Ep 110: From Caregiver to Changemaker: Revolutionizing Care for AiArthritis Diseases/IMIDs
AiArthritis Voices 360 Main, Full Episode 110
Air Date: June 1st, 2025
This episode is a [step #], as outlined in our 6 Step Patient-Led Problem Solving Process.
Managing AiArthritis diseases are challenging but what if the entire model of care could change for the better? In this episode, Leila is joined by Dr. Jin Lee, co-founder and CEO of IMIDeology, a virtual and in-person clinic dedicated to diagnosing and treating immune-mediated inflammatory diseases (IMIDs) like spondyloarthritis, lupus, Crohn’s, and more.
Dr. Lee shares her journey from caregiver to changemaker and how IMIDeology is improving
access, diagnosis, and treatment through an innovative, patient-first approach. The conversation also explores chronic pain education and why it’s so often misunderstood in IMIDs. Leila and Dr. Jin Lee share how to describe IMIDs more effectively and how patients can better advocate for pain support.
Plus, hear about IMIDeology’s pain management study and upcoming Autoimmune Patient Summit, designed to educate and empower the IMID community. If you’ve ever felt unheard or overlooked in your care journey, this episode offers fresh ideas, support, and a hopeful vision for the future of IMID treatment.
Episode Highlights:
● Learn how Dr. Jin Lee’s caregiver journey inspired the founding of IMIDeology.
● Understand what IMIDs are and why a multidisciplinary approach to care matters.
● Discover how virtual rheumatology clinics are changing access to diagnosis and treatment.
● Get practical advice on describing and managing chronic pain with your care team.
● Hear how you can participate in IMIDeology’s pain management study and upcoming Autoimmune Patient Summit.
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Todos nuestros episodios principales del primer domingo de cada mes son un episodio inicial para "poner el tema sobre la mesa". (Paso 2 del proceso de resolución de problemas de 6 pasos de nuestra organización) o un episodio de "revisión de la mesa" (Paso 6 en el proceso de 6 pasos de nuestra organización)donde nos basamos en un programa anterior porque hemos avanzado en el desarrollo de ayuda, herramientas o proyectos en torno al tema. (Paso 5 del proceso de 6 pasos de nuestra organización).
Tras la emisión de cada programa, ampliamos la conversación a numerosos debates en diversos formatos, a los que ahora llamamos #360its.
Your Co-Hosts: Who is at the Table this Episode?
Leila P.L. Valete, Health Education Manager
Leila P.L. Valete is the Health Education Manager at the International Foundation for AiArthritis. She is a person living with Lupus & Sjögren's. She is passionate about inclusion and diversity in health education and meeting individuals where they are at in order to learn in a way that resonates with them. Leila is on social media as @Lupus.Lifestyle.Lei sharing bits and pieces about her life with lupus and connecting with others.
Dr. Jin Lee, Co-Founder and CEO of IMIDeology,
Dr. Jin Lee Es cofundadora y directora ejecutiva de IMIDeology, una red clínica virtual y presencial dedicada a brindar apoyo a pacientes con inflamación crónica y enfermedades autoinmunes como la enfermedad inflamatoria intestinal (EII) y el lupus. Con experiencia de primera mano en el sistema de salud, tanto como paciente como cuidadora, la Dra. Lee es una defensora apasionada de quienes viven con enfermedades inflamatorias inmunomediadas (IMID). La Dra. Lee ha trabajado en todo el ecosistema de la salud en innovación farmacéutica, de aseguradoras y de proveedores, liderando iniciativas en el desarrollo y la comercialización de productos. También invierte en el futuro de la atención médica como socia limitada en tres fondos de inversión ángel y forma parte de múltiples juntas directivas de startups y organizaciones sin fines de lucro, incluyendo cargos anteriores en la American Heart Association y la Healthcare Businesswomen's Association. La Dra. Lee es becaria del Programa de Liderazgo Presidencial, seleccionada por cuatro Centros Presidenciales de EE. UU., y fue reconocida como una de las "100 mujeres y aliadas más influyentes que dan forma al futuro de la biofarmacia, la atención médica y las ciencias de la vida" por Biopharma Leaders of Color (BLOC).
Contacta con el Dr. Jin Lee:
Pull up your seat at the table
Now it's YOUR TURN to join the conversation!
What do you think about this episode?
We want to know what you think! By continuing the conversation with your opinions and perspectives - we all get a better understanding of the problems facing our community. Better yet, through these conversations we can start working and developing solutions.
We mean it when say 360. Not only do we want your input anytime and anywhere, but we also are eager to see where the conversation will take us. So please, "pull up a seat at the table" and let's start talking!
Email us at podcast@aiarthritis.org, message us on social media (find us by searching for @IFAiArthritis)
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