All Episodes
View all episodes of the AiArthritis Voices 360 Talk Show. Click the see episode details to view information about the episode and find how to listen!
Episode 122
Airing June 7th 2026
Turning Patient Experiences into Real-World Impact
AiArthritis was built by listening to patients. For more than 15 years, conversations within the community have shaped programs, resources, research initiatives, and advocacy efforts designed to improve the patient journey. In this episode, Leila and Tiffany discuss
AiArthritis' next chapter and how the organization is expanding its commitment to collecting, analyzing, andacting on lived experience data.
The conversation explores what lived experience data is and why it matters. Patient stories can help identify unmet needs, improve healthcare conversations, influence research priorities, and drive meaningful change. Leila and Tiffany also share how
AiArthritis is creating new opportunities for patients, care partners, and advocates to contribute their experiences and ensure every voice is counted. Whether you have participated in an AiArthritis program before or are just discovering the organization, this episode offers a behind-the-scenes look at how patient experiences become real-world impact. It also highlights new ways to get involved and help shape future programs, resources, and advocacy efforts.
Episode 121
Airing May 3rd 2026
Vagus Nerve Stimulation - Alternative Treatment?
Vagus nerve stimulation has been a hot topic in the
AiArthritis community, and for good reason. In this episode, host Tiffany sits down with Dr. Vibeke Strand, Adjunct Clinical Professor in the Division of Immunology/Rheumatology at Stanford University, to explore what VNS actually is, what the research shows, and why it could be a game changing option for people who have not found success with traditional treatments.
Whether you have struggled to find a treatment that works or are simply curious about what is emerging in the rheumatology space, this episode shares useful information you can bring to your next doctor's appointment.
Episode 120
Airing April 5th 2026
Why Sleep Is So Hard with AiArthritis Diseases (and What Actually Helps)
Sleep problems are one of the most common and most frustrating experiences for people living with autoimmune and autoinflammatory arthritis diseases. In this episode, Eileen Davidson breaks down why getting a good night's rest can feel nearly impossible when you're living with an AiArthritis disease, and shares what has actually helped her along the way.
Eileen explores the many reasons sleep is so disrupted by AiArthritis diseases, from pain and stiffness to the role that chronic inflammation plays in interfering with the body's natural sleep cycles. She offers an honest, personal reflection on what sleepless nights really look like from a patient's perspective and why this issue deserves more attention in conversations about disease management.
Whether you're lying awake wondering if anyone else understands what you're going through, or you're looking for practical steps to try tonight, this episode offers both validation and real, actionable guidance from someone who lives it every day.
Episode 119
Airing March 1st 2026
What I Wish I Would’ve Known After Diagnosis
A new diagnosis can bring relief, fear, and uncertainty all at once. In this episode, Leila and Deb share advice from the
AiArthritis community on what they wish they had known right after being diagnosed with an autoimmune or autoinflammatory arthritis disease.
Leila and Deb explore the importance of trusting your body, especially when tests are inconclusive or symptoms are dismissed. This episode highlights how self advocacy, second opinions, and clear communication with your care team can shape your experience. Community members also reflect on the emotional side of diagnosis, including grief, patience, and the mindset shift that comes with learning to live with chronic illness.
Whether you are newly diagnosed or supporting someone who is, this episode offers validation and practical guidance for navigating the early stages of the patient journey.
Episode 118
Airing February 8 2026
More Than a Smile: Oral Health in AiArthritis Diseases
Oral health is often treated as optional or cosmetic, but for people living with AiArthritis
diseases, it can have a real impact on pain, fatigue, nutrition, and quality of life. In this episode, Leila and Bridget explore why oral health deserves a place in routine disease management and why so many patients are never told their symptoms are disease related.
The episode looks at how autoimmune conditions and common medications can affect the
mouth, from dry mouth and gum inflammation to delayed healing and increased infection risk. It also breaks down the connection between oral health, the immune system, and systemic inflammation, helping patients better understand why issues can show up even when oral hygiene is strong.
Join us on this episode to hear practical, gentle strategies for protecting oral health when saliva is reduced or sensitivity is high. The discussion emphasizes adaptation over perfection and reinforces that oral health challenges are not personal failures, but part of living with complex chronic disease.
Episode 117
Airing January 4 2026
The Best of 2025
As we close out 2025, this special episode looks back on some of the most impactful
conversations from this year. This episode reflects on key moments that captured the real
experiences of people living with AiArthritis diseases and the topics patients told us mattered
most.
Listeners will hear powerful conversations exploring what it means to parent while managing
chronic illness, the often overlooked neurological symptoms of lupus and Sjögren’s disease, and the long journey many mystery patients face searching for answers. These episodes go beyond symptoms to explore the emotional toll, physical obstacles, and systemic hurdles patients navigate, showing why knowledge and advocacy can transform the patient journey.
Whether you are hearing these stories for the first time or revisiting them, this episode brings
the voices, clinical insights, and lived experiences that shaped AiArthritis patients in 2025.
Episode 116
Airing December 7th 2025
The Road To Remission
Remission is no longer an abstract idea for people living with AiArthritis diseases. Thanks to
earlier diagnosis, better treatment options, and growing global awareness, more patients are
reaching remission and staying there. In this episode of AiArthritis Voices 360, Health Education Manager Leila P. L. Valete sits down with Neil Betteridge of the Global Remission Coalition to explore what remission truly means and why it is becoming a realistic goal for many.
Together they unpack how remission differs from basic disease control and why that distinction is so important for daily life. They also talk through the emotional and practical impact of reaching remission, the role of early action, and the barriers that still prevent many patients from accessing timely care. The conversation highlights what sustainable remission looks like in the real world and how better education, support, and policy attention can help more people get there.
Whether you are newly diagnosed or years into your patient journey, this episode offers a
grounded and hopeful look at the road to remission and the steps that can make a life-changing
difference.
Episodio 115
Se emitirá el 2 de noviembre de 2025.
CBD y cannabis en 2025: ¿Dónde nos encontramos?
El cannabis ha avanzado mucho desde la última vez que lo analizamos en 2020. Cada vez más pacientes utilizan CBD.
Dado que el cannabis medicinal se utiliza para controlar el dolor crónico, la inflamación, la ansiedad y los problemas de sueño, es hora de una actualización importante. En este episodio, Leila PL Valete, Directora de Educación para la Salud de AiArthritis, conversa con las coanfitrionas y defensoras de los pacientes, Eileen Davidson y Bridget Seritt, sobre los cambios que se han producido, lo que aún debemos aprender y lo que los pacientes deben saber antes de probar el cannabis para la artritis autoinmune y autoinflamatoria.
Los presentadores exploran cómo la investigación, las actitudes y las discusiones médicas en torno al cannabis han influido.
evolucionaron. Comparten sus propias experiencias usando CBD y cannabis, discuten nuevos hallazgos de
La investigación en reumatología subraya la necesidad constante de un mejor acceso, educación sobre seguridad y mayor concientización por parte de los profesionales de la salud. Asimismo, se analiza cómo está cambiando el estigma a medida que más pacientes y médicos consideran el cannabis como una parte legítima del manejo de los síntomas, en lugar de un último recurso.
Ya sea que sea nuevo en el tema o que ya esté utilizando cannabis como parte de su tratamiento, esto
Este episodio ofrece una guía clara, una perspectiva personal y una reflexión profunda sobre su papel en la atención al paciente..
Episode 114
Airing October 5, 2025
WTHellth?!
We have all had those moments where the healthcare system leaves us throwing up our hands and asking, WTH?! From outrageous medical bills and denied prescriptions to hours on the phone with insurance companies, people everywhere share the same frustrations. That is why AiArthritis launched the global #WTHellth?! campaign, a place to rant, connect, and turn stories into change.
In this episode, Co-hosts Tiffany Westrich-Robertson and Ray Patnaude introduce the campaign and explain how your everyday frustrations with healthcare access, insurance, and prescription costs can be transformed into powerful patient experience data (PED). By collecting thousands of stories, WTHellth?! helps government leaders, policymakers, and insurers see the real barriers patients face.
Whether you share your rant on social media with the hashtag #WTHellth?! or submit your story directly at www.wthellth.org, your voice matters. Together, we can turn frustration into action and make sure patients everywhere are part of the conversation about healthcare reform.
Episode 113
Airing September 7, 2025
What is CAR-T Therapy?
CAR-T Therapy is one of the most talked about advances in autoimmune research today, offering new hope for people living with AiArthritis diseases such as lupus, myositis, scleroderma, and Sjögren’s. In this episode, co-hosts Leila P.L. Valete, AiArthritis Health Education Manager, and Tiffany Westrich-Robertson, CEO and Original Founder of AiArthritis, explain what CAR-T is, how it works, and why it matters.
They walk through the treatment process step by step from collecting a person’s own immune cells, to reprogramming them in a lab and reintroducing them so the immune system can reset. This episode highlights promising results from early clinical trials including patients reaching remission and stopping other medications, while also addressing safety, access, and what is still unknown.
Whether you’re a patient, caregiver, researcher, or advocate, this episode explains what’s happening in CAR-T research and why it could represent a major shift in how AiArthritis diseases are treated.
Episode 112
Airing August 3rd, 2025
Planning For Pregnancy With An
AiArthritis Disease
In this follow-up episode, AiArthritis Health Education Manager Leila reflects on her personal pregnancy journeywith lupus and Sjögren’s, while sharing key fertility and pregnancy insights from EULAR 2024.
She highlights emerging research and clinical recommendations on preconception planning, navigating medication decisions, and coordinating care between rheumatologists and high-risk OB-GYNs. Leila also offers practical tips based on her own experience from managing disease activity during pregnancy to advocating for your needs throughout the journey.
Join us on this episode if you’re actively planning for a family or simply want to understand how
AiArthritis diseases can impact fertility and pregnancy.
Episode 111
Airing July 6th, 2025
Breaking
AiArthritis Disease Research Update - EULAR 2025
AiArthritis is bringing you along for the journey as part of our Go With Us! Program, this time straight from the EULAR 2025 in Barcelona. In this episode, we’re spotlighting key research updates that matter most to patients living with AiArthritis diseases.
Our 'co hosts, Leila, Tiffany, Deb, and Eileen, are on the ground at EULAR, reporting back with fresh insights into patient-prioritized topics. You’ll hear how nutrition and microbiome research is shifting how we understand inflammation and autoimmune risk, why CAR T-cell therapy is creating buzz as a potential path to long-term remission, and what new research is saying about enthesitis in spondyloarthritis. Plus, learn more about the debate on the pros and cons of cannabis use for chronic pain management. This episode brings the conference experience straight to you with a focus on what it all means for real patients.
Episode 110
Airing June 1st, 2025
From Caregiver to Changemaker: Revolutionizing Care for AiArthritis Diseases/IMIDs
Managing AiArthritis diseases are challenging but what if the entire model of care could change for the better? In this episode, Leila is joined by Dr. Jin Lee, co-founder and CEO of IMIDeology, a virtual and in-person clinic dedicated to diagnosing and treating immune-mediated inflammatory diseases (IMIDs) like spondyloarthritis, lupus, Crohn’s, and more.
Dr. Lee shares her journey from caregiver to changemaker and how IMIDeology is improving access, diagnosis, and treatment through an innovative, patient-first approach. The conversation also explores chronic pain education and why it’s so often misunderstood in IMIDs. Leila and Dr. Jin Lee share how to describe IMIDs more effectively and how patients can better advocate for pain support.
Plus, hear about IMIDeology’s pain management study and upcoming Autoimmune Patient Summit, designed to educate and empower the IMID community. If you’ve ever felt unheard or overlooked in your care journey, this episode offers fresh ideas, support, and a hopeful vision for the future of IMID treatment.
Episode 109
Airing: May 3rd, 2025
Searching for Answers: The Mystery Patient Experience and the Overlap with IgG4-RD
AiArthritis diseases can be difficult enough to manage—but what happens when the symptoms don’t fit neatly into a diagnosis? In this episode, AiArthritis Health Education Manager Leila shares her perspective on the “mystery patient” experience, those living with serious, ongoing symptoms but still searching for answers.
Leila revisits key conversations from past episodes and introduces new resources, including our updated Mystery Patient Guide and the AUTO + Inflammatory Arthritis = X or YZ Project, which explores lesser-known or overlapping conditions like IgG4-related disease (IgG4-RD). She also shares the powerful story of a real mystery patient navigating the challenges of being undiagnosed for years.
If you or someone you love is living in diagnostic limbo, this episode offers validation, education, and practical tools to help guide your journey and highlights why improving awareness and research for this often-overlooked community is so essential.
Episode 108
Airing: April 6, 2025
Neurological Manifestations of Lupus & Sjögren's Disease with Dr. Julius Birnbaum
Autoimmune diseases like lupus and Sjogren’s disease are often associated with joint pain, fatigue, and organ involvement, but their impact on the nervous system is less commonly discussed. In this episode, Dr. Julius Birnbaum, a leading expert in neuro-rheumatology, joins us to explore the neurological manifestations of these conditions and what patients need to know. From brain fog and memory issues to more severe complications like neuropathy, Dr. Birnbaum explains how these diseases affect the brain and nerves, why symptoms can be challenging to diagnose, and the latest advancements in treatment.
If you or a loved one live with lupus or Sjogren’s and have experienced unexplained neurological symptoms, this episode provides clarity, validation, and expert insights on what to look for and how to advocate for proper care.
Episode 107
Airing: March 2, 2025
Parenting with Chronic Illness
Parenting is challenging, but adding a chronic illness like rheumatoid arthritis brings unique obstacles. In this episode, co-host Eileen shares her journey of raising a child while managing RA, from coping with fatigue and pain to adjusting expectations.
She’s joined by her 12-year-old son, Jacob, who offers his perspective on growing up with a parent who has a chronic illness. Together, they discuss the struggles, unexpected lessons, and ways they support each other. Whether you're a parent navigating chronic illness or looking to understand its impact on families, this episode offers insight, advice, and encouragement.
Episode 106
Airing: February 2, 2025
Undifferentiated Disease - What is it & How Could a Diagnosis Affect Me?
What does it mean to be diagnosed with undifferentiated disease (UD)? In this episode, Tiffany Westrich-Robertson, AiArthritis CEO and founder, unpacks this complex diagnosis, sharing her personal journey from being a mystery patient to receiving a UCTD diagnosis. Tiffany explains how undifferentiated disease fits into the autoimmune and autoinflammatory spectrum, its implications for treatment, and why early intervention is critical.
Episode 105
Airing: January 5, 2025
2024 Rewind: Mental Health, Navigating the Patient Journey, and Reproductive Health
Join us for a special episode where we reflect on the top three most-listened episodes of 2024! Leila revisits these engaging conversations that resonated deeply with the AiArthritis community, covering mental health, navigating the patient journey, and reproductive health. These episodes highlight the challenges and triumphs of living with autoimmune diseases, offering practical strategies and heartfelt support. Whether you're a patient, caregiver, or ally, this roundup of impactful discussions provides valuable insights and inspiration to carry into 2025.
Episode 104
Airing: December 1, 2024
Breaking Research at ACR 2024
In this episode, our co-hosts share key takeaways and important updates from the American College of Rheumatology (ACR) Convergence 2024. Leila, Tiffany, Cristina, and Deb discuss cutting-edge therapies, chronic pain management strategies, and groundbreaking research on conditions like lupus, Sjögren’s, and psoriatic arthritis. Join us for an insightful and empowering conversation that highlights the strides being made in the AiArthritis community.
Episode 103
Airing: November 3, 2024
Elevating The Patient Voice
In this episode of
AiArthritis Voices 360, co-hosts Leila P.L. Valete and Brittany Murray—both living with AiArthritis diseases—dive into the power of patient voices in transforming the healthcare experience for the AiArthritis community. They bring empathy and validation to stories submitted by listeners, highlighting real struggles with insurance, pharmacy issues, and the emotional toll of chronic illness. Brittany also shares key takeaways from the recent Autoimmune Community Summit, covering practical tips for self-management, understanding the influence of environmental factors, and the importance of owning and sharing your story to drive change.
Episode 102
Airing: October 6, 2024
Navigating the Patient Journey From Early Diagnosis to Remission
In this episode of AiArthritis Voices 360, co-hosts Leila and Eileen discuss a project focused on organizing essential resources for patients navigating the AiArthritis journey, from undiagnosed symptoms to remission. They share their personal experiences living with lupus and rheumatoid arthritis, exploring the complexities of managing chronic illness and the challenges of early diagnosis. Tune in to learn about AiArthritis’s new online social community and how you can contribute your story and help develop more resources for patients. This episode is perfect for patients and caregivers seeking guidance and support on their health journey.
Episode 101
Airing: September 1, 2024
"Go With Us!" to EULAR 2024
In this episode, our co-hosts bring you an exclusive look into the AiArthritis “Go With Us!” to Conferences program. We dive deep into EULAR 2024, the European Rheumatology Research Conference, where patients and co-hosts reveal groundbreaking advancements in AiArthritis research. Discover the latest on CAR-T therapy, innovative pain management tailored for patients, the role of opioids in addressing pain and fatigue, and practical strategies for battling brain fog. Gain valuable insights and practical advice from fellow patients and experts. Don't miss this episode packed with cutting-edge information!
Episode 100
Airing: August 4, 2024
100th Episode: AiArthritis Voices 360 Highlights!
Welcome to a milestone episode of AiArthritis Voices 360 Talk Show! Join us as we celebrate our 100th episode by revisiting three of our most impactful discussions that have resonated deeply with our listeners.
Episode 99
Airing: July 7, 2024
AiArthritis Diseases and Protecting Against COVID-19 in Healthcare Settings
In this episode, co-hosts Charis Hill and Jae Walker delve into life after COVID-19, focusing on the unique challenges faced by individuals with AiArthritis diseases. They discuss the importance of continued precautions in healthcare settings, share their own personal experiences, and offer practical advice for staying safe. Tune in for an insightful conversation on navigating the ongoing reality of COVID-19 while managing chronic illnesses.
Episode 98
Airing: June 2, 2024
Mental Health and AiArthritis
In this episode, our co-hosts Estela and Juana delve deep into the often overlooked but critically important topic of mental health for those living with AiArthritis diseases. They discuss the significant impact these health challenges have on both the body and the mind, supported by eye-opening statistics that 52% of patients with autoimmune diseases are diagnosed with a mental health condition within a year. Tune in to hear Estela and Juana break down the science behind these connections, share their personal experiences and provide practical strategies to manage mental health while navigating life with AiArthritis diseases.
Episode 97
Airing: May 5, 2024
World AiArthritis Day
In this episode, Leila shares the exciting plans for the upcoming World AiArthritis Day on May 20th with AiArthritis. Delve into why raising awareness for AiArthritis diseases is crucial and discover ways you can actively participate on the global initiative. Through flashback segments, our co-hosts dissect the layers surrounding the term "arthritis," unraveling misunderstandings, family judgments, and the complexities of distinguishing AiArthritis from other conditions. Tune in for insightful discussions on diagnosis delays, access to treatments, fostering better health outcomes and how you can be a part of World AiArthritis Day!
Episode 96
Airing: April 7, 2024
Social Wellness with an AiArthritis Disease
In this episode, co-hosts Leila, Estela, and Kerry delve into the crucial topic of social wellness amidst living with AiArthritis disease. They explore the essence of social wellness, its significance and sharing personal insights on navigating social lives while managing health challenges. Join our co-hosts as they discuss both the supportive and challenging dynamics of maintaining an active social life with an AiArthritis disease and how online communities can positively impact social wellness. Drawing from community questions and experiences, they offer invaluable advice, practical tips, and thoughtful modifications to foster social fulfillment despite potential barriers. Tune in to learn how to prioritize social wellness in the face of chronic illness.
Episodio 95
Fecha de emisión: 3 de marzo de 2024
Ser voluntario en AiArthritis
¿Tienes curiosidad por saber cómo el voluntariado con AiArthritis podría transformar tu vida y la de los demás?
En el último episodio del programa AiArthritis Voices 360 Talk Show, los presentadores Leila, Michael, Jenni, Deeanne, Patrice y Deb comparten conmovedoras historias sobre su experiencia como voluntarios de AiArthritis. Desde vivencias personales hasta el profundo impacto que AiArthritis ha tenido en sus vidas como pacientes, exploran el poder transformador del apoyo comunitario. Descubra por qué el voluntariado es fundamental y cómo la comunidad de AiArthritis se ha convertido en un salvavidas, ofreciendo comprensión, empatía y empoderamiento.
Episode 94
Airing: February 4, 2024
RheumyRounds Rewind: Improving Doctor and Patient Communication During Office Visits
This is an AiArthritis Voices 360 REWIND, where we are bringing back the first RheumyRound episode from 2020 where we opened the conversation on improving doctor office visits! Also note - you will hear the acronym IFAA, which we used prior to using AiArthritis.
Episode 93
Airing: January 7, 2024
Reproductive Health and AiArthritis Diseases
In this episode, Leila, the Health Education Manager at AiArthritis, delves into the impact of AiArthritis diseases on reproductive health, sharing insights from the RNS and ACR 2023 conferences. Leila delves into the myriad challenges individuals encounter, including delayed puberty, heightened disease activity during menstrual cycles, and the heightened risks associated with unplanned pregnancies. Navigating the intricate landscape of family planning within the AiArthritis community, we discuss the significance of birth control methods and the impact of medications on fertility.
360it to Episode 88
Airing: December 27, 2023
Medicare Drug Price Negotiation: How Will It Affect Patient Access?
Join us in this breakout 360it from Episode 88 Biosimilars : Interchangeability & Switching 2023 as we dissect the Inflation Reduction Act (IRA) and its potential fallout on patient access to diverse treatment plans. Tracing the historical trajectory of the IRA, we uncover its role in price negotiations and the concerning shift in investments away from critical drugs tailored for specific diseases. This reallocation poses a tangible threat to the availability and diversity of treatments, including for those living with AiArthritis diseases. As we dive into the landscape of healthcare policy, the discussion emphasizes the pressing need for IRA improvements to consider the long term well-being of patients. Without these crucial enhancements, we will have a future with not only fewer innovative treatments but potentially less treatment options available.
Episode 92
Airing: December 3, 2023
Breaking Research: Pharma & Non-Pharma 2023
Join us in this episode as co-hosts Tiffany and Deb both a recap of the 2023 ACR, American College of Rheumatology Conference and also how these topics specifically affect AiArthritis diseases. Tiffany and Deb also share an insight into our program, “Go With Us!” to Conferences. The Go With Us program allows patients to attend these conferences in real time and get updates on different important or emerging topics for AiArthritis diseases.
Episode 91
Airing: November 5, 2023
REWIND: Differentiating Arthritis & Autoimmune vs Autoinflammatory
This is an AiArthritis Voices 360 REWIND, where we are bringing back two short episodes that were recorded way back in 2019, because chances the topics are very important!
Also note - you will hear the acronym IFAA, which we used prior to using AiArthritis
Episode 90
Airing: October 1, 2023
Why Won't They Diagnose Me?
At AiArthritis, we represent those diagnosed, their care partners/support network, and the undiagnosed (often called the “Mystery Patients”). This episode is for those struggling to get diagnosed. Join co-hosts Tiffany, Kerry and Danielle as they share their personal diagnosis struggles and delve deep into the challenges many other patients face on their diagnosis journey. From navigating initial symptoms to facing dismissive healthcare providers due to 'normal' blood work, we're talking about common hurdles that delay diagnosis, then encouraging YOU to share your experiences and perspectives as well. Together, we will create a Patient-Led Guide to an AiArthritis Disease Diagnosis.
Episode 89
Airing: September 3, 2023
Surgery with an AiArthritis Disease
Tune in to the latest episode of AiArthritis Voices 360 Talk Show, where your co-hosts Leila, Deb, and Kerry candidly share their personal journeys of undergoing surgery while living with AiArthritis diseases. In this episode, the co-hosts delve into their surgical experiences, including the pivotal surgeries they've had due to their conditions. From Deb's journey triggered by a bunion removal to Kerry's hip replacement due to the complex interplay of autoimmune conditions or Leila’s gastric sleeve surgery due to weight gain from treatments, the trio reflects on the unexpected intersections of surgeries and AiArthritis diseases.
Episodio 88
Fecha de emisión: 6 de agosto de 2023
Intercambiabilidad y cambio de biosimilares 2023
¿Qué deben saber los pacientes sobre los posibles cambios que debilitarían la designación de biosimilar intercambiable?
En este episodio, Tiffany conversa con los prestigiosos expertos invitados Michael Reilly, el Dr. Ralph McKibbin y Andrew Spiegel para explorar la diferencia entre intercambiabilidad, sustitución automática y cambio no médico. Descubra cómo estas diferencias impactan a los pacientes no solo en Estados Unidos, sino también a nivel mundial.
Episode 87
Airing: July 2, 2023
AiArthritis Rant Discussions - Inspired by "Am I the @$$hole?"
Are you tired of feeling frustrated and unheard when it comes to your doctors, your disease, and all the challenges that come with it? Wish you had a platform to let it all out and find understanding?
Welcome to AiArthritis Rant Discussions - Inspired by Am I The @$$hole? Brace yourself for a new series that will give you a voice and an outlet to vent your frustrations. In this episode, our co-hosts Leila, Charis, and Patrice dive into the rants submitted by our AiArthritis community and they'll react, comment, and delve into topics that resonate with so many.
Episode 86
Airing: June 4, 2023
Organ Involvement: Disease Symptom or Comorbidity?
What are some common comorbidities associated with AiArthritis Diseases? And how could they impact you?
In this episode, Tiffany will discuss how different organs can be impacted by the disease and the difference between an organ being part of a disease and being a comorbidity. Tiffany will be exploring some examples of organs being affected in various diseases such as eyes, heart, gastrointestinal, and kidneys, as well as a newer autoimmune disease, IgG4, that is commonly being diagnosed for patients alongside their AiArthritis disease.
Episodio 85
Fecha de emisión: 7 de mayo de 2023
Discursos breves y concisos sobre enfermedades
¿Te has encontrado alguna vez con dificultades para explicar tu enfermedad, la artritis autoinmune (AiArthritis), a otras personas?
En este episodio, nuestras coanfitrionas Leila, Charis y Patrice presentan un nuevo tema: cómo explicar tu enfermedad, la artritis autoinmune (AiArthritis), en un discurso breve de 30 a 60 segundos. Desde el ámbito laboral hasta la vida personal, te brindarán consejos prácticos para adaptar tu discurso a diferentes audiencias, como compañeros de trabajo, familiares, amigos o desconocidos, y así comunicar con confianza tu AiArthritis y defender tus derechos. ¡Acompáñanos en este episodio para escuchar diferentes discursos y tener la oportunidad de compartir el tuyo, contribuyendo así a la creación de recursos para pacientes!
Episode 84
Airing: April 2, 2023
I'm a Mystery Patient, Now What?
Have you ever experienced the frustration of not being able to get a diagnosis, or worse, receiving the wrong one?
In this episode, our co-hosts Tiffany, Kelly, and Kerry, dive into what it is to be a mystery patient. In addition, they each share their personal experiences of being a mystery patient, and the challenges they experienced with delayed diagnosis. Whether you're a mystery patient or have had similar experiences, this episode sheds light on the lessons learned, triumphs, and struggles that many face and why your story matters. Share your story with us today at aiarthritis.org/mysterypatient and help us all learn more about AiArthritis diseases.
Episodio 83
Fecha de emisión: 5 de marzo de 2023
Mejorar la comunicación a lo largo del proceso de JIA.
¿Usted o algún miembro de su familia se han visto afectados por la artritis juvenil? En este episodio, Tiffany conversa con Rochelle Lentini, directora ejecutiva y presidenta de la Fundación Purple Playas, quienes se han unido a otros especialistas y familias para identificar consejos adicionales que mejoren la comunicación.
Durante este programa, Rochelle y Tiffany hablan sobre un nuevo proyecto de colaboración sobre la artritis idiopática juvenil (AIJ) entre AiArthritis y la Fundación Purple Playas, junto con la Sociedad de Enfermeras de Reumatología y Novartis, para crear herramientas de apoyo para el diálogo y guías para la formulación de preguntas que ayuden a las familias a mejorar la comunicación con todos los profesionales con los que se encuentren en el camino.
Episode 82
Airing: February 5th, 2023
AUTO + Inflammatory Arthritis: Diagnosis, Please!
Join us for this episode where the co-hosts, Tiffany and Leila, share their personal journeys of being diagnosed with AiArthritis diseases. Tune in to hear how their journey of being diagnosed and misdiagnosed and the lessons they learned throughout the process.
We also delve into the exciting new resource tool developed by AiArthritis, which helps patients navigate the process of seeking a diagnosis, understanding symptoms, and asking the right questions of their doctors. Plus, we invite other patients to share their stories and provide insights for those just starting their Auto + inflammatory arthritis journey. Join us for an informative and uplifting conversation on Auto + inflammatory arthritis diseases.
Episode 81
Airing: January 1st, 2023
RheumyRounds: PART TWO The Good, The Bad, and The Ugly - Improving Office Visit Communication
During this episode, Deb Constien and Tiffany Westrich-Robertson are joined by Dr. Al Kim ("Al", Tiffany's rheumatologist) , where, together, they share stories of Good, Bad, and Ugly in office communication experiences - with the goal to collect more stories, from YOU! Then, together, patient and rheumatologists will use these stories to develop best practice recommendations to improve patient-rheumy in office communications via a new e-book. In Part Two, we focus largely on the Bad and the Ugly.
Episodio 80
Fecha de emisión: 4 de diciembre de 2022
RheumyRounds: PRIMERA PARTE Lo bueno, lo malo y lo feo: cómo mejorar la comunicación en las consultas médicas.
En este episodio, Kerry Wong y Tiffany Westrich-Robertson se unen a la Dra. Lisa Zickuhr para compartir experiencias positivas, negativas y desagradables en la comunicación en el consultorio, con el objetivo de recopilar más historias de USTEDES. Luego, pacientes y reumatólogos utilizarán estas historias para desarrollar recomendaciones de buenas prácticas que mejoren la comunicación entre pacientes y reumatólogos en el consultorio a través de un nuevo libro electrónico. En la primera parte, nos centramos principalmente en las experiencias positivas.
Episode 79
Airing: Nov 6, 2022
Patient Leadership in Research
In this month’s episode, we join our co-hosts Tiffany, Deb, Kerry and Eileen, all living with AiArthritis diseases, as they discuss the importance of patient involvement in research. Patient involvement in research is key to developing knowledge and understanding around the many AiArthritis diseases. There are lots of ways you can get involved with patient research such as clinical trials, surveys, focus groups, data banks and even in conferences and as part of the research team!
Episode 78
Aired: Oct 2, 2022
Diversity, Equity, Inclusion and Accessibility
DEIA : Diversity, Equity, Inclusion, and Accessibility. Each of these elements that affect patients daily should be considered when thinking about patient diagnosis, physician care, treatment plans, research, lifestyle choices, and societal inclusion. In this month’s episode, we join Tiffany from AiArthritis, Estela Mata from Looms 4 Lupus, and Charis Hill - disability activist, as we are going to be discussing this topic. Each co-host has their own story to share, their experience with DEIA, and how it has impacted their patient journey as well as our community. Join us as we just scratch the surface in this important, but necessary, topic.
Episode 77
Aired: Sept 3, 2022
Biosimilars - What patients should know
As more treatment options are moving towards Biosimilars, many questions are being raised by patients. What are Biosimilars? Are they safe and effective? Are there downsides? Upsides? What are doctors' opinions on Biosimilars? What should I do if I am switched to a Biosimilar?
These are all questions that are at the forefront of our minds when living with AiArthritis diseases. This month, we invited patient advocates, doctors and coalition leaders to join the conversation to discuss and answer the many questions someone living with AiArthritis may have. Join us this month as we break down Biosimilars, share opinions, concerns, research, and resources so patients can better understand Biosimilars and what their availability means for their treatment plan. Join Tiffany and guests Dr. Ralph McKibbin, Andrew Speigel, and Michael Reilly - all leaders at the Alliance for Safe Biologic Medicines coalition, leading efforts globally to help with the transition of biosimilar use.
Episodio 76
Emitido: 7 de agosto de 2022
COVID en 2022: Preocupaciones, preguntas y opiniones en evolución
En los últimos dos años, el mundo ha observado cómo la COVID-19 ha evolucionado en variantes que difieren ligeramente del virus original. Hemos visto que las vacunas y las dosis de refuerzo funcionan, pero también sabemos que las nuevas cepas son algo resistentes a la protección de alto nivel. Han surgido tratamientos para la COVID-19 para ayudar a las personas inmunocomprometidas, como aquellas con Ai¿Qué ocurre con las personas que padecen artritis y reciben tratamientos inmunosupresores? ¿Podemos acceder a ellos y, en caso afirmativo, cómo?
Hemos estado en una verdadera montaña rusa emocional y física, y aún no ha terminado. ¿Deberíamos preocuparnos por el "COVID prolongado" y el "post-COVID"? ¿Qué muestran las investigaciones sobre el COVID en nuestra población de reumatología? Únase a Tiffany, Patrice y Deb, todas personas que viven con
AiPersonas con enfermedades artríticas que también han padecido COVID recientemente comparten las últimas investigaciones, recomendaciones y sus propias opiniones personales basadas en su experiencia como pacientes, en relación con el mundo del COVID en 2022.
Episodio 75
Emitido: 3 de julio de 2022
El panorama completo: terapia holística y personalizada.
A menudo hablamos de la importancia de la Medicina de Precisión (que implica encontrar el mejor tratamiento farmacológico para las necesidades individuales de cada persona), pero a medida que nosotros, como pacientes, identificamos lo que mejor funciona para nuestras necesidades únicas, debemos considerar todas las opciones (tanto farmacológicas como no farmacológicas). Al igual que con nuestros tratamientos biológicos y otros tratamientos modificadores de la enfermedad, donde uno funciona para una persona y no para otra, debemos pensar en las terapias alternativas de la misma manera. Por ejemplo, solo porque "probaste la dieta", ¿significa que probaste todas las dietas? Todos necesitamos encontrar nuestra propia combinación de terapia adecuada, pero ¿cómo sería esa combinación para ti? En este episodio, Tiffany, Deb y Bridget hablan sobre la terapia personalizada, o las opciones complementarias no farmacológicas, que se están investigando y agregando a las nuevas recomendaciones para el manejo integral de la enfermedad.
Episode 74
Aired: June 5, 2022
EveryONE's Voice 'Precisely' Matters
In this episode, Tiffany, CEO of
AiArthritis, is joined by Catherine Ames, from the Young Patients’ Autoimmune Research & Empowerment Alliance, both persons living with
AiArthritis diseases and both who attended the 16th Annual Personalized Medicine Conference in May 2022. Precision Medicine (PM) may currently be in the cancer space, but it’s quickly moving into the autoimmune/autoinflammatory space and there are some things they want you to know. What is it? Why is it important to understand and what can you do to make sure you can benefit most from it as it enters our space?
Episode 73
Aired: May 1, 2022
“Arthritis” Awareness - It’s Complicated!
In this revisit to the table (Step 5 in our problem-solving process), Tiffany, Katie, Effie, Eileen, and Kerry discuss the many layers around the word “arthritis” including: 1) Misunderstandings around the word that can lead to delays in diagnosis, family and friend judgements, and the different type associated with “AUTO” diseases; and 2) Complexities that exist when trying to identify the
AiArthritis from other potential comorbidities (Osteoarthritis, bursitis, enthesitis) and how clarity about this could help with detection, access to the right treatments, and overall better health outcomes.
Episode 72
Aired: April 3, 2022
The Myth of Average - Time for Change
Join Tiffany and Deb, both persons living with
AiArthritis diseases, then Tiffany and John O'Brien, CEO of the National Pharmaceuticals Council, as they put the topic of importance of innovation & treatment access in research and public policy. And learn how YOU can join efforts to impact change!
Episode 71
Aired: March 6th, 2022
Supporting Me, Supporting You, Supporting Us (Table Revisit)
A revisit to the table with Deb Constien, Estela Mata, and Tiffany Westrich-Robertson as they continue discussing the dynamics of support - including needs of the patient as well as others in the patient's support circle. Building on Episodes 43 and 48, they start a support tracking tool to help patients and families/friends better assess their needs and how, together, we can work to address them! You're invited to help us continue developing this aid - find out how!
Episode 70
Aired: February 6, 2022
Helping The Future of Shared-Decision Making & E-Health in Rheumatology Starts with YOU! (Table Revisit)
A revisit to the table with Tiffany Westrich-Robertson and Dr. Lisa Zickuhr, as they continue discussing the importance of shared-decision making in rheumatology e-health visits. They focus on a research project both are involved in, and that YOU can join!
Episodio 69
Emitido el 2 de enero de 2022
Cambiando el mundo desde tu sofá.
En este episodio, Tiffany Westrich-Robertson y Katie Simons hablan de lo agradecidas que están con los voluntarios que ayudan en todos los aspectos de nuestra organización.
Episode 68
Aired: December 5, 2021
Rant Ahead! Together We Can Make Change
This week join Tiffany Westrich-Robertson as she takes this episode on solo! She goes on a rant about the ability -- or lack of ability -- for patient organizations to participate in conferences.
Episodio 67
Emitido: 7 de noviembre de 2021
Tomar decisiones informadas en tiempos sin precedentes
En este episodio, Katie y Deb, ambas personas que viven con AiEnfermedades artríticas: hablemos de lo que significa ser una persona joven que padece una enfermedad crónica.
Episode 66
Aired: October 3, 2021
Pathway of Patient Engagement
In this episode, hosts Tiffany, Maarten, and Cheryl discuss the Paitent Pathway and the history of patient engagement in rheumatology research.
Episode 65
Aired: September 5, 2021
In this episode, Katie and Deb - both persons living with AiArthritis diseases - discuss being a young person suffering from a chronic illness.
Episode 64
Aired: August 1, 2021
The office visit - viewpoints from both the patients AND the rheumies!
Join Tiffany, Deb, Katie, and Patrice AND Al and Jeff (Dr. Al Kim - Tiffany's own rheumy - and Dr. Jeff Sparks) as they talk about the EULAR session content around communication and office visit needs (patient side and rheumy side).
Episode 63
Aired: July 4, 2021
COVID-19, Vaccinations, Shared-Decision Making, & Rheumy Communications
This week join your patient co-hosts Tiffany and Deb, as they welcome Al and Jeff (Dr. Al Kim and Dr. Jeff Sparks) to talk about the latest in COVID-19 research and vaccinations, including variants, antibodies, and the importance of communicating with your doctor about boosters and the evolving landscape (shared-decision making).
Episodio 62
Emitido: 6 de junio de 2021
Informes posteriores al congreso EULAR2021, según lo relatado por los pacientes... ¡Y allá vamos!
Esta semana, únase a sus pacientes coanfitrionas Tiffany Westrich-Robertson, Deb Constien, Katie Simons y Patrice Johnson mientras nos informan sobre nuestros AiComunidad de pacientes con artritis en el primer día de EULAR 2021 con la paciente invitada Leslie Rott Welsbacher.
Episode 61
Aired: May 2, 2021
2021 Charity Talk
This week join your patient co-hosts Tiffany Westrich-Robertson and Deb Constein as they discuss AiArthritis’ 2021 Annual Fundraising Effort: The AUTO Drive Charity TALK.
Episode 60
Aired: April 4, 2021
COVID Blues: It's OK to Ask for Help
This week join your patient co-hosts Kelly Conway and Rick Phillips as they are joined by Heather Kenjorski to discuss mental health AiArthritis patients, and the COVID-19 pandemic.
Episode 59
Aired: March 21, 2021
Learned Experiences: Let the Evolution Continue!
Our organization is constantly evolving to meet those changing needs. As we look to a future where people will be able to interact in person more without the fear of COVID-19, we are excited to transition to a model for the show that will allow us to embrace our original vision of a “touring” talkshow. To prepare for this, we are changing the airing schedule of the show and diversifying our media platforms so that conversations building on core issues raised on the talkshow may be addressed through conversations on other platforms like social media, Youtube, webinars, and in our AiArthritis Voices online forum. We can’t wait to see YOU at the table soon for one of these chats.
Episodio 58
Emitido: 7 de marzo de 2021
Dieta, Investigación y AiArtritis: una presentación especial del ACR.
Únase a sus coanfitrionas, las pacientes Deb Constien, Tiffany Westrich-Robertson y Patrice Johnson, mientras nos llevan tras bambalinas en la Conferencia Anual del Colegio Americano de Reumatología (ACR), donde Deb presenta una revisión de investigación del ACR sobre la dieta.
Episode 57
Aired: February 21, 2021
RheumyRounds SPECIAL EPISODE - COVID-19 & Vaccinations Communication, Education, & Shared-Decision Making
Patient Co-Hosts Tiffany Westrich-Robertson & Kelly Conway are joined by Dr's Al Kim, Vibeke Strand, and Jeff Sparks as they discuss patient and rheumatologist vaccination hesitation and key education points, while providing insights to assess benefits and risks and promote shared-decision making strategies.
Episode 56
Aired: February 21, 2021
Minisode Special: Decision Making w/ Vaccinations & Special Rheumy Rounds Announcement!
This episode, join your patient co-host, Tiffany Westrich-Robertson, CEO of the International Foundation for Autoimmune and Autoinflammatory Arthritis, as she introduces the special report episode (airing Wednesday the 24th) on rheumy/patient communication vaccine issues and the importance of shared decision making.
Episodio 55
Emitido: 7 de febrero de 2021
Opinión de los pacientes: ¿Qué hay en un nombre? - La evolución de la "espondiloartritis"
En este episodio, acompáñenos junto a nuestras pacientes coanfitrionas Tiffany y Charis, quienes conversan con otros pacientes con espondilitis: Richard Howard (también de la Asociación Estadounidense de Espondilitis) y Jennifer Walker. A raíz de un grupo de estudio en el que participaron en el Congreso del Colegio Estadounidense de Reumatología (ACR) 2020, quisieron continuar la conversación sobre la nomenclatura de la espondilitis y compartir su opinión sobre cómo los médicos deberían educar a los pacientes acerca de su enfermedad.
Episode 54
Aired: January 24, 2021
COVID-19 & AiArthritis Special Series: Vaccine Questions & Mixed Messages
This episode, join your patient co-host Tiffany as she talks with rheumatologist, Dr. Alfred Kim about the COVID-19 vaccine.
Episode 53
Aired: January 10, 2021
FDA Public Meeting Opportunity - Patients "at the table"
This week join your patient co-host Danielle Dass as she reports back on her experience attending an American Food and Drug Administration Public Meeting on behalf of the International Foundation for Autoimmune and Autoinflammatory Arthritis.
Episode 52
Aired: December 27, 2020
An Unprecedented End of Year Review
This week, join patient co-host, Tiffany, as she gives our annual “Year End Review'' reflection. In honor of this unprecedented year, this episode will not be the usual briefing on work accomplished in 2020. Rather, Tiffany parallels this “unprecedented year” to living with chronic illness and, in turn, why the work at AiArthritis is so important.
Episode 51
Aired: December 13, 2020
Oh Mama! Physical and Emotional Support Postpartum
Special Series: Oh Mama Series - episode 2 Breastfeeding with AiArthritis Diseases
This week join your patient co-hosts Danielle Dass and Mariah Leach as they are joined by guest patient co-host Cheryl Crow to discuss postpartum needs of AiArthritis Patients.
Episode 50
Aired: November 29, 2020
Special Series: American College of Rheumatology (ACR) Scientific Meeting 2020, "Go with Us!" to Conferences program
Grit, Gratitude, and Grace: How a Positive Mindset Can Improve Pain and Resilience
Join Tiffany, Deb, and Patrice as they review a session from the American College of Rheumatology (ACR) 2020 conference about pain and the brain/body connection.
Episode 49
Aired: November 15, 2020
Special Series: American College of Rheumatology (ACR) Scientific Meeting 2020, "Go with Us!" to Conferences program
Your disease, my disease, Still's disease - what are doctors learning to expedite diagnosis?
Join Tiffany, Deb, and Patrice as they review two sessions, both that focused on educating doctors about Still's disease. This is relevant for all people living with our diseases - Stills disease or otherwise - because it's our stories (Case Studies) that really help expedite diagnosis. Want to learn more about the research and education from ACR 2020? Listen now!
Episode 48
Aired: November 1, 2020
Support: It's not so simple. Diverse needs for difference experiences.
Join Patrice, Effie, and Rick as they share their experiences with support - which all differ per personal relationships and perspectives. That means there are different needs that we must address to help everyone. What's YOUR story?
Episode 47
Aired: October 18, 2020
Teamwork Makes the Dream Work: AiArthritis WINS Best Team Performance 2020
Join Tiffany, and several of the AiArthritis show co-hosts and organization volunteers, as they watch the WEGO Health LIVE Awards ceremony ... only to learn that AiArthritis won 2020 Best Team Performance!
Episodio 46
Emitido: 4 de octubre de 2020
La palabra "A"
En este episodio, únete a Tiffany, Rick, Effie, Deb, Patrice, Suz y Judy mientras hablan sobre las frustraciones que rodean la palabra "artritis". Explican cómo los malentendidos provocan retrasos en el diagnóstico y el tratamiento, así como confusión pública (¡no es lo mismo!). También abordan un tema delicado: cambiar los nombres de las enfermedades para evitar la palabra por completo.
Episode 45
Aired: September 20, 2020
This Is For All the Marbles
In this episode join your host, Tiffany Westrich-Robertson, who explains each person - and our associated roles - are like marbles. If each stakeholder group is a color, and only one color is in the jar, we will never develop solutions that matter to all stakeholders involved in the problem. So we are evolving the show - and our associated online AiArthritis Voices platform - to invite ALL STAKEHOLDERS to the table. Family? Doctor? Researcher? Come on! This is for all the marbles!
Episode 44
Aired: September 6, 2020
Patient-Reported Symptoms: Connecting the dots to improve education
Join your patient host, Tiffany Westrich-Robertson, CEO of AiArthritis, as she discusses the mission and future projects of The International Foundation for Autoimmune and Autoinflammatory Arthritis and the AiArthritis Voices 360 Talk Show.
Episode 43
Aired: August 30, 2020
Support - It's a Family Affair
Join Tiffany, Estela, and Juana as they discuss the importance of family support for people with autoimmune and autoinflammatory arthritis.
Episodio 42
Emitido: 23 de agosto de 2020
¿Es posible tratar hoy mismo dos enfermedades complejas?
Tiffany y Rick analizan los retos que supone la evolución de Treat 2 Target, que ha pasado de tratamientos agresivos para una población más amplia a tratamientos individualizados y basados en la complejidad de cada enfermedad.
Episode 41
Aired: August 16, 2020
Biomarkers - Diagnosis, Disease Management, & even PREVENTION?!
Tiffany and Patrice discuss the importance of biomarkers. Do biomarkers hold the key to understanding disease severity and predicting disease onset?
Episode 40
Aired: August 9, 2020
Research at a Glance - Posters & Abstracts: Patient reviewers, here we come!
From our Go to EURLAR series
Join TIffany as she talks about the importance for both patients and organizations to review Posters/Abstracts and invites all patients to join her to continue the reviews as part of our "Go with Us" to EULAR 2020 initiative.
Episode 39
Aired: August 2, 2020
Patient Engagement in Research - the OMERACT Experience
New primary outcomes (endpoints that should be measured) in rheumatology trials where shared-decision making between doctors and patients are required...and patients were part of this historic decision. This was part of the international, collaborative of rheumatology stakeholders - OMERACT .... and Deb and Tiffany were there and they want to tell you all about it!
Episode 38
Aired: July 26, 2020
Patient-Led Research Review from EULAR 2020: Treat to Target - Remission IS Possible!
Tiffany Westrich-Robertson, Deb Constien, and Patrice Johnson, all persons living with AiArthritis diseases, share an excerpt of their LIVE research review on Treat to Target and Remission, from the European League Against Rheumatism (EULAR) scientific e-Congress 2020.
Episode 37
Aired: July 19, 2020
Patient? Nonprofit? Researcher? Healthcare Services? You're invited to an experience that can change our future.
It's finally ready! Two years in the works, but now the communication platforms, led by expert patient facilitators, are in place. An online site, called AiArthritis Voices, will tie in our online conversations, YouTube channel, live "tours", and educational gatherings) with all the topics we cover on our AiArthritis Voices 360 Talk Show.
Episode 36
Aired: July 12, 2020
Preparing Patients for Precision Medicine - Collaboration with the Rheumatology Nurses Society
Special AUTO Ball Series #8
Tiffany Westrich-Robertson, is joined by patient Co-Host, Katie Steele. They speak with Carrie Beach, RN, from the Rheumatology Nurses Society (RNS) about our collaboration to improve patient voices in education and research (featuring our award-finalist Preparing Patients for Precision Medicine project).
Episodio 35
Lamentablemente, este episodio sobre enfermedades invisibles ha sido eliminado. Nuestra presidenta honoraria del Auto Ball, Angela Durazo, participó en este programa. Sin embargo, dado que su contrato tenía una vigencia de un año, solicitó que no se permitiera el uso promocional de su nombre después de ese plazo. Solicitamos una excepción para este episodio, ya que era un recurso para la comunidad, pero ella la rechazó.
Episode 34
Aired: June 28, 2020
EULAR 2020 e-Congress: Research Debrief
Join Tiffany, Deb, and Patrice as they are learning while having a great time (click on the video, you'll see!) as they have been "at EULAR 2020" all June - which was supposed to take place in Germany June 3-6....but now it's ONLINE with information available through September 1st. Why cram all of this into 4 days when we can attend at our pace "flare free"? AND YOU CAN BE PART OF IT! WE LEARN YOU LEARN!
Mini-Episode 29
Aired: June 24, 2020
From Mini to Mega - Expanding the Table!
This week is our official last mini-episode Wednesday. But don't worry! The podcast episodes will continue to air on Sundays, which will combine both full episodes and the traditional mini's that used to air on Wednesday's. There are a few reasons for this change, which include the need to reach a larger demographic of people living with AiArthritis diseases - using different platforms (including video!) So take a listen to learn more about this exciting evolution for the show!
Episodio 33
Emitido: 21 de junio de 2020
Siempre serás mi bebé
En este episodio, que se emitió el Día del Padre de 2020, Tiffany Westrich-Robertson, directora ejecutiva de la Fundación Internacional para la Artritis Autoinmune y Autoinflamatoria (AiArthritis) reflexiona sobre sus decisiones respecto a la maternidad. Si bien nunca sintió el instinto maternal de tener hijos, las relaciones fallidas la llevaron a dedicar su vida a su carrera, y finalmente fundó esta organización.
Mini-episodio 28
Emitido: 17 de junio de 2020
No todo es "artritis": osteoartritis versus AiArtritis
Serie especial AUTO Ball #6
Únete a Tiffany Westrich-Robertson, quien hablará sobre la importancia de crear conciencia mientras te enseña cómo comparar de forma creativa diferentes tipos de artritis a través de actividades con temática automovilística.
Episode 32
Aired: June 14, 2020
Differentiating Arthritis Types - AUTO + Arthritis = Early Detection, Referrals, Diagnosis
Special AUTO Ball Series #5
Join patient co-hosts, Tiffany & Suz, as they speak with Dr. Alfred Kim about how the two stakeholder groups can work together to encourage differentiation of arthritis types to increase public detection and referrals to rheumatologists. These efforts could lead to earlier detection and, as a result, quicker diagnosis, higher rates of remission, lower disability, and improved long term outcomes.
Mini-Episode 27
Aired: June 10, 2020
Your experience is key to unraveling the mysteries of COVID-19 - is your experience being counted?
Our community is asking many questions about how COVID-19 affected our diseases. The only way researchers can gain enough data to fully answer these questions is if all our experiences are counted. So if you think you had COVID-19, whether you tested positive, or not, or even had a test at all - we want to hear from you!
Episode 31
Aired: June 7, 2020
E-Health Surge - Impacting Rheumy Visits
Special AUTO Ball Series #4
Join patient co-hosts, Tiffany & Deb, as they speak with Dr. Zickuhr about current efforts to streamline e-health visits. Which patients will be seen in person? Which will use tele-health or video calls? Deb and Tiffany weigh in with their experiences and opinions and they all discuss the need to include patients in the discussions as new protocols emerge.
Mini-Episode 26
Aired: June 3, 2020
Special Announcement: AiArthritis is LIVE on Youtube for EULAR!
Meet the team of AiArthritis patients "going" to EULAR 2020 this year - and since it's online YOU can go too! Join us for post-session discussions, research reviews, and even German-style dinner debriefs (the conference was supposed to be in Germany). EULAR is opening the virtual doors to patients so why try and navigate the scene alone? Go with the experts - US!
Episode 30
Aired: May 31, 2020
Conference Follow Up: EULAR 2019 e-Health Panelist - Where is e-health research now that COVID-19 has forced it's use?
Special AUTO Ball Series #3
This week join Tiffany Westrich-Robertson, Deb Majcher Constien, and Aurelie Najm as they discuss the importance of conferences. They continue the discrussion from the EULAR - European League Against Rheumatism congress in Madrid, Spain (2019) Tiffany and Deb attended a session on the existing efforts to advance e-health, so we could reach more rheumatic patients and, in turn, improve their health.
Episode 29
Aired: May 27, 2020
COVID-19 & AiArthritis
Special AUTO Ball Series #2
In this episode, we revisit our work to help those affected by AiArthritis navigate the landscape of COVID-19 by bringing back show Co-Host, Danielle - International Foundation for Autoimmune and Autoinflammatory Arthritis volunteer, former educator (teaching geography, including pandemics), and person living with AiArthritis diseases. In this episode, Tiffany and Danielle discuss the current spread of the virus and Danielle explains the concept of epidemiological models and flattening the curve. They discuss the efforts to reopen some areas that had been previously locked down, as well as how you can protect yourself from infection if you live in one of those newly opened places. Tiffany discusses the ongoing frustration with testing availability and how much we still don’t know about the impact the virus has on survivors.
Episode 28
Aired: May 24, 2020
Co-Founders Introduce the AUTO Ball Online
Special AUTO Ball Series #1
This week join the co-founders of the International Foundation for Autoimmune and Autoinflammatory Arthritis (AiArthritis), Tiffany Westrich-Robertson, Kelly Conway, and Tami Caskey-Brown as they introduce the AUTO Ball. This episode is the first episode in our AUTO Ball Series.
Mini-Episode 25
Aired: May 13, 2020
Patients + Doctors = Treatment Decisions ... Right?
This week join your host Tiffany Westrich-Robertson, CEO of International Foundation for AiArthritis, as she discusses the inherent desire of patients to make decisions with their doctors regarding treatment decisions without interference from insurance companies or governing agencies.
Episodio 27
Emitido: 10 de mayo de 2020
Hay un método en nuestra locura
En este episodio, Tiffany retoma uno de los primeros miniepisodios que emitimos, "La importancia de diferenciar los tipos de artritis" (29 de noviembre, Mini-Ep2), para demostrar cómo ponemos cada tema "sobre la mesa" en el Paso 2 y luego lo retomamos en el Paso 5, después de invitarte a "tomar la mesa" para que formes parte de la conversación.
Mini-Episode 24
Aired: May 6, 2020
E-Health: Taking Our Healthcare Online - What's working and what isn't?
Part of COVID-19 Special Series
This week join your patient co-host Tiffany Westrich-Robertson, CEO of International Foundation for AiArthritis, to discuss the subject of distance medicine and electronic health. Tiffany shares her recent experience with distance medicine as a result of the COVID-19 pandemic and discusses some of the concerns and implications of expanding the use of telemedicine appointments, electronic medical records, and online patient portals.
Episodio 26
Emitido: 3 de mayo de 2020
Conciencia global: tu historia puede generar un cambio.
Tiffany Westrich-Robertson y Pooja Panchamia analizan la necesidad de crear conciencia global sobre las enfermedades autoinmunes y la artritis autoinflamatoria. Hablan sobre los problemas que enfrentan los pacientes en todo el mundo debido a la falta de información sobre estas enfermedades. Profundizan en los beneficios que pueden obtener los pacientes y sus cuidadores de las comunidades de apoyo en línea. También explican cómo los pacientes pueden marcar una diferencia importante, tanto en el manejo de su propia salud como en la sensibilización global al alzar la voz.
Mini-Episode 23
Aired: April 29, 2020
Identities Matter: Pronouns & the Online Community
This week join your patient co-hosts Tiffany Westrich-Robertson, CEO of International Foundation for AiArthritis, and Charis Hill, a professionally disabled writer, speaker, and patient advocate as they discuss the sensitive topic of preferred pronouns and misgendering non-binary and transgendered individuals.
Episodio 25
Emitido: 26 de abril de 2020
Online AUTO Ball: Seguimos cambiando el mundo desde nuestros sofás.
Serie especial sobre la COVID-19, episodio 4
Esta semana, únase a su paciente coanfitriona Tiffany Westrich-Robertson, directora ejecutiva de la Fundación Internacional para AiArthritis, mientras anuncia un cambio significativo en los planes para el AUTO Ball y te dice cómo participar también, ¡desde TU sofá! Desde nuestra creación en 2011, hemos funcionado principalmente como una entidad en línea. Pero en 2020, planeamos aumentar nuestro impacto presentando nuestra organización a una audiencia más amplia, de forma presencial. Luego, llegó la COVID-19 e irónicamente, hemos tenido que redirigir nuestros planes de aventurarnos fuera, trasladando nuestra reintroducción al mundo al espacio en línea... donde hemos estado cambiando el mundo desde nuestros sofás desde 2011. Nuestros objetivos siguen siendo los mismos: aumentar la conciencia global sobre AiLas enfermedades artríticas nos permiten enseñar al mundo más sobre quiénes somos y qué hacemos, y recaudar fondos para que esta valiosa labor pueda continuar.
Mini-Episode 22
Aired: April 22, 2020
COVID-19 & Pets
Part of COVID-19 Special Series
This week join your patient host Kelly Conway, co-founder of International Foundation for AiArthritis, as she updates us all on the state of the COVID-19 pandemic as it relates to pets and their owners. She gives a thorough review of what all owners should do to protect and care for their pets, service animals, or emotional support animals during the pandemic. She also discusses specifically what to do if you contract COVID-19 and must have contact with your service animal or emotional support animal or if you have no-one else to care for your pets.
Episodio 24
Emitido: 19 de abril de 2020
Diversidad étnica en los ensayos clínicos: ¡Todos somos únicos, por lo que todas las voces deben ser escuchadas!
Únete a Tiffany, Estela y Juana mientras analizan los desafíos relacionados con el reclutamiento de minorías en ensayos clínicos y debaten sobre cómo abordar las barreras para que se incluyan todas las etnias.
Mini-Episode 21
Aired: April 15, 2020
COVID-19 & Gloves: Handy Precautions to Keep You Safe
Part of COVID-19 Special Series
Join Danielle, official show patient co-host, and Kristen, guest patient co-host from the medical field, as they talk about whether or not you should use gloves for COVID-19.
Episode 23
Aired: April 12 2020
COVID-19 & AiArthritis
COVID-19 Special Series, Show 4
Join Danielle, official show patient co-host, and Kristen, guest patient co-host from the medical field, as they talk about types of masks and what you need to understand to stay safe.
Mini-Episode 20
Aired: April 8, 2020
COVID-19 is #NotMyNewNormal
Part of COVID-19 Special Series
Join Effie as she discusses why the coronavirus scare resembles what it's like to live with a chronic illness. #NotMyNewNormal
Episode 22
Aired: April 5, 2020
AiArthritis Voices 360 Revisited
This week the show is celebrating 40 brilliant episodes by revisiting some of our previous conversations with experts in the field of autoimmune and autoinflammatory rheumatic diseases. We have featured rheumatologists, clinical researchers, and medical anthropologists in addition to our many patient co-hosts with expertise of their own. If you are new to the show, this will give you an opportunity to catch up on what our experts had to say about their work. Tune in and then join us to add your voice to these ongoing conversations.
Mini-episodio 19
Emitido: 1 de abril de 2020
Desmintiendo mitos sobre el CBD y la COVID-19
Parte de la serie especial sobre la COVID-19
En este miniepisodio, Bridget Dandaraw-Seritt, fundadora de Canna Patient Resource Connection, abordará los mitos y la desinformación que circulan sobre el CBD y la COVID-19. ¿Es cierto que el CBD puede eliminar el coronavirus? ¿Pueden las supuestas propiedades antiinflamatorias del CBD proteger contra la tormenta de citoquinas provocada por la COVID-19? ¿Tiene el CBD propiedades antivirales?
Episode 21
Aired: March 29, 2020
#HighRiskCOVID19: Reality Check from the Immunocompromised Community
COVID-19 Special Series, Show 3
This episode join your hosts Kelly Conway and Charis Hill to discuss COVID-19 and the potential impact on the AiArthritis Community. This is the third episode in a breakout series on COVID-19 and what you can do to protect yourself during the pandemic. They will discuss raising awareness for the risks experienced by disabled and chronically ill people during the pandemic and what you can do to join the movement. They also dive into being discriminating about the reliability of sources when reading about COVID-19 and prioritizing your mental and emotional wellness during social isolation.
Episode 20
Aired: March 22, 2020
COVID-19 & AiArthritis: Ask the Rheumy with Dr. Kim & Matt Iseman, host of American Ninja Warrior
COVID-19 Special Series, Show 2
In this episode, join patient co-hosts Tiffany Westrich-Robertson and Matt Iseman - host of American Ninja Warrior and person living with Rheumatoid Arthritis. They are joined by Dr. Alfred Kim, Rheumatologist at Washington University and Founder and Director of their Lupus Clinic. This is the second episode in a breakout series on COVID-19 and what you can do to protect yourself during the pandemic. Should you continue taking immunosuppressive therapies? Are you going to be able to refill your hydroxychloroquine prescription? What should you do if you begin experiencing symptoms? When do you need to go to the ER? Dr. Kim offers his expert opinion on these and more vital questions.
Episode 19
Aired: March 18, 2020
COVID-19 & AiArthritis: Pandemics & Patient Organizations
COVID-19 Special Series, Show 1
This is the first episode in a breakout series of AiArthritis Voices 360 episodes on COVID-19 and what you can do to protect yourself during the pandemic. Join your co-hosts, Tiffany and Danielle as they welcome Joe Coe from Creaky Joints / Global Health Living Foundation to discuss COVID-19 and the potential impact on the AiArthritis Community.
Episode 18
Aired: March 15, 2020
The Juggling Act: Living with Multiple Conditions
In this episode of AiArthritis Voices, patient co-hosts Tiffany Westrich-Robertson and Simon Stones discuss the prevalence and logistics of living with multiple conditions. Most health systems have moved away from a model where General Practitioners/Primary Care Physicians are managing all aspects of patient care to a model that places more emphasis on specialists and a depth of expertise in a specific disease. The downside to this is it has created a system where patients must be their own Care Coordinators, yet most have no experience or understanding of how to do this. What can be done to change the system? What can you do in the meantime to ensure that your health is not slipping through the cracks?
Mini-Episode 17
Aired: March 11, 2020
World AiArthritis Day
Listen as Tiffany talks about World AiArthritis Day on May 20th, an annual event established by AiArthritis to raise awareness for AiArthritis Diseases. Also learn more about, the AUTO Ball, an event that AiArthritis will be hosting on Saturday, May 2nd to launch the countdown to World AUTOimmune and AUTOinflammatory Arthritis Day.
Episode 17
Aired: March 8, 2020
Workplace Discrimination
Join co-hosts Tiffany Westrich-Robertson and Danielle Dass as they discuss discrimination against disabled people in the workplace. They dig into workplace accommodations, what to do if you are a victim of discrimination at work, and the connection between ableism and poor treatment of disabled employees. They also touch on how both delayed diagnosis and shifting identities can contribute to challenges in finding a work environment right for you. If you are a victim of workplace discrimination, a working person living with chronic illness, or a supervisor of other employees, this is an important episode for you!
Mini-Episode 16
Aired: March 4, 2020
Unpredictable Disease in a Need-to-Be Predictable Environment
In this weeks episode we talk about the challenge of having an unpredictable disease when you are in a situation that demands predictability. Tiffany shares an experience she had when summoned to jury duty. Perhaps you have been an employee, patron, or student of an organization that adheres to rigid scheduling and fixed timelines. How do you deal with the unpredictability of symptoms and flares in an environment that lacks flexibility?
Episode 16
Aired: March 1, 2020
CBD - It's Everywhere!
Join patient co-hosts Tiffany from AiArthritis and Bridget from the Canna-Patient Resource as they openly discuss CBD and medical marijuana as it is becoming available in many parts of the world, and many with chronic pain are interested in trying it - some are interested if they can use it without experiencing the effects of feeling 'high'. But how is this possible? What happens if you order from the internet and not a plant-based farm? AiArthritisis strongly focusing on developing educational materials for patients, and for supporters/families friends who may judge a person for use without additional information available.
Mini-Episode 15
Aired: February 26, 2020
Shared Decision Making Tools to Advance Precision Medicine: Get Involved!
This week’s topic is shared decision making. In preparation for precision medicine, AiArthritis is working on developing tools to support and facilitate conversations between patients and their doctors. Tune in to learn about the initiative and other opportunities to share your voice to influence shared decision making.
Episode 15
Aired: February 23, 2020
Internalized Ableism: Finding Your Freedom to Participate in Life
This episode join co-hosts Charis Hill and Tiffany Westrich-Robertson as they discuss the important topic of overcoming internalized ableism, both individually and as a society. They discuss the reasons people living with AiArthritis diseases may find it difficult to transition to identifying as a disabled person. Charis also shares insight on medical vs social models of disability and some suggestions for overcoming our invisible prejudices against disabled people. They also touch on the United States federal disability benefits application process.
Mini-Episode 14
Aired: February 19, 2020
When our past impacts our present - the office visit
Dr. Kim states he is typically already prepared for how the visit will go before ever walking in the room. However, Tiffany pointed out that patients not only come to the visit potentially planning to present new information, but that past experiences throughout their disease journey also will impact the visit dynamic.
Episode 14
Aired: February 16, 2020
Rheumy Rounds™: Office Visit Communication Obstacles - Dr. Google, Communication Tools, & when to say goodbye
Join patient co-hosts Tiffany and Kelly, along with roundtable guests rheumatologist, Dr. Alfred Kim, and graduate researcher Jerik Leung, as they conclude the first conversation in our exciting breakout series called Rheumy Rounds on improving communication between doctors and patients.
Mini-Episode 13
Aired: February 12, 2020
Rheumy Rounds Breakout: Social Support Research and the Importance of Being Heard
This week listen to an excerpt from Part One of our pilot episode of Rheumy Rounds™. This mini-episode captures a break out discussion between Kelly and Jerik about the research Jerik and his team have been working on regarding social support and the need for people with AiArthritis diseases to find others, like us, who understand our journey.
Episode 13
Aired: February 9, 2020
Rheumy Rounds™ Pilot Episode: Office Visit Communication Obstacles
Join your patient co-hosts, Tiffany and Kelly, as they are joined by roundtable guests - rheumatologist, Dr. Alfred Kim, and graduate researcher Jerik Leung -as we dive right into the heart of the issue - communication barriers that currently exist between patients and their rheumatologists in the office setting.
Mini-Episode 12
Aired: February 5, 2020
Intro to Rheumy Rounds: Patients & Rheumies Unite!
This week we introduce the new breakout series “Rheumy Rounds”, debuting Sunday, February 9th. Two very important stakeholders - the rheumy and the patient - unite in roundtable discussions so each party can equally contribute knowledge so, together, we can solve important issues and improve outcomes!
Episodio 12
Emitido: 2 de febrero de 2020
Impacto invisible: AiEnfermedades artríticas
Únete a Tiffany y Effie mientras hablan sobre los desafíos de vivir con una enfermedad o discapacidad invisible. Esperamos que este episodio sea el primer paso para crear conciencia y empatía hacia las personas que sufren en silencio. Nuestras enfermedades comienzan a nivel celular, por lo que el dolor y otros síntomas empiezan mucho antes de que se produzca cualquier daño. Esto puede llevar a quienes no pueden "ver" ninguna lesión o enfermedad a suponer que una persona no está tan mal como dice estar. ¿Qué experiencias y desafíos has vivido debido a la invisibilidad? ¡Dedica un tiempo a Tiffany y Effie y luego entra en las redes sociales para compartir tu historia!
Mini-episodio 11
Emitido el 29 de enero de 2020
Enfermedad invisible: Magulladuras internas
El tema de esta semana aborda los desafíos asociados con las enfermedades invisibles. ¿Cómo obtener el apoyo y las adaptaciones necesarias cuando la gente cree que uno aparenta estar sano? ¿Ha tenido algún incidente que haya marcado su comportamiento en el futuro? ¿Siente la presión de tener que aparentar algo con su discapacidad?
Episode 11
Aired: January 26, 2020
Oh Mama! Pregnancy Planning with a Chronic Illness
This week the show is recorded at the American College of Rheumatology (ACR) annual scientific meeting where patient co-hosts Deb, Mariah, and Tiffany tackle the topic of pregnancy planning with a chronic illness. They also had the opportunity to invite Linette Dyer from Mother to Baby to give input on existing treatment research and safety information. Mariah is the founder of Mamas Facing Forward, an organization that supports Mothers with chronic illness, and a mother who has experienced both non-medicated and medicated pregnancies. Deb experienced pregnancy when doctors believed that AiArthritis patients could not take any medication during pregnancy or breastfeeding, and Tiffany inquires about concerns from a person who may be interested in planning a family.
Mini-Episode 10
Aired: January 22, 2020
Life of a Biologic
This week, we are tackling the subject of biologic therapy*, specifically why they sometimes stop working. There are some ideas proposed by existing research for the sudden loss of efficacy, but there really doesn’t seem to be much out there. AiArthritis is on a mission to get to the bottom of this issue.
Episode 10
Aired: January 19, 2020
Patients Weigh In: Why the 'Right' Diagnosis Name Matters
This week, join your co-hosts Charis Hill and Tiffany Westrich-Robertson as they discuss the evolution of the term Ankylosing Spondylitis into the new umbrella term: Axial Spondyloarthritis. What does this new term mean? How will it impact treatment options or the patient experience? Does it even matter what your diagnosis is if the treatments for AiArthritis are all basically the same? Listen in as they talk about these and other issues surrounding finding the right diagnosis. Then visit us on social media or submit your comments via email to make your voice heard in the ongoing discussion.
Mini-Episode 9
Aired: January 15, 2020
Precision vs. Personalized Medicine: Using the Right Term Matters!
Tiffany talks about precision vs. personalized medicine. Our organization is working on a project called Preparing Patients for Precision Medicine to help educate patients on the terminology surrounding precision medicine.
Episode 9
Aired: January 12, 2020
Changing the world with your knee - investing in our future
This week join Tiffany and Deb as they welcome Dr. Aurélie Najm to the podcast. Dr. Najm is a rheumatologist and clinical researcher and currently serving as the co-chair for the European League Against Rheumatism Synovitis Study Group and part of the OMERACT (Outcome Measurements in Rheumatology) Synovial Tissue in Randomized Clinical Trials working group - which Tiffany and Deb also participate in. She explains how her teams are working to collect and analyze synovial tissue samples from Rheumatoid Arthritis (RA) patients to develop more precise approaches to treating the disease.
Mini-Episode 8
Aired: January 8, 2020
Brain Fog
Studies have shown that most people with AiArthritis experience brain fog, but why? What does the experience feel like for you? Tune in for information on the causes and a few strategies for combating it. Then go to social media and tell us how you manage brain fog or let us know what you want to learn more about.
Episode 8
Aired: January 5, 2020
Where Can Patients Have a Voice? EVERYWHERE!
This week, join your host, Tiffany, as she and co-host Suz Schrandt talk about the variety of opportunities that exist for patients who want to become active in medical research, education, and advocacy. Regardless of your background, there are opportunities for you to get involved and help shape the future of medicine and science regarding autoimmune and autoinflammatory arthritis. Your voice matters, and you can make a difference. Pull up a chair to find out how to get started and where your journey could take you!
Mini-episodio 7
Emitido: 1 de enero de 2020
Propósitos para 2020: ¡Hagámoslo juntos!
Las probabilidades de cumplir los propósitos de Año Nuevo son bajas, para todas las personas, debido a problemas de compromiso. Entendemos... aquellos que viven con AiLas personas con artritis a menudo no pueden comprometerse con actividades que puedan verse afectadas por los brotes. Por eso, estamos planeando crear un grupo de apoyo y educación para fomentar la comunicación entre quienes reciben el diagnóstico y sus familiares y amigos, así como para que quienes lo reciben se apoyen mutuamente compartiendo consejos e historias de éxito.
Episodio 7
Emitido: 29 de diciembre de 2019
Revisión de fin de año
Esta semana, únase a su anfitriona, Tiffany, mientras presenta el Informe de fin de año de 2019 sobre AiEl trabajo de la artritis en beneficio de la AiComunidad de Artritis. Tendrás un asiento en primera fila mientras ella explica el importante trabajo AiArthritis ha estado haciendo desde su creación, los objetivos de la organización para 2020 y cómo el apoyo es vital para hacer realidad este trabajo.
Mini-episodio 6
Emitido: 25 de diciembre de 2019
El mejor regalo
Te invitamos a unirte a tu anfitriona Tiffany mientras habla sobre los mejores regalos. Cuando eres niño, el mejor regalo suele ser un juguete emocionante. A medida que creces, tu regalo ideal cambia. Las personas con AiLas personas con artritis se benefician de herramientas que les permiten mantenerse activas y cómodas para disfrutar plenamente de la vida. ¿Piensas en ayudas para la movilidad al comprar un regalo para alguien especial? ¿Te gustaría tener un abrelatas o una almohadilla térmica? Queremos conocer tus mejores ideas sobre herramientas, dispositivos y artículos que mejoren la calidad de vida de quienes viven con artritis. Acompaña a Tiffany mientras comparte sus mejores (y peores) regalos y cómo han cambiado sus deseos desde el diagnóstico.
Episode 6
Aired: December 22, 2019
Diagnosis STAT!
This episode join your host, Tiffany, as she and co-host Suz Schrandt discuss the importance of early detection and diagnosis. They address barriers to receiving an accurate diagnosis, as well as what patients can do to increase their chances of receiving an accurate diagnosis in a timely fashion. Research consistently shows that early intervention improves patient outcomes. Whether you are a patient looking to confirm the accuracy of your diagnosis or avoid diagnostic delays in the event of new disease onset or a member of the public wondering if you or someone you love could be experiencing the onset of a rheumatological disease, this episode is a must-listen!
Mini-Episode 5
Aired: December 18, 2019
Flu or Flare?
Join your host, Tiffany, as she talks about trying to differentiate between flu and flare. Are you coming down with a virus? Or is your AiArthritis flaring? We want to start a conversation about how you manage your flares. How do you juggle work, family, and life when you feel terrible and look fine? Symptoms of AiArthritis Disease flares often mimic those of having the flu. Believe it or not, many of us question which it is at first - flu or flare?
Episode 5
Aired: December 15, 2019
Navigating Your Own Health - Focus on Registries/Databanks
This episode, your host Tiffany and her co-host, Kaleb Michaud, as they tune in from the American College of Rheumatology (ACR) meeting to discuss the importance of navigating your own health journey as a patient by having a voice in activities such as databanks and registries. FORWARD, and the associated projects mentioned, will not only help patients become more active in managing their own healthcare, the patient contributions will also benefit the advancement of science and the understanding of rheumatology.
Mini-Episode 4
Aired: December 11, 2019
"Who Am I Now?" Finding a New Normal
Join your host, Tiffany, as she discusses discusses the phenomenon of a shifting identity. The way we see ourselves can change radically after diagnosis or symptom onset of an AiArthritis disease. But, as Tiffany points out, “having these diseases isn’t the end of the world. It’s just another way of living in it.” YOU are still YOU ... and you're probably pretty awesome!
Episode 4
Aired: December 8, 2019
Support Animals: Chronic Illness and Pets
This episode, your hosts Tiffany and Kelly are joined by special furry co-host Georgia Grace as they dive into the topic of animals and pet ownership. Learn about the difference between service, emotional support, and therapy animals and how owning a pet can benefit people living with chronic illness. They also discuss tips for selecting and caring for pets in spite of mobility challenges and weakened immune systems. Finally, learn about the experience of owning a pet with a chronic illness and how it can enrich your life.
Mini-episodio 3
Emitido: 4 de diciembre de 2019
Comunicar cómo se siente tener un AiEnfermedad de artritis
Únete a la coanfitriona, Tiffany, mientras habla sobre la necesidad de comunicar lo que se siente al tener un AiArtritis. Esto es importante porque, con demasiada frecuencia, las personas que padecen estas enfermedades son "invisibles", ya que el dolor y otros síntomas (fatiga, síntomas parecidos a los de la gripe) generalmente no son perceptibles para los demás. Entonces, ¿cómo se explica esto?
Episode 3
Aired: December 1, 2019
Autoimmune vs. Autoinflammatory: What's the Difference?
This episode join your host, Tiffany, and special guest Dr. Apostolos Kontzias from the Center of Autoinflammatory Diseases, as they discuss the distinction between these two sides of the immune system, and the diseases that stem from them. Inconclusive laboratory results, a shortage of experts in the field, and poor understanding of these conditions can cause diagnostic delays, leading to poor outcomes. This confusion also causes patients with adult onset diseases become a forgotten subgroup within the AiArthritis community.
Mini-episodio 2
Emitido: 27 de noviembre de 2019
La necesidad de diferenciar los tipos de artritis
Acompáñanos con nuestra anfitriona, Tiffany, mientras analiza la necesidad de diferenciar los tipos de artritis para abordar los malentendidos que conducen a conflictos en las relaciones y a un diagnóstico precoz, lo que puede resultar en una calidad de vida comprometida y mayores costos para nuestros sistemas de salud.
Episode 2
Aired: November 24, 2019
Typical vs. Atypical: Which are you and why does it matter?
This episode join your host, Tiffany, as she and co-host Deb Constien discuss the challenges faced by patients who experience atypical disease presentations, especially the need to advance our understanding of this phenomenon because the typical is not so typical. This concept is vital for early detection and improving outcomes. They also explore the ways that a lack of commonality among disease presentation and progression impact advancements in treatment options.
Mini-Episode 1
Aired: November 20, 2019
Step in the right direction:
Mobility issues due to surgery, disability, or flares
Mobility is a key theme we will cover in many episodes. In this first mini "At the Table" episode, we are discussing situations that patients may face when normally able to put pressure on their foot/feet and then suddenly are challenged to walk (or anything else involving the feet). We featured a story in this episode from Deb, who has had foot surgery due to Rheumatoid Arthritis and is unable to put weight on it for up to 12 weeks.
Episode 1
Aired: November 17, 2019
The Mystery Patient - How AiArthritis Came to Be
This week Tiffany is joined by Kelly to talk about their experience of being Mystery Patients and to share their diagnosis story. The route to diagnosis and treatment is often long and complicated, but it shouldn't be. The discussion also gives an overview of the goals of the podcast by giving an overview of The International Foundation for Autoimmune and Autoinflammatory Arthritis, what we do, and invites all patients to the table to talk about their experiences as "the mystery patient".