Episodio 114: #¿Qué demonios?!
AiArthritis Voices 360 Main, Full Episode 114
Air Date: October 5 2025
This episode is a 2, as outlined in our 6 Step Patient-Led Problem Solving Process.
We have all had those moments where the healthcare system leaves us throwing up our hands and asking, WTH?! From outrageous medical bills and denied prescriptions to hours on the phone with insurance companies, people everywhere share the same frustrations. That is why AiArthritis launched the global #WTHellth?! campaign, a place to rant, connect, and turn stories into change.
In this episode, Co-hosts Tiffany Westrich-Robertson and Ray Patnaude introduce the campaign and explain how your everyday frustrations with healthcare access, insurance, and prescription costs can be transformed into powerful patient experience data (PED). By collecting thousands of stories, WTHellth?! helps government leaders, policymakers, and insurers see the real barriers patients face.
Whether you share your rant on social media with the hashtag #WTHellth?! or submit your story directly atwww.wthellth.org, your voice matters. Together, we can turn frustration into action and make sure patients everywhere are part of the conversation about healthcare reform.
Episode Highlights:
- How to share your story and create impact with the #WTHellth?! campaign
- Common patient frustrations, from step therapy to unaffordable prescriptions
- How ranting together creates both emotional impact and usable patient experience data
- How collected stories will be used to drive healthcare reform and policy change
Submit Your Patient Story:
wthellth.org
Participate in Patient Experience Survey: https://bit.ly/PatientWhy
Have questions about this episode or topics you want to hear us bring to the table? Email us at podcast@aiarthritis.org
Donate to Support the Show: www.aiarthritis.org/donate
AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at
www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us (podcast@aiarthritis.org). Be sure to check out our top-rated show on
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Todos nuestros episodios principales del primer domingo de cada mes son un episodio inicial para "poner el tema sobre la mesa". (Paso 2 del proceso de resolución de problemas de 6 pasos de nuestra organización) o un episodio de "revisión de la mesa" (Paso 6 en el proceso de 6 pasos de nuestra organización)donde nos basamos en un programa anterior porque hemos avanzado en el desarrollo de ayuda, herramientas o proyectos en torno al tema. (Paso 5 del proceso de 6 pasos de nuestra organización).
Tras la emisión de cada programa, ampliamos la conversación a numerosos debates en diversos formatos, a los que ahora llamamos #360its.
Your Co-Hosts: Who is at the Table this Episode?
Tiffany Westrich-Robertson, CEO AiArthritis
Tiffany is the CEO at International Foundation for AiArthritis and uses her professional
expertise in mind-mapping and problem solving to help others, like her, who live with AiArthritis diseases work in unison to identify and solve unresolved community issues.
Facebook @tiffanyAiArthritis
Twitter: @TiffWRobertson
LinkedIn: @TiffanyWestrichRobertson
Ray Patnaude
Ray Patnaude is a patient advocacy leader with over a decade of experience advancing patient-centered health policy and education. Living with psoriatic arthritis, he brings authenticity and passion to his work, amplifying patient voices while developing innovative educational tools for advocacy organizations worldwide. As manager of AiArthritis’ Knowledge = Empowerment program and the #WTHellth?! campaign, he drives impactful initiatives that empower patients and shape meaningful health reform.
And now, let's 360it!
The main Sunday episode is where we "put the topic on the table," but it's not where the conversation ends! Now we spin off the conversation into different discussion segments. Below you will find several 360its. Some are videos from the main episode, while others are audiograms (soundbites).
Who Is In This 360it?
Tiffany is the CEO at International Foundation for AiArthritis and uses her professional expertise in mind-mapping and problem solving to help others, like her, who live with AiArthritis diseases work in unison to identify and solve unresolved community issues.
Vanessa Lathan is the Grassroots Advocacy Manager at AiArthritis and a consultant with the Patient Inclusion Council, where she leads efforts in diversity, equity, inclusion, and accessibility. Living with Undifferentiated Connective Tissue Disease, she is passionate about advancing racial health equity and disability rights, with a focus on improving care for Black women with invisible illnesses.
Ep 114 360it: Su medicamento recetado: ¿asequible o inasequible y POR QUÉ?
Debido en gran parte a un sistema de salud sumamente complejo, el acceso a medicamentos recetados a precios asequibles es un desafío creciente en Estados Unidos. ¡Buenas noticias! Varios representantes del gobierno están trabajando AHORA MISMO para abordar este problema. Sin embargo, se están implementando mejoras sin preguntar a los pacientes qué medicamentos pueden o no costear, ni tampoco se les pregunta por qué.
En este episodio derivado de 360it, la directora ejecutiva de AiArthritis, Tiffany Westrich-Robertson, y la gerente de defensa comunitaria, Vanessa Lathan, analizan la importancia de comprender "el porqué del paciente" y cómo USTED puede compartir sus experiencias HOY para ayudar a orientar las soluciones.
A partir de nuevos datos del proyecto de la Coalición EACH/PIC (Garantizando el Acceso a través de la Salud Colaborativa) sobre la Asequibilidad y la Inaccesibilidad a los Medicamentos Recetados, Tiffany y Vanessa explican que las razones de la asequibilidad varían y que todas las personas tratadas con medicamentos de alto costo deben seguir compartiendo sus motivos. De esta manera, podremos recopilar suficientes opiniones y encontrar patrones que nos permitan orientar al gobierno sobre cómo ayudarnos.
Esta transmisión destaca por qué las voces de los pacientes debe Este episodio te guiará en la reforma sanitaria y te explicará cómo puedes —y debes— participar en la encuesta continua sobre la experiencia del paciente para garantizar que las soluciones reflejen las vivencias reales. Si alguna vez has omitido o racionado tu medicación, te has enfrentado a obstáculos inesperados con tu seguro o te ha preocupado el pago de tus recetas, este episodio destaca por qué tu opinión es fundamental para diseñar soluciones.
Este esfuerzo está liderado por más de 80 organizaciones y grupos de pacientes en los EE. UU. que trabajan en conjunto. Cualquier diagnóstico, cualquier medicamento; no se limita solo a la artritis autoinmune o la artritis autoinflamatoria.
Aspectos destacados del episodio:
- Por qué la asequibilidad no se trata solo del precio, sino también del diseño y el acceso a los seguros.
- Lo que revelan los nuevos resultados de una encuesta sobre las dosis omitidas, los problemas con Medicare y la dependencia de la asistencia financiera.
- Por qué es fundamental incluir las diversas voces de los pacientes para construir soluciones reales.
- Cómo puedes participar en la encuesta sobre la experiencia del paciente y unirte a los esfuerzos en curso para mejorar la asequibilidad de los medicamentos recetados.
Pull up your seat at the table
Now it's YOUR TURN to join the conversation!
What do you think about this episode?
We want to know what you think! By continuing the conversation with your opinions and perspectives - we all get a better understanding of the problems facing our community. Better yet, through these conversations we can start working and developing solutions.
We mean it when say 360. Not only do we want your input anytime and anywhere, but we also are eager to see where the conversation will take us. So please, "pull up a seat at the table" and let's start talking!
Email us at podcast@aiarthritis.org, message us on social media (find us by searching for @IFAiArthritis)
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