Volunteering with AiArthritis
AiArthritis Voices 360, Episode 95
Air Date: March 3 , 2024
This episode is a Step2, as outlined in our 6 Step Patient-Led Problem Solving Process.
Curious about how volunteering with AiArthritis could transform your life and the lives of others?
In the latest episode of AiArthritis Voices 360 Talk Show as co-hosts Leila, Michael, Jenni, Deeanne, Patrice, and Deb share heartfelt stories of their journey into volunteering with AiArthritis. From personal experiences to the profound impact AiArthritis has had on their lives as patients, they delve into the transformative power of community support. Discover why volunteering is vital and how the AiArthritis community has become a lifeline, offering understanding, empathy, and empowerment.
Join the conversation and learn how you too can make a difference by getting involved with AiArthritis. Find out more here:
https://www.aiarthritis.org/volunteer
Episode Highlights:
- Dive into the intriguing stories behind our volunteers' journey to AiArthritis.
- Hear how AiArthritis has reshaped lives and inspired resilience in our volunteers.
- Explore why volunteering is the key to driving progress for the AiArthritis organization and community.
- Discover the profound support and empowerment found within the AiArthritis community.
- Learn how you can make a difference and get involved with AiArthritis today.
AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at
www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us (podcast@aiarthritis.org). Be sure to check out our top-rated show on
Feedspot!
Who is at the table?
Leila is the Health Education Manager at the International Foundation for AiArthritis.
Jen is a volunteer with AiArthritis.
Deb is a medically retired Registered Dietitian and a Representative for the AiArthritis with Rheumatoid Arthritis.
Michael is a Volunteer and Administrative assistant at AiArthritis.
Deeanne is one of the Volunteer & Administrative Assistants at AiArthritis.
All our main 1st Sunday of the month episodes are either an initial "put the topic on the table" episode (Step 2 in our organization's 6-step problem solving process) or a "revisit to the table" episode (Step 6 in our organization's 6-step process), where we build on a past show because we have moved forward in developing help, tools, or projects around the issue (Step 5 in our organization's 6-step process).
After each show airs we spin off the conversation into many discussions over various formats, which we now call #360its (new in 2022)!
And now, let's 360it!
The main Sunday episode is where we "put the topic on the table," but it's not where the conversation ends! Now we spin off the conversation into different discussion segments. Below you will find several 360its. Some are videos from the main episode, while others are audiograms (soundbites).
Soon we will be launching additional 360its, which will build on these conversations. We'll hear from patients in the United States, Canada, and Australia who are here to help you through the transition to biosimilars. We are also planning a WATCH PARTY, where we will play back segments of webinars that aim to teach you more about biosimilars - and you'll have your fellow patients at AiArthritis to talk through it all with you! Stay tuned.
360its & SHORT VIDEO CLIPS FROM THE MAIN EPISODE
#360it: Cómo el voluntariado con AiArthritis ha impactado la vida de los pacientes
¿Tienes curiosidad por saber cómo el voluntariado con AiArthritis podría transformar tu vida y la de los demás?
Únete a la conversación y descubre cómo tú también puedes marcar la diferencia participando en AiArthritis. Obtén más información aquí: https://www.aiarthritis.org/volunteer
Leila P.L. Valete
Leila is the Health Education Manager at the International Foundation for AiArthritis. She is a person living with Lupus Nephritis and Sjögren’s Syndrome. She is passionate about inclusion and diversity in health education and meeting individuals where they are at in order to learn in a way that resonates with them. Leila is on social media as @LupusLifestyle.Lei sharing bits and pieces about her life with lupus and connecting with others. Connect with her on Instagram or TikTok.
Connect with Leila:
- Instagram: @lupus.lifestyle.lei
- TikTok:
@lupus.lifestyle.lei
Jen Weaver
Jen is a volunteer with AiArthritis.
Connect with Jen:
- Podcast : My Spoonie Sisters
- Instagram: @gracejully_jen
@my_spoonie_sisters
Deb Constien
Deb Constien Es dietista titulada jubilada y representante de AiArthritis with Rheumatoid Arthritis. Deb también forma parte del Consejo Asesor de WREN (Wisconsin Research Education Network) y es asesora de pacientes y familiares (PFA) en un estudio internacional de investigación sobre PCORI para la planificación avanzada de la atención médica (ACP).
Contacta con Deb:
- Facebook: @deb.majcherconstien
- Gorjeo: @debconstien
- Instagram: @debconstien
Michael Guadalupe
Miguel GuadalupeMichael es voluntario y asistente administrativo en AiArthritis. Posee una licenciatura en Artes de la Universidad Western Illinois y cuenta con más de 20 años de experiencia trabajando con el público.
Como paciente de artritis psoriásica, Michael siente pasión por crear conciencia sobre esta afección y abogar por aquellos que viven con ella.AiArthritis Diseases. Él comprende los desafíos que implica vivir con artritis, y su propia experiencia le ha brindado una perspectiva única que aporta a su trabajo en AiArthritis.
Deeanne Quist
Deeanne Quist is one of the Volunteer & Administrative Assistants at AiArthritis. Having an AiArthritis disease, Deeanne is passionate about working with this organization and everything it stands for. When not working with AiArthitis, she loves to stream video games and crochet. She also loves to play with her sweet dog, Rocky.
Connect with Deeanne:
- Facebook: @deeanneofaiarthritis
- Twitter: @twistedpsister
- Instagram: @twistedpsister
Pull up your seat at the table
Now it's YOUR TURN to join the conversation!
What do you think about this episode?
We want to know what you think! By continuing the conversation with your opinions and perspectives - we all get a better understanding of the problems facing our community. Better yet, through these conversations we can start working and developing solutions.
We mean it when say 360. Not only do we want your input anytime and anywhere, but we also are eager to see where the conversation will take us. So please, "pull up a seat at the table" and let's start talking!
Email us at podcast@aiarthritis.org, message us on social media (find us by searching for @IFAiArthritis)
Continue the conversation in our own AiArthritis Voices 360 Talk Show Group!
Pull up a seat and join the conversation on the topic from today and past episodes. You may even get an opportunity to talk directly with the co-hosts and any episode guests!
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