Navigating the Patient Journey: From Early Diagnosis to Remission
AiVoces de la Artritis 360, Episodio 102
Fecha de emisión: 6 de octubre de 2024
This episode is a Step5, as outlined in our 6 Step Patient-Led Problem Solving Process.
In this episode of AiArthritis Voices 360, co-hosts Leila and Eileen discuss a project focused on organizing essential resources for patients navigating the AiArthritis journey, from undiagnosed symptoms to remission. They share their personal experiences living with lupus and rheumatoid arthritis, exploring the complexities of managing chronic illness and the challenges of early diagnosis. Tune in to learn about AiArthritis’s new online social community and how you can contribute your story and help develop more resources for patients. This episode is perfect for patients and caregivers seeking guidance and support on their health journey.
Share your ideas on resources that we can add to the patient journey by emailing us at info@aiarthritis.org, submit your patient story on each different section of the patient journey and join our online social community!
Episode Highlights:
- A breakdown of the six stages of the patient journey and how resources are organized.
- Personal stories from Leila and Eileen on living with AiArthritis diseases..
- The importance of early diagnosis and how it affects long-term outcomes.
- Strategies for caregiver support and understanding comorbidities.
- Learn how to contribute your story or join the new AiArthritis social community.
AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at
www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us (podcast@aiarthritis.org). Be sure to check out our top-rated show on
Feedspot!
Who is at the table?
Leila is the Health Education Manager at the International Foundation for AiArthritis.
Eileen is a rheumatoid arthritis patient advocate.
All our main 1st Sunday of the month episodes are either an initial "put the topic on the table" episode (Step 2 in our organization's 6-step problem solving process) or a "revisit to the table" episode (Step 6 in our organization's 6-step process), where we build on a past show because we have moved forward in developing help, tools, or projects around the issue (Step 5 in our organization's 6-step process).
After each show airs we spin off the conversation into many discussions over various formats, which we now call #360its (new in 2022)!
Leila P.L. Valete
Leila is the Health Education Manager at the International Foundation for AiArthritis. She is a person living with Lupus Nephritis and Sjögren’s Syndrome. She is passionate about inclusion and diversity in health education and meeting individuals where they are at in order to learn in a way that resonates with them. Leila is on social media as @LupusLifestyle.Lei sharing bits and pieces about her life with lupus and connecting with others. Connect with her on Instagram or TikTok.
Connect with Leila:
- Instagram: @lupus.lifestyle.lei
- TikTok:
@lupus.lifestyle.lei
Eileen Davidson
Eileen is a rheumatoid arthritis patient advocate from Vancouver Canada. She
volunteers with the Arthritis Research Canada patient advisory board and the Canadian
Institute of Health Research - Institute of Musculoskeletal Health and Arthritis patient
engagement research ambassador, among others. When not advocating she is writing
about her experience with arthritis through Creaky Joints, Healthline, Chronic Eileen or
can be found being a mom to her son Jacob.
Connect with Eileen:
- ChronicEileen
Pull up your seat at the table
Now it's YOUR TURN to join the conversation!
What do you think about this episode?
We want to know what you think! By continuing the conversation with your opinions and perspectives - we all get a better understanding of the problems facing our community. Better yet, through these conversations we can start working and developing solutions.
We mean it when say 360. Not only do we want your input anytime and anywhere, but we also are eager to see where the conversation will take us. So please, "pull up a seat at the table" and let's start talking!
Email us at podcast@aiarthritis.org, message us on social media (find us by searching for @IFAiArthritis)
Continue the conversation in our own AiArthritis Voices 360 Talk Show Group!
Pull up a seat and join the conversation on the topic from today and past episodes. You may even get an opportunity to talk directly with the co-hosts and any episode guests!
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