Episode 122: Turning Patient Experiences into Real-World Impact
AiArthritis Voices 360 Principal, Episodio completo 122
Fecha de emisión: 7 de junio de 2026
This episode is a step 2, as outlined in our 6 Step Patient-Led Problem Solving Process.
AiArthritis was built by listening to patients. For more than 15 years, conversations within the
community have shaped programs, resources, research initiatives, and advocacy efforts
designed to improve the patient journey. In this episode, Leila and Tiffany discuss AiArthritis'
next chapter and how the organization is expanding its commitment to collecting, analyzing, and
acting on lived experience data.
The conversation explores what lived experience data is and why it matters. Patient stories can
help identify unmet needs, improve healthcare conversations, influence research priorities, and
drive meaningful change. Leila and Tiffany also share how AiArthritis is creating new
opportunities for patients, care partners, and advocates to contribute their experiences and
ensure every voice is counted.
Whether you have participated in an AiArthritis program before or are just discovering the
organization, this episode offers a behind-the-scenes look at how patient experiences become
real-world impact. It also highlights new ways to get involved and help shape future programs,
resources, and advocacy efforts.
Episode Highlights:
- How sharing your experience can help improve care for future patients
- Why AiArthritis is expanding its focus on lived experience data
- Real examples of patient feedback leading to new resources and solutions
- New ways to participate in research and community-driven initiatives
- What's coming next for AiArthritis Voices and patient engagement
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AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at
www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us (podcast@aiarthritis.org). Be sure to check out our top-rated show on
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Todos nuestros episodios principales del primer domingo de cada mes son un episodio inicial para "poner el tema sobre la mesa". (Paso 2 del proceso de resolución de problemas de 6 pasos de nuestra organización) o un episodio de "revisión de la mesa" (Paso 6 en el proceso de 6 pasos de nuestra organización)donde nos basamos en un programa anterior porque hemos avanzado en el desarrollo de ayuda, herramientas o proyectos en torno al tema. (Paso 5 del proceso de 6 pasos de nuestra organización).
Tras la emisión de cada programa, ampliamos la conversación a numerosos debates en diversos formatos, a los que ahora llamamos #360its.
Your Co-Hosts: Who is at the Table this Episode?
Tiffany Westrich-Robertson, CEO
Tiffany is the CEO at International Foundation for AiArthritis and uses her professional expertise in mind-mapping and problem solving to help others, like her, who live with AiArthritis diseases work in unison to identify and solve unresolved community issues.
Connect with Tiffany:
- Facebook: @tiffanyAiArthritis
- Twitter: @TiffWRobertson
- LinkedIn: @TiffanyWestrichRobertson
Leila P.L. Valete, CHES
Leila is the Health Education Manager at the International Foundation for AiArthritis. She is a
person living with Lupus and Sjögren’s disease. She is passionate about inclusion and
diversity in health education and meeting individuals where they are at in order to learn in a
way that resonates with them.
Connect with Leila:
Tiktok & Instagram: @Lupuslifestyle.lei
Pull up your seat at the table
Now it's YOUR TURN to join the conversation!
What do you think about this episode?
We want to know what you think! By continuing the conversation with your opinions and perspectives - we all get a better understanding of the problems facing our community. Better yet, through these conversations we can start working and developing solutions.
We mean it when say 360. Not only do we want your input anytime and anywhere, but we also are eager to see where the conversation will take us. So please, "pull up a seat at the table" and let's start talking!
Email us at podcast@aiarthritis.org, message us on social media (find us by searching for @IFAiArthritis)
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