Organ Involvement:
Disease Symptom or Comorbidity?
AiArthritis Voices 360 Main, Full Episode 86
Air Date: June 4, 2023
- This episode is a Step 5, as outlined in our 6 Step Patient-Led Problem Solving Process.
In this episode, Tiffany will discuss how different organs can be impacted by the disease and the difference between an organ being part of a disease and being a comorbidity. Tiffany will be exploring some examples of organs being affected in various diseases such as eyes, heart, gastrointestinal, and kidneys, as well as a newer autoimmune disease, IgG4, that is commonly being diagnosed for patients alongside their AiArthritis disease. It is crucial for patients to be proactive in their healthcare by asking their healthcare provider about organ involvement - as part of their disease or as a potential comorbidity- and what steps they can take to next manage their health.
This episode is just the start of this conversation! Tiffany will be joined by Eileen and Deb at EULAR 2023 in Milan, Italy, as part of our “Go With Us!” to Conferences program. While there we will be recording updates for you from all sessions that cover this topic, which will be available soon after on our YouTube channel/Go With Us! to EULAR 2023 playlist.
Episode Highlights:
- Understanding the complexities of comorbidities with AiArthritis diseases
- Sharing the different comorbidities that commonly occur with AiArthritis diseases
- Learn which organs are commonly affected by comorbidities and what your risks are
- Understand IgG4, a newer autoimmune disease more and how it may be diagnosed alongside AiArthritis diseases
- How to attend conferences with AiArthritis and learn more about comorbidities
- Learn more about your AiArthritis disease by joining us at conferences, sharing your questions, joining AiArthritis Voices service or participating in the AiArthritis Research Database
Want to get insider information from our visit to EULAR 2023?
Follow us on our journey to Milan, Italy for EULAR 2023 where we share new information and insider information that impacts you, the patient, and be one of the first to be notified of new materials we create from attending!
To sign up, visit us at https://www.aiarthritis.org/conferences
Share your AiArthritis disease comorbidities questions with us!
Email us at info@aiarthritis.org with the subject: Comorbidities
AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at
www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us (podcast@aiarthritis.org). Be sure to check out our top-rated show on
Feedspot!
¿Quién está en la mesa?
Tiffany Westrich-Robertson,
CEO and person living with axial spondyloarthritis
CLICK HERE TO JOIN THE CONVERSATION
All our main 1st Sunday of the month episodes are either an initial "put the topic on the table" episode (Step 2 in our organization's 6-step problem solving process) or a "revisit to the table" episode (Step 6 in our organization's 6-step process), where we build on a past show because we have moved forward in developing help, tools, or projects around the issue (Step 5 in our organization's 6-step process).
After each show airs we spin off the conversation into many discussions over various formats, which we now call #360its (new in 2022)!
And now, let's 360it!
The main Sunday episode is where we "put the topic on the table," but it's not where the conversation ends! Now we spin off the conversation into different discussion segments. Below you will find several 360its. Some are videos from the main episode, while others are audiograms (soundbites).
Soon we will be launching additional 360its, which will build on these conversations. We'll hear from patients in the United States, Canada, and Australia who are here to help you through the transition to biosimilars. We are also planning a WATCH PARTY, where we will play back segments of webinars that aim to teach you more about biosimilars - and you'll have your fellow patients at AiArthritis to talk through it all with you! Stay tuned.
VIDEOS DE 360° Y VIDEOS CORTOS DEL EPISODIO PRINCIPAL
¿Cuáles son las comorbilidades de las enfermedades de artritis inducida por adyuvante?
¿Comorbilidad o síntoma de la enfermedad? Esta es una pregunta común para quienes viven con una enfermedad de AiArthritis. Desde síntomas gastrointestinales hasta enfermedad pulmonar intersticial, descubra cómo estas afecciones pueden relacionarse con su diagnóstico principal. Conozca los riesgos asociados con la inflamación no controlada y la importancia de un manejo proactivo. Manténgase informado y empoderado en su camino hacia una mejor salud con AiArthritis. #Comorbilidades #ArtritisPorInteligenciaAi #ConexionesDeSalud
Su presentador: ¿Quiénes están en la mesa en este episodio?
Tiffany Westrich-Robertson
Tiffany is the CEO at International Foundation for AiArthritis and uses her professional expertise in mind-mapping and problem solving to help others, like her, who live with AiArthritis diseases work in unison to identify and solve unresolved community issues. For the last several years, she has continued her education in research, including becoming a professional focus group moderator, and translated this experience at our organization to develop award-winning, innovative projects that are taking patient engagement to next levels.
Tiffany has served on several advisory boards, including those to advance patient voices in policy, clinical trials, and precision medicine. In addition to reviewing grants at PCORI and for the Department of Defense, she was the sole patient grant reviewer for the National Institute of Arthritis and Musculoskeletal and Skin diseases from 2015-2018. She currently participates as a Patient Research Partner for OMERACT (Outcome Measures in Rheumatology), co-leads our organizations' international effort to advance patient voices in rheumatology research (the ACTion Council) and has dedicated her professional career to developing other patients to utilize their voices to impact the future of millions.
Pull up your seat at the table
Now it's YOUR TURN to join the conversation!
What do you think about this episode?
We want to know what you think! By continuing the conversation with your opinions and perspectives - we all get a better understanding of the problems facing our community. Better yet, through these conversations we can start working and developing solutions.
We mean it when say 360. Not only do we want your input anytime and anywhere, but we also are eager to see where the conversation will take us. So please, "pull up a seat at the table" and let's start talking!
Email us at podcast@aiarthritis.org, message us on social media (find us by searching for @IFAiArthritis)
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Pull up a seat and join the conversation on the topic from today and past episodes. You may even get an opportunity to talk directly with the co-hosts and any episode guests!
This episode was made possible through support from Horizon Therapeutics.
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