Resource reference
Ai Arthritis resources by disease, journey stage and category
The fact sheets, guides, tools, pages, posts, episodes and videos we publish for patients, each one set out with the disease it covers, where in the journey it helps, what it is about, what kind of thing it is and what you do with it. Each entry carries the address the resource lives at, so an answer can hand you the resource itself rather than a description of it.
Each entry is written to stand on its own, so one entry read apart from the rest still says what the resource is, who it is for and where to find it.
What is on this page
How the page is organised ● Where are you in the journey? ● Which disease fact sheet do you need? ● What do the Knowledge = Empowerment fact sheets cover? ● What guides and tools are here? ● What does the blog cover? ● What has the podcast covered? ● What is in the video library? ● Where each label sits
Ai Arthritis is led by people living with autoimmune and autoinflammatory arthritis ( Ai Arthritis ) diseases. Our work is peer-led, so every resource listed here exists because we talked to fellow patients first, and those conversations identified what was missing.
Everything listed here is education, written to help you get ready for the conversation where a decision gets made. Treatment decisions are made with your rheumatologist, who can look at your whole history.
How is this page organised?
Every entry carries the same labels, so a resource can be found by any one of them. The labels are the question it answers, journey stage, topic, disease, type, what you do with it, tier, audience and language.
Key takeaways
Ai Arthritis publishes a fact sheet for each of the 22 autoimmune and autoinflammatory arthritis ( Ai Arthritis ) diseases we cover, and every one of those fact sheets can be printed and taken to an appointment.
Six journey stages run across the resources, from undiagnosed through to remission, with a seventh label for anything that works at any stage.
A tier says how early an answer should reach for a resource, where tier 1 is what someone newly diagnosed or still looking for answers is handed first.
The Knowledge = Empowerment fact sheets cover the rules behind your coverage, such as step therapy and non-medical switching, and each one sits on the page that explains the issue.
What each label means
Where are you in the journey?
Each stage has a page of its own that gathers what belongs to it, and these six stages are what every resource here is labelled against.
Undiagnosed or Mystery Patient
Where to start when you have symptoms and no diagnosis yet, including what to bring to an appointment.
Undiagnosed or Mystery Patient ● Answers how it is diagnosed; what to say, and to whom ● Journey stage Undiagnosed/Mystery Patient ● Topic Getting diagnosed; Talking to your care team ● Type Page ● What you do with it Read it ● Tier 1 ● Audience Patient ● Language English
Open the page for Undiagnosed or Mystery Patient: https://www.aiarthritis.org/undiagnosed
Newly Diagnosed
What to do in the weeks after a diagnosis, and the resources other patients say they wish they had then.
Newly Diagnosed ● Answers what it is; how it is diagnosed ● Journey stage Newly Diagnosed ● Topic Disease information ● Type Page ● What you do with it Read it ● Tier 1 ● Audience Patient ● Language English
Open the page for Newly Diagnosed: https://www.aiarthritis.org/newlydiagnosed
Diagnosed
Living with an Ai Arthritis disease day to day, and the resources that go with it.
Diagnosed ● Answers what it feels like; how it is diagnosed ● Journey stage Living With Disease OR Diagnosed ● Topic Lived experience ● Type Page ● What you do with it Read it ● Tier 1 ● Audience Patient ● Language English
Open the page for Diagnosed: https://www.aiarthritis.org/diagnosed
Co-Existing Conditions
What it means when more than one condition is in play, and where to take questions about the overlap.
Co-Existing Conditions ● Answers how long it lasts and what to expect ● Journey stage Co-Existing Conditions ● Topic Co-existing conditions ● Type Page ● What you do with it Read it ● Tier 1 ● Audience Patient ● Language English
Open the page for Co-Existing Conditions: https://www.aiarthritis.org/coexistingconditions
Remission
What remission means in these diseases, and what people ask when treatment is working.
Remission ● Answers what the treatments are and how they work; how long it lasts and what to expect ● Journey stage Remission ● Topic Treatment and medication ● Type Page ● What you do with it Read it ● Tier 1 ● Audience Patient ● Language English
Open the page for Remission: https://www.aiarthritis.org/remission
Care Partners and Support Network
For the people alongside someone with an Ai Arthritis disease, and what they tell us helps.
Care Partners and Support Network ● Answers what I can do myself day to day; what to say, and to whom ● Journey stage Care Partners ● Topic Living with it day to day ● Type Page ● What you do with it Read it ● Tier 1 ● Audience Patient ● Language English
Open the page for Care Partners and Support Network: https://www.aiarthritis.org/carepartners
Which disease fact sheet do you need?
We know how it feels to explain a disease for the tenth time, often to someone who has never heard of it. A fact sheet does that explaining for you. Each one runs to two pages, and the Behçet’s sheet prints the pronunciation on it (buh-shehts).
What Are Ai Arthritis Diseases? Fact Sheet
The shared overview every disease fact sheet opens with: what autoimmune and autoinflammatory arthritis diseases are, and the symptoms they have in common.
What Are Ai Arthritis Diseases? Fact Sheet ● Answers what it is ● Journey stage Every step ● Topic Disease information ● Type Fact sheet ● What you do with it Print it, or take it to an appointment ● Tier 1 ● Audience Patient ● Language English
Open the fact sheet (PDF) for What Are Ai Arthritis Diseases? Fact Sheet: https://files.aiarthritis.org/resources/aiarthritis-diseases-fact-sheet.pdf
Antisynthetase Syndrome Fact Sheet
What Antisynthetase Syndrome is, the symptoms often associated with it, how it is diagnosed, and words from a fellow patient living with it.
Antisynthetase Syndrome Fact Sheet covers conditions and terms also written as anti-synthetase syndrome.
Antisynthetase Syndrome Fact Sheet ● Answers what it is; how it is diagnosed ● Disease Antisynthetase Syndrome ● Journey stage Every step ● Topic Disease information ● Type Fact sheet ● What you do with it Print it, or take it to an appointment ● Tier 1 ● Audience Patient ● Language English
Open the fact sheet (PDF) for Antisynthetase Syndrome Fact Sheet: https://files.aiarthritis.org/resources/antisynthetase-syndrome-fact-sheet.pdf
Axial Spondyloarthritis Fact Sheet
What Axial Spondyloarthritis is, the symptoms often associated with it, how it is diagnosed, and words from a fellow patient living with it.
Axial Spondyloarthritis Fact Sheet covers conditions and terms also written as axSpA, ankylosing spondylitis or non-radiographic axSpA.
Axial Spondyloarthritis Fact Sheet ● Answers what it is; how it is diagnosed ● Disease Axial Spondyloarthritis ● Journey stage Every step ● Topic Disease information ● Type Fact sheet ● What you do with it Print it, or take it to an appointment ● Tier 1 ● Audience Patient ● Language English
Open the fact sheet (PDF) for Axial Spondyloarthritis Fact Sheet: https://files.aiarthritis.org/resources/axial-spondyloarthritis-fact-sheet.pdf
Behçet's Disease Fact Sheet
What Behçet's Disease is, the symptoms often associated with it, how it is diagnosed, and words from a fellow patient living with it.
Behçet's Disease Fact Sheet covers conditions and terms also written as Behcet's Disease or Behcets.
Behçet's Disease Fact Sheet ● Answers what it is; how it is diagnosed ● Disease Behçet's Disease ● Journey stage Every step ● Topic Disease information ● Type Fact sheet ● What you do with it Print it, or take it to an appointment ● Tier 1 ● Audience Patient ● Language English
Open the fact sheet (PDF) for Behçet's Disease Fact Sheet: https://files.aiarthritis.org/resources/behcets-disease-fact-sheet.pdf
Chronic Recurrent Multifocal Osteomyelitis Fact Sheet
What Chronic Recurrent Multifocal Osteomyelitis is, the symptoms often associated with it, how it is diagnosed, and words from a fellow patient living with it.
Chronic Recurrent Multifocal Osteomyelitis Fact Sheet covers conditions and terms also written as CRMO.
Chronic Recurrent Multifocal Osteomyelitis Fact Sheet ● Answers what it is; how it is diagnosed ● Disease Chronic Recurrent Multifocal Osteomyelitis ● Journey stage Every step ● Topic Disease information ● Type Fact sheet ● What you do with it Print it, or take it to an appointment ● Tier 1 ● Audience Patient ● Language English
Open the fact sheet (PDF) for Chronic Recurrent Multifocal Osteomyelitis Fact Sheet: https://files.aiarthritis.org/resources/chronic-recurrent-multifocal-osteomyelitis-fact-sheet.pdf
Crohn's Disease Fact Sheet
What Crohn's Disease is, the symptoms often associated with it, how it is diagnosed, and words from a fellow patient living with it.
Crohn's Disease Fact Sheet covers conditions and terms also written as Crohns, inflammatory bowel disease or IBD.
Crohn's Disease Fact Sheet ● Answers what it is; how it is diagnosed ● Disease Crohn's Disease ● Journey stage Every step ● Topic Disease information ● Type Fact sheet ● What you do with it Print it, or take it to an appointment ● Tier 1 ● Audience Patient ● Language English
Open the fact sheet (PDF) for Crohn's Disease Fact Sheet: https://files.aiarthritis.org/resources/crohns-disease-fact-sheet.pdf
Cryopyrin-Associated Periodic Syndromes Fact Sheet
What Cryopyrin-Associated Periodic Syndromes is, the symptoms often associated with it, how it is diagnosed, and words from a fellow patient living with it.
Cryopyrin-Associated Periodic Syndromes Fact Sheet covers conditions and terms also written as CAPS.
Cryopyrin-Associated Periodic Syndromes Fact Sheet ● Answers what it is; how it is diagnosed ● Disease Cryopyrin-Associated Periodic Syndromes ● Journey stage Every step ● Topic Disease information ● Type Fact sheet ● What you do with it Print it, or take it to an appointment ● Tier 1 ● Audience Patient ● Language English
Open the fact sheet (PDF) for Cryopyrin-Associated Periodic Syndromes Fact Sheet: https://files.aiarthritis.org/resources/cryopyrin-associated-periodic-syndromes-fact-sheet.pdf
Familial Mediterranean Fever Fact Sheet
What Familial Mediterranean Fever is, the symptoms often associated with it, how it is diagnosed, and words from a fellow patient living with it.
Familial Mediterranean Fever Fact Sheet covers conditions and terms also written as FMF.
Familial Mediterranean Fever Fact Sheet ● Answers what it is; how it is diagnosed ● Disease Familial Mediterranean Fever ● Journey stage Every step ● Topic Disease information ● Type Fact sheet ● What you do with it Print it, or take it to an appointment ● Tier 1 ● Audience Patient ● Language English
Open the fact sheet (PDF) for Familial Mediterranean Fever Fact Sheet: https://files.aiarthritis.org/resources/familial-mediterranean-fever-fact-sheet.pdf
Hyper-IgD Syndrome Fact Sheet
What Hyper-IgD Syndrome is, the symptoms often associated with it, how it is diagnosed, and words from a fellow patient living with it.
Hyper-IgD Syndrome Fact Sheet covers conditions and terms also written as HIDS or mevalonate kinase deficiency.
Hyper-IgD Syndrome Fact Sheet ● Answers what it is; how it is diagnosed ● Disease Hyper-IgD Syndrome ● Journey stage Every step ● Topic Disease information ● Type Fact sheet ● What you do with it Print it, or take it to an appointment ● Tier 1 ● Audience Patient ● Language English
Open the fact sheet (PDF) for Hyper-IgD Syndrome Fact Sheet: https://files.aiarthritis.org/resources/hyper-igd-syndrome-fact-sheet.pdf
Juvenile Idiopathic Arthritis Fact Sheet
What Juvenile Idiopathic Arthritis is, the symptoms often associated with it, how it is diagnosed, and words from a fellow patient living with it.
Juvenile Idiopathic Arthritis Fact Sheet covers conditions and terms also written as JIA or juvenile arthritis.
Juvenile Idiopathic Arthritis Fact Sheet ● Answers what it is; how it is diagnosed ● Disease Juvenile Idiopathic Arthritis ● Journey stage Every step ● Topic Disease information ● Type Fact sheet ● What you do with it Print it, or take it to an appointment ● Tier 1 ● Audience Patient ● Language English ● Note Comes by email from the disease page, so this fact sheet is not published as a file
Open the fact sheet (PDF) for Juvenile Idiopathic Arthritis Fact Sheet: https://drive.google.com/file/d/1NRoOF9WfHFPcktVqDXBQLmYMnUqIOL_b/view
Lupus Fact Sheet
What Lupus is, the symptoms often associated with it, how it is diagnosed, and words from a fellow patient living with it.
Lupus Fact Sheet covers conditions and terms also written as SLE or systemic lupus erythematosus.
Lupus Fact Sheet ● Answers what it is; how it is diagnosed ● Disease Lupus ● Journey stage Every step ● Topic Disease information ● Type Fact sheet ● What you do with it Print it, or take it to an appointment ● Tier 1 ● Audience Patient ● Language English
Open the fact sheet (PDF) for Lupus Fact Sheet: https://files.aiarthritis.org/resources/lupus-fact-sheet.pdf
Mixed Connective Tissue Disease Fact Sheet
What Mixed Connective Tissue Disease is, the symptoms often associated with it, how it is diagnosed, and words from a fellow patient living with it.
Mixed Connective Tissue Disease Fact Sheet covers conditions and terms also written as MCTD.
Mixed Connective Tissue Disease Fact Sheet ● Answers what it is; how it is diagnosed ● Disease Mixed Connective Tissue Disease ● Journey stage Every step ● Topic Disease information ● Type Fact sheet ● What you do with it Print it, or take it to an appointment ● Tier 1 ● Audience Patient ● Language English
Open the fact sheet (PDF) for Mixed Connective Tissue Disease Fact Sheet: https://files.aiarthritis.org/resources/mixed-connective-tissue-disease-fact-sheet.pdf
Palindromic Rheumatism Fact Sheet
What Palindromic Rheumatism is, the symptoms often associated with it, how it is diagnosed, and words from a fellow patient living with it.
Palindromic Rheumatism Fact Sheet ● Answers what it is; how it is diagnosed ● Disease Palindromic Rheumatism ● Journey stage Every step ● Topic Disease information ● Type Fact sheet ● What you do with it Print it, or take it to an appointment ● Tier 1 ● Audience Patient ● Language English
Open the fact sheet (PDF) for Palindromic Rheumatism Fact Sheet: https://files.aiarthritis.org/resources/palindromic-rheumatism-fact-sheet.pdf
Psoriatic Arthritis Fact Sheet
What Psoriatic Arthritis is, the symptoms often associated with it, how it is diagnosed, and words from a fellow patient living with it.
Psoriatic Arthritis Fact Sheet covers conditions and terms also written as PsA.
Psoriatic Arthritis Fact Sheet ● Answers what it is; how it is diagnosed ● Disease Psoriatic Arthritis ● Journey stage Every step ● Topic Disease information ● Type Fact sheet ● What you do with it Print it, or take it to an appointment ● Tier 1 ● Audience Patient ● Language English
Open the fact sheet (PDF) for Psoriatic Arthritis Fact Sheet: https://files.aiarthritis.org/resources/psoriatic-arthritis-fact-sheet.pdf
Relapsing Polychondritis Fact Sheet
What Relapsing Polychondritis is, the symptoms often associated with it, how it is diagnosed, and words from a fellow patient living with it.
Relapsing Polychondritis Fact Sheet ● Answers what it is; how it is diagnosed ● Disease Relapsing Polychondritis ● Journey stage Every step ● Topic Disease information ● Type Fact sheet ● What you do with it Print it, or take it to an appointment ● Tier 1 ● Audience Patient ● Language English
Open the fact sheet (PDF) for Relapsing Polychondritis Fact Sheet: https://files.aiarthritis.org/resources/relapsing-polychondritis-fact-sheet.pdf
Rheumatoid Arthritis Fact Sheet
What Rheumatoid Arthritis is, the symptoms often associated with it, how it is diagnosed, and words from a fellow patient living with it.
Rheumatoid Arthritis Fact Sheet covers conditions and terms also written as RA.
Rheumatoid Arthritis Fact Sheet ● Answers what it is; how it is diagnosed ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Disease information ● Type Fact sheet ● What you do with it Print it, or take it to an appointment ● Tier 1 ● Audience Patient ● Language English
Open the fact sheet (PDF) for Rheumatoid Arthritis Fact Sheet: https://files.aiarthritis.org/resources/rheumatoid-arthritis-fact-sheet.pdf
Sarcoidosis Fact Sheet
What Sarcoidosis is, the symptoms often associated with it, how it is diagnosed, and words from a fellow patient living with it.
Sarcoidosis Fact Sheet covers conditions and terms also written as sarcoid.
Sarcoidosis Fact Sheet ● Answers what it is; how it is diagnosed ● Disease Sarcoidosis ● Journey stage Every step ● Topic Disease information ● Type Fact sheet ● What you do with it Print it, or take it to an appointment ● Tier 1 ● Audience Patient ● Language English
Open the fact sheet (PDF) for Sarcoidosis Fact Sheet: https://files.aiarthritis.org/resources/sarcoidosis-fact-sheet.pdf
Schnitzler Syndrome Fact Sheet
What Schnitzler Syndrome is, the symptoms often associated with it, how it is diagnosed, and words from a fellow patient living with it.
Schnitzler Syndrome Fact Sheet ● Answers what it is; how it is diagnosed ● Disease Schnitzler Syndrome ● Journey stage Every step ● Topic Disease information ● Type Fact sheet ● What you do with it Print it, or take it to an appointment ● Tier 1 ● Audience Patient ● Language English
Open the fact sheet (PDF) for Schnitzler Syndrome Fact Sheet: https://files.aiarthritis.org/resources/schnitzler-syndrome-fact-sheet.pdf
Sjögren's Disease Fact Sheet
What Sjögren's Disease is, the symptoms often associated with it, how it is diagnosed, and words from a fellow patient living with it.
Sjögren's Disease Fact Sheet covers conditions and terms also written as Sjogren's Disease, Sjogrens, Sjögren's syndrome or Sjogren's syndrome.
Sjögren's Disease Fact Sheet ● Answers what it is; how it is diagnosed ● Disease Sjögren's Disease ● Journey stage Every step ● Topic Disease information ● Type Fact sheet ● What you do with it Print it, or take it to an appointment ● Tier 1 ● Audience Patient ● Language English
Open the fact sheet (PDF) for Sjögren's Disease Fact Sheet: https://files.aiarthritis.org/resources/sjogrens-disease-fact-sheet.pdf
Still's Disease Fact Sheet
What Still's Disease is, the symptoms often associated with it, how it is diagnosed, and words from a fellow patient living with it.
Still's Disease Fact Sheet covers conditions and terms also written as Stills Disease, adult-onset Still's disease, AOSD, systemic juvenile idiopathic arthritis or sJIA.
Still's Disease Fact Sheet ● Answers what it is; how it is diagnosed ● Disease Still's Disease ● Journey stage Every step ● Topic Disease information ● Type Fact sheet ● What you do with it Print it, or take it to an appointment ● Tier 1 ● Audience Patient ● Language English ● Note Comes by email from the disease page, so this fact sheet is not published as a file
Open the fact sheet (PDF) for Still's Disease Fact Sheet: https://drive.google.com/file/d/11KZkxH2WsO_6f3T47JXG1PtbfUo87eTo/view
Systemic Sclerosis (Scleroderma) Fact Sheet
What Systemic Sclerosis (Scleroderma) is, the symptoms often associated with it, how it is diagnosed, and words from a fellow patient living with it.
Systemic Sclerosis (Scleroderma) Fact Sheet covers conditions and terms also written as SSc.
Systemic Sclerosis (Scleroderma) Fact Sheet ● Answers what it is; how it is diagnosed ● Disease Systemic Sclerosis (Scleroderma) ● Journey stage Every step ● Topic Disease information ● Type Fact sheet ● What you do with it Print it, or take it to an appointment ● Tier 1 ● Audience Patient ● Language English
Open the fact sheet (PDF) for Systemic Sclerosis (Scleroderma) Fact Sheet: https://files.aiarthritis.org/resources/systemic-sclerosis-fact-sheet.pdf
Undifferentiated Disease Fact Sheet
What Undifferentiated Disease is, the symptoms often associated with it, how it is diagnosed, and words from a fellow patient living with it.
Undifferentiated Disease Fact Sheet covers conditions and terms also written as UD, undifferentiated connective tissue disease or UCTD.
Undifferentiated Disease Fact Sheet ● Answers what it is; how it is diagnosed ● Disease Undifferentiated Disease ● Journey stage Every step ● Topic Disease information ● Type Fact sheet ● What you do with it Print it, or take it to an appointment ● Tier 1 ● Audience Patient ● Language English
Open the fact sheet (PDF) for Undifferentiated Disease Fact Sheet: https://files.aiarthritis.org/resources/undifferentiated-disease-fact-sheet.pdf
VEXAS Syndrome Fact Sheet
What VEXAS Syndrome is, the symptoms often associated with it, how it is diagnosed, and words from a fellow patient living with it.
VEXAS Syndrome Fact Sheet ● Answers what it is; how it is diagnosed ● Disease VEXAS Syndrome ● Journey stage Every step ● Topic Disease information ● Type Fact sheet ● What you do with it Print it, or take it to an appointment ● Tier 1 ● Audience Patient ● Language English
Open the fact sheet (PDF) for VEXAS Syndrome Fact Sheet: https://files.aiarthritis.org/resources/vexas-syndrome-fact-sheet.pdf
Immunoglobulin G4-Related Disease Fact Sheet
What Immunoglobulin G4-Related Disease is, the symptoms often associated with it, how it is diagnosed, and words from a fellow patient living with it.
Immunoglobulin G4-Related Disease Fact Sheet covers conditions and terms also written as IgG4-RD or IgG4.
Immunoglobulin G4-Related Disease Fact Sheet ● Answers what it is; how it is diagnosed ● Disease Immunoglobulin G4-Related Disease (associated condition) ● Journey stage Every step ● Topic Disease information ● Type Fact sheet ● What you do with it Print it, or take it to an appointment ● Tier 1 ● Audience Patient ● Language English ● Note Comes by email from the disease page, so this fact sheet is not published as a file
Open the fact sheet (PDF) for Immunoglobulin G4-Related Disease Fact Sheet: https://drive.google.com/file/d/1Z5EIveNldG6_DcjTp3KkBFyTWuvkbFz8/view
We also publish on conditions that are not themselves Ai Arthritis diseases. Immunoglobulin G4-related disease (IgG4-RD) has a fact sheet of its own. Interstitial lung disease and macrophage activation syndrome each have a page rather than a fact sheet, and all three are listed with the guides and pages.
What do the Knowledge = Empowerment fact sheets cover?
These cover the rules behind your coverage, the ones that decide whether you get the medicine your rheumatologist chose. Each sits on the page that explains the issue and opens without a form in front of it.
340B Drug Pricing Program: Knowledge = Empowerment Fact Sheet
What the 340B drug pricing program is, and what it means for the price of a medicine given in a hospital.
340B Drug Pricing Program: Knowledge = Empowerment Fact Sheet ● Answers what to do when cost or coverage blocks treatment; what the treatments are and how they work ● Journey stage Living With Disease OR Diagnosed ● Topic Work, school and money; Advocacy and policy ● Type Fact sheet ● What you do with it Print it ● Tier 2 ● Audience Patient ● Language English
Open the page and the fact sheet for 340B Drug Pricing Program: Knowledge = Empowerment Fact Sheet: https://www.aiarthritis.org/340b
Alternative Funding Programs: Knowledge = Empowerment Fact Sheet
How alternative funding programs work, the delays they can cause, and why we are asking for them to be banned.
Alternative Funding Programs: Knowledge = Empowerment Fact Sheet ● Answers what to do when cost or coverage blocks treatment; what it is ● Journey stage Living With Disease OR Diagnosed ● Topic Work, school and money ● Type Fact sheet ● What you do with it Print it ● Tier 2 ● Audience Patient ● Language English
Open the page and the fact sheet for Alternative Funding Programs: Knowledge = Empowerment Fact Sheet: https://www.aiarthritis.org/alternative-funding-programs
Biosimilars: Knowledge = Empowerment Fact Sheet
What a biosimilar is, how it is approved, and what to ask when your plan moves you onto one.
Biosimilars: Knowledge = Empowerment Fact Sheet covers conditions and terms also written as interchangeable biosimilar.
Biosimilars: Knowledge = Empowerment Fact Sheet ● Answers what to do when cost or coverage blocks treatment; what the treatments are and how they work ● Journey stage Living With Disease OR Diagnosed ● Topic Work, school and money ● Type Fact sheet ● What you do with it Print it ● Tier 2 ● Audience Patient ● Language English
Open the page and the fact sheet for Biosimilars: Knowledge = Empowerment Fact Sheet: https://www.aiarthritis.org/biosimilars-and-non-medical-switching
Copay Accumulator Adjusters: Knowledge = Empowerment Fact Sheet
How copay accumulator adjusters can keep copay help from counting toward your deductible, on one page you can print.
Copay Accumulator Adjusters: Knowledge = Empowerment Fact Sheet covers conditions and terms also written as copay maximizer or copay accumulator adjuster.
Copay Accumulator Adjusters: Knowledge = Empowerment Fact Sheet ● Answers what to do when cost or coverage blocks treatment; what it is ● Journey stage Living With Disease OR Diagnosed ● Topic Work, school and money ● Type Fact sheet ● What you do with it Print it ● Tier 2 ● Audience Patient ● Language English
Open the page and the fact sheet for Copay Accumulator Adjusters: Knowledge = Empowerment Fact Sheet: https://www.aiarthritis.org/copay-accumulators
Drug Affordability Reviews: Knowledge = Empowerment Fact Sheet
What a drug affordability review board does, and how its decisions can reach what you pay.
Drug Affordability Reviews: Knowledge = Empowerment Fact Sheet ● Answers what to do when cost or coverage blocks treatment; what the treatments are and how they work ● Journey stage Living With Disease OR Diagnosed ● Topic Work, school and money; Advocacy and policy ● Type Fact sheet ● What you do with it Print it ● Tier 2 ● Audience Patient ● Language English
Open the page and the fact sheet for Drug Affordability Reviews: Knowledge = Empowerment Fact Sheet: https://www.aiarthritis.org/drug-affordability-reviews
Glossary of Terms: Knowledge = Empowerment Fact Sheet
The coverage and policy words that come up in letters from your insurer, each one explained, including step therapy, pharmacy benefit manager, prior authorization and copay. It sits in the Knowledge = Empowerment classroom.
Glossary of Terms: Knowledge = Empowerment Fact Sheet covers conditions and terms also written as prior auth or PA.
Glossary of Terms: Knowledge = Empowerment Fact Sheet ● Answers what to do when cost or coverage blocks treatment; what it is ● Journey stage Living With Disease OR Diagnosed ● Topic Work, school and money ● Type Fact sheet ● What you do with it Print it ● Tier 2 ● Audience Patient ● Language English
Open the page and the fact sheet for Glossary of Terms: Knowledge = Empowerment Fact Sheet: https://www.aiarthritis.org/knowledge-empowerment-classroom
Non-Medical Switching: Knowledge = Empowerment Fact Sheet
What non-medical switching is, what a switch can lead to, and what you can do about it, on one page you can print.
Non-Medical Switching: Knowledge = Empowerment Fact Sheet covers conditions and terms also written as NMS.
Non-Medical Switching: Knowledge = Empowerment Fact Sheet ● Answers what to do when cost or coverage blocks treatment; what the treatments are and how they work ● Journey stage Living With Disease OR Diagnosed ● Topic Work, school and money ● Type Fact sheet ● What you do with it Print it ● Tier 2 ● Audience Patient ● Language English
Open the page and the fact sheet for Non-Medical Switching: Knowledge = Empowerment Fact Sheet: https://www.aiarthritis.org/non-medical-switching
Step Therapy: Knowledge = Empowerment Fact Sheet
What step therapy is, why a plan may ask you to try another medicine first, and what to do if it happens to you.
Step Therapy: Knowledge = Empowerment Fact Sheet ● Answers what to do when cost or coverage blocks treatment; what the treatments are and how they work ● Journey stage Living With Disease OR Diagnosed ● Topic Work, school and money; Advocacy and policy ● Type Fact sheet ● What you do with it Print it ● Tier 2 ● Audience Patient ● Language English
Open the page and the fact sheet for Step Therapy: Knowledge = Empowerment Fact Sheet: https://www.aiarthritis.org/step-therapy
Vaccines: Knowledge = Empowerment Fact Sheet
What to ask your care team about vaccines when you are on a medicine that affects your immune system.
Vaccines: Knowledge = Empowerment Fact Sheet ● Answers what to do when cost or coverage blocks treatment; what to say, and to whom ● Journey stage Living With Disease OR Diagnosed ● Topic Work, school and money ● Type Fact sheet ● What you do with it Print it ● Tier 2 ● Audience Patient ● Language English
Open the page and the fact sheet for Vaccines: Knowledge = Empowerment Fact Sheet: https://www.aiarthritis.org/vaccines
What guides and tools are here?
The guides, tools, classes and programme pages that are not tied to one disease.
Ai Arthritis Disease List
The 22 autoimmune and autoinflammatory arthritis diseases we cover, each linking to its own page.
Ai Arthritis Disease List ● Answers what it is ● Journey stage Every step ● Topic Disease information ● Type Page ● What you do with it Read it ● Tier 1 ● Audience Patient ● Language English
Open the page for Ai Arthritis Disease List: https://www.aiarthritis.org/diseases
About Ai Arthritis Diseases
What makes a disease an Ai Arthritis disease, and how the autoimmune and autoinflammatory kinds differ.
About Ai Arthritis Diseases ● Answers what it is ● Journey stage Every step ● Topic Disease information ● Type Page ● What you do with it Read it ● Tier 1 ● Audience Patient ● Language English
Open the page for About Ai Arthritis Diseases: https://www.aiarthritis.org/about-aiarthritis-diseases
Ai Arthritis Disease Symptoms
The symptoms these diseases share, and the ones patients reported that published lists left out.
Ai Arthritis Disease Symptoms ● Answers what it is; what the research says ● Journey stage Undiagnosed/Mystery Patient ● Topic Disease information ● Type Page ● What you do with it Read it ● Tier 1 ● Audience Patient ● Language English
Open the page for Ai Arthritis Disease Symptoms: https://www.aiarthritis.org/aiarthritis-disease-symptoms
Mystery Patient Guide
A guide for the time before a diagnosis, built from what undiagnosed patients told us they needed.
Mystery Patient Guide ● Answers how it is diagnosed; what it is ● Journey stage Undiagnosed/Mystery Patient ● Topic Getting diagnosed ● Type Guide ● What you do with it Fill it in, and take it to an appointment ● Tier 1 ● Audience Patient ● Language English
Open the page for Mystery Patient Guide: https://www.aiarthritis.org/mysterypatientguide
Download Resources
The page that gathers the brochures, tools and printable resources a patient can download.
Download Resources ● Answers what it is ● Journey stage Every step ● Topic Disease information ● Type Page ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Open the page for Download Resources: https://www.aiarthritis.org/download-resources
Ai Arthritis Support Tool
A tool for a patient and the people supporting them to work out what help is wanted and who can give it.
Ai Arthritis Support Tool ● Answers what to do when cost or coverage blocks treatment ● Journey stage Living With Disease OR Diagnosed ● Topic Work, school and money ● Type Tool ● What you do with it Fill it in ● Tier 2 ● Audience Patient and care partner ● Language English
Open the page for Ai Arthritis Support Tool: https://www.aiarthritis.org/support
Juvenile Arthritis Health Visit Communication Aids
Communication aids for a juvenile idiopathic arthritis (JIA) appointment, made for families and their care team together.
Juvenile Arthritis Health Visit Communication Aids ● Answers what to say, and to whom; what I can do myself day to day ● Disease Juvenile Idiopathic Arthritis ● Journey stage Newly Diagnosed ● Topic Family, pregnancy and parenting; Talking to your care team ● Type Communication aid ● What you do with it Fill it in, and take it to an appointment ● Tier 1 ● Audience Patient and care partner ● Language English
Open the page for Juvenile Arthritis Health Visit Communication Aids: https://www.aiarthritis.org/JIACommunication
Knowledge = Empowerment Classroom
Peer-led classes, taught by patients, on how the rules behind your coverage work, with the patient videos and the Knowledge = Empowerment app.
Knowledge = Empowerment Classroom ● Answers what to do when cost or coverage blocks treatment ● Journey stage Living With Disease OR Diagnosed ● Topic Work, school and money ● Type Page ● What you do with it Read it, and watch ● Tier 1 ● Audience Patient ● Language English
Open the page for Knowledge = Empowerment Classroom: https://www.aiarthritis.org/knowledge-empowerment-classroom
Patient Explained Videos
Patients explaining coverage and policy issues in their own words, one video per topic.
Patient Explained Videos ● Answers what to do when cost or coverage blocks treatment; what it is ● Journey stage Living With Disease OR Diagnosed ● Topic Work, school and money; Advocacy and policy ● Type Video series ● What you do with it Watch ● Tier 2 ● Audience Patient ● Language English
Open the page for Patient Explained Videos: https://www.aiarthritis.org/k-e-patient-explained-videos
Ai Arthritis Voices 360 Podcast
Every episode of the Ai Arthritis Voices 360 Podcast, where patients talk through one issue at a time.
Ai Arthritis Voices 360 Podcast ● Answers how to take part ● Journey stage Every step ● Topic Getting involved with Ai Arthritis ● Type Podcast ● What you do with it Listen ● Tier 2 ● Audience Patient ● Language English
Open the page for Ai Arthritis Voices 360 Podcast: https://www.aiarthritis.org/podcast
Rheumy Rounds
The episodes where patients and rheumatologists work through the same question from both sides.
Rheumy Rounds ● Answers what to say, and to whom ● Journey stage Every step ● Topic Talking to your care team; Work, school and money ● Type Podcast ● What you do with it Listen ● Tier 2 ● Audience Patient ● Language English
Open the page for Rheumy Rounds: https://www.aiarthritis.org/rheumyrounds
Ai Arthritis Blog
Posts on living with these diseases, written and reviewed with the patient community.
Ai Arthritis Blog ● Answers what it feels like ● Journey stage Every step ● Topic Lived experience ● Type Blog ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Open the page for Ai Arthritis Blog: https://www.aiarthritis.org/blog
Clinical Trials
What taking part in a clinical trial involves, and what to ask before you agree to one.
Clinical Trials ● Answers what the research says ● Journey stage Living With Disease OR Diagnosed ● Topic Research and conferences ● Type Page ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Open the page for Clinical Trials: https://www.aiarthritis.org/clinicaltrials
CAR-T Cell Therapy
What CAR-T cell therapy is being studied for in these diseases, and where that work currently stands.
CAR-T Cell Therapy ● Answers what the treatments are and how they work ● Journey stage Living With Disease OR Diagnosed ● Topic Treatment and medication; Work, school and money ● Type Page ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Open the page for CAR-T Cell Therapy: https://www.aiarthritis.org/car-t-cell-therapy
Precision Medicine
What precision medicine means for treatment choices in Ai Arthritis diseases.
Precision Medicine ● Answers what the treatments are and how they work ● Journey stage Living With Disease OR Diagnosed ● Topic Treatment and medication ● Type Page ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Open the page for Precision Medicine: https://www.aiarthritis.org/precisionmedicine
Go With Us to Conferences
How patients join us at medical and research conferences, and what comes back from them.
Go With Us to Conferences ● Answers what the research says; how to take part ● Journey stage Every step ● Topic Research and conferences ● Type Page ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Open the page for Go With Us to Conferences: https://www.aiarthritis.org/conferences
Early Symptoms of Ai Arthritis Study
Our study in which people living with six Ai Arthritis diseases named their first symptoms, many of which were on no published list.
Early Symptoms of Ai Arthritis Study ● Answers what the research says; what it feels like ● Journey stage Undiagnosed/Mystery Patient ● Topic Research and conferences; Lived experience ● Type Research ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Open the page for Early Symptoms of Ai Arthritis Study: https://www.aiarthritis.org/Early-Symptoms-Study
Ethics of Step Therapy Investigation
Our investigation into step therapy and the questions it raises about how treatment decisions get made.
Ethics of Step Therapy Investigation ● Answers what the treatments are and how they work; what to do when cost or coverage blocks treatment ● Journey stage Living With Disease OR Diagnosed ● Topic Treatment and medication; Advocacy and policy ● Type Page ● What you do with it Read it ● Tier 3 ● Audience Patient ● Language English
Open the page for Ethics of Step Therapy Investigation: https://www.aiarthritis.org/ethics
Health Service Provider Resources
The materials we make for a clinic, including what a practice can order for its waiting room.
Health Service Provider Resources ● Answers what to say, and to whom ● Journey stage Every step ● Topic Talking to your care team ● Type Page ● What you do with it Read it ● Tier 2 ● Audience Clinician ● Language English
Open the page for Health Service Provider Resources: https://www.aiarthritis.org/HCP
Share Your Experience
Where anyone living with or alongside these diseases can share one part of their experience, privately.
Share Your Experience ● Answers what it feels like; how to take part ● Journey stage Every step ● Topic Lived experience ● Type Page ● What you do with it Fill it in ● Tier 1 ● Audience Patient and care partner ● Language English
Open the page for Share Your Experience: https://www.aiarthritis.org/share-your-experience
Join Ai Arthritis Voices
How patients take part in deciding what we work on, and what joining lets us bring to you.
Join Ai Arthritis Voices ● Answers what to do when cost or coverage blocks treatment; how to take part ● Journey stage Every step ● Topic Work, school and money; Getting involved with Ai Arthritis ● Type Page ● What you do with it Read it ● Tier 1 ● Audience Patient and care partner ● Language English
Open the page for Join Ai Arthritis Voices: https://www.aiarthritis.org/aiarthritisvoices
Interstitial Lung Disease
What interstitial lung disease is, how it shows up alongside an Ai Arthritis disease, and what to ask about breathing changes. It is one of the conditions we cover that is not itself one of the 22 Ai Arthritis diseases.
Interstitial Lung Disease covers conditions and terms also written as ILD.
Interstitial Lung Disease ● Answers how long it lasts and what to expect ● Disease Interstitial Lung Disease (associated condition) ● Journey stage Co-Existing Conditions ● Topic Co-existing conditions ● Type Page ● What you do with it Read it ● Tier 1 ● Audience Patient ● Language English
Open the page for Interstitial Lung Disease: https://www.aiarthritis.org/Interstitial_Lung_Disease_ILD
Macrophage Activation Syndrome
What macrophage activation syndrome is and why it is treated as an emergency, written for families and patients living with an Ai Arthritis disease. It is one of the conditions we cover that is not itself one of the 22 Ai Arthritis diseases.
Macrophage Activation Syndrome covers conditions and terms also written as MAS.
Macrophage Activation Syndrome ● Answers what it feels like ● Disease Macrophage Activation Syndrome (associated condition) ● Journey stage Co-Existing Conditions ● Topic Lived experience ● Type Page ● What you do with it Read it ● Tier 1 ● Audience Patient and care partner ● Language English
Open the page for Macrophage Activation Syndrome: https://www.aiarthritis.org/MAS
Immunoglobulin G4-Related Disease
What immunoglobulin G4-related disease (IgG4-RD) is, how it is recognised and what the diagnosis equation covers. It is one of the conditions we cover that is not itself one of the 22 Ai Arthritis diseases.
Immunoglobulin G4-Related Disease ● Answers what it is; how it is diagnosed ● Disease Immunoglobulin G4-Related Disease (associated condition) ● Journey stage Every step ● Topic Disease information ● Type Page ● What you do with it Read it ● Tier 1 ● Audience Patient ● Language English
Open the page for Immunoglobulin G4-Related Disease: https://www.aiarthritis.org/igg4-rd
Araiah's Friends
For people willing to share one part of their experience so it can be passed on to the next person who asks.
Araiah's Friends ● Answers what it feels like ● Journey stage Every step ● Topic Lived experience ● Type Page ● What you do with it Fill it in ● Tier 1 ● Audience Patient and care partner ● Language English
Open the page for Araiah's Friends: https://www.aiarthritis.org/araiahs-friends
What does the blog cover?
Posts written and reviewed with the patient community. Each carries the address it serves at today.
RA Flare Symptoms: What a Flare-Up Really Feels Like
When your joints suddenly hurt more and fatigue floors you, that's an RA flare. Learn the common symptoms, what triggers them, and how to get through one.
RA Flare Symptoms: What a Flare-Up Really Feels Like ● Answers what it feels like; how long it lasts and what to expect ● Journey stage Every step ● Topic Symptoms and flares ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for RA Flare Symptoms: What a Flare-Up Really Feels Like: https://www.aiarthritis.org/ra-flares
Recognizing a Flare: Early Signs You Shouldn't Ignore
Joint pain, low-grade fever, rashes, digestive trouble, eye problems. Learn the early signs that you may be heading into a flare, and what to do about it.
Recognizing a Flare: Early Signs You Shouldn't Ignore ● Answers how long it lasts and what to expect ● Journey stage Every step ● Topic Symptoms and flares ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Recognizing a Flare: Early Signs You Shouldn't Ignore: https://www.aiarthritis.org/recognizing-a-flare
The 4 Types of Chronic Pain in Arthritis, Explained
Chronic pain is not one thing. Learn the four types, why many patients live with more than one at once, and which treatments the evidence actually supports.
The 4 Types of Chronic Pain in Arthritis, Explained ● Answers how long it lasts and what to expect; what it is ● Journey stage Every step ● Topic Symptoms and flares ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for The 4 Types of Chronic Pain in Arthritis, Explained: https://www.aiarthritis.org/understanding-pain
Feeling Alone With Chronic Illness: You Are Not Alone
Isolation is one of the least discussed parts of autoimmune arthritis. Why it happens, what other patients did, and where to find people who understand.
Feeling Alone With Chronic Illness: You Are Not Alone ● Answers how it is diagnosed ● Journey stage Every step ● Topic Getting diagnosed ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Feeling Alone With Chronic Illness: You Are Not Alone: https://www.aiarthritis.org/shifting-identity
How to Manage Fatigue and Brain Fog With Ai Arthritis
When your energy runs out before the day does. Learn spoon theory, sleep routines, and gentle movement strategies from patients who live with it daily.
How to Manage Fatigue and Brain Fog With Ai Arthritis ● Answers how long it lasts and what to expect; what I can do myself day to day ● Journey stage Every step ● Topic Symptoms and flares ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for How to Manage Fatigue and Brain Fog With Ai Arthritis : https://www.aiarthritis.org/fatigue-brainfog
Brain Fog and Sleep in Ai Arthritis : The New Research
Researchers confirmed brain fog is real, not stress or distraction, and that sleep apnea is more common in RA. What ACR 2025 found about both symptoms.
Brain Fog and Sleep in Ai Arthritis : The New Research ● Answers how long it lasts and what to expect; what the research says ● Journey stage Every step ● Topic Symptoms and flares ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Brain Fog and Sleep in Ai Arthritis : The New Research: https://www.aiarthritis.org/brain-fog-and-sleep
Staying Productive With Brain Fog: What Actually Helps
Manage energy instead of time, use memory aids, and work in your sharpest hours. Brain fog strategies from patients who live with cognitive dysfunction.
Staying Productive With Brain Fog: What Actually Helps ● Answers how long it lasts and what to expect ● Journey stage Every step ● Topic Symptoms and flares ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Staying Productive With Brain Fog: What Actually Helps: https://www.aiarthritis.org/productivitywithbrainfog
How to Describe Your Pain to a Doctor: A Patient Guide
Getting your pain taken seriously starts with how you describe it. Learn to explain the location, type, timing, triggers, and impact on your daily life.
How to Describe Your Pain to a Doctor: A Patient Guide ● Answers how long it lasts and what to expect; what it is ● Journey stage Every step ● Topic Symptoms and flares ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for How to Describe Your Pain to a Doctor: A Patient Guide: https://www.aiarthritis.org/how-to-describe-pain
Managing Brain Fog in Rheumatic Disease: What Helps
Cognitive dysfunction often peaks during flares or before infusions. Learn what contributes to brain fog and which strategies patients find helpful.
Managing Brain Fog in Rheumatic Disease: What Helps ● Answers how long it lasts and what to expect; what the treatments are and how they work ● Journey stage Every step ● Topic Symptoms and flares ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Managing Brain Fog in Rheumatic Disease: What Helps: https://www.aiarthritis.org/blog-brainfog
Why Documenting Your Symptoms Changes Your Care Plan
Tracking symptoms, flare patterns, and triggers helps doctors reach a diagnosis faster and adjust treatment. Plus free Ai Arthritis symptom tracker tools.
Why Documenting Your Symptoms Changes Your Care Plan ● Answers how long it lasts and what to expect; how it is diagnosed ● Journey stage Every step ● Topic Symptoms and flares ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Why Documenting Your Symptoms Changes Your Care Plan: https://www.aiarthritis.org/documenting-symptoms-blog
Rheumatoid Arthritis Self-Management: Opioids and Apps
This EULAR 2024 recap on rheumatoid arthritis (RA) pain and fatigue self-management covers opioid trends and new symptom-tracking apps for pain and mood.
Rheumatoid Arthritis Self-Management: Opioids and Apps ● Answers how long it lasts and what to expect; what the research says ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Symptoms and flares ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Rheumatoid Arthritis Self-Management: Opioids and Apps: https://www.aiarthritis.org/fatigue-2
What Is Undifferentiated Disease (UD)? Symptoms & Types
Undifferentiated disease means your symptoms suggest an autoimmune condition without fitting one diagnosis. Learn the four types and whether UD can evolve.
What Is Undifferentiated Disease (UD)? Symptoms & Types covers conditions and terms also written as undifferentiated connective tissue disease or UCTD.
What Is Undifferentiated Disease (UD)? Symptoms & Types ● Answers what it is; how it is diagnosed ● Disease Undifferentiated Disease ● Journey stage Every step ● Topic Disease information ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for What Is Undifferentiated Disease (UD)? Symptoms & Types: https://www.aiarthritis.org/what-is-undifferentiated-disease-ud
Antisynthetase Syndrome: A Patient's Guide to What to Expect
Antisynthetase syndrome (ASyS) can be overwhelming after diagnosis. This guide covers what to expect, questions for your care team, and where to find support.
Antisynthetase Syndrome: A Patient's Guide to What to Expect covers conditions and terms also written as anti-synthetase syndrome.
Antisynthetase Syndrome: A Patient's Guide to What to Expect ● Answers what it is; how it is diagnosed ● Disease Antisynthetase Syndrome ● Journey stage Every step ● Topic Disease information ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Antisynthetase Syndrome: A Patient's Guide to What to Expect: https://www.aiarthritis.org/antisynthetase-syndrome-blog
Understanding Mixed Connective Tissue Disease (MCTD)
Mixed Connective Tissue Disease (MCTD) combines features of lupus, scleroderma, and myositis in one syndrome. Learn the symptoms, diagnosis, and treatment.
Understanding Mixed Connective Tissue Disease (MCTD) covers conditions and terms also written as SLE or systemic lupus erythematosus.
Understanding Mixed Connective Tissue Disease (MCTD) ● Answers what it is; how it is diagnosed ● Disease Lupus; Mixed Connective Tissue Disease ● Journey stage Every step ● Topic Disease information ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Understanding Mixed Connective Tissue Disease (MCTD): https://www.aiarthritis.org/understanding-mixed-connective-tissue-disease-mctd
Which Ai Arthritis Diseases Count as Rare Diseases?
Whether a disease counts as rare depends on where you live. See how common each Ai Arthritis disease is, from CAPS at 1 in a million to RA at 1 percent.
Which Ai Arthritis Diseases Count as Rare Diseases? ● Answers what it is ● Disease Cryopyrin-Associated Periodic Syndromes ● Journey stage Every step ● Topic Disease information ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Which Ai Arthritis Diseases Count as Rare Diseases?: https://www.aiarthritis.org/rare-aiarthritis
What Is Enthesitis? Tendon Pain in Spondyloarthritis
Enthesitis is inflammation where tendons and ligaments attach to bone, common in spondyloarthritis. Learn what causes it and what new research reveals.
What Is Enthesitis? Tendon Pain in Spondyloarthritis ● Answers what it is; what the research says ● Journey stage Every step ● Topic Disease information ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for What Is Enthesitis? Tendon Pain in Spondyloarthritis: https://www.aiarthritis.org/understanding-enthesitis
What Is Palindromic Rheumatism? Symptoms and Causes
Palindromic rheumatism causes sudden joint pain and swelling that resolves between attacks, with no lasting damage. Learn the symptoms and treatment options.
What Is Palindromic Rheumatism? Symptoms and Causes ● Answers what it is; how long it lasts and what to expect ● Disease Palindromic Rheumatism ● Journey stage Every step ● Topic Disease information ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for What Is Palindromic Rheumatism? Symptoms and Causes: https://www.aiarthritis.org/palindromic-rheumatism-blog
Understanding IgG4-Related Disease: Why It's Missed
High IgG4 levels don't always mean active disease, and 60% of suspected cases were misdiagnosed on biopsy alone. Learn why IgG4-RD is so hard to diagnose.
Understanding IgG4-Related Disease: Why It's Missed ● Answers what it is; how it is diagnosed ● Disease Immunoglobulin G4-Related Disease (associated condition) ● Journey stage Every step ● Topic Disease information ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Understanding IgG4-Related Disease: Why It's Missed: https://www.aiarthritis.org/understanding-igg4
Understanding VEXAS Syndrome: Who It Affects and Why
About 99% of VEXAS patients are men over 50, and the mutation is acquired later in life, not inherited. Learn why this newly identified condition matters.
Understanding VEXAS Syndrome: Who It Affects and Why ● Answers what it is ● Disease VEXAS Syndrome ● Journey stage Every step ● Topic Disease information ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Understanding VEXAS Syndrome: Who It Affects and Why: https://www.aiarthritis.org/understanding-vexas
What's New in Still's Disease: EULAR 2025 Takeaways
Still's disease is now described as polygenic, involving both innate and adaptive immunity. That helps explain why it looks so different between patients.
What's New in Still's Disease: EULAR 2025 Takeaways covers conditions and terms also written as Stills Disease, adult-onset Still's disease, AOSD, systemic juvenile idiopathic arthritis or sJIA.
What's New in Still's Disease: EULAR 2025 Takeaways ● Answers what it is; what the research says ● Disease Still's Disease ● Journey stage Every step ● Topic Disease information ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for What's New in Still's Disease: EULAR 2025 Takeaways: https://www.aiarthritis.org/whats-new-in-stills
Autoinflammatory vs. Autoimmune Arthritis: Key Differences
Autoinflammatory and autoimmune arthritis both cause joint inflammation, but the immune systems behind them differ. See the distinctions, with real examples.
Autoinflammatory vs. Autoimmune Arthritis: Key Differences ● Answers what it is ● Journey stage Every step ● Topic Disease information ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Autoinflammatory vs. Autoimmune Arthritis: Key Differences: https://www.aiarthritis.org/autoinflammatory-arthritis-vs-autoimmune-arthritis
Lupus Nephritis: What Patients Should Know About Kidney Risk
Lupus nephritis, kidney inflammation in up to 60 percent of lupus patients, is the focus of new rheumatology guidance on early testing and shared decisions.
Lupus Nephritis: What Patients Should Know About Kidney Risk covers conditions and terms also written as SLE or systemic lupus erythematosus.
Lupus Nephritis: What Patients Should Know About Kidney Risk ● Answers what it is; how it is diagnosed ● Disease Lupus ● Journey stage Every step ● Topic Disease information ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Lupus Nephritis: What Patients Should Know About Kidney Risk: https://www.aiarthritis.org/whats-new-in-lupus
Muckle-Wells Syndrome: Fever, Rash and Hearing Loss
Muckle-Wells syndrome is a rare inherited disorder causing recurring fever, hives, joint pain, and progressive hearing loss. Learn the symptoms and treatments.
Muckle-Wells Syndrome: Fever, Rash and Hearing Loss covers conditions and terms also written as MWS.
Muckle-Wells Syndrome: Fever, Rash and Hearing Loss ● Answers what it is; what the treatments are and how they work ● Disease Muckle-Wells Syndrome (a form of cryopyrin-associated periodic syndromes) ● Journey stage Every step ● Topic Disease information ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Muckle-Wells Syndrome: Fever, Rash and Hearing Loss: https://www.aiarthritis.org/understanding-muckle-wells-syndrome-mws
What Is CNO? Bone Inflammation Without an Infection
CNO and CRMO cause bone pain and swelling without any infection, mostly in children and teens. Learn the symptoms, how they're diagnosed, and treatments.
What Is CNO? Bone Inflammation Without an Infection ● Answers what it is; how it is diagnosed ● Disease Chronic Recurrent Multifocal Osteomyelitis ● Journey stage Every step ● Topic Disease information ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for What Is CNO? Bone Inflammation Without an Infection: https://www.aiarthritis.org/cno
Familial Mediterranean Fever (FMF): Symptoms & Causes
Familial Mediterranean Fever causes recurring fevers with pain in the abdomen, chest, or joints. Learn who it affects, how it's found, and treatment options.
Familial Mediterranean Fever (FMF): Symptoms & Causes ● Answers what it is; what the treatments are and how they work ● Disease Familial Mediterranean Fever ● Journey stage Every step ● Topic Disease information ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Familial Mediterranean Fever (FMF): Symptoms & Causes: https://www.aiarthritis.org/familial-mediterranean-fever-fmf-a-comprehensive-overview
What Is CAPS? The Three Cryopyrin-Associated Syndromes
CAPS covers three rare inherited conditions: FCAS, Muckle-Wells syndrome, and NOMID. All stem from NLRP3 gene changes. Learn how their symptoms differ.
What Is CAPS? The Three Cryopyrin-Associated Syndromes ● Answers what it is ● Disease Cryopyrin-Associated Periodic Syndromes; Familial Cold Autoinflammatory Syndrome (a form of cryopyrin-associated periodic syndromes) ● Journey stage Every step ● Topic Disease information ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for What Is CAPS? The Three Cryopyrin-Associated Syndromes: https://www.aiarthritis.org/understanding-cryopyrin-associated-periodic-syndromes-caps
Relapsing Polychondritis: Symptoms and Diagnosis Guide
Relapsing polychondritis attacks cartilage in the ears, nose, and airways, and is often mistaken for infection. Learn the symptoms and why it's missed.
Relapsing Polychondritis: Symptoms and Diagnosis Guide ● Answers what it is; how it is diagnosed ● Disease Relapsing Polychondritis ● Journey stage Every step ● Topic Disease information ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Relapsing Polychondritis: Symptoms and Diagnosis Guide: https://www.aiarthritis.org/relapsing-polychondritis-blog
Schnitzler Syndrome: A Rare Rash and Fever Disorder
Schnitzler syndrome combines a chronic hive-like rash with fever and bone pain. With only about 300 known cases, it's often mistaken for chronic urticaria.
Schnitzler Syndrome: A Rare Rash and Fever Disorder ● Answers what it is ● Disease Schnitzler Syndrome ● Journey stage Every step ● Topic Disease information ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Schnitzler Syndrome: A Rare Rash and Fever Disorder: https://www.aiarthritis.org/highlighting-schnitzler-syndrome
Hyper-IgD Syndrome (HIDS): Symptoms and Diagnosis Guide
HIDS is a rare inherited condition causing recurring fevers from early childhood, caused by MVK gene changes. Learn the symptoms and how it's diagnosed.
Hyper-IgD Syndrome (HIDS): Symptoms and Diagnosis Guide covers conditions and terms also written as mevalonate kinase deficiency.
Hyper-IgD Syndrome (HIDS): Symptoms and Diagnosis Guide ● Answers what it is; how it is diagnosed ● Disease Hyper-IgD Syndrome ● Journey stage Every step ● Topic Disease information ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Hyper-IgD Syndrome (HIDS): Symptoms and Diagnosis Guide: https://www.aiarthritis.org/hyper-igd-syndrome-hids-a-comprehensive-overview
What Is CINCA/NOMID? The Most Severe CAPS Condition
CINCA, also called NOMID, is a rare autoinflammatory disease that begins in infancy, caused by NLRP3 gene changes. Learn the symptoms and treatment options.
What Is CINCA/NOMID? The Most Severe CAPS Condition ● Answers what it is; what the treatments are and how they work ● Disease Cryopyrin-Associated Periodic Syndromes; Neonatal-Onset Multisystem Inflammatory Disease (a form of cryopyrin-associated periodic syndromes) ● Journey stage Every step ● Topic Disease information ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for What Is CINCA/NOMID? The Most Severe CAPS Condition: https://www.aiarthritis.org/cinca-nomid
Familial Cold Autoinflammatory Syndrome (FCAS) Guide
FCAS causes hives, fever, and joint pain within hours of cold exposure, usually starting in infancy. Learn the symptoms and how this CAPS condition is treated.
Familial Cold Autoinflammatory Syndrome (FCAS) Guide ● Answers what it is ● Disease Cryopyrin-Associated Periodic Syndromes; Familial Cold Autoinflammatory Syndrome (a form of cryopyrin-associated periodic syndromes) ● Journey stage Every step ● Topic Disease information ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Familial Cold Autoinflammatory Syndrome (FCAS) Guide: https://www.aiarthritis.org/fcas
Early Symptoms of Autoimmune Disease: What to Watch For
Early autoimmune symptoms are easy to dismiss, and easy for doctors to dismiss too. Learn which ones to take seriously and when to push harder for answers.
Early Symptoms of Autoimmune Disease: What to Watch For ● Answers how it is diagnosed ● Journey stage Every step ● Topic Getting diagnosed ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Early Symptoms of Autoimmune Disease: What to Watch For: https://www.aiarthritis.org/early-symptoms-blog
The Long Road to Diagnosis: Why Persistence Pays Off
If you have been told it's fibromyalgia, anxiety, or chronic fatigue and it still doesn't fit, here is how to seek a second opinion and keep on pushing.
The Long Road to Diagnosis: Why Persistence Pays Off ● Answers how it is diagnosed ● Journey stage Every step ● Topic Getting diagnosed ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for The Long Road to Diagnosis: Why Persistence Pays Off: https://www.aiarthritis.org/longroad
Ai Arthritis Glossary: Terms for the Newly Diagnosed
Just diagnosed and lost in the acronyms? A plain-language glossary of the terms, tests, and abbreviations you will hear at your rheumatology appointments.
Ai Arthritis Glossary: Terms for the Newly Diagnosed ● Answers how it is diagnosed; what to say, and to whom ● Journey stage Newly Diagnosed ● Topic Getting diagnosed ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Ai Arthritis Glossary: Terms for the Newly Diagnosed: https://www.aiarthritis.org/glossary-of-terms
Medical Gaslighting: What to Do When You're Dismissed
A nurse who became a dismissed patient shares how to recognize medical gaslighting, push back on it, and find a provider who will actually listen to you.
Medical Gaslighting: What to Do When You're Dismissed ● Answers how it is diagnosed ● Journey stage Every step ● Topic Getting diagnosed ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Medical Gaslighting: What to Do When You're Dismissed: https://www.aiarthritis.org/medical-gaslighting-rh
The Emotional Rollercoaster of Being Undiagnosed Now
Your symptoms are real even without a diagnosis. Coping strategies, self-care, and self-advocacy for the long wait before anyone finally gives you answers.
The Emotional Rollercoaster of Being Undiagnosed Now ● Answers how it is diagnosed; what I can do myself day to day ● Journey stage Undiagnosed/Mystery Patient ● Topic Getting diagnosed ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for The Emotional Rollercoaster of Being Undiagnosed Now: https://www.aiarthritis.org/emotional-rollercoaster
What Are Clinical Trials? A Plain Guide for Patients
Every standard treatment was once a clinical trial. Learn what trials are, the four phases they move through, and what taking part in one actually involves.
What Are Clinical Trials? A Plain Guide for Patients ● Answers what it is; how it is diagnosed ● Journey stage Every step ● Topic Getting diagnosed ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for What Are Clinical Trials? A Plain Guide for Patients: https://www.aiarthritis.org/what-are-clinical-trials
Newly Diagnosed with Autoimmune Arthritis: What to Know
Ai Arthritis patients advise the newly diagnosed with autoimmune arthritis to find a trusted rheumatologist (arthritis specialist) and connect with others.
Newly Diagnosed with Autoimmune Arthritis: What to Know ● Answers how it is diagnosed ● Journey stage Newly Diagnosed ● Topic Getting diagnosed ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Newly Diagnosed with Autoimmune Arthritis: What to Know: https://www.aiarthritis.org/just-diagnosed
Biomarkers Explained: Testing for Ai Arthritis Diagnosis
Biomarker testing helps diagnose and monitor Ai Arthritis diseases, but a negative test doesn't rule one out. See how doctors use biomarkers alongside symptoms.
Biomarkers Explained: Testing for Ai Arthritis Diagnosis ● Answers how it is diagnosed; what it is ● Journey stage Every step ● Topic Getting diagnosed ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Biomarkers Explained: Testing for Ai Arthritis Diagnosis: https://www.aiarthritis.org/decoding-biomarkers
Genetics and Ai Arthritis : How Your Risk Is Inherited
Genetics can raise your risk for Ai Arthritis diseases, but it's rarely genes alone. Learn how genetic and environmental factors combine to shape that risk.
Genetics and Ai Arthritis : How Your Risk Is Inherited ● Answers how it is diagnosed ● Journey stage Every step ● Topic Getting diagnosed ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Genetics and Ai Arthritis : How Your Risk Is Inherited: https://www.aiarthritis.org/-genetics-blog
Sjögren's Syndrome Diagnosis: One Patient's Advocacy Journey
A physician assistant describes her own Sjögren's syndrome diagnosis, which then took 7 to 10 years on average, and the medical gaslighting she faced.
Sjögren's Syndrome Diagnosis: One Patient's Advocacy Journey covers conditions and terms also written as Sjogren's Disease, Sjogrens or Sjogren's syndrome.
Sjögren's Syndrome Diagnosis: One Patient's Advocacy Journey ● Answers how it is diagnosed ● Disease Sjögren's Disease ● Journey stage Every step ● Topic Getting diagnosed ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Sjögren's Syndrome Diagnosis: One Patient's Advocacy Journey: https://www.aiarthritis.org/diagnosis-advocacy
Tapering Medications: How and When to Reduce Your Dose
Once you are in remission, you may be able to lower your dose safely. Learn how tapering works, what it protects you from, and how to go about doing it.
Tapering Medications: How and When to Reduce Your Dose ● Answers what the treatments are and how they work; how long it lasts and what to expect ● Journey stage Remission ● Topic Treatment and medication ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Tapering Medications: How and When to Reduce Your Dose: https://www.aiarthritis.org/tapering-medications
3 CAR-T Therapy Studies Every Patient Should Know About
New CAR-T research shows lasting remission in autoimmune disease, including systemic sclerosis. See what three studies found and what it means for patients.
3 CAR-T Therapy Studies Every Patient Should Know About covers conditions and terms also written as scleroderma or SSc.
3 CAR-T Therapy Studies Every Patient Should Know About ● Answers what the treatments are and how they work; what the research says ● Disease Systemic Sclerosis (Scleroderma) ● Journey stage Remission ● Topic Treatment and medication ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for 3 CAR-T Therapy Studies Every Patient Should Know About: https://www.aiarthritis.org/-car-t-studies
Could CAR-T Cell Therapy Reset Your Immune System?
One lupus patient has stayed in drug-free remission four years after a single CAR-T treatment. See what EULAR 2025 revealed about off-the-shelf cell therapy.
Could CAR-T Cell Therapy Reset Your Immune System? covers conditions and terms also written as SLE or systemic lupus erythematosus.
Could CAR-T Cell Therapy Reset Your Immune System? ● Answers what the treatments are and how they work; what the research says ● Disease Lupus ● Journey stage Remission ● Topic Treatment and medication ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Could CAR-T Cell Therapy Reset Your Immune System?: https://www.aiarthritis.org/car-t-eular2025
What Is Remission? How to Achieve It With Ai Arthritis
Remission means your Ai Arthritis disease is under control. Early diagnosis, the right treatment plan, close monitoring, and self-advocacy improve your odds.
What Is Remission? How to Achieve It With Ai Arthritis ● Answers what it is; what the treatments are and how they work ● Journey stage Remission ● Topic Treatment and medication ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for What Is Remission? How to Achieve It With Ai Arthritis : https://www.aiarthritis.org/what-is-remission
Cannabis and Ai Arthritis : What Patients Need to Know
Many patients use cannabis for pain, sleep, and anxiety long before discussing it with a doctor. Learn what's known about cannabis and autoimmune arthritis.
Cannabis and Ai Arthritis : What Patients Need to Know ● Answers what the treatments are and how they work; what I can do myself day to day ● Journey stage Every step ● Topic Treatment and medication ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Cannabis and Ai Arthritis : What Patients Need to Know: https://www.aiarthritis.org/cannabis-and-aiarthritis
New RA Biomarkers: Hope for Seronegative Patients?
A biomarker called anti-RA 33 was found in 42% of patients who later developed seronegative RA, and it predicts who responds best to methotrexate treatment.
New RA Biomarkers: Hope for Seronegative Patients? ● Answers what the treatments are and how they work; how it is diagnosed ● Journey stage Every step ● Topic Treatment and medication ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for New RA Biomarkers: Hope for Seronegative Patients?: https://www.aiarthritis.org/new-biomarkers-ra
Early Treatment for RA: What the Debate Means for You
Biologics delayed RA onset by up to five years in trials, but only about 30% respond well to methotrexate alone. See both sides of the early treatment debate.
Early Treatment for RA: What the Debate Means for You ● Answers what the treatments are and how they work; what the research says ● Journey stage Every step ● Topic Treatment and medication ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Early Treatment for RA: What the Debate Means for You: https://www.aiarthritis.org/early-treatment-ra
Cell Therapy for Autoimmune Disease: A New Horizon
Nearly all patients in cell therapy studies reached remission, some sustained over five years. Learn how CAR-T and donor cell therapy differ for patients.
Cell Therapy for Autoimmune Disease: A New Horizon ● Answers what the treatments are and how they work; what the research says ● Journey stage Remission ● Topic Treatment and medication ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Cell Therapy for Autoimmune Disease: A New Horizon: https://www.aiarthritis.org/cell-therapy
Cannabis for Arthritis: Inside the EULAR 2025 Debate
Evidence on cannabis for chronic pain is mixed, and some CBD products contain more THC than the label says. What both sides argued at EULAR 2025.
Cannabis for Arthritis: Inside the EULAR 2025 Debate ● Answers what the treatments are and how they work; what the research says ● Journey stage Every step ● Topic Treatment and medication ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Cannabis for Arthritis: Inside the EULAR 2025 Debate: https://www.aiarthritis.org/cannabis-and-aiarthritis2
Difficult-to-Treat RA: What New Research Is Showing
Under 60% of difficult-to-treat RA patients show clear inflammation on scans, which is why so many feel dismissed. What the research says about options.
Difficult-to-Treat RA: What New Research Is Showing ● Answers what the treatments are and how they work; what the research says ● Journey stage Every step ● Topic Treatment and medication ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Difficult-to-Treat RA: What New Research Is Showing: https://www.aiarthritis.org/difficult-to-treat
Why Sticking to a Medication Schedule Is So Hard Now
Specialty pharmacy delays, insurance hurdles, and plain forgetfulness all derail medication routines. The community shares what gets in the way and what helps.
Why Sticking to a Medication Schedule Is So Hard Now ● Answers what the treatments are and how they work; what to do when cost or coverage blocks treatment ● Journey stage Every step ● Topic Treatment and medication ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Why Sticking to a Medication Schedule Is So Hard Now: https://www.aiarthritis.org/adherence
Co-Existing Conditions With Ai Arthritis : What to Know
An Ai Arthritis disease raises your risk of other conditions. Learn which ones are most common, what to watch for, and when to raise them with your doctor.
Co-Existing Conditions With Ai Arthritis : What to Know ● Answers how long it lasts and what to expect ● Journey stage Every step ● Topic Co-existing conditions ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Co-Existing Conditions With Ai Arthritis : What to Know: https://www.aiarthritis.org/co-existing-conditions-
World IBD Day: The Crohn's Disease Joint Pain Link
Up to 25% of people with Crohn's disease also experience joint pain. Learn how IBD inflammation reaches beyond the gut and why coordinated care matters.
World IBD Day: The Crohn's Disease Joint Pain Link covers conditions and terms also written as Crohns or inflammatory bowel disease.
World IBD Day: The Crohn's Disease Joint Pain Link ● Answers how long it lasts and what to expect ● Disease Crohn's Disease ● Journey stage Every step ● Topic Co-existing conditions ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for World IBD Day: The Crohn's Disease Joint Pain Link: https://www.aiarthritis.org/world-ibd-day
Common Co-Existing Conditions With Ai Arthritis Disease
Ai Arthritis diseases rarely travel alone. Learn which co-existing conditions are most common, what to watch for, and when to raise them with your doctor.
Common Co-Existing Conditions With Ai Arthritis Disease ● Answers how long it lasts and what to expect; what I can do myself day to day ● Journey stage Every step ● Topic Co-existing conditions ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Common Co-Existing Conditions With Ai Arthritis Disease: https://www.aiarthritis.org/co-existing-conditions
Interstitial Lung Disease (ILD): A Patient Overview
ILD covers over 200 conditions that scar lung tissue and make breathing hard. Learn the symptoms and which Ai Arthritis diseases raise your risk of it.
Interstitial Lung Disease (ILD): A Patient Overview ● Answers how long it lasts and what to expect; what it is ● Disease Interstitial Lung Disease (associated condition) ● Journey stage Every step ● Topic Co-existing conditions ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Interstitial Lung Disease (ILD): A Patient Overview: https://www.aiarthritis.org/ild-overview
Living With Interstitial Lung Disease: A Patient Story
Her doctor heard nothing through the stethoscope. A spirometer found 75% lung capacity. Read how persistence led to an interstitial lung disease diagnosis.
Living With Interstitial Lung Disease: A Patient Story covers conditions and terms also written as ILD.
Living With Interstitial Lung Disease: A Patient Story ● Answers what it feels like; how long it lasts and what to expect ● Disease Interstitial Lung Disease (associated condition) ● Journey stage Every step ● Topic Co-existing conditions ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Living With Interstitial Lung Disease: A Patient Story: https://www.aiarthritis.org/matter
Rheumatoid Arthritis and Lung Disease: New Research
Rheumatology research on rheumatoid arthritis and lung disease found early treatment may delay onset, plus a model predicting interstitial lung disease risk.
Rheumatoid Arthritis and Lung Disease: New Research covers conditions and terms also written as ILD or RA.
Rheumatoid Arthritis and Lung Disease: New Research ● Answers how long it lasts and what to expect; what the research says ● Disease Interstitial Lung Disease (associated condition); Rheumatoid Arthritis ● Journey stage Every step ● Topic Co-existing conditions ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Rheumatoid Arthritis and Lung Disease: New Research: https://www.aiarthritis.org/ra-and-lung-disease
Interstitial Lung Disease (ILD): Coping After Diagnosis
Denae Cedar, a dietitian living with interstitial lung disease (ILD), shares how to cope after diagnosis, including finding a therapist and support network.
Interstitial Lung Disease (ILD): Coping After Diagnosis ● Answers how long it lasts and what to expect; how it is diagnosed ● Disease Interstitial Lung Disease (associated condition) ● Journey stage Care Partners ● Topic Co-existing conditions ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Interstitial Lung Disease (ILD): Coping After Diagnosis: https://www.aiarthritis.org/ild-perspective
Autoimmune Disease and Heart Health: What Patients Need
Autoimmune disease and heart health are linked; chronic inflammation raises pericarditis and myocarditis risk, inflammation of the heart lining and muscle.
Autoimmune Disease and Heart Health: What Patients Need ● Answers how long it lasts and what to expect ● Journey stage Every step ● Topic Co-existing conditions ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Autoimmune Disease and Heart Health: What Patients Need: https://www.aiarthritis.org/prioritize-heart-health
5 Anti-Inflammatory Breakfast Ideas (Quick + Easy)
Five easy, budget-friendly breakfasts built on anti-inflammatory ingredients, for National Nutrition Month.
5 Anti-Inflammatory Breakfast Ideas (Quick + Easy) ● Answers what I can do myself day to day ● Journey stage Every step ● Topic Food and nutrition ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for 5 Anti-Inflammatory Breakfast Ideas (Quick + Easy): https://www.aiarthritis.org/breakfast5
5 Anti-Inflammatory Lunch Ideas for Your Busy Days
Five simple anti-inflammatory lunches you can prep ahead, built for days when joint pain and fatigue make cooking hard. No special ingredients needed.
5 Anti-Inflammatory Lunch Ideas for Your Busy Days ● Answers what I can do myself day to day ● Journey stage Every step ● Topic Food and nutrition ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for 5 Anti-Inflammatory Lunch Ideas for Your Busy Days: https://www.aiarthritis.org/lunches
Staying Active With Autoimmune Arthritis: Safe Tips
Exercise can ease Ai Arthritis pain and even improve how well your medication works. Find safe activity tips for adults and kids with autoimmune arthritis.
Staying Active With Autoimmune Arthritis: Safe Tips ● Answers what I can do myself day to day; what the treatments are and how they work ● Journey stage Every step ● Topic Food and nutrition ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Staying Active With Autoimmune Arthritis: Safe Tips: https://www.aiarthritis.org/blog/staying-active
5 Anti-Inflammatory Dinners That Are Easy on Budget
Five budget-friendly anti-inflammatory dinners for National Nutrition Month, built for nights when Ai Arthritis pain and fatigue limit your energy levels.
5 Anti-Inflammatory Dinners That Are Easy on Budget ● Answers what I can do myself day to day ● Journey stage Every step ● Topic Food and nutrition ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for 5 Anti-Inflammatory Dinners That Are Easy on Budget: https://www.aiarthritis.org/dinners5
Healthy Eating With Ai Arthritis : Simple Nutrition Tips
Cooking is harder with joint pain, fatigue, and brain fog. Find anti-inflammatory foods and meal prep strategies that work on your most difficult days.
Healthy Eating With Ai Arthritis : Simple Nutrition Tips ● Answers what I can do myself day to day ● Journey stage Every step ● Topic Food and nutrition ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Healthy Eating With Ai Arthritis : Simple Nutrition Tips: https://www.aiarthritis.org/nutrition5
What Stress Does to My Ai Arthritis Disease Symptoms
Stress can push me straight into a flare. A patient shares how she manages finances, guilt, and pacing while living with autoimmune arthritis on disability.
What Stress Does to My Ai Arthritis Disease Symptoms ● Answers what I can do myself day to day; how long it lasts and what to expect ● Journey stage Every step ● Topic Food and nutrition ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for What Stress Does to My Ai Arthritis Disease Symptoms: https://www.aiarthritis.org/stress
Nutrition Strategies for Managing Ai Arthritis Disease
Anti-inflammatory eating, 7 to 9 hours of sleep, and stress management all lower inflammation. Practical nutrition strategies for National Nutrition Month.
Nutrition Strategies for Managing Ai Arthritis Disease ● Answers what I can do myself day to day ● Journey stage Every step ● Topic Food and nutrition ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Nutrition Strategies for Managing Ai Arthritis Disease: https://www.aiarthritis.org/nutrition-month
Nutrition, the Microbiome, and Inflammatory Arthritis
Omega-3s improved pain and fatigue in RA studies, and 2,000 IU of vitamin D daily cut autoimmune disease risk by 22%. What EULAR 2025 found about diet.
Nutrition, the Microbiome, and Inflammatory Arthritis ● Answers what I can do myself day to day; what the research says ● Journey stage Every step ● Topic Food and nutrition ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Nutrition, the Microbiome, and Inflammatory Arthritis: https://www.aiarthritis.org/nutrition-eular2025
Lifestyle Changes That Support Ai Arthritis Management
Medication does the heavy lifting, but nutrition, tailored exercise, and stress reduction meaningfully support long-term health with Ai Arthritis disease.
Lifestyle Changes That Support Ai Arthritis Management ● Answers what I can do myself day to day; how long it lasts and what to expect ● Journey stage Every step ● Topic Food and nutrition ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Lifestyle Changes That Support Ai Arthritis Management: https://www.aiarthritis.org/lifestyle-modifications
Balancing Activity and Rest With Ai Arthritis Disease
Do too much and you flare, rest too much and you stiffen up. Learn how to structure your day, and how to spot when your routine needs to change again.
Balancing Activity and Rest With Ai Arthritis Disease ● Answers what I can do myself day to day; how long it lasts and what to expect ● Journey stage Every step ● Topic Food and nutrition ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Balancing Activity and Rest With Ai Arthritis Disease: https://www.aiarthritis.org/balancing-activity-and-rest
World Sleep Day: Sleep Hygiene Tips for Ai Arthritis
Poor sleep alters immune cells and raises disease activity and pain. Learn why sleep is harder with Ai Arthritis and which sleep hygiene changes help most.
World Sleep Day: Sleep Hygiene Tips for Ai Arthritis ● Answers what I can do myself day to day ● Journey stage Every step ● Topic Food and nutrition ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for World Sleep Day: Sleep Hygiene Tips for Ai Arthritis : https://www.aiarthritis.org/world-sleep-day
Nutrition, Exercise, and Stress: A Holistic Approach
Anti-inflammatory food, joint-friendly movement, and mindfulness work together to lower inflammation and lift energy when you're managing several conditions.
Nutrition, Exercise, and Stress: A Holistic Approach ● Answers what I can do myself day to day ● Journey stage Every step ● Topic Food and nutrition ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Nutrition, Exercise, and Stress: A Holistic Approach: https://www.aiarthritis.org/holistic-management
Anti-Inflammatory Foods and Recipes: Community Tips
Two registered dietitians who live with Ai Arthritis diseases share anti-inflammatory food and recipe advice from a recent Ai Arthritis community chat call.
Anti-Inflammatory Foods and Recipes: Community Tips ● Answers what I can do myself day to day ● Journey stage Every step ● Topic Food and nutrition ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Anti-Inflammatory Foods and Recipes: Community Tips: https://www.aiarthritis.org/antiinflammatorydiet
World Sjögren's Day: Why July 23 Matters to Patients
Sjögren's attacks moisture-producing glands but can also affect the thyroid, kidneys, lungs, and joints. Learn why it's systemic, not just dry eyes and mouth.
World Sjögren's Day: Why July 23 Matters to Patients covers conditions and terms also written as Sjogren's Disease, Sjogrens, Sjögren's syndrome or Sjogren's syndrome.
World Sjögren's Day: Why July 23 Matters to Patients ● Answers what it is ● Disease Sjögren's Disease ● Journey stage Every step ● Topic Disease information ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for World Sjögren's Day: Why July 23 Matters to Patients: https://www.aiarthritis.org/july-23-world-sjogrens-day
Sjögren's Disease Updates From EULAR 2025 Research
New research is improving Sjögren's diagnosis even for seronegative patients, and biopsy patterns may soon predict which treatment will work best for you.
Sjögren's Disease Updates From EULAR 2025 Research covers conditions and terms also written as Sjogren's Disease, Sjogrens, Sjögren's syndrome or Sjogren's syndrome.
Sjögren's Disease Updates From EULAR 2025 Research ● Answers how it is diagnosed; what it is ● Disease Sjögren's Disease ● Journey stage Every step ● Topic Disease information ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Sjögren's Disease Updates From EULAR 2025 Research: https://www.aiarthritis.org/sjogrens-updates
Advancing Sjögren's Research: What ACR 2024 Revealed
Sjögren's is far more than dry eyes and mouth. See how new diagnostics, imaging, and clinical trials from ACR 2024 could change care for patients soon.
Advancing Sjögren's Research: What ACR 2024 Revealed covers conditions and terms also written as Sjogren's Disease, Sjogrens, Sjögren's syndrome or Sjogren's syndrome.
Advancing Sjögren's Research: What ACR 2024 Revealed ● Answers what the research says; what it is ● Disease Sjögren's Disease ● Journey stage Every step ● Topic Disease information ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Advancing Sjögren's Research: What ACR 2024 Revealed: https://www.aiarthritis.org/advancing-sjogrens
Sjögren's Awareness Month: What Sjögren's Really Is
Sjögren's affects far more than the moisture glands. Mark Sjögren's Awareness Month by learning what the disease does and why research funding matters.
Sjögren's Awareness Month: What Sjögren's Really Is covers conditions and terms also written as Sjogren's Disease, Sjogrens, Sjögren's syndrome or Sjogren's syndrome.
Sjögren's Awareness Month: What Sjögren's Really Is ● Answers what it is; what the research says ● Disease Sjögren's Disease ● Journey stage Every step ● Topic Disease information ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Sjögren's Awareness Month: What Sjögren's Really Is: https://www.aiarthritis.org/sjogrens-awareness
4 IgG4-RD Research Findings Patients Should Know Of
New IgG4-RD studies show inebilizumab cut flare risk by up to 93% and tripled steroid-free remission rates. See what four ACR 2025 studies actually found.
4 IgG4-RD Research Findings Patients Should Know Of ● Answers what the research says; what it is ● Disease Immunoglobulin G4-Related Disease (associated condition) ● Journey stage Remission ● Topic Disease information ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for 4 IgG4-RD Research Findings Patients Should Know Of: https://www.aiarthritis.org/4-groundbreaking-igg4-rd
4 IgG4-RD Studies on Diagnosis Delays and Remission
90% of IgG4-RD patients are misdiagnosed first, waiting nearly a year for answers. See what four studies found about diagnosis, damage, and stopping treatment.
4 IgG4-RD Studies on Diagnosis Delays and Remission ● Answers what it is; how it is diagnosed ● Disease Immunoglobulin G4-Related Disease (associated condition) ● Journey stage Remission ● Topic Disease information ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for 4 IgG4-RD Studies on Diagnosis Delays and Remission: https://www.aiarthritis.org/4-patient-care-centered-studies-on-igg4-rd-that-you-need-to-know-about
IgG4-RD Awareness Day: Why April 4 Matters to Patients
IgG4-RD is often missed when symptoms don't fit one disease neatly. Learn about IgG4-RD Awareness Day and where to find patient support and information.
IgG4-RD Awareness Day: Why April 4 Matters to Patients ● Answers what it is; how to take part ● Disease Immunoglobulin G4-Related Disease (associated condition) ● Journey stage Every step ● Topic Disease information ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for IgG4-RD Awareness Day: Why April 4 Matters to Patients: https://www.aiarthritis.org/igg4-rd-day
Mental Health After an Ai Arthritis Diagnosis: A Guide
A chronic diagnosis affects more than your joints. Learn the emotional effects of autoimmune arthritis, and the strategies that help you cope with it.
Mental Health After an Ai Arthritis Diagnosis: A Guide ● Answers what I can do myself day to day; how it is diagnosed ● Journey stage Every step ● Topic Living with it day to day ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Mental Health After an Ai Arthritis Diagnosis: A Guide: https://www.aiarthritis.org/mental-health-after-diagnosis
How to Support Someone Living With Ai Arthritis Disease
Not sure how to help someone with autoimmune arthritis? Learn what supports a person living with unpredictable pain, fatigue, and sudden flares.
How to Support Someone Living With Ai Arthritis Disease ● Answers what I can do myself day to day; how long it lasts and what to expect ● Journey stage Every step ● Topic Living with it day to day ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for How to Support Someone Living With Ai Arthritis Disease: https://www.aiarthritis.org/support-a-loved-one
Managing Multiple Specialists With Ai Arthritis Disease
Keep a medical planner, request copies of every lab report, and ask the same four questions at each appointment. How to coordinate care across specialists.
Managing Multiple Specialists With Ai Arthritis Disease ● Answers what I can do myself day to day; what to say, and to whom ● Journey stage Every step ● Topic Living with it day to day ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Managing Multiple Specialists With Ai Arthritis Disease: https://www.aiarthritis.org/connecting-the-dots
Chronic Disease Awareness Day: Why July 10 Matters
Chronic Disease Awareness Day on July 10 spotlights lifelong conditions like autoimmune arthritis. Learn why awareness drives earlier diagnosis and better care.
Chronic Disease Awareness Day: Why July 10 Matters ● Answers how to take part; how it is diagnosed ● Journey stage Every step ● Topic Awareness days and campaigns ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Chronic Disease Awareness Day: Why July 10 Matters: https://www.aiarthritis.org/chronic-disease-awareness-day
Rheumatoid Arthritis Awareness Day: Why It Matters
RA Awareness Day falls on February 2. Learn what rheumatoid arthritis is, its early symptoms, and how to describe them so you get referred to a rheumatologist.
Rheumatoid Arthritis Awareness Day: Why It Matters ● Answers how to take part ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Awareness days and campaigns ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Rheumatoid Arthritis Awareness Day: Why It Matters: https://www.aiarthritis.org/ra-day
What Are Dynamic Disabilities? Living With Changes
A dynamic disability changes day to day, which makes Ai Arthritis hard to plan around and easy for others to misjudge. Eileen Davidson explains what that's like.
What Are Dynamic Disabilities? Living With Changes ● Answers what it is; how to take part ● Journey stage Every step ● Topic Awareness days and campaigns ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for What Are Dynamic Disabilities? Living With Changes: https://www.aiarthritis.org/dynamic_disability
World Scleroderma Day: Systemic Sclerosis Explained
June 29 is World Scleroderma Day. Learn what systemic sclerosis does to skin, organs, and blood vessels, plus a patient's perspective on living with it.
World Scleroderma Day: Systemic Sclerosis Explained covers conditions and terms also written as SSc.
World Scleroderma Day: Systemic Sclerosis Explained ● Answers how to take part; what it feels like ● Disease Systemic Sclerosis (Scleroderma) ● Journey stage Every step ● Topic Awareness days and campaigns ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for World Scleroderma Day: Systemic Sclerosis Explained: https://www.aiarthritis.org/scleroderma-day
World Lupus Day: What Lupus Does to the Whole Body
Lupus can affect skin, joints, kidneys, heart, lungs, and brain. Learn the symptoms behind the butterfly rash and why early diagnosis changes outcomes.
World Lupus Day: What Lupus Does to the Whole Body covers conditions and terms also written as SLE or systemic lupus erythematosus.
World Lupus Day: What Lupus Does to the Whole Body ● Answers how to take part; how it is diagnosed ● Disease Lupus ● Journey stage Every step ● Topic Awareness days and campaigns ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for World Lupus Day: What Lupus Does to the Whole Body: https://www.aiarthritis.org/world-lupus-day
Autoimmune Disease Awareness Month: Arthritis Focus
Autoimmune arthritis is often missed because symptoms vary widely, diseases are rare, and women's symptoms get dismissed. Learn why diagnosis takes so long.
Autoimmune Disease Awareness Month: Arthritis Focus ● Answers how to take part; how it is diagnosed ● Journey stage Every step ● Topic Awareness days and campaigns ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Autoimmune Disease Awareness Month: Arthritis Focus: https://www.aiarthritis.org/autoimmune-month
International Day of Persons With Disabilities: Dec 3
December 3 marks International Day of Persons with Disabilities. Learn the history behind the day and why disability inclusion matters for Ai Arthritis patients.
International Day of Persons With Disabilities: Dec 3 ● Answers how to take part ● Journey stage Every step ● Topic Awareness days and campaigns ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for International Day of Persons With Disabilities: Dec 3: https://www.aiarthritis.org/-december-3
Rare Disease Month: Why Awareness Changes Outcomes
Rare diseases affect over 300 million people worldwide yet remain widely misunderstood. Learn about Rare Disease Month and the groups supporting patients.
Rare Disease Month: Why Awareness Changes Outcomes ● Answers how to take part ● Journey stage Every step ● Topic Awareness days and campaigns ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Rare Disease Month: Why Awareness Changes Outcomes: https://www.aiarthritis.org/rare-month
World Arthritis Day: Why Reliable Information Matters
Accurate information reduces anxiety, improves conversations with your doctor, and protects you from harmful misinformation. How to mark World Arthritis Day.
World Arthritis Day: Why Reliable Information Matters ● Answers how to take part ● Journey stage Every step ● Topic Awareness days and campaigns ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for World Arthritis Day: Why Reliable Information Matters: https://www.aiarthritis.org/wad24
World Sarcoidosis Day: Understanding Sarcoidosis Now
Sarcoidosis forms granulomas that can affect nearly any organ, hitting the lungs or lymph nodes in about 90% of cases. Learn the symptoms and treatments.
World Sarcoidosis Day: Understanding Sarcoidosis Now ● Answers how to take part; what the treatments are and how they work ● Journey stage Every step ● Topic Awareness days and campaigns ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for World Sarcoidosis Day: Understanding Sarcoidosis Now: https://www.aiarthritis.org/sarcoidosis-awareness
World Axial Spondylitis Day: What AxSpA Does to You
Axial spondylitis causes inflammatory back pain and, in severe cases, gradual spinal fusion. Learn the symptoms and why early recognition changes outcomes.
World Axial Spondylitis Day: What AxSpA Does to You covers conditions and terms also written as ankylosing spondylitis, non-radiographic axSpA or spondyloarthritis.
World Axial Spondylitis Day: What AxSpA Does to You ● Answers how to take part ● Disease Axial Spondyloarthritis ● Journey stage Every step ● Topic Awareness days and campaigns ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for World Axial Spondylitis Day: What AxSpA Does to You: https://www.aiarthritis.org/world-axial-spondylitis-day
National Caregiver Day: Why Ai Arthritis Caregivers Matter
Caregivers defend loved ones against 'but you look fine' and learn medical language fast. A look at what caregiving for invisible disease really involves.
National Caregiver Day: Why Ai Arthritis Caregivers Matter ● Answers how to take part; what to say, and to whom ● Journey stage Care Partners ● Topic Awareness days and campaigns ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for National Caregiver Day: Why Ai Arthritis Caregivers Matter: https://www.aiarthritis.org/caregiver-day
Behcet's Disease Awareness Day: What Behcet's Really Is
Behcet's is a rare vasculitis where the immune system attacks blood vessels, most common along the old Silk Road. Learn the symptoms and who it affects.
Behcet's Disease Awareness Day: What Behcet's Really Is covers conditions and terms also written as Behcets.
Behcet's Disease Awareness Day: What Behcet's Really Is ● Answers how to take part ● Disease Behçet's Disease ● Journey stage Every step ● Topic Awareness days and campaigns ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Behcet's Disease Awareness Day: What Behcet's Really Is: https://www.aiarthritis.org/behcet-s-awareness-day
NERVEmber: Nerve Pain Awareness Month Explained Now
Nerve pain in Ai Arthritis needs a mix of medication, physical therapy, and lifestyle changes. Learn about NERVEmber and how to manage neuropathic pain.
NERVEmber: Nerve Pain Awareness Month Explained Now ● Answers how to take part; what the treatments are and how they work ● Journey stage Every step ● Topic Awareness days and campaigns ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for NERVEmber: Nerve Pain Awareness Month Explained Now: https://www.aiarthritis.org/nervember
International Wheelchair Day: Mobility and Arthritis
Wheelchair use with Ai Arthritis is often part-time, changing with flares and distance. Learn why that is normal and how to support wheelchair users well.
International Wheelchair Day: Mobility and Arthritis ● Answers how to take part; how long it lasts and what to expect ● Journey stage Every step ● Topic Awareness days and campaigns ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for International Wheelchair Day: Mobility and Arthritis: https://www.aiarthritis.org/wheelchair-day
Invisible Disabilities Week: Why This Week Matters
Some battles are invisible but no less real. Learn about Invisible Disabilities Week and how sharing your experience builds understanding and real empathy.
Invisible Disabilities Week: Why This Week Matters ● Answers how to take part; what it is ● Journey stage Every step ● Topic Awareness days and campaigns ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Invisible Disabilities Week: Why This Week Matters: https://www.aiarthritis.org/shedding-light-invisible-disabilities
World Young Rheumatic Diseases Day: Awareness and Diagnosis
World Young Rheumatic Diseases Day (WORD Day), held each March 18, raises awareness of childhood rheumatic conditions like juvenile idiopathic arthritis.
World Young Rheumatic Diseases Day: Awareness and Diagnosis covers conditions and terms also written as JIA or juvenile arthritis.
World Young Rheumatic Diseases Day: Awareness and Diagnosis ● Answers how to take part; how it is diagnosed ● Disease Juvenile Idiopathic Arthritis ● Journey stage Every step ● Topic Awareness days and campaigns ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for World Young Rheumatic Diseases Day: Awareness and Diagnosis: https://www.aiarthritis.org/word-day
Rheumatic Disease Awareness Month: Why RDAM Matters
Rheumatic Disease Awareness Month spotlights the 350 million people worldwide living with conditions like Ai Arthritis , through education, support, and research.
Rheumatic Disease Awareness Month: Why RDAM Matters ● Answers how to take part; what the research says ● Journey stage Every step ● Topic Awareness days and campaigns ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Rheumatic Disease Awareness Month: Why RDAM Matters: https://www.aiarthritis.org/raising-awareness-rheumatic-disease
Life With Mixed Connective Tissue Disease: My Story
Carol woke at 25 with hands she didn't recognize. Read her lived experience of a mixed connective tissue disease diagnosis and learning to explain it.
Life With Mixed Connective Tissue Disease: My Story covers conditions and terms also written as MCTD.
Life With Mixed Connective Tissue Disease: My Story ● Answers what it feels like; how it is diagnosed ● Disease Mixed Connective Tissue Disease ● Journey stage Every step ● Topic Lived experience ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Life With Mixed Connective Tissue Disease: My Story: https://www.aiarthritis.org/mctdstory
Parenting With Chronic Illness: A Single Mom's Guide
Parenting is hard enough. Add rheumatoid arthritis and it changes daily. Practical tips from a single mom raising kids while managing chronic illness.
Parenting With Chronic Illness: A Single Mom's Guide covers conditions and terms also written as RA.
Parenting With Chronic Illness: A Single Mom's Guide ● Answers what it feels like; what it is ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Lived experience ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Parenting With Chronic Illness: A Single Mom's Guide: https://www.aiarthritis.org/single-parenting
Rheumatoid Arthritis Treatments Gone Wrong
Jen Weaver lives with pustular psoriasis caused by a TNF inhibitor. Her experience, from the first sores in 2016 through misdiagnosis to finding what worked.
Rheumatoid Arthritis Treatments Gone Wrong covers conditions and terms also written as RA.
Rheumatoid Arthritis Treatments Gone Wrong ● Answers what it feels like; how it is diagnosed ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Lived experience ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Rheumatoid Arthritis Treatments Gone Wrong: https://www.aiarthritis.org/jennifer-weavers-journey
How Occupational Therapy Changed My Ai Arthritis Care
Prioritize, pace, position, plan. An OT taught me that heat on inflamed joints made things worse. How occupational therapy reshaped daily life with arthritis.
How Occupational Therapy Changed My Ai Arthritis Care ● Answers what it feels like; what the treatments are and how they work ● Journey stage Every step ● Topic Lived experience ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for How Occupational Therapy Changed My Ai Arthritis Care: https://www.aiarthritis.org/ot-aiarthritis
Ableism and Ai Arthritis : The Discrimination We Ignore
You don't look sick. You're too young for arthritis. A patient diagnosed at 29 writes about ableism and the largest marginalized group you can ever join.
Ableism and Ai Arthritis : The Discrimination We Ignore ● Answers what it feels like; how it is diagnosed ● Journey stage Every step ● Topic Lived experience ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Ableism and Ai Arthritis : The Discrimination We Ignore: https://www.aiarthritis.org/ableism
Steroid Psychosis: Katelyn's Still's Disease Experience
Katelyn shares how a high prednisone dose for Still's disease caused steroid-induced psychosis, a severe reaction requiring psychiatric hospitalization.
Steroid Psychosis: Katelyn's Still's Disease Experience covers conditions and terms also written as Stills Disease, adult-onset Still's disease, AOSD, systemic juvenile idiopathic arthritis or sJIA.
Steroid Psychosis: Katelyn's Still's Disease Experience ● Answers what it feels like; what the treatments are and how they work ● Disease Still's Disease ● Journey stage Every step ● Topic Lived experience ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Steroid Psychosis: Katelyn's Still's Disease Experience: https://www.aiarthritis.org/katelyn-stills
Adult Onset Still's Disease: Jackie's Septic Shock Recovery
At 72, Jackie developed Adult Onset Still's Disease with sudden paralysis and septic shock; daily Kineret injections have since brought her remission.
Adult Onset Still's Disease: Jackie's Septic Shock Recovery covers conditions and terms also written as Stills Disease, AOSD, systemic juvenile idiopathic arthritis or sJIA.
Adult Onset Still's Disease: Jackie's Septic Shock Recovery ● Answers what it feels like; how long it lasts and what to expect ● Disease Still's Disease ● Journey stage Remission ● Topic Lived experience ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Adult Onset Still's Disease: Jackie's Septic Shock Recovery: https://www.aiarthritis.org/mystills-jackie-story
Still's Disease and High Fevers: Miya's Delayed Diagnosis
Miya's fevers, rash, and fatigue were dismissed for months until doctors found macrophage activation syndrome, a dangerous Still's disease complication.
Still's Disease and High Fevers: Miya's Delayed Diagnosis covers conditions and terms also written as MAS, Stills Disease, adult-onset Still's disease, AOSD, systemic juvenile idiopathic arthritis or sJIA.
Still's Disease and High Fevers: Miya's Delayed Diagnosis ● Answers what it feels like; how it is diagnosed ● Disease Macrophage Activation Syndrome (associated condition); Still's Disease ● Journey stage Every step ● Topic Lived experience ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Still's Disease and High Fevers: Miya's Delayed Diagnosis: https://www.aiarthritis.org/mystills-miya
Adult Onset Still's Disease: How It Changed My Life
Cassandra Venditti shares her experience with Adult Onset Still's Disease (AOSD) since diagnosis at 27: flares, medication changes, and support from loved ones.
Adult Onset Still's Disease: How It Changed My Life covers conditions and terms also written as Stills Disease, systemic juvenile idiopathic arthritis or sJIA.
Adult Onset Still's Disease: How It Changed My Life ● Answers what it feels like; how it is diagnosed ● Disease Still's Disease ● Journey stage Every step ● Topic Lived experience ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Adult Onset Still's Disease: How It Changed My Life: https://www.aiarthritis.org/stills-changed-my-life
Franklin Shares His Invisible Rheumatoid Arthritis Journey
Franklin shares his experience with rheumatoid arthritis (RA): symptoms began in 2012, a severe 2014 flare led to diagnosis, and invisible symptoms remain.
Franklin Shares His Invisible Rheumatoid Arthritis Journey ● Answers what it feels like; how it is diagnosed ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Lived experience ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Franklin Shares His Invisible Rheumatoid Arthritis Journey: https://www.aiarthritis.org/franklins-journey
Judy Nagy Shares Her Rheumatoid Arthritis Advocacy
Judy Nagy shares her experience living with rheumatoid arthritis (RA), from sudden hand swelling to years of treatment trials and becoming a patient advocate.
Judy Nagy Shares Her Rheumatoid Arthritis Advocacy ● Answers what it feels like; what the research says ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Lived experience ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Judy Nagy Shares Her Rheumatoid Arthritis Advocacy: https://www.aiarthritis.org/finding-strength-ra
Pediatric to Adult Rheumatology Care: A Transition Guide
This EULAR 2025 recap explains the shift from pediatric to adult rheumatology care for teens with autoimmune arthritis, covering treatment routines and support.
Pediatric to Adult Rheumatology Care: A Transition Guide ● Answers what it feels like; what the research says ● Journey stage Every step ● Topic Lived experience ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Pediatric to Adult Rheumatology Care: A Transition Guide: https://www.aiarthritis.org/growing-up-with-aiarthritis
Disabled in Your 20s: A Seronegative Arthritis Experience
Kailey Grant describes becoming disabled in her 20s with seronegative inflammatory arthritis (no positive antibody test) and relying on her partner daily.
Disabled in Your 20s: A Seronegative Arthritis Experience ● Answers what it feels like; how it is diagnosed ● Journey stage Every step ● Topic Lived experience ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Disabled in Your 20s: A Seronegative Arthritis Experience: https://www.aiarthritis.org/20s-disabled-women
Living With Chronic Illness: Rebecca's Olympic Mindset Tips
Rebecca Hosey, who lives with Sjogren's disease and endometriosis, shares ten Olympic-inspired qualities that build resilience for living with chronic illness.
Living With Chronic Illness: Rebecca's Olympic Mindset Tips covers conditions and terms also written as Sjogrens, Sjögren's syndrome or Sjogren's syndrome.
Living With Chronic Illness: Rebecca's Olympic Mindset Tips ● Answers what it feels like ● Disease Sjögren's Disease ● Journey stage Every step ● Topic Lived experience ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Living With Chronic Illness: Rebecca's Olympic Mindset Tips: https://www.aiarthritis.org/olympic-qualities
Rheumatoid Arthritis Clinical Trials: Patient Experiences
Patients share their experience with rheumatoid arthritis clinical trials, including one participant's Orencia trial that extended from three to five years.
Rheumatoid Arthritis Clinical Trials: Patient Experiences covers conditions and terms also written as RA.
Rheumatoid Arthritis Clinical Trials: Patient Experiences ● Answers what it feels like; what the research says ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Lived experience ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Rheumatoid Arthritis Clinical Trials: Patient Experiences: https://www.aiarthritis.org/clinical-research-real-stories
ACR24: Health Equity, Women's Health & Patient Outcomes
ACR 2024 research on how social factors, women's health, and risk assessment shape rheumatic disease outcomes. See what the findings mean for patients.
ACR24: Health Equity, Women's Health & Patient Outcomes ● Answers what the research says ● Journey stage Every step ● Topic Research and conferences ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for ACR24: Health Equity, Women's Health & Patient Outcomes: https://www.aiarthritis.org/psot
New Sjögren's and Psoriatic Arthritis Treatment News
ACR 2024 revealed Tyk2 inhibitors for psoriatic arthritis, a more selective option than JAK inhibitors. See what else is in trials for Sjögren's and PsA.
New Sjögren's and Psoriatic Arthritis Treatment News covers conditions and terms also written as Sjogren's Disease, Sjogrens, Sjögren's syndrome, Sjogren's syndrome, JAK inhibitor or JAKi.
New Sjögren's and Psoriatic Arthritis Treatment News ● Answers what the research says; what the treatments are and how they work ● Disease Psoriatic Arthritis; Sjögren's Disease ● Journey stage Every step ● Topic Research and conferences ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for New Sjögren's and Psoriatic Arthritis Treatment News: https://www.aiarthritis.org/breaking-research-acr24
Vitamin D and Autoimmune Disease: What Research Shows
Taking 2,000 IU of vitamin D daily reduced autoimmune disease onset by 22% over five years. See what ACR 2024 research found about vitamin D and T-cells.
Vitamin D and Autoimmune Disease: What Research Shows ● Answers what the research says ● Journey stage Every step ● Topic Research and conferences ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Vitamin D and Autoimmune Disease: What Research Shows: https://www.aiarthritis.org/vitamind-acr24
VEXAS Syndrome Research: Key Findings From ACR 2024
VEXAS is caused by UBA1 gene changes and mostly affects men, though women are diagnosed too. See what ACR 2024 research found about diagnosis and treatment.
VEXAS Syndrome Research: Key Findings From ACR 2024 ● Answers what the research says; how it is diagnosed ● Disease VEXAS Syndrome ● Journey stage Every step ● Topic Research and conferences ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for VEXAS Syndrome Research: Key Findings From ACR 2024: https://www.aiarthritis.org/vexas-syndrome-acr24
ACR 2024 Abstracts: Medications and Treatments News
CAR-T therapy produced drug-free remission in lupus and myositis patients at ACR 2024. See what new medication research means for rheumatic disease care.
ACR 2024 Abstracts: Medications and Treatments News covers conditions and terms also written as SLE or systemic lupus erythematosus.
ACR 2024 Abstracts: Medications and Treatments News ● Answers what the research says; what the treatments are and how they work ● Disease Lupus ● Journey stage Remission ● Topic Research and conferences ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for ACR 2024 Abstracts: Medications and Treatments News: https://www.aiarthritis.org/acr24-medications
Psoriatic Arthritis Research: What EULAR 2025 Showed
One biologic held a 50% improvement three years on. See what EULAR 2025 abstracts mean for treatment timing and psoriatic arthritis care decisions today.
Psoriatic Arthritis Research: What EULAR 2025 Showed covers conditions and terms also written as PsA.
Psoriatic Arthritis Research: What EULAR 2025 Showed ● Answers what the research says; what the treatments are and how they work ● Disease Psoriatic Arthritis ● Journey stage Every step ● Topic Research and conferences ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Psoriatic Arthritis Research: What EULAR 2025 Showed: https://www.aiarthritis.org/psoriatic-arthritis-abstracts
Menopause and Rheumatic Disease: What ACR 2024 Found
Menopause changes mood, sleep, and joint pain, yet it's rarely discussed in rheumatology. What ACR 2024 said about hormone therapy and personalized care.
Menopause and Rheumatic Disease: What ACR 2024 Found ● Answers what the research says; what I can do myself day to day ● Journey stage Every step ● Topic Research and conferences ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Menopause and Rheumatic Disease: What ACR 2024 Found: https://www.aiarthritis.org/menopause-acr24
Sarcoidosis Research: Key Findings From ACR 2024 Now
Sarcoidosis prevalence in England rose sharply from 2003 to 2023. See what ACR 2024 found on TNF inhibitors for cardiac sarcoidosis and other treatments.
Sarcoidosis Research: Key Findings From ACR 2024 Now ● Answers what the research says; what the treatments are and how they work ● Journey stage Every step ● Topic Research and conferences ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Sarcoidosis Research: Key Findings From ACR 2024 Now: https://www.aiarthritis.org/sarcoidosis-abstracts-at-acr24
AxSpA Imaging and Treatment Updates From ACR 2025 Now
Pediatric AxSpA still lacks standalone diagnostic criteria beyond TNF inhibitors. See how imaging is helping clinicians catch inflammation much sooner.
AxSpA Imaging and Treatment Updates From ACR 2025 Now covers conditions and terms also written as ankylosing spondylitis, non-radiographic axSpA or spondyloarthritis.
AxSpA Imaging and Treatment Updates From ACR 2025 Now ● Answers what the research says; how it is diagnosed ● Disease Axial Spondyloarthritis ● Journey stage Every step ● Topic Research and conferences ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for AxSpA Imaging and Treatment Updates From ACR 2025 Now: https://www.aiarthritis.org/axspa-imaging-and-treatment-updates
Rare Ai Arthritis Disease Research From ACR 2024 Now
New research on Sjögren's mortality risk factors and hydroxychloroquine's effect on heart rhythm. What ACR 2024 found for the rare Ai Arthritis diseases.
Rare Ai Arthritis Disease Research From ACR 2024 Now covers conditions and terms also written as Sjogren's Disease, Sjogrens, Sjögren's syndrome or Sjogren's syndrome.
Rare Ai Arthritis Disease Research From ACR 2024 Now ● Answers what the research says ● Disease Sjögren's Disease ● Journey stage Every step ● Topic Research and conferences ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Rare Ai Arthritis Disease Research From ACR 2024 Now: https://www.aiarthritis.org/raredisease-abstracts
Familial Mediterranean Fever Research From ACR 2024
FMF patients showed a higher risk of developing psoriatic arthritis, and 10.7% had chronic liver abnormalities. What ACR 2024 research found about FMF.
Familial Mediterranean Fever Research From ACR 2024 covers conditions and terms also written as PsA.
Familial Mediterranean Fever Research From ACR 2024 ● Answers what the research says ● Disease Familial Mediterranean Fever; Psoriatic Arthritis ● Journey stage Every step ● Topic Research and conferences ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Familial Mediterranean Fever Research From ACR 2024: https://www.aiarthritis.org/fmf-acr24
Fatigue in Rheumatic Disease: ACR 2024 Expert Insights
ACR 2024's expert panel covers fatigue and rheumatic disease, plus brain fog, depression, anxiety, and sleep problems, and tips for raising them with doctors.
Fatigue in Rheumatic Disease: ACR 2024 Expert Insights ● Answers what the research says; how to take part ● Journey stage Every step ● Topic Research and conferences ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Fatigue in Rheumatic Disease: ACR 2024 Expert Insights: https://www.aiarthritis.org/acr24-fatigue
Brain Fog and Lupus: What ACR 2024 Research Actually Found
ACR 2024 research on brain fog and lupus finds cognitive dysfunction is common in lupus and systemic sclerosis, plus racial bias affecting lupus diagnosis.
Brain Fog and Lupus: What ACR 2024 Research Actually Found covers conditions and terms also written as SLE, systemic lupus erythematosus, scleroderma or SSc.
Brain Fog and Lupus: What ACR 2024 Research Actually Found ● Answers what the research says; how it is diagnosed ● Disease Lupus; Systemic Sclerosis (Scleroderma) ● Journey stage Every step ● Topic Research and conferences ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Brain Fog and Lupus: What ACR 2024 Research Actually Found: https://www.aiarthritis.org/acr24-brainfog
COVID Vaccine and Autoimmune Disease: ACR 2024 Findings
ACR 2024 research on the COVID vaccine and autoimmune disease finds vaccination lowers infection and long COVID risk in lupus and rheumatoid arthritis patients.
COVID Vaccine and Autoimmune Disease: ACR 2024 Findings covers conditions and terms also written as SLE, systemic lupus erythematosus or RA.
COVID Vaccine and Autoimmune Disease: ACR 2024 Findings ● Answers what the research says ● Disease Lupus; Rheumatoid Arthritis ● Journey stage Every step ● Topic Research and conferences ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for COVID Vaccine and Autoimmune Disease: ACR 2024 Findings: https://www.aiarthritis.org/acr24-covid-19
Mental Health and Autoimmune Arthritis: ACR 2024 Insights
ACR 2024 research links mental health and autoimmune arthritis, finding anxiety and depression common in rheumatoid arthritis, lupus, and psoriatic arthritis.
Mental Health and Autoimmune Arthritis: ACR 2024 Insights covers conditions and terms also written as SLE, systemic lupus erythematosus or PsA.
Mental Health and Autoimmune Arthritis: ACR 2024 Insights ● Answers what the research says; what I can do myself day to day ● Disease Lupus; Psoriatic Arthritis ● Journey stage Every step ● Topic Research and conferences ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Mental Health and Autoimmune Arthritis: ACR 2024 Insights: https://www.aiarthritis.org/acr24-mental-health
New Ways to Diagnose Rheumatoid Arthritis: ACR 2024 Research
ACR 2024 research on rheumatoid arthritis diagnosis covers a new antibody blood test, AI tools, thermal imaging, and ultrasound to detect the disease earlier.
New Ways to Diagnose Rheumatoid Arthritis: ACR 2024 Research covers conditions and terms also written as RA.
New Ways to Diagnose Rheumatoid Arthritis: ACR 2024 Research ● Answers what the research says; how it is diagnosed ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Research and conferences ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for New Ways to Diagnose Rheumatoid Arthritis: ACR 2024 Research: https://www.aiarthritis.org/acr24-abstracts2
Diet, Supplements & Cannabis for Arthritis: ACR 2024
ACR 2024 research on diet for arthritis, plus supplements and cannabis, found certain foods may ease inflammation in rheumatoid arthritis and lupus patients.
Diet, Supplements & Cannabis for Arthritis: ACR 2024 covers conditions and terms also written as SLE, systemic lupus erythematosus or RA.
Diet, Supplements & Cannabis for Arthritis: ACR 2024 ● Answers what the research says; what I can do myself day to day ● Disease Lupus; Rheumatoid Arthritis ● Journey stage Every step ● Topic Research and conferences ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Diet, Supplements & Cannabis for Arthritis: ACR 2024: https://www.aiarthritis.org/acr24-abstracts-3
Sleep and Exercise for Arthritis: What ACR 2024 Found
ACR 2024 research shows sleep and exercise for arthritis matter, as many rheumatoid arthritis patients report poor sleep, and exercise can lower mortality risk.
Sleep and Exercise for Arthritis: What ACR 2024 Found covers conditions and terms also written as RA.
Sleep and Exercise for Arthritis: What ACR 2024 Found ● Answers what the research says; what I can do myself day to day ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Research and conferences ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Sleep and Exercise for Arthritis: What ACR 2024 Found: https://www.aiarthritis.org/ar24-sleep-exercise
Lupus Biomarkers and Lung Disease: ACR 2024 Findings
ACR 2024 research covers lupus biomarkers used to personalize treatment, plus diagnosing interstitial lung disease (lung scarring) in scleroderma patients.
Lupus Biomarkers and Lung Disease: ACR 2024 Findings covers conditions and terms also written as ILD, SLE or systemic lupus erythematosus.
Lupus Biomarkers and Lung Disease: ACR 2024 Findings ● Answers what the research says; how it is diagnosed ● Disease Interstitial Lung Disease (associated condition); Lupus ● Journey stage Every step ● Topic Research and conferences ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Lupus Biomarkers and Lung Disease: ACR 2024 Findings: https://www.aiarthritis.org/advancing-acr24
Obesity and Autoimmune Disease: New Findings From ACR 2024
New research on obesity and autoimmune disease from ACR 2024 finds obesity affects 14% of people with lupus or rheumatoid arthritis, worsening inflammation.
Obesity and Autoimmune Disease: New Findings From ACR 2024 covers conditions and terms also written as SLE, systemic lupus erythematosus or RA.
Obesity and Autoimmune Disease: New Findings From ACR 2024 ● Answers what the research says ● Disease Lupus; Rheumatoid Arthritis ● Journey stage Every step ● Topic Research and conferences ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Obesity and Autoimmune Disease: New Findings From ACR 2024: https://www.aiarthritis.org/new-research-acr24
Autoimmune Arthritis Patient Experiences From ACR 2024
Autoimmune arthritis patient experiences from ACR 2024 cover rheumatoid arthritis, Sjogren's syndrome, POTS (a heart rate disorder), and GPA, a rare vasculitis.
Autoimmune Arthritis Patient Experiences From ACR 2024 covers conditions and terms also written as RA, Sjogren's Disease, Sjogrens or Sjögren's syndrome.
Autoimmune Arthritis Patient Experiences From ACR 2024 ● Answers what the research says ● Disease Rheumatoid Arthritis; Sjögren's Disease ● Journey stage Every step ● Topic Research and conferences ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Autoimmune Arthritis Patient Experiences From ACR 2024: https://www.aiarthritis.org/patient-perspectives-at-acr24
What Are Biosimilars? Cost, Access and Switching Explained
Biosimilars are lower-cost, near-identical versions of biologic drugs for autoimmune disease. Learn how switching rules differ between the US and Europe.
What Are Biosimilars? Cost, Access and Switching Explained covers conditions and terms also written as biosimilar or interchangeable biosimilar.
What Are Biosimilars? Cost, Access and Switching Explained ● Answers what it is; what the treatments are and how they work ● Journey stage Every step ● Topic Research and conferences ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for What Are Biosimilars? Cost, Access and Switching Explained: https://www.aiarthritis.org/biosimilars-acr24
Exercise for Rheumatoid Arthritis: EULAR 2024 Takeaways
This EULAR 2024 recap on exercise for rheumatoid arthritis (RA) finds strength training plus high-intensity cardio eases pain without worsening the disease.
Exercise for Rheumatoid Arthritis: EULAR 2024 Takeaways ● Answers what the research says; what I can do myself day to day ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Research and conferences ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Exercise for Rheumatoid Arthritis: EULAR 2024 Takeaways: https://www.aiarthritis.org/eular-2024-highlights
Rheumatoid Arthritis Pain and Fatigue: Types Explained
EULAR 2024 covers rheumatoid arthritis pain and fatigue: nociceptive (tissue damage), neuropathic (nerve damage), and nociplastic (unclear cause) pain.
Rheumatoid Arthritis Pain and Fatigue: Types Explained covers conditions and terms also written as RA.
Rheumatoid Arthritis Pain and Fatigue: Types Explained ● Answers what the research says; how long it lasts and what to expect ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Research and conferences ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Rheumatoid Arthritis Pain and Fatigue: Types Explained: https://www.aiarthritis.org/eular-insights
Arthritis Research Highlights from ACR and EULAR 2025
This ACR and EULAR 2025 recap covers autoimmune arthritis research: diet, exercise, mental health, cannabis for pain, and new personalized treatments.
Arthritis Research Highlights from ACR and EULAR 2025 ● Answers what the research says; what I can do myself day to day ● Journey stage Every step ● Topic Research and conferences ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Arthritis Research Highlights from ACR and EULAR 2025: https://www.aiarthritis.org/gwu-2025-debrief
Prescription Drug Affordability: 2026 Policy Forum Recap
Ai Arthritis recaps a 2026 policy forum on prescription drug affordability, covering PBM (pharmacy benefit manager) transparency and delayed access to new drugs.
Prescription Drug Affordability: 2026 Policy Forum Recap ● Answers what to do when cost or coverage blocks treatment; what the research says ● Journey stage Every step ● Topic Research and conferences ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Prescription Drug Affordability: 2026 Policy Forum Recap: https://www.aiarthritis.org/bms-forum
Autoimmune Community Summit: Day One Session Recap
This Autoimmune Community Summit Day One recap covers sharing your diagnosis experience, decision making with doctors, and knowing your health insurance rights.
Autoimmune Community Summit: Day One Session Recap ● Answers what the research says; what to do when cost or coverage blocks treatment ● Journey stage Every step ● Topic Research and conferences ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Autoimmune Community Summit: Day One Session Recap: https://www.aiarthritis.org/autoimmune-summit-1
Autoimmune Disease Triggers: The Summit Day Two Recap
Day Two of the Autoimmune Community Summit explores autoimmune disease triggers like air pollution and childhood trauma, plus tips for diet, fatigue and stress.
Autoimmune Disease Triggers: The Summit Day Two Recap ● Answers what the research says; what I can do myself day to day ● Journey stage Every step ● Topic Research and conferences ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Autoimmune Disease Triggers: The Summit Day Two Recap: https://www.aiarthritis.org/autoimmune-summit-2
340B Drug Pricing Program: Why Reform Matters for Patients
The 340B drug pricing program lets hospitals buy autoimmune biologics at a discount. Ai Arthritis found markups may raise patient costs and urges transparency.
340B Drug Pricing Program: Why Reform Matters for Patients ● Answers what to do when cost or coverage blocks treatment; how to take part ● Journey stage Every step ● Topic Advocacy and policy ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for 340B Drug Pricing Program: Why Reform Matters for Patients: https://www.aiarthritis.org/protecting-patients-not-programs
Health Inequality in Autoimmune Arthritis Care: EULAR 2025
Health inequality in autoimmune arthritis care stems from income, immigration, and LGBTQ+ discrimination, and stigma-related stress may raise disease risk.
Health Inequality in Autoimmune Arthritis Care: EULAR 2025 ● Answers how to take part; what the research says ● Journey stage Every step ● Topic Advocacy and policy ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Health Inequality in Autoimmune Arthritis Care: EULAR 2025: https://www.aiarthritis.org/marginalized-communities-matter
What Arthritis Patients Want Researchers To Study Next
Ai Arthritis patients list arthritis research questions on fatigue, diet, gut microbiome links, Still's disease origins, comorbidities, and NSAID alternatives.
What Arthritis Patients Want Researchers To Study Next covers conditions and terms also written as Stills Disease, adult-onset Still's disease, AOSD, systemic juvenile idiopathic arthritis or sJIA.
What Arthritis Patients Want Researchers To Study Next ● Answers how to take part; what the research says ● Disease Still's Disease ● Journey stage Every step ● Topic Advocacy and policy ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for What Arthritis Patients Want Researchers To Study Next: https://www.aiarthritis.org/research-blog
Building a Support Network Tool for Ai Arthritis Patients
Ai Arthritis offers steps for building a support tool, so autoimmune or autoinflammatory arthritis patients and loved ones can track support needs together.
Building a Support Network Tool for Ai Arthritis Patients ● Answers how to take part; what to say, and to whom ● Journey stage Care Partners ● Topic Advocacy and policy ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for Building a Support Network Tool for Ai Arthritis Patients: https://www.aiarthritis.org/supporttool
WTHellth Campaign: Share Your Frustrating Healthcare Story
Ai Arthritis launched WTHellth on October 1, 2025, so patients can share a healthcare frustration story about long waits, high bills, or insurance switches.
WTHellth Campaign: Share Your Frustrating Healthcare Story ● Answers how to take part; what to do when cost or coverage blocks treatment ● Journey stage Every step ● Topic Advocacy and policy ● Type Blog post ● What you do with it Read it ● Tier 2 ● Audience Patient ● Language English
Read the post for WTHellth Campaign: Share Your Frustrating Healthcare Story: https://www.aiarthritis.org/wthellth-launch
What has the podcast covered?
Every episode of the Ai Arthritis Voices 360 Podcast, where patients talk through one issue at a time. The journey stage on each episode was recorded by the team rather than worked out here.
What is CAR-T Therapy? (Ep 113)
CAR-T Therapy is one of the most talked about advances in autoimmune research today, offering new hope for people living with Ai Arthritis diseases such as lupus, myositis, scleroderma, and Sjögren’s. In this episode, co-hosts Leila P.L. First aired September 7, 2025, and the episode page carries the full transcript.
What is CAR-T Therapy? (Ep 113) covers conditions and terms also written as SLE, systemic lupus erythematosus, Sjogren's Disease, Sjogrens, Sjögren's syndrome or Sjogren's syndrome.
What is CAR-T Therapy? (Ep 113) ● Answers what it is; what the treatments are and how they work ● Disease Lupus; Sjögren's Disease ● Journey stage Living With Disease OR Diagnosed ● Topic Treatment and medication; Research and conferences ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for What is CAR-T Therapy? (Ep 113): https://www.aiarthritis.org/talkshow-ep113
Planning for Pregnancy with an Ai Arthritis Disease (Ep 112)
In this follow-up episode, Ai Arthritis Health Education Manager Leila reflects on her personal pregnancy journeywith lupus and Sjögren’s, while sharing key fertility and pregnancy insights from EULAR 2024. She highlights emerging research and clinical recommendations on preconception planning, navigating medication decisions, and coordinating care between rheumatologists and high-risk OB-GYNs. First aired August 3, 2025, and the episode page carries the full transcript.
Planning for Pregnancy with an Ai Arthritis Disease (Ep 112) covers conditions and terms also written as SLE, systemic lupus erythematosus, Sjogren's Disease, Sjogrens, Sjögren's syndrome or Sjogren's syndrome.
Planning for Pregnancy with an Ai Arthritis Disease (Ep 112) ● Answers what the treatments are and how they work; what the research says ● Disease Lupus; Sjögren's Disease ● Journey stage Newly Diagnosed; Living With Disease OR Diagnosed; Co-Existing Conditions; Remission ● Topic Treatment and medication; Family, pregnancy and parenting ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Planning for Pregnancy with an Ai Arthritis Disease (Ep 112): https://www.aiarthritis.org/talkshow-ep112
Breaking Ai Arthritis Disease Research Update - EULAR 2025 (Ep 111)
Ai Arthritis is bringing you along for the journey as part of our Go With Us! Program, this time straight from the EULAR 2025 in Barcelona. In this episode, we’re spotlighting key research updates that matter most to patients living with Ai Arthritis diseases. First aired July 6, 2025, and the episode page carries the full transcript.
Breaking Ai Arthritis Disease Research Update - EULAR 2025 (Ep 111) ● Answers how long it lasts and what to expect; what the research says ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Co-Existing Conditions; Care Partners ● Topic Symptoms and flares; Treatment and medication ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Breaking Ai Arthritis Disease Research Update - EULAR 2025 (Ep 111): https://www.aiarthritis.org/talkshow-ep111
From Caregiver to Changemaker: Revolutionizing Care for Ai Arthritis Diseases/IMIDs (Ep 110)
Managing Ai Arthritis diseases are challenging but what if the entire model of care could change for the better? In this episode, Leila is joined by Dr. Jin Lee, co-founder and CEO of IMIDeology, a virtual and in-person clinic dedicated to diagnosing and treating immune-mediated inflammatory diseases (IMIDs) like spondyloarthritis, lupus, Crohn’s, and more. Dr. First aired June 1, 2025, and the episode page carries the full transcript.
From Caregiver to Changemaker: Revolutionizing Care for Ai Arthritis Diseases/IMIDs (Ep 110) covers conditions and terms also written as Crohns, inflammatory bowel disease, IBD, SLE or systemic lupus erythematosus.
From Caregiver to Changemaker: Revolutionizing Care for Ai Arthritis Diseases/IMIDs (Ep 110) ● Answers how long it lasts and what to expect; how it is diagnosed ● Disease Crohn's Disease; Lupus ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Co-Existing Conditions ● Topic Symptoms and flares; Treatment and medication ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for From Caregiver to Changemaker: Revolutionizing Care for Ai Arthritis Diseases/IMIDs (Ep 110): https://www.aiarthritis.org/talkshow-ep110
Searching for Answers: The Mystery Patient Experience and the Overlap with IgG4-RD (Ep 109)
Ai Arthritis diseases can be difficult enough to manage, but what happens when the symptoms don’t fit neatly into a diagnosis? In this episode, Ai Arthritis Health Education Manager Leila shares her perspective on the “mystery patient” experience, those living with serious, ongoing symptoms but still searching for answers. First aired May 3, 2025, and the episode page carries the full transcript.
Searching for Answers: The Mystery Patient Experience and the Overlap with IgG4-RD (Ep 109) ● Answers how it is diagnosed; what it feels like ● Disease Immunoglobulin G4-Related Disease (associated condition) ● Journey stage Undiagnosed/Mystery Patient ● Topic Getting diagnosed; Co-existing conditions ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Searching for Answers: The Mystery Patient Experience and the Overlap with IgG4-RD (Ep 109): https://www.aiarthritis.org/talkshow-ep109
Neurological Manifestations of Lupus & Sjögren's Disease with Dr. Julius Birnbaum (Ep 108)
Autoimmune diseases like lupus and Sjogren’s disease are often associated with joint pain, fatigue, and organ involvement, but their impact on the nervous system is less commonly discussed. In this episode, Dr. Julius Birnbaum, a leading expert in neuro-rheumatology, joins us to explore the neurological manifestations of these conditions and what patients need to know. First aired April 6, 2025, and the episode page carries the full transcript.
Neurological Manifestations of Lupus & Sjögren's Disease with Dr. Julius Birnbaum (Ep 108) covers conditions and terms also written as SLE, systemic lupus erythematosus, Sjogren's Disease, Sjogrens, Sjögren's syndrome or Sjogren's syndrome.
Neurological Manifestations of Lupus & Sjögren's Disease with Dr. Julius Birnbaum (Ep 108) ● Answers how long it lasts and what to expect ● Disease Lupus; Sjögren's Disease ● Journey stage Co-Existing Conditions; Living With Disease OR Diagnosed; Newly Diagnosed ● Topic Symptoms and flares; Treatment and medication ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Neurological Manifestations of Lupus & Sjögren's Disease with Dr. Julius Birnbaum (Ep 108): https://www.aiarthritis.org/talkshow-ep108
Parenting with Chronic Illness (Ep 107)
Parenting is challenging, but adding a chronic illness like rheumatoid arthritis brings unique obstacles. In this episode, co-host Eileen shares her journey of raising a child while managing RA, from coping with fatigue and pain to adjusting expectations. She’s joined by her 12-year-old son, Jacob, who offers his perspective on growing up with a parent who has a chronic illness. First aired March 2, 2025, and the episode page carries the full transcript.
Parenting with Chronic Illness (Ep 107) ● Answers how long it lasts and what to expect; what it feels like ● Disease Rheumatoid Arthritis ● Journey stage Living With Disease OR Diagnosed; Care Partners; Co-Existing Conditions ● Topic Symptoms and flares; Family, pregnancy and parenting ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Parenting with Chronic Illness (Ep 107): https://www.aiarthritis.org/talkshow-ep107
Undifferentiated Disease - What is it & How Could a Diagnosis Affect Me? (Ep 106)
What does it mean to be diagnosed with undifferentiated disease (UD)? In this episode, Tiffany Westrich-Robertson, Ai Arthritis CEO and founder, unpacks this complex diagnosis, sharing her personal journey from being a mystery patient to receiving a UCTD diagnosis. First aired February 2, 2025, and the episode page carries the full transcript.
Undifferentiated Disease - What is it & How Could a Diagnosis Affect Me? (Ep 106) covers conditions and terms also written as undifferentiated connective tissue disease.
Undifferentiated Disease - What is it & How Could a Diagnosis Affect Me? (Ep 106) ● Answers how it is diagnosed; what it is ● Disease Undifferentiated Disease ● Journey stage Undiagnosed/Mystery Patient ● Topic Getting diagnosed; Treatment and medication ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Undifferentiated Disease - What is it & How Could a Diagnosis Affect Me? (Ep 106): https://www.aiarthritis.org/talkshow-ep106
2024 Rewind: Mental Health, Navigating the Patient Journey, and Reproductive Health (Ep 105)
Join us for a special episode where we reflect on the top three most-listened episodes of 2024! Leila revisits these engaging conversations that resonated deeply with the Ai Arthritis community, covering mental health, navigating the patient journey, and reproductive health. First aired January 5, 2025, and the episode page carries the full transcript.
2024 Rewind: Mental Health, Navigating the Patient Journey, and Reproductive Health (Ep 105) ● Answers what I can do myself day to day; how to take part ● Journey stage Undiagnosed/Mystery Patient; Remission; Co-Existing Conditions; Living With Disease OR Diagnosed; Newly Diagnosed; Care Partners ● Topic Living with it day to day; Lived experience ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for 2024 Rewind: Mental Health, Navigating the Patient Journey, and Reproductive Health (Ep 105): https://www.aiarthritis.org/talkshow-ep105
Breaking Research at ACR 2024 (Ep 104)
In this episode, our co-hosts share key takeaways and important updates from the American College of Rheumatology (ACR) Convergence 2024. Leila, Tiffany, Cristina, and Deb discuss cutting-edge therapies, chronic pain management strategies, and groundbreaking research on conditions like lupus, Sjögren’s, and psoriatic arthritis. First aired December 1, 2024, and the episode page carries the full transcript.
Breaking Research at ACR 2024 (Ep 104) covers conditions and terms also written as SLE, systemic lupus erythematosus or PsA.
Breaking Research at ACR 2024 (Ep 104) ● Answers how long it lasts and what to expect; what the research says ● Disease Lupus; Psoriatic Arthritis ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Remission; Co-Existing Conditions ● Topic Symptoms and flares; Research and conferences ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Breaking Research at ACR 2024 (Ep 104): https://www.aiarthritis.org/talkshow-ep104
Elevating the Patient Voice (Ep 103)
In this episode of Ai Arthritis Voices 360, co-hosts Leila P.L. Valete and Brittany Murray, both living with Ai Arthritis diseases, dive into the power of patient voices in transforming the healthcare experience for the Ai Arthritis community. First aired November 3, 2024, and the episode page carries the full transcript.
Elevating the Patient Voice (Ep 103) ● Answers what I can do myself day to day; how to take part ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Care Partners ● Topic Living with it day to day; Work, school and money ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Elevating the Patient Voice (Ep 103): https://www.aiarthritis.org/talkshow-ep103
Navigating the Patient Journey From Early Diagnosis to Remission (Ep 102)
In this episode of Ai Arthritis Voices 360, co-hosts Leila and Eileen discuss a project focused on organizing essential resources for patients navigating the Ai Arthritis journey, from undiagnosed symptoms to remission. They share their personal experiences living with lupus and rheumatoid arthritis, exploring the complexities of managing chronic illness and the challenges of early diagnosis. First aired October 6, 2024, and the episode page carries the full transcript.
Navigating the Patient Journey From Early Diagnosis to Remission (Ep 102) covers conditions and terms also written as SLE, systemic lupus erythematosus or RA.
Navigating the Patient Journey From Early Diagnosis to Remission (Ep 102) ● Answers how it is diagnosed; how to take part ● Disease Lupus; Rheumatoid Arthritis ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Co-Existing Conditions; Remission; Care Partners ● Topic Getting diagnosed; Treatment and medication ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Navigating the Patient Journey From Early Diagnosis to Remission (Ep 102): https://www.aiarthritis.org/talkshow-ep102
"Go With Us!" to EULAR 2024 (Ep 101)
In this episode, our co-hosts bring you an exclusive look into the Ai Arthritis “Go With Us!” to Conferences program. We dive deep into EULAR 2024, the European Rheumatology Research Conference, where patients and co-hosts reveal groundbreaking advancements in Ai Arthritis research. First aired September 1, 2024, and the episode page carries the full transcript.
"Go With Us!" to EULAR 2024 (Ep 101) ● Answers what the research says; how long it lasts and what to expect ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Co-Existing Conditions; Remission; Care Partners ● Topic Symptoms and flares; Treatment and medication ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for "Go With Us!" to EULAR 2024 (Ep 101): https://www.aiarthritis.org/talkshow-ep101
100th Episode: Ai Arthritis Voices 360 Highlights (Ep 100)
Welcome to a milestone episode of Ai Arthritis Voices 360 Podcast! Join us as we celebrate our 100th episode by revisiting three of our most impactful discussions that have resonated deeply with our listeners. First aired August 4, 2024, and the episode page carries the full transcript.
100th Episode: Ai Arthritis Voices 360 Highlights (Ep 100) ● Answers how to take part ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Remission ● Topic Getting involved with Ai Arthritis ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for 100th Episode: Ai Arthritis Voices 360 Highlights (Ep 100): https://www.aiarthritis.org/talkshow-ep100
Ai Arthritis Diseases and Protecting Against COVID-19 in Healthcare Settings (Ep 99)
In this episode, co-hosts Charis Hill and Jae Walker delve into life after COVID-19, focusing on the unique challenges faced by individuals with Ai Arthritis diseases. They discuss the importance of continued precautions in healthcare settings, share their own personal experiences, and offer practical advice for staying safe. First aired July 7, 2024, and the episode page carries the full transcript.
Ai Arthritis Diseases and Protecting Against COVID-19 in Healthcare Settings (Ep 99) ● Answers what the treatments are and how they work ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Co-Existing Conditions ● Topic Treatment and medication ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Ai Arthritis Diseases and Protecting Against COVID-19 in Healthcare Settings (Ep 99): https://www.aiarthritis.org/talkshow-ep99
Mental Health and Ai Arthritis (Ep 98)
In this episode, our co-hosts Estela and Juana delve deep into the often overlooked but critically important topic of mental health for those living with Ai Arthritis diseases. They discuss the significant impact these health challenges have on both the body and the mind, supported by eye-opening statistics that 52% of patients with autoimmune diseases are diagnosed with a mental health condition... First aired June 2, 2024, and the episode page carries the full transcript.
Mental Health and Ai Arthritis (Ep 98) ● Answers what I can do myself day to day; how it is diagnosed ● Journey stage Living With Disease OR Diagnosed; Undiagnosed/Mystery Patient; Newly Diagnosed; Co-Existing Conditions ● Topic Living with it day to day; Lived experience ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Mental Health and Ai Arthritis (Ep 98): https://www.aiarthritis.org/talkshow-ep98
World Ai Arthritis Day (Ep 97)
In this episode, Leila shares the exciting plans for the upcoming World Ai Arthritis Day on May 20th with Ai Arthritis . Delve into why raising awareness for Ai Arthritis diseases is crucial and discover ways you can actively participate on the global initiative. First aired May 5, 2024, and the episode page carries the full transcript.
World Ai Arthritis Day (Ep 97) ● Answers how to take part ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed ● Topic Awareness days and campaigns ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for World Ai Arthritis Day (Ep 97): https://www.aiarthritis.org/talkshow-ep97
Social Wellness with an Ai Arthritis Disease (Ep 96)
In this episode, co-hosts Leila, Estela, and Kerry delve into the crucial topic of social wellness amidst living with Ai Arthritis disease. They explore the essence of social wellness, its significance and sharing personal insights on navigating social lives while managing health challenges. First aired April 7, 2024, and the episode page carries the full transcript.
Social Wellness with an Ai Arthritis Disease (Ep 96) ● Answers what I can do myself day to day; what it feels like ● Journey stage Living With Disease OR Diagnosed; Care Partners; Undiagnosed/Mystery Patient; Newly Diagnosed ● Topic Living with it day to day; Lived experience ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Social Wellness with an Ai Arthritis Disease (Ep 96): https://www.aiarthritis.org/talkshow-ep96
Volunteering with Ai Arthritis (Ep 95)
In the latest episode of Ai Arthritis Voices 360 Podcast as co-hosts Leila, Michael, Jenni, Deeanne, Patrice, and Deb share heartfelt experiences of their journey into volunteering with Ai Arthritis . From personal experiences to the profound impact Ai Arthritis has had on their lives as patients, they delve into the transformative power of community support. First aired March 3, 2024, and the episode page carries the full transcript.
Volunteering with Ai Arthritis (Ep 95) ● Answers what it feels like; how to take part ● Journey stage Newly Diagnosed; Living With Disease OR Diagnosed; Care Partners; Undiagnosed/Mystery Patient ● Topic Lived experience; Getting involved with Ai Arthritis ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Volunteering with Ai Arthritis (Ep 95): https://www.aiarthritis.org/talkshow-ep95
RheumyRounds Rewind: Improving Doctor and Patient Communication During Office Visits (Ep 94)
This is an Ai Arthritis Voices 360 REWIND, where we are bringing back the first RheumyRound episode from 2020 where we opened the conversation on improving doctor office visits! Also note, you will hear the acronym IFAA, which we used prior to using Ai Arthritis . First aired February 4, 2024, and the episode page carries the full transcript.
RheumyRounds Rewind: Improving Doctor and Patient Communication During Office Visits (Ep 94) ● Answers what to say, and to whom; how to take part ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Care Partners ● Topic Talking to your care team; Getting involved with Ai Arthritis ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for RheumyRounds Rewind: Improving Doctor and Patient Communication During Office Visits (Ep 94): https://www.aiarthritis.org/talkshow-ep94
Reproductive Health and Ai Arthritis Diseases (Ep 93)
In this episode, Leila, the Health Education Manager at Ai Arthritis , delves into the impact of Ai Arthritis diseases on reproductive health, sharing insights from the RNS and ACR 2023 conferences. First aired January 7, 2024, and the episode page carries the full transcript.
Reproductive Health and Ai Arthritis Diseases (Ep 93) ● Answers what I can do myself day to day; what the research says ● Journey stage Newly Diagnosed; Living With Disease OR Diagnosed; Co-Existing Conditions ● Topic Family, pregnancy and parenting ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Reproductive Health and Ai Arthritis Diseases (Ep 93): https://www.aiarthritis.org/talkshow-ep93
Medicare Drug Price Negotiation: How Will it Affect Patient Access? (360it breakout from Ep 88)
Join us in this breakout 360it from Episode 88 Biosimilars : Interchangeability & Switching 2023 as we dissect the Inflation Reduction Act (IRA) and its potential fallout on patient access to diverse treatment plans. First aired December 27, 2023, and the episode page carries the full transcript.
Medicare Drug Price Negotiation: How Will it Affect Patient Access? (360it breakout from Ep 88) covers conditions and terms also written as biosimilar or interchangeable biosimilar.
Medicare Drug Price Negotiation: How Will it Affect Patient Access? (360it breakout from Ep 88) ● Answers what the treatments are and how they work; what to do when cost or coverage blocks treatment ● Journey stage Newly Diagnosed; Living With Disease OR Diagnosed ● Topic Treatment and medication; Advocacy and policy ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Medicare Drug Price Negotiation: How Will it Affect Patient Access? (360it breakout from Ep 88): https://www.aiarthritis.org/biosimilars-360it
Breaking Research: Pharma & Non-Pharma 2023 (Ep 92)
Join us in this episode as co-hosts Tiffany and Deb both a recap of the 2023 ACR, American College of Rheumatology Conference and also how these topics specifically affect Ai Arthritis diseases. Tiffany and Deb also share an insight into our program, “Go With Us!” to Conferences. First aired December 3, 2023, and the episode page carries the full transcript.
Breaking Research: Pharma & Non-Pharma 2023 (Ep 92) ● Answers what the research says; how to take part ● Journey stage Newly Diagnosed; Living With Disease OR Diagnosed; Remission; Undiagnosed/Mystery Patient ● Topic Research and conferences ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Breaking Research: Pharma & Non-Pharma 2023 (Ep 92): https://www.aiarthritis.org/talkshow-ep92
REWIND: Differentiating Arthritis & Autoimmune vs Autoinflammatory (Ep 91)
This is an Ai Arthritis Voices 360 REWIND, where we are bringing back two short episodes that were recorded way back in 2019, because chances the topics are very important! Also note, you will hear the acronym IFAA, which we used prior to using Ai Arthritis . The first segment revisits an episode where Tiffany is joined by Dr. First aired November 5, 2023, and the episode page carries the full transcript.
REWIND: Differentiating Arthritis & Autoimmune vs Autoinflammatory (Ep 91) ● Answers how to take part ● Journey stage Undiagnosed/Mystery Patient; Living With Disease OR Diagnosed; Newly Diagnosed ● Topic Getting involved with Ai Arthritis ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for REWIND: Differentiating Arthritis & Autoimmune vs Autoinflammatory (Ep 91): https://www.aiarthritis.org/talkshow-ep91
Why Won't They Diagnose Me? (Ep 90)
At Ai Arthritis , we represent those diagnosed, their care partners/support network, and the undiagnosed (often called the “Mystery Patients”). This episode is for those struggling to get diagnosed. Join co-hosts Tiffany, Kerry and Danielle as they share their personal diagnosis struggles and delve deep into the challenges many other patients face on their diagnosis journey. First aired October 1, 2023, and the episode page carries the full transcript.
Why Won't They Diagnose Me? (Ep 90) ● Answers how it is diagnosed; what to say, and to whom ● Journey stage Undiagnosed/Mystery Patient ● Topic Getting diagnosed; Living with it day to day ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Why Won't They Diagnose Me? (Ep 90): https://www.aiarthritis.org/talkshow-ep90
Surgery with an Ai Arthritis Disease (Ep 89)
Tune in to the latest episode of Ai Arthritis Voices 360 Podcast, where your co-hosts Leila, Deb, and Kerry candidly share their personal journeys of undergoing surgery while living with Ai Arthritis diseases. In this episode, the co-hosts delve into their surgical experiences, including the pivotal surgeries they've had due to their conditions. First aired September 3, 2023, and the episode page carries the full transcript.
Surgery with an Ai Arthritis Disease (Ep 89) ● Answers what the treatments are and how they work; how to take part ● Journey stage Living With Disease OR Diagnosed ● Topic Treatment and medication; Lived experience ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Surgery with an Ai Arthritis Disease (Ep 89): https://www.aiarthritis.org/talkshow-ep89
Biosimilars Interchangeability & Switching 2023 (Ep 88)
In this episode, Tiffany is joined by esteemed guest experts Michael Reilly, Dr. Ralph McKibbin and Andrew Spiegel to explore the difference between interchangeability , automatic substitution, and non-medical switching. Gain valuable insights into how these differences impact patients not only in the USA but also on a global scale. First aired August 6, 2023, and the episode page carries the full transcript.
Biosimilars Interchangeability & Switching 2023 (Ep 88) covers conditions and terms also written as NMS, biosimilar or interchangeable biosimilar.
Biosimilars Interchangeability & Switching 2023 (Ep 88) ● Answers what the treatments are and how they work; what to do when cost or coverage blocks treatment ● Journey stage Living With Disease OR Diagnosed; Newly Diagnosed ● Topic Treatment and medication; Awareness days and campaigns ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Biosimilars Interchangeability & Switching 2023 (Ep 88): https://www.aiarthritis.org/talkshow-ep88
Ai Arthritis Rant Discussions - Inspired by "Am I the @$$hole?" (Ep 87)
Are you tired of feeling frustrated and unheard when it comes to your doctors, your disease, and all the challenges that come with it? Wish you had a platform to let it all out and find understanding? Welcome to Ai Arthritis Rant Discussions, Inspired by Am I The @$$hole? Brace yourself for a new series that will give you a voice and an outlet to vent your frustrations. First aired July 2, 2023, and the episode page carries the full transcript.
Ai Arthritis Rant Discussions - Inspired by "Am I the @$$hole?" (Ep 87) ● Answers how to take part; what it is ● Journey stage Care Partners; Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed ● Topic Getting involved with Ai Arthritis ; Disease information ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Ai Arthritis Rant Discussions - Inspired by "Am I the @$$hole?" (Ep 87): https://www.aiarthritis.org/talkshow-Ep87
Organ Involvement: Disease Symptom or Comorbidity? (Ep 86)
In this episode, Tiffany will discuss how different organs can be impacted by the disease and the difference between an organ being part of a disease and being a comorbidity. Tiffany will be exploring some examples of organs being affected in various diseases such as eyes, heart, gastrointestinal, and kidneys, as well as a newer autoimmune disease, IgG4, that is commonly being diagnosed for... First aired June 4, 2023, and the episode page carries the full transcript.
Organ Involvement: Disease Symptom or Comorbidity? (Ep 86) covers conditions and terms also written as IgG4-RD.
Organ Involvement: Disease Symptom or Comorbidity? (Ep 86) ● Answers how long it lasts and what to expect; how it is diagnosed ● Disease Immunoglobulin G4-Related Disease (associated condition) ● Journey stage Newly Diagnosed; Living With Disease OR Diagnosed; Co-Existing Conditions ● Topic Symptoms and flares; Co-existing conditions ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Organ Involvement: Disease Symptom or Comorbidity? (Ep 86): https://www.aiarthritis.org/talkshow-ep86
Disease Elevator Pitches (Ep 85)
In this episode, our co-hosts Leila, Charis, and Patrice put a new topic on the table: how to explain your Ai Arthritis disease in a 30-60 second elevator pitch. From your workplace to your personal life, our co-hosts will provide practical tips on how to tailor your elevator pitch to different audiences such as co-workers, family, friends or strangers to help you confidently communicate your... First aired May 7, 2023, and the episode page carries the full transcript.
Disease Elevator Pitches (Ep 85) ● Answers how to take part; what to say, and to whom ● Journey stage Newly Diagnosed; Living With Disease OR Diagnosed; Co-Existing Conditions; Care Partners ● Topic Advocacy and policy ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Disease Elevator Pitches (Ep 85): https://www.aiarthritis.org/talkshow-ep85
I'm a Mystery Patient, Now What? (Ep 84)
Have you ever experienced the frustration of not being able to get a diagnosis, or worse, receiving the wrong one? In this episode, our co-hosts Tiffany, Kelly, and Kerry, dive into what it is to be a mystery patient. In addition, they each share their personal experiences of being a mystery patient, and the challenges they experienced with delayed diagnosis. First aired April 2, 2023, and the episode page carries the full transcript.
I'm a Mystery Patient, Now What? (Ep 84) ● Answers how it is diagnosed ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Co-Existing Conditions ● Topic Getting diagnosed ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for I'm a Mystery Patient, Now What? (Ep 84): https://www.aiarthritis.org/talkshow-ep84
Improving Communication Throughout the JIA Journey (Ep 83)
Have you or your family been affected by juvenile arthritis? On this episode, Tiffany is joined by Rochelle Lentini, CEO and President of Purple Playas Foundation, who have united with other specialists and families to identify additional tips to improve communication. First aired March 5, 2023, and the episode page carries the full transcript.
Improving Communication Throughout the JIA Journey (Ep 83) ● Answers what I can do myself day to day; what to say, and to whom ● Disease Juvenile Idiopathic Arthritis ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Care Partners ● Topic Family, pregnancy and parenting; Lived experience ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Improving Communication Throughout the JIA Journey (Ep 83): https://www.aiarthritis.org/talkshow-ep83
AUTO + Inflammatory Arthritis: Diagnosis, Please! (Ep 82)
Join us for this episode where the co-hosts, Tiffany and Leila, share their personal journeys of being diagnosed with Ai Arthritis diseases. Tune in to hear how their journey of being diagnosed and misdiagnosed and the lessons they learned throughout the process. First aired February 5th, 2023, and the episode page carries the full transcript.
AUTO + Inflammatory Arthritis: Diagnosis, Please! (Ep 82) ● Answers how it is diagnosed; what it feels like ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Care Partners ● Topic Lived experience; Disease information ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for AUTO + Inflammatory Arthritis: Diagnosis, Please! (Ep 82): https://www.aiarthritis.org/talkshow-ep82
RheumyRounds: PART TWO The Good, The Bad, and The Ugly - Improving Office Visit Communication (Ep 81)
During this episode, Deb Constien and Tiffany Westrich-Robertson are joined by Dr. Al Kim ("Al", Tiffany's rheumatologist) , where, together, they share experiences of Good, Bad, and Ugly in office communication experiences, with the goal to collect more experiences, from YOU! First aired January 1st, 2023, and the episode page carries the full transcript.
RheumyRounds: PART TWO The Good, The Bad, and The Ugly - Improving Office Visit Communication (Ep 81) ● Answers what to say, and to whom ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Care Partners ● Topic Talking to your care team ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for RheumyRounds: PART TWO The Good, The Bad, and The Ugly - Improving Office Visit Communication (Ep 81): https://www.aiarthritis.org/talkshow-ep81
RheumyRounds: PART ONE The Good, The Bad, and The Ugly - Improving Office Visit Communication (Ep 80)
During this episode, Kerry Wong and Tiffany Westrich-Robertson are joined by Dr. Lisa Zickuhr, where, together, they share experiences of Good, Bad, and Ugly in office communication experiences, with the goal to collect more experiences, from YOU! First aired December 4th, 2022, and the episode page carries the full transcript.
RheumyRounds: PART ONE The Good, The Bad, and The Ugly - Improving Office Visit Communication (Ep 80) ● Answers what to say, and to whom ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Care Partners ● Topic Talking to your care team ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for RheumyRounds: PART ONE The Good, The Bad, and The Ugly - Improving Office Visit Communication (Ep 80): https://www.aiarthritis.org/talkshow-ep80
Patient Leadership in Research (Ep 79)
In this month’s episode, we join our co-hosts Tiffany, Deb, Kerry and Eileen, all living with Ai Arthritis diseases, as they discuss the importance of patient involvement in research. Patient involvement in research is key to developing knowledge and understanding around the many Ai Arthritis diseases. First aired Nov 6, 2022, and the episode page carries the full transcript.
Patient Leadership in Research (Ep 79) ● Answers what the research says; how to take part ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Care Partners; Co-Existing Conditions ● Topic Research and conferences; Awareness days and campaigns ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Patient Leadership in Research (Ep 79): https://www.aiarthritis.org/talkshow-ep79
Diversity, Equity, Inclusion and Accessibility (Ep 78)
DEIA : Diversity, Equity, Inclusion, and Accessibility. Each of these elements that affect patients daily should be considered when thinking about patient diagnosis, physician care, treatment plans, research, lifestyle choices, and societal inclusion. First aired Oct 2, 2022, and the episode page carries the full transcript.
Diversity, Equity, Inclusion and Accessibility (Ep 78) covers conditions and terms also written as SLE or systemic lupus erythematosus.
Diversity, Equity, Inclusion and Accessibility (Ep 78) ● Answers what the treatments are and how they work; how it is diagnosed ● Disease Lupus ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Care Partners; Co-Existing Conditions ● Topic Treatment and medication; Research and conferences ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Diversity, Equity, Inclusion and Accessibility (Ep 78): https://www.aiarthritis.org/talkshow-ep78
Biosimilars - What patients should know (Ep 77)
As more treatment options are moving towards Biosimilars, many questions are being raised by patients. What are Biosimilars? Are they safe and effective? Are there downsides? Upsides? What are doctors' opinions on Biosimilars? What should I do if I am switched to a Biosimilar? These are all questions that are at the forefront of our minds when living with Ai Arthritis diseases. First aired Sept 3, 2022, and the episode page carries the full transcript.
Biosimilars - What patients should know (Ep 77) covers conditions and terms also written as interchangeable biosimilar.
Biosimilars - What patients should know (Ep 77) ● Answers what the treatments are and how they work; what it feels like ● Journey stage Newly Diagnosed; Living With Disease OR Diagnosed; Co-Existing Conditions ● Topic Treatment and medication; Research and conferences ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Biosimilars - What patients should know (Ep 77): https://www.aiarthritis.org/talkshow-ep77
COVID in 2022 - Evolving Concerns, Questions, and Opinions (Ep 76)
Over the last couple of years, the world has watched as COVID-19 has evolved into variants that differ slightly from the original virus. We’ve seen vaccinations and boosters work, yet we also know that new strains are somewhat resistant to high-level protection. First aired Aug 7, 2022, and the episode page carries the full transcript.
COVID in 2022 - Evolving Concerns, Questions, and Opinions (Ep 76) ● Answers what the treatments are and how they work ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Co-Existing Conditions ● Topic Treatment and medication; Living with it day to day ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for COVID in 2022 - Evolving Concerns, Questions, and Opinions (Ep 76): https://www.aiarthritis.org/talkshow-ep76
The Whole Picture: Holistic, Personalized Therapy (Ep 75)
We often talk about the importance of Precision Medicine (which involves finding the best pharmacologic treatment for each person’s individual needs), but as we, as patients, identify what works best for our unique needs, we have to consider all options (both pharmaceutical and non-pharmaceutical). First aired July 3, 2022, and the episode page carries the full transcript.
The Whole Picture: Holistic, Personalized Therapy (Ep 75) ● Answers what the treatments are and how they work ● Journey stage Newly Diagnosed; Living With Disease OR Diagnosed; Co-Existing Conditions ● Topic Treatment and medication; Food and nutrition ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for The Whole Picture: Holistic, Personalized Therapy (Ep 75): https://www.aiarthritis.org/talkshow-ep75
EveryONE's Voice 'Precisely' Matters (Ep 74)
In this episode, Tiffany, CEO of Ai Arthritis , is joined by Catherine Ames, from the Young Patients’ Autoimmune Research & Empowerment Alliance, both persons living with Ai Arthritis diseases and both who attended the 16th Annual Personalized Medicine Conference in May 2022. First aired June 5, 2022, and the episode page carries the full transcript.
EveryONE's Voice 'Precisely' Matters (Ep 74) ● Answers what the treatments are and how they work; what the research says ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Co-Existing Conditions ● Topic Treatment and medication; Research and conferences ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for EveryONE's Voice 'Precisely' Matters (Ep 74): https://www.aiarthritis.org/talkshow-ep74
“Arthritis” Awareness - It’s Complicated! (Ep 73)
In this revisit to the table (Step 5 in our problem-solving process), Tiffany, Katie, Effie, Eileen, and Kerry discuss the many layers around the word “arthritis” including: 1) Misunderstandings around the word that can lead to delays in diagnosis, family and friend judgements, and the different type associated with “AUTO” diseases; and 2) Complexities that exist when trying to identify the... First aired May 1, 2022, and the episode page carries the full transcript.
“Arthritis” Awareness - It’s Complicated! (Ep 73) ● Answers how long it lasts and what to expect; how it is diagnosed ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Care Partners; Co-Existing Conditions ● Topic Symptoms and flares; Awareness days and campaigns ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for “Arthritis” Awareness - It’s Complicated! (Ep 73): https://www.aiarthritis.org/talkshow-ep73
The Myth of Average - Time for Change (Ep 72)
Join Tiffany and Deb, both persons living with Ai Arthritis diseases, then Tiffany and John O'Brien, CEO of the National Pharmaceuticals Council, as they put the topic of importance of innovation & treatment access in research and public policy. And learn how YOU can join efforts to impact change! First aired April 3, 2022, and the episode page carries the full transcript.
The Myth of Average - Time for Change (Ep 72) ● Answers what the treatments are and how they work; what the research says ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed ● Topic Treatment and medication; Research and conferences ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for The Myth of Average - Time for Change (Ep 72): https://www.aiarthritis.org/talkshow-ep72
Supporting Me, Supporting You, Supporting Us (Table Revisit) (Ep 71)
A revisit to the table with Deb Constien, Estela Mata, and Tiffany Westrich-Robertson as they continue discussing the dynamics of support, including needs of the patient as well as others in the patient's support circle. First aired March 6th, 2022, and the episode page carries the full transcript.
Supporting Me, Supporting You, Supporting Us (Table Revisit) (Ep 71) ● Answers what to do when cost or coverage blocks treatment ● Journey stage Newly Diagnosed; Living With Disease OR Diagnosed; Care Partners ● Topic Work, school and money ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Supporting Me, Supporting You, Supporting Us (Table Revisit) (Ep 71): https://www.aiarthritis.org/talkshow-ep71
Helping The Future of Shared-Decision Making & E-Health in Rheumatology Starts with YOU! (Table Revisit) (Ep 70)
A revisit to the table with Tiffany Westrich-Robertson and Dr. Lisa Zickuhr, as they continue discussing the importance of shared-decision making in rheumatology e-health visits. They focus on a research project both are involved in, and that YOU can join! First aired February 6, 2022, and the episode page carries the full transcript.
Helping The Future of Shared-Decision Making & E-Health in Rheumatology Starts with YOU! (Table Revisit) (Ep 70) ● Answers what to say, and to whom; what the research says ● Journey stage Newly Diagnosed; Living With Disease OR Diagnosed; Care Partners; Co-Existing Conditions ● Topic Talking to your care team; Research and conferences ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Helping The Future of Shared-Decision Making & E-Health in Rheumatology Starts with YOU! (Table Revisit) (Ep 70): https://www.aiarthritis.org/talkshow-ep70
Changing the World from Your Sofa (Ep 69)
In this episode, Tiffany Westrich-Robertson and Katie Simons talk about how grateful they are to the volunteers that help with every part of our organization. First aired January 2, 2022, and the episode page carries the full transcript.
Changing the World from Your Sofa (Ep 69) ● Answers how to take part ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Co-Existing Conditions; Care Partners ● Topic Awareness days and campaigns; Advocacy and policy ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Changing the World from Your Sofa (Ep 69): https://www.aiarthritis.org/talkshow-ep69
Rant Ahead! Together We Can Make Change (Ep 68)
This week join Tiffany Westrich-Robertson as she takes this episode on solo! She goes on a rant about the ability -- or lack of ability -- for patient organizations to participate in conferences. First aired December 5, 2021, and the episode page carries the full transcript.
Rant Ahead! Together We Can Make Change (Ep 68) ● Answers how to take part ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Care Partners ● Topic Getting involved with Ai Arthritis ; Advocacy and policy ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Rant Ahead! Together We Can Make Change (Ep 68): https://www.aiarthritis.org/talkshow-ep68
Making Informed Decisions in Unprecedented Times (Ep 67)
In this episode, Katie and Deb, both persons living with Ai Arthritis diseases, discuss being a young person suffering from a chronic illness. First aired November 7, 2021, and the episode page carries the full transcript.
Making Informed Decisions in Unprecedented Times (Ep 67) ● Answers what it feels like ● Journey stage Newly Diagnosed; Living With Disease OR Diagnosed; Co-Existing Conditions; Care Partners ● Topic Lived experience ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Making Informed Decisions in Unprecedented Times (Ep 67): https://www.aiarthritis.org/talkshow-ep67
Pathway of Patient Engagement (Ep 66)
In this episode, hosts Tiffany, Maarten, and Cheryl discuss the Paitent Pathway and the history of patient engagement in rheumatology research. First aired October 3, 2021, and the episode page carries the full transcript.
Pathway of Patient Engagement (Ep 66) ● Answers what the research says ● Journey stage Living With Disease OR Diagnosed; Care Partners ● Topic Research and conferences ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Pathway of Patient Engagement (Ep 66): https://www.aiarthritis.org/talkshow-ep66
Young and Invisible (Ep 65)
In this episode, Katie and Deb, both persons living with Ai Arthritis diseases, discuss being a young person suffering from a chronic illness. First aired September 5, 2021, and the episode page carries the full transcript.
Young and Invisible (Ep 65) ● Answers what I can do myself day to day; what it feels like ● Journey stage Newly Diagnosed; Undiagnosed/Mystery Patient; Living With Disease OR Diagnosed; Care Partners ● Topic Living with it day to day; Lived experience ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Young and Invisible (Ep 65): https://www.aiarthritis.org/talkshow-ep65
The office visit - viewpoints from both the patients AND the rheumies! (Ep 64)
Join Tiffany, Deb, Katie, and Patrice AND Al and Jeff (Dr. Al Kim, Tiffany's own rheumy, and Dr. Jeff Sparks) as they talk about the EULAR session content around communication and office visit needs (patient side and rheumy side). First aired August 1, 2021, and the episode page carries the full transcript.
The office visit - viewpoints from both the patients AND the rheumies! (Ep 64) ● Answers what to say, and to whom; what the research says ● Journey stage Newly Diagnosed; Undiagnosed/Mystery Patient; Living With Disease OR Diagnosed; Care Partners; Co-Existing Conditions ● Topic Talking to your care team; Research and conferences ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for The office visit - viewpoints from both the patients AND the rheumies! (Ep 64): https://www.aiarthritis.org/talkshow-ep64
COVID-19, Vaccinations, Shared-Decision Making, & Rheumy Communications (Ep 63)
This week join your patient co-hosts Tiffany and Deb, as they welcome Al and Jeff (Dr. Al Kim and Dr. Jeff Sparks) to talk about the latest in COVID-19 research and vaccinations, including variants, antibodies, and the importance of communicating with your doctor about boosters and the evolving landscape (shared-decision making). First aired July 4, 2021, and the episode page carries the full transcript.
COVID-19, Vaccinations, Shared-Decision Making, & Rheumy Communications (Ep 63) ● Answers what the treatments are and how they work; how it is diagnosed ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Co-Existing Conditions ● Topic Treatment and medication; Talking to your care team ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for COVID-19, Vaccinations, Shared-Decision Making, & Rheumy Communications (Ep 63): https://www.aiarthritis.org/talkshow-ep63
Patient-Reported EULAR2021 Debriefs ... and We're Off! (Ep 62)
This week join your patient co-hosts Tiffany Westrich-Robertson, Deb Constien, Katie Simons and Patrice Johnson as they brief our Ai Arthritis patient community on the first day of EULAR 2021 with patient guest Leslie Rott Welsbacher. First aired June 6, 2021, and the episode page carries the full transcript.
Patient-Reported EULAR2021 Debriefs ... and We're Off! (Ep 62) ● Answers what the research says; how to take part ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Remission; Care Partners; Co-Existing Conditions ● Topic Research and conferences ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Patient-Reported EULAR2021 Debriefs ... and We're Off! (Ep 62): https://www.aiarthritis.org/talkshow-ep62
2021 Charity Talk (Ep 61)
This week join your patient co-hosts Tiffany Westrich-Robertson and Deb Constein as they discuss Ai Arthritis ’ 2021 Annual Fundraising Effort: The AUTO Drive Charity TALK. First aired May 2, 2021, and the episode page carries the full transcript.
2021 Charity Talk (Ep 61) ● Answers how to take part ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Care Partners; Co-Existing Conditions ● Topic Advocacy and policy ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for 2021 Charity Talk (Ep 61): https://www.aiarthritis.org/talkshow-ep61
COVID Blues: It's OK to Ask for Help (Ep 60)
This week join your patient co-hosts Kelly Conway and Rick Phillips as they are joined by Heather Kenjorski to discuss mental health Ai Arthritis patients, and the COVID-19 pandemic. First aired April 4, 2021, and the episode page carries the full transcript.
COVID Blues: It's OK to Ask for Help (Ep 60) ● Answers what the treatments are and how they work; how to take part ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Co-Existing Conditions; Care Partners ● Topic Treatment and medication; Living with it day to day ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for COVID Blues: It's OK to Ask for Help (Ep 60): https://www.aiarthritis.org/talkshow-ep60
Learned Experiences: Let the Evolution Continue! (Ep 59)
Our organization is constantly evolving to meet those changing needs. As we look to a future where people will be able to interact in person more without the fear of COVID-19, we are excited to transition to a model for the show that will allow us to embrace our original vision of a “touring” podcast. First aired March 21, 2021, and the episode page carries the full transcript.
Learned Experiences: Let the Evolution Continue! (Ep 59) ● Answers what the treatments are and how they work ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed ● Topic Treatment and medication; Getting involved with Ai Arthritis ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Learned Experiences: Let the Evolution Continue! (Ep 59): https://www.aiarthritis.org/talkshow-ep59
Diet, Research, & Ai Arthritis - an ACR Special Presentation (Ep 58)
Join your patient co-hosts Deb Constien, Tiffany Westrich-Robertson, and Patrice Johnson as they take us backstage at the American College of Rheumatology (ACR) Annual Conference as Deb introduces a research review from the ACR about diet. First aired March 7, 2021, and the episode page carries the full transcript.
Diet, Research, & Ai Arthritis - an ACR Special Presentation (Ep 58) ● Answers what I can do myself day to day; what the research says ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Co-Existing Conditions ● Topic Food and nutrition; Research and conferences ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Diet, Research, & Ai Arthritis - an ACR Special Presentation (Ep 58): https://www.aiarthritis.org/talkshow-ep58
RheumyRounds SPECIAL EPISODE - COVID-19 & Vaccinations Communication, Education & Shared-Decision Making (Ep 57)
Patient Co-Hosts Tiffany Westrich-Robertson & Kelly Conway are joined by Dr's Al Kim, Vibeke Strand, and Jeff Sparks as they discuss patient and rheumatologist vaccination hesitation and key education points, while providing insights to assess benefits and risks and promote shared-decision making strategies. First aired February 21, 2021, and the episode page carries the full transcript.
RheumyRounds SPECIAL EPISODE - COVID-19 & Vaccinations Communication, Education & Shared-Decision Making (Ep 57) ● Answers what the treatments are and how they work; what to say, and to whom ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Co-Existing Conditions ● Topic Treatment and medication; Talking to your care team ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for RheumyRounds SPECIAL EPISODE - COVID-19 & Vaccinations Communication, Education & Shared-Decision Making (Ep 57): https://www.aiarthritis.org/talkshow-ep57
Minisode Special: Decision Making w/ Vaccinations & Special RheumyRounds Announcement! (Ep 56)
This episode, join your patient co-host, Tiffany Westrich-Robertson, CEO of the International Foundation for Autoimmune and Autoinflammatory Arthritis, as she introduces the special report episode (airing Wednesday the 24th) on rheumy/patient communication vaccine issues and the importance of shared decision making. First aired February 21, 2021, and the episode page carries the full transcript.
Minisode Special: Decision Making w/ Vaccinations & Special RheumyRounds Announcement! (Ep 56) ● Answers what to say, and to whom; how to take part ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Co-Existing Conditions ● Topic Talking to your care team ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Minisode Special: Decision Making w/ Vaccinations & Special RheumyRounds Announcement! (Ep 56): https://www.aiarthritis.org/talkshow-ep56
Patients Weigh In: What's in a Name - the "Spondy" Evolution (Ep 55)
In this episode, join your patient co-hosts Tiffany and Charis as they are joined by fellow spondies, Richard Howard (also from Spondylitis Association of America) and Jennifer Walker. First aired February 7, 2021, and the episode page carries the full transcript.
Patients Weigh In: What's in a Name - the "Spondy" Evolution (Ep 55) ● Answers what the research says; how to take part ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Co-Existing Conditions; Living With Disease OR Diagnosed ● Topic Research and conferences ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Patients Weigh In: What's in a Name - the "Spondy" Evolution (Ep 55): https://www.aiarthritis.org/talkshow-ep55
COVID-19 & Ai Arthritis Special Series: Vaccine Questions & Mixed Messages (Ep 54)
This episode, join your patient co-host Tiffany as she talks with rheumatologist, Dr. Alfred Kim about the COVID-19 vaccine. First aired January 24, 2021, and the episode page carries the full transcript.
COVID-19 & Ai Arthritis Special Series: Vaccine Questions & Mixed Messages (Ep 54) ● Answers what the treatments are and how they work; how to take part ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Co-Existing Conditions; Care Partners ● Topic Treatment and medication; Talking to your care team ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for COVID-19 & Ai Arthritis Special Series: Vaccine Questions & Mixed Messages (Ep 54): https://www.aiarthritis.org/talkshow-ep54
FDA Public Meeting Opportunity - Patients "At the Table" (Ep 53)
This week join your patient co-host Danielle Dass as she reports back on her experience attending an American Food and Drug Administration Public Meeting on behalf of the International Foundation for Autoimmune and Autoinflammatory Arthritis. First aired January 10, 2021, and the episode page carries the full transcript.
FDA Public Meeting Opportunity - Patients "At the Table" (Ep 53) ● Answers what the treatments are and how they work; how to take part ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Remission; Care Partners; Co-Existing Conditions ● Topic Treatment and medication; Food and nutrition ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for FDA Public Meeting Opportunity - Patients "At the Table" (Ep 53): https://www.aiarthritis.org/talkshow-ep53
An Unprecedented End of Year Review (Ep 52)
This week, join patient co-host, Tiffany, as she gives our annual “Year End Review'' reflection. In honor of this unprecedented year, this episode will not be the usual briefing on work accomplished in 2020. Rather, Tiffany parallels this “unprecedented year” to living with chronic illness and, in turn, why the work at Ai Arthritis is so important. First aired December 27, 2020, and the episode page carries the full transcript.
An Unprecedented End of Year Review (Ep 52) ● Answers what to do when cost or coverage blocks treatment; how to take part ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed ● Topic Work, school and money; Lived experience ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for An Unprecedented End of Year Review (Ep 52): https://www.aiarthritis.org/talkshow-ep52
Oh Mama! Physical and Emotional Support Postpartum (Ep 51)
This week join your patient co-hosts Danielle Dass and Mariah Leach as they are joined by guest patient co-host Cheryl Crow to discuss postpartum needs of Ai Arthritis Patients. First aired December 13, 2020, and the episode page carries the full transcript.
Oh Mama! Physical and Emotional Support Postpartum (Ep 51) ● Answers what I can do myself day to day; how to take part ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Co-Existing Conditions; Care Partners ● Topic Family, pregnancy and parenting; Living with it day to day ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Oh Mama! Physical and Emotional Support Postpartum (Ep 51): https://www.aiarthritis.org/talkshow-ep51
Grit, Gratitude, and Grace: How a Positive Mindset Can Improve Pain and Resilience (Ep 50)
Join Tiffany, Deb, and Patrice as they review a session from the American College of Rheumatology (ACR) 2020 conference about pain and the brain/body connection. First aired November 29, 2020, and the episode page carries the full transcript.
Grit, Gratitude, and Grace: How a Positive Mindset Can Improve Pain and Resilience (Ep 50) ● Answers what I can do myself day to day; what the research says ● Journey stage Newly Diagnosed; Living With Disease OR Diagnosed; Care Partners ● Topic Living with it day to day; Research and conferences ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Grit, Gratitude, and Grace: How a Positive Mindset Can Improve Pain and Resilience (Ep 50): https://www.aiarthritis.org/talkshow-ep50
Your disease, my disease, Still's disease - what are doctors learning to expedite diagnosis? (Ep 49)
Join Tiffany, Deb, and Patrice as they review two sessions, both that focused on educating doctors about Still's disease. This is relevant for all people living with our diseases, Stills disease or otherwise, because it's our experiences (Case Studies) that really help expedite diagnosis. Want to learn more about the research and education from ACR 2020? Listen now! First aired November 15, 2020, and the episode page carries the full transcript.
Your disease, my disease, Still's disease - what are doctors learning to expedite diagnosis? (Ep 49) covers conditions and terms also written as adult-onset Still's disease, AOSD, systemic juvenile idiopathic arthritis or sJIA.
Your disease, my disease, Still's disease - what are doctors learning to expedite diagnosis? (Ep 49) ● Answers what the research says; how it is diagnosed ● Disease Still's Disease ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Care Partners ● Topic Research and conferences; Lived experience ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Your disease, my disease, Still's disease - what are doctors learning to expedite diagnosis? (Ep 49): https://www.aiarthritis.org/talkshow-ep49
Support: It's not so simple. Diverse needs for difference experiences. (Ep 48)
Join Patrice, Effie, and Rick as they share their experiences with support, which all differ per personal relationships and perspectives. That means there are different needs that we must address to help everyone. What's YOUR experience? First aired November 1, 2020, and the episode page carries the full transcript.
Support: It's not so simple. Diverse needs for difference experiences. (Ep 48) ● Answers what it is; how to take part ● Journey stage Newly Diagnosed; Living With Disease OR Diagnosed; Care Partners ● Topic Disease information; Advocacy and policy ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Support: It's not so simple. Diverse needs for difference experiences. (Ep 48): https://www.aiarthritis.org/talkshow-ep48
Teamwork Makes the Dream Work: Ai Arthritis WINS Best Team Performance 2020 (Ep 47)
Join Tiffany, and several of the Ai Arthritis show co-hosts and organization volunteers, as they watch the WEGO Health LIVE Awards ceremony ... only to learn that Ai Arthritis won 2020 Best Team Performance! First aired October 18, 2020, and the episode page carries the full transcript.
Teamwork Makes the Dream Work: Ai Arthritis WINS Best Team Performance 2020 (Ep 47) ● Answers what to do when cost or coverage blocks treatment; how to take part ● Journey stage Living With Disease OR Diagnosed ● Topic Work, school and money ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Teamwork Makes the Dream Work: Ai Arthritis WINS Best Team Performance 2020 (Ep 47): https://www.aiarthritis.org/talkshow-ep47
The "A" Word (Ep 46)
In this episode, join Tiffany, Rick, Effie, Deb, Patrice, Suz, and Judy as they talk about the frustrations surrounding the word "arthritis". They talk about how misunderstandings lead to delays in diagnosis and treatment and public confusion (it's not all the same!) They also go into a touchy subject, changing disease names to avoid the word altogether. First aired October 4, 2020, and the episode page carries the full transcript.
The "A" Word (Ep 46) ● Answers what the treatments are and how they work; how it is diagnosed ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Care Partners ● Topic Treatment and medication ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for The "A" Word (Ep 46): https://www.aiarthritis.org/talkshow-ep46
This Is For All the Marbles (Ep 45)
In this episode join your host, Tiffany Westrich-Robertson, who explains each person, and our associated roles, are like marbles. If each stakeholder group is a color, and only one color is in the jar, we will never develop solutions that matter to all stakeholders involved in the problem. First aired September 20, 2020, and the episode page carries the full transcript.
This Is For All the Marbles (Ep 45) ● Answers what to say, and to whom; how to take part ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Care Partners ● Topic Talking to your care team; Getting involved with Ai Arthritis ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for This Is For All the Marbles (Ep 45): https://www.aiarthritis.org/talkshow-ep45
Patient-Reported Symptoms: Connecting the dots to improve education (Ep 44)
Join your patient host, Tiffany Westrich-Robertson, CEO of Ai Arthritis , as she discusses the mission and future projects of The International Foundation for Autoimmune and Autoinflammatory Arthritis and the Ai Arthritis Voices 360 Podcast. First aired September 6, 2020, and the episode page carries the full transcript.
Patient-Reported Symptoms: Connecting the dots to improve education (Ep 44) ● Answers how to take part ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed ● Topic Getting involved with Ai Arthritis ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Patient-Reported Symptoms: Connecting the dots to improve education (Ep 44): https://www.aiarthritis.org/talkshow-ep44
Support - It's a Family Affair (Ep 43)
Join Tiffany, Estela, and Juana as they discuss the importance of family support for people with autoimmune and autoinflammatory arthritis. First aired August 30, 2020, and the episode page carries the full transcript.
Support - It's a Family Affair (Ep 43) ● Answers what I can do myself day to day; how to take part ● Journey stage Newly Diagnosed; Living With Disease OR Diagnosed; Care Partners ● Topic Family, pregnancy and parenting; Advocacy and policy ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Support - It's a Family Affair (Ep 43): https://www.aiarthritis.org/talkshow-ep43
Treat 2 Target Today with Complex Diseases - Is It Possible? (Ep 42)
Tiffany and Rick discuss the challenges involved as Treat 2 Target has emerged from aggressive treatments for a larger population to treating per the individual and based on the complexity of each disease. First aired August 23, 2020, and the episode page carries the full transcript.
Treat 2 Target Today with Complex Diseases - Is It Possible? (Ep 42) ● Answers what the research says; what the treatments are and how they work ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Care Partners ● Topic Research and conferences ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Treat 2 Target Today with Complex Diseases - Is It Possible? (Ep 42): https://www.aiarthritis.org/talkshow-ep42
Biomarkers - Diagnosis, Disease Management, & even PREVENTION?! (Ep 41)
Tiffany and Patrice discuss the importance of biomarkers. Do biomarkers hold the key to understanding disease severity and predicting disease onset? First aired August 16, 2020, and the episode page carries the full transcript.
Biomarkers - Diagnosis, Disease Management, & even PREVENTION?! (Ep 41) ● Answers what it is; how it is diagnosed ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Co-Existing Conditions; Care Partners ● Topic Disease information; Research and conferences ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Biomarkers - Diagnosis, Disease Management, & even PREVENTION?! (Ep 41): https://www.aiarthritis.org/talkshow-ep41
Research at a Glance - Posters & Abstracts: Patient reviewers, here we come! (Ep 40)
Join TIffany as she talks about the importance for both patients and organizations to review Posters/Abstracts and invites all patients to join her to continue the reviews as part of our "Go with Us" to EULAR 2020 initiative. First aired August 9, 2020, and the episode page carries the full transcript.
Research at a Glance - Posters & Abstracts: Patient reviewers, here we come! (Ep 40) ● Answers what the research says; how to take part ● Journey stage Newly Diagnosed; Living With Disease OR Diagnosed ● Topic Research and conferences ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Research at a Glance - Posters & Abstracts: Patient reviewers, here we come! (Ep 40): https://www.aiarthritis.org/talkshow-ep40
Patient Engagement in Research - the OMERACT Experience (Ep 39)
New primary outcomes (endpoints that should be measured) in rheumatology trials where shared-decision making between doctors and patients are required...and patients were part of this historic decision. This was part of the international, collaborative of rheumatology stakeholders, OMERACT .... and Deb and Tiffany were there and they want to tell you all about it! First aired August 2, 2020, and the episode page carries the full transcript.
Patient Engagement in Research - the OMERACT Experience (Ep 39) ● Answers what to say, and to whom; what the research says ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Care Partners ● Topic Talking to your care team; Research and conferences ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Patient Engagement in Research - the OMERACT Experience (Ep 39): https://www.aiarthritis.org/talkshow-ep39
Patient-Led Research Review from EULAR 2020: Treat to Target - Remission IS Possible! (Ep 38)
Tiffany Westrich-Robertson, Deb Constien, and Patrice Johnson, all persons living with Ai Arthritis diseases, share an excerpt of their LIVE research review on Treat to Target and Remission, from the European League Against Rheumatism (EULAR) scientific e-Congress 2020. First aired July 26, 2020, and the episode page carries the full transcript.
Patient-Led Research Review from EULAR 2020: Treat to Target - Remission IS Possible! (Ep 38) covers conditions and terms also written as T2T.
Patient-Led Research Review from EULAR 2020: Treat to Target - Remission IS Possible! (Ep 38) ● Answers what the treatments are and how they work; what the research says ● Journey stage Newly Diagnosed; Living With Disease OR Diagnosed; Care Partners ● Topic Treatment and medication; Research and conferences ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Patient-Led Research Review from EULAR 2020: Treat to Target - Remission IS Possible! (Ep 38): https://www.aiarthritis.org/talkshow-ep38
Patient? Nonprofit? Researcher? Healthcare Services? You're invited to an experience that can change our future. (Ep 37)
It's finally ready! Two years in the works, but now the communication platforms, led by expert patient facilitators, are in place. An online site, called Ai Arthritis Voices, will tie in our online conversations, YouTube channel, live "tours", and educational gatherings) with all the topics we cover on our Ai Arthritis Voices 360 Podcast. First aired July 19, 2020, and the episode page carries the full transcript.
Patient? Nonprofit? Researcher? Healthcare Services? You're invited to an experience that can change our future. (Ep 37) ● Answers what it feels like; what to say, and to whom ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Care Partners ● Topic Lived experience; Getting involved with Ai Arthritis ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Patient? Nonprofit? Researcher? Healthcare Services? You're invited to an experience that can change our future. (Ep 37): https://www.aiarthritis.org/talkshow-ep37
Preparing Patients for Precision Medicine- Collaboration with the Rheumatology Nurses Society (Ep 36)
Tiffany Westrich-Robertson, is joined by patient Co-Host, Katie Steele. They speak with Carrie Beach, RN, from the Rheumatology Nurses Society (RNS) about our collaboration to improve patient voices in education and research (featuring our award-finalist Preparing Patients for Precision Medicine project). First aired July 12, 2020, and the episode page carries the full transcript.
Preparing Patients for Precision Medicine- Collaboration with the Rheumatology Nurses Society (Ep 36) ● Answers what the treatments are and how they work; what the research says ● Journey stage Newly Diagnosed; Living With Disease OR Diagnosed ● Topic Treatment and medication; Research and conferences ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Preparing Patients for Precision Medicine- Collaboration with the Rheumatology Nurses Society (Ep 36): https://www.aiarthritis.org/talkshow-ep36
EULAR 2020 e-Congress: Research Debrief (Ep 34)
Join Tiffany, Deb, and Patrice as they are learning while having a great time (click on the video, you'll see!) as they have been "at EULAR 2020" all June, which was supposed to take place in Germany June 3-6....but now it's ONLINE with information available through September 1st. Why cram all of this into 4 days when we can attend at our pace "flare free"? AND YOU CAN BE PART OF IT! First aired June 28, 2020, and the episode page carries the full transcript.
EULAR 2020 e-Congress: Research Debrief (Ep 34) ● Answers how long it lasts and what to expect; what the research says ● Journey stage Living With Disease OR Diagnosed; Newly Diagnosed; Care Partners ● Topic Symptoms and flares; Research and conferences ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for EULAR 2020 e-Congress: Research Debrief (Ep 34): https://www.aiarthritis.org/talkshow-ep34
From Mini to Mega - Expanding the Table! (Mini-Ep 29)
This week is our official last mini-episode Wednesday. But don't worry! The podcast episodes will continue to air on Sundays, which will combine both full episodes and the traditional mini's that used to air on Wednesday's. First aired June 24, 2020, and the episode page carries the full transcript.
From Mini to Mega - Expanding the Table! (Mini-Ep 29) ● Answers what it feels like ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Care Partners ● Topic Lived experience ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for From Mini to Mega - Expanding the Table! (Mini-Ep 29): https://www.aiarthritis.org/talkshow-miniep29
You'll Always be my Baby (Ep 33)
In this episode, which aired on Father's Day 2020, Tiffany Westrich-Robertson, CEO of the International Foundation for Autoimmune & Autoinflammatory Arthritis ( Ai Arthritis ) reflects on her choices about motherhood. First aired June 21, 2020, and the episode page carries the full transcript.
You'll Always be my Baby (Ep 33) ● Answers what I can do myself day to day ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Care Partners ● Topic Family, pregnancy and parenting ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for You'll Always be my Baby (Ep 33): https://www.aiarthritis.org/talkshow-ep33
It's Not All "Arthritis": Osteoarthritis versus Ai Arthritis (Mini-Ep 28)
Join Tiffany Westrich-Robertson, as she discusses the importance of raising awareness as she teaches you how to creatively compare different arthritis types through Auto-themed activities. First aired June 17, 2020, and the episode page carries the full transcript.
It's Not All "Arthritis": Osteoarthritis versus Ai Arthritis (Mini-Ep 28) ● Answers how to take part; what it is ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed ● Topic Awareness days and campaigns; Disease information ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for It's Not All "Arthritis": Osteoarthritis versus Ai Arthritis (Mini-Ep 28): https://www.aiarthritis.org/talkshow-miniep28
Differentiating Arthritis Types - AUTO + Arthritis = Early Detection, Referrals, Diagnosis (Ep 32)
Join patient co-hosts, Tiffany & Suz, as they speak with Dr. Alfred Kim about how the two stakeholder groups can work together to encourage differentiation of arthritis types to increase public detection and referrals to rheumatologists. These efforts could lead to earlier detection and, as a result, quicker diagnosis, higher rates of remission, lower disability, and improved long term outcomes. First aired June 14, 2020, and the episode page carries the full transcript.
Differentiating Arthritis Types - AUTO + Arthritis = Early Detection, Referrals, Diagnosis (Ep 32) ● Answers what the treatments are and how they work; how long it lasts and what to expect ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Care Partners ● Topic Treatment and medication; Work, school and money ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Differentiating Arthritis Types - AUTO + Arthritis = Early Detection, Referrals, Diagnosis (Ep 32): https://www.aiarthritis.org/talkshow-ep32
Your experience is key to unraveling the mysteries of COVID-19 - is your experience being counted? (Mini-Ep 27)
Our community is asking many questions about how COVID-19 affected our diseases. The only way researchers can gain enough data to fully answer these questions is if all our experiences are counted. So if you think you had COVID-19, whether you tested positive, or not, or even had a test at all, we want to hear from you! First aired June 10, 2020, and the episode page carries the full transcript.
Your experience is key to unraveling the mysteries of COVID-19 - is your experience being counted? (Mini-Ep 27) ● Answers what the treatments are and how they work; how it is diagnosed ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed; Co-Existing Conditions ● Topic Treatment and medication; Lived experience ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Your experience is key to unraveling the mysteries of COVID-19 - is your experience being counted? (Mini-Ep 27): https://www.aiarthritis.org/talkshow-miniep27
E-Health SURGE - Impacting Rheumy Visits (Ep 31)
Join patient co-hosts, Tiffany & Deb, as they speak with Dr. Zickuhr about current efforts to streamline e-health visits. Which patients will be seen in person? Which will use tele-health or video calls? Deb and Tiffany weigh in with their experiences and opinions and they all discuss the need to include patients in the discussions as new protocols emerge. First aired June 7, 2020, and the episode page carries the full transcript.
E-Health SURGE - Impacting Rheumy Visits (Ep 31) ● Answers what to say, and to whom; how to take part ● Journey stage Living With Disease OR Diagnosed; Co-Existing Conditions; Remission ● Topic Talking to your care team ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for E-Health SURGE - Impacting Rheumy Visits (Ep 31): https://www.aiarthritis.org/talkshow-ep31
Special Announcement: Ai Arthritis is LIVE on YouTube for EULAR! **No longer available (Mini-Ep 26)
Meet the team of Ai Arthritis patients "going" to EULAR 2020 this year, and since it's online YOU can go too! Join us for post-session discussions, research reviews, and even German-style dinner debriefs (the conference was supposed to be in Germany). EULAR is opening the virtual doors to patients so why try and navigate the scene alone? Go with the experts, US! First aired June 3, 2020, and the episode page carries the full transcript.
Special Announcement: Ai Arthritis is LIVE on YouTube for EULAR! **No longer available (Mini-Ep 26) ● Answers what I can do myself day to day; what the research says ● Journey stage Living With Disease OR Diagnosed ● Topic Food and nutrition; Research and conferences ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Special Announcement: Ai Arthritis is LIVE on YouTube for EULAR! **No longer available (Mini-Ep 26): https://www.aiarthritis.org/talkshow-miniep26
Conference Follow Up: EULAR 2019 e-Health Panelist - Where is e-Health research now that COVID-19 has forced its use? (Ep 30)
This week join Tiffany Westrich-Robertson, Deb Majcher Constien, and Aurelie Najm as they discuss the importance of conferences. They continue the discrussion from the EULAR, European League Against Rheumatism congress in Madrid, Spain (2019) Tiffany and Deb attended a session on the existing efforts to advance e-health, so we could reach more rheumatic patients and, in turn, improve their health. First aired May 31, 2020, and the episode page carries the full transcript.
Conference Follow Up: EULAR 2019 e-Health Panelist - Where is e-Health research now that COVID-19 has forced its use? (Ep 30) ● Answers what the research says; what the treatments are and how they work ● Journey stage Living With Disease OR Diagnosed; Co-Existing Conditions; Care Partners ● Topic Treatment and medication; Research and conferences ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Conference Follow Up: EULAR 2019 e-Health Panelist - Where is e-Health research now that COVID-19 has forced its use? (Ep 30): https://www.aiarthritis.org/talkshow-ep30
COVID-19 & Ai Arthritis (Ep 29)
In this episode, we revisit our work to help those affected by Ai Arthritis navigate the landscape of COVID-19 by bringing back show Co-Host, Danielle, International Foundation for Autoimmune and Autoinflammatory Arthritis volunteer, former educator (teaching geography, including pandemics), and person living with Ai Arthritis diseases. First aired May 27, 2020, and the episode page carries the full transcript.
COVID-19 & Ai Arthritis (Ep 29) ● Answers how it is diagnosed; how to take part ● Journey stage Living With Disease OR Diagnosed; Co-Existing Conditions ● Topic Getting diagnosed; Treatment and medication ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for COVID-19 & Ai Arthritis (Ep 29): https://www.aiarthritis.org/talkshow-ep29
Co-Founders Introduce the AUTO Ball Online (Ep 28)
This week join the co-founders of the International Foundation for Autoimmune and Autoinflammatory Arthritis ( Ai Arthritis ) , Tiffany Westrich-Robertson, Kelly Conway, and Tami Caskey-Brown as they introduce the AUTO Ball. This episode is the first episode in our AUTO Ball Series. First aired May 24, 2020, and the episode page carries the full transcript.
Co-Founders Introduce the AUTO Ball Online (Ep 28) ● Answers how to take part ● Journey stage Undiagnosed/Mystery Patient; Living With Disease OR Diagnosed; Co-Existing Conditions ● Topic Awareness days and campaigns ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Co-Founders Introduce the AUTO Ball Online (Ep 28): https://www.aiarthritis.org/talkshow-ep28
Patients + Doctors = Treatment Decisions ... Right? (Mini-Ep 25)
This week join your host Tiffany Westrich-Robertson, CEO of International Foundation for Ai Arthritis , as she discusses the inherent desire of patients to make decisions with their doctors regarding treatment decisions without interference from insurance companies or governing agencies. First aired May 13, 2020, and the episode page carries the full transcript.
Patients + Doctors = Treatment Decisions ... Right? (Mini-Ep 25) ● Answers what the treatments are and how they work; what to do when cost or coverage blocks treatment ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed; Living With Disease OR Diagnosed ● Topic Treatment and medication; Work, school and money ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Patients + Doctors = Treatment Decisions ... Right? (Mini-Ep 25): https://www.aiarthritis.org/talkshow-miniep25
There's a Method to Our Madness (Ep 27)
In this episode Tiffany revisits one of the first mini-sodes we aired, “The importance of differentiating arthritis types” (November 29th, Mini-Ep2) to demonstrate how we put each topic “on the table” in Step 2 and then revisit it again in Step 5, after inviting YOU “to the table’ to be part of the conversation. First aired May 10, 2020, and the episode page carries the full transcript.
There's a Method to Our Madness (Ep 27) ● Answers how to take part ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed ● Topic Advocacy and policy ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for There's a Method to Our Madness (Ep 27): https://www.aiarthritis.org/talkshow-ep27
E-Health: Taking our Healthcare Online - What's working and what isn't? (Mini-Ep 24)
This week join your patient co-host Tiffany Westrich-Robertson, CEO of International Foundation for Ai Arthritis , to discuss the subject of distance medicine and electronic health. Tiffany shares her recent experience with distance medicine as a result of the COVID-19 pandemic and discusses some of the concerns and implications of expanding the use of telemedicine appointments, electronic medical... First aired May 6, 2020, and the episode page carries the full transcript.
E-Health: Taking our Healthcare Online - What's working and what isn't? (Mini-Ep 24) ● Answers what the treatments are and how they work; what to say, and to whom ● Journey stage Living With Disease OR Diagnosed; Newly Diagnosed; Co-Existing Conditions ● Topic Treatment and medication; Lived experience ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for E-Health: Taking our Healthcare Online - What's working and what isn't? (Mini-Ep 24): https://www.aiarthritis.org/talkshow-miniep24
Global Awareness - Your Story Can Impact Change (Ep 26)
Tiffany Westrich-Robertson and Pooja Panchamia discuss the need for raising global awareness for autoimmune and autoinflammatory arthritis diseases. They talk about the problems patients everywhere face as a result of a lack of awareness of autoimmune and autoinflammatory arthritis diseases. First aired May 3, 2020, and the episode page carries the full transcript.
Global Awareness - Your Story Can Impact Change (Ep 26) ● Answers how to take part ● Journey stage Care Partners; Undiagnosed/Mystery Patient; Newly Diagnosed ● Topic Awareness days and campaigns; Disease information ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Global Awareness - Your Story Can Impact Change (Ep 26): https://www.aiarthritis.org/talkshow-ep26
Identities Matter: Pronouns & the Online Community (Mini-Ep 23)
This week join your patient co-hosts Tiffany Westrich-Robertson, CEO of International Foundation for Ai Arthritis , and Charis Hill, a professionally disabled writer, speaker, and patient advocate as they discuss the sensitive topic of preferred pronouns and misgendering non-binary and transgendered individuals. First aired April 29, 2020, and the episode page carries the full transcript.
Identities Matter: Pronouns & the Online Community (Mini-Ep 23) ● Answers how to take part ● Journey stage Living With Disease OR Diagnosed; Newly Diagnosed ● Topic Advocacy and policy ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Identities Matter: Pronouns & the Online Community (Mini-Ep 23): https://www.aiarthritis.org/talkshow-miniep23
Online AUTO Ball: Still Changing the World From Our Sofas (Ep 25)
This week join your patient co-host Tiffany Westrich-Robertson, CEO of International Foundation for Ai Arthritis , as she announces a significant change in plans for the AUTO Ball and tells you how to get involved too, from YOUR sofa! Since our inception in 2011, we have been functioning primarily as an online entity. First aired April 26, 2020, and the episode page carries the full transcript.
Online AUTO Ball: Still Changing the World From Our Sofas (Ep 25) ● Answers what the treatments are and how they work; how to take part ● Journey stage Newly Diagnosed; Living With Disease OR Diagnosed ● Topic Treatment and medication; Awareness days and campaigns ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Online AUTO Ball: Still Changing the World From Our Sofas (Ep 25): https://www.aiarthritis.org/talkshow-ep25
COVID-19 & Pets (Mini-Ep 22)
This week join your patient host Kelly Conway, co-founder of International Foundation for Ai Arthritis , as she updates us all on the state of the COVID-19 pandemic as it relates to pets and their owners. She gives a thorough review of what all owners should do to protect and care for their pets, service animals, or emotional support animals during the pandemic. First aired April 22, 2020, and the episode page carries the full transcript.
COVID-19 & Pets (Mini-Ep 22) ● Answers what the treatments are and how they work; how to take part ● Journey stage Care Partners; Living With Disease OR Diagnosed; Newly Diagnosed ● Topic Treatment and medication; Living with it day to day ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for COVID-19 & Pets (Mini-Ep 22): https://www.aiarthritis.org/talkshow-miniep22
Ethnic Diversity in Clinical Trials - We Are All Unique So All Voices Must Be Counted! (Ep 24)
Join Tiffany, Estela, & Juana as they discuss the challenges associated with recruiting minorities in clinical trials and discuss ways to address the barriers so all ethnicities are included. First aired April 19, 2020, and the episode page carries the full transcript.
Ethnic Diversity in Clinical Trials - We Are All Unique So All Voices Must Be Counted! (Ep 24) ● Answers what the research says; how to take part ● Journey stage Newly Diagnosed; Living With Disease OR Diagnosed ● Topic Research and conferences ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Ethnic Diversity in Clinical Trials - We Are All Unique So All Voices Must Be Counted! (Ep 24): https://www.aiarthritis.org/talkshow-ep24
COVID-19 & Gloves: Handy Precautions to Keep You Safe (Mini-Ep 21)
Join Danielle, official show patient co-host, and Kristen, guest patient co-host from the medical field, as they talk about whether or not you should use gloves for COVID-19. First aired April 15, 2020, and the episode page carries the full transcript.
COVID-19 & Gloves: Handy Precautions to Keep You Safe (Mini-Ep 21) ● Answers what the treatments are and how they work; how to take part ● Journey stage Living With Disease OR Diagnosed; Newly Diagnosed; Undiagnosed/Mystery Patient ● Topic Treatment and medication ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for COVID-19 & Gloves: Handy Precautions to Keep You Safe (Mini-Ep 21): https://www.aiarthritis.org/talkshow-miniep21
COVID-19 & Ai Arthritis (Ep 23)
Join Danielle, official show patient co-host, and Kristen, guest patient co-host from the medical field, as they talk about types of masks and what you need to understand to stay safe. First aired April 12, 2020, and the episode page carries the full transcript.
COVID-19 & Ai Arthritis (Ep 23) ● Answers what the treatments are and how they work; how to take part ● Journey stage Living With Disease OR Diagnosed ● Topic Treatment and medication; Disease information ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for COVID-19 & Ai Arthritis (Ep 23): https://www.aiarthritis.org/talkshow-ep23
COVID-19 is #NotMyNewNormal (Mini-Ep 20)
Join Effie as she discusses why the coronavirus scare resembles what it's like to live with a chronic illness. First aired April 8, 2020, and the episode page carries the full transcript.
COVID-19 is #NotMyNewNormal (Mini-Ep 20) ● Answers what the treatments are and how they work; how to take part ● Journey stage Living With Disease OR Diagnosed ● Topic Treatment and medication; Advocacy and policy ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for COVID-19 is #NotMyNewNormal (Mini-Ep 20): https://www.aiarthritis.org/talkshow-miniep20
Myth Busting CBD & COVID-19 (Mini-Ep 19)
In this mini-episode, join Bridget Dandaraw-Seritt, founder of the Canna Patient Resource Connection, as she tackles myths and misinformation circulating about CBD and COVID-19. Is it true that CBD can kill the coronavirus? Can the alleged anti-inflammatory properties of CBD protect you from a COVID-19 initiated cytokine storm? Does CBD have antiviral properties? First aired April 1, 2020, and the episode page carries the full transcript.
Myth Busting CBD & COVID-19 (Mini-Ep 19) ● Answers what the treatments are and how they work; how to take part ● Journey stage Living With Disease OR Diagnosed ● Topic Treatment and medication; Food and nutrition ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Myth Busting CBD & COVID-19 (Mini-Ep 19): https://www.aiarthritis.org/talkshow-miniep19
#HighRiskCOVID19: Reality Check from the Immunocompromised Community (Ep 21)
This episode join your hosts Kelly Conway and Charis Hill to discuss COVID-19 and the potential impact on the Ai Arthritis Community. This is the third episode in a breakout series on COVID-19 and what you can do to protect yourself during the pandemic. First aired March 29, 2020, and the episode page carries the full transcript.
#HighRiskCOVID19: Reality Check from the Immunocompromised Community (Ep 21) ● Answers what the treatments are and how they work; how to take part ● Journey stage Living With Disease OR Diagnosed; Co-Existing Conditions ● Topic Treatment and medication; Living with it day to day ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for #HighRiskCOVID19: Reality Check from the Immunocompromised Community (Ep 21): https://www.aiarthritis.org/talkshow-ep21
The Juggling Act: Living with Multiple Conditions (Ep 18)
In this episode of Ai Arthritis Voices, patient co-hosts Tiffany Westrich-Robertson and Simon Stones discuss the prevalence and logistics of living with multiple conditions. Most health systems have moved away from a model where General Practitioners/Primary Care Physicians are managing all aspects of patient care to a model that places more emphasis on specialists and a depth of expertise in a... First aired March 15, 2020, and the episode page carries the full transcript.
The Juggling Act: Living with Multiple Conditions (Ep 18) ● Answers what it feels like; how to take part ● Journey stage Living With Disease OR Diagnosed ● Topic Lived experience; Getting involved with Ai Arthritis ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for The Juggling Act: Living with Multiple Conditions (Ep 18): https://www.aiarthritis.org/talkshow-ep18
Workplace Discrimination (Ep 17)
Join co-hosts Tiffany Westrich-Robertson and Danielle Dass as they discuss discrimination against disabled people in the workplace. They dig into workplace accommodations, what to do if you are a victim of discrimination at work, and the connection between ableism and poor treatment of disabled employees. First aired March 8, 2020, and the episode page carries the full transcript.
Workplace Discrimination (Ep 17) ● Answers what the treatments are and how they work; what to say, and to whom ● Journey stage Living With Disease OR Diagnosed; Co-Existing Conditions ● Topic Treatment and medication; Work, school and money ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Workplace Discrimination (Ep 17): https://www.aiarthritis.org/talkshow-ep17
Unpredictable Disease in a Need-to-Be Predictable Environment (Mini-Ep 16)
In this weeks episode we talk about the challenge of having an unpredictable disease when you are in a situation that demands predictability. Tiffany shares an experience she had when summoned to jury duty. Perhaps you have been an employee, patron, or student of an organization that adheres to rigid scheduling and fixed timelines. First aired March 4, 2020, and the episode page carries the full transcript.
Unpredictable Disease in a Need-to-Be Predictable Environment (Mini-Ep 16) ● Answers what it feels like ● Journey stage Living With Disease OR Diagnosed ● Topic Lived experience ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Unpredictable Disease in a Need-to-Be Predictable Environment (Mini-Ep 16): https://www.aiarthritis.org/talkshow-miniep16
CBD - It's Everywhere! (Ep 16)
Join patient co-hosts Tiffany from Ai Arthritis and Bridget from the Canna-Patient Resource as they openly discuss CBD and medical marijuana as it is becoming available in many parts of the world, and many with chronic pain are interested in trying it, some are interested if they can use it without experiencing the effects of feeling 'high'. But how is this possible? First aired March 1, 2020, and the episode page carries the full transcript.
CBD - It's Everywhere! (Ep 16) ● Answers how long it lasts and what to expect; how to take part ● Journey stage Living With Disease OR Diagnosed ● Topic Symptoms and flares; Awareness days and campaigns ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for CBD - It's Everywhere! (Ep 16): https://www.aiarthritis.org/talkshow-ep16
Shared Decision Making Tools to Advance Precision Medicine: Get Involved! (Mini-Ep 15)
This week’s topic is shared decision making. In preparation for precision medicine, Ai Arthritis is working on developing tools to support and facilitate conversations between patients and their doctors. Tune in to learn about the initiative and other opportunities to share your voice to influence shared decision making. First aired February 26, 2020, and the episode page carries the full transcript.
Shared Decision Making Tools to Advance Precision Medicine: Get Involved! (Mini-Ep 15) ● Answers what the treatments are and how they work; how to take part ● Journey stage Living With Disease OR Diagnosed; Remission ● Topic Treatment and medication; Talking to your care team ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Shared Decision Making Tools to Advance Precision Medicine: Get Involved! (Mini-Ep 15): https://www.aiarthritis.org/talkshow-miniep15
Internalized Ableism: Finding Your Freedom to Participate in Life (Ep 15)
This episode join co-hosts Charis Hill and Tiffany Westrich-Robertson as they discuss the important topic of overcoming internalized ableism, both individually and as a society. They discuss the reasons people living with Ai Arthritis diseases may find it difficult to transition to identifying as a disabled person. First aired February 23, 2020, and the episode page carries the full transcript.
Internalized Ableism: Finding Your Freedom to Participate in Life (Ep 15) ● Answers what I can do myself day to day; how to take part ● Journey stage Living With Disease OR Diagnosed ● Topic Living with it day to day; Disability and accommodations ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Internalized Ableism: Finding Your Freedom to Participate in Life (Ep 15): https://www.aiarthritis.org/talkshow-ep15
When our past impacts our present - the office visit (Mini-Ep 14)
Dr. Kim states he is typically already prepared for how the visit will go before ever walking in the room. However, Tiffany pointed out that patients not only come to the visit potentially planning to present new information, but that past experiences throughout their disease journey also will impact the visit dynamic. First aired February 19, 2020, and the episode page carries the full transcript.
When our past impacts our present - the office visit (Mini-Ep 14) ● Answers what to say, and to whom ● Journey stage Living With Disease OR Diagnosed ● Topic Talking to your care team; Lived experience ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for When our past impacts our present - the office visit (Mini-Ep 14): https://www.aiarthritis.org/talkshow-miniep14
Rheumy Rounds™: Office Visit Communication Obstacles - Dr. Google, Communication Tools, & when to say goodbye (Ep 14)
Join patient co-hosts Tiffany and Kelly, along with roundtable guests rheumatologist, Dr. Alfred Kim, and graduate researcher Jerik Leung, as they conclude the first conversation in our exciting breakout series called Rheumy Rounds on improving communication between doctors and patients. First aired February 16, 2020, and the episode page carries the full transcript.
Rheumy Rounds™: Office Visit Communication Obstacles - Dr. Google, Communication Tools, & when to say goodbye (Ep 14) ● Answers what to say, and to whom; how to take part ● Journey stage Living With Disease OR Diagnosed; Care Partners ● Topic Talking to your care team ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Rheumy Rounds™: Office Visit Communication Obstacles - Dr. Google, Communication Tools, & when to say goodbye (Ep 14): https://www.aiarthritis.org/talkshow-ep14
Rheumy Rounds Breakout: Social Support Research and the Importance of Being Heard (Mini-Ep 13)
This week listen to an excerpt from Part One of our pilot episode of Rheumy Rounds™. This mini-episode captures a break out discussion between Kelly and Jerik about the research Jerik and his team have been working on regarding social support and the need for people with Ai Arthritis diseases to find others, like us, who understand our journey. First aired February 12, 2020, and the episode page carries the full transcript.
Rheumy Rounds Breakout: Social Support Research and the Importance of Being Heard (Mini-Ep 13) ● Answers what to say, and to whom; what the research says ● Journey stage Living With Disease OR Diagnosed; Care Partners ● Topic Talking to your care team; Research and conferences ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Rheumy Rounds Breakout: Social Support Research and the Importance of Being Heard (Mini-Ep 13): https://www.aiarthritis.org/talkshow-MiniEP13
Rheumy Rounds™ Pilot Episode: Office Visit Communication Obstacles (Ep 13)
Join your patient co-hosts, Tiffany and Kelly, as they are joined by roundtable guests, rheumatologist, Dr. Alfred Kim, and graduate researcher Jerik Leung -as we dive right into the heart of the issue, communication barriers that currently exist between patients and their rheumatologists in the office setting. First aired February 9, 2020, and the episode page carries the full transcript.
Rheumy Rounds™ Pilot Episode: Office Visit Communication Obstacles (Ep 13) ● Answers what to say, and to whom; how to take part ● Journey stage Living With Disease OR Diagnosed; Care Partners ● Topic Talking to your care team ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Rheumy Rounds™ Pilot Episode: Office Visit Communication Obstacles (Ep 13): https://www.aiarthritis.org/talkshow-ep13
Intro to Rheumy Rounds: Patients & Rheumies Unite! (Mini-Ep 12)
This week we introduce the new breakout series “Rheumy Rounds”, debuting Sunday, February 9th. Two very important stakeholders, the rheumy and the patient, unite in roundtable discussions so each party can equally contribute knowledge so, together, we can solve important issues and improve outcomes! First aired February 5, 2020, and the episode page carries the full transcript.
Intro to Rheumy Rounds: Patients & Rheumies Unite! (Mini-Ep 12) ● Answers what to say, and to whom ● Journey stage Living With Disease OR Diagnosed; Care Partners ● Topic Talking to your care team ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Intro to Rheumy Rounds: Patients & Rheumies Unite! (Mini-Ep 12): https://www.aiarthritis.org/talkshow-MiniEP12
Invisible Impact: Ai Arthritis Diseases (Ep 12)
Join Tiffany and Effie as they discuss the challenges of living with an invisible illness or disability. We hope this episode will be the first step to raising awareness and empathy for people suffering in silence. Our diseases start at the cellular level, so pain and other symptoms begin well before any damage. First aired February 2, 2020, and the episode page carries the full transcript.
Invisible Impact: Ai Arthritis Diseases (Ep 12) ● Answers what I can do myself day to day; how to take part ● Journey stage Living With Disease OR Diagnosed ● Topic Living with it day to day; Awareness days and campaigns ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Invisible Impact: Ai Arthritis Diseases (Ep 12): https://www.aiarthritis.org/talkshow-EP12
Invisible Disease: Bruised from the Inside (Mini-Ep 11)
This week’s topic introduces the challenges associated with invisible illness. How do you get the support and accommodations you need when people think you look healthy? Have you ever had an incident that shaped the way you behaved moving forward? Do you feel pressure to be performative in some way with your disability? First aired January 29, 2020, and the episode page carries the full transcript.
Invisible Disease: Bruised from the Inside (Mini-Ep 11) ● Answers what I can do myself day to day; what to say, and to whom ● Journey stage Living With Disease OR Diagnosed ● Topic Living with it day to day ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Invisible Disease: Bruised from the Inside (Mini-Ep 11): https://www.aiarthritis.org/talkshow-MiniEP11
Oh Mama! Pregnancy Planning with a Chronic Illness (Ep 11)
This week the show is recorded at the American College of Rheumatology (ACR) annual scientific meeting where patient co-hosts Deb, Mariah, and Tiffany tackle the topic of pregnancy planning with a chronic illness. They also had the opportunity to invite Linette Dyer from Mother to Baby to give input on existing treatment research and safety information. First aired January 26, 2020, and the episode page carries the full transcript.
Oh Mama! Pregnancy Planning with a Chronic Illness (Ep 11) ● Answers what the treatments are and how they work; what the research says ● Journey stage Newly Diagnosed; Living With Disease OR Diagnosed ● Topic Treatment and medication; Family, pregnancy and parenting ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Oh Mama! Pregnancy Planning with a Chronic Illness (Ep 11): https://www.aiarthritis.org/talkshow-EP11
Life of a Biologic (Mini-Ep 10)
This week, we are tackling the subject of biologic therapy*, specifically why they sometimes stop working. There are some ideas proposed by existing research for the sudden loss of efficacy, but there really doesn’t seem to be much out there. Ai Arthritis is on a mission to get to the bottom of this issue. First aired January 22, 2020, and the episode page carries the full transcript.
Life of a Biologic (Mini-Ep 10) ● Answers what the treatments are and how they work; what the research says ● Journey stage Living With Disease OR Diagnosed ● Topic Treatment and medication; Research and conferences ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Life of a Biologic (Mini-Ep 10): https://www.aiarthritis.org/talkshow-MiniEP10
Patients Weigh In: Why the 'Right' Diagnosis Name Matters (Ep 10)
This week, join your co-hosts Charis Hill and Tiffany Westrich-Robertson as they discuss the evolution of the term Ankylosing Spondylitis into the new umbrella term: Axial Spondyloarthritis. What does this new term mean? How will it impact treatment options or the patient experience? Does it even matter what your diagnosis is if the treatments for Ai Arthritis are all basically the same? First aired January 19, 2020, and the episode page carries the full transcript.
Patients Weigh In: Why the 'Right' Diagnosis Name Matters (Ep 10) covers conditions and terms also written as axSpA or non-radiographic axSpA.
Patients Weigh In: Why the 'Right' Diagnosis Name Matters (Ep 10) ● Answers what the treatments are and how they work; how it is diagnosed ● Disease Axial Spondyloarthritis ● Journey stage Living With Disease OR Diagnosed ● Topic Treatment and medication; Lived experience ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Patients Weigh In: Why the 'Right' Diagnosis Name Matters (Ep 10): https://www.aiarthritis.org/talkshow-EP10
Precision vs. Personalized Medicine: Using the Right Term Matters! (Mini-Ep 9)
Tiffany talks about precision vs. personalized medicine. Our organization is working on a project called Preparing Patients for Precision Medicine to help educate patients on the terminology surrounding precision medicine. First aired January 15, 2020, and the episode page carries the full transcript.
Precision vs. Personalized Medicine: Using the Right Term Matters! (Mini-Ep 9) ● Answers what the treatments are and how they work ● Journey stage Living With Disease OR Diagnosed ● Topic Treatment and medication; Research and conferences ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Precision vs. Personalized Medicine: Using the Right Term Matters! (Mini-Ep 9): https://www.aiarthritis.org/talkshow-MiniEP9
Brain Fog (Mini-Ep 8)
Studies have shown that most people with Ai Arthritis experience brain fog, but why? What does the experience feel like for you? Tune in for information on the causes and a few strategies for combating it. Then go to social media and tell us how you manage brain fog or let us know what you want to learn more about. First aired January 8, 2020, and the episode page carries the full transcript.
Brain Fog (Mini-Ep 8) ● Answers how long it lasts and what to expect; what the research says ● Journey stage Newly Diagnosed ● Topic Symptoms and flares; Lived experience ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Brain Fog (Mini-Ep 8): https://www.aiarthritis.org/talkshow-MiniEP8
Diagnosis STAT! (Ep 6)
This episode join your host, Tiffany, as she and co-host Suz Schrandt discuss the importance of early detection and diagnosis. They address barriers to receiving an accurate diagnosis, as well as what patients can do to increase their chances of receiving an accurate diagnosis in a timely fashion. Research consistently shows that early intervention improves patient outcomes. First aired December 22, 2019, and the episode page carries the full transcript.
Diagnosis STAT! (Ep 6) ● Answers what the research says; how it is diagnosed ● Journey stage Living With Disease OR Diagnosed ● Topic Research and conferences ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Diagnosis STAT! (Ep 6): https://www.aiarthritis.org/talkshow-EP6
Flu or Flare? (Mini-Ep 5)
Join your host, Tiffany, as she talks about trying to differentiate between flu and flare. Are you coming down with a virus? Or is your Ai Arthritis flaring? We want to start a conversation about how you manage your flares. How do you juggle work, family, and life when you feel terrible and look fine? Symptoms of Ai Arthritis Disease flares often mimic those of having the flu. First aired December 18, 2019, and the episode page carries the full transcript.
Flu or Flare? (Mini-Ep 5) ● Answers how long it lasts and what to expect; how to take part ● Journey stage Living With Disease OR Diagnosed ● Topic Symptoms and flares; Work, school and money ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Flu or Flare? (Mini-Ep 5): https://www.aiarthritis.org/talkshow-MiniEP5
"Who Am I Now?" Finding a New Normal (Mini-Ep 4)
Join your host, Tiffany, as she discusses discusses the phenomenon of a shifting identity. The way we see ourselves can change radically after diagnosis or symptom onset of an Ai Arthritis disease. But, as Tiffany points out, “having these diseases isn’t the end of the world. It’s just another way of living in it.” YOU are still YOU ... and you're probably pretty awesome! First aired December 11, 2019, and the episode page carries the full transcript.
"Who Am I Now?" Finding a New Normal (Mini-Ep 4) ● Answers how long it lasts and what to expect; how it is diagnosed ● Journey stage Living With Disease OR Diagnosed ● Topic Symptoms and flares; Living with it day to day ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for "Who Am I Now?" Finding a New Normal (Mini-Ep 4): https://www.aiarthritis.org/talkshow-MiniEP4
Autoimmune vs. Autoinflammatory : What's the Difference? (Ep 3)
Join co-host, Tiffany, as she discusses the need to communicate what it feels like to have an Ai Arthritis disease. This is important because too often people living with these diseases are 'invisible', as the pain and other symptoms (fatigue, flu-like systems) usually cannot be seen by others. So how do you explain it? First aired December 1, 2019, and the episode page carries the full transcript.
Autoimmune vs. Autoinflammatory : What's the Difference? (Ep 3) ● Answers how long it lasts and what to expect; what it feels like ● Journey stage Living With Disease OR Diagnosed ● Topic Symptoms and flares; Living with it day to day ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Autoimmune vs. Autoinflammatory : What's the Difference? (Ep 3): https://www.aiarthritis.org/talkshow-EP3
The need to differentiate arthritis types (Mini-Ep 2)
Join your host, Tiffany, as she discusses the need to differentiate arthritis types to address misunderstandings that lead to relationship conflicts and early diagnosis, which can result in compromised quality of life and elevated costs to our healthcare systems. First aired November 27, 2019, and the episode page carries the full transcript.
The need to differentiate arthritis types (Mini-Ep 2) ● Answers what it feels like; what to do when cost or coverage blocks treatment ● Journey stage Undiagnosed/Mystery Patient; Newly Diagnosed ● Topic Lived experience ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for The need to differentiate arthritis types (Mini-Ep 2): https://www.aiarthritis.org/talkshow-MiniEP2
Typical vs. Atypical: Which are you and why does it matter? (Ep 2)
This episode join your host, Tiffany, as she and co-host Deb Constien discuss the challenges faced by patients who experience atypical disease presentations, especially the need to advance our understanding of this phenomenon because the typical is not so typical. This concept is vital for early detection and improving outcomes. First aired November 24, 2019, and the episode page carries the full transcript.
Typical vs. Atypical: Which are you and why does it matter? (Ep 2) ● Answers what the treatments are and how they work; how to take part ● Journey stage Undiagnosed/Mystery Patient ● Topic Treatment and medication; Lived experience ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Typical vs. Atypical: Which are you and why does it matter? (Ep 2): https://www.aiarthritis.org/talkshow-EP2
Step in the right direction: Mobility issues due to surgery, disability, or flares (Mini-Ep 1)
Mobility is a key theme we will cover in many episodes. In this first mini "At the Table" episode, we are discussing situations that patients may face when normally able to put pressure on their foot/feet and then suddenly are challenged to walk (or anything else involving the feet). First aired November 20, 2019, and the episode page carries the full transcript.
Step in the right direction: Mobility issues due to surgery, disability, or flares (Mini-Ep 1) covers conditions and terms also written as RA.
Step in the right direction: Mobility issues due to surgery, disability, or flares (Mini-Ep 1) ● Answers what the treatments are and how they work; how long it lasts and what to expect ● Disease Rheumatoid Arthritis ● Journey stage Undiagnosed/Mystery Patient ● Topic Treatment and medication ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for Step in the right direction: Mobility issues due to surgery, disability, or flares (Mini-Ep 1): https://www.aiarthritis.org/talkshow-MiniEP1
The Mystery Patient - How Ai Arthritis Came to Be (Ep 1)
This week Tiffany is joined by Kelly to talk about their experience of being Mystery Patients and to share their diagnosis experience. The route to diagnosis and treatment is often long and complicated, but it shouldn't be. First aired November 17, 2019, and the episode page carries the full transcript.
The Mystery Patient - How Ai Arthritis Came to Be (Ep 1) ● Answers how it is diagnosed; what the treatments are and how they work ● Journey stage Undiagnosed/Mystery Patient ● Topic Getting diagnosed; Treatment and medication ● Type Podcast episode ● What you do with it Listen, or read the transcript on the episode page ● Tier 2 ● Audience Patient ● Language English
Listen to the episode for The Mystery Patient - How Ai Arthritis Came to Be (Ep 1): https://www.aiarthritis.org/talkshow-EP1
What is in the video library?
Patient explainers, conference reports, awareness films and class recordings. These sit at tier 3, so they are background for a follow-up question rather than the first thing an answer reaches for.
Clip 2 - Michele (Employer Perspective)
What does workplace inclusion really look like for people living with invisible disabilities? October is National Disability Employment Awareness Month (NDEAM), and we're highlighting the importance of understanding chronic illness in the workplace.
Clip 2 - Michele (Employer Perspective) ● Answers what it feels like; how long it lasts and what to expect ● Journey stage Every step ● Topic Symptoms and flares; Living with it day to day ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Clip 2 - Michele (Employer Perspective): https://www.youtube.com/watch?v=G4vLRQ9KrFo
Ai Arthritis Diseases at Work & School
How do you keep working or going to school when your symptoms can change from one day, or even one hour, to the next? In this episode, Leila, Eileen, and Dr. Michele Hamm discuss how Ai Arthritis diseases can affect work, education, finances, identity, and future plans.
Ai Arthritis Diseases at Work & School covers conditions and terms also written as SLE, systemic lupus erythematosus or RA.
Ai Arthritis Diseases at Work & School ● Answers what I can do myself day to day; what to say, and to whom ● Disease Lupus; Rheumatoid Arthritis ● Journey stage Every step ● Topic Living with it day to day; Talking to your care team ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Ai Arthritis Diseases at Work & School: https://www.youtube.com/watch?v=aeOIMlvXrF4
When Pain Becomes Your Normal: Pain Isn’t Just One Thing (Ep 125, on video)
Chronic pain can become such a regular part of life with an Ai Arthritis disease that it changes your understanding of what "normal" feels like. But pain isn't always tied to active inflammation or a disease flare, and even one person can experience many different types of pain.
When Pain Becomes Your Normal: Pain Isn’t Just One Thing (Ep 125, on video) covers conditions and terms also written as SLE, systemic lupus erythematosus or RA.
When Pain Becomes Your Normal: Pain Isn’t Just One Thing (Ep 125, on video) ● Answers how long it lasts and what to expect; what it is ● Disease Lupus; Rheumatoid Arthritis ● Journey stage Every step ● Topic Symptoms and flares; Food and nutrition ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for When Pain Becomes Your Normal: Pain Isn’t Just One Thing (Ep 125, on video): https://www.youtube.com/watch?v=bwZt45318BM
🚨 Autoimmune & Autoinflammatory Arthritis Patients: What U.S. Vaccine Recommendation Changes Mean
S. vaccine recommendations are changing. What could that mean for people living with autoimmune and autoinflammatory arthritis diseases? Watch for what we know right now, and tell us if you’re already experiencing problems with vaccine access or coverage. We want to hear what’s happening to you.
🚨 Autoimmune & Autoinflammatory Arthritis Patients: What U.S. Vaccine Recommendation Changes Mean ● Answers what to do when cost or coverage blocks treatment; what it feels like ● Journey stage Every step ● Topic Work, school and money; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for 🚨 Autoimmune & Autoinflammatory Arthritis Patients: What U.S. Vaccine Recommendation Changes Mean: https://www.youtube.com/watch?v=0ms-zlAlHOg
AiA_Reel_
Have you ever had your copay assistance suddenly stop working? For many people with autoimmune or autoinflammatory arthritis, medication costs are already very high. Copay accumulator policies can prevent assistance from counting toward out-of-pocket costs, leaving patients with unexpected bills. This can lead to financial stress and even medical debt. Share your experience in the comments.
AiA_Reel_ covers conditions and terms also written as copay maximizer or copay accumulator adjuster.
AiA_Reel_ ● Answers what to do when cost or coverage blocks treatment; what the treatments are and how they work ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for AiA_Reel_: https://www.youtube.com/watch?v=GbAHWkPrBXk
WhatsApp Video 2026-08-15 at 1.38.03 PM
Pain is about more than what’s happening in the body. At EULAR 2026, we heard how sleep, stress, mood, coping, social support, and other life experiences can all affect how pain is experienced. Now we want to hear from you. What has the biggest impact on your chronic pain? Sleep? Stress? Something else? Share your experience in the comments or take our survey.
WhatsApp Video 2026-08-15 at 1.38.03 PM ● Answers how long it lasts and what to expect; how to take part ● Journey stage Every step ● Topic Symptoms and flares; Living with it day to day ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for WhatsApp Video 2026-08-15 at 1.38.03 PM: https://www.youtube.com/watch?v=8SMcOKi07Mg
James Day 1 - Spondy
What made getting your diagnosis so hard? Years of being dismissed? Misdiagnosis? Not knowing which disease you had? Too much information to take in while you were in pain? Something else? After hearing the latest research at EULAR 2026, we want to hear from people living with autoimmune and autoinflammatory arthritis diseases. What's been your biggest barrier to getting diagnosed?
James Day 1 - Spondy ● Answers what to do when cost or coverage blocks treatment; how it is diagnosed ● Journey stage Every step ● Topic Work, school and money; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for James Day 1 - Spondy: https://www.youtube.com/watch?v=KC_NhWJAO64
340B Program Webinar: Knowledge = Empowerment Classroom
In this Knowledge = Empowerment Classroom, leaders from Ai Arthritis , ADAP Advocacy, the Lupus Foundation, and MANA discuss HRSA’s proposed rebate model for the 340B Program and what it could mean for access to care for various patient communities. Watch the conversation to better understand this important policy issue and how it may affect patients and communities.
340B Program Webinar: Knowledge = Empowerment Classroom covers conditions and terms also written as SLE or systemic lupus erythematosus.
340B Program Webinar: Knowledge = Empowerment Classroom ● Answers what to do when cost or coverage blocks treatment ● Disease Lupus ● Journey stage Every step ● Topic Work, school and money; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for 340B Program Webinar: Knowledge = Empowerment Classroom: https://www.youtube.com/watch?v=mddmRnSB0ck
Promo clip
Movement looks different for everyone. Living with an Ai Arthritis disease can make exercise feel overwhelming, but movement doesn't have to mean hours at the gym. Join Leila and Eileen as they discuss the real barriers our community faces, the latest research on physical activity, and simple ways to keep moving that fit your life and your body.
Promo clip ● Answers what I can do myself day to day; what the research says ● Journey stage Every step ● Topic Living with it day to day; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Promo clip: https://www.youtube.com/watch?v=NI-Qd1XX5Ew
Finding the Movement That’s Right for YOU (Ep 124, on video)
Finding the Movement That’s Right for YOU (Ep 124, on video) is in our video library, and no description has been written for it yet.
Finding the Movement That’s Right for YOU (Ep 124, on video) ● Answers what I can do myself day to day ● Journey stage Every step ● Topic Living with it day to day ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Finding the Movement That’s Right for YOU (Ep 124, on video): https://www.youtube.com/watch?v=KYMkZ4vo2vE
Mental Health & Exercise Clip
What keeps you from being physically active? Pain? Fatigue? Fear of a flare? Mental health? Something else? After hearing the latest research at EULAR 2026, we want to hear from people living with autoimmune and autoinflammatory arthritis diseases. What's been your biggest barrier to staying active? Share your experience in the comments or take our survey.
Mental Health & Exercise Clip ● Answers how long it lasts and what to expect; what the research says ● Journey stage Every step ● Topic Symptoms and flares; Living with it day to day ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Mental Health & Exercise Clip: https://www.youtube.com/watch?v=HtXM2nCADN4
What We Learned at EULAR 2026 (Ep 123, on video)
Every year, the Ai Arthritis team returns from EULAR with new research, expert interviews, and important conversations. This year, they also gathered lived experience data from the community to better understand how the topics discussed at the conference compare with what patients experience every day. In this episode, host Leila P.L.
What We Learned at EULAR 2026 (Ep 123, on video) covers conditions and terms also written as SLE, systemic lupus erythematosus, Sjogren's Disease, Sjogrens, Sjögren's syndrome or Sjogren's syndrome.
What We Learned at EULAR 2026 (Ep 123, on video) ● Answers what the research says; how long it lasts and what to expect ● Disease Lupus; Sjögren's Disease ● Journey stage Every step ● Topic Symptoms and flares; Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for What We Learned at EULAR 2026 (Ep 123, on video): https://www.youtube.com/watch?v=15Kc9pb24pI
Listening to Lived Experience: Health Literacy: EULAR 2026 Day 4 (Eileen)
Session: HPR Abstract Sessions: Listening to Lived Experience, Health Literacy, Self-Management, and Partnership in Care Speaker: Eileen Davidson Event: EULAR 2026 Day: 4 In this Day 4 recap from EULAR 2026, Eileen Davidson shares insights from an HPR Abstract Session focused on health literacy, self-management, and patient partnership in rheumatic and musculoskeletal diseases (RMDs).
Listening to Lived Experience: Health Literacy: EULAR 2026 Day 4 (Eileen) ● Answers what to do when cost or coverage blocks treatment; what the research says ● Journey stage Every step ● Topic Work, school and money; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Listening to Lived Experience: Health Literacy: EULAR 2026 Day 4 (Eileen): https://www.youtube.com/watch?v=e5CbYidZncY
The Missing Piece of Rheumatology Care: Why Mental Health Matters: EULAR 2026 Day 4 (Eileen)
Session: Inflammatory Arthropathies and Mental Health: Bridging the Gap Speaker: Eileen Davidson Event: EULAR 2026 Day: 4 In this Day 4 recap from EULAR 2026, Eileen Davidson shares insights from a powerful session exploring the connection between inflammatory rheumatic diseases, mental health, and the brain.
The Missing Piece of Rheumatology Care: Why Mental Health Matters: EULAR 2026 Day 4 (Eileen) ● Answers how long it lasts and what to expect; what the research says ● Journey stage Every step ● Topic Symptoms and flares; Living with it day to day ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for The Missing Piece of Rheumatology Care: Why Mental Health Matters: EULAR 2026 Day 4 (Eileen): https://www.youtube.com/watch?v=OlZPXeMU1zc
Learning from the Real Experts: Patient Involvement: EULAR 2026 Day 4 (Eileen)
Session: Learning from the Real Experts: Patient and Public Voices in Health Professional Education Speaker: Eileen Davidson Event: EULAR 2026 Day: 4 In this Day 4 recap from EULAR 2026, Eileen Davidson shares insights from a session focused on patient education, health literacy, self-management, and the growing role of patient voices in healthcare education.
Learning from the Real Experts: Patient Involvement: EULAR 2026 Day 4 (Eileen) ● Answers what the treatments are and how they work; what the research says ● Journey stage Remission ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Learning from the Real Experts: Patient Involvement: EULAR 2026 Day 4 (Eileen): https://www.youtube.com/watch?v=N2vy-SEHKtk
Beyond Dry Eyes and Dry Mouth: Understanding Severe Sjögren's Disease: EULAR 2026 (Leila)
Session: The Clinical Challenge of Managing Severe Manifestations of Sjögren's Speaker: Leila P.L. Valete Event: EULAR 2026 In this post-EULAR 2026 debrief, Leila P.L. Valete shares insights from a session exploring some of the most serious complications associated with Sjögren's disease.
Beyond Dry Eyes and Dry Mouth: Understanding Severe Sjögren's Disease: EULAR 2026 (Leila) covers conditions and terms also written as ILD, Sjogren's Disease, Sjogrens, Sjögren's syndrome or Sjogren's syndrome.
Beyond Dry Eyes and Dry Mouth: Understanding Severe Sjögren's Disease: EULAR 2026 (Leila) ● Answers how it is diagnosed; what the research says ● Disease Interstitial Lung Disease (associated condition); Sjögren's Disease ● Journey stage Remission ● Topic Getting diagnosed; Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Beyond Dry Eyes and Dry Mouth: Understanding Severe Sjögren's Disease: EULAR 2026 (Leila): https://www.youtube.com/watch?v=e-EJ2y0RDEI
Diversity, Equity, and Access - A Better Future for Rheumatology Worldwide: EULAR 2026 (Eileen)
Session: Diversity and Equity in Rheumatology Speaker: Eileen Davidson Event: EULAR 2026 In this post-EULAR 2026 debrief, Eileen Davidson shares insights from a powerful session exploring diversity, equity, and access to rheumatology care around the world.
Diversity, Equity, and Access - A Better Future for Rheumatology Worldwide: EULAR 2026 (Eileen) ● Answers what the treatments are and how they work; what the research says ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Diversity, Equity, and Access - A Better Future for Rheumatology Worldwide: EULAR 2026 (Eileen): https://www.youtube.com/watch?v=4w4aXIBbWEM
Rheumatoid Arthritis Then and Now: Why the RA Treatment Paradigm Has Changed: EULAR 2026 (Deb)
Session: RA Paradigm Shift: What It Means and Why It Is Needed Speaker: Deb Constien Event: EULAR 2026 In this post-EULAR 2026 debrief, Deb Constien shares insights from a fascinating session exploring how rheumatoid arthritis (RA) treatment has evolved over the past several decades and where care may be headed next.
Rheumatoid Arthritis Then and Now: Why the RA Treatment Paradigm Has Changed: EULAR 2026 (Deb) ● Answers how long it lasts and what to expect; what the research says ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Symptoms and flares; Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Rheumatoid Arthritis Then and Now: Why the RA Treatment Paradigm Has Changed: EULAR 2026 (Deb): https://www.youtube.com/watch?v=HPvttU70wQQ
The Great Mimic: Understanding IgG4-Related Disease and Challenging Diagnosis: EULAR 2026 (Deb)
Session: Differential Diagnosis and Treatment Strategies in IgG4-Related Disease Speaker: Deb Constien Event: EULAR 2026 In this post-EULAR 2026 debrief, Deb Constien shares insights from a fascinating session on IgG4-related disease (IgG4-RD), a rare immune-mediated condition that can affect multiple organs and often resembles other diseases.
The Great Mimic: Understanding IgG4-Related Disease and Challenging Diagnosis: EULAR 2026 (Deb) ● Answers what the treatments are and how they work; what the research says ● Disease Immunoglobulin G4-Related Disease (associated condition) ● Journey stage Co-Existing Conditions ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for The Great Mimic: Understanding IgG4-Related Disease and Challenging Diagnosis: EULAR 2026 (Deb): https://www.youtube.com/watch?v=bg0ZEDP93FE
CAR-T and Beyond: Exploring the Future of Rheumatic Disease Treatment: EULAR 2026 Day 4 (James)
Session: Next-Gen Treatments: CAR-Based Therapies and Beyond in RMDs Speaker: James Hollins Event: EULAR 2026 Day: 4 In this Day 4 recap from EULAR 2026, James Hollins shares insights from a fascinating session exploring next-generation treatments for rheumatic and musculoskeletal diseases (RMDs), including CAR-T cell therapy.
CAR-T and Beyond: Exploring the Future of Rheumatic Disease Treatment: EULAR 2026 Day 4 (James) ● Answers what the treatments are and how they work; what the research says ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for CAR-T and Beyond: Exploring the Future of Rheumatic Disease Treatment: EULAR 2026 Day 4 (James): https://www.youtube.com/watch?v=f7fkAK_u94o
Working with RMDs: Why Employment Matters for Health and Quality of Life EULAR 2026 Day 4 (Eileen)
In this Day 4 recap from EULAR 2026, Eileen Davidson shares insights from a session focused on work participation, employment, and quality of life for people living with rheumatic and musculoskeletal diseases (RMDs). The discussion highlighted the important role that work plays beyond financial stability, including providing purpose, social connection, independence, and identity.
Working with RMDs: Why Employment Matters for Health and Quality of Life EULAR 2026 Day 4 (Eileen) ● Answers how long it lasts and what to expect; what the research says ● Journey stage Every step ● Topic Symptoms and flares; Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Working with RMDs: Why Employment Matters for Health and Quality of Life EULAR 2026 Day 4 (Eileen): https://www.youtube.com/watch?v=fzygxv1CewU
Turning Patient Experiences into Real-World Impact (Ep 122, on video)
Ai Arthritis was built by listening to patients. For more than 15 years, conversations within the community have shaped programs, resources, research initiatives, and advocacy efforts designed to improve the patient journey.
Turning Patient Experiences into Real-World Impact (Ep 122, on video) covers conditions and terms also written as JIA, juvenile arthritis, SLE or systemic lupus erythematosus.
Turning Patient Experiences into Real-World Impact (Ep 122, on video) ● Answers how it is diagnosed; what the research says ● Disease Juvenile Idiopathic Arthritis; Lupus ● Journey stage Undiagnosed/Mystery Patient ● Topic Getting diagnosed; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Turning Patient Experiences into Real-World Impact (Ep 122, on video): https://www.youtube.com/watch?v=dN6psctMy7g
A Patient Was Left With a $4,000 Bill — Here’s What Happened
While attending policy meetings in Washington, D.C., Ai Arthritis Grassroots Advocacy Manager and Patient Advocate, Vanessa Lathan, shares how copay accumulator programs are harming patients and disrupting access to treatment. In the video, she shares the experience of a patient who was unexpectedly left with a $4,000 bill after their copay assistance no longer counted toward their deductible.
A Patient Was Left With a $4,000 Bill — Here’s What Happened covers conditions and terms also written as copay maximizer or copay accumulator adjuster.
A Patient Was Left With a $4,000 Bill — Here’s What Happened ● Answers what the treatments are and how they work; what to do when cost or coverage blocks treatment ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for A Patient Was Left With a $4,000 Bill — Here’s What Happened: https://www.youtube.com/watch?v=2cWxFZnxDMA
World Ai Arthritis Day 2026 Livestream
Join us to DRIVE awareness for World AUTOimmune & AUTOinflammatory Arthritis Day. Stay TUNED for a LIVE Ai Arthritis Voices 360 Podcast episode, special feature from ArthritisLife Cheryl & Chronic Eileen about telling.
World Ai Arthritis Day 2026 Livestream ● Answers how to take part ● Journey stage Every step ● Topic Advocacy and policy; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for World Ai Arthritis Day 2026 Livestream: https://www.youtube.com/watch?v=AeAcnuMT4KY
Vagus Nerve Stimulation - Alternative Treatment? (Ep 121, on video)
Vagus nerve stimulation has been a hot topic in the Ai Arthritis community, and for good reason. In this episode, host Tiffany sits down with Dr. Vibeke Strand, Adjunct Clinical Professor in the Division of Immunology/Rheumatology at Stanford University, to explore what VNS actually is, what the research shows, and why it could be a game changing option for people who have not found success with...
Vagus Nerve Stimulation - Alternative Treatment? (Ep 121, on video) ● Answers how long it lasts and what to expect; what the research says ● Journey stage Every step ● Topic Symptoms and flares; Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Vagus Nerve Stimulation - Alternative Treatment? (Ep 121, on video): https://www.youtube.com/watch?v=xd5TiFlg3Pg
World Ai Arthritis Day 2026
Join us for our livestream to hear experiences, how Ai Arthritis is leveraging lived experience, awareness games & more!
World Ai Arthritis Day 2026 ● Answers how to take part ● Journey stage Every step ● Topic Awareness days and campaigns; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for World Ai Arthritis Day 2026: https://www.youtube.com/watch?v=2eQJOtS0DGA
Ai Arthritis on Capitol Hill: Why Patients Need 340B Reform Now
Join Vanessa Lathan, Ai Arthritis Grassroots Advocacy Manager and patient advocate, as she attends the Rare Access Action Project (RAAP) Federal Congressional Briefing on Capitol Hill. Vanessa shares why stronger 340B reform is urgently needed so patients have better access to affordable medications.
Ai Arthritis on Capitol Hill: Why Patients Need 340B Reform Now ● Answers what the treatments are and how they work; what to do when cost or coverage blocks treatment ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Ai Arthritis on Capitol Hill: Why Patients Need 340B Reform Now: https://www.youtube.com/watch?v=NjcsuNWZG0U
Your Story Matters: Speak Up on Medication Cost & Access Now!
What has your healthcare journey been like? Your voice can help create change. Ai Arthritis Grassroots Advocacy Manager, Vanessa Lathan, is on Capitol Hill with an important message: Congressional leaders want to hear directly from patients about the real-life struggles and successes of accessing medications and managing costs.
Your Story Matters: Speak Up on Medication Cost & Access Now! ● Answers what the treatments are and how they work; what to do when cost or coverage blocks treatment ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Your Story Matters: Speak Up on Medication Cost & Access Now!: https://www.youtube.com/watch?v=VRNtytE2JQo
Why Sleep Is So Hard with Autoimmune Disease (and What Actually Helps) (Ep 120, on video)
Sleep problems are one of the most common and most frustrating experiences for people living with autoimmune and autoinflammatory arthritis diseases. In this episode, Eileen Davidson breaks down why getting a good night's rest can feel nearly impossible when you're living with an Ai Arthritis disease, and shares what has actually helped her along the way.
Why Sleep Is So Hard with Autoimmune Disease (and What Actually Helps) (Ep 120, on video) covers conditions and terms also written as RA.
Why Sleep Is So Hard with Autoimmune Disease (and What Actually Helps) (Ep 120, on video) ● Answers how long it lasts and what to expect; what I can do myself day to day ● Disease Rheumatoid Arthritis ● Journey stage Remission ● Topic Symptoms and flares; Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Why Sleep Is So Hard with Autoimmune Disease (and What Actually Helps) (Ep 120, on video): https://www.youtube.com/watch?v=JF2uqv2THNw
Research Advocacy Webinar: Knowledge = Empowerment Classroom
Learn how patient voices can influence research, healthcare decisions, and public policy. In this Research Advocacy Webinar, leaders from Ai Arthritis explain how patient experiences become meaningful research data and why the way questions are asked and answered matters.
Research Advocacy Webinar: Knowledge = Empowerment Classroom ● Answers what to do when cost or coverage blocks treatment; what the research says ● Journey stage Every step ● Topic Work, school and money; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Research Advocacy Webinar: Knowledge = Empowerment Classroom: https://www.youtube.com/watch?v=7EwuN7qjnzM
What I Wish I Would’ve Known After Diagnosis (Ep 119, on video)
A new diagnosis can bring relief, fear, and uncertainty all at once. In this episode, Leila and Deb share advice from the Ai Arthritis community on what they wish they had known right after being diagnosed with an autoimmune or autoinflammatory arthritis disease. Leila and Deb explore the importance of trusting your body, especially when tests are inconclusive or symptoms are dismissed.
What I Wish I Would’ve Known After Diagnosis (Ep 119, on video) covers conditions and terms also written as SLE, systemic lupus erythematosus or RA.
What I Wish I Would’ve Known After Diagnosis (Ep 119, on video) ● Answers how it is diagnosed; what I can do myself day to day ● Disease Lupus; Rheumatoid Arthritis ● Journey stage Newly Diagnosed ● Topic Food and nutrition; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for What I Wish I Would’ve Known After Diagnosis (Ep 119, on video): https://www.youtube.com/watch?v=CwXbJ7kzZi0
Patient Voices in CMS Drug Price Negotiation
In this special webinar, the Patient Inclusion Council (PIC) welcomes representatives from the U.S. Centers for Medicare & Medicaid Services (CMS) to speak directly with patients and caregivers about how to participate in the Medicare Drug Price Negotiation process for Initial Price Applicability Year (IPAY) 2028.
Patient Voices in CMS Drug Price Negotiation ● Answers what the treatments are and how they work; what to do when cost or coverage blocks treatment ● Journey stage Every step ● Topic Treatment and medication; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Patient Voices in CMS Drug Price Negotiation: https://www.youtube.com/watch?v=EIqEpmaRHKw
More Than a Smile: Oral Health in Ai Arthritis Diseases (Ep 118, on video)
Oral health is often treated as optional or cosmetic, but for people living with Ai Arthritis diseases, it can have a real impact on pain, fatigue, nutrition, and quality of life. In this episode, Leila and Bridget explore why oral health deserves a place in routine disease management and why so many patients are never told their symptoms are disease related.
More Than a Smile: Oral Health in Ai Arthritis Diseases (Ep 118, on video) covers conditions and terms also written as SLE, systemic lupus erythematosus or RA.
More Than a Smile: Oral Health in Ai Arthritis Diseases (Ep 118, on video) ● Answers how long it lasts and what to expect; what I can do myself day to day ● Disease Lupus; Rheumatoid Arthritis ● Journey stage Remission ● Topic Symptoms and flares; Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for More Than a Smile: Oral Health in Ai Arthritis Diseases (Ep 118, on video): https://www.youtube.com/watch?v=y40nng9xwy0
CAR-T Clip
CAR-T 360it: Why CAR-T Therapy Could Be the Next Big Breakthrough for Ai Arthritis Patients One infusion. Deep, lasting remission. Could CAR-T therapy change everything for people with severe Ai Arthritis disease?
CAR-T Clip ● Answers what the treatments are and how they work; how long it lasts and what to expect ● Journey stage Remission ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for CAR-T Clip: https://www.youtube.com/watch?v=MbTjiy24VB0
Best of 2025 (Ep 117, on video)
As we close out 2025, this special episode looks back on some of the most impactful conversations from this year. This episode reflects on key moments that captured the real experiences of people living with Ai Arthritis diseases and the topics patients told us mattered most.
Best of 2025 (Ep 117, on video) covers conditions and terms also written as IgG4-RD, IgG4, SLE or systemic lupus erythematosus.
Best of 2025 (Ep 117, on video) ● Answers how it is diagnosed; what it feels like ● Disease Immunoglobulin G4-Related Disease (associated condition); Lupus ● Journey stage Undiagnosed/Mystery Patient ● Topic Getting diagnosed; Family, pregnancy and parenting ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Best of 2025 (Ep 117, on video): https://www.youtube.com/watch?v=y9Ytt6e_22g
The Road to Remission (Ep 116, on video)
Remission is no longer an abstract idea for people living with Ai Arthritis diseases. Thanks to earlier diagnosis, better treatment options, and growing global awareness, more patients are reaching remission and staying there. In this episode of Ai Arthritis Voices 360, Health Education Manager Leila P. L.
The Road to Remission (Ep 116, on video) ● Answers what the treatments are and how they work; how it is diagnosed ● Journey stage Remission ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for The Road to Remission (Ep 116, on video): https://www.youtube.com/watch?v=CMesk5UD704
Go With Us! to ACR 2025: Key Updates on Sjögren’s, Still’s Disease, Nutrition & Pain Research
Join Brittany, a person living with psoriatic arthritis, as she recaps the most interesting sessions from Day 1 of ACR 2025 through the Go With Us! program by Ai Arthritis . She shares highlights from new research and presentations, including: - Sjögren’s disease: why it’s complex and why diagnosis takes a team of specialists.
Go With Us! to ACR 2025: Key Updates on Sjögren’s, Still’s Disease, Nutrition & Pain Research covers conditions and terms also written as PsA, Sjogren's Disease, Sjogrens, Sjögren's syndrome or Sjogren's syndrome.
Go With Us! to ACR 2025: Key Updates on Sjögren’s, Still’s Disease, Nutrition & Pain Research ● Answers how long it lasts and what to expect; what the research says ● Disease Psoriatic Arthritis; Sjögren's Disease ● Journey stage Every step ● Topic Symptoms and flares; Food and nutrition ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to ACR 2025: Key Updates on Sjögren’s, Still’s Disease, Nutrition & Pain Research: https://www.youtube.com/watch?v=6NrFiNK3wPM
Go With Us! to ACR 2025: CAR T Cell Therapy Breakthroughs in Autoimmune Disease
Join Tiffany Westrich-Robertson, CEO and founder of Ai Arthritis , as she shares key insights from Day 1 of ACR 2025 through the Go With Us! program. In this update, Tiffany breaks down the latest research on CAR T cell therapy, a groundbreaking treatment that reprograms your own immune cells to “reset” the system and stop autoimmune attacks.
Go With Us! to ACR 2025: CAR T Cell Therapy Breakthroughs in Autoimmune Disease covers conditions and terms also written as SLE, systemic lupus erythematosus or RA.
Go With Us! to ACR 2025: CAR T Cell Therapy Breakthroughs in Autoimmune Disease ● Answers what the treatments are and how they work; what the research says ● Disease Lupus; Rheumatoid Arthritis ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to ACR 2025: CAR T Cell Therapy Breakthroughs in Autoimmune Disease: https://www.youtube.com/watch?v=sjWlxjv0tUY
Go With Us! to ACR 2025: Juvenile Arthritis & Advocacy: Small Voices, Big Change
Join Vanessa Lathan, Grassroots Advocacy Manager at Ai Arthritis , as she shares her experience from Day 1 of ACR 2025 through the Go With Us! program. Vanessa attended a powerful session on juvenile arthritis and advocacy, where speakers reminded everyone that advocacy is part of care.
Go With Us! to ACR 2025: Juvenile Arthritis & Advocacy: Small Voices, Big Change covers conditions and terms also written as JIA.
Go With Us! to ACR 2025: Juvenile Arthritis & Advocacy: Small Voices, Big Change ● Answers what I can do myself day to day; how to take part ● Disease Juvenile Idiopathic Arthritis ● Journey stage Every step ● Topic Family, pregnancy and parenting; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to ACR 2025: Juvenile Arthritis & Advocacy: Small Voices, Big Change: https://www.youtube.com/watch?v=3LD0j6Q-DNY
Go With Us! to ACR 2025: IgG4 and CAR T Therapy: Science Bringing New Hope for Patients
Join Leila P.L. Valete, Health Education Manager at Ai Arthritis , as she breaks down key updates from Day 1 of ACR 2025 through the Go With Us! program. Leila attended sessions on IgG4-related disease (IgG4-RD) and CAR T-cell therapy, two of the most talked-about topics in rheumatology this year. She explains what patients should know about how these discoveries could shape future autoimmune care.
Go With Us! to ACR 2025: IgG4 and CAR T Therapy: Science Bringing New Hope for Patients ● Answers what the treatments are and how they work; what the research says ● Disease Immunoglobulin G4-Related Disease (associated condition) ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to ACR 2025: IgG4 and CAR T Therapy: Science Bringing New Hope for Patients: https://www.youtube.com/watch?v=PA4Nztg88FQ
Go With Us! to ACR 2025: Steroids, Reproductive Health, and Still's and MAS Updates
Join Leila P.L. Valete, Health Education Manager at Ai Arthritis , as she shares highlights from Day 2 of ACR 2025 through our Go With Us! program. Leila breaks down new research and guideline updates on pediatric lupus, reproductive health, and Still’s disease/MAS, offering key takeaways for patients and families.
Go With Us! to ACR 2025: Steroids, Reproductive Health, and Still's and MAS Updates covers conditions and terms also written as SLE or systemic lupus erythematosus.
Go With Us! to ACR 2025: Steroids, Reproductive Health, and Still's and MAS Updates ● Answers what the treatments are and how they work; what the research says ● Disease Lupus ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to ACR 2025: Steroids, Reproductive Health, and Still's and MAS Updates: https://www.youtube.com/watch?v=yjfH1eaCOUc
Go With Us! to ACR 2025: AxSpA Imaging & Treatment Updates from ACR 2025
Join Brittany Murray, a person living with psoriatic arthritis, as she reports from Day 2 of ACR 2025 through the Go With Us! program by Ai Arthritis . Brittany attended a session on imaging and Axial Spondyloarthritis (AxSpA), highlighting how new research is improving diagnosis and treatment, especially for children and young adults.
Go With Us! to ACR 2025: AxSpA Imaging & Treatment Updates from ACR 2025 covers conditions and terms also written as ankylosing spondylitis, non-radiographic axSpA or PsA.
Go With Us! to ACR 2025: AxSpA Imaging & Treatment Updates from ACR 2025 ● Answers what the treatments are and how they work; how it is diagnosed ● Disease Axial Spondyloarthritis; Psoriatic Arthritis ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to ACR 2025: AxSpA Imaging & Treatment Updates from ACR 2025: https://www.youtube.com/watch?v=bsYzn1LfFjk
Go With Us! to ACR 2025: Breakthrough MAS Treatment: What It Means for Still’s Disease Patients
Join Tiffany Westrich-Robertson, CEO and founder of Ai Arthritis , as she shares key updates from Day 2 of ACR 2025 through our Go With Us! program. Tiffany attended a powerful session on Still’s disease and macrophage activation syndrome (MAS), a dangerous complication that can affect both children and adults. She explains how new FDA-approved research is bringing real hope to the community.
Go With Us! to ACR 2025: Breakthrough MAS Treatment: What It Means for Still’s Disease Patients ● Answers how long it lasts and what to expect; what the research says ● Disease Macrophage Activation Syndrome (associated condition) ● Journey stage Every step ● Topic Symptoms and flares; Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to ACR 2025: Breakthrough MAS Treatment: What It Means for Still’s Disease Patients: https://www.youtube.com/watch?v=prrJvn90ETU
Go With Us! to ACR 2025: Slowing Down Inflammation-Related Aging in Rheumatic Disease
Join Brittany Murray, a person living with psoriatic arthritis, as she shares insights from Day 2 of ACR 2025 through the Go With Us! program by Ai Arthritis . In this session, Brittany learned how chronic inflammation from rheumatic diseases can accelerate aging, and what patients can do to protect their health.
Go With Us! to ACR 2025: Slowing Down Inflammation-Related Aging in Rheumatic Disease covers conditions and terms also written as PsA.
Go With Us! to ACR 2025: Slowing Down Inflammation-Related Aging in Rheumatic Disease ● Answers how long it lasts and what to expect; what the research says ● Disease Psoriatic Arthritis ● Journey stage Every step ● Topic Symptoms and flares; Food and nutrition ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to ACR 2025: Slowing Down Inflammation-Related Aging in Rheumatic Disease: https://www.youtube.com/watch?v=dgJ48Y8TtAs
Go With Us! to ACR 2025: An Emerging Theme: What New Research Says About Revisiting Methotrexate
Join Tiffany Westrich-Robertson, CEO and founder of Ai Arthritis , as she recaps Day 2 of ACR 2025 through the Go With Us! program. Tiffany shares how rheumatology experts are taking a fresh look at methotrexate, one of the oldest and most affordable treatments for rheumatoid arthritis, and what new research means for patients today.
Go With Us! to ACR 2025: An Emerging Theme: What New Research Says About Revisiting Methotrexate covers conditions and terms also written as RA.
Go With Us! to ACR 2025: An Emerging Theme: What New Research Says About Revisiting Methotrexate ● Answers how it is diagnosed; what the research says ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Getting diagnosed; Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to ACR 2025: An Emerging Theme: What New Research Says About Revisiting Methotrexate: https://www.youtube.com/watch?v=1hgHAsUFvws
Go With Us! to ACR 2025: Autoimmune Detection and Prevention & New Pain Treatments
Join Leila P.L. Valete, Health Education Manager at Ai Arthritis , as she shares her insights from Day 3 of ACR 2025 through our Go With Us! program. Leila attended sessions exploring lupus prevention, early autoimmune detection, and new pain treatments, all showing how research is moving toward earlier, safer, and more personalized care for patients.
Go With Us! to ACR 2025: Autoimmune Detection and Prevention & New Pain Treatments covers conditions and terms also written as SLE or systemic lupus erythematosus.
Go With Us! to ACR 2025: Autoimmune Detection and Prevention & New Pain Treatments ● Answers what the treatments are and how they work; what the research says ● Disease Lupus ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to ACR 2025: Autoimmune Detection and Prevention & New Pain Treatments: https://www.youtube.com/watch?v=KIBzckP3N1M
Go With Us! to ACR 2025: Why Rheumatologists Must Prioritize Heart Health for Ai Arthritis Patients
Join Tiffany Westrich-Robertson, CEO and founder of Ai Arthritis , as she shares key highlights from Day 3 of ACR 2025 through the Go With Us! program. Tiffany attended a session on cardiac immunology, exploring how inflammation from autoimmune diseases can affect the heart and what new treatments are emerging to protect patients.
Go With Us! to ACR 2025: Why Rheumatologists Must Prioritize Heart Health for Ai Arthritis Patients ● Answers how long it lasts and what to expect; what the research says ● Journey stage Every step ● Topic Symptoms and flares; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to ACR 2025: Why Rheumatologists Must Prioritize Heart Health for Ai Arthritis Patients: https://www.youtube.com/watch?v=tOc22Smq8ms
Go With Us! to ACR 2025: What Research Reveals About Brain Fog & Sleep in Ai Arthritis
Join Brittany Murray, a person living with psoriatic arthritis, as she shares highlights from Day 3 of ACR 2025 through Ai Arthritis ’ Go With Us! program. Brittany attended a session that focused on brain fog, cognition, and sleep, topics many patients experience but that are often overlooked in rheumatology.
Go With Us! to ACR 2025: What Research Reveals About Brain Fog & Sleep in Ai Arthritis covers conditions and terms also written as PsA.
Go With Us! to ACR 2025: What Research Reveals About Brain Fog & Sleep in Ai Arthritis ● Answers how long it lasts and what to expect; what the research says ● Disease Psoriatic Arthritis ● Journey stage Every step ● Topic Symptoms and flares; Living with it day to day ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to ACR 2025: What Research Reveals About Brain Fog & Sleep in Ai Arthritis : https://www.youtube.com/watch?v=_Wbsx4DbWxo
Go With Us! to ACR 2025: Why Policy Matters: Protecting Access to Rheumatology Care
Join Vanessa Lathan, Grassroots Advocacy Manager at Ai Arthritis , as she shares highlights from Day 3 of ACR 2025 through the Go With Us! program. Vanessa attended policy and coalition sessions focused on access, affordability, and equity in rheumatology, key issues shaping the future of autoimmune and autoinflammatory arthritis care.
Go With Us! to ACR 2025: Why Policy Matters: Protecting Access to Rheumatology Care ● Answers what the treatments are and how they work; what to do when cost or coverage blocks treatment ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to ACR 2025: Why Policy Matters: Protecting Access to Rheumatology Care: https://www.youtube.com/watch?v=38UwG5_48l4
Go With Us! to ACR 2025: Understanding IgG4-RD -- New Research at ACR is Bringing Hope to Patients
Join Leila P.L. Valete, Health Education Manager at Ai Arthritis , as she delivers a special Go With Us! report dedicated entirely to IgG4-related disease (IgG4-RD), a condition gaining new attention in the rheumatology community.
Go With Us! to ACR 2025: Understanding IgG4-RD -- New Research at ACR is Bringing Hope to Patients ● Answers what the treatments are and how they work; what the research says ● Disease Immunoglobulin G4-Related Disease (associated condition) ● Journey stage Every step ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to ACR 2025: Understanding IgG4-RD -- New Research at ACR is Bringing Hope to Patients: https://www.youtube.com/watch?v=F9SDUAYXVso
Go With Us! to ACR 2025: Why Oral Health is a Critical Part of Sjögren's & Scleroderma Care
Join Leila P.L. Valete, Health Education Manager at Ai Arthritis , as she recaps a highly overlooked topic from ACR 2025: oral health in Sjögren’s disease and systemic sclerosis. Dry mouth, fibrosis, jaw stiffness, and dental complications are extremely common in these conditions, yet often dismissed, misunderstood, or not covered by insurance.
Go With Us! to ACR 2025: Why Oral Health is a Critical Part of Sjögren's & Scleroderma Care covers conditions and terms also written as Sjogren's Disease, Sjogrens, Sjögren's syndrome, Sjogren's syndrome or SSc.
Go With Us! to ACR 2025: Why Oral Health is a Critical Part of Sjögren's & Scleroderma Care ● Answers how long it lasts and what to expect; what to do when cost or coverage blocks treatment ● Disease Sjögren's Disease; Systemic Sclerosis (Scleroderma) ● Journey stage Every step ● Topic Symptoms and flares; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to ACR 2025: Why Oral Health is a Critical Part of Sjögren's & Scleroderma Care: https://www.youtube.com/watch?v=q5XlwG4cNXo
Go With Us! to ACR 2025: Why Mental Health Matters in Rheumatology
Join Eileen Davidson, Ai Arthritis Educational Media Assistant and person living with rheumatoid arthritis, as she shares powerful insights from three mental-health, focused sessions at the American College of Rheumatology conference.
Go With Us! to ACR 2025: Why Mental Health Matters in Rheumatology covers conditions and terms also written as RA.
Go With Us! to ACR 2025: Why Mental Health Matters in Rheumatology ● Answers what I can do myself day to day; what the research says ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Food and nutrition; Living with it day to day ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to ACR 2025: Why Mental Health Matters in Rheumatology: https://www.youtube.com/watch?v=7kf_-_-txrE
Go With Us! to ACR 2025: How Exercise, Stress Management, and Diet Help Ai Arthritis Management
Join Eileen Davidson, Ai Arthritis Educational Media Assistant and person living with rheumatoid arthritis, as she shares what she learned at the 2025 ACR Conference about exercise, stress management, and nutrition for people living with autoimmune and autoinflammatory arthritis.
Go With Us! to ACR 2025: How Exercise, Stress Management, and Diet Help Ai Arthritis Management covers conditions and terms also written as RA.
Go With Us! to ACR 2025: How Exercise, Stress Management, and Diet Help Ai Arthritis Management ● Answers what I can do myself day to day; how long it lasts and what to expect ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Symptoms and flares; Food and nutrition ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to ACR 2025: How Exercise, Stress Management, and Diet Help Ai Arthritis Management: https://www.youtube.com/watch?v=Jx0zP9H7tdI
IgG4-RDFDA Approves B-Cell Therapy for Better Patient Outcomes
A groundbreaking FDA approval means new treatment options, and new hope, for patients living with this disease. This video shares the exciting news about the FDA approval of B-cell depletion therapy, offering patients a new, targeted treatment option to improve quality of life.
IgG4-RDFDA Approves B-Cell Therapy for Better Patient Outcomes covers conditions and terms also written as IgG4-RD.
IgG4-RDFDA Approves B-Cell Therapy for Better Patient Outcomes ● Answers how it is diagnosed; what the treatments are and how they work ● Disease Immunoglobulin G4-Related Disease (associated condition) ● Journey stage Undiagnosed/Mystery Patient ● Topic Getting diagnosed; Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for IgG4-RDFDA Approves B-Cell Therapy for Better Patient Outcomes: https://www.youtube.com/watch?v=nA8ElMByZF8
IgG4-RDUncovering IgG4-RD: A Hidden Cause of Misdiagnosis
Could a rare disease like IgG4-RD be the real reason behind a misdiagnosis of cancer or Sjögren’s? This video explains how Ai Arthritis is raising awareness of IgG4-related disease, which is often mistaken for conditions like Sjögren’s, sarcoidosis, vasculitis, or even cancer, and why recognizing it early is vital to protect multiple organs.
IgG4-RDUncovering IgG4-RD: A Hidden Cause of Misdiagnosis covers conditions and terms also written as Sjogren's Disease, Sjogrens, Sjögren's syndrome or Sjogren's syndrome.
IgG4-RDUncovering IgG4-RD: A Hidden Cause of Misdiagnosis ● Answers how to take part; how it is diagnosed ● Disease Immunoglobulin G4-Related Disease (associated condition); Sjögren's Disease ● Journey stage Every step ● Topic Awareness days and campaigns; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for IgG4-RDUncovering IgG4-RD: A Hidden Cause of Misdiagnosis: https://www.youtube.com/watch?v=eLgkXcOkx24
IgG4-RDBridging Gaps: Culturally Competent Care for Earlier Diagnosis
What if more culturally competent care could help communities of color get diagnosed sooner? This video highlights how Ai Arthritis is gathering insights from Black, Latino, and Asian communities to create culturally informed resources that help healthcare providers diagnose and treat patients earlier and more equitably.
IgG4-RDBridging Gaps: Culturally Competent Care for Earlier Diagnosis covers conditions and terms also written as IgG4-RD.
IgG4-RDBridging Gaps: Culturally Competent Care for Earlier Diagnosis ● Answers how to take part; how it is diagnosed ● Disease Immunoglobulin G4-Related Disease (associated condition) ● Journey stage Every step ● Topic Advocacy and policy; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for IgG4-RDBridging Gaps: Culturally Competent Care for Earlier Diagnosis: https://www.youtube.com/watch?v=zcgb2itjK7k
IgG4-RDThe First Six Months Are Critical
Did you know you have the best chance at remission if you get treated within six months of symptoms starting? This video explains why getting proper treatment early, especially within six months of symptom onset, is vital to improving remission rates and preventing additional health complications.
IgG4-RDThe First Six Months Are Critical covers conditions and terms also written as IgG4-RD.
IgG4-RDThe First Six Months Are Critical ● Answers how it is diagnosed; how long it lasts and what to expect ● Disease Immunoglobulin G4-Related Disease (associated condition) ● Journey stage Undiagnosed/Mystery Patient; Remission ● Topic Getting diagnosed; Symptoms and flares ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for IgG4-RDThe First Six Months Are Critical: https://www.youtube.com/watch?v=tKw6jYj395c
Breaking Down Barriers: Ai Arthritis ' Fight for Undiagnosed "Mystery Patients"
Too many people are told their pain is “all in their head” -- Ai Arthritis is changing that for mystery patients worldwide. This clip explains how Ai Arthritis was founded to support undiagnosed patients and highlights ongoing efforts to educate healthcare providers and the public to speed up diagnosis and treatment.
Breaking Down Barriers: Ai Arthritis ' Fight for Undiagnosed "Mystery Patients" ● Answers how it is diagnosed; what the treatments are and how they work ● Journey stage Undiagnosed/Mystery Patient ● Topic Getting diagnosed; Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Breaking Down Barriers: Ai Arthritis ' Fight for Undiagnosed "Mystery Patients": https://www.youtube.com/watch?v=Oc6889vZvjg
Ai Arthritis Voices 360 Podcast (Ep 115, on video)
Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research.
Ai Arthritis Voices 360 Podcast (Ep 115, on video) ● Answers what the research says; how to take part ● Journey stage Every step ● Topic Research and conferences; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Ai Arthritis Voices 360 Podcast (Ep 115, on video): https://www.youtube.com/watch?v=s_1W58T7yXE
#WTHellth?! (Ep 114, on video)
We have all had those moments where the healthcare system leaves us throwing up our hands and asking, WTH?! From outrageous medical bills and denied prescriptions to hours on the phone with insurance companies, people everywhere share the same frustrations. That is why Ai Arthritis launched the global.
#WTHellth?! (Ep 114, on video) ● Answers what to do when cost or coverage blocks treatment; what it feels like ● Journey stage Every step ● Topic Work, school and money; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #WTHellth?! (Ep 114, on video): https://www.youtube.com/watch?v=lcd4nHKkiR8
Your Prescription Drug: Affordable or Unaffordable and WHY? (Ep 114, on video)
Due largely to a really complex healthcare system, prescription drug affordability is a growing challenge in the United States. Good news! Efforts are happening RIGHT NOW by several government representatives to try and address it. But improvements are moving forward without asking patients what prescriptions THEY can or cannot afford, and they aren’t asking WHY this is.
Your Prescription Drug: Affordable or Unaffordable and WHY? (Ep 114, on video) ● Answers what the treatments are and how they work; what to do when cost or coverage blocks treatment ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Your Prescription Drug: Affordable or Unaffordable and WHY? (Ep 114, on video): https://www.youtube.com/watch?v=uqqP3N4M7Bk
What is CAR-T Therapy? (Ep 113, on video)
CAR-T Therapy is one of the most talked about advances in autoimmune research today, offering new hope for people living with Ai Arthritis diseases such as lupus, myositis, scleroderma, and Sjögren’s. In this episode, co-hosts Leila P.L.
What is CAR-T Therapy? (Ep 113, on video) covers conditions and terms also written as SLE, systemic lupus erythematosus, Sjogren's Disease, Sjogrens, Sjögren's syndrome or Sjogren's syndrome.
What is CAR-T Therapy? (Ep 113, on video) ● Answers what it is; what the treatments are and how they work ● Disease Lupus; Sjögren's Disease ● Journey stage Every step ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for What is CAR-T Therapy? (Ep 113, on video): https://www.youtube.com/watch?v=Xp3_mlDzj6M
Precision Medicine Webinar: Knowledge = Empowerment Classroom
Precision medicine is changing the future of Ai Arthritis disease care. Instead of a one-size-fits-all approach, precision medicine uses biomarkers, genetics, and patient data to personalize treatment helping the right patient get the right therapy at the right time.
Precision Medicine Webinar: Knowledge = Empowerment Classroom ● Answers what the treatments are and how they work; how it is diagnosed ● Journey stage Every step ● Topic Treatment and medication; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Precision Medicine Webinar: Knowledge = Empowerment Classroom: https://www.youtube.com/watch?v=3HTN9-f_mjU
Value Assessments 101: Knowledge = Empowerment Classroom
Value assessments are complex reviews used to determine whether a medication or therapy is considered “worth the cost” and the outcome can directly affect which treatments are covered by insurance or how easily patients can access them.
Value Assessments 101: Knowledge = Empowerment Classroom ● Answers what the treatments are and how they work; what to do when cost or coverage blocks treatment ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Value Assessments 101: Knowledge = Empowerment Classroom: https://www.youtube.com/watch?v=bjemn6KinFI
Copay Accumulator/Maximizer Webinar: Knowledge = Empowerment Classroom
Copay accumulator and maximizer programs are insurance practices that increase out-of-pocket costs for patients by preventing copay assistance from counting toward deductibles or out-of-pocket maximums. Instead of helping patients access prescribed treatments, these programs allow health plans to redirect financial assistance for their own benefit.
Copay Accumulator/Maximizer Webinar: Knowledge = Empowerment Classroom covers conditions and terms also written as copay maximizer or copay accumulator adjuster.
Copay Accumulator/Maximizer Webinar: Knowledge = Empowerment Classroom ● Answers what to do when cost or coverage blocks treatment; what the treatments are and how they work ● Journey stage Every step ● Topic Work, school and money; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Copay Accumulator/Maximizer Webinar: Knowledge = Empowerment Classroom: https://www.youtube.com/watch?v=8wO7AUcSf54
Step Therapy Webinar: Knowledge = Empowerment Classroom
Step therapy, also called “fail first”, is a common insurance practice that can delay or even block patients from accessing the medications their doctors prescribe. For people living with Ai Arthritis diseases, these delays can lead to worsening symptoms, irreversible disease progression, and a loss of control over their condition.
Step Therapy Webinar: Knowledge = Empowerment Classroom ● Answers what the treatments are and how they work; what to do when cost or coverage blocks treatment ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Step Therapy Webinar: Knowledge = Empowerment Classroom: https://www.youtube.com/watch?v=JZLnH3dwd5w
Pregnancy and Ai Arthritis Diseases (Ep 112, on video)
In this follow-up episode, Ai Arthritis Health Education Manager Leila reflects on her personal pregnancy journey with lupus and Sjögren’s, while sharing key fertility and pregnancy insights from EULAR 2024. She highlights emerging research and clinical recommendations on preconception planning, navigating medication decisions, and coordinating care between rheumatologists and high-risk OB-GYNs.
Pregnancy and Ai Arthritis Diseases (Ep 112, on video) covers conditions and terms also written as SLE, systemic lupus erythematosus, Sjogren's Disease, Sjogrens, Sjögren's syndrome or Sjogren's syndrome.
Pregnancy and Ai Arthritis Diseases (Ep 112, on video) ● Answers what the treatments are and how they work; what the research says ● Disease Lupus; Sjögren's Disease ● Journey stage Every step ● Topic Treatment and medication; Family, pregnancy and parenting ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Pregnancy and Ai Arthritis Diseases (Ep 112, on video): https://www.youtube.com/watch?v=toz4jtoU7UU
Non-Medical Switching (NMS) 101 Classroom
Join Tiffany ( Ai Arthritis CEO, person living with non-radiographic axial spondyloarthritis) and Ray (Project Manager, person living with Psoriatic Arthritis), as they lead todays class on Non-Medical Switching. Sign up to receive updates about new resources and opportunities to participate in field trips and sharing your experiences with legislators.
Non-Medical Switching (NMS) 101 Classroom covers conditions and terms also written as axSpA, ankylosing spondylitis, non-radiographic axSpA or PsA.
Non-Medical Switching (NMS) 101 Classroom ● Answers what the treatments are and how they work; what to do when cost or coverage blocks treatment ● Disease Axial Spondyloarthritis; Psoriatic Arthritis ● Journey stage Every step ● Topic Treatment and medication; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Non-Medical Switching (NMS) 101 Classroom: https://www.youtube.com/watch?v=BgxeYaQRsnw
Pharmacy Benefit Managers (PBMs) Classroom
Join Tiffany ( Ai Arthritis CEO, person living with non-radiographic axial spondyloarthritis) and Ray (Project Manager, person living with Psoriatic Arthritis), as they lead todays class on Pharmacy Benefit Managers (PBMs) and how they frequently impede patient access to the medicines they need.
Pharmacy Benefit Managers (PBMs) Classroom covers conditions and terms also written as axSpA, ankylosing spondylitis, non-radiographic axSpA or PsA.
Pharmacy Benefit Managers (PBMs) Classroom ● Answers what to do when cost or coverage blocks treatment; how to take part ● Disease Axial Spondyloarthritis; Psoriatic Arthritis ● Journey stage Every step ● Topic Work, school and money; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Pharmacy Benefit Managers (PBMs) Classroom: https://www.youtube.com/watch?v=I7dmx15A6s8
Go With Us! to EULAR 2025: What Is IgG4-Related Disease—and Why Are So Many Patients Misdiagnosed?
In this Go With Us! video from EULAR 2025, Health Education Manager Leila P.L. Valete breaks down key insights from a session on IgG4-related disease (IgG4-RD), a rare immune condition that’s often confused with other autoimmune diseases like lupus, Sjögren’s, or rheumatoid arthritis.
Go With Us! to EULAR 2025: What Is IgG4-Related Disease—and Why Are So Many Patients Misdiagnosed? covers conditions and terms also written as SLE or systemic lupus erythematosus.
Go With Us! to EULAR 2025: What Is IgG4-Related Disease—and Why Are So Many Patients Misdiagnosed? ● Answers what the research says; how it is diagnosed ● Disease Immunoglobulin G4-Related Disease (associated condition); Lupus ● Journey stage Every step ● Topic Research and conferences; Disease information ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to EULAR 2025: What Is IgG4-Related Disease—and Why Are So Many Patients Misdiagnosed?: https://www.youtube.com/watch?v=0d1cvNtUsfM
Breaking Ai Arthritis Disease Research Update - EULAR 2025 (Ep 111, on video)
Ai Arthritis is bringing you along for the journey as part of our Go With Us! Program, this time straight from the EULAR 2025 in Barcelona. In this episode, we’re spotlighting key research updates that matter most to patients living with Ai Arthritis diseases.
Breaking Ai Arthritis Disease Research Update - EULAR 2025 (Ep 111, on video) ● Answers what the research says; what it feels like ● Journey stage Every step ● Topic Research and conferences; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Breaking Ai Arthritis Disease Research Update - EULAR 2025 (Ep 111, on video): https://www.youtube.com/watch?v=1bl9CCxMDvo
Go With Us! to EULAR 2025: Psoriatic Arthritis Updates Every Patient Should Know
Join Tiffany Westrich-Robertson, CEO of Ai Arthritis and a patient living with axial spondyloarthritis, as she shares key research updates from EULAR 2025! In this short debrief, Tiffany breaks down the latest findings on psoriatic arthritis treatments, including: - Whether biologics work better when started early, What “treat to target” means for your care, New insights into enthesitis and...
Go With Us! to EULAR 2025: Psoriatic Arthritis Updates Every Patient Should Know covers conditions and terms also written as axSpA, ankylosing spondylitis, non-radiographic axSpA, PsA or T2T.
Go With Us! to EULAR 2025: Psoriatic Arthritis Updates Every Patient Should Know ● Answers what the research says; how long it lasts and what to expect ● Disease Axial Spondyloarthritis; Psoriatic Arthritis ● Journey stage Every step ● Topic Symptoms and flares; Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to EULAR 2025: Psoriatic Arthritis Updates Every Patient Should Know: https://www.youtube.com/watch?v=LtfpJqgqw64
Go With Us! to EULAR 2025: Could CAR-T Lead to Drug-Free Remission for Autoimmune Diseases?
In this Go With Us! video from EULAR 2025, Leila, Ai Arthritis ’ Health Education Manager, dives into one of the most exciting sessions of the conference: CAR-T cell therapy and its potential to reset the immune system in autoimmune diseases like lupus and systemic sclerosis.
Go With Us! to EULAR 2025: Could CAR-T Lead to Drug-Free Remission for Autoimmune Diseases? covers conditions and terms also written as SLE, systemic lupus erythematosus, scleroderma or SSc.
Go With Us! to EULAR 2025: Could CAR-T Lead to Drug-Free Remission for Autoimmune Diseases? ● Answers what the treatments are and how they work; what the research says ● Disease Lupus; Systemic Sclerosis (Scleroderma) ● Journey stage Remission ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to EULAR 2025: Could CAR-T Lead to Drug-Free Remission for Autoimmune Diseases?: https://www.youtube.com/watch?v=JAXBzzaA3JE
Go With Us! to EULAR 2025: Can Diet Help Manage Autoimmune Arthritis? Here's What We Learned
In this Go With Us! video from EULAR 2025, patient advocate Deb Constien shares takeaways from a powerful session on nutrition, microbiome health, and how diet affects autoimmune and inflammatory arthritis.
Go With Us! to EULAR 2025: Can Diet Help Manage Autoimmune Arthritis? Here's What We Learned ● Answers what I can do myself day to day; what the research says ● Journey stage Every step ● Topic Food and nutrition; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to EULAR 2025: Can Diet Help Manage Autoimmune Arthritis? Here's What We Learned: https://www.youtube.com/watch?v=-NGLA48aC2M
Go With Us! to EULAR 2025: Big News in Still’s Disease Research You Need to Know
Join Tiffany and Eileen from Ai Arthritis as they report live from EULAR 2025 with exciting updates on Still’s disease, including new research, emerging terminology, and a surprise discovery announced for the first time during this session. In this Go With Us!
Go With Us! to EULAR 2025: Big News in Still’s Disease Research You Need to Know ● Answers what I can do myself day to day; what the research says ● Journey stage Every step ● Topic Family, pregnancy and parenting; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to EULAR 2025: Big News in Still’s Disease Research You Need to Know: https://www.youtube.com/watch?v=tFr-ubyAdy4
Go With Us! to EULAR 2025: Hope for Difficult-to-Treat RA—New Therapies Explained
In this Go With Us! episode from EULAR 2025, patient advocate Deb Constien breaks down an eye-opening session on difficult-to-treat rheumatoid arthritis (RA), a condition that affects up to 1 in 5 RA patients. This session covered real patient case studies and innovative therapies for those who've tried everything.
Go With Us! to EULAR 2025: Hope for Difficult-to-Treat RA—New Therapies Explained ● Answers what the research says; what to do when cost or coverage blocks treatment ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Research and conferences; Disease information ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to EULAR 2025: Hope for Difficult-to-Treat RA—New Therapies Explained: https://www.youtube.com/watch?v=VvrSvZU4xy4
Go With Us! to EULAR 2025: What Patients Need to Know About VEXAS Syndrome
In this Go With Us! video from EULAR 2025, Ai Arthritis ’ Deb Constien dives into one of the most talked-about new conditions in the autoimmune world, VEXAS syndrome. Although only discovered in recent years, VEXAS is now recognized as part of the inflammatory arthritis conversation.
Go With Us! to EULAR 2025: What Patients Need to Know About VEXAS Syndrome ● Answers what the research says ● Disease VEXAS Syndrome ● Journey stage Every step ● Topic Research and conferences; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to EULAR 2025: What Patients Need to Know About VEXAS Syndrome: https://www.youtube.com/watch?v=Vezlbckr1_s
Go With Us! to EULAR 2025: Big Breakthroughs in Sjögren’s—New Research, New Hope
In this Go With Us! debrief from EULAR 2025, Leila, Health Education Manager at Ai Arthritis and a patient living with lupus and Sjögren’s, shares the most exciting updates from sessions on Sjögren’s disease. This year brought a wave of innovation and fresh hope for people living with this often misunderstood condition.
Go With Us! to EULAR 2025: Big Breakthroughs in Sjögren’s—New Research, New Hope covers conditions and terms also written as SLE, systemic lupus erythematosus, Sjogren's Disease, Sjogrens, Sjögren's syndrome or Sjogren's syndrome.
Go With Us! to EULAR 2025: Big Breakthroughs in Sjögren’s—New Research, New Hope ● Answers what the research says; what the treatments are and how they work ● Disease Lupus; Sjögren's Disease ● Journey stage Every step ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to EULAR 2025: Big Breakthroughs in Sjögren’s—New Research, New Hope: https://www.youtube.com/watch?v=U_f8R16hdH0
Go With Us! to EULAR 2025: Supporting Marginalized Patients in Autoimmune Care
In this Go With Us! video from EULAR 2025, Eileen Davidson, Educational Media Assistant at Ai Arthritis , shares personal reflections and key takeaways from a powerful session called “From Exclusion to Empowerment.” This session explored how people from marginalized groups, such as low-income individuals, LGBTQ+ communities, and migrants, face added challenges in getting the care they deserve.
Go With Us! to EULAR 2025: Supporting Marginalized Patients in Autoimmune Care ● Answers what the research says ● Journey stage Every step ● Topic Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to EULAR 2025: Supporting Marginalized Patients in Autoimmune Care: https://www.youtube.com/watch?v=oPs9oUDHt0U
Go With Us! to EULAR 2025: Should Doctors Prescribe Cannabis for Autoimmune Disease?
In this Go With Us! video from EULAR 2025, Eileen Davidson breaks down one of the most talked-about sessions of the conference, a debate on whether cannabis should be prescribed for rheumatic and autoimmune diseases like RA, fibromyalgia, and scleroderma. Two doctors, one from the U.S. and one from Israel, presented opposing views based on current science.
Go With Us! to EULAR 2025: Should Doctors Prescribe Cannabis for Autoimmune Disease? covers conditions and terms also written as systemic sclerosis or SSc.
Go With Us! to EULAR 2025: Should Doctors Prescribe Cannabis for Autoimmune Disease? ● Answers what the research says; what I can do myself day to day ● Disease Systemic Sclerosis (Scleroderma) ● Journey stage Every step ● Topic Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to EULAR 2025: Should Doctors Prescribe Cannabis for Autoimmune Disease?: https://www.youtube.com/watch?v=iw-KJWbKpuo
Go With Us! to EULAR 2025: What’s Really Causing Enthesitis—and Why It Matters
In this Go With Us! video from EULAR 2025, Tiffany Westrich-Robertson, person living with axial spondyloarthritis and CEO of Ai Arthritis , shares important updates about enthesitis, a common and painful symptom in spondyloarthritis and psoriatic arthritis.
Go With Us! to EULAR 2025: What’s Really Causing Enthesitis—and Why It Matters covers conditions and terms also written as axSpA, ankylosing spondylitis, non-radiographic axSpA or PsA.
Go With Us! to EULAR 2025: What’s Really Causing Enthesitis—and Why It Matters ● Answers how long it lasts and what to expect; what the research says ● Disease Axial Spondyloarthritis; Psoriatic Arthritis ● Journey stage Every step ● Topic Symptoms and flares; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to EULAR 2025: What’s Really Causing Enthesitis—and Why It Matters: https://www.youtube.com/watch?v=ew1WVaW7LZ0
Go With Us! to EULAR 2025: Helping Teens Transition from Pediatric to Adult Autoimmune Care
In this Go With Us! video from EULAR 2025, Ai Arthritis Health Education Manager Leila P.L. Valete reflects on a powerful session focused on the transition from pediatric to adult care, a time that can be confusing, scary, and even dangerous for teens living with autoimmune and autoinflammatory arthritis diseases.
Go With Us! to EULAR 2025: Helping Teens Transition from Pediatric to Adult Autoimmune Care covers conditions and terms also written as SLE or systemic lupus erythematosus.
Go With Us! to EULAR 2025: Helping Teens Transition from Pediatric to Adult Autoimmune Care ● Answers what the research says; what it feels like ● Disease Lupus ● Journey stage Every step ● Topic Research and conferences; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to EULAR 2025: Helping Teens Transition from Pediatric to Adult Autoimmune Care: https://www.youtube.com/watch?v=9qfCUfWxKGs
Go With Us! to EULAR 2025: Can We Prevent RA? New Studies Offer Hope
In this Go With Us! video from EULAR 2025, patient advocate Deb Constien breaks down three research abstracts that explore how we might better predict, prevent, and manage rheumatoid arthritis (RA), especially in people at risk or those facing lung complications.
Go With Us! to EULAR 2025: Can We Prevent RA? New Studies Offer Hope ● Answers what the research says; what the treatments are and how they work ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to EULAR 2025: Can We Prevent RA? New Studies Offer Hope: https://www.youtube.com/watch?v=MeoSiq4g8Jg
Go With Us! to EULAR 2025: Should We Treat RA Before It Starts? The Big Debate
In this Go With Us! video, Tiffany and Deb share insights from a hot topic debate at EULAR 2025: Should we treat people at high risk for rheumatoid arthritis (RA) before they even have a full diagnosis? Experts argued both sides, some said early treatment could delay disease, lower long-term costs, and help patients feel better sooner.
Go With Us! to EULAR 2025: Should We Treat RA Before It Starts? The Big Debate ● Answers what the treatments are and how they work; what to do when cost or coverage blocks treatment ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to EULAR 2025: Should We Treat RA Before It Starts? The Big Debate: https://www.youtube.com/watch?v=KwQSk_ePONc
Go With Us! to EULAR 2025: Understanding Chronic Pain in Autoimmune Arthritis—What Really Helps?
In this Go With Us! episode from EULAR 2025, patient advocate Deb Constien dives into one of the most talked-about topics at the conference: chronic pain. If you live with autoimmune or autoinflammatory arthritis, you know pain isn’t just a symptom, it can affect every part of your life.
Go With Us! to EULAR 2025: Understanding Chronic Pain in Autoimmune Arthritis—What Really Helps? ● Answers how long it lasts and what to expect; what the research says ● Journey stage Every step ● Topic Symptoms and flares; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to EULAR 2025: Understanding Chronic Pain in Autoimmune Arthritis—What Really Helps?: https://www.youtube.com/watch?v=8sbcvBiJaGQ
Go With Us! to EULAR 2025: What’s New in Lupus Nephritis and Why Early Action Matters
In this Go With Us! video from EULAR 2025, Leila shares important updates about lupus nephritis, a serious kidney problem that affects more than half of people with lupus. As someone living with lupus herself, Leila explains the research in simple terms, so you can better understand what to watch for and how to take action early.
Go With Us! to EULAR 2025: What’s New in Lupus Nephritis and Why Early Action Matters covers conditions and terms also written as SLE or systemic lupus erythematosus.
Go With Us! to EULAR 2025: What’s New in Lupus Nephritis and Why Early Action Matters ● Answers how long it lasts and what to expect; what the research says ● Disease Lupus ● Journey stage Every step ● Topic Co-existing conditions; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to EULAR 2025: What’s New in Lupus Nephritis and Why Early Action Matters: https://www.youtube.com/watch?v=dqRJnAgXqVE
From Caregiver to Changemaker: Revolutionizing Care for Ai Arthritis Diseases/IMIDs (Ep 110, on video)
Managing Ai Arthritis diseases are challenging but what if the entire model of care could change for the better? In this episode, Leila is joined by Dr. Jin Lee, co-founder and CEO of IMIDeology, a virtual and in-person clinic dedicated to diagnosing and treating immune-mediated inflammatory diseases (IMIDs) like spondyloarthritis, lupus, Crohn’s, and more. Dr.
From Caregiver to Changemaker: Revolutionizing Care for Ai Arthritis Diseases/IMIDs (Ep 110, on video) covers conditions and terms also written as Crohns, inflammatory bowel disease, IBD, SLE or systemic lupus erythematosus.
From Caregiver to Changemaker: Revolutionizing Care for Ai Arthritis Diseases/IMIDs (Ep 110, on video) ● Answers what it feels like; how it is diagnosed ● Disease Crohn's Disease; Lupus ● Journey stage Care Partners ● Topic Lived experience; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for From Caregiver to Changemaker: Revolutionizing Care for Ai Arthritis Diseases/IMIDs (Ep 110, on video): https://www.youtube.com/watch?v=0ww50o__u4k
Go With Us to EULAR 2023 - Biomarkers, Hard to treat, Cardiovascular disease and Mental Health
Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research.
Go With Us to EULAR 2023 - Biomarkers, Hard to treat, Cardiovascular disease and Mental Health ● Answers what I can do myself day to day; what the research says ● Journey stage Every step ● Topic Living with it day to day; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us to EULAR 2023 - Biomarkers, Hard to treat, Cardiovascular disease and Mental Health: https://www.youtube.com/watch?v=4eWsHAqxbOM
What Ai Arthritis Patients Need to Know About ILD (Interstitial Lung Disease) ACR 2024
Are you living with rheumatoid arthritis, Sjögren’s disease, systemic sclerosis, or another autoimmune or autoinflammatory arthritis condition? You may be at risk for Interstitial Lung Disease (ILD), a serious lung condition that can develop without warning.
What Ai Arthritis Patients Need to Know About ILD (Interstitial Lung Disease) ACR 2024 covers conditions and terms also written as RA.
What Ai Arthritis Patients Need to Know About ILD (Interstitial Lung Disease) ACR 2024 ● Answers how long it lasts and what to expect; what the research says ● Disease Interstitial Lung Disease (associated condition); Rheumatoid Arthritis ● Journey stage Every step ● Topic Co-existing conditions; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for What Ai Arthritis Patients Need to Know About ILD (Interstitial Lung Disease) ACR 2024: https://www.youtube.com/watch?v=v6ielNpQ1IQ
Go With Us! to EULAR 2024: What You Need to Know About Interstitial Lung Disease (ILD)
Interstitial Lung Disease (ILD) is a serious condition that can affect people living with autoimmune and autoinflammatory arthritis diseases, especially those with rheumatoid arthritis, systemic sclerosis (scleroderma), and Sjögren’s disease. In this Go With Us! to Conferences episode, Leila P.L.
Go With Us! to EULAR 2024: What You Need to Know About Interstitial Lung Disease (ILD) covers conditions and terms also written as SLE or systemic lupus erythematosus.
Go With Us! to EULAR 2024: What You Need to Know About Interstitial Lung Disease (ILD) ● Answers how long it lasts and what to expect; what the research says ● Disease Interstitial Lung Disease (associated condition); Lupus ● Journey stage Every step ● Topic Co-existing conditions; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to EULAR 2024: What You Need to Know About Interstitial Lung Disease (ILD): https://www.youtube.com/watch?v=XZ82ZxHJfzA
The Mystery Patient Experience and the Overlap with IgG4-RD (Ep 109, on video)
Ai Arthritis diseases can be difficult enough to manage, but what happens when the symptoms don’t fit neatly into a diagnosis? In this episode, Ai Arthritis Health Education Manager Leila shares her perspective on the “mystery patient” experience, those living with serious, ongoing symptoms but still searching for answers.
The Mystery Patient Experience and the Overlap with IgG4-RD (Ep 109, on video) ● Answers how it is diagnosed; what it feels like ● Disease Immunoglobulin G4-Related Disease (associated condition) ● Journey stage Undiagnosed/Mystery Patient ● Topic Getting diagnosed; Co-existing conditions ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for The Mystery Patient Experience and the Overlap with IgG4-RD (Ep 109, on video): https://www.youtube.com/watch?v=aw3LdTcac5Y
Extended Discussion: Inflation Reduction Act (IRA) Impact on Medicare & Biosimilars
In this special 360it spin-off episode, Ray and Michael, both living with psoriatic arthritis, break down how biosimilars and non-medical switching directly impact patients like them. With real-world experience and policy insight, they tackle tough questions around access, treatment stability, and patient choice.
Extended Discussion: Inflation Reduction Act (IRA) Impact on Medicare & Biosimilars covers conditions and terms also written as PsA, NMS, biosimilar or interchangeable biosimilar.
Extended Discussion: Inflation Reduction Act (IRA) Impact on Medicare & Biosimilars ● Answers what the treatments are and how they work; what to do when cost or coverage blocks treatment ● Disease Psoriatic Arthritis ● Journey stage Every step ● Topic Treatment and medication; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Extended Discussion: Inflation Reduction Act (IRA) Impact on Medicare & Biosimilars: https://www.youtube.com/watch?v=3bM1zo_gUF0
Should Patients Do If Asked to Switch to A Biosimilar?
What should you do if you’re told you’re being switched to a biosimilar? In this video, Dr. Ralph McKibbin, practicing gastroenterologist and Chairman of the Alliance for Safe Biologic Medicines, shares what patients need to know about navigating non-medical switching and advocating for their care. Dr.
Should Patients Do If Asked to Switch to A Biosimilar? covers conditions and terms also written as NMS, biosimilars or interchangeable biosimilar.
Should Patients Do If Asked to Switch to A Biosimilar? ● Answers what the treatments are and how they work; what to do when cost or coverage blocks treatment ● Journey stage Every step ● Topic Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Should Patients Do If Asked to Switch to A Biosimilar?: https://www.youtube.com/watch?v=tIqbFztkR3A
Neurological Manifestations of Lupus & Sjogren's Disease with Dr. Julius Birnbaum (Ep 108, on video)
Autoimmune diseases like lupus and Sjogren’s disease are often associated with joint pain, fatigue, and organ involvement, but their impact on the nervous system is less commonly discussed. In this episode, Dr. Julius Birnbaum, a leading expert in neuro-rheumatology, joins us to explore the neurological manifestations of these conditions and what patients need to know.
Neurological Manifestations of Lupus & Sjogren's Disease with Dr. Julius Birnbaum (Ep 108, on video) covers conditions and terms also written as SLE, systemic lupus erythematosus, Sjogrens, Sjögren's syndrome or Sjogren's syndrome.
Neurological Manifestations of Lupus & Sjogren's Disease with Dr. Julius Birnbaum (Ep 108, on video) ● Answers how long it lasts and what to expect ● Disease Lupus; Sjögren's Disease ● Journey stage Co-Existing Conditions ● Topic Symptoms and flares; Co-existing conditions ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Neurological Manifestations of Lupus & Sjogren's Disease with Dr. Julius Birnbaum (Ep 108, on video): https://www.youtube.com/watch?v=bov1eEFnSOo
Parenting with a Chronic Illness (Ep 107, on video)
Parenting is challenging, but adding a chronic illness like rheumatoid arthritis brings unique obstacles. In this episode, co-host Eileen shares her journey of raising a child while managing RA, from coping with fatigue and pain to adjusting expectations. She’s joined by her 12-year-old son, Jacob, who offers his perspective on growing up with a parent who has a chronic illness.
Parenting with a Chronic Illness (Ep 107, on video) ● Answers how long it lasts and what to expect; what it feels like ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Symptoms and flares; Family, pregnancy and parenting ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Parenting with a Chronic Illness (Ep 107, on video): https://www.youtube.com/watch?v=Xk-3wxnC7jg
PBM Transparency & Reforms Patient Story: Britt's Perspective
Join Britt, a person living with psoriasis, as he shares his personal journey of battling severe psoriasis and navigating the challenges with pharmacy benefit managers (PBMs). From dealing with painful, life-altering skin plaques to struggling with insurance coverage for his medications, Britt explains the hurdles he faced when trying to get the right treatment.
PBM Transparency & Reforms Patient Story: Britt's Perspective ● Answers what it feels like; what the treatments are and how they work ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for PBM Transparency & Reforms Patient Story: Britt's Perspective: https://www.youtube.com/watch?v=Siq-cPin9P4
What are Alternative Funding Programs? (Ray's Perspective)
Join Ray ( Ai Arthritis Project Manager, person living with Psoriatic Arthritis) as he explains how Alternative Funding Programs (AFPs) can impact access to medications and create challenges for patients relying on specialty meds. Ray breaks down how AFPs work and how they force patients into complex, stressful situations when trying to afford their medications.
What are Alternative Funding Programs? (Ray's Perspective) covers conditions and terms also written as PsA.
What are Alternative Funding Programs? (Ray's Perspective) ● Answers what it is; what to do when cost or coverage blocks treatment ● Disease Psoriatic Arthritis ● Journey stage Every step ● Topic Work, school and money; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for What are Alternative Funding Programs? (Ray's Perspective): https://www.youtube.com/watch?v=0rL6u0AIUqY
Alternative Funding Program Issues - Why Should Patients Care? (Brittany's Perspective)
Join Brittany, person living with Psoriatic Arthritis, as she explains why patients should be cautious about Alternative Funding Programs (AFPs). While AFPs may seem like a solution to lower co-pays, Brittany breaks down the hidden challenges they create, including complicated processes, delays, and the lack of transparency.
Alternative Funding Program Issues - Why Should Patients Care? (Brittany's Perspective) covers conditions and terms also written as PsA.
Alternative Funding Program Issues - Why Should Patients Care? (Brittany's Perspective) ● Answers what it feels like; what to do when cost or coverage blocks treatment ● Disease Psoriatic Arthritis ● Journey stage Every step ● Topic Work, school and money; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Alternative Funding Program Issues - Why Should Patients Care? (Brittany's Perspective): https://www.youtube.com/watch?v=xVIXhxxjX3A
Alternative Funding Program Patient Story: Kelly's Perspective
Join Kelly Conway, person living with autoimmune arthritis, as she shares her personal experience with Alternative Funding Programs (AFPs). After her pharmacy benefits manager suddenly stopped covering a key medication, Kelly had to fight through a complicated system just to maintain access to the treatment that was working for her.
Alternative Funding Program Patient Story: Kelly's Perspective ● Answers what it feels like; what the treatments are and how they work ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Alternative Funding Program Patient Story: Kelly's Perspective: https://www.youtube.com/watch?v=nc0zD-gymXg
What are PBMs? (Ray's Perspective)
Join Ray, a person living with psoriatic arthritis, as he explains what a Pharmacy Benefit Manager (PBM) is and why it matters to patients. PBMs play a significant role in the U.S. healthcare system by managing prescription drug benefits, negotiating drug prices, and controlling formularies, the list of medications covered by insurance.
What are PBMs? (Ray's Perspective) covers conditions and terms also written as PsA.
What are PBMs? (Ray's Perspective) ● Answers what it is; what the treatments are and how they work ● Disease Psoriatic Arthritis ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for What are PBMs? (Ray's Perspective): https://www.youtube.com/watch?v=SMVPZLGVRR0
PBM Transparency & Reforms - Why Should Patients Care? (Michael's Perspective)
Michael Guadalupe, Ai Arthritis Volunteer Program Coordinator and person living with Psoriatic Arthritis, discusses why Pharmacy Benefit Managers (PBMs) should matter to you as a patient. PBMs, such as Caremark, Express Scripts, and OptumRx, control a significant portion of prescriptions, limiting your choice of treatments, doctors, and pharmacies.
PBM Transparency & Reforms - Why Should Patients Care? (Michael's Perspective) covers conditions and terms also written as PsA.
PBM Transparency & Reforms - Why Should Patients Care? (Michael's Perspective) ● Answers what it feels like; what to do when cost or coverage blocks treatment ● Disease Psoriatic Arthritis ● Journey stage Every step ● Topic Lived experience; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for PBM Transparency & Reforms - Why Should Patients Care? (Michael's Perspective): https://www.youtube.com/watch?v=18In8Y1tnIM
PBM Transparency & Reforms Patient Story: Kelly's Perspective
Join Kelly Conway, person living with autoimmune arthritis, as she shares her experience navigating the challenges of pharmacy benefits managers (PBMs) when trying to access a crucial medication. Despite being told her treatment would be grandfathered into her new insurance plan, Kelly faced unnecessary delays, denials, and roadblocks from the PBM.
PBM Transparency & Reforms Patient Story: Kelly's Perspective ● Answers what it feels like; what the treatments are and how they work ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for PBM Transparency & Reforms Patient Story: Kelly's Perspective: https://www.youtube.com/watch?v=qQM8kogZRBc
PBM Transparency & Reforms - Why Should Patients Care? (Ray's Perspective)
Join Ray, a person living with psoriatic arthritis, as he explains why patients should care about Pharmacy Benefit Managers (PBMs). Ray explains how PBMs negotiate with drug manufacturers for a spot on the formulary, often choosing the most profitable medications for themselves, rather than the best option for patients.
PBM Transparency & Reforms - Why Should Patients Care? (Ray's Perspective) covers conditions and terms also written as PsA.
PBM Transparency & Reforms - Why Should Patients Care? (Ray's Perspective) ● Answers what it feels like; what the treatments are and how they work ● Disease Psoriatic Arthritis ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for PBM Transparency & Reforms - Why Should Patients Care? (Ray's Perspective): https://www.youtube.com/watch?v=Z6xURqbTueY
ACR 2024 Day 1: Game-Changing Lupus Research & ILD Breakthroughs! With Leila
Join Leila P.L. Valete, Health Education Manager at Ai Arthritis , as she recaps her Day 1 experience at ACR 2024 in Washington, DC! As a patient living with lupus and Sjogren's disease, Leila shares her key takeaways from two impactful sessions: Lupus Biomarker Advances: Discover how cutting-edge research on genetic and cellular markers is paving the way for personalized lupus treatments, reducing...
ACR 2024 Day 1: Game-Changing Lupus Research & ILD Breakthroughs! With Leila covers conditions and terms also written as SLE, systemic lupus erythematosus, Sjogrens, Sjögren's syndrome or Sjogren's syndrome.
ACR 2024 Day 1: Game-Changing Lupus Research & ILD Breakthroughs! With Leila ● Answers how it is diagnosed; what the research says ● Disease Lupus; Sjögren's Disease ● Journey stage Every step ● Topic Getting diagnosed; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for ACR 2024 Day 1: Game-Changing Lupus Research & ILD Breakthroughs! With Leila: https://www.youtube.com/watch?v=-C6OgeqsgNc
Biosimilars & Patient Rights: ACR 2024 Must-Know Updates! with Tiffany
Join Tiffany at ACR 2024 for a deep dive into biosimilars and their impact on patient care. In this Day 1 debrief, we explore: The challenges with biosimilar adoption in the U.S. healthcare system. Key differences between U.S. and European biosimilar policies. How patient rights are at risk with non-medical switching.
Biosimilars & Patient Rights: ACR 2024 Must-Know Updates! with Tiffany covers conditions and terms also written as NMS or interchangeable biosimilar.
Biosimilars & Patient Rights: ACR 2024 Must-Know Updates! with Tiffany ● Answers what the treatments are and how they work; what the research says ● Journey stage Every step ● Topic Treatment and medication; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Biosimilars & Patient Rights: ACR 2024 Must-Know Updates! with Tiffany: https://www.youtube.com/watch?v=_tMPuRb06GU
Crushing Fatigue & Brain Fog: Must-Know Insights from Rheumatic Disease Experts | ACR 2024 with Deb
Day 1 at ACR 2024 kicks off with an insightful session, "It's Not Just Joint Pain: Demystifying Difficult, Often Neglected Symptoms of Rheumatic Disease". Moderated by Eileen Davidson (Chronic Eileen), the panel featured a stellar lineup of experts: Cheryl Crow (occupational therapist), Cristina Montoya (arthritis dietitian), Daniel (physiotherapist), and a rheumatologist.
Crushing Fatigue & Brain Fog: Must-Know Insights from Rheumatic Disease Experts | ACR 2024 with Deb ● Answers how long it lasts and what to expect; what the research says ● Journey stage Every step ● Topic Symptoms and flares; Living with it day to day ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Crushing Fatigue & Brain Fog: Must-Know Insights from Rheumatic Disease Experts | ACR 2024 with Deb: https://www.youtube.com/watch?v=htvGDEO59DI
Cracking the Code: RA Risk Factors, Early Diagnosis, and Personal Triumphs with Deb
It's the end of Day 3 at ACR 2024, and we're diving into a fascinating session on risk stratification for Rheumatoid Arthritis (RA). Led by Kevin Dean from the University of Colorado, this session explored pathways to identify individuals at risk for RA, including musculoskeletal symptoms, population-based screening, and biomarkers.
Cracking the Code: RA Risk Factors, Early Diagnosis, and Personal Triumphs with Deb ● Answers what it is; how it is diagnosed ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Disease information ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Cracking the Code: RA Risk Factors, Early Diagnosis, and Personal Triumphs with Deb: https://www.youtube.com/watch?v=Zc1BPXw6TuI
From Patient to Professional: A Fortunate Encounter #inflammatoryarthritis
The Patient Perspective: Rheumatoid Arthritis & Interstitial Lung Disease was made in conjunction with the Take a Breath Patient Guide & Campaign, which were made possible with support from Boehringer Ingelheim International Foundation for Autoimmune & Autoinflammatory Arthritis ( Ai Arthritis ).
From Patient to Professional: A Fortunate Encounter #inflammatoryarthritis covers conditions and terms also written as ILD or RA.
From Patient to Professional: A Fortunate Encounter #inflammatoryarthritis ● Answers how long it lasts and what to expect; how to take part ● Disease Interstitial Lung Disease (associated condition); Rheumatoid Arthritis ● Journey stage Every step ● Topic Co-existing conditions; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for From Patient to Professional: A Fortunate Encounter #inflammatoryarthritis: https://www.youtube.com/watch?v=OUFPP-kDh80
Facing Life's Fragility #inflammatoryarthritis
The Patient Perspective: Rheumatoid Arthritis & Interstitial Lung Disease was made in conjunction with the Take a Breath Patient Guide & Campaign, which were made possible with support from Boehringer Ingelheim International Foundation for Autoimmune & Autoinflammatory Arthritis ( Ai Arthritis ).
Facing Life's Fragility #inflammatoryarthritis covers conditions and terms also written as ILD or RA.
Facing Life's Fragility #inflammatoryarthritis ● Answers how long it lasts and what to expect; how to take part ● Disease Interstitial Lung Disease (associated condition); Rheumatoid Arthritis ● Journey stage Every step ● Topic Co-existing conditions; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Facing Life's Fragility #inflammatoryarthritis: https://www.youtube.com/watch?v=mwxxMR7kG1U
Sudden Collapse Sparks Medical Mystery
The Patient Perspective: Rheumatoid Arthritis & Interstitial Lung Disease was made in conjunction with the Take a Breath Patient Guide & Campaign, which were made possible with support from Boehringer Ingelheim International Foundation for Autoimmune & Autoinflammatory Arthritis ( Ai Arthritis ).
Sudden Collapse Sparks Medical Mystery covers conditions and terms also written as ILD or RA.
Sudden Collapse Sparks Medical Mystery ● Answers how long it lasts and what to expect; how to take part ● Disease Interstitial Lung Disease (associated condition); Rheumatoid Arthritis ● Journey stage Every step ● Topic Co-existing conditions; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Sudden Collapse Sparks Medical Mystery: https://www.youtube.com/watch?v=2PfJD7nSAzg
Mysterious Trigger Scents #inflammatoryarthritis
The Patient Perspective: Rheumatoid Arthritis & Interstitial Lung Disease was made in conjunction with the Take a Breath Patient Guide & Campaign, which were made possible with support from Boehringer Ingelheim International Foundation for Autoimmune & Autoinflammatory Arthritis ( Ai Arthritis ).
Mysterious Trigger Scents #inflammatoryarthritis covers conditions and terms also written as ILD or RA.
Mysterious Trigger Scents #inflammatoryarthritis ● Answers how long it lasts and what to expect; how to take part ● Disease Interstitial Lung Disease (associated condition); Rheumatoid Arthritis ● Journey stage Every step ● Topic Co-existing conditions; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Mysterious Trigger Scents #inflammatoryarthritis: https://www.youtube.com/watch?v=Oh1ba1RhVqA
Trust Your Body: When Medical Devices Just Aren't Enough #inflammatoryarthritis
The Patient Perspective: Rheumatoid Arthritis & Interstitial Lung Disease was made in conjunction with the Take a Breath Patient Guide & Campaign, which were made possible with support from Boehringer Ingelheim International Foundation for Autoimmune & Autoinflammatory Arthritis ( Ai Arthritis ).
Trust Your Body: When Medical Devices Just Aren't Enough #inflammatoryarthritis covers conditions and terms also written as ILD or RA.
Trust Your Body: When Medical Devices Just Aren't Enough #inflammatoryarthritis ● Answers how long it lasts and what to expect; how to take part ● Disease Interstitial Lung Disease (associated condition); Rheumatoid Arthritis ● Journey stage Every step ● Topic Co-existing conditions; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Trust Your Body: When Medical Devices Just Aren't Enough #inflammatoryarthritis: https://www.youtube.com/watch?v=IBLRvJWJcdk
Urgent Health Warning: See a Pulmonologist Now! #inflammatoryarthritis
The Patient Perspective: Rheumatoid Arthritis & Interstitial Lung Disease was made in conjunction with the Take a Breath Patient Guide & Campaign, which were made possible with support from Boehringer Ingelheim International Foundation for Autoimmune & Autoinflammatory Arthritis ( Ai Arthritis ).
Urgent Health Warning: See a Pulmonologist Now! #inflammatoryarthritis covers conditions and terms also written as ILD or RA.
Urgent Health Warning: See a Pulmonologist Now! #inflammatoryarthritis ● Answers how long it lasts and what to expect; how to take part ● Disease Interstitial Lung Disease (associated condition); Rheumatoid Arthritis ● Journey stage Every step ● Topic Co-existing conditions; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Urgent Health Warning: See a Pulmonologist Now! #inflammatoryarthritis: https://www.youtube.com/watch?v=HuVYGnR_ysA
Undifferentiated Disease - What is it & How Could a Diagnosis Affect Me?
What does it mean to be diagnosed with undifferentiated disease (UD)? In this episode, Tiffany Westrich-Robertson, Ai Arthritis CEO and founder, unpacks this complex diagnosis, sharing her personal journey from being a mystery patient to receiving a UCTD diagnosis.
Undifferentiated Disease - What is it & How Could a Diagnosis Affect Me? covers conditions and terms also written as undifferentiated connective tissue disease.
Undifferentiated Disease - What is it & How Could a Diagnosis Affect Me? ● Answers how it is diagnosed; what it is ● Disease Undifferentiated Disease ● Journey stage Undiagnosed/Mystery Patient ● Topic Getting diagnosed; Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Undifferentiated Disease - What is it & How Could a Diagnosis Affect Me?: https://www.youtube.com/watch?v=njmXMSChCf8
The International Foundation for Autoimmune Autoinflammatory arthritis ( Ai Arthritis )
Join us for a special episode where we reflect on the top three most-listened episodes of 2024! Leila revisits these engaging conversations that resonated deeply with the Ai Arthritis community, covering mental health, navigating the patient journey, and reproductive health.
The International Foundation for Autoimmune Autoinflammatory arthritis ( Ai Arthritis ) ● Answers what I can do myself day to day; how to take part ● Journey stage Every step ● Topic Living with it day to day; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for The International Foundation for Autoimmune Autoinflammatory arthritis ( Ai Arthritis ) : https://www.youtube.com/watch?v=7F5GeQ-9X4o
Menopause & Rheumatic Diseases: What Every Woman Needs to Know! with Deb
Welcome to the end of Day 2! Today, we're diving into a vital topic for many: menopause in rheumatic diseases. From navigating hot flashes to managing joint pain and mood swings, I'll share everything I learned, including insights from leading experts like Dr. Sharon Parrish of Weill Cornell Medicine.
Menopause & Rheumatic Diseases: What Every Woman Needs to Know! with Deb ● Answers how long it lasts and what to expect ● Journey stage Every step ● Topic Symptoms and flares ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Menopause & Rheumatic Diseases: What Every Woman Needs to Know! with Deb: https://www.youtube.com/watch?v=zSM5-lR7U6s
Breaking Science: New Biomarkers for Seronegative Rheumatoid Arthritis | ACR 2024 with Tiffany
Join Tiffany Westrich-Robertson as she reports live from the American College of Rheumatology (ACR) 2024 Conference! Discover the latest updates on biomarkers in rheumatoid arthritis, with a special focus on seronegative RA. Learn how new research is paving the way for earlier diagnoses, personalized treatments, and improved patient outcomes.
Breaking Science: New Biomarkers for Seronegative Rheumatoid Arthritis | ACR 2024 with Tiffany ● Answers how it is diagnosed; what the research says ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Getting diagnosed; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Breaking Science: New Biomarkers for Seronegative Rheumatoid Arthritis | ACR 2024 with Tiffany: https://www.youtube.com/watch?v=h-KkhoYLs3A
ACR 2024 Highlights: Obesity’s Impact, Chronic Pain Hacks, & Lupus Care Insights with Leila
Leila, Health Education Manager at AI Arthritis, shares highlights from Day 2 of the American College of Rheumatology (ACR) 2024 Conference. Learn about groundbreaking research on obesity's impact on autoimmune diseases, chronic pain management tips from Stanford's program, and insights into lupus nephritis care.
ACR 2024 Highlights: Obesity’s Impact, Chronic Pain Hacks, & Lupus Care Insights with Leila covers conditions and terms also written as SLE or systemic lupus erythematosus.
ACR 2024 Highlights: Obesity’s Impact, Chronic Pain Hacks, & Lupus Care Insights with Leila ● Answers what the research says; how long it lasts and what to expect ● Disease Lupus ● Journey stage Every step ● Topic Symptoms and flares; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for ACR 2024 Highlights: Obesity’s Impact, Chronic Pain Hacks, & Lupus Care Insights with Leila: https://www.youtube.com/watch?v=VwAKejkZFSU
Unlocking Autoimmune Health: Vitamin D Benefits & Breakthrough T-Cell R with Leilaesearch
Leila, our Health Education Manager at Ai Arthritis , shares fascinating insights from her final in-person debrief at ACR 2024. This video covers key takeaways from: Vitamin D’s Role in Autoimmune Health: Learn about the benefits of vitamin D for immune regulation, infection prevention, and autoimmune disease outcomes.
Unlocking Autoimmune Health: Vitamin D Benefits & Breakthrough T-Cell R with Leilaesearch ● Answers what I can do myself day to day; what the research says ● Journey stage Every step ● Topic Food and nutrition; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Unlocking Autoimmune Health: Vitamin D Benefits & Breakthrough T-Cell R with Leilaesearch: https://www.youtube.com/watch?v=5MzQbqfhUxE
Revolutionary Cell Therapies for Autoimmune Diseases: ACR 2024 Highlights with Tiffany
Tiffany Westrich Robertson, CEO of Ai Arthritis and an axial spondyloarthritis patient, shares groundbreaking updates from ACR 2024 on cell therapy breakthroughs for autoimmune diseases like lupus, myositis, and systemic sclerosis. These cutting-edge therapies bring hope for a future of remission, and possibly a cure, for autoimmune patients.
Revolutionary Cell Therapies for Autoimmune Diseases: ACR 2024 Highlights with Tiffany covers conditions and terms also written as axSpA, ankylosing spondylitis, non-radiographic axSpA, SLE or systemic lupus erythematosus.
Revolutionary Cell Therapies for Autoimmune Diseases: ACR 2024 Highlights with Tiffany ● Answers what the treatments are and how they work; what the research says ● Disease Axial Spondyloarthritis; Lupus ● Journey stage Remission ● Topic Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Revolutionary Cell Therapies for Autoimmune Diseases: ACR 2024 Highlights with Tiffany: https://www.youtube.com/watch?v=PlZDX_phGFw
Breakthrough Treatments for Sjogren’s & Psoriatic Arthritis with Tiffany
Tiffany Westrich Robertson, CEO of Ai Arthritis and a non-radiographic axial spondyloarthritis patient, shares exciting updates from ACR 2024 on new treatments for Sjogren’s disease and psoriatic arthritis. Learn about: Nipocalimab for Sjogren’s Disease: A groundbreaking therapy from Johnson & Johnson targeting autoantibodies like IgG, potentially reducing disease activity.
Breakthrough Treatments for Sjogren’s & Psoriatic Arthritis with Tiffany covers conditions and terms also written as axSpA, ankylosing spondylitis, non-radiographic axSpA or PsA.
Breakthrough Treatments for Sjogren’s & Psoriatic Arthritis with Tiffany ● Answers what the treatments are and how they work; what the research says ● Disease Axial Spondyloarthritis; Psoriatic Arthritis ● Journey stage Every step ● Topic Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Breakthrough Treatments for Sjogren’s & Psoriatic Arthritis with Tiffany: https://www.youtube.com/watch?v=-j0eTXC6NNw
The Patient Perspective: Denae's ILD Story
Interview with retired dietitian and Ai Arthritis patient, Denae Cedar.
The Patient Perspective: Denae's ILD Story ● Answers what it feels like ● Journey stage Every step ● Topic Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for The Patient Perspective: Denae's ILD Story: https://www.youtube.com/watch?v=3XQ9Oy6j8HQ
The Patient Perspective: Cyndi's ILD Story
Retired nurse and Ai Arthritis patient Cynthia (Cyndi) Hart's ILD experience.
The Patient Perspective: Cyndi's ILD Story ● Answers what it feels like ● Journey stage Every step ● Topic Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for The Patient Perspective: Cyndi's ILD Story: https://www.youtube.com/watch?v=srGTvwiHZqU
Breaking Research at ACR 2024 (Ep 104, on video)
In this episode, our co-hosts share key takeaways and important updates from the American College of Rheumatology (ACR) Convergence 2024. Leila, Tiffany, Cristina, and Deb discuss cutting-edge therapies, chronic pain management strategies, and groundbreaking research on conditions like lupus, Sjögren’s, and psoriatic arthritis.
Breaking Research at ACR 2024 (Ep 104, on video) covers conditions and terms also written as SLE, systemic lupus erythematosus or PsA.
Breaking Research at ACR 2024 (Ep 104, on video) ● Answers how long it lasts and what to expect; what the research says ● Disease Lupus; Psoriatic Arthritis ● Journey stage Every step ● Topic Symptoms and flares; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Breaking Research at ACR 2024 (Ep 104, on video): https://www.youtube.com/watch?v=tJEjrE8LXzU
Revolutionizing Sjögren's Disease: Insights from ACR 2024 on Imaging & Treatments with Cristina
Join Cristina Montoya, a dietitian living with Sjögren's disease and rheumatoid arthritis, as she shares key highlights from groundbreaking sessions at ACR 2024. Learn about the latest in imaging techniques, challenges in developing disease-modifying therapies, and the hopeful future of Sjögren's research.
Revolutionizing Sjögren's Disease: Insights from ACR 2024 on Imaging & Treatments with Cristina covers conditions and terms also written as RA, Sjogren's Disease, Sjogrens, Sjögren's syndrome or Sjogren's syndrome.
Revolutionizing Sjögren's Disease: Insights from ACR 2024 on Imaging & Treatments with Cristina ● Answers what the research says; what the treatments are and how they work ● Disease Rheumatoid Arthritis; Sjögren's Disease ● Journey stage Every step ● Topic Research and conferences; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Revolutionizing Sjögren's Disease: Insights from ACR 2024 on Imaging & Treatments with Cristina: https://www.youtube.com/watch?v=GJ7fLCBjADU
Non-Medical Switching (NMS) 101
Join Tiffany ( Ai Arthritis CEO, person living with non-radiographic axial spondyloarthritis) and Ray (Project Manager, person living with Psoriatic Arthritis), as they lead todays class on Non-Medical Switching. Sign up to receive updates about new resources and opportunities to participate in field trips and sharing your experiences with legislators.
Non-Medical Switching (NMS) 101 covers conditions and terms also written as axSpA, ankylosing spondylitis, non-radiographic axSpA or PsA.
Non-Medical Switching (NMS) 101 ● Answers what the treatments are and how they work; what to do when cost or coverage blocks treatment ● Disease Axial Spondyloarthritis; Psoriatic Arthritis ● Journey stage Every step ● Topic Treatment and medication; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Non-Medical Switching (NMS) 101: https://www.youtube.com/watch?v=V9XXWQvH6Rw
Biosimilars - Switching & "Interchangeable"
Join Tiffany ( Ai Arthritis CEO, person living with non-radiographic axial spondyloarthritis) and Ray (Project Manager, person living with Psoriatic Arthritis), as they lead todays class on Biosimilars, discussing interchangeability and policies related to safe switching from the original drug.
Biosimilars - Switching & "Interchangeable" covers conditions and terms also written as axSpA, ankylosing spondylitis, non-radiographic axSpA, PsA, biosimilar or interchangeable biosimilar.
Biosimilars - Switching & "Interchangeable" ● Answers what the treatments are and how they work; how to take part ● Disease Axial Spondyloarthritis; Psoriatic Arthritis ● Journey stage Every step ● Topic Treatment and medication; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Biosimilars - Switching & "Interchangeable": https://www.youtube.com/watch?v=L0KHIKNtI_E
Biosimilars Therapy Patient Story: Deb's Perspective
Deb, a volunteer with Ai Arthritis and a person living with rheumatoid arthritis, reflects on her challenging experiences with switching to biosimilars, including Remicade and Rituxan. She highlights how her first switch to a biosimilar didn’t go well, leading to adverse reactions and a flare-up.
Biosimilars Therapy Patient Story: Deb's Perspective covers conditions and terms also written as RA or interchangeable biosimilar.
Biosimilars Therapy Patient Story: Deb's Perspective ● Answers what it feels like; how long it lasts and what to expect ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Symptoms and flares; Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Biosimilars Therapy Patient Story: Deb's Perspective: https://www.youtube.com/watch?v=f_YLMacYWjk
Biosimilars Access Issues- Why Should Patients Care? (Tiffany's Perspective)
Tiffany, CEO of Ai Arthritis and a person living with non-radiographic axial spondyloarthritis, discusses the critical importance of affordability and access to biosimilars. She notes that while the rise of biosimilars is promising, the U.S. isn't experiencing the same savings as other countries due to the influence of pharmacy benefit managers (PBMs).
Biosimilars Access Issues- Why Should Patients Care? (Tiffany's Perspective) covers conditions and terms also written as axSpA, ankylosing spondylitis, non-radiographic axSpA, biosimilar or interchangeable biosimilar.
Biosimilars Access Issues- Why Should Patients Care? (Tiffany's Perspective) ● Answers what it feels like; what the treatments are and how they work ● Disease Axial Spondyloarthritis ● Journey stage Every step ● Topic Treatment and medication; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Biosimilars Access Issues- Why Should Patients Care? (Tiffany's Perspective): https://www.youtube.com/watch?v=c7jGeh89J5g
Biosimilars Access Issues - Why Should Patients Care? (Ray's Perspective)
Ray, patient advocate and person living with Psoriatic Arthritis, emphasizes why patients should care about biosimilars. He explains that while biosimilars are safe and effective alternatives to original biologics, they are not exact copies and can vary in response for individuals.
Biosimilars Access Issues - Why Should Patients Care? (Ray's Perspective) covers conditions and terms also written as PsA, biosimilar or interchangeable biosimilar.
Biosimilars Access Issues - Why Should Patients Care? (Ray's Perspective) ● Answers what it feels like; what the treatments are and how they work ● Disease Psoriatic Arthritis ● Journey stage Every step ● Topic Treatment and medication; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Biosimilars Access Issues - Why Should Patients Care? (Ray's Perspective): https://www.youtube.com/watch?v=YXJvjfqxoZI
What are Biosimilars? (Ray's Perspective)
Ray, a patient advocate and person living with psoriatic arthritis, discusses the complexities of biosimilars. He explains how biologic medicines differ from traditional small molecule drugs, emphasizing that biosimilars are not exact copies but rather highly similar alternatives that require unique regulations.
What are Biosimilars? (Ray's Perspective) covers conditions and terms also written as PsA, biosimilar or interchangeable biosimilar.
What are Biosimilars? (Ray's Perspective) ● Answers what it is; what the treatments are and how they work ● Disease Psoriatic Arthritis ● Journey stage Every step ● Topic Treatment and medication; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for What are Biosimilars? (Ray's Perspective): https://www.youtube.com/watch?v=1pK7-XWV9Qg
Non-Medical Switching Patient Story: Leila's Perspective
Leila, Health Education Manager with Ai Arthritis and a person living with lupus and Sjögren's disease, shares her experience with non-medical switching. After being on Benlysta for nearly a decade, Leila faced a difficult transition due to insurance changes that forced her back to subcutaneous injections.
Non-Medical Switching Patient Story: Leila's Perspective covers conditions and terms also written as SLE, systemic lupus erythematosus, Sjogren's Disease, Sjogrens, Sjögren's syndrome, Sjogren's syndrome or NMS.
Non-Medical Switching Patient Story: Leila's Perspective ● Answers what it feels like; what the treatments are and how they work ● Disease Lupus; Sjögren's Disease ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Non-Medical Switching Patient Story: Leila's Perspective: https://www.youtube.com/watch?v=vzUsYljUDKY
Non-Medical Switching Patient Story: Lisa's Perspective
Lisa, an Ai Arthritis volunteer living with rheumatoid arthritis shares her personal experience with non-medical switching after her insurance changed. Despite being stable on Enbrel for years, the insurance company tried to switch her to a biosimilar of Humira, a medication she had a severe allergic reaction to in the past.
Non-Medical Switching Patient Story: Lisa's Perspective covers conditions and terms also written as RA, NMS, biosimilars or interchangeable biosimilar.
Non-Medical Switching Patient Story: Lisa's Perspective ● Answers what it feels like; what the treatments are and how they work ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Non-Medical Switching Patient Story: Lisa's Perspective: https://www.youtube.com/watch?v=G52xA6hL1no
Non-Medical Switching - Why Should Patients Care? (Ray's Perspective)
Ray, a patient advocate and person living with psoriatic arthritis, breaks down non-medical switching and its impact on treatment. When a doctor adjusts medication, it's based on your medical history and how you've responded to past treatments. However, when insurance companies or PBMs make these decisions, it's often driven by cost-cutting or profit motives.
Non-Medical Switching - Why Should Patients Care? (Ray's Perspective) covers conditions and terms also written as PsA or NMS.
Non-Medical Switching - Why Should Patients Care? (Ray's Perspective) ● Answers what it feels like; what the treatments are and how they work ● Disease Psoriatic Arthritis ● Journey stage Every step ● Topic Treatment and medication; Talking to your care team ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Non-Medical Switching - Why Should Patients Care? (Ray's Perspective): https://www.youtube.com/watch?v=1jmOXWvwPx0
Non-Medical Switching Patient Story: Deb's Perspective
Deb, a volunteer with Ai Arthritis and a person living with rheumatoid arthritis, shares her experience with non-medical switching. After starting a new treatment, Deb discovered she'd been switched to a biosimilar without her knowledge. Deb emphasizes the importance of transparency and being informed about the medications being administered.
Non-Medical Switching Patient Story: Deb's Perspective covers conditions and terms also written as RA, NMS, biosimilars or interchangeable biosimilar.
Non-Medical Switching Patient Story: Deb's Perspective ● Answers what it feels like; what the treatments are and how they work ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Treatment and medication; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Non-Medical Switching Patient Story: Deb's Perspective: https://www.youtube.com/watch?v=MpgqNP7r6Js
Non-Medical Switching - Why Should Patients Care? (Michael's Perspective)
Michael, Ai Arthritis Volunteer Program Coordinator and person living with Psoriatic Arthritis, discusses the impact of non-medical switching for those with Ai Arthritis diseases. After the long process of finding a treatment that works, insurance companies may switch medications, often to a biosimilar, without consulting your doctor, solely to save money.
Non-Medical Switching - Why Should Patients Care? (Michael's Perspective) covers conditions and terms also written as PsA, NMS, biosimilars or interchangeable biosimilar.
Non-Medical Switching - Why Should Patients Care? (Michael's Perspective) ● Answers what it feels like; what the treatments are and how they work ● Disease Psoriatic Arthritis ● Journey stage Every step ● Topic Treatment and medication; Talking to your care team ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Non-Medical Switching - Why Should Patients Care? (Michael's Perspective): https://www.youtube.com/watch?v=wEf8JIKO5Ps
What is Non-Medical Switching? (Michael's Perspective)
Michael, Ai Arthritis Volunteer Program Coordinator and person living with Psoriatic Arthritis, breaks down non-medical switching, a process where insurance companies or pharmacies change your prescribed medication or adjust the dosage without input from your doctor, often to cut costs.
What is Non-Medical Switching? (Michael's Perspective) covers conditions and terms also written as PsA or NMS.
What is Non-Medical Switching? (Michael's Perspective) ● Answers what it is; what the treatments are and how they work ● Disease Psoriatic Arthritis ● Journey stage Every step ● Topic Treatment and medication; Talking to your care team ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for What is Non-Medical Switching? (Michael's Perspective): https://www.youtube.com/watch?v=aAMaAaTOWkc
Elevating The Patient Voice (Ep 103, on video)
In this episode, co-hosts Leila and Brittany dive into the power of patient voices in transforming the healthcare experience for the Ai Arthritis community. They bring empathy and validation to experiences submitted by listeners, highlighting real struggles with insurance, pharmacy issues, and the emotional toll of chronic illness.
Elevating The Patient Voice (Ep 103, on video) ● Answers what I can do myself day to day; what to do when cost or coverage blocks treatment ● Journey stage Every step ● Topic Living with it day to day; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Elevating The Patient Voice (Ep 103, on video): https://www.youtube.com/watch?v=L2pberVAnVI
Navigating the Patient Journey: From Early Diagnosis to Remission (Ep 102, on video)
In this episode of Ai Arthritis Voices 360, co-hosts Leila and Eileen discuss a project focused on organizing essential resources for patients navigating the Ai Arthritis journey, from undiagnosed symptoms to remission. They share their personal experiences living with lupus and rheumatoid arthritis, exploring the complexities of managing chronic illness and the challenges of early diagnosis.
Navigating the Patient Journey: From Early Diagnosis to Remission (Ep 102, on video) covers conditions and terms also written as SLE, systemic lupus erythematosus or RA.
Navigating the Patient Journey: From Early Diagnosis to Remission (Ep 102, on video) ● Answers how it is diagnosed; how to take part ● Disease Lupus; Rheumatoid Arthritis ● Journey stage Undiagnosed/Mystery Patient; Remission ● Topic Getting diagnosed; Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Navigating the Patient Journey: From Early Diagnosis to Remission (Ep 102, on video): https://www.youtube.com/watch?v=GXO8pg6l230
What is Prior Authorization? (Brittany's Perspective)
Brittany, a person living with Psoriatic Arthritis and Ai Arthritis Volunteer, explains what Prior Authorization is and how it can impact patients by causing delays in treatment and adding administrative burdens. Do you have a experience to share? Help us help you and others fight for the treatments we need by sharing your experiences. Submit your experience NOW: at.
What is Prior Authorization? (Brittany's Perspective) covers conditions and terms also written as PsA, prior auth or PA.
What is Prior Authorization? (Brittany's Perspective) ● Answers what it is; what the treatments are and how they work ● Disease Psoriatic Arthritis ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for What is Prior Authorization? (Brittany's Perspective): https://www.youtube.com/watch?v=WnOHpqmx5No
Prior Authorization - Why Should Patients Care? (Brittany's Perspective)
Brittany, a person living with Psoriatic Arthritis and Ai Arthritis Volunteer, educates patients on why Prior Authorization matters and how it can lead to delays in getting the treatments they need. With unpredictable approval times, this process can cause serious health impacts, from disease progression to irreversible damage. Knowing how it affects you is key to advocating for your care.
Prior Authorization - Why Should Patients Care? (Brittany's Perspective) covers conditions and terms also written as PsA, prior auth or PA.
Prior Authorization - Why Should Patients Care? (Brittany's Perspective) ● Answers what it feels like; what to do when cost or coverage blocks treatment ● Disease Psoriatic Arthritis ● Journey stage Every step ● Topic Work, school and money; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Prior Authorization - Why Should Patients Care? (Brittany's Perspective): https://www.youtube.com/watch?v=Mhnx7Fgu3EY
Prior Authorization Patient Story: Brittany's Perspective
Brittany, a person living with Psoriatic Arthritis and Ai Arthritis Volunteer, shares her personal experience about the frustrating impact of Prior Authorization delays. After a 23-day delay in receiving her medication, her body rejected the treatment, leading to long-term challenges in finding a new solution. Her experience highlights how this process can seriously affect patient outcomes.
Prior Authorization Patient Story: Brittany's Perspective covers conditions and terms also written as PsA, prior auth or PA.
Prior Authorization Patient Story: Brittany's Perspective ● Answers what it feels like; what the treatments are and how they work ● Disease Psoriatic Arthritis ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Prior Authorization Patient Story: Brittany's Perspective: https://www.youtube.com/watch?v=1Oi_TGfEkNk
Prior Authorization Patient Story: Abby's Perspective
Abby, an Ai Arthritis volunteer and a person living with Rheumatoid Arthritis and Spondyloarthritis, shares her personal experience with the delays caused by Prior Authorization. A routine infusion was pushed back due to insurance requirements, leading to a flare-up and the need for more medication. Her experience highlights how these delays can disrupt treatment and patient well-being.
Prior Authorization Patient Story: Abby's Perspective covers conditions and terms also written as RA, prior auth or PA.
Prior Authorization Patient Story: Abby's Perspective ● Answers what it feels like; how long it lasts and what to expect ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Symptoms and flares; Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Prior Authorization Patient Story: Abby's Perspective: https://www.youtube.com/watch?v=P1umqS7lpyQ
What is 340B? (Brian's Perspective)
Brian Duvall, patient advocacy manager, explains the 340B Drug Pricing Program, a federal initiative aimed at providing discounted medications to hospitals, with the goal of supporting underserved communities. While 340B helps expand access to affordable medications, it faces criticism for lack of oversight and potential misuse by hospital systems. Do you have a experience to share?
What is 340B? (Brian's Perspective) ● Answers what it is; what the treatments are and how they work ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for What is 340B? (Brian's Perspective): https://www.youtube.com/watch?v=MMW_LI1BwMM
340B Issues: Why Should Patients Care? (Brian's Perspective)
Brian Duvall, Patient Advocacy Manager, shares why patients should care about the 340B Drug Pricing Program. While 340B is meant to provide affordable medications and support underserved communities, a lack of transparency allows hospitals and pharmacy benefit managers (PBMs) to profit.
340B Issues: Why Should Patients Care? (Brian's Perspective) ● Answers what it feels like; what the treatments are and how they work ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for 340B Issues: Why Should Patients Care? (Brian's Perspective): https://www.youtube.com/watch?v=gN9Hb7N3Ryk
340B Story (Brian's Perspective)
Brian Duvall, Patient Advocacy Manager, shares a troubling experience about how the 340B Drug Pricing Program is being misused. He exposes how the Bone Secure Hospital System in Virginia used 340B profits to invest in wealthier neighborhoods, neglecting the critical needs of the Richmond Community Hospital and its underserved patients.
340B Story (Brian's Perspective) ● Answers what it feels like; what the treatments are and how they work ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for 340B Story (Brian's Perspective): https://www.youtube.com/watch?v=oOSq_OkJ820
What are Government Drug Affordability Reviews? (Tiffany's Perspective)
Tiffany, CEO and person living with non-radiographic axial spondyloarthritis, explains government prescription drug affordability reviews. Through the Inflation Reduction Act and state-level Prescription Drug Affordability Boards (PDABs), efforts are underway to negotiate drug prices and explore ways to make medications more affordable.
What are Government Drug Affordability Reviews? (Tiffany's Perspective) covers conditions and terms also written as axSpA, ankylosing spondylitis or non-radiographic axSpA.
What are Government Drug Affordability Reviews? (Tiffany's Perspective) ● Answers what it is; what the treatments are and how they work ● Disease Axial Spondyloarthritis ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for What are Government Drug Affordability Reviews? (Tiffany's Perspective): https://www.youtube.com/watch?v=qO8sAA4tpJ8
Government Drug Affordability Reviews - Why Should Patients Care? (Tiffany's Perspective)
Tiffany, CEO and person living with non-radiographic axial spondyloarthritis, explains why it’s crucial for patients to get involved in government drug affordability reviews. Your feedback helps shape decisions on which drugs get reviewed and why certain medications are unaffordable.
Government Drug Affordability Reviews - Why Should Patients Care? (Tiffany's Perspective) covers conditions and terms also written as axSpA, ankylosing spondylitis or non-radiographic axSpA.
Government Drug Affordability Reviews - Why Should Patients Care? (Tiffany's Perspective) ● Answers what it feels like; what the treatments are and how they work ● Disease Axial Spondyloarthritis ● Journey stage Co-Existing Conditions ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Government Drug Affordability Reviews - Why Should Patients Care? (Tiffany's Perspective): https://www.youtube.com/watch?v=svoxWBBQTn8
Government Drug Affordability Reviews - Why Should Patients Care? (Tiffany's Perspective #2)
Tiffany, CEO and person living with non-radiographic axial spondyloarthritis, highlights why it's essential for patients to engage with government drug affordability reviews. While the goal is to lower drug costs, there are potential pitfalls. For example, even if drug prices go down, savings may not reach your pocket, or you could be forced to switch medications.
Government Drug Affordability Reviews - Why Should Patients Care? (Tiffany's Perspective #2) covers conditions and terms also written as axSpA, ankylosing spondylitis or non-radiographic axSpA.
Government Drug Affordability Reviews - Why Should Patients Care? (Tiffany's Perspective #2) ● Answers what it feels like; what the treatments are and how they work ● Disease Axial Spondyloarthritis ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Government Drug Affordability Reviews - Why Should Patients Care? (Tiffany's Perspective #2): https://www.youtube.com/watch?v=nq9lUlrsXhs
Government Drug Affordability Reviews Patient Story: Tiffany's Perspective
Tiffany, CEO and person living with non-radiographic axial spondyloarthritis, shares her personal experience with Colorado’s Prescription Drug Affordability Board, where she testified on behalf of patients about drug affordability. Despite providing valuable patient data, her testimony was largely overlooked, with board members focusing on 'what if' scenarios instead of real patient experiences.
Government Drug Affordability Reviews Patient Story: Tiffany's Perspective covers conditions and terms also written as axSpA, ankylosing spondylitis or non-radiographic axSpA.
Government Drug Affordability Reviews Patient Story: Tiffany's Perspective ● Answers what it feels like; what the treatments are and how they work ● Disease Axial Spondyloarthritis ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Government Drug Affordability Reviews Patient Story: Tiffany's Perspective: https://www.youtube.com/watch?v=20UqH4iAUxg
Government Drug Affordability Reviews Patient Story: Ray's Perspective
Ray, a person living with Psoriatic Arthritis and Patient Advocate, shares his experience with Colorado's Drug Affordability Review Board, highlighting how out of touch the board was with real patient experiences, especially regarding costs. Despite using a $0 copay card, the board reported an average out-of-pocket cost of over $2,800.
Government Drug Affordability Reviews Patient Story: Ray's Perspective covers conditions and terms also written as PsA.
Government Drug Affordability Reviews Patient Story: Ray's Perspective ● Answers what it feels like; what to do when cost or coverage blocks treatment ● Disease Psoriatic Arthritis ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Government Drug Affordability Reviews Patient Story: Ray's Perspective: https://www.youtube.com/watch?v=mznyGq5nSWU
"Go With Us!" to EULAR 2024 (Ep 101, on video)
In this episode, our co-hosts bring you an exclusive look into the Ai Arthritis “Go With Us!” to Conferences program. We dive deep into EULAR 2024, the European Rheumatology Research Conference, where patients and co-hosts reveal groundbreaking advancements in Ai Arthritis research.
"Go With Us!" to EULAR 2024 (Ep 101, on video) ● Answers what the research says; what the treatments are and how they work ● Journey stage Every step ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for "Go With Us!" to EULAR 2024 (Ep 101, on video): https://www.youtube.com/watch?v=zquGQIigLdY
Early Disease Diagnosis Can Increase Remission Chances (Ep 100, on video)
Join us on this 360it breakout conversation from the Ai Arthritis Voices 360 Podcast as our cohosts discuss the crucial topic of early diagnosis and treatment for rheumatic diseases. Our cohosts delve into the challenges patients face in recognizing symptoms, the delays in getting a proper diagnosis, and the biases in the medical community.
Early Disease Diagnosis Can Increase Remission Chances (Ep 100, on video) ● Answers what the treatments are and how they work; how to take part ● Journey stage Remission ● Topic Treatment and medication; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Early Disease Diagnosis Can Increase Remission Chances (Ep 100, on video): https://www.youtube.com/watch?v=_veniknAHEQ
Why Education & Awareness Are Important (Ep 97, on video)
In this episode, our cohosts share why raising awareness for Ai Arthritis diseases is crucial, break down the stereotypes of "arthritis" and share how knowledge is important in positively impacting your health. Join us in this 360it as we share insightful discussions on diagnosis delays, access to treatments, fostering better health outcomes. Watch the full episode here.
Why Education & Awareness Are Important (Ep 97, on video) ● Answers how to take part; how it is diagnosed ● Journey stage Every step ● Topic Awareness days and campaigns; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Why Education & Awareness Are Important (Ep 97, on video): https://www.youtube.com/watch?v=ItojhlSGzkE
Maintaining a Positive Social Life With Ai Arthritis Diseases (Ep 96, on video)
In this episode, co-hosts Leila, Estela, and Kerry delve into the crucial topic of social wellness amidst living with Ai Arthritis disease. They share their experiences of struggling being social while dealing with their Ai Arthritis symptoms and how they have overcome hurdles to maintain a positive social life.
Maintaining a Positive Social Life With Ai Arthritis Diseases (Ep 96, on video) ● Answers what I can do myself day to day; what it feels like ● Journey stage Every step ● Topic Living with it day to day; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Maintaining a Positive Social Life With Ai Arthritis Diseases (Ep 96, on video): https://www.youtube.com/watch?v=5EhGGiddfww
100th Episode: Ai Arthritis Voices 360 Highlights!
Welcome to a milestone episode of Ai Arthritis Voices 360 Podcast! Join us as we celebrate our 100th episode by revisiting three of our most impactful discussions that have resonated deeply with our listeners. Episode 73: "Arthritis" Awareness, It’s Complicated!
100th Episode: Ai Arthritis Voices 360 Highlights! ● Answers how to take part ● Journey stage Every step ● Topic Awareness days and campaigns; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for 100th Episode: Ai Arthritis Voices 360 Highlights!: https://www.youtube.com/watch?v=IWkKdMeUKvM
Coping Mechanisms for Mental Health Struggles with Ai Arthritis Diseases (Ep 98, on video)
Join us as we explore the profound link between mental health and Ai Arthritis diseases. Discover research findings from the Autoimmune Registry and hear personal experiences from Estela and Juana about living with rheumatoid arthritis and lupus. Topics Covered: Whether you're affected by an autoimmune disease, a caregiver, or seeking understanding, this video offers valuable insights and support.
Coping Mechanisms for Mental Health Struggles with Ai Arthritis Diseases (Ep 98, on video) covers conditions and terms also written as SLE, systemic lupus erythematosus or RA.
Coping Mechanisms for Mental Health Struggles with Ai Arthritis Diseases (Ep 98, on video) ● Answers what I can do myself day to day; what the research says ● Disease Lupus; Rheumatoid Arthritis ● Journey stage Care Partners ● Topic Living with it day to day; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Coping Mechanisms for Mental Health Struggles with Ai Arthritis Diseases (Ep 98, on video): https://www.youtube.com/watch?v=exn36vK3lug
Exciting Developments in Lupus Treatment: Insights from EULAR 2024
Join Leila, Health Education Manager at Ai Arthritis , as she provides an in-depth report on the latest advancements in lupus treatment from EULAR 2024. Discover what's on the horizon for Lupus patients, including breakthroughs in CAR-T cell therapy, the potential of precision medicine, and innovative digital health tools.
Exciting Developments in Lupus Treatment: Insights from EULAR 2024 covers conditions and terms also written as SLE or systemic lupus erythematosus.
Exciting Developments in Lupus Treatment: Insights from EULAR 2024 ● Answers what the treatments are and how they work; what the research says ● Disease Lupus ● Journey stage Every step ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Exciting Developments in Lupus Treatment: Insights from EULAR 2024: https://www.youtube.com/watch?v=UR0qZZaVgYM
Revolutionary Advances in Rheumatology: CAR-T and Precision Medicine Insight from Tiffany
In this update from EULAR 2024, we explore groundbreaking advancements in precision medicine and their potential to transform rheumatology. Discover how CAR-T therapy, a treatment previously successful in cancer, is now showing remarkable promise for severe autoimmune diseases like lupus and scleroderma.
Revolutionary Advances in Rheumatology: CAR-T and Precision Medicine Insight from Tiffany covers conditions and terms also written as SLE, systemic lupus erythematosus, systemic sclerosis or SSc.
Revolutionary Advances in Rheumatology: CAR-T and Precision Medicine Insight from Tiffany ● Answers what the treatments are and how they work; what the research says ● Disease Lupus; Systemic Sclerosis (Scleroderma) ● Journey stage Every step ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Revolutionary Advances in Rheumatology: CAR-T and Precision Medicine Insight from Tiffany: https://www.youtube.com/watch?v=jti2vR7UNDw
Exciting Advances in Sjogren's Treatments and Multidisciplinary Care Approaches With Rebecca Hosey
Join Becky Hosey from Ai Arthritis as she shares the latest insights from EULAR 2024. Discover promising new treatments for Sjogren's disease, including innovative drugs and novel diagnostic techniques, as well as the benefits of a multidisciplinary team approach for managing rheumatic and musculoskeletal diseases (RMDs).
Exciting Advances in Sjogren's Treatments and Multidisciplinary Care Approaches With Rebecca Hosey covers conditions and terms also written as Sjogrens, Sjögren's syndrome or Sjogren's syndrome.
Exciting Advances in Sjogren's Treatments and Multidisciplinary Care Approaches With Rebecca Hosey ● Answers what the research says; what the treatments are and how they work ● Disease Sjögren's Disease ● Journey stage Every step ● Topic Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Exciting Advances in Sjogren's Treatments and Multidisciplinary Care Approaches With Rebecca Hosey: https://www.youtube.com/watch?v=8ZLbJUC77Lc
Patient-Tailored Pain Management in Rheumatological and Musculoskeletal Diseases (RMDs) With Deb
Discover key insights from EULAR 2024 on patient-tailored pain management in rheumatological musculoskeletal diseases (RMDs). Deb Constine shares profound learnings from Professor Neil Basow's session, highlighting multidimensional approaches to understanding and treating pain in conditions like rheumatoid arthritis and lupus.
Patient-Tailored Pain Management in Rheumatological and Musculoskeletal Diseases (RMDs) With Deb covers conditions and terms also written as SLE, systemic lupus erythematosus or RA.
Patient-Tailored Pain Management in Rheumatological and Musculoskeletal Diseases (RMDs) With Deb ● Answers how long it lasts and what to expect; what the research says ● Disease Lupus; Rheumatoid Arthritis ● Journey stage Every step ● Topic Symptoms and flares; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Patient-Tailored Pain Management in Rheumatological and Musculoskeletal Diseases (RMDs) With Deb: https://www.youtube.com/watch?v=km_0W_e8bIM
Unlocking the Power of Exercise for Rheumatic Diseases: Insights from EULAR 2024 with Becky
Join Becky Hosey as she reports from EULAR 2024, sharing valuable insights on the benefits of exercise for those with Rheumatic and Musculoskeletal Diseases (RMDs). In this video, Becky delves into the latest research on how tailored exercise plans can reduce pain, fatigue, and improve overall quality of life.
Unlocking the Power of Exercise for Rheumatic Diseases: Insights from EULAR 2024 with Becky covers conditions and terms also written as Sjogren's Disease, Sjogrens, Sjögren's syndrome or Sjogren's syndrome.
Unlocking the Power of Exercise for Rheumatic Diseases: Insights from EULAR 2024 with Becky ● Answers how long it lasts and what to expect; what the research says ● Disease Sjögren's Disease ● Journey stage Every step ● Topic Symptoms and flares; Living with it day to day ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Unlocking the Power of Exercise for Rheumatic Diseases: Insights from EULAR 2024 with Becky: https://www.youtube.com/watch?v=FXffg1CBPZk
Transform Your Health: EULAR's Latest Lifestyle Recommendations for RMDs
Join Deb as she delves into the latest EULAR recommendations on lifestyle behaviors for managing Rheumatic and Musculoskeletal Diseases (RMDs). In this insightful video, Deb breaks down the key guidelines on exercise, diet, alcohol consumption, smoking cessation, weight management, and the benefits of staying active.
Transform Your Health: EULAR's Latest Lifestyle Recommendations for RMDs ● Answers what I can do myself day to day; what the treatments are and how they work ● Journey stage Every step ● Topic Treatment and medication; Food and nutrition ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Transform Your Health: EULAR's Latest Lifestyle Recommendations for RMDs: https://www.youtube.com/watch?v=BDWsrlNDYII
Essential Reproductive Health Tips for Arthritis Patients: New EULAR Updates With Leila
Join Leila, the Health Education Manager at AI Arthritis, as she shares crucial insights from the latest EULAR sessions on reproductive health for those with Rheumatic and Musculoskeletal Diseases (RMDs). Discover the latest recommendations on fertility, pregnancy, and breastfeeding while managing RMDs.
Essential Reproductive Health Tips for Arthritis Patients: New EULAR Updates With Leila ● Answers what I can do myself day to day; what the research says ● Journey stage Every step ● Topic Family, pregnancy and parenting; Living with it day to day ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Essential Reproductive Health Tips for Arthritis Patients: New EULAR Updates With Leila: https://www.youtube.com/watch?v=u2Qn7COHTyY
Revolutionary Insights on Cardiovascular Comorbidities in RA Patients | EULAR Day 3 Debrief With Deb
Join Deb as she breaks down the critical findings from Day 3 of the EULAR conference, focusing on cardiovascular comorbidities in rheumatoid arthritis (RA) patients. Discover the alarming statistics, latest treatments, and necessary lifestyle changes that can significantly reduce cardiovascular risks for RA sufferers.
Revolutionary Insights on Cardiovascular Comorbidities in RA Patients | EULAR Day 3 Debrief With Deb ● Answers what the research says; how to take part ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Revolutionary Insights on Cardiovascular Comorbidities in RA Patients | EULAR Day 3 Debrief With Deb: https://www.youtube.com/watch?v=GtVNeL0RYas
Unlocking the Secrets of Fatigue, Pain, and Opioids in RA | Becky Hosey's Insights
Join Becky Hosey as she delves into groundbreaking insights from a recent session on fatigue, pain, and opioid use in rheumatoid arthritis (RA) patients. With over 10 years of experience in interventional pain medicine, Becky highlights the crucial findings on the often underappreciated symptoms of pain and fatigue.
Unlocking the Secrets of Fatigue, Pain, and Opioids in RA | Becky Hosey's Insights ● Answers how long it lasts and what to expect; what the research says ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Symptoms and flares; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Unlocking the Secrets of Fatigue, Pain, and Opioids in RA | Becky Hosey's Insights: https://www.youtube.com/watch?v=8RMpJIA9LYU
Breaking Down Exercise and Fatigue Management in RA | EULAR 2024 Highlights with Leila
Join Leila, the Health Education Manager at AI Arthritis, as she shares the latest insights from EULAR 2024 on the benefits of exercise and the challenges of managing fatigue in rheumatoid arthritis (RA).
Breaking Down Exercise and Fatigue Management in RA | EULAR 2024 Highlights with Leila ● Answers how long it lasts and what to expect; what the research says ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Symptoms and flares; Living with it day to day ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Breaking Down Exercise and Fatigue Management in RA | EULAR 2024 Highlights with Leila: https://www.youtube.com/watch?v=GoUM5jGlVbY
Debunking Myths: Opioid Use, Pain, and Fatigue Management in Rheumatology with Becky
Join us for an in-depth exploration of opioid use, pain management, and fatigue in rheumatology. Discover the latest research on the effectiveness of opioids, innovative self-management techniques, and the role of technology in improving patient outcomes. Don't miss this insightful discussion on managing chronic conditions and enhancing quality of life.
Debunking Myths: Opioid Use, Pain, and Fatigue Management in Rheumatology with Becky ● Answers how long it lasts and what to expect; what the research says ● Journey stage Every step ● Topic Symptoms and flares; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Debunking Myths: Opioid Use, Pain, and Fatigue Management in Rheumatology with Becky: https://www.youtube.com/watch?v=MRWkJJuA1o0
Breakthroughs in RA Pain Management: Insight from Deb EULAR 2024
Join Deb on day four of EULAR as she dives into two compelling studies focused on pain management in Rheumatoid Arthritis (RA). Discover the direct and indirect effects of Renvoke and Humira on pain control, as well as the remarkable outcomes from the RA Be Real study on treatments.
Breakthroughs in RA Pain Management: Insight from Deb EULAR 2024 ● Answers what the research says; how long it lasts and what to expect ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Symptoms and flares; Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Breakthroughs in RA Pain Management: Insight from Deb EULAR 2024: https://www.youtube.com/watch?v=XaSyLyl6PYQ
Understanding and Managing Cognitive Dysfunction in RMDs
Join Leila, the health education manager at Ai Arthritis , as she delves into the complexities of cognitive dysfunction experienced by many in the Ai Arthritis community. In this insightful debrief, Leila shares personal anecdotes, expert advice, and practical strategies to help manage cognitive challenges.
Understanding and Managing Cognitive Dysfunction in RMDs ● Answers what the research says; how to take part ● Journey stage Every step ● Topic Research and conferences; Disease information ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Understanding and Managing Cognitive Dysfunction in RMDs: https://www.youtube.com/watch?v=odREwcvYsZg
Breaking Ground in Rheumatology: Prevention and Early Detection from EULAR 2024 with Tiffany
Join Tiffany Westrich Robertson, CEO and founder of Ai Arthritis , as she delves into the exciting advancements presented at EULAR 2024. Discover how early intervention and prevention are becoming pivotal in managing autoimmune diseases. Learn about the latest research findings that could revolutionize the future of rheumatology.
Breaking Ground in Rheumatology: Prevention and Early Detection from EULAR 2024 with Tiffany ● Answers what the research says; how to take part ● Journey stage Every step ● Topic Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Breaking Ground in Rheumatology: Prevention and Early Detection from EULAR 2024 with Tiffany: https://www.youtube.com/watch?v=dyCluy4Ea_w
Unlocking Remission: Tapering and Withdrawal Insights from EULAR 2024 With Tiffany
Join Tiffany Westrich-Robertson, CEO of Ai Arthritis , as she shares key highlights from EULAR 2024 on the groundbreaking topic of tapering and withdrawing biologics for autoimmune diseases. Learn about the latest research on drug-induced remission, personalized treatment approaches, and the potential for living medication-free.
Unlocking Remission: Tapering and Withdrawal Insights from EULAR 2024 With Tiffany ● Answers what the treatments are and how they work; how long it lasts and what to expect ● Journey stage Remission ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Unlocking Remission: Tapering and Withdrawal Insights from EULAR 2024 With Tiffany: https://www.youtube.com/watch?v=TBh9k2ZncQM
Go With Us! to EULAR 2024 Final Debrief
Join us for our final Go With Us! To EULAR 2024 debrief on Thursday, June 27th at 6:30-7:30 PM EST. We will be live streaming on our Facebook, YouTube, Instagram, and LinkedIn & will be answering any questions or comments in the chat. We want to interact with YOU! We’re going to be discussing hot topics like mindfulness, lifestyle, brain fog, and new treatments!
Go With Us! to EULAR 2024 Final Debrief ● Answers how long it lasts and what to expect; what the research says ● Journey stage Every step ● Topic Symptoms and flares; Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us! to EULAR 2024 Final Debrief: https://www.youtube.com/watch?v=HorC4bJ5ft4
Predictors of Organ Damage for cSLE (Press Release Breakdown) - Go With Us! to EULAR 2024
Speaker: Leila P.L. Valete Person living Lupus & Sjögren's disease, Health Education Manager at Ai Arthritis "Go With Us!" to Conferences, EULAR 2024 This is a one-of-a-kind experience for people affected by Ai Arthritis diseases to learn more about research (pharmacologic and non-pharmacologic) and get insights from fellow patients how to use the information discussed to improve your healthcare...
Predictors of Organ Damage for cSLE (Press Release Breakdown) - Go With Us! to EULAR 2024 covers conditions and terms also written as SLE, systemic lupus erythematosus, Sjogren's Disease, Sjogrens, Sjögren's syndrome or Sjogren's syndrome.
Predictors of Organ Damage for cSLE (Press Release Breakdown) - Go With Us! to EULAR 2024 ● Answers how long it lasts and what to expect; what the research says ● Disease Lupus; Sjögren's Disease ● Journey stage Every step ● Topic Co-existing conditions; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Predictors of Organ Damage for cSLE (Press Release Breakdown) - Go With Us! to EULAR 2024: https://www.youtube.com/watch?v=H4lqQ6y1rgM
Defining Difficult to Treat Psoriatic Arthritis (Press Release Breakdown)- Go With Us! to EULAR 2024
Speaker: Rebecca Hosey, PA Person living with Sjögren's disease, Ai Arthritis Volunteer "Go With Us!" to Conferences, EULAR 2024 This is a one-of-a-kind experience for people affected by Ai Arthritis diseases to learn more about research (pharmacologic and non-pharmacologic) and get insights from fellow patients how to use the information discussed to improve your healthcare journey.
Defining Difficult to Treat Psoriatic Arthritis (Press Release Breakdown)- Go With Us! to EULAR 2024 covers conditions and terms also written as PsA, Sjogren's Disease, Sjogrens, Sjögren's syndrome, Sjogren's syndrome, prior authorization or prior auth.
Defining Difficult to Treat Psoriatic Arthritis (Press Release Breakdown)- Go With Us! to EULAR 2024 ● Answers what the treatments are and how they work; what the research says ● Disease Psoriatic Arthritis; Sjögren's Disease ● Journey stage Every step ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Defining Difficult to Treat Psoriatic Arthritis (Press Release Breakdown)- Go With Us! to EULAR 2024: https://www.youtube.com/watch?v=WFrhhFwiSIs
VEXAS Syndrome and Testing Gene Editing (Press Release Breakdown) - Go With Us! to EULAR 2024
Speaker: Leila P.L. Valete Person living with Lupus & Sjögren's disease, Health Education Manager at Ai Arthritis "Go With Us!" to Conferences, EULAR 2024 This is a one-of-a-kind experience for people affected by Ai Arthritis diseases to learn more about research (pharmacologic and non-pharmacologic) and get insights from fellow patients how to use the information discussed to improve your...
VEXAS Syndrome and Testing Gene Editing (Press Release Breakdown) - Go With Us! to EULAR 2024 covers conditions and terms also written as SLE, systemic lupus erythematosus, Sjogren's Disease, Sjogrens, Sjögren's syndrome or Sjogren's syndrome.
VEXAS Syndrome and Testing Gene Editing (Press Release Breakdown) - Go With Us! to EULAR 2024 ● Answers how it is diagnosed; what the research says ● Disease Lupus; Sjögren's Disease ● Journey stage Every step ● Topic Getting diagnosed; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for VEXAS Syndrome and Testing Gene Editing (Press Release Breakdown) - Go With Us! to EULAR 2024: https://www.youtube.com/watch?v=7z5bcJG1nh8
Evaluating Systemic Score in Still's Disease - Go With Us! to EULAR 2024
Speaker: Leila P.L. Valete Person living with Lupus & Sjögren's disease, Health Education Manager at Ai Arthritis "Go With Us!" to Conferences, EULAR 2024 This is a one-of-a-kind experience for people affected by Ai Arthritis diseases to learn more about research (pharmacologic and non-pharmacologic) and get insights from fellow patients how to use the information discussed to improve your...
Evaluating Systemic Score in Still's Disease - Go With Us! to EULAR 2024 covers conditions and terms also written as SLE, systemic lupus erythematosus, Sjogren's Disease, Sjogrens, Sjögren's syndrome or Sjogren's syndrome.
Evaluating Systemic Score in Still's Disease - Go With Us! to EULAR 2024 ● Answers what the research says; what it feels like ● Disease Lupus; Sjögren's Disease ● Journey stage Every step ● Topic Research and conferences; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Evaluating Systemic Score in Still's Disease - Go With Us! to EULAR 2024: https://www.youtube.com/watch?v=5OcK9TOAd94
Mental Health with Ai Arthritis Diseases (Ep 98, on video)
In this episode, our co-hosts Estela and Juana delve deep into the often overlooked but critically important topic of mental health for those living with Ai Arthritis diseases. They discuss the significant impact these health challenges have on both the body and the mind, supported by eye-opening statistics that 52% of patients with autoimmune diseases are diagnosed with a mental health condition...
Mental Health with Ai Arthritis Diseases (Ep 98, on video) ● Answers what I can do myself day to day; how it is diagnosed ● Journey stage Every step ● Topic Living with it day to day; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Mental Health with Ai Arthritis Diseases (Ep 98, on video): https://www.youtube.com/watch?v=IVsefTXv66U
World Ai Arthritis Day (Ep 97, on video)
In this episode, Leila shares the exciting plans for the upcoming World Ai Arthritis Day on May 20th with Ai Arthritis . Delve into why raising awareness for Ai Arthritis diseases is crucial and discover ways you can actively participate on the global initiative.
World Ai Arthritis Day (Ep 97, on video) ● Answers how to take part ● Journey stage Every step ● Topic Awareness days and campaigns; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for World Ai Arthritis Day (Ep 97, on video): https://www.youtube.com/watch?v=-h2xH3fgF-A
Leila P.L. Valete ( Ai Arthritis ) 's Zoom Meeting
Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research.
Leila P.L. Valete ( Ai Arthritis ) 's Zoom Meeting ● Answers what the research says; how to take part ● Journey stage Every step ● Topic Research and conferences; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Leila P.L. Valete ( Ai Arthritis ) 's Zoom Meeting: https://www.youtube.com/watch?v=CcQ2IfOlabA
How Volunteering with Ai Arthritis Has Impacted Patient’s Lives (Ep 95, on video)
Excerpt from Episode 95, Volunteering with Ai Arthritis Curious about how volunteering with Ai Arthritis could transform your life and the lives of others? Join the conversation and learn how you too can make a difference by getting involved with Ai Arthritis . Find out more here.
How Volunteering with Ai Arthritis Has Impacted Patient’s Lives (Ep 95, on video) covers conditions and terms also written as SLE or systemic lupus erythematosus.
How Volunteering with Ai Arthritis Has Impacted Patient’s Lives (Ep 95, on video) ● Answers how to take part ● Disease Lupus ● Journey stage Every step ● Topic Getting involved with Ai Arthritis ; Disease information ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for How Volunteering with Ai Arthritis Has Impacted Patient’s Lives (Ep 95, on video): https://www.youtube.com/watch?v=oWoAZ24IZRE
Social Wellness with an Ai Arthritis disease (Ep 96, on video)
In this episode, co-hosts Leila, Estela, and Kerry delve into the crucial topic of social wellness amidst living with Ai Arthritis disease. They explore the essence of social wellness, its significance and sharing personal insights on navigating social lives while managing health challenges.
Social Wellness with an Ai Arthritis disease (Ep 96, on video) ● Answers what I can do myself day to day; what it feels like ● Journey stage Every step ● Topic Living with it day to day; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Social Wellness with an Ai Arthritis disease (Ep 96, on video): https://www.youtube.com/watch?v=Z6VFGJDSPbs
Treating Lupus Nephritis (Ep 86, on video)
Discover how lupus nephritis impacts daily life as Leila, our Health Education Manager at Ai Arthritis , opens up about her personal experience. In this 360it, Leila shares her experience with diagnosis, managing treatments, navigating side effects, and becoming proactive with her healthcare. With many Ai Arthritis diseases, not lupus, the kidneys and other organs can be impacted by the disease.
Treating Lupus Nephritis (Ep 86, on video) covers conditions and terms also written as SLE or systemic lupus erythematosus.
Treating Lupus Nephritis (Ep 86, on video) ● Answers how long it lasts and what to expect; what the treatments are and how they work ● Disease Lupus ● Journey stage Co-Existing Conditions ● Topic Co-existing conditions; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Treating Lupus Nephritis (Ep 86, on video): https://www.youtube.com/watch?v=rd7W985ZzCw
Volunteering with Ai Arthritis (Ep 95, on video)
Curious about how volunteering with Ai Arthritis could transform your life and the lives of others? In the latest episode of Ai Arthritis Voices 360 Podcast as co-hosts Leila, Michael, Jenni, Deeanne, Patrice, and Deb share heartfelt experiences of their journey into volunteering with Ai Arthritis .
Volunteering with Ai Arthritis (Ep 95, on video) ● Answers how to take part ● Journey stage Every step ● Topic Advocacy and policy; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Volunteering with Ai Arthritis (Ep 95, on video): https://www.youtube.com/watch?v=nfOH-xaDnnU
Bridge the Gap: Doctor-Patient Communication (Ep 94, on video)
Explore the intricate journey of a patient navigating diverse healthcare systems and specialist appointments. From battling inconsistent diagnoses to advocating for personalized care, this compelling narrative sheds light on the challenges patients face in today's healthcare landscape.
Bridge the Gap: Doctor-Patient Communication (Ep 94, on video) ● Answers what to say, and to whom ● Journey stage Every step ● Topic Talking to your care team; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Bridge the Gap: Doctor-Patient Communication (Ep 94, on video): https://www.youtube.com/watch?v=yN12iqPQEiQ
Rheumy Rounds Rewind: Improving Doctor and Patient Communication During Office Visits (Ep 94, on video)
This is an Ai Arthritis Voices 360 REWIND, where we are bringing back the first RheumyRound episode from 2020 where we opened the conversation on improving doctor office visits! Also note, you will hear the acronym IFAA, which we used prior to using Ai Arthritis . Join us as our co-hosts, Tiffany and Kelly, and guests, Dr.
Rheumy Rounds Rewind: Improving Doctor and Patient Communication During Office Visits (Ep 94, on video) ● Answers what to say, and to whom; how to take part ● Journey stage Every step ● Topic Talking to your care team; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Rheumy Rounds Rewind: Improving Doctor and Patient Communication During Office Visits (Ep 94, on video): https://www.youtube.com/watch?v=RKj1yPMi1Gc
January 2024 Community Chat: TV Show Watch Party (pt. 2)
Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research.
January 2024 Community Chat: TV Show Watch Party (pt. 2) ● Answers what the research says; how to take part ● Journey stage Every step ● Topic Research and conferences; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for January 2024 Community Chat: TV Show Watch Party (pt. 2): https://www.youtube.com/watch?v=_Q9ukxemF4Q
Ai Arthritis Patients Need To Know About Fertility (Ep 93, on video)
Explore the nuanced relationship between Ai Arthritis medications and fertility in this clip from the Ai Arthritis Voices 360 Podcast. From dispelling myths to discussing specific medications like cyclophosphamide, Leila shares valuable insights on preserving fertility while managing Ai Arthritis diseases.
Ai Arthritis Patients Need To Know About Fertility (Ep 93, on video) ● Answers what I can do myself day to day; how to take part ● Journey stage Every step ● Topic Family, pregnancy and parenting; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Ai Arthritis Patients Need To Know About Fertility (Ep 93, on video): https://www.youtube.com/watch?v=dKvhT8BZIMA
Reproductive Health and Ai Arthritis Diseases (Ep 93, on video)
Welcome to Ai Arthritis Voices 360! In this episode, Leila, the Health Education Manager at Ai Arthritis , delves into the impact of Ai Arthritis diseases on reproductive health, sharing insights from the RNS and ACR 2023 conferences.
Reproductive Health and Ai Arthritis Diseases (Ep 93, on video) ● Answers what I can do myself day to day; what the research says ● Journey stage Every step ● Topic Living with it day to day; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Reproductive Health and Ai Arthritis Diseases (Ep 93, on video): https://www.youtube.com/watch?v=hCFFIOrh_Ao
Medicare Drug Price Negotiation: How Will it Affect Patient Access? (Ep 92, on video)
This episode is a 360it revisiting the topics put on the table during Episode 88 : Biosimilars, Interchangeability & Switching 2023 Join us in this breakout 360it from Episode 88 Biosimilars : Interchangeability & Switching 2023 as we dissect the Inflation Reduction Act (IRA) and its potential fallout on patient access to diverse treatment plans.
Medicare Drug Price Negotiation: How Will it Affect Patient Access? (Ep 92, on video) covers conditions and terms also written as biosimilar or interchangeable biosimilar.
Medicare Drug Price Negotiation: How Will it Affect Patient Access? (Ep 92, on video) ● Answers what the treatments are and how they work; what to do when cost or coverage blocks treatment ● Journey stage Every step ● Topic Treatment and medication; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Medicare Drug Price Negotiation: How Will it Affect Patient Access? (Ep 92, on video): https://www.youtube.com/watch?v=dXRQ4nFzFoo
"Go With Us!" #ACR2023 Precision Medicine Study on Subgroups (M/F), Enthesitis, & Cell Profiling
Tiffany talks about her experience at ACR. There is a lot that goes into attending these conferences. There is plenty of things that we do not consider when we see our friends, colleagues, and influencers go to them. Tiffany goes over some of her meetings while in San Diego.
"Go With Us!" #ACR2023 Precision Medicine Study on Subgroups (M/F), Enthesitis, & Cell Profiling ● Answers how long it lasts and what to expect; what the research says ● Journey stage Every step ● Topic Symptoms and flares; Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for "Go With Us!" #ACR2023 Precision Medicine Study on Subgroups (M/F), Enthesitis, & Cell Profiling: https://www.youtube.com/watch?v=OBWarRDstnQ
December 2023 Community Chat: TV Show Watch Party
Watch this video with the Facebook chat: fb.watch/p1KhT7HKue/ Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research.
December 2023 Community Chat: TV Show Watch Party ● Answers what the research says; how to take part ● Journey stage Every step ● Topic Research and conferences; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for December 2023 Community Chat: TV Show Watch Party: https://www.youtube.com/watch?v=qP9SdH52Fho
Empowering Choices: Fertility Preservation in Rheumatic Diseases | ACR 2023 Insights Leila Lagandaon
Join Leila Lagandaon, Health Education Manager at Ai Arthritis , as she unpacks crucial insights from ACR 2023 on fertility preservation in rheumatic diseases, focusing on RA and lupus. Delve into the complex questions surrounding infertility, its impact on family planning, and the role of medications.
Empowering Choices: Fertility Preservation in Rheumatic Diseases | ACR 2023 Insights Leila Lagandaon covers conditions and terms also written as SLE or systemic lupus erythematosus.
Empowering Choices: Fertility Preservation in Rheumatic Diseases | ACR 2023 Insights Leila Lagandaon ● Answers what the treatments are and how they work; what the research says ● Disease Lupus ● Journey stage Every step ● Topic Treatment and medication; Family, pregnancy and parenting ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Empowering Choices: Fertility Preservation in Rheumatic Diseases | ACR 2023 Insights Leila Lagandaon: https://www.youtube.com/watch?v=rYGs1fevQWU
ACR 2023 Insights with Leila Lagandaon | Tapering, Remission, and Patient Preferences!
In this insightful ACR 2023 debrief, Leila Lagandaon, Health Education Manager at Ai Arthritis , delves into the intricate world of RA treatment. Join her as she explores the second part of the session, focusing on tapering strategies, achieving drug-free remission, and the nuanced differences in approaches between the USA and Europe.
ACR 2023 Insights with Leila Lagandaon | Tapering, Remission, and Patient Preferences! ● Answers what the treatments are and how they work; what the research says ● Journey stage Remission ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for ACR 2023 Insights with Leila Lagandaon | Tapering, Remission, and Patient Preferences!: https://www.youtube.com/watch?v=SJZoedOv3ZQ
Revolutionizing RA Treatment: ACR 2023 Debrief with Leila Lagandaon | Hope for Evolving Science!
Join Leila Lagandaon, Health Education Manager at Ai Arthritis , as she provides a comprehensive debrief on the "RA Treatment: Are We Good Enough?" session from ACR 2023. Explore the evolution of Rheumatoid Arthritis (RA) treatment, from historical methods to cutting-edge therapies.
Revolutionizing RA Treatment: ACR 2023 Debrief with Leila Lagandaon | Hope for Evolving Science! ● Answers what the treatments are and how they work; what the research says ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Revolutionizing RA Treatment: ACR 2023 Debrief with Leila Lagandaon | Hope for Evolving Science!: https://www.youtube.com/watch?v=DpmuUb6ViOM
ACR 2023 Managing Your Own Pain
Leila goes into managing your own pain when dealing with autoimmune and autoinflammatory arthritis diseases. She talks about strategies to manage pain and put yourself in the best mindset to deal with Ai Arthritis diseases.
ACR 2023 Managing Your Own Pain ● Answers how long it lasts and what to expect; what the research says ● Journey stage Every step ● Topic Symptoms and flares; Living with it day to day ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for ACR 2023 Managing Your Own Pain: https://www.youtube.com/watch?v=DajqvKRdBSM
November 2023 Community Chat: Go With Us! Watch Party
Watch the complete Go With Us! videos here: Ai Arthritis Community Chats: Beyond Borders Watch this video with the Facebook chat.
November 2023 Community Chat: Go With Us! Watch Party ● Answers what the research says ● Journey stage Every step ● Topic Research and conferences; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for November 2023 Community Chat: Go With Us! Watch Party: https://www.youtube.com/watch?v=cPi_hQy4qIU
Breaking Research: Pharma & Non-Pharma 2023 (Ep 92, on video)
Join us in this episode as co-hosts Tiffany and Deb both a recap of the 2023 ACR, American College of Rheumatology Conference and also how these topics specifically affect Ai Arthritis diseases. Tiffany and Deb also share an insight into our program, “Go With Us!” to Conferences.
Breaking Research: Pharma & Non-Pharma 2023 (Ep 92, on video) ● Answers what the research says; how to take part ● Journey stage Every step ● Topic Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Breaking Research: Pharma & Non-Pharma 2023 (Ep 92, on video): https://www.youtube.com/watch?v=FzYzvFptJac
Go With Us ACR 2023 Eileen's Debrief - Working with a Rheumatic Disease
Eileen reviews a session from ACR 2023 Convergence in San Diego. The session that she reviews is about figuring out your ability to work full-time, part-time, or if you are fully disabled after while living with an autoimmune / autoinflammatory arthritis.
Go With Us ACR 2023 Eileen's Debrief - Working with a Rheumatic Disease ● Answers what to do when cost or coverage blocks treatment; what the research says ● Journey stage Every step ● Topic Work, school and money; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us ACR 2023 Eileen's Debrief - Working with a Rheumatic Disease: https://www.youtube.com/watch?v=EkwBgBHIq7A
"Go With Us!" ACR23 Eileen - Anxiety, Depression, "grieving" your old self
Eileen talks about a session from ACR 2023 about grief and mental health.
"Go With Us!" ACR23 Eileen - Anxiety, Depression, "grieving" your old self ● Answers what I can do myself day to day; what the research says ● Journey stage Every step ● Topic Living with it day to day; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for "Go With Us!" ACR23 Eileen - Anxiety, Depression, "grieving" your old self: https://www.youtube.com/watch?v=b4m3KRbDzl4
ACR 2023 "Go With Us" Program - Pediatric, Biosimilars
Coverage and takeaways from the Day 1 of ACR 2023 from Deb Constien.
ACR 2023 "Go With Us" Program - Pediatric, Biosimilars covers conditions and terms also written as biosimilar or interchangeable biosimilar.
ACR 2023 "Go With Us" Program - Pediatric, Biosimilars ● Answers what to do when cost or coverage blocks treatment; what the research says ● Journey stage Every step ● Topic Work, school and money; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for ACR 2023 "Go With Us" Program - Pediatric, Biosimilars: https://www.youtube.com/watch?v=3tYXTgorsvw
Go With US ACR 2023 - Behind the Scenes at ACR, Biosimilars, Will Anti-TNF biologics work for you?
Come with Ai Arthritis as we go to American College of Rheumatology (ACR) 2023 Convergence. Tiffany goes through her day one and talks about initiatives Ai Arthritis will be doing in the near future.
Go With US ACR 2023 - Behind the Scenes at ACR, Biosimilars, Will Anti-TNF biologics work for you? covers conditions and terms also written as biosimilar or interchangeable biosimilar.
Go With US ACR 2023 - Behind the Scenes at ACR, Biosimilars, Will Anti-TNF biologics work for you? ● Answers what the treatments are and how they work; what the research says ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With US ACR 2023 - Behind the Scenes at ACR, Biosimilars, Will Anti-TNF biologics work for you?: https://www.youtube.com/watch?v=o03eTUCG6jI
"Go With Us!" to #ACR2023 RA Sex Bias, Pregnancy, COVID-19
Deb Constien recaps part of her day 2 experience. She talks about the meetings and a session about sex bias in rheumatoid arthritis diagnosis and treatments. She poses the question about this bias...and more.
"Go With Us!" to #ACR2023 RA Sex Bias, Pregnancy, COVID-19 ● Answers what the treatments are and how they work; how it is diagnosed ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for "Go With Us!" to #ACR2023 RA Sex Bias, Pregnancy, COVID-19: https://www.youtube.com/watch?v=FzqIkMl5VTY
Go With Us ACR 2023 - Pregnancy, Reproductive Health Research
Leila is talking about a session pertaining to risks, treatments, and care of women that are pregnant or may be pregnant while having a diagnoses of Lupus. Leila also covers some of her meeting throughout the day.
Go With Us ACR 2023 - Pregnancy, Reproductive Health Research covers conditions and terms also written as SLE or systemic lupus erythematosus.
Go With Us ACR 2023 - Pregnancy, Reproductive Health Research ● Answers what the research says; what the treatments are and how they work ● Disease Lupus ● Journey stage Every step ● Topic Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us ACR 2023 - Pregnancy, Reproductive Health Research: https://www.youtube.com/watch?v=Aencxl3J-UQ
"Go With Us!" to American College of Rheumatology #ACR23 - Cardiovascular & Mediterranean Diet
Today Deb is with you from ACR 2023 in San Diego giving you a recap of the cardiovascular and nutrition sessions that she has attended on Day 3.
"Go With Us!" to American College of Rheumatology #ACR23 - Cardiovascular & Mediterranean Diet ● Answers what I can do myself day to day; what the research says ● Journey stage Every step ● Topic Food and nutrition; Living with it day to day ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for "Go With Us!" to American College of Rheumatology #ACR23 - Cardiovascular & Mediterranean Diet: https://www.youtube.com/watch?v=1cj3y3RKLeY
"Go With Us!" ACR23 Leila - Juvenile Spondyloarthritis, Lupus self care
Leila reviews the sessions that she went to on day 3. She also takes you behind the scenes and talks about the importance of meetings at the conference.
"Go With Us!" ACR23 Leila - Juvenile Spondyloarthritis, Lupus self care covers conditions and terms also written as SLE or systemic lupus erythematosus.
"Go With Us!" ACR23 Leila - Juvenile Spondyloarthritis, Lupus self care ● Answers what I can do myself day to day; what the research says ● Disease Lupus ● Journey stage Every step ● Topic Family, pregnancy and parenting; Living with it day to day ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for "Go With Us!" ACR23 Leila - Juvenile Spondyloarthritis, Lupus self care: https://www.youtube.com/watch?v=vewc_jHKoFA
Go With Us ACR 2023 - Tiffany COVID & the heart, shared decision making with your doctor
CEO Tiffany and Volunteer Deb go through their day. They discuss a couple breaking experiences and give you an insider view to ACR 2023 in San Diego.
Go With Us ACR 2023 - Tiffany COVID & the heart, shared decision making with your doctor ● Answers what the treatments are and how they work; what the research says ● Journey stage Every step ● Topic Treatment and medication; Talking to your care team ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us ACR 2023 - Tiffany COVID & the heart, shared decision making with your doctor: https://www.youtube.com/watch?v=jY35p9IEj7w
Go With Us ACR 2023 Leila - Lupus Nephritis Therapies, Innate vs Adaptive Immune System
"Go With Us!" American College of Rheumatology Research Conference.
Go With Us ACR 2023 Leila - Lupus Nephritis Therapies, Innate vs Adaptive Immune System covers conditions and terms also written as SLE or systemic lupus erythematosus.
Go With Us ACR 2023 Leila - Lupus Nephritis Therapies, Innate vs Adaptive Immune System ● Answers what the research says; what the treatments are and how they work ● Disease Lupus ● Journey stage Every step ● Topic Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us ACR 2023 Leila - Lupus Nephritis Therapies, Innate vs Adaptive Immune System: https://www.youtube.com/watch?v=osD7jCiaebA
REWIND - Distinction Between Autoimmune and Autoinflammatory Diseases (Ep 91, on video)
This is an Ai Arthritis Voices 360 REWIND, where we are bringing back two short episodes that were recorded way back in 2019, because chances the topics are very important! Also note, you will hear the acronym IFAA, which we used prior to using Ai Arthritis . The first segment revisits an episode where Tiffany is joined by Dr.
REWIND - Distinction Between Autoimmune and Autoinflammatory Diseases (Ep 91, on video) ● Answers how to take part ● Journey stage Every step ● Topic Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for REWIND - Distinction Between Autoimmune and Autoinflammatory Diseases (Ep 91, on video): https://www.youtube.com/watch?v=hn1ZfGkbuI0
Early Diagnosis Is CRITICAL for Patients! (Ep 90, on video)
Do you struggle with getting a diagnosis? In this clip, Tiffany, Kerry, and Danielle open up about their personal struggles and journeys with diagnosis. They discuss the critical importance of early diagnosis and the obstacles they faced, from not realizing they needed help to encountering medical professionals who didn't listen.
Early Diagnosis Is CRITICAL for Patients! (Ep 90, on video) ● Answers how to take part; how it is diagnosed ● Journey stage Every step ● Topic Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Early Diagnosis Is CRITICAL for Patients! (Ep 90, on video): https://www.youtube.com/watch?v=MmXnDpWcj3A
Knowledge = Empowerment Field Trip: September 2023 - Washington D.C. (Update 2)
Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research.
Knowledge = Empowerment Field Trip: September 2023 - Washington D.C. (Update 2) ● Answers what the research says; how to take part ● Journey stage Every step ● Topic Research and conferences; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Knowledge = Empowerment Field Trip: September 2023 - Washington D.C. (Update 2): https://www.youtube.com/watch?v=dvBGUTK2abI
October 2023 Community Chat: 3 Ways to Manage Stress with a Chronic Illness with Cheryl Crow
Thank you to our panel of volunteers: Deb, Daileen, and Brittany! Access original webinar.
October 2023 Community Chat: 3 Ways to Manage Stress with a Chronic Illness with Cheryl Crow ● Answers what I can do myself day to day; how to take part ● Journey stage Every step ● Topic Living with it day to day; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for October 2023 Community Chat: 3 Ways to Manage Stress with a Chronic Illness with Cheryl Crow: https://www.youtube.com/watch?v=tGOfqSNdhFk
Managing Surgery Qualifications & Being Your Own Advocate (Ep 89, on video)
In this episode, Leila and Deb share their experiences and preparations for surgery while managing Ai Arthritis diseases. Leila discusses her weight loss surgery journey, including the challenges of her high BMI and medication adjustments. Deb highlights the importance of self-advocacy and the need to assertively address health concerns with medical professionals.
Managing Surgery Qualifications & Being Your Own Advocate (Ep 89, on video) ● Answers what the treatments are and how they work; what I can do myself day to day ● Journey stage Every step ● Topic Treatment and medication; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Managing Surgery Qualifications & Being Your Own Advocate (Ep 89, on video): https://www.youtube.com/watch?v=o_B4CE8Ac00
Why Won’t They Diagnose Me? (Ep 90, on video)
At Ai Arthritis , we represent those diagnosed, their care partners/support network, and the undiagnosed (often called the “Mystery Patients”). This episode is for those struggling to get diagnosed. Join co-hosts Tiffany, Kerry and Danielle as they share their personal diagnosis struggles and delve deep into the challenges many other patients face on their diagnosis journey.
Why Won’t They Diagnose Me? (Ep 90, on video) ● Answers how it is diagnosed; what to say, and to whom ● Journey stage Undiagnosed/Mystery Patient; Care Partners ● Topic Getting diagnosed; Living with it day to day ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Why Won’t They Diagnose Me? (Ep 90, on video): https://www.youtube.com/watch?v=NRdIoVxndQg
September 2023 Community Watch Party: The Checkup with Doctor Mike & Zach Kornfeld (Try Guys)
Watch this video with the Facebook chat: fb.watch/p1KhT7HKue/ Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research.
September 2023 Community Watch Party: The Checkup with Doctor Mike & Zach Kornfeld (Try Guys) ● Answers what to say, and to whom; what the research says ● Journey stage Every step ● Topic Talking to your care team; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for September 2023 Community Watch Party: The Checkup with Doctor Mike & Zach Kornfeld (Try Guys): https://www.youtube.com/watch?v=8JbOUKamNAo
Inflation Reduction Act (IRA) - Impact on Medicare & Biosimilars (Ep 88, on video)
How will the new provisions to the Inflation Reduction Act (IRA) affect biosimilars? In this video, Tiffany, Michael Reilly, Andrew Spiegel and Dr. Ralph McKibbin delve into a comprehensive discussion about the intricate connections between the IRA (Inflation Reduction Act) and biosimilars, particularly focusing on their implications for Medicare and the broader healthcare landscape.
Inflation Reduction Act (IRA) - Impact on Medicare & Biosimilars (Ep 88, on video) covers conditions and terms also written as biosimilar or interchangeable biosimilar.
Inflation Reduction Act (IRA) - Impact on Medicare & Biosimilars (Ep 88, on video) ● Answers how to take part; what to do when cost or coverage blocks treatment ● Journey stage Every step ● Topic Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Inflation Reduction Act (IRA) - Impact on Medicare & Biosimilars (Ep 88, on video): https://www.youtube.com/watch?v=NmhwY5PeLwo
Surgery with an Ai Arthritis Disease (Ep 89, on video)
Tune in to the latest episode of Ai Arthritis Voices 360 Podcast, where your co-hosts Leila, Deb, and Kerry candidly share their personal journeys of undergoing surgery while living with Ai Arthritis diseases. In this episode, the co-hosts delve into their surgical experiences, including the pivotal surgeries they've had due to their conditions.
Surgery with an Ai Arthritis Disease (Ep 89, on video) ● Answers what the treatments are and how they work; how to take part ● Journey stage Every step ● Topic Treatment and medication; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Surgery with an Ai Arthritis Disease (Ep 89, on video): https://www.youtube.com/watch?v=nw39dZ6DFKI
The Patient Perspective: What Katelyn Wants Patients to Know About MAS
Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research. To learn more about MAS visit.
The Patient Perspective: What Katelyn Wants Patients to Know About MAS ● Answers what it feels like; what the research says ● Disease Macrophage Activation Syndrome (associated condition) ● Journey stage Every step ● Topic Research and conferences; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for The Patient Perspective: What Katelyn Wants Patients to Know About MAS: https://www.youtube.com/watch?v=j9cdRHzIL1s
The Patient Perspective: What Surprised Katelyn About Macrophage Activation Syndrome (MAS)
Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research. To learn more about MAS visit.
The Patient Perspective: What Surprised Katelyn About Macrophage Activation Syndrome (MAS) ● Answers what it feels like; what the research says ● Disease Macrophage Activation Syndrome (associated condition) ● Journey stage Every step ● Topic Research and conferences; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for The Patient Perspective: What Surprised Katelyn About Macrophage Activation Syndrome (MAS): https://www.youtube.com/watch?v=9MZKsQLxLYE
The Patient Perspective: What Jenny Wants Patients to Know
Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research. To learn more about MAS, visit.
The Patient Perspective: What Jenny Wants Patients to Know ● Answers what it feels like; what the research says ● Disease Macrophage Activation Syndrome (associated condition) ● Journey stage Every step ● Topic Research and conferences; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for The Patient Perspective: What Jenny Wants Patients to Know: https://www.youtube.com/watch?v=8O1GNY6S-ow
The Patient Perspective: What Surprised Jenny about Macrophage Activation Syndrome (MAS)
Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research. To learn more about MAS visit.
The Patient Perspective: What Surprised Jenny about Macrophage Activation Syndrome (MAS) ● Answers what it feels like; what the research says ● Disease Macrophage Activation Syndrome (associated condition) ● Journey stage Every step ● Topic Research and conferences; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for The Patient Perspective: What Surprised Jenny about Macrophage Activation Syndrome (MAS): https://www.youtube.com/watch?v=3t1ND-6Bf70
The Patient Perspective: Jenny's Macrophage Activation Syndrome (MAS) Story
Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research. To learn more about MAS visit.
The Patient Perspective: Jenny's Macrophage Activation Syndrome (MAS) Story ● Answers what it feels like; what the research says ● Disease Macrophage Activation Syndrome (associated condition) ● Journey stage Every step ● Topic Research and conferences; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for The Patient Perspective: Jenny's Macrophage Activation Syndrome (MAS) Story: https://www.youtube.com/watch?v=YTZujzoTXzo
The Patient Perspective: Katelyn's Macrophage Activation Syndrome (MAS) Story
Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research. To learn more about MAS visit.
The Patient Perspective: Katelyn's Macrophage Activation Syndrome (MAS) Story ● Answers what it feels like; what the research says ● Disease Macrophage Activation Syndrome (associated condition) ● Journey stage Every step ● Topic Research and conferences; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for The Patient Perspective: Katelyn's Macrophage Activation Syndrome (MAS) Story: https://www.youtube.com/watch?v=pK1IIp0v7Hs
Mini "Go With Us!" to RNS 2023 - "Navigating Prior Authorizations" Educational Takeaways
Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research.
Mini "Go With Us!" to RNS 2023 - "Navigating Prior Authorizations" Educational Takeaways ● Answers what the research says; how to take part ● Journey stage Every step ● Topic Research and conferences; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Mini "Go With Us!" to RNS 2023 - "Navigating Prior Authorizations" Educational Takeaways: https://www.youtube.com/watch?v=-5BMsSC6j58
Mini "Go With Us!" to RNS 2023 - Introduction
Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research.
Mini "Go With Us!" to RNS 2023 - Introduction ● Answers what the research says; how to take part ● Journey stage Every step ● Topic Research and conferences; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Mini "Go With Us!" to RNS 2023 - Introduction: https://www.youtube.com/watch?v=Uer3Mo7liOw
Mini "Go With Us!" to RNS 2023 - "Drowning in Omega-6’s" Educational Takeaways
Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research.
Mini "Go With Us!" to RNS 2023 - "Drowning in Omega-6’s" Educational Takeaways ● Answers what the research says; how to take part ● Journey stage Every step ● Topic Research and conferences; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Mini "Go With Us!" to RNS 2023 - "Drowning in Omega-6’s" Educational Takeaways: https://www.youtube.com/watch?v=SqyoXO7t55A
Mini "Go With Us!" to RNS 2023 - "An NBA Mascot and Rheumatology Patient’s Perspective" Takeaways
Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research.
Mini "Go With Us!" to RNS 2023 - "An NBA Mascot and Rheumatology Patient’s Perspective" Takeaways ● Answers what it feels like; what the research says ● Journey stage Every step ● Topic Research and conferences; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Mini "Go With Us!" to RNS 2023 - "An NBA Mascot and Rheumatology Patient’s Perspective" Takeaways: https://www.youtube.com/watch?v=-ov_D2w3ZO0
Mini "Go With Us!" to RNS 2023 - "Social Tapestry of Rheumatology Care" Educational Takeaways
Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research.
Mini "Go With Us!" to RNS 2023 - "Social Tapestry of Rheumatology Care" Educational Takeaways ● Answers what the research says; how to take part ● Journey stage Every step ● Topic Research and conferences; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Mini "Go With Us!" to RNS 2023 - "Social Tapestry of Rheumatology Care" Educational Takeaways: https://www.youtube.com/watch?v=75r3lf-yQ88
Mini "Go With Us!" to RNS 2023 - "The Genetics of Rheumatology Patients" Educational Takeaways
Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research.
Mini "Go With Us!" to RNS 2023 - "The Genetics of Rheumatology Patients" Educational Takeaways ● Answers how it is diagnosed; what the research says ● Journey stage Every step ● Topic Getting diagnosed; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Mini "Go With Us!" to RNS 2023 - "The Genetics of Rheumatology Patients" Educational Takeaways: https://www.youtube.com/watch?v=k-B4wsy_kQA
Mini "Go With Us!" to RNS 2023 - "Public Policy and Legislative Engagement" Educational Takeaways
Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research.
Mini "Go With Us!" to RNS 2023 - "Public Policy and Legislative Engagement" Educational Takeaways ● Answers what the research says; how to take part ● Journey stage Every step ● Topic Research and conferences; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Mini "Go With Us!" to RNS 2023 - "Public Policy and Legislative Engagement" Educational Takeaways: https://www.youtube.com/watch?v=7dNLOqPCJAk
Mini "Go With Us!" to RNS 2023 - "Interstitial Lung Disease" Educational Takeaways
Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research.
Mini "Go With Us!" to RNS 2023 - "Interstitial Lung Disease" Educational Takeaways covers conditions and terms also written as ILD.
Mini "Go With Us!" to RNS 2023 - "Interstitial Lung Disease" Educational Takeaways ● Answers how long it lasts and what to expect; what the research says ● Disease Interstitial Lung Disease (associated condition) ● Journey stage Every step ● Topic Co-existing conditions; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Mini "Go With Us!" to RNS 2023 - "Interstitial Lung Disease" Educational Takeaways: https://www.youtube.com/watch?v=0ZNhPNNLRFI
Mini "Go With Us!" to RNS 2023 - "Complicated Comorbidities" Educational Takeaways
Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research.
Mini "Go With Us!" to RNS 2023 - "Complicated Comorbidities" Educational Takeaways ● Answers what the research says; how to take part ● Journey stage Every step ● Topic Research and conferences; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Mini "Go With Us!" to RNS 2023 - "Complicated Comorbidities" Educational Takeaways: https://www.youtube.com/watch?v=Q4OEhUiHHnU
Mini "Go With Us!" to RNS 2023 - "Cardiovascular Disease and RA" Educational Takeaways
Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research.
Mini "Go With Us!" to RNS 2023 - "Cardiovascular Disease and RA" Educational Takeaways ● Answers what the research says; how to take part ● Journey stage Every step ● Topic Research and conferences; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Mini "Go With Us!" to RNS 2023 - "Cardiovascular Disease and RA" Educational Takeaways: https://www.youtube.com/watch?v=6IGzFrekiBE
Mini "Go With Us!" to RNS 2023 - "Reproductive Health and Lupus" Educational Takeaways
Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research.
Mini "Go With Us!" to RNS 2023 - "Reproductive Health and Lupus" Educational Takeaways covers conditions and terms also written as SLE or systemic lupus erythematosus.
Mini "Go With Us!" to RNS 2023 - "Reproductive Health and Lupus" Educational Takeaways ● Answers what the research says; how to take part ● Disease Lupus ● Journey stage Every step ● Topic Research and conferences; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Mini "Go With Us!" to RNS 2023 - "Reproductive Health and Lupus" Educational Takeaways: https://www.youtube.com/watch?v=tgeIW0pxF8M
Value Assessment Patient Story: Tiffany's Perspective
Tiffany, Ai Arthritis CEO and person living with non-radiographic Axial Spondyloarthritis, emphasizes the significance of patient involvement in value assessments. While we're familiar with access challenges during treatment, she urges us to focus on the earlier stage, right after clinical trials, where value assessments play a role in determining access levels for medications.
Value Assessment Patient Story: Tiffany's Perspective covers conditions and terms also written as axSpA, ankylosing spondylitis or non-radiographic axSpA.
Value Assessment Patient Story: Tiffany's Perspective ● Answers what it feels like; what the treatments are and how they work ● Disease Axial Spondyloarthritis ● Journey stage Every step ● Topic Treatment and medication; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Value Assessment Patient Story: Tiffany's Perspective: https://www.youtube.com/watch?v=1nSkvh5U_so
Value Assessment Patient Story: Abby's Perspective
Abby, an Ai Arthritis volunteer and a person living with Rheumatoid Arthritis and Spondyloarthritis, shares her insights on value assessments. With 37 years since her diagnosis, Abby sheds light on the crucial differences between disease progressions.
Value Assessment Patient Story: Abby's Perspective covers conditions and terms also written as RA.
Value Assessment Patient Story: Abby's Perspective ● Answers what it feels like; what the treatments are and how they work ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Treatment and medication; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Value Assessment Patient Story: Abby's Perspective: https://www.youtube.com/watch?v=VP5zZHyryL8
Precision Medicine Patient Story: Brittany's Perspective
Brittany, a person living with Psoriatic Arthritis and Ai Arthritis Volunteer, reviews her journey through her treatment history. She points out each medication that she had taken, how long she had taken them, and how long each of them was effective. She goes through what each medication specifically does and shows the pattern of what medications actually works.
Precision Medicine Patient Story: Brittany's Perspective covers conditions and terms also written as PsA.
Precision Medicine Patient Story: Brittany's Perspective ● Answers what it feels like; what the treatments are and how they work ● Disease Psoriatic Arthritis ● Journey stage Every step ● Topic Treatment and medication; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Precision Medicine Patient Story: Brittany's Perspective: https://www.youtube.com/watch?v=XSiAGYGmuI8
Precision Medicine Patient Story: Deb's Perspective
Deb, an Ai Arthritis volunteer and person living with Rheumatoid Arthritis, shares her thoughts on precision medicine and its impact on autoimmune diseases. With 40 years battling rheumatoid arthritis, she reflects on the numerous medications tried and the time invested.
Precision Medicine Patient Story: Deb's Perspective covers conditions and terms also written as RA.
Precision Medicine Patient Story: Deb's Perspective ● Answers what it feels like; how it is diagnosed ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Getting diagnosed; Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Precision Medicine Patient Story: Deb's Perspective: https://www.youtube.com/watch?v=TrfEIjJFs2c
Precision Medicine Patient Story: Tiffany's Perspective
Tiffany, Ai Arthritis CEO and person living with non-radiographic Axial Spondyloarthritis, shares her personal experience with precision medicine. Early diagnosis and personalized treatments are crucial in achieving remission, a word rarely heard in our community.
Precision Medicine Patient Story: Tiffany's Perspective covers conditions and terms also written as axSpA, ankylosing spondylitis or non-radiographic axSpA.
Precision Medicine Patient Story: Tiffany's Perspective ● Answers what it feels like; what the treatments are and how they work ● Disease Axial Spondyloarthritis ● Journey stage Remission ● Topic Treatment and medication; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Precision Medicine Patient Story: Tiffany's Perspective: https://www.youtube.com/watch?v=-RHawNKRK_w
Precision Medicine Patient Story: Abby's Perspective
Abby, an Ai Arthritis volunteer and a person living with Rheumatoid Arthritis and Spondyloarthritis, shares her thoughts on precision medicine. By getting on the right treatment from the start, it prevents further joint damage during the trial period of new medications.
Precision Medicine Patient Story: Abby's Perspective covers conditions and terms also written as RA.
Precision Medicine Patient Story: Abby's Perspective ● Answers what it feels like; what the treatments are and how they work ● Disease Rheumatoid Arthritis ● Journey stage Remission ● Topic Treatment and medication; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Precision Medicine Patient Story: Abby's Perspective: https://www.youtube.com/watch?v=Et_8QFFcQHw
Co-Pay Accumulator Patient Story: Tiffany's Perspective
Tiffany, Ai Arthritis CEO and person living with non-radiographic Axial Spondyloarthritis, shares her experience with copay accumulators. Imagine realizing your copay card isn't reducing your deductible, leaving you unaware that your insurance isn't truly kicking in. The devastating blow comes when you try to refill your prescription, and suddenly you're faced with a hefty bill of thousands.
Co-Pay Accumulator Patient Story: Tiffany's Perspective covers conditions and terms also written as axSpA, ankylosing spondylitis or non-radiographic axSpA.
Co-Pay Accumulator Patient Story: Tiffany's Perspective ● Answers what it feels like; what to do when cost or coverage blocks treatment ● Disease Axial Spondyloarthritis ● Journey stage Every step ● Topic Work, school and money; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Co-Pay Accumulator Patient Story: Tiffany's Perspective: https://www.youtube.com/watch?v=1JMtuB52EvQ
Step Therapy Patient Story: Deb's Perspective
Deb, an Ai Arthritis volunteer and person living with Rheumatoid Arthritis, shares her experience of step therapy and being denied access to a higher tier medication which she had successfully been on. Deb endured weeks of discomfort and pain, impacting her daily life as a mom. Despite expensive tests confirming her need for advanced treatment, insurance bureaucracy persisted.
Step Therapy Patient Story: Deb's Perspective covers conditions and terms also written as RA.
Step Therapy Patient Story: Deb's Perspective ● Answers what it feels like; what the treatments are and how they work ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Step Therapy Patient Story: Deb's Perspective: https://www.youtube.com/watch?v=Hme-5jpcxUI
Step Therapy Patient Story: Jody's Perspective
Jody, an Ai Arthritis volunteer and person living with Psoriatic Arthritis, shares her journey and challenges faced with step therapy. Jody's journey reveals weeks of delays, denials, and even an incorrect review by a non-rheumatologist, causing her significant joint damage and reduced work hours.
Step Therapy Patient Story: Jody's Perspective covers conditions and terms also written as PsA.
Step Therapy Patient Story: Jody's Perspective ● Answers what it feels like; what the treatments are and how they work ● Disease Psoriatic Arthritis ● Journey stage Every step ● Topic Treatment and medication; Talking to your care team ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Step Therapy Patient Story: Jody's Perspective: https://www.youtube.com/watch?v=U9XWglB1DYU
Step Therapy Patient Story: Tiffany's Perspective
Tiffany, Ai Arthritis CEO and person living with non-radiographic Axial Spondyloarthritis, shares her journey through step therapy and utilization management. In this video, Tiffany opens up about her struggles with non-medical switching due to cost and the negative impacts this had on her health.
Step Therapy Patient Story: Tiffany's Perspective covers conditions and terms also written as axSpA, ankylosing spondylitis, non-radiographic axSpA or NMS.
Step Therapy Patient Story: Tiffany's Perspective ● Answers what it feels like; what the treatments are and how they work ● Disease Axial Spondyloarthritis ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Step Therapy Patient Story: Tiffany's Perspective: https://www.youtube.com/watch?v=iVf0h7cig3k
Step Therapy Patient Story: Abby's Perspective
Abby, an Ai Arthritis volunteer and a person living with Rheumatoid Arthritis and Spondyloarthritis, shares her struggles with step therapy. From advocating in Washington DC to confronting the rigid insurance system that stood between her and the right treatment, Abby shares not only her own challenges but those faced by many other patients as well.
Step Therapy Patient Story: Abby's Perspective covers conditions and terms also written as RA.
Step Therapy Patient Story: Abby's Perspective ● Answers what it feels like; what the treatments are and how they work ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Step Therapy Patient Story: Abby's Perspective: https://www.youtube.com/watch?v=Qil0pk284mY
August 2023 Community Chat: Seeing a Nurse Practitioner Instead of a Physician - Let's Discuss!
Watch this video with the chat on our Facebook Page: fb.watch/msZDZbvH2E/ Google Form to Submit YOUR Questions, Comments, Concerns, Opinions: forms.gle/XrBCAYxnY8ukUUht9 Links to Articles: everydayhealth.com/rheumatoid-arthritis/how-a-nurse-practitioner-can-help-you-manage-rheumatoid-arthritis/ versusarthritis.org/about-arthritis/treatments/who-will-treat-you/rheumatology-nurse-specialist/...
August 2023 Community Chat: Seeing a Nurse Practitioner Instead of a Physician - Let's Discuss! covers conditions and terms also written as RA.
August 2023 Community Chat: Seeing a Nurse Practitioner Instead of a Physician - Let's Discuss! ● Answers what it is; what the treatments are and how they work ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Disease information ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for August 2023 Community Chat: Seeing a Nurse Practitioner Instead of a Physician - Let's Discuss!: https://www.youtube.com/watch?v=0O55mFSIS3Y
Biosimilars - Interchangeability & Switching 2023 (Ep 88, on video)
This episode is a Step 5, revisit to the table, as outlined in our 6 Step Patient-Led Problem Solving Process. What do patients need to know about potential changes that would weaken the interchangeable biosimilar designation? In this episode, Tiffany is joined by esteemed guest experts Michael Reilly, Dr.
Biosimilars - Interchangeability & Switching 2023 (Ep 88, on video) ● Answers what the treatments are and how they work ● Journey stage Every step ● Topic Treatment and medication; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Biosimilars - Interchangeability & Switching 2023 (Ep 88, on video): https://www.youtube.com/watch?v=mRd0ZKT1GUw
Invisible Symptoms (Ep 87, on video)
The Truth Unveiled: Ai Arthritis Community Rants In a recent episode, our co-hosts aired powerful rants from the Ai Arthritis community, including Nidal's and Lindy's emotional experiences. It's a wake-up call to the vast gap in understanding autoimmune diseases, even among doctors.
Invisible Symptoms (Ep 87, on video) ● Answers how long it lasts and what to expect; what it is ● Journey stage Every step ● Topic Symptoms and flares; Living with it day to day ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Invisible Symptoms (Ep 87, on video): https://www.youtube.com/watch?v=v5k8-u8OHVI
Main Episode #87: RANT: Discussions - Inspired by Am I The @$$hole
Are you tired of feeling frustrated and unheard when it comes to your doctors, your disease, and all the challenges that come with it? Wish you had a platform to let it all out and find understanding? Welcome to Ai Arthritis Rant Discussions, Inspired by Am I The @$$hole? Brace yourself for a new series that will give you a voice and an outlet to vent your frustrations.
Main Episode #87: RANT: Discussions - Inspired by Am I The @$$hole ● Answers how to take part; what it is ● Journey stage Every step ● Topic Getting involved with Ai Arthritis ; Disease information ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Main Episode #87: RANT: Discussions - Inspired by Am I The @$$hole: https://www.youtube.com/watch?v=NsfvAUIIC4E
Go With Us to EULAR 2023 - June 17, 2023, New Medical Research and Treatment Options
Join Tiffany, the CEO of the International Foundation Autoimmune Autoinflammatory Arthritis, along with Deb, a long-term partner at conferences, and Eileen, a rheumatoid arthritis patient advocate, as they collaborate in a detailed debrief of EULAR 2023 as part of our "Go With Us to Conferences program!" During this debrief, our hosts will delve into the significance of Ai Arthritis 's "Go With Us"...
Go With Us to EULAR 2023 - June 17, 2023, New Medical Research and Treatment Options covers conditions and terms also written as RA.
Go With Us to EULAR 2023 - June 17, 2023, New Medical Research and Treatment Options ● Answers what the treatments are and how they work; what the research says ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us to EULAR 2023 - June 17, 2023, New Medical Research and Treatment Options: https://www.youtube.com/watch?v=ZD6uVtzIKWE
June 2023 Community Chat: Ask Me Anything/Getting to Know Ai Arthritis Staff
Watch this video with the chat on our Instagram: instagram.com/p/CsSEZ_hof... For more information on our community chats, visit ai arthritis .org/chats Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research.
June 2023 Community Chat: Ask Me Anything/Getting to Know Ai Arthritis Staff ● Answers what the research says; how to take part ● Journey stage Every step ● Topic Research and conferences; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for June 2023 Community Chat: Ask Me Anything/Getting to Know Ai Arthritis Staff: https://www.youtube.com/watch?v=o8HpKTEsbSE
May 2023 Community Chat: Revving up for World AUTOimmune & AUTOinflammatory Arthritis Day
Watch this video with the chat on our Instagram: instagram.com/p/CsSEZ_hofUp/?utm_source=ig_web_copy_link&igshid=MzRlODBiNWFlZA== Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research.
May 2023 Community Chat: Revving up for World AUTOimmune & AUTOinflammatory Arthritis Day ● Answers what the research says; how to take part ● Journey stage Every step ● Topic Research and conferences; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for May 2023 Community Chat: Revving up for World AUTOimmune & AUTOinflammatory Arthritis Day: https://www.youtube.com/watch?v=THuxBrlSvs0
Main Episode #86: Organ Involvement- Disease Symptom or Comorbidity?
In this episode, Tiffany will discuss how different organs can be impacted by the disease and the difference between an organ being part of a disease and being a comorbidity. Tiffany will be exploring some examples of organs being affected in various diseases such as eyes, heart, gastrointestinal, and kidneys, as well as a newer autoimmune disease, IgG4, that is commonly being diagnosed for...
Main Episode #86: Organ Involvement- Disease Symptom or Comorbidity? covers conditions and terms also written as IgG4-RD.
Main Episode #86: Organ Involvement- Disease Symptom or Comorbidity? ● Answers how long it lasts and what to expect; how it is diagnosed ● Disease Immunoglobulin G4-Related Disease (associated condition) ● Journey stage Co-Existing Conditions ● Topic Symptoms and flares; Co-existing conditions ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Main Episode #86: Organ Involvement- Disease Symptom or Comorbidity?: https://www.youtube.com/watch?v=2FA1ruihXXo
Go With Us to EULAR 2023 - Ig-G4, UCTD, RMDs and the Brain
Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research.
Go With Us to EULAR 2023 - Ig-G4, UCTD, RMDs and the Brain ● Answers what I can do myself day to day; what the research says ● Journey stage Every step ● Topic Living with it day to day; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Go With Us to EULAR 2023 - Ig-G4, UCTD, RMDs and the Brain: https://www.youtube.com/watch?v=1w2Ouk-ItFk
Elevator Pitches (Ep 85, on video)
Have you found yourself struggling to explain your Ai Arthritis disease to others? In this episode, our co-hosts Leila, Charis, and Patrice put a new topic on the table: how to explain your Ai Arthritis disease in a 30-60 second elevator pitch.
Elevator Pitches (Ep 85, on video) ● Answers how to take part ● Journey stage Every step ● Topic Advocacy and policy; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Elevator Pitches (Ep 85, on video): https://www.youtube.com/watch?v=UeZh3vN-MSs
Main Episode, #Ep 85 : Elevator Pitches to Explain Ai Arthritis Diseases
Have you found yourself struggling to explain your Ai Arthritis disease to others? In this episode, our co-hosts Leila, Charis, and Patrice put a new topic on the table: how to explain your Ai Arthritis disease in a 30-60 second elevator pitch.
Main Episode, #Ep 85 : Elevator Pitches to Explain Ai Arthritis Diseases ● Answers how to take part ● Journey stage Every step ● Topic Advocacy and policy; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Main Episode, #Ep 85 : Elevator Pitches to Explain Ai Arthritis Diseases: https://www.youtube.com/watch?v=xNh82xf4R1Q
April 2023 Community Chat: Advice for Parents of Children with Ai Arthritis Diseases
Thank you to our special guests: Rochelle Lentini of Purple Playas Foundation and Casey Cashman of U.S. Pain Foundation. Thank you also to our Public Policy Manager, Lindsey Viscarra for being on the panel.
April 2023 Community Chat: Advice for Parents of Children with Ai Arthritis Diseases ● Answers how to take part ● Journey stage Every step ● Topic Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for April 2023 Community Chat: Advice for Parents of Children with Ai Arthritis Diseases: https://www.youtube.com/watch?v=PQ6vnZHZqIc
About Copay Accumulators (FULL VIDEO): Michael's Perspective
Micheal, Ai Arthritis Volunteering & Administrative Assistant and person living with Psoriatic Arthritis, explaining what a Copay Accumulator is, why patients should understand it, an example how to recognize it, and how the process may impact your access to treatments.(USA issue).
About Copay Accumulators (FULL VIDEO): Michael's Perspective covers conditions and terms also written as PsA, copay maximizer or copay accumulator adjuster.
About Copay Accumulators (FULL VIDEO): Michael's Perspective ● Answers what it feels like; what to do when cost or coverage blocks treatment ● Disease Psoriatic Arthritis ● Journey stage Every step ● Topic Work, school and money; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for About Copay Accumulators (FULL VIDEO): Michael's Perspective: https://www.youtube.com/watch?v=gKVqLtekjEQ
About Precision Medicine (FULL VIDEO): Tiffany's Perspective
Tiffany, Ai Arthritis CEO and person living with non-radiographic Axial Spondyloarthritis, explaining the definition of Precision Medicine, the benefits of having it part of our rheumatology therapy, and why patients should care. NOTE: Precision Medicine and Personalized Medicine are still often used interchangeably.
About Precision Medicine (FULL VIDEO): Tiffany's Perspective covers conditions and terms also written as axSpA, ankylosing spondylitis or non-radiographic axSpA.
About Precision Medicine (FULL VIDEO): Tiffany's Perspective ● Answers what it feels like; what the treatments are and how they work ● Disease Axial Spondyloarthritis ● Journey stage Every step ● Topic Treatment and medication; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for About Precision Medicine (FULL VIDEO): Tiffany's Perspective: https://www.youtube.com/watch?v=IbxmzFPthic
What are Value Assessments/Health Technology Assessments? (Tiffany's Perspective)
Tiffany, Ai Arthritis CEO and person living with non-radiographic Axial Spondyloarthritis, explaining the definition of Value Assessments, or Health Technology Assessments (HTAs). Do you have a experience to share? Help us help you and others fight for the treatments we need by sharing your experiences. Submit your experience NOW: at.
What are Value Assessments/Health Technology Assessments? (Tiffany's Perspective) covers conditions and terms also written as axSpA, ankylosing spondylitis or non-radiographic axSpA.
What are Value Assessments/Health Technology Assessments? (Tiffany's Perspective) ● Answers what it is; what I can do myself day to day ● Disease Axial Spondyloarthritis ● Journey stage Every step ● Topic Living with it day to day; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for What are Value Assessments/Health Technology Assessments? (Tiffany's Perspective): https://www.youtube.com/watch?v=4HO_Z-tAyNc
Copay Accumulators - Why Should Patients Care? (Michael's Perspective)
Micheal, Ai Arthritis Volunteering & Administrative Assistant and person living with Psoriatic Arthritis, explaining what patients should understand about Accumulator Copay issues and how the process may impact your access to treatments.
Copay Accumulators - Why Should Patients Care? (Michael's Perspective) covers conditions and terms also written as PsA.
Copay Accumulators - Why Should Patients Care? (Michael's Perspective) ● Answers what it feels like; what the treatments are and how they work ● Disease Psoriatic Arthritis ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Copay Accumulators - Why Should Patients Care? (Michael's Perspective): https://www.youtube.com/watch?v=XpjWMOxHl2s
Main Benefits of Precision Medicine: Why Should You Care? (Tiffany's Perspective)
Tiffany, Ai Arthritis CEO and person living with non-radiographic axial spondyloarthritis, explaining what patients should understand about the benefits of supporting efforts to have Precision Medicine as part of our treatment plan in rheumatology.
Main Benefits of Precision Medicine: Why Should You Care? (Tiffany's Perspective) covers conditions and terms also written as axSpA, ankylosing spondylitis or non-radiographic axSpA.
Main Benefits of Precision Medicine: Why Should You Care? (Tiffany's Perspective) ● Answers what it feels like; what the treatments are and how they work ● Disease Axial Spondyloarthritis ● Journey stage Every step ● Topic Treatment and medication; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Main Benefits of Precision Medicine: Why Should You Care? (Tiffany's Perspective): https://www.youtube.com/watch?v=rH9Umn3Oqhk
About Value Assessments (FULL VIDEO): Tiffany's Perspective
Tiffany, Ai Arthritis CEO and person living with non-radiographic Axial Spondyloarthritis,explaining the definition of Value Assessments, the benefits of having it part of our rheumatology therapy, and why patients should care. Do you have a experience to share? Help us help you and others fight for the treatments we need by sharing your experiences. Submit your experience NOW: at.
About Value Assessments (FULL VIDEO): Tiffany's Perspective covers conditions and terms also written as axSpA, ankylosing spondylitis or non-radiographic axSpA.
About Value Assessments (FULL VIDEO): Tiffany's Perspective ● Answers what it feels like; how to take part ● Disease Axial Spondyloarthritis ● Journey stage Every step ● Topic Advocacy and policy; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for About Value Assessments (FULL VIDEO): Tiffany's Perspective: https://www.youtube.com/watch?v=wCFfyvblEw4
Step Therapy - Why Should Patients Care? (Lisa's Perspective)
Lisa, Ai Arthritis Volunteer and person living with Rheumatoid Arthritis, explaining what Step Therapy is and how the process of delaying the treatment the doctor feels is best for you could lead to severe complications (like comorbidities) and, in turn, higher healthcare costs.
Step Therapy - Why Should Patients Care? (Lisa's Perspective) covers conditions and terms also written as RA.
Step Therapy - Why Should Patients Care? (Lisa's Perspective) ● Answers what it feels like; what the treatments are and how they work ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Treatment and medication; Talking to your care team ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Step Therapy - Why Should Patients Care? (Lisa's Perspective): https://www.youtube.com/watch?v=xAk6Q0G6ibU
Example of Copay Accumulators: (Michael's Perspective)
Michael, Volunteering & Adminstration Assistant and person living with Psoriatic Arthritis, sharing an example of a Copay Accumulator and how you can know if it's happening to you or someone else you know. In this case, the patient uses $1000 of their $5000 assistance to cover one month's out of pocket costs of their medication (which was given to them by the drug manufacturer).
Example of Copay Accumulators: (Michael's Perspective) covers conditions and terms also written as PsA, copay maximizer or copay accumulator adjuster.
Example of Copay Accumulators: (Michael's Perspective) ● Answers what it feels like; what to do when cost or coverage blocks treatment ● Disease Psoriatic Arthritis ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Example of Copay Accumulators: (Michael's Perspective): https://www.youtube.com/watch?v=8bLGZc5JiyQ
Value Assessments: What Patients Should Understand (Kerry's Perspective)
Kerry, Ai Arthritis Volunteer and person living with Sarcoidosis and other Ai Arthritis conditions, explaining what patients should understand about Value Assessments, including why they are done, and how they may impact your access to treatments. Do you have a experience to share? Help us help you and others fight for the treatments we need by sharing your experiences. Submit your experience NOW: at.
Value Assessments: What Patients Should Understand (Kerry's Perspective) ● Answers what it feels like; how to take part ● Journey stage Every step ● Topic Advocacy and policy; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Value Assessments: What Patients Should Understand (Kerry's Perspective): https://www.youtube.com/watch?v=J0aN547QLKA
Value Assessments: What Patients Should Understand (Tiffany's Perspective)
Tiffany, Ai Arthritis CEO and person living with non-radiographic axial spondyloarthritis, explaining what patients should understand about Value Assessments, including why they are done, and how they may impact your access to treatments. Do you have a experience to share? Help us help you and others fight for the treatments we need by sharing your experiences. Submit your experience NOW: at.
Value Assessments: What Patients Should Understand (Tiffany's Perspective) covers conditions and terms also written as axSpA, ankylosing spondylitis or non-radiographic axSpA.
Value Assessments: What Patients Should Understand (Tiffany's Perspective) ● Answers what it feels like; how to take part ● Disease Axial Spondyloarthritis ● Journey stage Every step ● Topic Advocacy and policy; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Value Assessments: What Patients Should Understand (Tiffany's Perspective): https://www.youtube.com/watch?v=IQUSd8GB2BE
About Precision Medicine (FULL VIDEO): Kerry's Perspective
Kerry, Ai Arthritis Volunteer and person living with Sarcoidosis and various other Ai Arthritis diseases,explaining the definition of Precision Medicine, the benefits of having it part of our rheumatology therapy, and why patients should care. NOTE: Precision Medicine and Personalized Medicine are still often used interchangeably.
About Precision Medicine (FULL VIDEO): Kerry's Perspective ● Answers what it feels like; what the treatments are and how they work ● Journey stage Every step ● Topic Treatment and medication; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for About Precision Medicine (FULL VIDEO): Kerry's Perspective: https://www.youtube.com/watch?v=YTb13Q4C5_8
What is Precision Medicine? (Kerry's Perspective)
Kerry, Ai Arthritis Volunteer and person living with Sarcoidosis and various other Ai Arthritis diseases, explaining the definition of Precision Medicine. NOTE: Precision Medicine and Personalized Medicine are still often used interchangeably.
What is Precision Medicine? (Kerry's Perspective) ● Answers what it is; what the treatments are and how they work ● Journey stage Every step ● Topic Treatment and medication; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for What is Precision Medicine? (Kerry's Perspective): https://www.youtube.com/watch?v=UQkIxF9ONoA
What is a Copay Accumulator? (Michael's Perspective)
Michael, Ai Arthritis Volunteering & Administrative Assistant and person living with Psoriatic Arthritis, explaining the definition of a Copay Accumulator. Do you have a experience to share? Help us help you and others fight for the treatments we need by sharing your experiences. Submit your experience NOW: at.
What is a Copay Accumulator? (Michael's Perspective) covers conditions and terms also written as PsA, copay maximizer or copay accumulator adjuster.
What is a Copay Accumulator? (Michael's Perspective) ● Answers what it is; what to do when cost or coverage blocks treatment ● Disease Psoriatic Arthritis ● Journey stage Every step ● Topic Work, school and money; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for What is a Copay Accumulator? (Michael's Perspective): https://www.youtube.com/watch?v=zjyJBZxh4XE
Main Benefits of Precision Medicine: Why Should You Care? (Kerry's Perspective)
Kerry, Ai Arthritis Volunteer and person living with Sarcoidosis and other Ai Arthritis conditions, explaining what patients should understand about the benefits of supporting efforts to have Precision Medicine as part of our treatment plan in rheumatology.
Main Benefits of Precision Medicine: Why Should You Care? (Kerry's Perspective) ● Answers what it feels like; what the treatments are and how they work ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Main Benefits of Precision Medicine: Why Should You Care? (Kerry's Perspective): https://www.youtube.com/watch?v=WVn8Fk2yaYs
Example of Copay Accumulators: (Lindsey's Perspective)
Lindsey, Ai Arthritis Public Policy Manager and person living with Psoriatic Arthritis, sharing an example of a Copay Accumulator and how you can know if it's happening to you or someone else you know. In this case, she compares this scenario to going to the grocery store with a $1 off coupon, which you use when you check out.
Example of Copay Accumulators: (Lindsey's Perspective) covers conditions and terms also written as PsA, copay maximizer or copay accumulator adjuster.
Example of Copay Accumulators: (Lindsey's Perspective) ● Answers what it feels like; what to do when cost or coverage blocks treatment ● Disease Psoriatic Arthritis ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Example of Copay Accumulators: (Lindsey's Perspective): https://www.youtube.com/watch?v=nHCKoqTBmeg
Example of Step Therapy: (Leila's Perspective)
Leila, Ai Arthritis Education and Engagement Manager and person living with Lupus Nephritis and Sjogren's Syndrome, sharing an example of Step Therapy and how you can know if it's happening to you or someone else you know. In this case, the prescription your doctor prescribed is not allowed by the insurance company unless you first try and fail at least 3 other options that cost less for them.
Example of Step Therapy: (Leila's Perspective) covers conditions and terms also written as SLE, systemic lupus erythematosus, Sjogren's Disease, Sjogrens or Sjögren's syndrome.
Example of Step Therapy: (Leila's Perspective) ● Answers what it feels like; what the treatments are and how they work ● Disease Lupus; Sjögren's Disease ● Journey stage Every step ● Topic Treatment and medication; Talking to your care team ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Example of Step Therapy: (Leila's Perspective): https://www.youtube.com/watch?v=OlOA_n56MX8
Step Therapy - Why Should Patients Care? (Jody's Perspective)
Jody, Ai Arthritis Volunteer and person living with Rheumatoid Arthritis, explaining why patients should understand Step Therapy and how the process may impact your access to treatments prescribed by your doctor and based on your personalized needs.
Step Therapy - Why Should Patients Care? (Jody's Perspective) covers conditions and terms also written as RA.
Step Therapy - Why Should Patients Care? (Jody's Perspective) ● Answers what it feels like; what the treatments are and how they work ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Treatment and medication; Talking to your care team ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Step Therapy - Why Should Patients Care? (Jody's Perspective): https://www.youtube.com/watch?v=5WRmgmK-Xu4
What is Step Therapy? (Jody's Perspective)
Jody Ai Arthritis Volunteer and person living with Rheumatoid Arthritis, explaining the definition of Step Therapy. Do you have a experience to share? Help us help you and others fight for the treatments we need by sharing your experiences. Submit your experience NOW: at.
What is Step Therapy? (Jody's Perspective) covers conditions and terms also written as RA.
What is Step Therapy? (Jody's Perspective) ● Answers what it is; what the treatments are and how they work ● Disease Rheumatoid Arthritis ● Journey stage Every step ● Topic Treatment and medication; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for What is Step Therapy? (Jody's Perspective): https://www.youtube.com/watch?v=LS_pegSTOTw
Allison Bateman-House, Phd: Ethical Importance of Counting Subgroups in Research
Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research.
Allison Bateman-House, Phd: Ethical Importance of Counting Subgroups in Research ● Answers what the treatments are and how they work; what the research says ● Journey stage Every step ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Allison Bateman-House, Phd: Ethical Importance of Counting Subgroups in Research: https://www.youtube.com/watch?v=fl8u3jcuOzg
Kevin Curran, PhD- Gene Therapy 101: What Patients Should Understand
Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research.
Kevin Curran, PhD- Gene Therapy 101: What Patients Should Understand ● Answers what the treatments are and how they work; what the research says ● Journey stage Every step ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Kevin Curran, PhD- Gene Therapy 101: What Patients Should Understand: https://www.youtube.com/watch?v=YuacJc-eylE
Daryl Pritchard, PhD: Diagnosis and Matching Treatments- What You and Your Doctor Can Do
Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research.
Daryl Pritchard, PhD: Diagnosis and Matching Treatments- What You and Your Doctor Can Do ● Answers what the treatments are and how they work; how it is diagnosed ● Journey stage Every step ● Topic Treatment and medication; Talking to your care team ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Daryl Pritchard, PhD: Diagnosis and Matching Treatments- What You and Your Doctor Can Do: https://www.youtube.com/watch?v=jbmgrWNGSKU
Jamie Reidy: Lupus Biomarker Test for Matching Treatments
Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research.
Jamie Reidy: Lupus Biomarker Test for Matching Treatments covers conditions and terms also written as SLE or systemic lupus erythematosus.
Jamie Reidy: Lupus Biomarker Test for Matching Treatments ● Answers how it is diagnosed; what the research says ● Disease Lupus ● Journey stage Every step ● Topic Getting diagnosed; Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Jamie Reidy: Lupus Biomarker Test for Matching Treatments: https://www.youtube.com/watch?v=B8O8nOW34_g
Kurt Tamaru, MD, MBA: Whole-Person Care Plans Using Virtual Platforms
Ai Arthritis helps those, like us, who are affected by autoimmune and autoinflammatory arthritis diseases, use their voices, as equals alongside other stakeholders, to solve problems that impact education, advocacy, and research.
Kurt Tamaru, MD, MBA: Whole-Person Care Plans Using Virtual Platforms ● Answers what the treatments are and how they work; what the research says ● Journey stage Every step ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Kurt Tamaru, MD, MBA: Whole-Person Care Plans Using Virtual Platforms: https://www.youtube.com/watch?v=waWqQ2KJ8Vw
I’m a Mystery Patient, Now What? (Ep 84, on video)
Have you ever experienced the frustration of not being able to get a diagnosis, or worse, receiving the wrong one? In this episode, our co-hosts Tiffany, Kelly, and Kerry, dive into what it is to be a mystery patient. In addition, they each share their personal experiences of being a mystery patient, and the challenges they experienced with delayed diagnosis.
I’m a Mystery Patient, Now What? (Ep 84, on video) ● Answers how it is diagnosed ● Journey stage Undiagnosed/Mystery Patient ● Topic Getting diagnosed; Living with it day to day ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for I’m a Mystery Patient, Now What? (Ep 84, on video): https://www.youtube.com/watch?v=SeBA7oEx4V0
How To Improve Doctor-Patient Experience (Ep 80, on video)
Autoimmune diseases are complex and unlike other diseases, there isn’t one definitive test to give the patients a diagnosis. To improve doctor-patient communication, both sides need to listen and hear each other. Patients should be prepared for visits with questions, symptom tracking, photos and doctors should listen and provide explanations for their interpretations to remain on the same page.
How To Improve Doctor-Patient Experience (Ep 80, on video) ● Answers how long it lasts and what to expect; how it is diagnosed ● Journey stage Every step ● Topic Symptoms and flares; Talking to your care team ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for How To Improve Doctor-Patient Experience (Ep 80, on video): https://www.youtube.com/watch?v=a__yv1i9Sv8
Importance of Good Communication At Office Visits (Ep 80, on video)
There are many challenges with diagnosing an autoimmune disease therefore effective communication between doctors and patients is very important. Patients need to be receptive and partner with their doctors to find the best path forward, even if the diagnosis isn't straightforward.
Importance of Good Communication At Office Visits (Ep 80, on video) ● Answers what to say, and to whom; how it is diagnosed ● Journey stage Every step ● Topic Talking to your care team; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Importance of Good Communication At Office Visits (Ep 80, on video): https://www.youtube.com/watch?v=rV5EZvZcDJg
JIA Family Communication Journey - JOIN THE PROJECT! (Ep 83, on video)
International Foundation for Autoimmune & Autoinflammatory Arthritis ( Ai Arthritis ) is collaborating with Purple Playas Foundation, pediatric health professionals families meet on the JIA journey, and JIA families to improve communication through the diagnosis and therapy journey. Watch this segment from our Ep 83 Ai Arthritis Voices 360 Podcast episode to learn more.
JIA Family Communication Journey - JOIN THE PROJECT! (Ep 83, on video) covers conditions and terms also written as juvenile arthritis.
JIA Family Communication Journey - JOIN THE PROJECT! (Ep 83, on video) ● Answers what I can do myself day to day; how to take part ● Disease Juvenile Idiopathic Arthritis ● Journey stage Every step ● Topic Family, pregnancy and parenting; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for JIA Family Communication Journey - JOIN THE PROJECT! (Ep 83, on video): https://www.youtube.com/watch?v=EkRS9Rdqrns
Bad Doctor Experience (Ep 80, on video)
It is okay to walk away from a doctor when you feel like that patient-doctor relationship isn’t working for you. Patients need to be their own advocates and find the best partnership with a doctor so they can work together to not only get the correct diagnosis but also the most effective treatment plans.
Bad Doctor Experience (Ep 80, on video) ● Answers what the treatments are and how they work; how it is diagnosed ● Journey stage Every step ● Topic Treatment and medication; Talking to your care team ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Bad Doctor Experience (Ep 80, on video): https://www.youtube.com/watch?v=5XE_4yFcZrc
March 2023 Community Chat: Anti-Inflammatory Foods & Recipes
Thank you to our special guests: Cristina Montoya (@arthritisdietitian &.
March 2023 Community Chat: Anti-Inflammatory Foods & Recipes ● Answers what I can do myself day to day ● Journey stage Every step ● Topic Food and nutrition; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for March 2023 Community Chat: Anti-Inflammatory Foods & Recipes: https://www.youtube.com/watch?v=8vGgb6y4ds0
The Journey Towards JIA Diagnosis (Ep 83, on video)
Living with Juvenile Idiopathic Arthritis (JIA) can be a challenging journey for both parents and children. In this video, we discuss the importance of open communication with your doctors and involving your child in the process.
The Journey Towards JIA Diagnosis (Ep 83, on video) covers conditions and terms also written as juvenile arthritis.
The Journey Towards JIA Diagnosis (Ep 83, on video) ● Answers what I can do myself day to day; how it is diagnosed ● Disease Juvenile Idiopathic Arthritis ● Journey stage Every step ● Topic Family, pregnancy and parenting; Talking to your care team ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for The Journey Towards JIA Diagnosis (Ep 83, on video): https://www.youtube.com/watch?v=lGBLTe07WzQ
Importance of Good Communication With JIA (Ep 83, on video)
In this video, we discuss the challenging journey to a JIA diagnosis and the importance of clear communication between doctors, parents, and children. We'll explore how lab test results may not always provide definitive answers and offer tips on how to prepare questions for your doctor and seek clarification throughout the diagnostic process.
Importance of Good Communication With JIA (Ep 83, on video) covers conditions and terms also written as juvenile arthritis.
Importance of Good Communication With JIA (Ep 83, on video) ● Answers what to say, and to whom; how it is diagnosed ● Disease Juvenile Idiopathic Arthritis ● Journey stage Every step ● Topic Talking to your care team; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Importance of Good Communication With JIA (Ep 83, on video): https://www.youtube.com/watch?v=8oQIuCaof8Y
Different Doctors You May See with JIA (Ep 83, on video)
Are you frustrated by the lack of answers and confusion surrounding your child’s autoimmune disease diagnosis? In this video, we dive into the complex world of JIA diagnosis and treatment. From navigating the confusing path specialists and doctors to understanding the limitations of lab testing, we explore the challenges facing patients and their families.
Different Doctors You May See with JIA (Ep 83, on video) covers conditions and terms also written as juvenile arthritis.
Different Doctors You May See with JIA (Ep 83, on video) ● Answers how it is diagnosed; what the treatments are and how they work ● Disease Juvenile Idiopathic Arthritis ● Journey stage Every step ● Topic Getting diagnosed; Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Different Doctors You May See with JIA (Ep 83, on video): https://www.youtube.com/watch?v=pMqb1Z6gRR0
Will She Get Diagnosed? Follow Phedre! (Ep 82, on video)
If you or a loved one are battling mysterious symptoms, you know how frustrating it can be to find answers. But you're not alone. Join us in this 360it spin-off as Tiffany and Phedre dive into Phedre's journey of living with AUTO + inflammatory arthritis SYMPTOMS + psoriasis + low back inflammation, but NO diagnosis?!
Will She Get Diagnosed? Follow Phedre! (Ep 82, on video) ● Answers how long it lasts and what to expect; how it is diagnosed ● Journey stage Every step ● Topic Symptoms and flares; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Will She Get Diagnosed? Follow Phedre! (Ep 82, on video): https://www.youtube.com/watch?v=1R8gynZ3810
Symptom Tracking (Ep 80, on video)
The most successful doctor office visits are where both sides show up with an agenda. The patient comes with their information on the symptoms they’ve been tracking and questions they may have and the doctor comes with medical knowledge, research and the ability to fully listen to the patient.
Symptom Tracking (Ep 80, on video) ● Answers how long it lasts and what to expect; what the research says ● Journey stage Every step ● Topic Symptoms and flares; Talking to your care team ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Symptom Tracking (Ep 80, on video): https://www.youtube.com/watch?v=3Kbp6yd2oxc
Main Episode, #83: Improving Communication Throughout the JIA Journey
Have you or your family been affected by juvenile arthritis? On this episode, Tiffany is joined by Rochelle Lentini, CEO and President of Purple Playas Foundation, who have united with other specialists and families to identify additional tips to improve communication.
Main Episode, #83: Improving Communication Throughout the JIA Journey ● Answers what I can do myself day to day; what to say, and to whom ● Disease Juvenile Idiopathic Arthritis ● Journey stage Every step ● Topic Family, pregnancy and parenting; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Main Episode, #83: Improving Communication Throughout the JIA Journey: https://www.youtube.com/watch?v=oveNO25JaNU
Rashmi Sinha Presentation (Without Q&A) From Webinar
This is a clip from our Stills Disease: Research and Clinical Trials webinar, featuring Rashmi Sinha's presentation without the Q&A from afterward.
Rashmi Sinha Presentation (Without Q&A) From Webinar covers conditions and terms also written as adult-onset Still's disease, AOSD, systemic juvenile idiopathic arthritis or sJIA.
Rashmi Sinha Presentation (Without Q&A) From Webinar ● Answers what the treatments are and how they work; what the research says ● Disease Still's Disease ● Journey stage Every step ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Rashmi Sinha Presentation (Without Q&A) From Webinar: https://www.youtube.com/watch?v=VF4XsZOCNOs
Sylvia Hanna Presentation from Avalo Therapeutics (With Q&A) From Webinar
This is a clip from our Stills Disease: Research and Clinical Trials webinar, featuring information about a new Anti IL-18 therapy, presentation by Sylvia Hanna from Avalo Therapeutics with Q&A from afterward.
Sylvia Hanna Presentation from Avalo Therapeutics (With Q&A) From Webinar covers conditions and terms also written as adult-onset Still's disease, AOSD, systemic juvenile idiopathic arthritis or sJIA.
Sylvia Hanna Presentation from Avalo Therapeutics (With Q&A) From Webinar ● Answers what the treatments are and how they work; what the research says ● Disease Still's Disease ● Journey stage Every step ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Sylvia Hanna Presentation from Avalo Therapeutics (With Q&A) From Webinar: https://www.youtube.com/watch?v=kcLSU6loY4E
Jeanette Bachir Presentation (Without Q&A) From Webinar
This is a clip from our Stills Disease: Research and Clinical Trials webinar, featuring Jeanette Bachir's presentation without the Q&A from afterward.
Jeanette Bachir Presentation (Without Q&A) From Webinar covers conditions and terms also written as adult-onset Still's disease, AOSD, systemic juvenile idiopathic arthritis or sJIA.
Jeanette Bachir Presentation (Without Q&A) From Webinar ● Answers what the treatments are and how they work; what the research says ● Disease Still's Disease ● Journey stage Every step ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Jeanette Bachir Presentation (Without Q&A) From Webinar: https://www.youtube.com/watch?v=vM1DP1xxE1s
Sylvia Hanna Presentation (Without Q&A) From Webinar
This is a clip from our Stills Disease: Research and Clinical Trials webinar, featuring Sylvia Hanna's presentation without the Q&A from afterward.
Sylvia Hanna Presentation (Without Q&A) From Webinar covers conditions and terms also written as adult-onset Still's disease, AOSD, systemic juvenile idiopathic arthritis or sJIA.
Sylvia Hanna Presentation (Without Q&A) From Webinar ● Answers what the treatments are and how they work; what the research says ● Disease Still's Disease ● Journey stage Every step ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Sylvia Hanna Presentation (Without Q&A) From Webinar: https://www.youtube.com/watch?v=Y9GvFS2wG-U
Rashmi Sinha Presentation From Rewatch
This is a clip from our Stills Disease: Research and Clinical Trials Rewatch, featuring Rashmi Sinha's presentation.
Rashmi Sinha Presentation From Rewatch covers conditions and terms also written as adult-onset Still's disease, AOSD, systemic juvenile idiopathic arthritis or sJIA.
Rashmi Sinha Presentation From Rewatch ● Answers what the research says ● Disease Still's Disease ● Journey stage Every step ● Topic Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Rashmi Sinha Presentation From Rewatch: https://www.youtube.com/watch?v=isMuOhrQAo0
Jeanette Bachir Presentation From Rewatch
This is a clip from our Stills Disease: Research and Clinical Trials Rewatch, featuring Jeanette Bachir's presentation.
Jeanette Bachir Presentation From Rewatch covers conditions and terms also written as adult-onset Still's disease, AOSD, systemic juvenile idiopathic arthritis or sJIA.
Jeanette Bachir Presentation From Rewatch ● Answers what the research says ● Disease Still's Disease ● Journey stage Every step ● Topic Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Jeanette Bachir Presentation From Rewatch: https://www.youtube.com/watch?v=QOuru0m2Vz0
Sylvia Hanna Presentation From Rewatch
This is a clip from our Stills Disease: Research and Clinical Trials webinar, featuring Sylvia Hanna's presentation.
Sylvia Hanna Presentation From Rewatch covers conditions and terms also written as adult-onset Still's disease, AOSD, systemic juvenile idiopathic arthritis or sJIA.
Sylvia Hanna Presentation From Rewatch ● Answers what the research says ● Disease Still's Disease ● Journey stage Every step ● Topic Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Sylvia Hanna Presentation From Rewatch: https://www.youtube.com/watch?v=KRl8Tm5Vpew
Tiffany Westrich-Robertson Presentation From Rewatch, Part 1
This is a clip from our Stills Disease: Research and Clinical Trials Rewatch Party, featuring Tiffany Westrich-Robertson's presentation.
Tiffany Westrich-Robertson Presentation From Rewatch, Part 1 covers conditions and terms also written as adult-onset Still's disease, AOSD, systemic juvenile idiopathic arthritis or sJIA.
Tiffany Westrich-Robertson Presentation From Rewatch, Part 1 ● Answers what the research says ● Disease Still's Disease ● Journey stage Every step ● Topic Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Tiffany Westrich-Robertson Presentation From Rewatch, Part 1: https://www.youtube.com/watch?v=tVsBbMCSvoM
#ACR22 Day One Debrief! Oral Dryness, Genetic Markers, Uveitis, and more!
All about our first day at the American College of Rheumatology Convergence conference in Philiadephia.
#ACR22 Day One Debrief! Oral Dryness, Genetic Markers, Uveitis, and more! ● Answers how it is diagnosed; what the research says ● Disease Uveitis (co-existing condition) ● Journey stage Every step ● Topic Getting diagnosed; Co-existing conditions ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR22 Day One Debrief! Oral Dryness, Genetic Markers, Uveitis, and more!: https://www.youtube.com/watch?v=23UVFe1C_xg
#ACR22 Day Two Debrief! Spoon Theory, Lifestyle Presentations, Advocacy, and more!
We have all your highlights from our second full day at.
#ACR22 Day Two Debrief! Spoon Theory, Lifestyle Presentations, Advocacy, and more! ● Answers how to take part; what the research says ● Journey stage Every step ● Topic Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR22 Day Two Debrief! Spoon Theory, Lifestyle Presentations, Advocacy, and more!: https://www.youtube.com/watch?v=Iiq2JPnD0hg
#ACR22 Day Three Debrief! Precision Medicine, Life Hacks, JAKs and more!
Our last full day at , but not the last you will hear from us! More to come soon as we continue to bring you all you need to know from the Convergence in Philadelphia.
#ACR22 Day Three Debrief! Precision Medicine, Life Hacks, JAKs and more! ● Answers what the treatments are and how they work; what the research says ● Journey stage Every step ● Topic Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR22 Day Three Debrief! Precision Medicine, Life Hacks, JAKs and more!: https://www.youtube.com/watch?v=JShVqayEXo0
Ai Arthritis Resource Tool (Ep 82, on video)
Join us for the premiere of our first set of disease pages! We'll explore the most common symptoms of the first 5 diseases out of the 22 we will be completing, including severe fatigue, brain fog, muscle weakness, and flu-like symptoms. Not everyone experiences the same symptoms, so we're putting together a comprehensive resource to help you track your symptoms and get the right treatment.
Ai Arthritis Resource Tool (Ep 82, on video) ● Answers how long it lasts and what to expect; how to take part ● Journey stage Every step ● Topic Symptoms and flares; Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Ai Arthritis Resource Tool (Ep 82, on video): https://www.youtube.com/watch?v=ePtk5F1qeZ8
Journey to a Diagnosis (Ep 82, on video)
In this video, Tiffany shares her journey of being diagnosed in her mid-thirties. Tiffany shares her experience of her developing and changing symptoms as a call-to-action for viewers to take control of their health and never give up, even when things seem hopeless.
Journey to a Diagnosis (Ep 82, on video) ● Answers how to take part; how it is diagnosed ● Journey stage Every step ● Topic Awareness days and campaigns; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Journey to a Diagnosis (Ep 82, on video): https://www.youtube.com/watch?v=24tCNGWv_zY
February 2023 Community Chat: How Can Our Loved Ones Support Us Through Our Ai Arthritis Disease?
To watch this video with all the comments, please watch on our Facebook Page.
February 2023 Community Chat: How Can Our Loved Ones Support Us Through Our Ai Arthritis Disease? ● Answers what I can do myself day to day ● Journey stage Care Partners ● Topic Living with it day to day; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for February 2023 Community Chat: How Can Our Loved Ones Support Us Through Our Ai Arthritis Disease?: https://www.youtube.com/watch?v=ohAcXUO4AUw
Patient Diagnosis Story (Ep 82, on video)
This video follows Leila's journey with lupus, a chronic autoimmune disease. Leila's diagnosis journey started at the age of eight with immunothrombocytopenia (ITP), which eventually led to her diagnosis of lupus. She shares her experience of managing her symptoms as a college student and learning self-care.
Patient Diagnosis Story (Ep 82, on video) covers conditions and terms also written as SLE or systemic lupus erythematosus.
Patient Diagnosis Story (Ep 82, on video) ● Answers what I can do myself day to day; how it is diagnosed ● Disease Lupus ● Journey stage Every step ● Topic Living with it day to day; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Patient Diagnosis Story (Ep 82, on video): https://www.youtube.com/watch?v=FtHSRXw0N4I
Main Episode, #82: Auto + Inflammatory Arthritis: Diagnosis, Please!
Join us for this episode where the co-hosts, Tiffany and Leila, share their personal journeys of being diagnosed with Ai Arthritis diseases. Tune in to hear how their journey of being diagnosed and misdiagnosed and the lessons they learned throughout the process.
Main Episode, #82: Auto + Inflammatory Arthritis: Diagnosis, Please! ● Answers how it is diagnosed; what I can do myself day to day ● Journey stage Every step ● Topic Living with it day to day; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Main Episode, #82: Auto + Inflammatory Arthritis: Diagnosis, Please!: https://www.youtube.com/watch?v=se4MufWTzmg
Making a Good Experience (Ep 81, on video)
A good rheumatologist visit experience is one that is built on trust, understanding, and communication. The rheumy should take the time to listen to the patient and answer their questions in a way that is clear and understandable. By following these tips, doctors can create an atmosphere of trust and understanding with their patients, and ensure that they are being heard.
Making a Good Experience (Ep 81, on video) ● Answers what to say, and to whom; what it is ● Journey stage Every step ● Topic Talking to your care team; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Making a Good Experience (Ep 81, on video): https://www.youtube.com/watch?v=Y21d9E_Jvjs
Gaining Patient's Trust (Ep 81, on video)
Rheumatologists play an important role in our health and wellbeing so it is essential they listen to their patients carefully and attentively during office visits. Listening to a patient’s experience and understanding their concerns can help doctors make an accurate diagnosis and provide appropriate treatment. What experiences either good or bad have you had during an office visit? This is a.
Gaining Patient's Trust (Ep 81, on video) ● Answers what the treatments are and how they work; how it is diagnosed ● Journey stage Every step ● Topic Treatment and medication; Talking to your care team ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Gaining Patient's Trust (Ep 81, on video): https://www.youtube.com/watch?v=DAoICP0nEWc
From Bad to Good (Ep 81, on video)
There is so much we can learn for patients and doctors experiences in the office to improve patient care. During this episode, patients and rheumies share examples of what went wrong and what went right in office visits. From these experiences, both patients and rheumies can learn so much to improve communication. This is a.
From Bad to Good (Ep 81, on video) ● Answers what to say, and to whom ● Journey stage Every step ● Topic Talking to your care team; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for From Bad to Good (Ep 81, on video): https://www.youtube.com/watch?v=-uG6hYyicM0
January 2023 Community Chat: Goal Setting for the New Year
To watch this video with all the comments, please watch on our Instagram.
January 2023 Community Chat: Goal Setting for the New Year ● Answers what I can do myself day to day ● Journey stage Every step ● Topic Living with it day to day; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for January 2023 Community Chat: Goal Setting for the New Year: https://www.youtube.com/watch?v=Ghb5bA2R_M0
Biosimilars and Continuity of Care with Dr. Jane Barratt (Ep 77, on video)
What is the impact of biosimilar policies (legislation) on patient's continuity of care? It is very important for patients to be informed on all policies and information to ensure they can be apart of the conversation with their doctor to chose the best possible care! This is a.
Biosimilars and Continuity of Care with Dr. Jane Barratt (Ep 77, on video) covers conditions and terms also written as interchangeable biosimilar.
Biosimilars and Continuity of Care with Dr. Jane Barratt (Ep 77, on video) ● Answers what the treatments are and how they work; what it is ● Journey stage Every step ● Topic Treatment and medication; Talking to your care team ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Biosimilars and Continuity of Care with Dr. Jane Barratt (Ep 77, on video): https://www.youtube.com/watch?v=nvc8e-xLdT4
Main Episode, #80: RheumyRounds (Part One) - The Good, The Bad & The Ugly: Office Visits
Welcome to another Rheumy Rounds episode where we bring Rheumatologists and patients to the table. During this episode, we are going to be discussing the good, the bad and the ugly in office visits. In an effort to improve office visits and patient experiences, we are creating an Ebook with a collection of all your experiences.
Main Episode, #80: RheumyRounds (Part One) - The Good, The Bad & The Ugly: Office Visits ● Answers what to say, and to whom ● Journey stage Every step ● Topic Talking to your care team; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Main Episode, #80: RheumyRounds (Part One) - The Good, The Bad & The Ugly: Office Visits: https://www.youtube.com/watch?v=-qK8WoRrWtA
Main Episode, #81: RheumyRounds (Part Two) - The Good, The Bad & The Ugly: Office Visits
In Part Two of this RheumyRounds episode, Tiffany Westrich-Robertson (axial spondyloarthritis) and Deb Constien (rheumatoid arthritis) are joined by rheumatologist Dr. Al Kim "Al" (also Tiffany's rheumy) to highlight the importance of communication, compassion and openness in bettering patient-doctor relationships.
Main Episode, #81: RheumyRounds (Part Two) - The Good, The Bad & The Ugly: Office Visits covers conditions and terms also written as axSpA, ankylosing spondylitis, non-radiographic axSpA or RA.
Main Episode, #81: RheumyRounds (Part Two) - The Good, The Bad & The Ugly: Office Visits ● Answers what to say, and to whom ● Disease Axial Spondyloarthritis; Rheumatoid Arthritis ● Journey stage Every step ● Topic Talking to your care team; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Main Episode, #81: RheumyRounds (Part Two) - The Good, The Bad & The Ugly: Office Visits: https://www.youtube.com/watch?v=tPz4Y4hnvT0
December 2022 Community Chat: How to Survive the Holidays with an Ai Arthritis Disease
To view the chat with comments please watch on Facebook: fb.watch/ibh33sX7d-/ To see our takeaways from this chat and plans for future chats, please visit our chats page on our website: ai arthritis .org/chats We will be having these chats every 15th of the month with rotating times and rotating platforms.
December 2022 Community Chat: How to Survive the Holidays with an Ai Arthritis Disease ● Answers how long it lasts and what to expect ● Journey stage Every step ● Topic Symptoms and flares; Living with it day to day ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for December 2022 Community Chat: How to Survive the Holidays with an Ai Arthritis Disease: https://www.youtube.com/watch?v=ujOQXDZH5t4
Should Patients Attend Conferences? (Ep 79, on video)
Attending research conferences are very beneficial for patients because not only can you learn a massive amount but you can also participate to share a patient perspective. Patients are experts in their body and sharing your experiences and knowledge is valuable information to share to medical professionals, researchers and other patients as well.
Should Patients Attend Conferences? (Ep 79, on video) ● Answers what the research says; what it feels like ● Journey stage Every step ● Topic Research and conferences; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Should Patients Attend Conferences? (Ep 79, on video): https://www.youtube.com/watch?v=QWVc4m3-sas
What to Consider Before Joining A Clinical Trial (Ep 79, on video)
When is it right to participate in a clinical trial and what are some of the important factors you should consider? Before joining a clinical trial, you want to make sure you consider multiple factors such as your continuity of care, lifestyle, mental health and your accessibility.
What to Consider Before Joining A Clinical Trial (Ep 79, on video) ● Answers what I can do myself day to day; what the research says ● Journey stage Every step ● Topic Living with it day to day; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for What to Consider Before Joining A Clinical Trial (Ep 79, on video): https://www.youtube.com/watch?v=5K4ToF0sEL8
More Patients Need To Be Involved In Research (Ep 79, on video)
It is so important that patients are involved in research! Because so many patients are living with comorbidities, most diagnoses are complex. Therefore, the more people who participate in research the more we can learn. With every research study, we are able to get more answers into the best treatments for the varying Ai Arthritis diseases.
More Patients Need To Be Involved In Research (Ep 79, on video) ● Answers what the research says; how long it lasts and what to expect ● Journey stage Every step ● Topic Research and conferences; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for More Patients Need To Be Involved In Research (Ep 79, on video): https://www.youtube.com/watch?v=ubTl29fK1n4
Why Diversity Is Needed In Clinical Trials (Ep 79, on video)
Most people who participate in clinical trials are of white descent. However, Ai Arthritis diseases affect people of all ethnicities and demographics. More diversity needs to be included in clinical trials and research to help find better solutions for specific diverse groups who can be affected greater by certain conditions.
Why Diversity Is Needed In Clinical Trials (Ep 79, on video) ● Answers what the research says ● Journey stage Every step ● Topic Research and conferences; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Why Diversity Is Needed In Clinical Trials (Ep 79, on video): https://www.youtube.com/watch?v=yiA1ydT9RK0
Diversity, Equity, Inclusion and Accessibility Affect Healthcare (Ep 78, on video)
In this month’s podcast episode, Tiffany from Ai Arthritis , Estela Mata from Looms 4 Lupus, and Charis Hill, disability activist come together to discuss this hot topic and the ways in which each factor affects patients greatly.
Diversity, Equity, Inclusion and Accessibility Affect Healthcare (Ep 78, on video) covers conditions and terms also written as SLE or systemic lupus erythematosus.
Diversity, Equity, Inclusion and Accessibility Affect Healthcare (Ep 78, on video) ● Answers what the treatments are and how they work ● Disease Lupus ● Journey stage Every step ● Topic Treatment and medication; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Diversity, Equity, Inclusion and Accessibility Affect Healthcare (Ep 78, on video): https://www.youtube.com/watch?v=xJhGr0rkGjk
Patients Should Be Seen As Equal Stakeholders (Ep 78, on video)
Patients are more than just participants in research, they should be seen as equal stakeholders. In this month’s podcast episode, Tiffany from Ai Arthritis , Estela Mata from Looms 4 Lupus, and Charis Hill, disability activist come together to discuss this hot topic and the ways in which each factor affects patients greatly.
Patients Should Be Seen As Equal Stakeholders (Ep 78, on video) covers conditions and terms also written as SLE or systemic lupus erythematosus.
Patients Should Be Seen As Equal Stakeholders (Ep 78, on video) ● Answers what the research says ● Disease Lupus ● Journey stage Every step ● Topic Research and conferences; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Patients Should Be Seen As Equal Stakeholders (Ep 78, on video): https://www.youtube.com/watch?v=1INj7lN1l8A
What is DEIA? (Diversity, Equity, Inclusion, and Accessibility) (Ep 78, on video)
In this month’s podcast Every aspect of what makes a person a person is how they navigate healthcare. No matter what a patient’s culture is, how they identify or their financial status should affect the way they receive healthcare. Patients should feel included, on an equal playing field and safe with their physician care and treatment plans.
What is DEIA? (Diversity, Equity, Inclusion, and Accessibility) (Ep 78, on video) ● Answers what it is; what the treatments are and how they work ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for What is DEIA? (Diversity, Equity, Inclusion, and Accessibility) (Ep 78, on video): https://www.youtube.com/watch?v=zLjKMbioz1s
November 2022 | Ai Arthritis Community Chat: Beyond Borders
This month our co-founder Kelly is joined by, Public Policy Manager Lindsey, and friend and host of Ai Arthritis Voices 360 Effie. They Chat about our upcoming eBook, "The Good, the Bad, and the Ugly". This project will collect your experiences along with others to see as examples of how to improve or model the best communication practices for people impacted by Ai Arthritis conditions.
November 2022 | Ai Arthritis Community Chat: Beyond Borders ● Answers how to take part; what to say, and to whom ● Journey stage Every step ● Topic Advocacy and policy; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for November 2022 | Ai Arthritis Community Chat: Beyond Borders: https://www.youtube.com/watch?v=Ml4z92vdgRI
Pathway of Patient Engagement in Rheumatology Research
Learn more about the 1st tool designed by an international team of stakeholders (patient research partners, researchers, industry, regulatory groups, coalition leaders) who have participated in pivotal milestones that led to current day patient-inclusion in rheumatology research best practices, guidance, Concepts of Patient Inclusion (CoPIs).
Pathway of Patient Engagement in Rheumatology Research ● Answers what the research says ● Journey stage Every step ● Topic Research and conferences; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Pathway of Patient Engagement in Rheumatology Research: https://www.youtube.com/watch?v=MVe--o0DP2w
What is DEIA? (Ep 78, on video)
What is DEIA? (Ep 78, on video) is in our video library, and no description has been written for it yet.
What is DEIA? (Ep 78, on video) ● Answers what it is; how to take part ● Journey stage Every step ● Topic Advocacy and policy; Disease information ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for What is DEIA? (Ep 78, on video): https://www.youtube.com/watch?v=ZTZsT9fEryY
DEIA Effects Healthcare (Ep 78, on video)
DEIA Effects Healthcare (Ep 78, on video) is in our video library, and no description has been written for it yet.
DEIA Effects Healthcare (Ep 78, on video) ● Answers how to take part ● Journey stage Every step ● Topic Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for DEIA Effects Healthcare (Ep 78, on video): https://www.youtube.com/watch?v=9YRp7ZnzR80
Patients as Equal Stakeholders (Ep 78, on video)
Patients as Equal Stakeholders (Ep 78, on video) is in our video library, and no description has been written for it yet.
Patients as Equal Stakeholders (Ep 78, on video) ● Answers how to take part ● Journey stage Every step ● Topic Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Patients as Equal Stakeholders (Ep 78, on video): https://www.youtube.com/watch?v=_mPK7kb9kJ0
Still’s Disease Research 2022 News & Shared-Decision Making for Optimal Health
Join us and a panel of leading experts in Still's Disease. What is Still's? What are the diagnostic and disease management challenges, including information on Macrophage Activation Syndrome (MAS) - and what can you do to improve your healthcare journey?
Still’s Disease Research 2022 News & Shared-Decision Making for Optimal Health covers conditions and terms also written as Stills Disease, adult-onset Still's disease, AOSD, systemic juvenile idiopathic arthritis or sJIA.
Still’s Disease Research 2022 News & Shared-Decision Making for Optimal Health ● Answers what the treatments are and how they work; how to take part ● Disease Macrophage Activation Syndrome (associated condition); Still's Disease ● Journey stage Every step ● Topic Treatment and medication; Talking to your care team ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Still’s Disease Research 2022 News & Shared-Decision Making for Optimal Health: https://www.youtube.com/watch?v=ePRFh0n3qbQ
October 2022 | Ai Arthritis Community Chat: Beyond Borders
This month, our volunteer Deb joins staff members Tiffany and Katie to talk about disease management and the Ai Arthritis "Go With Us" program! If you are interested in participating in "Go With Us" or participating in any of our other initiatives, sign up for the Ai Arthritis Voices free service at.
October 2022 | Ai Arthritis Community Chat: Beyond Borders ● Answers how to take part ● Journey stage Every step ● Topic Advocacy and policy; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for October 2022 | Ai Arthritis Community Chat: Beyond Borders: https://www.youtube.com/watch?v=0YAGxJxtY4A
Rheumatic Conditions Do Not Have Worse Outcomes With COVID (Ep 76, on video)
COVID research is continually changing as we learn more about the virus. However as more data has been collected, it is showing that patients with rheumatic conditions are not at a higher risk than others. Therefore, we need to work on not living in fear, using our best judgments on what we are comfortable with, and remember to take care of ourselves.
Rheumatic Conditions Do Not Have Worse Outcomes With COVID (Ep 76, on video) ● Answers what the treatments are and how they work; what the research says ● Journey stage Every step ● Topic Treatment and medication; Living with it day to day ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Rheumatic Conditions Do Not Have Worse Outcomes With COVID (Ep 76, on video): https://www.youtube.com/watch?v=5FEtAJV55-Q
First Steps When Being Told You Are Switching To A Biosimilar (Ep 77, on video)
If you are told you will be switched to a biosimilar, listen to some questions you can ask your doctor. Also, check with organizations and patient communities like Ai Arthritis to find out more about biosimilars. And if you are unhappy about the biosimilar switch, you need to make your voice heard.
First Steps When Being Told You Are Switching To A Biosimilar (Ep 77, on video) covers conditions and terms also written as interchangeable biosimilar.
First Steps When Being Told You Are Switching To A Biosimilar (Ep 77, on video) ● Answers what the treatments are and how they work ● Journey stage Every step ● Topic Treatment and medication; Talking to your care team ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for First Steps When Being Told You Are Switching To A Biosimilar (Ep 77, on video): https://www.youtube.com/watch?v=Re-y51Ls31Q
What is a Biosimilar? (Ep 77, on video)
Biosimilars are not identical but are tested to show there are not additional side effects, reactions, etc. They go through complex testing to show they are made the same way with similar outcomes but by a different company's process. Do you feel comfortable with biosimilars? What questions do you have? This is a.
What is a Biosimilar? (Ep 77, on video) covers conditions and terms also written as interchangeable biosimilar.
What is a Biosimilar? (Ep 77, on video) ● Answers what it is; how it is diagnosed ● Journey stage Every step ● Topic Getting diagnosed; Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for What is a Biosimilar? (Ep 77, on video): https://www.youtube.com/watch?v=POcloXvMdpE
Ep, 77 Biosimilar vs Generic
A biosimilar is not the same as being switched to a generic medication. Because biologics/biosimilars are made from living organisms and not machine made, no two can be 100% the same. Dr. Ralph McKibbin breaks down what a biosimilar is and explains they are just as good as your original medication.
Ep, 77 Biosimilar vs Generic covers conditions and terms also written as interchangeable biosimilar.
Ep, 77 Biosimilar vs Generic ● Answers what the treatments are and how they work ● Journey stage Every step ● Topic Treatment and medication; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Ep, 77 Biosimilar vs Generic: https://www.youtube.com/watch?v=8XmMh2f7t-8
Transparency of Biosimilars (Ep 77, on video)
Patients who are asked to use biosimilars should be introduced to them with good education so they feel comfortable that they are as safe and effective as the original biologic. Biosimilars present an opportunity to have more treatment options for the patients and physicians to discuss and agree on together. Do you feel comfortable switching to a biosimilar? This is a.
Transparency of Biosimilars (Ep 77, on video) covers conditions and terms also written as interchangeable biosimilar.
Transparency of Biosimilars (Ep 77, on video) ● Answers what the treatments are and how they work ● Journey stage Every step ● Topic Treatment and medication; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Transparency of Biosimilars (Ep 77, on video): https://www.youtube.com/watch?v=zS6yujbwinw
September 2022 | Ai Arthritis Community Chat: Beyond Borders
A casual monthly conversation with Ai Arthritis staff and some of our volunteers (also affected by Ai Arthritis diseases) where we can chat with you, talk about a hot topic or two, and tell you about some of our programs and impact. Happening month on the 15th, register now at.
September 2022 | Ai Arthritis Community Chat: Beyond Borders ● Answers how to take part ● Journey stage Every step ● Topic Advocacy and policy; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for September 2022 | Ai Arthritis Community Chat: Beyond Borders: https://www.youtube.com/watch?v=_6p3yTliT7o
Comorbidities & Targeting Chronic Inflammation
In this interview with Diem Nguyen, CEO of Xalud Therapeutics, Ai Arthritis learns more about their work to treat inflammation by targeting interleukin-10 (IL-10). While their work is not specific to Autoimmune / Autoinflammatory Arthritis disease main diagnoses, it is relevant to comorbidities (osteoarthritis, neuropathic pain, dermis, ophalmalgic/eye, gastrointestinal) inflammation.
Comorbidities & Targeting Chronic Inflammation ● Answers how long it lasts and what to expect ● Journey stage Every step ● Topic Symptoms and flares; Family, pregnancy and parenting ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Comorbidities & Targeting Chronic Inflammation: https://www.youtube.com/watch?v=NJU75MB35T0
Whole Person Care Plan Using Virtual Platforms
At Ai Arthritis , we believe in matching patients to the best therapeutic options for their unique needs, which includes access to a great healthcare team who is considerate of personalized needs.
Whole Person Care Plan Using Virtual Platforms ● Answers what to say, and to whom ● Journey stage Every step ● Topic Talking to your care team; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Whole Person Care Plan Using Virtual Platforms: https://www.youtube.com/watch?v=7_NnDcC-HKE
Gene Therapy 101 - What Patients Should Understand
At BIO International 2022, Ai Arthritis CEO, Tiffany Westrich-Robertson, met with Kevin Curran PhD, BioTechnology Expert at Biotech Primer, who presented a session called Gene Therapy 101 for Non-Scientists.
Gene Therapy 101 - What Patients Should Understand ● Answers how to take part; what the treatments are and how they work ● Journey stage Every step ● Topic Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Gene Therapy 101 - What Patients Should Understand: https://www.youtube.com/watch?v=WJAoBNG1ako
Lupus Biomarker (IFN-1) Test for Matching Treatments in Precision Medicine
As part of our work to advance in Ai Arthritis diseases (in this case ) - and in conjunction with our Ai Arthritis Voices 360 Podcast, our CEO talks with Jamie Ready, Manager of Business Development at DxTerity. In lupus, over 50% of patients have high biomarker IFN-1, which means it's possible an IFN-1 blocking treatment may show good results in these patients.
Lupus Biomarker (IFN-1) Test for Matching Treatments in Precision Medicine covers conditions and terms also written as SLE or systemic lupus erythematosus.
Lupus Biomarker (IFN-1) Test for Matching Treatments in Precision Medicine ● Answers how it is diagnosed; what the treatments are and how they work ● Disease Lupus ● Journey stage Every step ● Topic Getting diagnosed; Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Lupus Biomarker (IFN-1) Test for Matching Treatments in Precision Medicine: https://www.youtube.com/watch?v=xbS9J8TnspM
Diagnosis & Matching Treatments: What You & Your Doctor Can Do (Personalized Medicine)
Ai Arthritis CEO speaks with Daryl Pritchard PhD, Senior VP of Science Policy at the Personalized Medicine Coalition (PMC) - of which Ai Arthritis has been a member for several years. Precision medicine can help match treatments to the individual based on unique biologic markers. While this is very developed in cancer, this is still in the research phase for Ai Arthritis diseases.
Diagnosis & Matching Treatments: What You & Your Doctor Can Do (Personalized Medicine) ● Answers what the treatments are and how they work; what the research says ● Journey stage Every step ● Topic Treatment and medication; Talking to your care team ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Diagnosis & Matching Treatments: What You & Your Doctor Can Do (Personalized Medicine): https://www.youtube.com/watch?v=c9nSonbi7hE
Ethical Importance of Counting Subgroups in Research
Ai Arthritis CEO talks with Alison Bateman-House, PhD, MPH, MA, Assistant Professor in the Division of Medical Ethics, NYU Grossman School of Medicine at the 2022 BIO International Conference and in conjunction with our Ai Arthritis Voices 360 Podcast.
Ethical Importance of Counting Subgroups in Research ● Answers what the treatments are and how they work; what the research says ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Ethical Importance of Counting Subgroups in Research: https://www.youtube.com/watch?v=n-GyQDBTKlA
Public Debrief Two from #EULAR2022 - Precision Medicine, Ageism, Fatigue, and more
For our second public and patient-led debrief, we gathered together again to hold a conversation with our "Go With Us" team about the new advancements from.
Public Debrief Two from #EULAR2022 - Precision Medicine, Ageism, Fatigue, and more ● Answers how long it lasts and what to expect; what the research says ● Journey stage Every step ● Topic Symptoms and flares; Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Public Debrief Two from #EULAR2022 - Precision Medicine, Ageism, Fatigue, and more: https://www.youtube.com/watch?v=vf0Lcjvcxvg
Ai Arthritis ' first public debrief of #EULAR2022: Drug-free Remission, Alternative Therapies and more
Our first ever public debrief! We gathered together to hold a conversation with our "Go With Us" team about the new advancements from.
Ai Arthritis ' first public debrief of #EULAR2022: Drug-free Remission, Alternative Therapies and more ● Answers what the treatments are and how they work; what the research says ● Journey stage Remission ● Topic Treatment and medication; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Ai Arthritis ' first public debrief of #EULAR2022: Drug-free Remission, Alternative Therapies and more: https://www.youtube.com/watch?v=Hou0oG9wggw
USA Medicare/Medicaid - What We Don't Like: Patient Perspectives (Ep 72, on video)
The Centers for Medicare and Medicaid Services (CMS) recognize a need for program changes and Ai Arthritis , who is led by patient voices, wants to invite patients using these services to weigh in. But first, what are patients using Medicare/Medicaid most frustrated about? What are YOU frustrated about? It's your time to pull up a seat at the table and weigh in.
USA Medicare/Medicaid - What We Don't Like: Patient Perspectives (Ep 72, on video) ● Answers how to take part; what to do when cost or coverage blocks treatment ● Journey stage Every step ● Topic Advocacy and policy; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for USA Medicare/Medicaid - What We Don't Like: Patient Perspectives (Ep 72, on video): https://www.youtube.com/watch?v=xVAbQN8b4cI
Tiffany & Katie talk about volunteering with Ai Arthritis
In this clip, used in part in our podcast Episode , Tiffany and Katie talk about volunteering with Ai Arthritis . Learn all about volunteering with Ai Arthritis in this Voices 360 podcast episode: ai arthritis .org/podcast-ep69.
Tiffany & Katie talk about volunteering with Ai Arthritis ● Answers what it is; how to take part ● Journey stage Every step ● Topic Disease information ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Tiffany & Katie talk about volunteering with Ai Arthritis : https://www.youtube.com/watch?v=OQ3XwosdCg4
Ai Arthritis Volunteer Interviews: Pooja Panchamia
Diagnosed with RA, Pooja has made it her mission to empower patients. A host of the Ai Arthritis Voices 360 Podcast, and leader of her own advocacy group: FieryBones , Pooja understands the power of the patient voice which is why she volunteers for Ai Arthritis and why we love working with her. Volunteers mean the world to us! They are at the heart of everything we do.
Ai Arthritis Volunteer Interviews: Pooja Panchamia ● Answers how to take part; how it is diagnosed ● Journey stage Every step ● Topic Advocacy and policy; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Ai Arthritis Volunteer Interviews: Pooja Panchamia: https://www.youtube.com/watch?v=uefEFUFOjPY
Ai Arthritis Volunteer Interviews: Patrice Johnson
Meet Patrice! You may know her from our podcast, and she is a regular participant in our “Go with Us” scientific conference program. Diagnosed with RA, she is driven by her compassion to help others on their journey, and we are so glad to have her on our side. Volunteers mean the world to us! They are at the heart of everything we do. If you are interested in joining the family, visit.
Ai Arthritis Volunteer Interviews: Patrice Johnson ● Answers what the research says; how to take part ● Journey stage Every step ● Topic Research and conferences; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Ai Arthritis Volunteer Interviews: Patrice Johnson: https://www.youtube.com/watch?v=-L5vuvbttU8
Ai Arthritis Volunteer Interviews: Leslie Rott Welsbacher
Mother, doctor, and double diagnosed with Lupus and RA, Leslie still finds time to volunteer with Ai Arthritis . She hopes to continue to volunteer with us in the future because she appreciates who we focus on the latest research and putting patients first. We appreciate her so much for making the time to volunteer with us. Volunteers mean the world to us! They are at the heart of everything we do.
Ai Arthritis Volunteer Interviews: Leslie Rott Welsbacher covers conditions and terms also written as SLE or systemic lupus erythematosus.
Ai Arthritis Volunteer Interviews: Leslie Rott Welsbacher ● Answers what I can do myself day to day; how to take part ● Disease Lupus ● Journey stage Every step ● Topic Family, pregnancy and parenting; Talking to your care team ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Ai Arthritis Volunteer Interviews: Leslie Rott Welsbacher: https://www.youtube.com/watch?v=WIa9LBWeSYY
Ai Arthritis Volunteer Interviews: Judy
With nearly a decade of dedication, Judy has turned her passion for Ai Arthritis into action. Over her many years of service, she has been a part of nearly every project. From the Ai Arthritis Voices 360 Podcast, A Community Team, the Ai Arthritis Voices Program, to celebrating World Ai Arthritis Day, we are grateful for her support. Volunteers mean the world to us!
Ai Arthritis Volunteer Interviews: Judy ● Answers how to take part ● Journey stage Every step ● Topic Awareness days and campaigns; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Ai Arthritis Volunteer Interviews: Judy: https://www.youtube.com/watch?v=dn9vGvHGlOU
Ai Arthritis Volunteer Interviews: Deb Constien
Volunteers mean the world to us! They are at the heart of everything we do. In this video, we introduce you to one of our longest serving and most dedicated volunteer Deb and the excellent work that she does while living RA. We are incredibly lucky to benefit from her support. If you are interested in joining the family, visit.
Ai Arthritis Volunteer Interviews: Deb Constien ● Answers what to do when cost or coverage blocks treatment; how to take part ● Journey stage Every step ● Topic Work, school and money; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Ai Arthritis Volunteer Interviews: Deb Constien: https://www.youtube.com/watch?v=2h5Uftc4au8
Actemra Shortage, Clip from Episode 67: Making Informed Decisions
In this clip from Ai Arthritis Voices 360 episode 67: Making Informed Decisions in Unprecedented Times, Tiffany, Deb, and Katie discuss the Actemra shortage. They explain why getting vaccinated is so important--not just for your safety, but also for everyone else's, too. They also touch on the Press Release that Ai Arthritis wrote in October 2022.
Actemra Shortage, Clip from Episode 67: Making Informed Decisions ● Answers what the treatments are and how they work; how to take part ● Journey stage Every step ● Topic Treatment and medication; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Actemra Shortage, Clip from Episode 67: Making Informed Decisions: https://www.youtube.com/watch?v=K10p_DZfHrw
Locating Credible Resources, Clip from Episode 67: Making Informed Decisions
In this clip from Ai Arthritis Voices 360 episode 67: Making Informed Decisions in Unprecedented Times, Tiffany, Deb, and Katie discuss how to find credible resources.
Locating Credible Resources, Clip from Episode 67: Making Informed Decisions ● Answers how to take part ● Journey stage Every step ● Topic Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Locating Credible Resources, Clip from Episode 67: Making Informed Decisions: https://www.youtube.com/watch?v=eNEl00BepOk
#ACR21 Debrief #5 Psoriatic Arthritis, Heart Health & JIA, and Mental Health
This year Ai Arthritis is delighted to be attending with Effie Koliopoulos (aka @RisingAboveRa on Twitter), Stephanie Aleite (aka @theYoungFace_RA on Twitter), as part of our "Go With Us" program, and of course our regulars Co-Founder & CEO Tiffany (@TiffWRobertson), dedicated volunteer extraordinaire Deb (@DebConstien), and Katie (who is not on Twitter).
#ACR21 Debrief #5 Psoriatic Arthritis, Heart Health & JIA, and Mental Health covers conditions and terms also written as juvenile arthritis or PsA.
#ACR21 Debrief #5 Psoriatic Arthritis, Heart Health & JIA, and Mental Health ● Answers what I can do myself day to day; what the research says ● Disease Juvenile Idiopathic Arthritis; Psoriatic Arthritis ● Journey stage Every step ● Topic Living with it day to day; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR21 Debrief #5 Psoriatic Arthritis, Heart Health & JIA, and Mental Health: https://www.youtube.com/watch?v=QKNj2A8w7jI
#ACR21 Debrief #5: Exercise & Cardiovascular Health in Children with JIA
This year Ai Arthritis is delighted to be attending with Effie Koliopoulos (aka @RisingAboveRa on Twitter), Stephanie Aleite (aka @theYoungFace_RA on Twitter), as part of our "Go With Us" program, and of course our regulars Co-Founder & CEO Tiffany (@TiffWRobertson), dedicated volunteer extraordinaire Deb (@DebConstien), and Katie (who is not on Twitter).
#ACR21 Debrief #5: Exercise & Cardiovascular Health in Children with JIA covers conditions and terms also written as juvenile arthritis.
#ACR21 Debrief #5: Exercise & Cardiovascular Health in Children with JIA ● Answers what I can do myself day to day; what the research says ● Disease Juvenile Idiopathic Arthritis ● Journey stage Every step ● Topic Living with it day to day; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR21 Debrief #5: Exercise & Cardiovascular Health in Children with JIA: https://www.youtube.com/watch?v=2VhhMkJWvQQ
#ACR21 Debrief #5 Mental Health and Pediatric Rheumatology
This year Ai Arthritis is delighted to be attending with Effie Koliopoulos (aka @RisingAboveRa on Twitter), Stephanie Aleite (aka @theYoungFace_RA on Twitter), as part of our "Go With Us" program, and of course our regulars Co-Founder & CEO Tiffany (@TiffWRobertson), dedicated volunteer extraordinaire Deb (@DebConstien), and Katie (who is not on Twitter).
#ACR21 Debrief #5 Mental Health and Pediatric Rheumatology ● Answers what I can do myself day to day; what the research says ● Journey stage Every step ● Topic Living with it day to day; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR21 Debrief #5 Mental Health and Pediatric Rheumatology: https://www.youtube.com/watch?v=vCsrvB8kh94
#ACR21 Debrief #5 Expanded Treatment Options for Psoriatic Arthritis
This year Ai Arthritis is delighted to be attending with Effie Koliopoulos (aka @RisingAboveRa on Twitter), Stephanie Aleite (aka @theYoungFace_RA on Twitter), as part of our "Go With Us" program, and of course our regulars Co-Founder & CEO Tiffany (@TiffWRobertson), dedicated volunteer extraordinaire Deb (@DebConstien), and Katie (who is not on Twitter).
#ACR21 Debrief #5 Expanded Treatment Options for Psoriatic Arthritis covers conditions and terms also written as PsA.
#ACR21 Debrief #5 Expanded Treatment Options for Psoriatic Arthritis ● Answers what the treatments are and how they work; what the research says ● Disease Psoriatic Arthritis ● Journey stage Every step ● Topic Treatment and medication; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR21 Debrief #5 Expanded Treatment Options for Psoriatic Arthritis: https://www.youtube.com/watch?v=T51Vjm4xGe0
#ACR21 Debrief #5 LEARNING MOMENT! The 7 Classifications of JIA
This year Ai Arthritis is delighted to be attending with Effie Koliopoulos (aka @RisingAboveRa on Twitter), Stephanie Aleite (aka @theYoungFace_RA on Twitter), as part of our "Go With Us" program, and of course our regulars Co-Founder & CEO Tiffany (@TiffWRobertson), dedicated volunteer extraordinaire Deb (@DebConstien), and Katie (who is not on Twitter).
#ACR21 Debrief #5 LEARNING MOMENT! The 7 Classifications of JIA covers conditions and terms also written as juvenile arthritis.
#ACR21 Debrief #5 LEARNING MOMENT! The 7 Classifications of JIA ● Answers how to take part; what the research says ● Disease Juvenile Idiopathic Arthritis ● Journey stage Every step ● Topic Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR21 Debrief #5 LEARNING MOMENT! The 7 Classifications of JIA: https://www.youtube.com/watch?v=Sb4ptbT4P1w
#ACR21 Debrief #5 Current Research Landscape for Psoriatic Arthritis
This year Ai Arthritis is delighted to be attending with Effie Koliopoulos (aka @RisingAboveRa on Twitter), Stephanie Aleite (aka @theYoungFace_RA on Twitter), as part of our "Go With Us" program, and of course our regulars Co-Founder & CEO Tiffany (@TiffWRobertson), dedicated volunteer extraordinaire Deb (@DebConstien), and Katie (who is not on Twitter).
#ACR21 Debrief #5 Current Research Landscape for Psoriatic Arthritis covers conditions and terms also written as PsA.
#ACR21 Debrief #5 Current Research Landscape for Psoriatic Arthritis ● Answers what the research says; how to take part ● Disease Psoriatic Arthritis ● Journey stage Every step ● Topic Research and conferences; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR21 Debrief #5 Current Research Landscape for Psoriatic Arthritis: https://www.youtube.com/watch?v=2NZFTJXkFiY
#ACR21 Debrief #4 E-Health, Adherence, and Brain Health with Lupus & RA Studies
This year Ai Arthritis is delighted to be attending with Effie Koliopoulos (aka @RisingAboveRa on Twitter), Stephanie Aleite (aka @theYoungFace_RA on Twitter), as part of our "Go With Us" program, and of course our regulars Co-Founder & CEO Tiffany (@TiffWRobertson), dedicated volunteer extraordinaire Deb (@DebConstien), and Katie (who is not on Twitter).
#ACR21 Debrief #4 E-Health, Adherence, and Brain Health with Lupus & RA Studies covers conditions and terms also written as SLE or systemic lupus erythematosus.
#ACR21 Debrief #4 E-Health, Adherence, and Brain Health with Lupus & RA Studies ● Answers how to take part; what the research says ● Disease Lupus ● Journey stage Every step ● Topic Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR21 Debrief #4 E-Health, Adherence, and Brain Health with Lupus & RA Studies: https://www.youtube.com/watch?v=odFMphLGgwE
#ACR21 Debrief #4 Adherence - Overcoming Barriers
This year Ai Arthritis is delighted to be attending with Effie Koliopoulos (aka @RisingAboveRa on Twitter), Stephanie Aleite (aka @theYoungFace_RA on Twitter), as part of our "Go With Us" program, and of course our regulars Co-Founder & CEO Tiffany (@TiffWRobertson), dedicated volunteer extraordinaire Deb (@DebConstien), and Katie (who is not on Twitter).
#ACR21 Debrief #4 Adherence - Overcoming Barriers ● Answers what the treatments are and how they work; what the research says ● Journey stage Every step ● Topic Treatment and medication; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR21 Debrief #4 Adherence - Overcoming Barriers: https://www.youtube.com/watch?v=yBbEEwQlps0
#ACR21 Debrief #4 E-Health
This year Ai Arthritis is delighted to be attending with Effie Koliopoulos (aka @RisingAboveRa on Twitter), Stephanie Aleite (aka @theYoungFace_RA on Twitter), as part of our "Go With Us" program, and of course our regulars Co-Founder & CEO Tiffany (@TiffWRobertson), dedicated volunteer extraordinaire Deb (@DebConstien), and Katie (who is not on Twitter).
#ACR21 Debrief #4 E-Health ● Answers how to take part; what the research says ● Journey stage Every step ● Topic Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR21 Debrief #4 E-Health: https://www.youtube.com/watch?v=EUSRRLeBTR8
#ACR21 Debrief #4 Brain - Cognitive Dysfunction (Lupus & RA Studies)
This year Ai Arthritis is delighted to be attending with Effie Koliopoulos (aka @RisingAboveRa on Twitter), Stephanie Aleite (aka @theYoungFace_RA on Twitter), as part of our "Go With Us" program, and of course our regulars Co-Founder & CEO Tiffany (@TiffWRobertson), dedicated volunteer extraordinaire Deb (@DebConstien), and Katie (who is not on Twitter).
#ACR21 Debrief #4 Brain - Cognitive Dysfunction (Lupus & RA Studies) covers conditions and terms also written as SLE or systemic lupus erythematosus.
#ACR21 Debrief #4 Brain - Cognitive Dysfunction (Lupus & RA Studies) ● Answers how to take part; what the research says ● Disease Lupus ● Journey stage Every step ● Topic Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR21 Debrief #4 Brain - Cognitive Dysfunction (Lupus & RA Studies): https://www.youtube.com/watch?v=90AqdR4duw8
#ACR21 Debrief #2 Providing Patients with Support
This year Ai Arthritis is delighted to be attending with Effie Koliopoulos (aka @RisingAboveRa on Twitter), Stephanie Aleite (aka @theYoungFace_RA on Twitter), as part of our "Go With Us" program, and of course our regulars Co-Founder & CEO Tiffany (@TiffWRobertson), dedicated volunteer extraordinaire Deb (@DebConstien), and Katie (who is not on Twitter).
#ACR21 Debrief #2 Providing Patients with Support ● Answers how to take part; what the research says ● Journey stage Every step ● Topic Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR21 Debrief #2 Providing Patients with Support: https://www.youtube.com/watch?v=Y-GD4jqhjyY
#ACR21 Debrief #3 Alternative Therapies, Undifferentiated Connective Tissue Disease, and COVID-19
This year Ai Arthritis is delighted to be attending with Effie Koliopoulos (aka @RisingAboveRa on Twitter), Stephanie Aleite (aka @theYoungFace_RA on Twitter), as part of our "Go With Us" program, and of course our regulars Co-Founder & CEO Tiffany (@TiffWRobertson), dedicated volunteer extraordinaire Deb (@DebConstien), and Katie (who is not on Twitter).
#ACR21 Debrief #3 Alternative Therapies, Undifferentiated Connective Tissue Disease, and COVID-19 covers conditions and terms also written as UD or UCTD.
#ACR21 Debrief #3 Alternative Therapies, Undifferentiated Connective Tissue Disease, and COVID-19 ● Answers what the treatments are and how they work; what the research says ● Disease Undifferentiated Disease ● Journey stage Every step ● Topic Treatment and medication; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR21 Debrief #3 Alternative Therapies, Undifferentiated Connective Tissue Disease, and COVID-19: https://www.youtube.com/watch?v=1_4Unppe0J4
#ACR21 Debrief #3 - Preclinical RA: Can We Stop RA?
This year Ai Arthritis is delighted to be attending with Effie Koliopoulos (aka @RisingAboveRa on Twitter), Stephanie Aleite (aka @theYoungFace_RA on Twitter), as part of our "Go With Us" program, and of course our regulars Co-Founder & CEO Tiffany (@TiffWRobertson), dedicated volunteer extraordinaire Deb (@DebConstien), and Katie (who is not on Twitter).
#ACR21 Debrief #3 - Preclinical RA: Can We Stop RA? ● Answers how to take part; what the research says ● Journey stage Every step ● Topic Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR21 Debrief #3 - Preclinical RA: Can We Stop RA?: https://www.youtube.com/watch?v=1jF4T5bgXdY
#ACR21 Debrief #3 - Alternative Therapies
This year Ai Arthritis is delighted to be attending with Effie Koliopoulos (aka @RisingAboveRa on Twitter), Stephanie Aleite (aka @theYoungFace_RA on Twitter), as part of our "Go With Us" program, and of course our regulars Co-Founder & CEO Tiffany (@TiffWRobertson), dedicated volunteer extraordinaire Deb (@DebConstien), and Katie (who is not on Twitter).
#ACR21 Debrief #3 - Alternative Therapies ● Answers how to take part; what the research says ● Journey stage Every step ● Topic Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR21 Debrief #3 - Alternative Therapies: https://www.youtube.com/watch?v=Oo9ZTLRbAf8
#ACR21 Debrief #3 - Climate, Pollution, and Rheumatic Diseases
This year Ai Arthritis is delighted to be attending with Effie Koliopoulos (aka @RisingAboveRa on Twitter), Stephanie Aleite (aka @theYoungFace_RA on Twitter), as part of our "Go With Us" program, and of course our regulars Co-Founder & CEO Tiffany (@TiffWRobertson), dedicated volunteer extraordinaire Deb (@DebConstien), and Katie (who is not on Twitter).
#ACR21 Debrief #3 - Climate, Pollution, and Rheumatic Diseases ● Answers how to take part; what the research says ● Journey stage Every step ● Topic Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR21 Debrief #3 - Climate, Pollution, and Rheumatic Diseases: https://www.youtube.com/watch?v=YZVSHgHQjqE
#ACR21 Debrief #3 (CLIP)- Undifferentiated Connective Tissue Disease: Need for Recognition
In this debrief, Tiffany debriefs the team on the session she saw related to UCTD and the need for recognition. Now it's your turn to pull up a seat and join the conversation! Leave a comment below, message us on Facebook, Twitter, or Instagram at @IFAiArthritis, or.
#ACR21 Debrief #3 (CLIP)- Undifferentiated Connective Tissue Disease: Need for Recognition covers conditions and terms also written as UD.
#ACR21 Debrief #3 (CLIP)- Undifferentiated Connective Tissue Disease: Need for Recognition ● Answers how to take part; what the research says ● Disease Undifferentiated Disease ● Journey stage Every step ● Topic Advocacy and policy; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR21 Debrief #3 (CLIP)- Undifferentiated Connective Tissue Disease: Need for Recognition: https://www.youtube.com/watch?v=1daYkJE3N74
#ACR21 Debrief #4 Advocacy
This year Ai Arthritis is delighted to be attending with Effie Koliopoulos (aka @RisingAboveRa on Twitter), Stephanie Aleite (aka @theYoungFace_RA on Twitter), as part of our "Go With Us" program, and of course our regulars Co-Founder & CEO Tiffany (@TiffWRobertson), dedicated volunteer extraordinaire Deb (@DebConstien), and Katie (who is not on Twitter).
#ACR21 Debrief #4 Advocacy ● Answers how to take part; what the research says ● Journey stage Every step ● Topic Advocacy and policy; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR21 Debrief #4 Advocacy: https://www.youtube.com/watch?v=f-ln4AszRcY
#ACR21 Debrief #1 Precision Medicine, JAK Inhibitors, Remission, and COVID
This year Ai Arthritis is delighted to be attending with Effie Koliopoulos (aka @RisingAboveRa on Twitter), Stephanie Aleite (aka @theYoungFace_RA on Twitter), as part of our "Go With Us" program, and of course our regulars Co-Founder & CEO Tiffany (@TiffWRobertson), dedicated volunteer extraordinaire Deb (@DebConstien), and Katie (who is not on Twitter).
#ACR21 Debrief #1 Precision Medicine, JAK Inhibitors, Remission, and COVID covers conditions and terms also written as JAK inhibitor or JAKi.
#ACR21 Debrief #1 Precision Medicine, JAK Inhibitors, Remission, and COVID ● Answers what the treatments are and how they work; what the research says ● Journey stage Remission ● Topic Treatment and medication; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR21 Debrief #1 Precision Medicine, JAK Inhibitors, Remission, and COVID: https://www.youtube.com/watch?v=1RnvJ_aXzEU
#ACR21 Debrief #2 Reproductive Health
This year Ai Arthritis is delighted to be attending with Effie Koliopoulos (aka @RisingAboveRa on Twitter), Stephanie Aleite (aka @theYoungFace_RA on Twitter), as part of our "Go With Us" program, and of course our regulars Co-Founder & CEO Tiffany (@TiffWRobertson), dedicated volunteer extraordinaire Deb (@DebConstien), and Katie (who is not on Twitter).
#ACR21 Debrief #2 Reproductive Health ● Answers what I can do myself day to day; what the research says ● Journey stage Every step ● Topic Living with it day to day; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR21 Debrief #2 Reproductive Health: https://www.youtube.com/watch?v=o-0i6MWefxo
#ACR21 Debrief #2 Precision Medicine
This year Ai Arthritis is delighted to be attending with Effie Koliopoulos (aka @RisingAboveRa on Twitter), Stephanie Aleite (aka @theYoungFace_RA on Twitter), as part of our "Go With Us" program, and of course our regulars Co-Founder & CEO Tiffany (@TiffWRobertson), dedicated volunteer extraordinaire Deb (@DebConstien), and Katie (who is not on Twitter).
#ACR21 Debrief #2 Precision Medicine ● Answers what the treatments are and how they work; what the research says ● Journey stage Every step ● Topic Treatment and medication; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR21 Debrief #2 Precision Medicine: https://www.youtube.com/watch?v=l17y-1yH3Ps
#ACR21 Debrief #2 Health Disparities
This year Ai Arthritis is delighted to be attending with Effie Koliopoulos (aka @RisingAboveRa on Twitter), Stephanie Aleite (aka @theYoungFace_RA on Twitter), as part of our "Go With Us" program, and of course our regulars Co-Founder & CEO Tiffany (@TiffWRobertson), dedicated volunteer extraordinaire Deb (@DebConstien), and Katie (who is not on Twitter).
#ACR21 Debrief #2 Health Disparities ● Answers how to take part; what the research says ● Journey stage Every step ● Topic Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR21 Debrief #2 Health Disparities: https://www.youtube.com/watch?v=i4-XhBwe5b0
#ACR21 Debrief #2 COVID
This year Ai Arthritis is delighted to be attending with Effie Koliopoulos (aka @RisingAboveRa on Twitter), Stephanie Aleite (aka @theYoungFace_RA on Twitter), as part of our "Go With Us" program, and of course our regulars Co-Founder & CEO Tiffany (@TiffWRobertson), dedicated volunteer extraordinaire Deb (@DebConstien), and Katie (who is not on Twitter).
#ACR21 Debrief #2 COVID ● Answers what the treatments are and how they work; what the research says ● Journey stage Every step ● Topic Treatment and medication; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR21 Debrief #2 COVID: https://www.youtube.com/watch?v=Z4_GOLKyiGI
#ACR21 Debrief #2 Health Disparities, Advocacy, Reproductive Health, and Supporting Patients
This year Ai Arthritis is delighted to be attending with Effie Koliopoulos (aka @RisingAboveRa on Twitter), Stephanie Aleite (aka @theYoungFace_RA on Twitter), as part of our "Go With Us" program, and of course our regulars Co-Founder & CEO Tiffany (@TiffWRobertson), dedicated volunteer extraordinaire Deb (@DebConstien), and Katie (who is not on Twitter).
#ACR21 Debrief #2 Health Disparities, Advocacy, Reproductive Health, and Supporting Patients ● Answers what the treatments are and how they work; what the research says ● Journey stage Every step ● Topic Treatment and medication; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR21 Debrief #2 Health Disparities, Advocacy, Reproductive Health, and Supporting Patients: https://www.youtube.com/watch?v=tujDCxmYt3o
#ACR21 Debrief #1 JAKi - New FDA Warning
This year Ai Arthritis CEO Tiffany (@TiffWRobertson) - axial spondyloarthritis, dedicated volunteer extraordinaire Deb (@DebConstien) - rheumatoid arthritis, and Katie (Senior Programs and Communications Manager) - rheumatoid arthritis are leading the Patient-Lead.
#ACR21 Debrief #1 JAKi - New FDA Warning covers conditions and terms also written as axSpA, ankylosing spondylitis, non-radiographic axSpA, RA, JAK inhibitor or JAK inhibitors.
#ACR21 Debrief #1 JAKi - New FDA Warning ● Answers how to take part; what the research says ● Disease Axial Spondyloarthritis; Rheumatoid Arthritis ● Journey stage Every step ● Topic Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR21 Debrief #1 JAKi - New FDA Warning: https://www.youtube.com/watch?v=LDkrL8DsBUE
#ACR21 Debrief #1 Not Another Pill
This year Ai Arthritis is delighted to be attending with Effie Koliopoulos (aka @RisingAboveRa on Twitter), Stephanie Aleite (aka @theYoungFace_RA on Twitter), as part of our "Go With Us" program, and of course our regulars Co-Founder & CEO Tiffany (@TiffWRobertson), dedicated volunteer extraordinaire Deb (@DebConstien), and Katie (who is not on Twitter).
#ACR21 Debrief #1 Not Another Pill ● Answers how long it lasts and what to expect; what the research says ● Journey stage Every step ● Topic Symptoms and flares; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR21 Debrief #1 Not Another Pill: https://www.youtube.com/watch?v=K4a0vvyzF7E
#ACR21 Debrief #1 Precision Medicine
This year Ai Arthritis is delighted to be attending with Effie Koliopoulos (aka @RisingAboveRa on Twitter), Stephanie Aleite (aka @theYoungFace_RA on Twitter), as part of our "Go With Us" program, and of course our regulars Co-Founder & CEO Tiffany (@TiffWRobertson), dedicated volunteer extraordinaire Deb (@DebConstien), and Katie (who is not on Twitter).
#ACR21 Debrief #1 Precision Medicine ● Answers what the treatments are and how they work; what the research says ● Journey stage Every step ● Topic Treatment and medication; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR21 Debrief #1 Precision Medicine: https://www.youtube.com/watch?v=GWRA9Oxe99c
#ACR21 Debrief #1 Remission
This year Ai Arthritis is delighted to be attending with Effie Koliopoulos (aka @RisingAboveRa on Twitter), Stephanie Aleite (aka @theYoungFace_RA on Twitter), as part of our "Go With Us" program, and of course our regulars Co-Founder & CEO Tiffany (@TiffWRobertson), dedicated volunteer extraordinaire Deb (@DebConstien), and Katie (who is not on Twitter).
#ACR21 Debrief #1 Remission ● Answers what the treatments are and how they work; what the research says ● Journey stage Remission ● Topic Treatment and medication; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR21 Debrief #1 Remission: https://www.youtube.com/watch?v=dnEKZnLfvp0
#ACR21 day 1 Ai Arthritis Patient-Led Debrief Clip: JAK Inhibitors - New FDA Warning Update
This year Ai Arthritis CEO Tiffany (@TiffWRobertson) - axial spondyloarthritis, dedicated volunteer extraordinaire Deb (@DebConstien) - rheumatoid arthritis, and Katie (Senior Programs and Communications Manager) - rheumatoid arthritis are leading the Patient-Lead.
#ACR21 day 1 Ai Arthritis Patient-Led Debrief Clip: JAK Inhibitors - New FDA Warning Update covers conditions and terms also written as axSpA, ankylosing spondylitis, non-radiographic axSpA, RA, JAK inhibitor or JAKi.
#ACR21 day 1 Ai Arthritis Patient-Led Debrief Clip: JAK Inhibitors - New FDA Warning Update ● Answers how to take part; what the treatments are and how they work ● Disease Axial Spondyloarthritis; Rheumatoid Arthritis ● Journey stage Every step ● Topic Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR21 day 1 Ai Arthritis Patient-Led Debrief Clip: JAK Inhibitors - New FDA Warning Update: https://www.youtube.com/watch?v=r-ZJ1EEDwjM
Ai Arthritis Patient-Led #ACR21 Debrief - Day One Overview
This year Ai Arthritis is delighted to be attending with Effie Koliopoulos (aka @RisingAboveRa on Twitter), Stephanie Aleite (aka @theYoungFace_RA on Twitter), as part of our "Go With Us" program, and of course our regulars Co-Founder & CEO Tiffany (@TiffWRobertson), dedicated volunteer extraordinaire Deb (@DebConstien), and Katie (who is not on Twitter).
Ai Arthritis Patient-Led #ACR21 Debrief - Day One Overview ● Answers how to take part; what the research says ● Journey stage Every step ● Topic Getting involved with Ai Arthritis ; Disease information ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Ai Arthritis Patient-Led #ACR21 Debrief - Day One Overview: https://www.youtube.com/watch?v=00s-hLIYBwc
Rewatch! Of "Still's Disease: Research & Clinical Trials"
Join Ai Arthritis as we cover the highlights of the original webinar "Still's Disease: Research & Clinical Trials". Tiffany reviews all the key points and goes further into the discussion and explanation of the original presentation. If you have any questions about.
Rewatch! Of "Still's Disease: Research & Clinical Trials" covers conditions and terms also written as Stills Disease, adult-onset Still's disease, AOSD, systemic juvenile idiopathic arthritis or sJIA.
Rewatch! Of "Still's Disease: Research & Clinical Trials" ● Answers what the research says; how to take part ● Disease Still's Disease ● Journey stage Every step ● Topic Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Rewatch! Of "Still's Disease: Research & Clinical Trials": https://www.youtube.com/watch?v=O3ZnpVVxEXY
Still's Disease: Research and Clinical Trials
Watch our Still's Disease Research and Clinical Trials webinar! This webinar was hosted on August 31st, 2021 in honor of Autoinflammatory Awareness Month and Still's Disease Awareness Day. Nonprofit supporters included International Foundation for Autoimmune & Autoinflammatory Arthritis ( Ai Arthritis ) , Systemic JIA Foundation, Autoinflammatory Alliance.
Still's Disease: Research and Clinical Trials covers conditions and terms also written as juvenile arthritis, Stills Disease, adult-onset Still's disease, AOSD, systemic juvenile idiopathic arthritis or sJIA.
Still's Disease: Research and Clinical Trials ● Answers what to do when cost or coverage blocks treatment; what the research says ● Disease Juvenile Idiopathic Arthritis; Still's Disease ● Journey stage Every step ● Topic Work, school and money; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Still's Disease: Research and Clinical Trials: https://www.youtube.com/watch?v=oWVqCV4paRA
#EULAR2021 Debrief #6 Managing Ai Arthritis , Office Visits, Adherence, and Surprise Guests!
UPDATE! This Debrief is now also a part of our Ai Arthritis Voices 360 Podcast, the podcast of the International Foundation for Autoimmune and Autoinflammatory Arthritis. This is part of our Go with Us to Conferences, EULAR2021 Debriefs & associated with our Rheumy RoundsⓇ series.
#EULAR2021 Debrief #6 Managing Ai Arthritis , Office Visits, Adherence, and Surprise Guests! ● Answers what the treatments are and how they work; what the research says ● Journey stage Every step ● Topic Treatment and medication; Talking to your care team ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #EULAR2021 Debrief #6 Managing Ai Arthritis , Office Visits, Adherence, and Surprise Guests!: https://www.youtube.com/watch?v=2JuaPVvkkyw
#EULAR2021 Debrief #5 History of EULAR, ACTion Council, Multidisciplinary Care, and Volunteering
This is part of our Go with Us to Conferences, EULAR2021 Debriefs and Rheumy RoundsⓇ special series Who better to review patient collaboration sessions at.
#EULAR2021 Debrief #5 History of EULAR, ACTion Council, Multidisciplinary Care, and Volunteering ● Answers what to say, and to whom; what the research says ● Journey stage Every step ● Topic Talking to your care team; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #EULAR2021 Debrief #5 History of EULAR, ACTion Council, Multidisciplinary Care, and Volunteering: https://www.youtube.com/watch?v=PIjrpt2evUA
#EULAR2021 Debrief #4 Ai Arthritis Disease Specific Treatment Highlights, New Tech, and Comorbidities
This is part of our "Go with Us! to Conferences"/EULAR2021 Series. In this patient-led debrief, join Tiffany, Deb, and Katie as they run through the latest treatment research (mostly seen in Juvenile Arthritis, Lupus, and Psoriatic Arthritis), some information on comorbidity research, and new technology to measure inflammation visually. They also continue their conversation from Debrief.
#EULAR2021 Debrief #4 Ai Arthritis Disease Specific Treatment Highlights, New Tech, and Comorbidities covers conditions and terms also written as JIA, SLE or systemic lupus erythematosus.
#EULAR2021 Debrief #4 Ai Arthritis Disease Specific Treatment Highlights, New Tech, and Comorbidities ● Answers how long it lasts and what to expect; what the research says ● Disease Juvenile Idiopathic Arthritis; Lupus ● Journey stage Every step ● Topic Symptoms and flares; Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #EULAR2021 Debrief #4 Ai Arthritis Disease Specific Treatment Highlights, New Tech, and Comorbidities: https://www.youtube.com/watch?v=a0qTGgPP7ZM
#EULAR2021 Debrief #3 Precision & Personalised Medicine, Diet, UD, and Treatment Tapering & Withdraw
In this debrief, join Tiffany, Deb, and Katie (core Ai Arthritis team attending the Congress), along with Patrice ( Ai Arthritis volunteer) and Leslie (Getting Closer to Myself Blogger) - who are "going with us"* this time. In this conversation, we give an overview about the differences between personalized and precision medicine, then talk in depth about a session on diet.
#EULAR2021 Debrief #3 Precision & Personalised Medicine, Diet, UD, and Treatment Tapering & Withdraw ● Answers what the treatments are and how they work; how to take part ● Journey stage Every step ● Topic Treatment and medication; Food and nutrition ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #EULAR2021 Debrief #3 Precision & Personalised Medicine, Diet, UD, and Treatment Tapering & Withdraw: https://www.youtube.com/watch?v=LSuyBbbmGl0
#ACR2020 - Patient led Session Review: Telehealth
This started talking about COVID, but there wasn't a lot new from EULAR 2020 (we can share those reviews for those who haven't seen them). This is about telehealth, and we have questions for you. The ACR created recommendations when to see patients, no patients were asked. We will also upload these for your review. But before we do, what is your experience with telehealth?
#ACR2020 - Patient led Session Review: Telehealth ● Answers what the treatments are and how they work; what the research says ● Journey stage Every step ● Topic Treatment and medication; Talking to your care team ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR2020 - Patient led Session Review: Telehealth: https://www.youtube.com/watch?v=qoldE2zMwzU
#ACR2020 Patient led debrief: Empowering Patients to Have an Impact on the Future of Healthcare
There are many sessions to see at ACR, this one Tiffany missed, as she was at another, but Deb and Patrice talk about how fantastic it was ... especially as the keynote speaker was fellow patient, and PhD, and friend, Jenn Horonjeff. To learn more about Jenn Horonjeff, go to.
#ACR2020 Patient led debrief: Empowering Patients to Have an Impact on the Future of Healthcare ● Answers what the research says ● Journey stage Every step ● Topic Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR2020 Patient led debrief: Empowering Patients to Have an Impact on the Future of Healthcare: https://www.youtube.com/watch?v=L9KPF8Et68s
#ACR2020 - Patient led review: Understanding the Science of Wellness
Following up on a session we covered in EULAR 20, there is a big push in researching the body-brain connection in understanding pain. This session, however, moved away from pain and focused on how the brain and associated mechanisms (anxiety, depression, lack of sleep) contributes to INFLAMMATION. Take away quote: Wellness is grounded in science.
#ACR2020 - Patient led review: Understanding the Science of Wellness ● Answers how long it lasts and what to expect; what the research says ● Journey stage Every step ● Topic Symptoms and flares; Living with it day to day ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #ACR2020 - Patient led review: Understanding the Science of Wellness: https://www.youtube.com/watch?v=UL0dj0rMZAU
#EULAR2021 Debrief #2 Fatigue, Polypharmacy, and Stress, Inflammation, & Autoimmunity
As we continue our attendance at , core Ai Arthritis team, Tiffany, Deb, and Katie, are joined by our patient guests* - Leslie Rott Welsbacher and Eileen Davidson, to discuss and debrief on four sessions they feel are important to our patient community. Topics include: Fatigue, stress, polypharmacy (treating different comorbidities with various drugs), and chronic pain.
#EULAR2021 Debrief #2 Fatigue, Polypharmacy, and Stress, Inflammation, & Autoimmunity ● Answers how long it lasts and what to expect; what the research says ● Journey stage Every step ● Topic Symptoms and flares; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #EULAR2021 Debrief #2 Fatigue, Polypharmacy, and Stress, Inflammation, & Autoimmunity: https://www.youtube.com/watch?v=BPKahpeiqrA
#EULAR2021 Debrief #1 Discussion of Themes, Prevention, Treating Lupus to Target
EULAR has many new exciting things in store for us this year, the first of which is a name change! Formerly known as the European League Against Rheumatism, the organization is now called the European Alliance of Associations for Rheumatology and is in the midst of hosting their annual conference online for the second consecutive year due to the COVID-19 pandemic.
#EULAR2021 Debrief #1 Discussion of Themes, Prevention, Treating Lupus to Target covers conditions and terms also written as SLE or systemic lupus erythematosus.
#EULAR2021 Debrief #1 Discussion of Themes, Prevention, Treating Lupus to Target ● Answers what the research says; what the treatments are and how they work ● Disease Lupus ● Journey stage Every step ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #EULAR2021 Debrief #1 Discussion of Themes, Prevention, Treating Lupus to Target: https://www.youtube.com/watch?v=hpp8FoM5x3c
You're Fired! Time to Fire the Rheumy
AUTO themed awareness clip recorded on May 1, 2021 at the 1st ever Ai Arthritis AUTO Drive Charity TALK (which took place at the National Museum of Transportation in St. Louis, MO), as part of a live recording of our Ai Arthritis Voices 360 Podcast. Deb and Tiffany talk about the need for self-advocacy in the clinical setting, and share their personal experiences of ‘firing’ their rheumatologists.
You're Fired! Time to Fire the Rheumy ● Answers what to say, and to whom; how to take part ● Journey stage Every step ● Topic Talking to your care team; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for You're Fired! Time to Fire the Rheumy: https://www.youtube.com/watch?v=9uSYlVzW7-I
Shake a Tail Feather - OWN Your Limitations
Ai Arthritis AUTO Drive Charity TALK 2021.
Shake a Tail Feather - OWN Your Limitations ● Answers what I can do myself day to day ● Journey stage Every step ● Topic Living with it day to day; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Shake a Tail Feather - OWN Your Limitations: https://www.youtube.com/watch?v=zy6Q8XZsD-o
Impact of Charity Talks
AUTO themed awareness clip recorded on May 1, 2021 at the 1st ever Ai Arthritis AUTO Drive Charity TALK (which took place at the National Museum of Transportation in St. Louis, MO), as part of a live recording of our Ai Arthritis Voices 360 Podcast. Tiffany explains this 1st 'TALK' is only the beginning.
Impact of Charity Talks ● Answers how to take part ● Journey stage Every step ● Topic Awareness days and campaigns; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Impact of Charity Talks: https://www.youtube.com/watch?v=FEv5-MSkPGw
Impact Measurement - Polling the Audience
AUTO themed awareness clip recorded on May 1, 2021 at the 1st ever Ai Arthritis AUTO Drive Charity TALK (which took place at the National Museum of Transportation in St. Louis, MO), as part of a live recording of our Ai Arthritis Voices 360 Podcast.
Impact Measurement - Polling the Audience ● Answers how to take part ● Journey stage Every step ● Topic Awareness days and campaigns; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Impact Measurement - Polling the Audience: https://www.youtube.com/watch?v=kRnobTOocjE
Deb's Onset Story - Age 13
AUTO themed awareness clip recorded on May 1, 2021 at the 1st ever Ai Arthritis AUTO Drive Charity TALK (which took place at the National Museum of Transportation in St. Louis, MO), as part of a live recording of our Ai Arthritis Voices 360 Podcast.
Deb's Onset Story - Age 13 covers conditions and terms also written as JIA, juvenile arthritis or RA.
Deb's Onset Story - Age 13 ● Answers what it feels like; what I can do myself day to day ● Disease Juvenile Idiopathic Arthritis; Rheumatoid Arthritis ● Journey stage Every step ● Topic Family, pregnancy and parenting; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Deb's Onset Story - Age 13: https://www.youtube.com/watch?v=JQZS8ulxiAg
Charity Talk - The Mystery Patient
AUTO themed awareness clip recorded on May 1, 2021 at the 1st ever Ai Arthritis AUTO Drive Charity TALK (which took place at the National Museum of Transportation in St. Louis, MO), as part of a live recording of our Ai Arthritis Voices 360 Podcast. Tiffany shares her experience about being "a mystery patient" for 2 years prior to diagnosis.
Charity Talk - The Mystery Patient ● Answers how it is diagnosed; how to take part ● Journey stage Undiagnosed/Mystery Patient ● Topic Getting diagnosed; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Charity Talk - The Mystery Patient: https://www.youtube.com/watch?v=GdMn36w8Wm8
Charity Talk - Supporter Thanks
AUTO themed awareness clip recorded on May 1, 2021 at the 1st ever Ai Arthritis AUTO Drive Charity TALK (which took place at the National Museum of Transportation in St. Louis, MO), as part of a live recording of our Ai Arthritis Voices 360 Podcast.
Charity Talk - Supporter Thanks ● Answers how to take part ● Journey stage Every step ● Topic Awareness days and campaigns; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Charity Talk - Supporter Thanks: https://www.youtube.com/watch?v=HiLHrjlEeMI
Back to the Future - Your Roles in Life
AUTO themed awareness clip recorded on May 1, 2021 at the 1st ever Ai Arthritis AUTO Drive Charity TALK (which took place at the National Museum of Transportation in St. Louis, MO). Attendees, who were part of Tiffany's Pace Car Trailblazer Team, were asked to walk the museum and answer questions at Pit Stops.
Back to the Future - Your Roles in Life ● Answers what I can do myself day to day ● Journey stage Every step ● Topic Living with it day to day; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Back to the Future - Your Roles in Life: https://www.youtube.com/watch?v=4sMV9FO76ok
Ai Arthritis Early Age Onset
AUTO themed awareness clip recorded on May 1, 2021 at the 1st ever Ai Arthritis AUTO Drive Charity TALK (which took place at the National Museum of Transportation in St. Louis, MO), as part of a live recording of our Ai Arthritis Voices 360 Podcast.
Ai Arthritis Early Age Onset ● Answers how to take part ● Journey stage Every step ● Topic Awareness days and campaigns; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Ai Arthritis Early Age Onset: https://www.youtube.com/watch?v=0KArlr2-im0
10 Year Anniversary
AUTO themed awareness clip recorded on May 1, 2021 at the 1st ever Ai Arthritis AUTO Drive Charity TALK (which took place at the National Museum of Transportation in St. Louis, MO), as part of a live recording of our Ai Arthritis Voices 360 Podcast.
10 Year Anniversary ● Answers how to take part ● Journey stage Every step ● Topic Awareness days and campaigns; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for 10 Year Anniversary: https://www.youtube.com/watch?v=2QUDOs-Nrzk
What's Under Your Hood?
AUTO themed awareness clip recorded on May 1, 2021 at the 1st ever Ai Arthritis AUTO Drive Charity TALK (which took place at the National Museum of Transportation in St. Louis, MO). Attendees, who were part of Tiffany's Pace Car Trailblazer Team, were asked to walk the museum and answer questions at Pit Stops.
What's Under Your Hood? ● Answers how to take part ● Journey stage Every step ● Topic Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for What's Under Your Hood?: https://www.youtube.com/watch?v=w5hJLBRZyPg
#EULAR2020 Treat to Target, Removing Treatment, Remission
Join Deb Majcher Constien, Patrice Johnson, and Tiffany Westrich-Robertson at 7pm EST/USA LIVE on Tuesday, July 14th for Round Two of our patient-led research reviews from the European League Against Rheumatism (EULAR) 2020 Scientific Meeting.
#EULAR2020 Treat to Target, Removing Treatment, Remission covers conditions and terms also written as T2T.
#EULAR2020 Treat to Target, Removing Treatment, Remission ● Answers what the treatments are and how they work; what the research says ● Journey stage Remission ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #EULAR2020 Treat to Target, Removing Treatment, Remission: https://www.youtube.com/watch?v=xkipO8jMVak
WE WON! 2020 Best Team Performance - WEGO Health Awards
13,000 nominations, 96 finalists in 15 categories and Ai Arthritis ended up winning the Best Team Performance award for 2020. Watch this short behind the scenes look at some of our team watching the award show and learning that we won.
WE WON! 2020 Best Team Performance - WEGO Health Awards ● Answers what it is ● Journey stage Every step ● Topic About Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for WE WON! 2020 Best Team Performance - WEGO Health Awards: https://www.youtube.com/watch?v=fQSxUtBxFX4
#MyStills Journey - Amanda
Amanda, from England, has shown how resilient she’s been throughout her experience with Still’s disease; having her first diagnosis when she was only five years old. “I think it’s important that people can stay positive because it can affect you when you’re feeling down.” Watch Amanda’s.
#MyStills Journey - Amanda covers conditions and terms also written as Stills Disease, adult-onset Still's disease, AOSD, systemic juvenile idiopathic arthritis or sJIA.
#MyStills Journey - Amanda ● Answers what I can do myself day to day; how it is diagnosed ● Disease Still's Disease ● Journey stage Every step ● Topic Living with it day to day; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #MyStills Journey - Amanda: https://www.youtube.com/watch?v=vMW81K_y3mU
A #MyStills Journey story
Patient describes how she’s faced grief living with this invisible disease. Watch her full.
A #MyStills Journey story covers conditions and terms also written as Stills Disease, adult-onset Still's disease, AOSD, systemic juvenile idiopathic arthritis or sJIA.
A #MyStills Journey story ● Answers what I can do myself day to day; what it feels like ● Disease Still's Disease ● Journey stage Every step ● Topic Living with it day to day; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for A #MyStills Journey story: https://www.youtube.com/watch?v=VicBGiABk-s
#MyStills Journey - Natalie
Natalie, a parent of a child with Still’s disease, shares her experience on how her family has confronted this disease together to support her daughter’s journey of growing up with Still’s disease. She describes the challenges with a lack of diagnosis and the frustrations as a parent bringing up a child with Still’s disease from such a young age. “I would say this is a family disease.
#MyStills Journey - Natalie covers conditions and terms also written as Stills Disease, adult-onset Still's disease, AOSD, systemic juvenile idiopathic arthritis or sJIA.
#MyStills Journey - Natalie ● Answers what I can do myself day to day; how it is diagnosed ● Disease Still's Disease ● Journey stage Every step ● Topic Family, pregnancy and parenting; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #MyStills Journey - Natalie: https://www.youtube.com/watch?v=L4yMxxQ53H0
#MyStills Journey - Adele
Adele, from the United Kingdom, shows us how she’s embraced and accepted her ‘New Normal’ from living with Still’s disease. Adele experienced her first flare ups and high fevers around her wedding day and describes her journey to diagnosis where her symptoms were often misunderstood with that of Rheumatoid Arthritis. “I just wish I could wave this magic wand, and not be in pain every day.
#MyStills Journey - Adele covers conditions and terms also written as RA, Stills Disease, adult-onset Still's disease, AOSD, systemic juvenile idiopathic arthritis or sJIA.
#MyStills Journey - Adele ● Answers how long it lasts and what to expect; how it is diagnosed ● Disease Rheumatoid Arthritis; Still's Disease ● Journey stage Every step ● Topic Symptoms and flares; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #MyStills Journey - Adele: https://www.youtube.com/watch?v=X_OpH7UbGt0
#MyStills Journey - Catherine
Having a rare disease can make you feel lonely. Catherine, from Ireland, shares her experience of having a Still’s diagnosis and how she just wanted to reach out to somebody that understood how she felt. She describes how she’s confronted her disease by accepting her diagnosis, and by listening to her body she has learned how to live with her Still’s Disease rather than to battle with it.
#MyStills Journey - Catherine covers conditions and terms also written as Stills Disease, adult-onset Still's disease, AOSD, systemic juvenile idiopathic arthritis or sJIA.
#MyStills Journey - Catherine ● Answers what I can do myself day to day; how it is diagnosed ● Disease Still's Disease ● Journey stage Every step ● Topic Living with it day to day; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #MyStills Journey - Catherine: https://www.youtube.com/watch?v=_eH2SlMHsPc
You're Invited! Patients Going to EULAR - rheumatology conference online
We are an international nonprofit started in 2011 from the ground up, we are people living with autoimmune or autoinflammatory diseases that include inflammatory arthritis as a major clinical component ( autoimmune arthritis/ autoinflammatory arthritis, or ai arthritis ).
You're Invited! Patients Going to EULAR - rheumatology conference online ● Answers what the research says; what it feels like ● Journey stage Every step ● Topic Research and conferences; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for You're Invited! Patients Going to EULAR - rheumatology conference online: https://www.youtube.com/watch?v=CjMXeUbLrgw
#EULAR2020 Research Review Party with Ai Arthritis : Pain - It's all in your head?
Pain research has traditionally focused on our sensory reactions (to the pain, temperature, pressure etc). and how we perceive that pain as it travels through our central nervous system. So really a focus on the biology, although of course there have been several studies also on the mind-body connection.
#EULAR2020 Research Review Party with Ai Arthritis : Pain - It's all in your head? ● Answers how long it lasts and what to expect; what the research says ● Journey stage Every step ● Topic Symptoms and flares; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #EULAR2020 Research Review Party with Ai Arthritis : Pain - It's all in your head?: https://www.youtube.com/watch?v=rDgGBB1R0Pg
#EULAR2020 Research Review Party with Ai Arthritis - Topic - Precision Medicine
Join Deb Majcher Constien, Patrice Johnson, and Tiffany Westrich-Robertson at 7pm EST/USA LIVE on Tuesday, July 21st for Round Three of Four of our patient-led research reviews from the European League Against Rheumatism (EULAR) 2020 Scientific Meeting.
#EULAR2020 Research Review Party with Ai Arthritis - Topic - Precision Medicine ● Answers what the treatments are and how they work; what the research says ● Journey stage Every step ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #EULAR2020 Research Review Party with Ai Arthritis - Topic - Precision Medicine: https://www.youtube.com/watch?v=84hGtgJTAuE
#EULAR2020 Research Review Party with Ai Arthritis : Treat to Target, Removing Treatment, Remission
Join Deb Majcher Constien, Patrice Johnson, and Tiffany Westrich-Robertson at 7pm EST/USA LIVE on Tuesday, July 14th for Round Two of our patient-led research reviews from the European League Against Rheumatism (EULAR) 2020 Scientific Meeting.
#EULAR2020 Research Review Party with Ai Arthritis : Treat to Target, Removing Treatment, Remission covers conditions and terms also written as T2T.
#EULAR2020 Research Review Party with Ai Arthritis : Treat to Target, Removing Treatment, Remission ● Answers what the treatments are and how they work; what the research says ● Journey stage Remission ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #EULAR2020 Research Review Party with Ai Arthritis : Treat to Target, Removing Treatment, Remission: https://www.youtube.com/watch?v=quY0Fe-bhPk
#EULAR2020 e-Congress Research Review Party with Ai Arthritis : Focus COVID-19
*Video Begins at 6:06 "Go with us" to ! Tonight's research review discussion, Sessions that focused on COVID-19. Our core team (Tiffany Westrich-Robertson, Deb Majcher Constien, and Patrice Johnson) has been "at EULAR" all June reviewing sessions so we can bring YOU with us to share the information and join conversations about it. And it all starts today!
#EULAR2020 e-Congress Research Review Party with Ai Arthritis : Focus COVID-19 ● Answers what the treatments are and how they work; what the research says ● Journey stage Every step ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for #EULAR2020 e-Congress Research Review Party with Ai Arthritis : Focus COVID-19: https://www.youtube.com/watch?v=3-nIwWXFzbA
Ai Arthritis Goes to EULAR e-Congress 2020 - Debrief #4
This week join us, Tiffany, Deb, and Patrice, as we review the last 6 sessions from our preliminary visit to the EULAR 2020 e-Congress. WE LEARN YOU LEARN! This is the last of 4 debriefs, as our team has been attending sessions since early June.
Ai Arthritis Goes to EULAR e-Congress 2020 - Debrief #4 ● Answers what the treatments are and how they work; what the research says ● Journey stage Every step ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Ai Arthritis Goes to EULAR e-Congress 2020 - Debrief #4: https://www.youtube.com/watch?v=oxe6UWLNoNY
EULAR 20 Debrief #3: Adherence, cardiovascular, new treatment guidelines & more!
This week Tiffany, Deb, and Patrice are learning while having a great time (click on the video, you'll see!) as they have been "at EULAR 2020" all June, which was supposed to take place in Germany June 3-6....but now it's ONLINE with information available through September 1st. Why cram all of this into 4 days when we can attend at our pace "flare free"? AND YOU CAN BE PART OF IT!
EULAR 20 Debrief #3: Adherence, cardiovascular, new treatment guidelines & more! ● Answers how long it lasts and what to expect; what the research says ● Journey stage Every step ● Topic Symptoms and flares; Treatment and medication ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for EULAR 20 Debrief #3: Adherence, cardiovascular, new treatment guidelines & more!: https://www.youtube.com/watch?v=ypw5kAW3AyU
Ai Arthritis Team - Debrief #2 from EULAR e-Congress 2020
This week join Deb, Patrice, and Tiffany, persons living with Ai Arthritis diseases and the organizations' core team attending the scientific convention, as they review another 4 sessions: 3 on COVID-19 and rheumatology and 1 on pain.
Ai Arthritis Team - Debrief #2 from EULAR e-Congress 2020 ● Answers what the treatments are and how they work; what the research says ● Journey stage Every step ● Topic Treatment and medication; Living with it day to day ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Ai Arthritis Team - Debrief #2 from EULAR e-Congress 2020: https://www.youtube.com/watch?v=3n-lGZ7bzpg
World Ai Arthritis Day - Let's DRIVE Awareness (and meet the Ai Arthritis Voices 360 Patient Co-Hosts)
Join several of our Ai Arthritis Voices 360 Co-Hosts as we invite YOU to join us to celebrate World AUTOimmune & AUTOinflammatory Arthritis Day! Share experiences about the need for awareness and compare YOUR AUTO disease to an AUTO/AUTO parts. Then let's DRIVE some more awareness together!
World Ai Arthritis Day - Let's DRIVE Awareness (and meet the Ai Arthritis Voices 360 Patient Co-Hosts) ● Answers how to take part ● Journey stage Every step ● Topic Awareness days and campaigns; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for World Ai Arthritis Day - Let's DRIVE Awareness (and meet the Ai Arthritis Voices 360 Patient Co-Hosts): https://www.youtube.com/watch?v=B7IgqAiPrdo
Conferences Continued- E-Health & the Rheumatologist Office in 2020
Join Tiffany and Deb, fellow patient co-hosts for the Ai Arthritis Voices 360 Podcast, as they welcome Lisa Zickuhr with Washington University School of Medicine to discuss the barriers and benefits of e-health/telehealth as we navigate the new world of COVID-19. How are online visits impacting YOUR care with your rheumy? What is working? What isn't? What do we need to improve?
Conferences Continued- E-Health & the Rheumatologist Office in 2020 ● Answers what the treatments are and how they work; how to take part ● Journey stage Every step ● Topic Treatment and medication; Talking to your care team ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Conferences Continued- E-Health & the Rheumatologist Office in 2020: https://www.youtube.com/watch?v=_8RkpRVMl6U
Preparing Patients for Precision Medicine - Collaboration with the Rheumatology Nurses Society
Join us for a LIVE episode of our Ai Arthritis Voices 360 Podcast! We will be speaking with Carrie Beach, RN, from the Rheumatology Nurses Society (RNS) about our collaboration to improve patient voices in education and research (featuring our award-finalist Preparing Patients for Precision Medicine project).
Preparing Patients for Precision Medicine - Collaboration with the Rheumatology Nurses Society ● Answers what the treatments are and how they work; how to take part ● Journey stage Every step ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Preparing Patients for Precision Medicine - Collaboration with the Rheumatology Nurses Society: https://www.youtube.com/watch?v=K2ymUG2DNv4
Conference Focus: EULAR 2019 & E-Health
Join Tiffany Westrich-Robertson Ifaiarthritis and Deb Majcher Constien and they continue their conversation from yesterdays' episode on the importance of International Foundation for Autoimmune & Autoinflammatory Arthritis leaders attending conferences.
Conference Focus: EULAR 2019 & E-Health ● Answers what the research says; how to take part ● Journey stage Every step ● Topic Research and conferences; Advocacy and policy ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Conference Focus: EULAR 2019 & E-Health: https://www.youtube.com/watch?v=-RVT8pXu_gM
Osteoarthritis versus Ai Arthritis
It's World Autoimmune and Autoinflammatory Arthritis Day, May 20th! Join Tiffany to discuss the importance of raising awareness as she teaches you how to creatively compare different arthritis types through Auto-themed activities. Get involved today by creating your own Auto-themed posts so together we can teach the world the differences between our diseases and others that include arthritis.
Osteoarthritis versus Ai Arthritis ● Answers how to take part; what it is ● Journey stage Every step ● Topic Awareness days and campaigns; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Osteoarthritis versus Ai Arthritis : https://www.youtube.com/watch?v=Jl0C3qwgOBo
Importance of Conferences
Join Tiffany Westrich-Robertson Ifaiarthritis & Deb Majcher Constien from International Foundation for Autoimmune & Autoinflammatory Arthritis at 7pm EST/USA TONIGHT, May 18th, as we continue our LIVE coverage of our now ONLINE gala, the AUTO Ball, where you can learn more about our organization, including what we do, how we do it, and how YOU can get involved!
Importance of Conferences ● Answers what to do when cost or coverage blocks treatment; how to take part ● Journey stage Every step ● Topic Work, school and money; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Importance of Conferences: https://www.youtube.com/watch?v=aZgHqfS9ZLg
COVID-19 & Ai Arthritis
Join us as Tiffany and Danielle talk more about the work we are doing around COVID-19. *This is part of our LIVE AUTO Ball (gala) streaming. Our event was canceled due to COVID-19 so we've taken it online. This goes through Wednesday the 20th, which is World AUTOimmune & AUTOinflammatory Arthritis Day, the first initiative we ever established as an organization back in 2012!
COVID-19 & Ai Arthritis ● Answers what the treatments are and how they work; how to take part ● Journey stage Every step ● Topic Treatment and medication; Work, school and money ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for COVID-19 & Ai Arthritis : https://www.youtube.com/watch?v=jUmXuMp0Wzc
NEW Ai Arthritis Voices Online Work Space & Databank: Collaboration with FORWARD: Data Bank
Welcome Kaleb Michaud from FORWARD: The National Databank for Rheumatic Diseases as we introduce Ai Arthritis Voices online site & how FORWARD will be building and housing our very own Ai Arthritis Database! You can find out more about the work that Kaleb is doing at.
NEW Ai Arthritis Voices Online Work Space & Databank: Collaboration with FORWARD: Data Bank ● Answers what to do when cost or coverage blocks treatment; what the research says ● Journey stage Every step ● Topic Work, school and money; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for NEW Ai Arthritis Voices Online Work Space & Databank: Collaboration with FORWARD: Data Bank: https://www.youtube.com/watch?v=8xj6RoGucwA
Patient-Reported Disease Education: Feature Project - Patient-Reported Still's Disease Brochures
Join Tiffany and long term volunteer, Traci Brown, person diagnosed with Adult-Onset Still's Disease (AOSD) for a LIVE episode of Ai Arthritis Voices 360 Podcast, as they discuss the importance of including patient voices in disease education and research. Textbook disease is not the reality for most people living with autoimmune or autoinflammatory diseases.
Patient-Reported Disease Education: Feature Project - Patient-Reported Still's Disease Brochures covers conditions and terms also written as Stills Disease, systemic juvenile idiopathic arthritis or sJIA.
Patient-Reported Disease Education: Feature Project - Patient-Reported Still's Disease Brochures ● Answers what the research says; how to take part ● Disease Still's Disease ● Journey stage Every step ● Topic Research and conferences; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Patient-Reported Disease Education: Feature Project - Patient-Reported Still's Disease Brochures: https://www.youtube.com/watch?v=bXIQZiZlaJw
The importance of differentiating arthritis types to improve detection and public misunderstandings
Differentiating Arthritis Types will help all people, with all types of arthritis, gain more understanding, and possible respect, for their condition, will increase detection and referrals, can lead to improved QOL and lower healthcare costs long term.
The importance of differentiating arthritis types to improve detection and public misunderstandings ● Answers how to take part; what it is ● Journey stage Every step ● Topic Awareness days and campaigns; Disease information ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for The importance of differentiating arthritis types to improve detection and public misunderstandings: https://www.youtube.com/watch?v=Nhc0QeqFI1c
Meet our Co-Founders - Introduction to the AUTO Ball
In 2020 our organization, the International Foundation for Autoimmune & Autoinflammatory Arthritis ( Ai Arthritis ) decided it was time to expand our reach so we can help more of the 450 million people worldwide living with Autoimmune Diseases or Autoinflammatory Diseases that include Arthritis as a major clinical component.
Meet our Co-Founders - Introduction to the AUTO Ball ● Answers how to take part; what it feels like ● Journey stage Every step ● Topic Awareness days and campaigns; Lived experience ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Meet our Co-Founders - Introduction to the AUTO Ball: https://www.youtube.com/watch?v=O6pUjtyGNlw
Overview from the CEO - AUTO Ball
Join Tiffany Westrich-Robertson, CEO of the International Foundation for Ai Arthritis , as she welcomes AUTO Ball attendees and gives an overview of our organizations’ past, present, and future. Please consider giving a minimum gift of $10 (9 years old + 1 to grow on) to help us continue our work throughout 2020. ai arthritis .org/donate.
Overview from the CEO - AUTO Ball ● Answers what to do when cost or coverage blocks treatment; how to take part ● Journey stage Every step ● Topic Work, school and money; Awareness days and campaigns ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Overview from the CEO - AUTO Ball: https://www.youtube.com/watch?v=uZBciziSqkY
EULAR 2020 e-Congress Ai Arthritis Team Debrief #1
Due to COVID-19, the EULAR (European League Against Rheumatism) has gone ONLINE for the first time in history, and the International Foundation for Autoimmune & Autoinflammatory Arthritis ( Ai Arthritis ) - patient-led organization, is there to report back what they've learned.
EULAR 2020 e-Congress Ai Arthritis Team Debrief #1 ● Answers what the treatments are and how they work; what the research says ● Journey stage Every step ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for EULAR 2020 e-Congress Ai Arthritis Team Debrief #1: https://www.youtube.com/watch?v=IyZeptBo1O4
Ai Arthritis Voices 360 Live EULAR Attendance
The European League Against Rheumatism (EULAR) 2020 Scientific Congress, which was supposed to take place in Frankfurt, Germany June 3, 6 is now being held ONLINE starting June 3 and accessible to patients FOR FREE* through September 1st!
Ai Arthritis Voices 360 Live EULAR Attendance ● Answers what the treatments are and how they work; what the research says ● Journey stage Remission ● Topic Treatment and medication; Research and conferences ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for Ai Arthritis Voices 360 Live EULAR Attendance: https://www.youtube.com/watch?v=bOSHJWGOWY0
IFAA #BestGift
In minisode 6 of the Ai Arthritis Voices 360 podcast, Tiffany, discusses getting your.
IFAA #BestGift ● Answers what I can do myself day to day; how to take part ● Journey stage Every step ● Topic Family, pregnancy and parenting; Getting involved with Ai Arthritis ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for IFAA #BestGift: https://www.youtube.com/watch?v=UYyEdbUCaVM
IFAutoimmuneArthritis Live Stream
IFAutoimmuneArthritis Live Stream is in our video library, and no description has been written for it yet.
IFAutoimmuneArthritis Live Stream ● Answers what it is ● Journey stage Every step ● Topic Disease information ● Type Video ● What you do with it Watch ● Tier 3 ● Audience Patient ● Language English
Watch the video for IFAutoimmuneArthritis Live Stream: https://www.youtube.com/watch?v=0zySgQ2jkCw
Where does each label sit?
Every entry carries its labels on its own face, so an answer can match on any one of them. These counts say how much sits under each label.
What question it answers
A question asks about a subject and wants one kind of answer, so every entry carries the question it answers beside the subject it covers. These counts say how much sits under each one.
What it is. 106 entries.
What it feels like. 112 entries.
How it is diagnosed. 144 entries.
How long it lasts and what to expect. 116 entries.
What the treatments are and how they work. 233 entries.
What I can do myself day to day. 98 entries.
What to do when cost or coverage blocks treatment. 71 entries.
What to say, and to whom. 48 entries.
What the research says. 284 entries.
How to take part. 196 entries.
Journey stage
Undiagnosed/Mystery Patient. 86 entries.
Newly Diagnosed. 94 entries.
Living With Disease OR Diagnosed. 134 entries.
Co-Existing Conditions. 54 entries.
Remission. 42 entries.
Care Partners. 62 entries.
Every step. 566 entries.
Topic
Disease information. 76 entries.
Getting diagnosed. 43 entries.
Symptoms and flares. 79 entries.
Treatment and medication. 238 entries.
Food and nutrition. 30 entries.
Living with it day to day. 70 entries.
Family, pregnancy and parenting. 26 entries.
Talking to your care team. 57 entries.
Work, school and money. 97 entries.
Disability and accommodations. 1 entries.
Co-existing conditions. 28 entries.
Research and conferences. 183 entries.
Advocacy and policy. 92 entries.
Awareness days and campaigns. 75 entries.
Lived experience. 91 entries.
Getting involved with Ai Arthritis . 79 entries.
About Ai Arthritis . 1 entries.
Disease
Each list below names everything we publish on that condition, so a question about one condition is answered in one place. The 22 autoimmune and autoinflammatory arthritis ( Ai Arthritis ) diseases come first, then the conditions we publish on that are not themselves Ai Arthritis diseases.
Antisynthetase Syndrome , 2 entries: Antisynthetase Syndrome Fact Sheet; Antisynthetase Syndrome: A Patient's Guide to What to Expect.
Axial Spondyloarthritis , 30 entries: Axial Spondyloarthritis Fact Sheet; World Axial Spondylitis Day: What AxSpA Does to You; AxSpA Imaging and Treatment Updates From ACR 2025 Now; Patients Weigh In: Why the 'Right' Diagnosis Name Matters (Ep 10); Go With Us! to ACR 2025: AxSpA Imaging & Treatment Updates from ACR 2025; Non-Medical Switching (NMS) 101 Classroom; Pharmacy Benefit Managers (PBMs) Classroom; Go With Us! to EULAR 2025: Psoriatic Arthritis Updates Every Patient Should Know; Go With Us! to EULAR 2025: What’s Really Causing Enthesitis—and Why It Matters; Revolutionary Cell Therapies for Autoimmune Diseases: ACR 2024 Highlights with Tiffany; Breakthrough Treatments for Sjogren’s & Psoriatic Arthritis with Tiffany; Non-Medical Switching (NMS) 101; Biosimilars - Switching & "Interchangeable"; Biosimilars Access Issues- Why Should Patients Care? (Tiffany's Perspective); What are Government Drug Affordability Reviews? (Tiffany's Perspective); Government Drug Affordability Reviews - Why Should Patients Care? (Tiffany's Perspective); Government Drug Affordability Reviews - Why Should Patients Care? (Tiffany's Perspective #2); Government Drug Affordability Reviews Patient Story: Tiffany's Perspective; Value Assessment Patient Story: Tiffany's Perspective; Precision Medicine Patient Story: Tiffany's Perspective; Co-Pay Accumulator Patient Story: Tiffany's Perspective; Step Therapy Patient Story: Tiffany's Perspective; About Precision Medicine (FULL VIDEO): Tiffany's Perspective; What are Value Assessments/Health Technology Assessments? (Tiffany's Perspective); Main Benefits of Precision Medicine: Why Should You Care? (Tiffany's Perspective); About Value Assessments (FULL VIDEO): Tiffany's Perspective; Value Assessments: What Patients Should Understand (Tiffany's Perspective); Main Episode, #81: RheumyRounds (Part Two) - The Good, The Bad & The Ugly: Office Visits; #ACR21 Debrief #1 JAKi - New FDA Warning; #ACR21 day 1 Ai Arthritis Patient-Led Debrief Clip: JAK Inhibitors - New FDA Warning Update.
Behçet's Disease , 2 entries: Behçet's Disease Fact Sheet; Behcet's Disease Awareness Day: What Behcet's Really Is.
Chronic Recurrent Multifocal Osteomyelitis , 2 entries: Chronic Recurrent Multifocal Osteomyelitis Fact Sheet; What Is CNO? Bone Inflammation Without an Infection.
Crohn's Disease , 4 entries: Crohn's Disease Fact Sheet; World IBD Day: The Crohn's Disease Joint Pain Link; From Caregiver to Changemaker: Revolutionizing Care for Ai Arthritis Diseases/IMIDs (Ep 110); From Caregiver to Changemaker: Revolutionizing Care for Ai Arthritis Diseases/IMIDs (Ep 110, on video).
Cryopyrin-Associated Periodic Syndromes , 5 entries: Cryopyrin-Associated Periodic Syndromes Fact Sheet; Which Ai Arthritis Diseases Count as Rare Diseases?; What Is CAPS? The Three Cryopyrin-Associated Syndromes; What Is CINCA/NOMID? The Most Severe CAPS Condition; Familial Cold Autoinflammatory Syndrome (FCAS) Guide.
Familial Mediterranean Fever , 3 entries: Familial Mediterranean Fever Fact Sheet; Familial Mediterranean Fever (FMF): Symptoms & Causes; Familial Mediterranean Fever Research From ACR 2024.
Hyper-IgD Syndrome , 2 entries: Hyper-IgD Syndrome Fact Sheet; Hyper-IgD Syndrome (HIDS): Symptoms and Diagnosis Guide.
Juvenile Idiopathic Arthritis , 17 entries: Juvenile Idiopathic Arthritis Fact Sheet; Juvenile Arthritis Health Visit Communication Aids; World Young Rheumatic Diseases Day: Awareness and Diagnosis; Improving Communication Throughout the JIA Journey (Ep 83); Turning Patient Experiences into Real-World Impact (Ep 122, on video); Go With Us! to ACR 2025: Juvenile Arthritis & Advocacy: Small Voices, Big Change; JIA Family Communication Journey - JOIN THE PROJECT! (Ep 83, on video); The Journey Towards JIA Diagnosis (Ep 83, on video); Importance of Good Communication With JIA (Ep 83, on video); Different Doctors You May See with JIA (Ep 83, on video); Main Episode, #83: Improving Communication Throughout the JIA Journey; #ACR21 Debrief #5 Psoriatic Arthritis, Heart Health & JIA, and Mental Health; #ACR21 Debrief #5: Exercise & Cardiovascular Health in Children with JIA; #ACR21 Debrief #5 LEARNING MOMENT! The 7 Classifications of JIA; Still's Disease: Research and Clinical Trials; #EULAR2021 Debrief #4 Ai Arthritis Disease Specific Treatment Highlights, New Tech, and Comorbidities; Deb's Onset Story - Age 13.
Lupus , 71 entries: Lupus Fact Sheet; Understanding Mixed Connective Tissue Disease (MCTD); Lupus Nephritis: What Patients Should Know About Kidney Risk; Could CAR-T Cell Therapy Reset Your Immune System?; World Lupus Day: What Lupus Does to the Whole Body; ACR 2024 Abstracts: Medications and Treatments News; Brain Fog and Lupus: What ACR 2024 Research Actually Found; COVID Vaccine and Autoimmune Disease: ACR 2024 Findings; Mental Health and Autoimmune Arthritis: ACR 2024 Insights; Diet, Supplements & Cannabis for Arthritis: ACR 2024; Lupus Biomarkers and Lung Disease: ACR 2024 Findings; Obesity and Autoimmune Disease: New Findings From ACR 2024; What is CAR-T Therapy? (Ep 113); Planning for Pregnancy with an Ai Arthritis Disease (Ep 112); From Caregiver to Changemaker: Revolutionizing Care for Ai Arthritis Diseases/IMIDs (Ep 110); Neurological Manifestations of Lupus & Sjögren's Disease with Dr. Julius Birnbaum (Ep 108); Breaking Research at ACR 2024 (Ep 104); Navigating the Patient Journey From Early Diagnosis to Remission (Ep 102); Diversity, Equity, Inclusion and Accessibility (Ep 78); Ai Arthritis Diseases at Work & School; When Pain Becomes Your Normal: Pain Isn’t Just One Thing (Ep 125, on video); 340B Program Webinar: Knowledge = Empowerment Classroom; What We Learned at EULAR 2026 (Ep 123, on video); Turning Patient Experiences into Real-World Impact (Ep 122, on video); What I Wish I Would’ve Known After Diagnosis (Ep 119, on video); More Than a Smile: Oral Health in Ai Arthritis Diseases (Ep 118, on video); Best of 2025 (Ep 117, on video); Go With Us! to ACR 2025: CAR T Cell Therapy Breakthroughs in Autoimmune Disease; Go With Us! to ACR 2025: Steroids, Reproductive Health, and Still's and MAS Updates; Go With Us! to ACR 2025: Autoimmune Detection and Prevention & New Pain Treatments; What is CAR-T Therapy? (Ep 113, on video); Pregnancy and Ai Arthritis Diseases (Ep 112, on video); Go With Us! to EULAR 2025: What Is IgG4-Related Disease—and Why Are So Many Patients Misdiagnosed?; Go With Us! to EULAR 2025: Could CAR-T Lead to Drug-Free Remission for Autoimmune Diseases?; Go With Us! to EULAR 2025: Big Breakthroughs in Sjögren’s—New Research, New Hope; Go With Us! to EULAR 2025: Helping Teens Transition from Pediatric to Adult Autoimmune Care; Go With Us! to EULAR 2025: What’s New in Lupus Nephritis and Why Early Action Matters; From Caregiver to Changemaker: Revolutionizing Care for Ai Arthritis Diseases/IMIDs (Ep 110, on video); Go With Us! to EULAR 2024: What You Need to Know About Interstitial Lung Disease (ILD); Neurological Manifestations of Lupus & Sjogren's Disease with Dr. Julius Birnbaum (Ep 108, on video); ACR 2024 Day 1: Game-Changing Lupus Research & ILD Breakthroughs! With Leila; ACR 2024 Highlights: Obesity’s Impact, Chronic Pain Hacks, & Lupus Care Insights with Leila; Revolutionary Cell Therapies for Autoimmune Diseases: ACR 2024 Highlights with Tiffany; Breaking Research at ACR 2024 (Ep 104, on video); Non-Medical Switching Patient Story: Leila's Perspective; Navigating the Patient Journey: From Early Diagnosis to Remission (Ep 102, on video); Coping Mechanisms for Mental Health Struggles with Ai Arthritis Diseases (Ep 98, on video); Exciting Developments in Lupus Treatment: Insights from EULAR 2024; Revolutionary Advances in Rheumatology: CAR-T and Precision Medicine Insight from Tiffany; Patient-Tailored Pain Management in Rheumatological and Musculoskeletal Diseases (RMDs) With Deb; Predictors of Organ Damage for cSLE (Press Release Breakdown) - Go With Us! to EULAR 2024; VEXAS Syndrome and Testing Gene Editing (Press Release Breakdown) - Go With Us! to EULAR 2024; Evaluating Systemic Score in Still's Disease - Go With Us! to EULAR 2024; How Volunteering with Ai Arthritis Has Impacted Patient’s Lives (Ep 95, on video); Treating Lupus Nephritis (Ep 86, on video); Empowering Choices: Fertility Preservation in Rheumatic Diseases | ACR 2023 Insights Leila Lagandaon; Go With Us ACR 2023 - Pregnancy, Reproductive Health Research; "Go With Us!" ACR23 Leila - Juvenile Spondyloarthritis, Lupus self care; Go With Us ACR 2023 Leila - Lupus Nephritis Therapies, Innate vs Adaptive Immune System; Mini "Go With Us!" to RNS 2023 - "Reproductive Health and Lupus" Educational Takeaways; Example of Step Therapy: (Leila's Perspective); Jamie Reidy: Lupus Biomarker Test for Matching Treatments; Patient Diagnosis Story (Ep 82, on video); Diversity, Equity, Inclusion and Accessibility Affect Healthcare (Ep 78, on video); Patients Should Be Seen As Equal Stakeholders (Ep 78, on video); Lupus Biomarker (IFN-1) Test for Matching Treatments in Precision Medicine; Ai Arthritis Volunteer Interviews: Leslie Rott Welsbacher; #ACR21 Debrief #4 E-Health, Adherence, and Brain Health with Lupus & RA Studies; #ACR21 Debrief #4 Brain - Cognitive Dysfunction (Lupus & RA Studies); #EULAR2021 Debrief #4 Ai Arthritis Disease Specific Treatment Highlights, New Tech, and Comorbidities; #EULAR2021 Debrief #1 Discussion of Themes, Prevention, Treating Lupus to Target.
Mixed Connective Tissue Disease , 3 entries: Mixed Connective Tissue Disease Fact Sheet; Understanding Mixed Connective Tissue Disease (MCTD); Life With Mixed Connective Tissue Disease: My Story.
Palindromic Rheumatism , 2 entries: Palindromic Rheumatism Fact Sheet; What Is Palindromic Rheumatism? Symptoms and Causes.
Psoriatic Arthritis , 44 entries: Psoriatic Arthritis Fact Sheet; New Sjögren's and Psoriatic Arthritis Treatment News; Psoriatic Arthritis Research: What EULAR 2025 Showed; Familial Mediterranean Fever Research From ACR 2024; Mental Health and Autoimmune Arthritis: ACR 2024 Insights; Breaking Research at ACR 2024 (Ep 104); Go With Us! to ACR 2025: Key Updates on Sjögren’s, Still’s Disease, Nutrition & Pain Research; Go With Us! to ACR 2025: AxSpA Imaging & Treatment Updates from ACR 2025; Go With Us! to ACR 2025: Slowing Down Inflammation-Related Aging in Rheumatic Disease; Go With Us! to ACR 2025: What Research Reveals About Brain Fog & Sleep in Ai Arthritis ; Non-Medical Switching (NMS) 101 Classroom; Pharmacy Benefit Managers (PBMs) Classroom; Go With Us! to EULAR 2025: Psoriatic Arthritis Updates Every Patient Should Know; Go With Us! to EULAR 2025: What’s Really Causing Enthesitis—and Why It Matters; Extended Discussion: Inflation Reduction Act (IRA) Impact on Medicare & Biosimilars; What are Alternative Funding Programs? (Ray's Perspective); Alternative Funding Program Issues - Why Should Patients Care? (Brittany's Perspective); What are PBMs? (Ray's Perspective); PBM Transparency & Reforms - Why Should Patients Care? (Michael's Perspective); PBM Transparency & Reforms - Why Should Patients Care? (Ray's Perspective); Breakthrough Treatments for Sjogren’s & Psoriatic Arthritis with Tiffany; Breaking Research at ACR 2024 (Ep 104, on video); Non-Medical Switching (NMS) 101; Biosimilars - Switching & "Interchangeable"; Biosimilars Access Issues - Why Should Patients Care? (Ray's Perspective); What are Biosimilars? (Ray's Perspective); Non-Medical Switching - Why Should Patients Care? (Ray's Perspective); Non-Medical Switching - Why Should Patients Care? (Michael's Perspective); What is Non-Medical Switching? (Michael's Perspective); What is Prior Authorization? (Brittany's Perspective); Prior Authorization - Why Should Patients Care? (Brittany's Perspective); Prior Authorization Patient Story: Brittany's Perspective; Government Drug Affordability Reviews Patient Story: Ray's Perspective; Defining Difficult to Treat Psoriatic Arthritis (Press Release Breakdown)- Go With Us! to EULAR 2024; Precision Medicine Patient Story: Brittany's Perspective; Step Therapy Patient Story: Jody's Perspective; About Copay Accumulators (FULL VIDEO): Michael's Perspective; Copay Accumulators - Why Should Patients Care? (Michael's Perspective); Example of Copay Accumulators: (Michael's Perspective); What is a Copay Accumulator? (Michael's Perspective); Example of Copay Accumulators: (Lindsey's Perspective); #ACR21 Debrief #5 Psoriatic Arthritis, Heart Health & JIA, and Mental Health; #ACR21 Debrief #5 Expanded Treatment Options for Psoriatic Arthritis; #ACR21 Debrief #5 Current Research Landscape for Psoriatic Arthritis.
Relapsing Polychondritis , 2 entries: Relapsing Polychondritis Fact Sheet; Relapsing Polychondritis: Symptoms and Diagnosis Guide.
Rheumatoid Arthritis , 72 entries: Rheumatoid Arthritis Fact Sheet; Rheumatoid Arthritis Self-Management: Opioids and Apps; Rheumatoid Arthritis and Lung Disease: New Research; Rheumatoid Arthritis Awareness Day: Why It Matters; Parenting With Chronic Illness: A Single Mom's Guide; Rheumatoid Arthritis Treatments Gone Wrong; Franklin Shares His Invisible Rheumatoid Arthritis Journey; Judy Nagy Shares Her Rheumatoid Arthritis Advocacy; Rheumatoid Arthritis Clinical Trials: Patient Experiences; COVID Vaccine and Autoimmune Disease: ACR 2024 Findings; New Ways to Diagnose Rheumatoid Arthritis: ACR 2024 Research; Diet, Supplements & Cannabis for Arthritis: ACR 2024; Sleep and Exercise for Arthritis: What ACR 2024 Found; Obesity and Autoimmune Disease: New Findings From ACR 2024; Autoimmune Arthritis Patient Experiences From ACR 2024; Exercise for Rheumatoid Arthritis: EULAR 2024 Takeaways; Rheumatoid Arthritis Pain and Fatigue: Types Explained; Parenting with Chronic Illness (Ep 107); Navigating the Patient Journey From Early Diagnosis to Remission (Ep 102); Step in the right direction: Mobility issues due to surgery, disability, or flares (Mini-Ep 1); Ai Arthritis Diseases at Work & School; When Pain Becomes Your Normal: Pain Isn’t Just One Thing (Ep 125, on video); Rheumatoid Arthritis Then and Now: Why the RA Treatment Paradigm Has Changed: EULAR 2026 (Deb); Why Sleep Is So Hard with Autoimmune Disease (and What Actually Helps) (Ep 120, on video); What I Wish I Would’ve Known After Diagnosis (Ep 119, on video); More Than a Smile: Oral Health in Ai Arthritis Diseases (Ep 118, on video); Go With Us! to ACR 2025: CAR T Cell Therapy Breakthroughs in Autoimmune Disease; Go With Us! to ACR 2025: An Emerging Theme: What New Research Says About Revisiting Methotrexate; Go With Us! to ACR 2025: Why Mental Health Matters in Rheumatology; Go With Us! to ACR 2025: How Exercise, Stress Management, and Diet Help Ai Arthritis Management; Go With Us! to EULAR 2025: Hope for Difficult-to-Treat RA—New Therapies Explained; Go With Us! to EULAR 2025: Can We Prevent RA? New Studies Offer Hope; Go With Us! to EULAR 2025: Should We Treat RA Before It Starts? The Big Debate; What Ai Arthritis Patients Need to Know About ILD (Interstitial Lung Disease) ACR 2024; Parenting with a Chronic Illness (Ep 107, on video); Cracking the Code: RA Risk Factors, Early Diagnosis, and Personal Triumphs with Deb; From Patient to Professional: A Fortunate Encounter #inflammatoryarthritis; Facing Life's Fragility #inflammatoryarthritis; Sudden Collapse Sparks Medical Mystery; Mysterious Trigger Scents #inflammatoryarthritis; Trust Your Body: When Medical Devices Just Aren't Enough #inflammatoryarthritis; Urgent Health Warning: See a Pulmonologist Now! #inflammatoryarthritis; Breaking Science: New Biomarkers for Seronegative Rheumatoid Arthritis | ACR 2024 with Tiffany; Revolutionizing Sjögren's Disease: Insights from ACR 2024 on Imaging & Treatments with Cristina; Biosimilars Therapy Patient Story: Deb's Perspective; Non-Medical Switching Patient Story: Lisa's Perspective; Non-Medical Switching Patient Story: Deb's Perspective; Navigating the Patient Journey: From Early Diagnosis to Remission (Ep 102, on video); Prior Authorization Patient Story: Abby's Perspective; Coping Mechanisms for Mental Health Struggles with Ai Arthritis Diseases (Ep 98, on video); Patient-Tailored Pain Management in Rheumatological and Musculoskeletal Diseases (RMDs) With Deb; Revolutionary Insights on Cardiovascular Comorbidities in RA Patients | EULAR Day 3 Debrief With Deb; Unlocking the Secrets of Fatigue, Pain, and Opioids in RA | Becky Hosey's Insights; Breaking Down Exercise and Fatigue Management in RA | EULAR 2024 Highlights with Leila; Breakthroughs in RA Pain Management: Insight from Deb EULAR 2024; Revolutionizing RA Treatment: ACR 2023 Debrief with Leila Lagandaon | Hope for Evolving Science!; "Go With Us!" to #ACR2023 RA Sex Bias, Pregnancy, COVID-19; Value Assessment Patient Story: Abby's Perspective; Precision Medicine Patient Story: Deb's Perspective; Precision Medicine Patient Story: Abby's Perspective; Step Therapy Patient Story: Deb's Perspective; Step Therapy Patient Story: Abby's Perspective; August 2023 Community Chat: Seeing a Nurse Practitioner Instead of a Physician - Let's Discuss!; Go With Us to EULAR 2023 - June 17, 2023, New Medical Research and Treatment Options; Step Therapy - Why Should Patients Care? (Lisa's Perspective); Step Therapy - Why Should Patients Care? (Jody's Perspective); What is Step Therapy? (Jody's Perspective); Main Episode, #81: RheumyRounds (Part Two) - The Good, The Bad & The Ugly: Office Visits; #ACR21 Debrief #1 JAKi - New FDA Warning; #ACR21 day 1 Ai Arthritis Patient-Led Debrief Clip: JAK Inhibitors - New FDA Warning Update; Deb's Onset Story - Age 13; #MyStills Journey - Adele.
Sarcoidosis , 1 entries: Sarcoidosis Fact Sheet.
Schnitzler Syndrome , 2 entries: Schnitzler Syndrome Fact Sheet; Schnitzler Syndrome: A Rare Rash and Fever Disorder.
Sjögren's Disease , 32 entries: Sjögren's Disease Fact Sheet; Sjögren's Syndrome Diagnosis: One Patient's Advocacy Journey; World Sjögren's Day: Why July 23 Matters to Patients; Sjögren's Disease Updates From EULAR 2025 Research; Advancing Sjögren's Research: What ACR 2024 Revealed; Sjögren's Awareness Month: What Sjögren's Really Is; Living With Chronic Illness: Rebecca's Olympic Mindset Tips; New Sjögren's and Psoriatic Arthritis Treatment News; Rare Ai Arthritis Disease Research From ACR 2024 Now; Autoimmune Arthritis Patient Experiences From ACR 2024; What is CAR-T Therapy? (Ep 113); Planning for Pregnancy with an Ai Arthritis Disease (Ep 112); Neurological Manifestations of Lupus & Sjögren's Disease with Dr. Julius Birnbaum (Ep 108); What We Learned at EULAR 2026 (Ep 123, on video); Beyond Dry Eyes and Dry Mouth: Understanding Severe Sjögren's Disease: EULAR 2026 (Leila); Go With Us! to ACR 2025: Key Updates on Sjögren’s, Still’s Disease, Nutrition & Pain Research; Go With Us! to ACR 2025: Why Oral Health is a Critical Part of Sjögren's & Scleroderma Care; IgG4-RDUncovering IgG4-RD: A Hidden Cause of Misdiagnosis; What is CAR-T Therapy? (Ep 113, on video); Pregnancy and Ai Arthritis Diseases (Ep 112, on video); Go With Us! to EULAR 2025: Big Breakthroughs in Sjögren’s—New Research, New Hope; Neurological Manifestations of Lupus & Sjogren's Disease with Dr. Julius Birnbaum (Ep 108, on video); ACR 2024 Day 1: Game-Changing Lupus Research & ILD Breakthroughs! With Leila; Revolutionizing Sjögren's Disease: Insights from ACR 2024 on Imaging & Treatments with Cristina; Non-Medical Switching Patient Story: Leila's Perspective; Exciting Advances in Sjogren's Treatments and Multidisciplinary Care Approaches With Rebecca Hosey; Unlocking the Power of Exercise for Rheumatic Diseases: Insights from EULAR 2024 with Becky; Predictors of Organ Damage for cSLE (Press Release Breakdown) - Go With Us! to EULAR 2024; Defining Difficult to Treat Psoriatic Arthritis (Press Release Breakdown)- Go With Us! to EULAR 2024; VEXAS Syndrome and Testing Gene Editing (Press Release Breakdown) - Go With Us! to EULAR 2024; Evaluating Systemic Score in Still's Disease - Go With Us! to EULAR 2024; Example of Step Therapy: (Leila's Perspective).
Still's Disease , 25 entries: Still's Disease Fact Sheet; What's New in Still's Disease: EULAR 2025 Takeaways; Steroid Psychosis: Katelyn's Still's Disease Experience; Adult Onset Still's Disease: Jackie's Septic Shock Recovery; Still's Disease and High Fevers: Miya's Delayed Diagnosis; Adult Onset Still's Disease: How It Changed My Life; What Arthritis Patients Want Researchers To Study Next; Your disease, my disease, Still's disease - what are doctors learning to expedite diagnosis? (Ep 49); Rashmi Sinha Presentation (Without Q&A) From Webinar; Sylvia Hanna Presentation from Avalo Therapeutics (With Q&A) From Webinar; Jeanette Bachir Presentation (Without Q&A) From Webinar; Sylvia Hanna Presentation (Without Q&A) From Webinar; Rashmi Sinha Presentation From Rewatch; Jeanette Bachir Presentation From Rewatch; Sylvia Hanna Presentation From Rewatch; Tiffany Westrich-Robertson Presentation From Rewatch, Part 1; Still’s Disease Research 2022 News & Shared-Decision Making for Optimal Health; Rewatch! Of "Still's Disease: Research & Clinical Trials"; Still's Disease: Research and Clinical Trials; #MyStills Journey - Amanda; A #MyStills Journey story; #MyStills Journey - Natalie; #MyStills Journey - Adele; #MyStills Journey - Catherine; Patient-Reported Disease Education: Feature Project - Patient-Reported Still's Disease Brochures.
Systemic Sclerosis (Scleroderma) , 8 entries: Systemic Sclerosis (Scleroderma) Fact Sheet; 3 CAR-T Therapy Studies Every Patient Should Know About; World Scleroderma Day: Systemic Sclerosis Explained; Brain Fog and Lupus: What ACR 2024 Research Actually Found; Go With Us! to ACR 2025: Why Oral Health is a Critical Part of Sjögren's & Scleroderma Care; Go With Us! to EULAR 2025: Could CAR-T Lead to Drug-Free Remission for Autoimmune Diseases?; Go With Us! to EULAR 2025: Should Doctors Prescribe Cannabis for Autoimmune Disease?; Revolutionary Advances in Rheumatology: CAR-T and Precision Medicine Insight from Tiffany.
Undifferentiated Disease , 6 entries: Undifferentiated Disease Fact Sheet; What Is Undifferentiated Disease (UD)? Symptoms & Types; Undifferentiated Disease - What is it & How Could a Diagnosis Affect Me? (Ep 106); Undifferentiated Disease - What is it & How Could a Diagnosis Affect Me?; #ACR21 Debrief #3 Alternative Therapies, Undifferentiated Connective Tissue Disease, and COVID-19; #ACR21 Debrief #3 (CLIP)- Undifferentiated Connective Tissue Disease: Need for Recognition.
VEXAS Syndrome , 4 entries: VEXAS Syndrome Fact Sheet; Understanding VEXAS Syndrome: Who It Affects and Why; VEXAS Syndrome Research: Key Findings From ACR 2024; Go With Us! to EULAR 2025: What Patients Need to Know About VEXAS Syndrome.
Familial Cold Autoinflammatory Syndrome (a form of cryopyrin-associated periodic syndromes) , 2 entries: What Is CAPS? The Three Cryopyrin-Associated Syndromes; Familial Cold Autoinflammatory Syndrome (FCAS) Guide.
Immunoglobulin G4-Related Disease (associated condition) , 19 entries: Immunoglobulin G4-Related Disease Fact Sheet; Immunoglobulin G4-Related Disease; Understanding IgG4-Related Disease: Why It's Missed; 4 IgG4-RD Research Findings Patients Should Know Of; 4 IgG4-RD Studies on Diagnosis Delays and Remission; IgG4-RD Awareness Day: Why April 4 Matters to Patients; Searching for Answers: The Mystery Patient Experience and the Overlap with IgG4-RD (Ep 109); Organ Involvement: Disease Symptom or Comorbidity? (Ep 86); The Great Mimic: Understanding IgG4-Related Disease and Challenging Diagnosis: EULAR 2026 (Deb); Best of 2025 (Ep 117, on video); Go With Us! to ACR 2025: IgG4 and CAR T Therapy: Science Bringing New Hope for Patients; Go With Us! to ACR 2025: Understanding IgG4-RD -- New Research at ACR is Bringing Hope to Patients; IgG4-RDFDA Approves B-Cell Therapy for Better Patient Outcomes; IgG4-RDUncovering IgG4-RD: A Hidden Cause of Misdiagnosis; IgG4-RDBridging Gaps: Culturally Competent Care for Earlier Diagnosis; IgG4-RDThe First Six Months Are Critical; Go With Us! to EULAR 2025: What Is IgG4-Related Disease—and Why Are So Many Patients Misdiagnosed?; The Mystery Patient Experience and the Overlap with IgG4-RD (Ep 109, on video); Main Episode #86: Organ Involvement- Disease Symptom or Comorbidity?.
Interstitial Lung Disease (associated condition) , 16 entries: Interstitial Lung Disease; Interstitial Lung Disease (ILD): A Patient Overview; Living With Interstitial Lung Disease: A Patient Story; Rheumatoid Arthritis and Lung Disease: New Research; Interstitial Lung Disease (ILD): Coping After Diagnosis; Lupus Biomarkers and Lung Disease: ACR 2024 Findings; Beyond Dry Eyes and Dry Mouth: Understanding Severe Sjögren's Disease: EULAR 2026 (Leila); What Ai Arthritis Patients Need to Know About ILD (Interstitial Lung Disease) ACR 2024; Go With Us! to EULAR 2024: What You Need to Know About Interstitial Lung Disease (ILD); From Patient to Professional: A Fortunate Encounter #inflammatoryarthritis; Facing Life's Fragility #inflammatoryarthritis; Sudden Collapse Sparks Medical Mystery; Mysterious Trigger Scents #inflammatoryarthritis; Trust Your Body: When Medical Devices Just Aren't Enough #inflammatoryarthritis; Urgent Health Warning: See a Pulmonologist Now! #inflammatoryarthritis; Mini "Go With Us!" to RNS 2023 - "Interstitial Lung Disease" Educational Takeaways.
Macrophage Activation Syndrome (associated condition) , 10 entries: Macrophage Activation Syndrome; Still's Disease and High Fevers: Miya's Delayed Diagnosis; Go With Us! to ACR 2025: Breakthrough MAS Treatment: What It Means for Still’s Disease Patients; The Patient Perspective: What Katelyn Wants Patients to Know About MAS; The Patient Perspective: What Surprised Katelyn About Macrophage Activation Syndrome (MAS); The Patient Perspective: What Jenny Wants Patients to Know; The Patient Perspective: What Surprised Jenny about Macrophage Activation Syndrome (MAS); The Patient Perspective: Jenny's Macrophage Activation Syndrome (MAS) Story; The Patient Perspective: Katelyn's Macrophage Activation Syndrome (MAS) Story; Still’s Disease Research 2022 News & Shared-Decision Making for Optimal Health.
Muckle-Wells Syndrome (a form of cryopyrin-associated periodic syndromes) , 1 entries: Muckle-Wells Syndrome: Fever, Rash and Hearing Loss.
Neonatal-Onset Multisystem Inflammatory Disease (a form of cryopyrin-associated periodic syndromes) , 1 entries: What Is CINCA/NOMID? The Most Severe CAPS Condition.
Uveitis (co-existing condition) , 1 entries: #ACR22 Day One Debrief! Oral Dryness, Genetic Markers, Uveitis, and more!.
What happens to what you share?
Every resource listed here exists because somebody described what was missing first. We listen, use what we hear to find what is still missing from the conversation, and bring patients in to build what closes that gap. What gets built goes back out, patient to patient, so the next person has more to go on. And when enough experiences come together, that is what gets a gap taken seriously by the people who decide how these diseases are researched and treated.
Ai Arthritis Voices is the process through which patients take part in deciding what we work on. The people who take part are participants, and you choose when and how much.
Araiah is Ai Arthritis ’s Ai Companion, and Araiah is an AI. If you would be willing to share one part of your experience so it can be passed on to the next person who asks, you can become one of Araiah’s friends at aiarthritis.org/araiahs-friends.