100th Episode: AiArthritis Voices 360 Highlights!
AiArthritis Voices 360, Episode 100
Air Date: August 4, 2024
This episode is a Step5, as outlined in our 6 Step Patient-Led Problem Solving Process.
Welcome to a milestone episode of AiArthritis Voices 360 Talk Show! Join us as we celebrate our 100th episode by revisiting three of our most impactful discussions that have resonated deeply with our listeners.
Episode 73: "Arthritis" Awareness - It’s Complicated! Dive into the complexities of arthritis awareness with our co-hosts as they share personal stories of delayed diagnosis and the profound impact it had on their lives. Discover why education and awareness for AiArthritis diseases are crucial in transforming patient journeys.
Episode 80/81: RheumyRounds: The Good, The Bad, and The Ugly - Improving Office Visit Communication In this dynamic episode, our co-hosts are joined by Dr. Al Kim, a renowned rheumatologist, to explore the intricacies of patient-doctor communication and how it can be improved. Learn about the key elements that can enhance patient care, streamline diagnosis, and ensure appropriate treatment through effective communication strategies.
Episode 90: Why Won't They Diagnose Me? Uncover the mystery patient stories shared by our co-hosts, highlighting the struggles of obtaining a proper diagnosis. This episode emphasizes the importance of access to information and relatable experiences in navigating the often complex diagnostic journey.
Join us in this special 100th episode as we reflect on these powerful stories and discussions. Gain valuable insights into the significance of education, awareness, and research in the AiArthritis community. Don't miss out on this celebratory highlight reel that underscores the essential aspects of improving lives through informed conversations. Tune in and be part of the journey!
And if you want to help this talk show expand to reach more people in the AiArthritis community, please donate to support us here :
https://www.aiarthritis.org/donate
Episode Highlights:
- We revisit 3 of the most popular episode of the talk show to highlight important topics for the AiArthritis community
- Cohosts share their stories of delayed diagnosis and the importance of education and awareness to receive proper treatment earlier
- Dr. Al Kim shares about how patient-doctor communication can be improved from both the physician and patient sides.
- Cohosts share stories of being a mystery patients to shed light on the diagnosis journey and help others navigate its complexities
- Learn how to be a part of the show and share your story!
AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at
www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us (podcast@aiarthritis.org). Be sure to check out our top-rated show on
Feedspot!
All our main 1st Sunday of the month episodes are either an initial "put the topic on the table" episode (Step 2 in our organization's 6-step problem solving process) or a "revisit to the table" episode (Step 6 in our organization's 6-step process), where we build on a past show because we have moved forward in developing help, tools, or projects around the issue (Step 5 in our organization's 6-step process).
After each show airs we spin off the conversation into many discussions over various formats, which we now call #360its (new in 2022)!
And now, let's 360it!
The main Sunday episode is where we "put the topic on the table," but it's not where the conversation ends! Now we spin off the conversation into different discussion segments. Below you will find several 360its. Some are videos from the main episode, while others are audiograms (soundbites).
Soon we will be launching additional 360its, which will build on these conversations. We'll hear from patients in the United States, Canada, and Australia who are here to help you through the transition to biosimilars. We are also planning a WATCH PARTY, where we will play back segments of webinars that aim to teach you more about biosimilars - and you'll have your fellow patients at AiArthritis to talk through it all with you! Stay tuned.
360its & SHORT VIDEO CLIPS FROM THE MAIN EPISODE (Coming Soon!)
#360it: Early Disease Diagnosis Can Increase Remission Chances
Our cohosts delve into the challenges patients face in recognizing symptoms, the delays in getting a proper diagnosis, and the biases in the medical community. Hear personal stories and insights on the importance of self-advocacy and the need for better diagnostic guidelines. Together, we explore how patients and advocates can unite to create resources for those struggling to find answers. Don’t miss this enlightening conversation on navigating the complexities of AiArthritis diseases.
Tiffany Westrich-Robertson
Tiffany is the CEO at AiArthritis (International Foundation for Autoimmune & Autoinflammatory Arthritis) and uses her professional expertise in mind-mapping and problem solving to help others, like her, who live with AiArthritis diseases work in unison to identify and solve unresolved community issues.
Connect with Tiffany:
- Facebook: @tiffanyAiArthritis
- Twitter: @TiffWRobertson
- LinkedIn: @TiffanyWestrichRobertson
Leila P.L. Valete
Leila is the Health Education Manager at the International Foundation for AiArthritis. She is a person living with Lupus Nephritis and Sjögren’s Syndrome. She is passionate about inclusion and diversity in health education and meeting individuals where they are at in order to learn in a way that resonates with them. Leila is on social media as @LupusLifestyle.Lei sharing bits and pieces about her life with lupus and connecting with others. Connect with her on Instagram or TikTok.
Connect with Leila:
- Instagram: @lupus.lifestyle.lei
- TikTok: @lupus.lifestyle.lei
Pull up your seat at the table
Now it's YOUR TURN to join the conversation!
What do you think about this episode?
We want to know what you think! By continuing the conversation with your opinions and perspectives - we all get a better understanding of the problems facing our community. Better yet, through these conversations we can start working and developing solutions.
We mean it when say 360. Not only do we want your input anytime and anywhere, but we also are eager to see where the conversation will take us. So please, "pull up a seat at the table" and let's start talking!
Email us at podcast@aiarthritis.org, message us on social media (find us by searching for @IFAiArthritis)
Continue the conversation in our own AiArthritis Voices 360 Talk Show Group!
Pull up a seat and join the conversation on the topic from today and past episodes. You may even get an opportunity to talk directly with the co-hosts and any episode guests!
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