AiArthritis Diseases and Protecting Against COVID-19 in Healthcare Settings

AiArthritis Voices 360, Episode 99

Air Date: July 7, 2024

This episode is a Step5, as outlined in our 6 Step Patient-Led Problem Solving Process.


In this episode, co-hosts Charis Hill and Jae Walker delve into life after COVID-19, focusing on the unique challenges faced by individuals with AiArthritis diseases. They discuss the importance of continued precautions in healthcare settings, share their own personal experiences, and offer practical advice for staying safe. Tune in for an insightful conversation on navigating a post-COVID world while managing chronic illnesses.


Join us for this episode to gain valuable insights and actionable steps to protect yourself and others in the AiArthritis community.




                                                                                                                                                                                                                                                                                                                             

Episode Highlights: 


  • Understanding the ongoing complexities of COVID-19 for immunocompromised individuals and those on immune-suppressing medications.
  • Jae and Charis share their journey living with chronic disease, their experience with COVID-19 and managing CO-VID prevention now.
  • Discussion on recent public health recommendations and the importance of wearing masks, social distancing, and testing.
  • Addressing the need for safe healthcare environments and advocating for better protections for high-risk patients.
  • Encouraging listeners to resume mask-wearing, improve air quality, and initiate conversations with healthcare providers about safety measures.









AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us (podcast@aiarthritis.org).  Be sure to check out our top-rated show on Feedspot!

Who is at the table?

Charis, who uses they/them pronouns, is a disability activist, writer, speaker, and model


Jae, who uses they/them pronouns, is a blogger, writer and artist



                                                                                                                                                                                           

  • Expandir para ver la transcripción del podcast

    [00:00:00] Intro: Welcome to AiArthritis Voices 360, the podcast solving

All our main 1st Sunday of the month episodes are either an initial "put the topic on the table" episode (Step 2 in our organization's 6-step problem solving process) or a "revisit to the table" episode (Step 6 in our organization's 6-step process), where we build on a past show because we have moved forward in developing help, tools, or projects around the issue (Step 5 in our organization's 6-step process).


After each show airs we  spin off the conversation into many discussions over various formats, which we now call #360its (new in 2022)!

 

You can find, follow, and listen on Podbean, Spotify, Apple Podcast, or where ever you do podcasts. Please follow, rate, and subscribe to the show, then share it with someone. Be sure to check out our top-rated show on Feedspot!

    • Volunteer with AiArthritis : https://bit.ly/AiArthritisVolunteerApp
    • Donate to Support the Show: https://www.aiarthritis.org/donate
    •  Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE
    • Follow AiArthritis on all social media platforms @IFAiArthritis
    • Jae’s blog - When I Had Co-Vid: https://creakyjoints.org/living-with-arthritis/coronavirus/patient-perspectives/when-i-had-covid/
    • COVID Keeps Rising in Bay Area Wastewater. What to Know, From New Variants to Symptoms: https://www.kqed.org/news/11987343/covid-bay-area-wastewater-variant-symptoms-isolation-guidance
    • CDC “People with certain medical conditions” page: https://www.cdc.gov/coronavirus/2019-ncov/need-extra-precautions/people-with-medical-conditions.html
    • CDC page “How to protect yourself and others” https://www.cdc.gov/coronavirus/2019-ncov/prevent-getting-sick/prevention.html
    • People’s CDC resource page for requesting COVID healthcare reasonable accommodations: https://peoplescdc.org/2023/05/09/ada-rights-workshop/

And now, let's 360it!

The main Sunday episode is where we "put the topic on the table," but it's not where the conversation ends!  Now we spin off the conversation into different discussion segments. Below you will find several 360its. Some are videos from the main episode, while others are audiograms (soundbites).


Soon we will be launching additional 360its, which will build on these conversations. We'll hear from patients in the United States, Canada, and Australia who are here to help you through the transition to biosimilars. We are also planning a WATCH PARTY, where we will play back segments of webinars that aim to teach you more about biosimilars - and you'll have your fellow patients at AiArthritis to talk through it all with you!  Stay tuned.

360its & SHORT VIDEO CLIPS FROM THE MAIN EPISODE (Coming Soon!)

Charis Hill

Charis Hill, Charis, quien usa los pronombres neutros (elle/elles), es activista por los derechos de las personas con discapacidad, escritora, oradora y modelo, y vive con afecciones como la espondiloartritis axial y el síndrome de Ehlers-Danlos. Utiliza la narrativa participativa para promover la justicia social para las personas con discapacidad que sufren múltiples marginaciones y ha aparecido en medios internacionales y en el documental "Becoming Incurable". Charis ha escrito para HealthCentral, Healthline y Business Insider, y ha sido reconocida por la Arthritis Foundation y la Spondylitis Association of America por su labor de defensa.


Conecta con Charis:

  • Gorjeo: @beingcharisblog
  • Tikok : @beingcharisblog
  • Facebook: @beingcharis


Jae Walker

Jae Walker, who uses they/them pronouns, is a blogger, writer and artist living with conditions such as rheumatoid arthritis, Sjogren's, and small Fiber Polyneuropathy Hypothyroidism. They are an advocate and artist sharing artwork around chronic fatigue, chronic illness, and pain from the patient perspective.


Connect with Jae:

  • Threads: @JaelehWalker 
  • Instagram : @UnexpectedAdvocate
  • Facebook: @UnexpectedAdvocate

Pull up your seat at the table

Now it's YOUR TURN to join the conversation!

What do you think about this episode?

We want to know what you think! By continuing the conversation with your opinions and perspectives - we all get a better understanding of the problems facing our community.  Better yet, through these conversations we can start working and developing solutions.


We mean it when say 360. Not only do we want your input anytime and anywhere, but we also are eager to see where the conversation will take us. So please, "pull up a seat at the table" and let's start talking!


Email us at podcast@aiarthritis.org, message us on social media (find us by searching for @IFAiArthritis)

Continue the conversation in our own AiArthritis Voices 360 Talk Show Group!

Pull up a seat and join the conversation on the topic from today and past episodes. You may even get an opportunity to talk directly with the co-hosts and any episode guests!

Relevant Episodes & Projects

Love the show? Help us make sure we stay on the air by making a donation.


Your contribution helps us continue the work we do every day to improve the lives of millions worldwide.

Give Today!