Breaking Research: Pharma & Non-Pharma 2023
AiArthritis Voices 360 Main, Full Episode 92
Air Date: December 3 , 2023
This episode is a Step 5, as outlined in our 6 Step Patient-Led Problem Solving Process.
Join us in this episode as co-hosts Tiffany and Deb both a recap of the 2023 ACR, American College of Rheumatology Conference and also how these topics specifically affect AiArthritis diseases. Tiffany and Deb also share an insight into our program, “Go With Us!” to Conferences. The Go With Us program allows patients to attend these conferences in real time and get updates on different important or emerging topics for AiArthritis diseases.
In this episode, the co-hosts discuss some main conference topics, both pharma and non-pharma, such as how precision medicine can greatly benefit patients by matching correct treatment plans, how existing treatments are being retested for subgroups and how lifestyle can impact your treatment. Learn common questions doctors receive from patients about their day to day life such as exercise, stress and diet and their advice on how lifestyle modifications can also help to alleviate symptoms. Don’t miss this patient recap of the 2023 ACR conference!
To join the Go With Us program, click here:
https://www.aiarthritis.org/conferences
To learn how to volunteer with AiArthritis, check out our program here: https://www.aiarthritis.org/volunteer
Come be apart of the AiArthritis Research Database here: https://www.aiarthritis.org/database
To learn more about JIA project, click here: www.aiarthritis.org/JIAcommunication
Episode Highlights:
- How lifestyle modifications such as exercise, stress and diet can help alleviate symptoms
- Understanding what parts of your immune system is being triggered by your disease for matching to the best treatments
- Discussion on how early should early intervention be done for JIA
- The importance of understanding precision medicine to improve matching the correct treatment plan for your AiArthritis disease.
- AiArthritis Go With Us program where you are able to attend the conferences such as ACR and EULAR in real time to understand current and emerging topics that relate to AiArthritis diseases.
- New therapy option in the very beginning stages being discussed at ACR that has the potential to suppress and protect from autoimmune arthritis diseases.
- Why supporting research is so important for the development of AiArthritis treatments
AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at
www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us (podcast@aiarthritis.org). Be sure to check out our top-rated show on
Feedspot!
All our main 1st Sunday of the month episodes are either an initial "put the topic on the table" episode (Step 2 in our organization's 6-step problem solving process) or a "revisit to the table" episode (Step 6 in our organization's 6-step process), where we build on a past show because we have moved forward in developing help, tools, or projects around the issue (Step 5 in our organization's 6-step process).
After each show airs we spin off the conversation into many discussions over various formats, which we now call #360its (new in 2022)!
And now, let's 360it!
The main Sunday episode is where we "put the topic on the table," but it's not where the conversation ends! Now we spin off the conversation into different discussion segments. Below you will find several 360its. Some are videos from the main episode, while others are audiograms (soundbites).
Soon we will be launching additional 360its, which will build on these conversations. We'll hear from patients in the United States, Canada, and Australia who are here to help you through the transition to biosimilars. We are also planning a WATCH PARTY, where we will play back segments of webinars that aim to teach you more about biosimilars - and you'll have your fellow patients at AiArthritis to talk through it all with you! Stay tuned.
360its & SHORT VIDEO CLIPS FROM THE MAIN EPISODE
#360it: Precision Medicine
Precision medicine is the key to unlocking tailored treatments for AiArthritis patients. As part of our podcast and #GoWithUs to conferences program, we delve into the importance of recognizing the uniqueness in each patient's journey.
#360it: Medicare Drug Price Negotiations: How Will It Affect Patient Access?
Join us in this breakout 360it from Episode 88 Biosimilars : Interchangeability & Switching 2023 as we dissect the Inflation Reduction Act (IRA) and its potential fallout on patient access to diverse treatment plans.
Your Host: Who is at the Table this Episode?
Tiffany Westrich-Robertson
Tiffany is the CEO at International Foundation for AiArthritis and uses her professional expertise in mind-mapping and problem solving to help others, like her, who live with AiArthritis diseases work in unison to identify and solve unresolved community issues.
Connect with Tiffany:
- Facebook: @tiffanyAiArthritis
- Twitter: @TiffWRobertson
- LinkedIn: @TiffanyWestrichRobertson
Deb Constien
Deb Constien is a medically retired Registered Dietitian and a Representative for the AiArthritis with Rheumatoid Arthritis. Deb is also on the Advisory Council for WREN- Wisconsin Research Education Network and a Patient Family Advisor- PFA on an International PCORI research study for ACP- Advanced Care Planning.
Connect with Deb:
- Facebook: @deb.majcherconstien
- Twitter: @debconstien
- Instagram: @debconstien
Pull up your seat at the table
Now it's YOUR TURN to join the conversation!
What do you think about this episode?
We want to know what you think! By continuing the conversation with your opinions and perspectives - we all get a better understanding of the problems facing our community. Better yet, through these conversations we can start working and developing solutions.
We mean it when say 360. Not only do we want your input anytime and anywhere, but we also are eager to see where the conversation will take us. So please, "pull up a seat at the table" and let's start talking!
Email us at podcast@aiarthritis.org, message us on social media (find us by searching for @IFAiArthritis)
Continue the conversation in our own AiArthritis Voices 360 Talk Show Group!
Pull up a seat and join the conversation on the topic from today and past episodes. You may even get an opportunity to talk directly with the co-hosts and any episode guests!
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