Social Wellness with an AiArthritis Disease
AiVoces de la Artritis 360, Episodio 96
Fecha de emisión: 7 de abril de 2024
This episode is a Step2, as outlined in our 6 Step Patient-Led Problem Solving Process.
In this episode, co-hosts Leila, Estela, and Kerry delve into the crucial topic of social wellness amidst living with AiArthritis disease. They explore the essence of social wellness, its significance and sharing personal insights on navigating social lives while managing health challenges. Join our co-hosts as they discuss both the supportive and challenging dynamics of maintaining an active social life with an AiArthritis disease and how online communities can positively impact social wellness. Drawing from community questions and experiences, they offer invaluable advice, practical tips, and thoughtful modifications to foster social fulfillment despite potential barriers. Tune in to learn how to prioritize social wellness in the face of chronic illness.
Episode Highlights:
- Definition and exploration of social wellness, emphasizing its importance in maintaining overall well-being.
- How social wellness can negatively and positively affect your AiArthritis disease
- Discussion on the cohosts' personal experiences with their social lives and how they navigate social interactions while managing their health conditions.
- Insights into the reactions of family and friends to the cohosts' social needs, highlighting both supportive and challenging aspects.
- How you can utilize technology to connect to your community to positively impact your social life.
- Answering community questions and comments regarding social wellness by sharing practical advice, tips, and modifications for fostering social fulfillment despite potential barriers.
AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at
www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us (podcast@aiarthritis.org). Be sure to check out our top-rated show on
Feedspot!
Who is at the table?
Leila is the Health Education Manager at the International Foundation for AiArthritis.
Kerry is a writer and patient advocate.
Estela is the President and co-founder of Looms for Lupus
All our main 1st Sunday of the month episodes are either an initial "put the topic on the table" episode (Step 2 in our organization's 6-step problem solving process) or a "revisit to the table" episode (Step 6 in our organization's 6-step process), where we build on a past show because we have moved forward in developing help, tools, or projects around the issue (Step 5 in our organization's 6-step process).
After each show airs we spin off the conversation into many discussions over various formats, which we now call #360its (new in 2022)!
And now, let's 360it!
The main Sunday episode is where we "put the topic on the table," but it's not where the conversation ends! Now we spin off the conversation into different discussion segments. Below you will find several 360its. Some are videos from the main episode, while others are audiograms (soundbites).
Soon we will be launching additional 360its, which will build on these conversations. We'll hear from patients in the United States, Canada, and Australia who are here to help you through the transition to biosimilars. We are also planning a WATCH PARTY, where we will play back segments of webinars that aim to teach you more about biosimilars - and you'll have your fellow patients at AiArthritis to talk through it all with you! Stay tuned.
360its & SHORT VIDEO CLIPS FROM THE MAIN EPISODE
#360it: Maintaining a Positive Social Life with AiArthritis Diseases
In this episode, co-hosts Leila, Estela, and Kerry delve into the crucial topic of social wellness amidst living with AiArthritis disease. They share their stories of struggling being social while dealing with their AiArthritis symptoms and how they have overcome hurdles to maintain a positive social life. Join us in this video as they open up and discuss the dynamics of maintaining an active social life with an AiArthritis disease and how online communities can positively impact social wellness.
Leila P.L. Valete
Leila Leila es la Directora de Educación para la Salud de la Fundación Internacional para la Artritis Autista. Vive con nefritis lúpica y síndrome de Sjögren. Le apasiona la inclusión y la diversidad en la educación para la salud, y se esfuerza por conectar con las personas desde su propia perspectiva para que aprendan de una manera que les resulte significativa. Leila comparte en redes sociales como @LupusLifestyle.Lei fragmentos de su vida con lupus y se conecta con otras personas. Conéctate con ella en Instagram o TikTok.
Conecta con Leila:
- Instagram: @lupus.lifestyle.lei
- TikTok:
@lupus.lifestyle.lei
Kerry Wong
Kerry is a writer and patient advocate living with fibromyalgia, rheumatoid arthritis, sarcoidosis, Sjögren's syndrome, and small fiber neuropathy/dysautonomia (to name a few). As these conditions took their toll and she became less physically able, Kerry became empowered to use her voice to advocate for herself and for patients like her. She is currently working on "Kaleidoscope," a collection of rare disease stories.
Connect with Kerry:
- Instagram: @buttahflyk
- Twitter: @buttahflyk
- Facebook: @floatlikeabuttahfly
- Website:
http://bit.ly/floatlikeabuttahfly
Ojos de Stella
Estela
is the President and co-founder of Looms for Lupus, a non-profit organization that provides Lupus, Fibromyalgia and Mental Health Awareness, advocacy, and support to those living with these conditions, their loved ones, and caregivers.
Connect with Deb:
Connect with Estela:
- Instagram: @estela_mata @looms4lupus
- LinkedIn: @Estela Mata-Carcamo
Pull up your seat at the table
Now it's YOUR TURN to join the conversation!
What do you think about this episode?
We want to know what you think! By continuing the conversation with your opinions and perspectives - we all get a better understanding of the problems facing our community. Better yet, through these conversations we can start working and developing solutions.
We mean it when say 360. Not only do we want your input anytime and anywhere, but we also are eager to see where the conversation will take us. So please, "pull up a seat at the table" and let's start talking!
Email us at podcast@aiarthritis.org, message us on social media (find us by searching for @IFAiArthritis)
Continue the conversation in our own AiArthritis Voices 360 Talk Show Group!
Pull up a seat and join the conversation on the topic from today and past episodes. You may even get an opportunity to talk directly with the co-hosts and any episode guests!
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