to drive education, awareness, and change

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AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us (podcast@aiarthritis.org). Be sure to check out our top-rated show on Feedspot!

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Todos nuestros episodios principales del primer domingo de cada mes son un episodio inicial para "poner el tema sobre la mesa". (Paso 2 del proceso de resolución de problemas de 6 pasos de nuestra organización) o un episodio de "revisión de la mesa" (Paso 6 en el proceso de 6 pasos de nuestra organización)donde nos basamos en un programa anterior porque hemos avanzado en el desarrollo de ayuda, herramientas o proyectos en torno al tema. (Paso 5 del proceso de 6 pasos de nuestra organización).

Tras la emisión de cada programa, ampliamos la conversación a numerosos debates en diversos formatos, a los que ahora llamamos #360its.

You can find, follow, and listen on Podbean, Spotify, Apple Podcast, or where ever you do podcasts. Please follow, rate, and subscribe to the show, then share it with someone. Be sure to check out our top-rated show on Feedspot!

Pull up your seat at the table

Now it's YOUR TURN to join the conversation!

What do you think about this episode?

We want to know what you think! By continuing the conversation with your opinions and perspectives - we all get a better understanding of the problems facing our community. Better yet, through these conversations we can start working and developing solutions.

We mean it when say 360. Not only do we want your input anytime and anywhere, but we also are eager to see where the conversation will take us. So please, "pull up a seat at the table" and let's start talking!

Email us at podcast@aiarthritis.org, message us on social media (find us by searching for @IFAiArthritis)